You'll Regret It, But Its OK (Dealing with the Consequences of Our Health Mistakes) | Let's Talk IBD

[@petitmadi]

My husband often tells me that he can't understand why I eat something that I know will make me sick... Yeah, you can't understand because you are HEALTHY! And also many many times I hear from my family "You are sick again?!" with a tone and a look that insinuates that it's my fault, that I probably ate something I shouldn't have, which most of the time is not really true. I happen to be sick for no reason because I have a CHRONIC illness !

[@cockeyedoptimista]

People can be harsh. Seems husband should be supportive, though!

[@aleshairwin8838]

I have a couple of rescue kits. One has my rescue meds & the other is filled with things that make me feel better or things to distract me (fidget, puzzle, game, book, etc). I also have duplicate blankets & pillows in the bedroom & in the living room in my chair. That way I don’t have to carry them from one spot to the other.

[@gigilala4440]

Maggie I look at something and say no don’t eat it, no don’t drink it! The next thing I’m saying is why did I eat it? Why did I drink that? It’s because we’re tired of denying ourselves so we pay the price.

[@wondertwin13]

💯

[@rebeccaclavette2329]

Totally agree with the focus of the illness. I just don’t talk about my many issues much. If people ask I’m fine answering, but then I’ll try to change the subject pretty quick.

[@Sandgee62]

Oh, maggie, been there, done that, at times sadly I still do it. A long time ago I finally got so disgusted with the advice and platitudes that I basically told the close by world, no one can give me any advice unless they go through it first. It has saved me from many troubles. My illnesses have provided me with a life that pretty much sucks, but no one will ever say “if you would only”…. My warm bed, my food processor, my stash of water and powder electrolytes, my dog, and a very quiet area is what is needed. We are not our illnesses, we a humans who happen to have a chronic illness.

[@bobsteffen2011]

Spot on with today's makeup... although... you don't need makeup. I've been following you since August 6th when i woke up in the hospital with a colostomy bag. You helped me through some rough times. I'm now 72 and had my ostomy reversed on 12/26/22. Still enjoy your videos. Your attitude still helps me maintain a positive outlook. Thanks for all you do and have done for us Crohn's/IBD patients. Zak is a lucky guy.

[@cockeyedoptimista]

Yes: tthose earrings! The pellucid greens. With the dark pink lips. Maggie's very pretty today (as always).

[@cockeyedoptimista]

I woke up with a colostomy too, in mid-April last year. But I only just got mine reversed. I'm two weeks into recovery but I'm here bc eating is still a problem: almost worse, so I hope things will return to normal. I'm incredibly constipated. I gotta move more; probably shouldn't be doing this. Oh well. It beats celebrity gossip. Did your recovery go well? Congratulations on doing all that at age 72. (I'm not far behind you, actually. Just in denial!)

[@bobsteffen2011]

@Cockeyed Optimista ; Yes, my reversal recovery has gone well and faster than I anticipated. All systems are working normally, except maybe my stool is still looser than I would like. I lost 22 pounds after my colostomy surgery, but I've gained 16 pounds back.... darn. Crohn's disease was my tormentor for years. 4 surgeries later, I'm short about 14 inches of colon and 6 inches of small intestine. Only discomfort I notice is the Stoma closed scar is still tender to touch. It's healing, so hang in there. P.S., I don't miss the bag. 😊

[@dacisky]

I never really thought about it,but I also have mandatory items here just in case. I always have chicken,beef broth or bone broth on hand and eggs.Sometimes I make egg drop soup by throwing an egg in hot broth.I also have frozen home made soup on hand. ... Pheneragain and several bottles of potassium and magnesium and two electric throw blankets and a heating pad. are added to the mix and the usual pain meds...I very seldom eat things I know better than to eat,but sometimes something safe might whack me out of the blue,so I'm prepared. I see more than a GP Doc,but I also go to my GP first..I've also got the Pheneragain shot in the butt,so to save the hassle,I have a lifetime supply of it as needed and no arguments from the Doc on that.🙂

[@scillataylor3883]

Just wanted to say that I have always told people that free advice is worth exactly what you pay for it! Except yours Maggie!

[@clbrad402]

You are so helpful and reassuring to many, including myself. Thanks Maggie. Also, you're so naturally pretty...nothing phony about you😘

[@cockeyedoptimista]

I like her pleasant sense of humor: that is also very natural.

[@susanschellenberg6980]

Thank you! Your insights are very helpful!❤

[@oldvinezen9857]

Great topic Maggie! I just taught a class to my cancer patients about The state of awareness or "enlightenment". To be aware, to recognize all of our patterns of thoughts and actions and to continue to do better, this is the enlightened person. We are not perfect, nor will we ever be perfect, but to continue to watch, learn, and grow is our responsibility. To do better, to fail, and to start over, again and again. You are doing it, gracefully and humbly. If you're ever free and have the interest I talk about these issues on Old Vine Zen. Many thanks to you and your inspiration!!!

[@zephyraK]

Although I get a lot of understanding and compassion from the people around me, I think the part that is sometimes difficult to really understand for healthy people is that it is a CHRONIC illness. Which means it is almost always there and cannot easily be solved. And thats okay, because it is a difficult concept to grap even if you go through it. And we can't just be always strict with ourselves.

[@hannahedwards1626]

I have IBS but I relate to this, sometimes I really just want to taste something even though I know it probably won’t be good for me. Very difficult sometimes but you only live once and sometimes I think you just want to taste the nice food/drink 😅

[@cockeyedoptimista]

Can you taste it and then spit it out? I guess not in polite company..

[@aquamon17]

​@@cockeyedoptimista Think Julius Cesar did that after the orgies.

[@hannahedwards1626]

@@cockeyedoptimista haha perhaps 😅 wouldn’t be easy not eating though 😂

[@cockeyedoptimista]

@@hannahedwards1626 Yeah, that's true. I can hardly even do "a taste", like when people just have "a thin slice" or "just a bite" of something. But if I Know it's going to hurt me (for whatever reason), I'm getting better at it. It's hard to be around temptation, too: I might not even be thinking about something, but then if I see a lot of it, I want it.

[@donnadifulco9265]

I have fibromyalgia among other things. There are certain physical things I can no longer do anymore. I miss my old self ❤

[@tygerlillee]

❤

[@staceyjohnson2929]

I have RA and do the EXACT. SAME. THING. when it comes to going down and sleeping on the couch when I'm flaring especially!!! I feel seen! :D

[@LetsTalkIBD]

I'm glad I'm not the only one!!

[@asherrogers2687]

I definitely have a recliner with my name on it.

[@richardstafford4170]

Sometimes we need to have a blowout and do something for enjoyment knowing there will be a payback but decide outweigh it or not , if we get a lot out of it but doesn't make us too ill then it's worth it .

[@ibdandme]

Awesome video, thank you so much Maggie ❤

[@cindys2995]

Thanks for this! I totally agree.

[@karenshepler7128]

I appreciate your time and thank you for sharing as I have a big problem with chocolate and I eat it as when I am stressed that's what I want but my chron's don't like it and I get sick but it is the price I pay .so take care and thanks again 😊

[@kittymorse7402]

Maggie I have learned more from you than anybody. I have never had a doctor for my Ostomy. I went to a wound care doctor at the hospital a few times when my whole belly was infected and we had to figure out what pouches would not or would break me out.

[@donnadifulco9265]

When I had my ostomy I had a lot of problems with leakage and the wafer not wanting to stay on my skin. What made matters worse was I developed a hernia. After enough time passed and I was able to have the reversal surgery. I just wondered why I didn’t have an Ostomy Nurse checking on me or teaching me tips and such. For those of you who are new patients who have an Ostomy please be sure to have a Dr or Nurse Practitioner check on you. I don’t want you to be like I was with an ill fitting Ostomy xoxo

[@AG-ey6ds]

I work in an office with a nurse practioner that is WOCN and she is awesome with any ostomies. Houston area

[@asherrogers2687]

Maggie if I ever run into someone with health issues, especially like ours, I can tell most of them would love to just dump it all out. (no pun intended 😜) I try to refrain like you do, but I'm willing to hear them and assume they'll listen to me. Your channel should be the place you can feel free to gripe, bitch, moan, complain, etc. It feels good to let it out and MOST of your subscribers can relate. Enjoy & Take care.

[@cherihermans9118]

Have done the same thing many times ate what I shouldn’t ate what I shouldn’t had a bad day next day but life goes on

[@narrowgate528]

Your earrings are gorgeous, so is your blouse; green is my favorite color.

[@pjk1714]

Maggie as soon as I can find a favorite blanket, I rush to buy another. That way it's put away waiting for me and tripping down the stairs is less of the equation. I like the berry nuun. I also keep canned peach halves. Depending on stage those and fennel tea reset.

[@cockeyedoptimista]

I love canned peach halves!

[@JMPschool1]

I've always thought I could use a basket to tote around all my paraphernalia lol but I still end up walking around like a toddler trying to carry their whole bed to the couch.

[@TallulahMorgana]

11:32 there is a company called Stickman Communications (I'll check the name). They make special cards. You could stand up and place the card in the space that you were in. That way they can just check your spot and read the card if you leave. No words have to be exchanged. xx

[@theresahernandez2350]

I have gastritis and have sabotaged my stomach many times there are things that I know will get me sick 🤮 so I have done that too

[@rebeccaclavette2329]

Do what you gota do. I live my heating pad!! Lol. I’ve had to eat baby food for a year, when I’m not feeling well now I find myself reaching for them. So what is best for you.

[@shenazpatel8195]

Mags,I had very hot wings tonight and my stomach hurts badly!!! Boy did I learn my lesson!!! Hey live and learn!!!😂

[@tanianigelwade8935]

Yip I hear the bathroom visits being out anywhere. Luck my children 🙏 grown and family members don't understand but they do try. Just understanding my son and daughter both have IBD. They get me more than anyone else other than my wonderful husband of 40years. 😊

[@Dexy83]

In the middle of months of testing, I changed primary care provider because the doc I bonded with left the group. I'm seeing the new primary in early May. Therefore, I'm dealing with 4 different specialist who I often find don't know what the others have done. Fortunately, I travel with all the reports in case they can't be accessed by the doc.

[@deborahshore-robinson5800]

I have an ileostomy and gastropareses. My partner is always saying , well why did you eat it if you are going to puke it back up, I would just say I wanted it. I have a jej that I hook food up at night the fluid feed is all I'm aloud. I have a lot of other illness but I don't talk about them much. So I get what you are saying.

[@pamdewall4588]

Grape is my favorite flavor!! Try it again!!💋

[@DruuzilTechGames]

Getting close to 100k there Maggie.

[@cgomez77]

It would be so amazing to talk to you. I am also a nurse and have a temporary loop ileostomy due to years of colitis, constipation, polyps, belly pain, medications, etc. The plan is a collector and anastomosis but I feel hopeless in this journey. I have had the temporary loop ileostomy for 3 and a half months and am still in the hate stage. I have lost 25 pounds, no food is appealing and I cannot keep an appliance on longer than 2 days, but more often I have a leak within 24 hours. My output will not thicken up no matter what, I have been in the hospital 3 times; My skin is very sensitive and EVERY seal, ring, paste, sheet, etc I have tried has dissolved and I have output on my skin very rapidly. I am so tired of having burning, itching, discomfort around my stoma. Tonight we put a brava protective seal on my skin and a trio siltac seal on top of that and then sat my wafer on top and I am praying with all my being that the silicone seal keeps the output from seeping in between my stoma and the wafer. Any advice appreciated!

[@cockeyedoptimista]

Well can you get it reversed soon? I'm sorry this happened to you, I love nurses, they have been soooo helpful to me on my several hospital stays. Please stay hopeful; tell yourself what you would tell one of your patients! Hang in there; things will get better.

[@Mickeystwin33]

The 2 ads I had before this video were for 1. A medication and 2. Cookies. That feels accurate for this video 😂

[@chronically_bqueenb]

I’m allergic to biologic medications I was born with rheumatoid arthritis I have the perfect pain management

[@lisawinstead9374]

I have an urostomy I am still dealing with I’m trying to drink more water more but it’s hard

[@maggotspawn6882]

How's the garden doing?

[@deborahmeyers551]

Peace out is the right thing to do unapologetically I need to care for myself because I've been a little devil🤭 yeah me 😇 I have a Soothing bag of all the little things tgat will bring me vack from tge grave into grace 😋 so that I can hold my head up high again and be my happy self I have cancer recurrences amd a illiostomy forst amd now a colostomy thanks for sharing Maggie 💗

[@malinnesse3876]

☀️

[@annegariepy3823]

I have Bio-K that help me. I'm on remission form my Ulcerative Colitis. Most if time, I eat food that I'm allowed to eat. Say hi to Zak for me please. Take care of you. 🙂

[@charliealpha8888]

I never heard of an ostomy until I saw your video

[@joywright7297]

Hey Maggie, I have a question for you. My stoma and everything that comes out of it smells like onions. I have not eaten any for weeks. Have you ever heard of this?

[@paulineking1968]

I get advice I just ignore them. Help would be nice right now. I had a really bad fall and I broke my right arm! Changing my ostomy has really gotten hard. My pcp nurse was so nice and changed my bag but I can’t go there everyday. So I am really having a time changing my bag. Have had to take extra showers.

[@CattyT1]

I’m sorry, what a nightmare for you. That’s a problem I’d not thought of as this is all a bit new .Can you find a carer to come in, does a neighbour have one coming in for them that you could borrow?

[@paulineking1968]

No I am afraid I am on my own. So far I have managed without to many mishaps.

[@WhoAmI2YouNow]

Hey Maggie a question as a fellow ostomily user (ileo and uro): Sometimes because I always try to stay positieve, people say things like "oh well I think I want to have a ileostoma now because less pain in my stomach seems great! But they seem te forget the surgery, the stress, the insecurities all day every day like is my stoma leaking.. Do you know what I mean? How do you deal with that?

[@bunnylacy2097]

Oh god that’s so annoying. I’d just tell them like hey, I know I stay positive often but trust me, it’s not better than having some stomach discomfort. If you’d rather have an intense surgery, have a stoma that leaks and have to learn how to prep a bag in a way that won’t leak but it will sometimes anyway in public and so on than have the pain in your stomach then you should go see a doctor about that because it’s not all sunshine and butterflies. I have a lot of health issues and when people say things like that in relation to my issues I just break down that idea real quick. They need to know it’s not easier necessarily it’s just a different set of issues and a different way of living and many times it’s harder.

[@WhoAmI2YouNow]

@@bunnylacy2097 That's a nice way to say it "a different set of issues" !!

[@lesleyharris525]

Did you watch me last night cos yes not my best idea but as my daughter says "worth it. " , usually on the way to the bathroom. 😂