XXY Talk: Braydon Plante Age 13

[@ricardoaguilar6423]

Hello, my name is Ricardo, I am 15 years old and I live in México, today I was studying for my biology exam and I saw there was the topic of Klinefelter syndrome and when I was investigating about it I realized that I had this syndrome, at first I panicked because I started watching all these images on google, but then I entered youtube and searched more about this topic, and I found this great channel that has helped me a lot to understand the gift I have, all my life I knew that I was different but I didn´t know how, know that I know I would like to spread this information to the world, because what we have it´s not bad actually it´s one f the best things somebody can have, because even dough we have some problems with the writting and litening we have a lot of oher abillities that no one else have, thank you for taking the time to read this, and also thanks for this great channel, pleas never stop posting videos, you are a grat man and I wish that you get more views and suscribers, thank you for everything.

[@LivingwithXXY]

Did you get a karyotype test?

[@judithpedreira6609]

Hello Re carso, how are u doing nowadays?,

[@UseYourManners123]

I’m so glad you post these, as my boy has this and Drs. really didn’t say anything except he might have learning disabilities and fertility problems. I was really worried because of some of the few things floating around on the Internet. I want to be prepared for anything. I was having a lot of anxiety about the whole thing as I want the best for my child. I hope you keep these up. I want to know how to handle situations and problems that might come up and I want him to tell me too. Thanks you very much Braydon! Thank you both!

[@simonohara2053]

There is a great Facebook group with some very knowledgeable parents and some professionals too. It is called "Klinefelter Syndrome/47XXY/X and Y Variations Support Group" Come join us.

[@bgw33]

Love to hear an update about how Brandon is doing. Super worthwhile video

[@LivingwithXXY]

There will be one this winter. Thank you :)

[@wilsonsantos7310]

I wish my parents had done it for me, but what they did was hide, but I forgave them. I like to see kids who have the opportunity to perform the treatment the right way and have the damage from the KS alleviated. Keep up the work. Come and visit me if you ever come to Brazil.

[@rebeccadejong5087]

Thanks for sharing your story, Braydon!

[@carriewhite2621]

So glad to have found this channel my little boy is five and was diagnosed in utero it’s so amazing to watch

[@LivingwithXXY]

Thank you!

[@melissahardy3704]

I REALLY love these videos of real people living with 47XXY and being transparent about some of the challenges but also showing that they are pretty much just like everyone else.

[@ignoreme.8719]

They are not transparent they just have some of female characters

[@mathewfasone1273]

It was great to hear about others homeschooling. I know some of the boys don't like it but it was a great to hear we were not the only ones to try it. It was a way to balance and regroup after a couple of bad years at school academically and socially.

[@LivingwithXXY]

We will do a video when I come back to Denver. Hope you are well.

[@lisarogers5065]

Hello I have felt so alone for so long. Thank you for these videos. My 10 yo African American son has Klinefelters Syndrome your shared experiences gives me hope again Thank you!!

[@LivingwithXXY]

Thanks for sharing!!

[@brian1988]

Thanks for sharing your video. It's critical that kids diagnosed with Klinefelters get into speech and occupational programs as early as possible, whether through local hospitals paid by your health insurance, and/or through your local public school system Child Find office that evaluates and admits kids into special education programs. My son was diagnosed through genetic testing while still in the womb. He is 4 now, and is in the Loudoun County, Virginia, Child Find program with an IEP (Individual Education Program) where he attends special education at the local elementary school 3 days per week, and also receives speech therapy for 30 minutes each day. I also found out that my health insurance provided pediatric occupational and speech therapy coverage, and enrolled him at the local INOVA hospital, where he is making great progress in 1-hour speech and occupational therapy sessions. INOVA also has a socialization class that he is attending. Overall, my goal is to do everything I can as a parent to give my son a headstart so he is up-to-speed with other kids when he starts public kindergarten in a couple years. Later, we'll track the testosterone treatments. If your child has Klinefelters, don't wait and expect that your child will outgrow any learning, speech or social issues. Take action now to get your child help! Also make certain your child is exposed to as many different social settings as early as possible.

[@samberlin3564]

Brian Sullivan i just found out I am 15 weeks pregnant and I am definitely planing on doing basically the same! I’m from Germany and prenatal testing isn’t really a big thing here but I still decided to do the harmony test and it came back positive! It was a shock but besides that the ultrasound showed us a healthy baby so we have to make the best out of it... I’m still scared of the unknown

[@FLYINGWARRIOR19661]

It’s cool that you are mentoring Brayden....good to find out early..and know that it’s okayyyyyy to be xxy. Everyone xxy and so called “normal” have struggles....but we work just a little harder to overcome them. I haven’t come across anything I can’t do, if you have the desire you can do anything...

[@CTJonathan333]

@0:50 he is lucky he is found out early and I am still learning at 44

[@lanthony9083]

Hey man. This is awesome stuff!! Helping and educating young and old ppl know that they are not that different and can live a healthy, happy, normal life with KF. I never heard of this before till now. Doctor's still disappoint. Babies that are born a lil differently and because they don't know much about KF they want to sweep it under the rug instead of learning about it. Isn't that why they become Doctor's so they can learn about certain issues to help ppl.. Just like the aweful things they do to babies that are born intersex. "Irregular chromosomes" Sometimes they don't even tell the parents about their own babies that are born with different chromosomes. They out and out lie to them. I've watch stories about what kid's are going through and still are. Docz mutilating babies when there born. This all has to stop. I'm glad your advocating for ppl that are born with KF. It's not right and I'm really happy that your helping ppl from all over the world. Your a kind, compassionate guy. It's ppl like you that make this world a better place. Thank you both for sharing your story. And I cracked/hit👇 that sub button!😂 All the best brother.👏👏👏👏✌🤘

[@JohnOutraVolta]

Thanks for your video!!!

[@fin1shingtouch1212]

Awesome Video!👏🏻👏🏻👏🏻👏🏻🙏♥️

[@devinmata8641]

I’m 16, just found out I have it. I have some of the symptoms, but not all. I struggle in math and writing. I’m 6”3 and skinny. I have some dyslexia and adhd. I’m very shy, I don’t talk about my emotions. I don’t interact a lot, I run cross country and track.

[@bantsszone]

Have you started trt or hormone therapy?

[@teambower1636]

It was great to hear from Braydon! My son is 13 as well. They both have a few similarities. Likes math, science, play sports. But my son also has ADHD. And everything that comes with that. He struggles with reading comprehension & writing. Since entering Jr. High he has anxiety. To the point he allows his fear of being embarrassed or not good enough stop him from doing the things he likes to do. He can go from 1 being calm to 10 being very angry in a heart beat. I knew my son had Klinefelter’s before he was born. So I’ve always been pro-active to any issues that may arise. He’s going to start seeing a counselor. I’m hoping that will help him learn to deal with his anger & help be comfortable in his own skin. Is what my son is going thru is it just an ADHD issue or is it partly a Klinefelter issue as well?

[@autumnkuenniger4515]

From what i know, anger isn’t really associated with Klinefelters syndrome, in fact, the more common personality traits I hear is “quite” “people pleasers” and things along those line, but every one is different? And maybe it could be the unique way both conditions effect him at once?

[@katherinehayes7372]

This is exactly how my son is also ,he is 12 ,I think it's a mixture of both conditions.

[@judithpedreira6609]

Great video!

[@LivingwithXXY]

Thanks!

[@-redranger-]

My son is 18 about the same age as him now he has Klinesfelter too.We live in San antonio. Any chance we could exchange contact information with him see if they could connect with each other?

[@LivingwithXXY]

Join our facebook Group or head on over to our website and send us an email. We can connect you there.

[@markcaesar4443]

Hey Braydon. I think you're very lucky to know at an early age that you have KS, you can take all the steps available to make your life as normal as possible. I was 46 when I found out I had KS and started with the Testosterone. The T is great for normalising things, I wish I'd known I had KS from an early age, my life would have been somewhat better if I had been taking T from an early age. Don't get me wrong, I'm not complaining about my life. I was great at math and science too, I guess it's the fact-based subjects that people with KS handle better. I say find your strengths and make them work for you. Something I always had slight difficulties with was socialising. I guess I just felt different too what most people do and that sort of got in the way of things. Make sure you concentrate on that side of things and you'll have a great life.

[@ambidexmed]

How did you find out? And did you suspect it?

[@rz5b1qszkdf44]

why didnt u notice the lack of testosterone earlier? Or did u only have slightly reduced T levels?

[@markcaesar4443]

@@rz5b1qszkdf44 At the age of 26 or 27, I suspected that my T levels were low so I had them tested. Unfortunately, the young doctor that I saw only tested my "Total Testosterone" levels and nothing more. The levels came back as being in the normal range. I had no reason to suspect other than that for the next 20 years, even though my symptoms were the same and my first suspicions remained. I guess I put too much faith in what my doctor had told me. People with Klinefelter Syndrome have raise levels of SHBG, Sex Hormone Binding Globulin. What the SHBG does is bind up some of the Testosterone and basically make it unuseable by your body. While my Total Testosterone levels were within the normal levels, my Free Testosterone levels were much lower than normal and my SHBG levels were much higher than normal. When I was finally frustrated enough to get tested again, I had a different doctor that knew far more about KS than my previous doctor and knew what tests to order. If not for my first doctor not knowing what she was doing, I would have been diagnosed far earlier and been on Testosterone therapy much earlier. I guess my advice here would be not to be shy about seeking a second opinion if you don't think the first opinion is right.

[@rz5b1qszkdf44]

@@markcaesar4443 my total testosterone is at the lower end of the range (about 400ng/dl) but fortunately my shbg is also low... furthermore, my LH and FSH are quite within the normal range, too. I'm still wondering why I am not able to grow any facial hair at 32 y o. Beyond that i have low libido and fatigue. Do u think i should get a karyotype to make sure i dont have xxy?

[@markcaesar4443]

@@rz5b1qszkdf44 If I was in your situation I would get the Karyotype test to be sure one way or another. Knowledge is power, when you know exactly where you stand you can take appropriate actions. Are you using Testosterone cream, even though your T levels are within the normal range? Or T shots, I always think o the cream first because that is what I use. If you have the Karyotype test and it shows you are XXY, you could discuss with more authority and knowledge what treatments you should have. To be 100% sure, my doctor had me take a Karyotype test and the results were XXY. I guess a contributing factor for you might be the cost. Here in Australia, the Karyotype test was free for me since the doctor ordered it.

[@judithpedreira6609]

Would like to reach out, how can I do?, We are from Spain

[@trevorgeary6497]

I found out today my one year old son has it...

[@floydjackson5895]

hi i’m 15 and i was wondering if my parents would know if i had this?

[@LivingwithXXY]

Ask them.

[@alyasbbykhalffershaddeck8674]

I have the characteristcs. But im not sure.

[@LivingwithXXY]

You need to get a karyotype.

[@rz5b1qszkdf44]

@@LivingwithXXY since almost every man with KS has small testicles he can find out by looking at his balls... or am i wrong?

[@نورالهدى-ب3ر5ض]

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