Would you rather die than be disabled?

[@Kenzie_McIntyre]

no way ....I would always want to be alive experiencing life..your suicide vids were devastating to watch at the time and i have followed you for so long because your transformation has been so amazing and inspiring ..❤

[@Kenzie_McIntyre]

as someone who looks after people with sci in the first initial stages i can tell you we have the devotees come to the hospital and work as volunteers and sometimes can be quite alarming

[@onarolldan]

Yes, sure it has it moments but things aren’t easy and the strain it puts on your household and circles is mind blogging sometimes.

[@Kenzie_McIntyre]

8 days seems kinda short to decide if a person is depressed and will recover or thats it !!!

[@mizscarlettdragon]

I don’t think 8 days is enough because when I became paralyzed my son had died 5 months prior. I was 51. Mentally I wouldn’t be able to make a decision. I would have chosen to die. I thought becoming paralyzed was a punishment for him dying. ( he was 31) I wasn’t coping with his death, so how could I rightfully decide?

[@TheChelissa]

My Canadian father who is 84 and has enjoyed a full life (so far) was diagnosed with THREE different terminal cancers, plus a potentially killer aneurysm. He was in the hospital and I "got the call"...so I traveled across the pond to say my "goodbyes", where the doctor asked to have a word with me and said that he could not casually have the M.A.D.E. conversations that my father requested. We needed to have proper documents, lawyers, and multiple consents. It's not a simple case of "paperwork" or request. It's actually quite costly! Some of the information you're speaking about in Canada is extremely incorrect. It's not paperwork and assessments. There is a very intact process that the "good" doctors follow. I enjoy both of your channels but want to speak up about inaccuracies.

[@FreddotheWheelchairGuy]

This is great. Thanks for bringing that up. I had no idea and was just going off what Brittney told me. This seems much fairer and often it’s the case that we hear things amplified by a media source without nuance and run with it. I’ll make sure we address it in the next podcast, as it’s good to acknowledge when we make honest mistakes. Thank you 😊

[@TheChelissa]

@@FreddotheWheelchairGuy All good! Always a great result when conversations begin. They're "icky" conversations, but useful. In any case, glad you're both here! 😉

[@mizscarlettdragon]

I don’t think 8 days is enough because when I became paralyzed my son had died 5 months prior. I was 51. Mentally I wouldn’t be able to make a decision. I would have chosen to die. I thought becoming paralyzed was a punishment for him dying. ( he was 31) I wasn’t coping with his death, so how could I rightfully decide? Here in the US. We don’t qualify for aid ;we make “too much “. We have to buy my diapers,wipes,cloths and pay monthly nurse visits,my bed , hoyer lift. It adds up. That is before my medication. It feels like my family would be better off. My husband is my caregiver and works.These things often run through my mind. I am jealous of people who can go to the bathroom and feel it. At least you can laugh about it. I don’t go out because of that issue

[@FreddotheWheelchairGuy]

That sounds tough, I’m sorry you’re dealing with that.

[@Kenzie_McIntyre]

wow thats really debilitating but a realistic account of what people suffer ...sorry u have to suffer that way

[@Kenzie_McIntyre]

​@@FreddotheWheelchairGuyI feel ghosted by you 😢

[@Kenzie_McIntyre]

i didn't realise , even with my nursing experience , that Baclofen was hard to come off ...is Lyrica an option ???i can also ,hand on heart , say we do not use medications to make our nursing work easier where i work ...just not done