I'm just finding this on February 4, 2025 and I want to start off by thanking you, Dr. Babb. This video gave me volumes of straight forward, profound information and you had my full attention because you explained in the way I needed to hear it: Staying On Point through out the entire video!

Unfortunately, there is no medication... ?!? Surely if it can be solved without medication, why would you need medication ?

I think i have this I can do 5 of 9 of the Beighten scale requirements & I’m 50. (Is more required ) But almost 10 years ago I had a hysterectomy and when the doctor got in there she found my uterus at some point had been pulled and now faced backwards. Could that’s have been H-EDS? No reason was ever given, - Thanks.

So how do you fix a narrow vagina? 8 doctors, over 9 years and no help. So..you can never be with anyone? Is there not a surgery to open you up?

I sur do not want methotrexate

Acid foods..vitamin d helped. 50,00 units a week,is what I take. Steroid,just burns more

No itching

My mom died delivering me, they said she was double jointed. My two siblings dont have it

This video is the best one I've seen for making the case that EDS is a whole-body condition. I hope doctors are seeing it.

Can you recommend where to go for sexual aversion disorder here in Tulsa?

"You know better than anyone else" thats how you know he's a great doctor

These are great vid series, I have problems with Collagen, adrenal function and other. My endo wants to test DHEA-S specifically (along with different things)

And the stretched out skin post pregnancy or any weight gain. 😢

I am so very appreciative that I found this video this morning! Thank you! This helps so much!

thank you for making this video! While im asexual, my partner has also been expressing some thoughts of being ase. when i talked with them, they mentioned some trauma, and having issues with sexual thoughts making them feel physically sick. ive been trying to help them, and after watching this with them, it seemed to help a bit.

Sir, can you please keep up with research! Stop spewing the cholesterol scam!

I haven't read the comments but I was wondering why Jason Sudeikis was discussing gynecology.

Where are you located

Thank you Dr. For the information. It's exciting to finally see progress in the subject of sexual health in women. Still it's insane and incredibly upsetting that men can get Viagra for free but women we have to pay out of pocket for Addyi. Can you please elaborate on this prescription assistance programs? Addyi is $1000 for 30 pills everywhere I look.

Excellent😊

This guy scared the heck out of me. He mentioned Tarlov cysts as a possible cause of pudendal neuralgia. Two tarlov cysts were found on an MRI … then saw 2 NYC orthopedic pain experts from the Hospital for Special Surgery. They showed me pics of my 2 cysts and pointed out that they were not close enough to the pudendal area to cause my pain. ..tho I thought they looked near the sacrum . They also said that anyone who had Tarlov Cyst surgery with the one doctor, Dr Feigenbaum ,who does this dangerous surgery usually got much worse and came to see them for pain management .Most doctors won’t touch this dangerous area. I have had ups and downs for several years , but chose to listen to these NY experts and I let it go. But my pain remains and is relieved only by relaxation of my mindand the use of Valium Baclofen compounded suppositories . I just heard a podcast by some doctor named Corry Babb…. discussing ways to treat pudendal neuralgia and at the end of his talk he mentioned Tarlov Cysts ! It scared the heck out me as my pain has remained bad .TCs are rarely causal and are known as incidental findings. My husband cannot feel the pain and thinks I’m crazy to worry about TC. …ever since those NY orthopedic doctors had spoken to us. Has anyone ever had TCs treated and actually recovered? Thx!

My question is should I try to go against my sexual aversion and try to have sex even when i'm feeling an intense aversion to it? I know it might seem wrong, but my partner thinks i'm not trying if I don't physically try and maybe he is right???

Thanks -I've started on 13mg DHEA OTC Bezwecan (sp?) Vaginally for 1 week - really great effect on the tissues and sexual desire went from zero to normal. Shocking effect really - to be normal again. I also hesitate to use DHEA orally. I'd like to know more about what specifically rises with oral DHEA -as I understand it we don't really need more estrogen. Thanks again

What about just absence of desire while in the past there was hyper activity - no aversion ?

I had full reconstructive surgery on my vagina. Vaginoplasty, labiaplasty, perinoeplasty ans clitoral hoodectomy. Fillers in the labaial majora (lips w hair). All bc i had one freaking kid. One

Hi! Thanks for a great video! Is prominent and strong hormonal changes with many symptoms regular for EDS patients too? And strong menstrual pains? Irregular periods? I have hEDS and find that my hormonal swings is the greatest catalyst of ALL of my symptoms, and from the days before ovulation until post menstruation it is like my body stops working, all of my symtoms increase like 100% and I litterally get sick (an actual infection of some sort), with fever and a body and mind turned into jelly. Not many people talk about the hormonal effect on the tissue and how it can effect patients with EDS.

Thank you

More doctors like this please. Found out at 39 via social media (confirmed dx by a specialist). Started to lose all faith in the medical system. How can so many of us have gone our whole lives undiagnosed? Why do people on TikTok legit seem to know more about this than actual doctors? At least this one is informed. Thank you!

If he hasn't mentioned it, at the skin pull, bet this guy has EDS himself, hence all the extra knowledge and interest. 💚 The ignorance i run into in nearly every medical encounter gets so tiring. One of the hardest ones most recently was a physiatrist arguing with me about how rare it is to have Endo and PCOS, and PMDD with great disbelief, questioning my reliability...and then when I mentioned it actually seems to be pretty common in the EDS population to have more than one of these conditions co occurring, he literally said "i don't even think EDS exists" he then went on to completely screw me on my MVA insurance claim by saying I would definitely have healed by now, and he can assure me any issues I am currently having are from my preexisting condition, which he greatly downplayed, and answered direct questions the adjuster had asked VERY incorrectly. 🙄

With eds can endometriosis and adenomyosis??

My prudendal nerve was treated with steroid shots vaginally. I no longer lose control of my bladder my PGAD is gone (clitoral over stimulation) and ractal pain is gone. Mine issue is farther up causeing the Pudendal nerve entrapment. I have inflamed Si joints which is affecting the pudendal nerve. I am currently awaiting upcoming steroid shots to my SI joints. Im hoping that helps. Also getting an mri to see what else may be going on.

I had 9 months or pelvic rehab and the pain was unbearable and I only got worse.

Every month 10 days before my period my hypermobility is insane. Lets not forget hypermobility spectrum disorders. Connective tissue in the brain, so many of us have Asperger's or autism too. Collagen is just everywhere and I sufer so much and take three times longer to heal. I just need braces daily.

This is an excellent video. It's very informative and clear. I recently received confirmation of hypermobility diagnosis by a rheumatology consultant. I have many of the symptoms you described and unexplained chronic pain all my life.

Such great information! Nearly 8 month post partum mum here still experiencing issues. Tried estrogen and it worked well for a couple weeks to relieve some pain but then it came back in full force recently around ovulation time. About to try intrarosa - how long should you give intrarosa to see a positive affect?

This video was wonderfully educational. I don’t have hyper mobile issues, so drs always say I can’t have EDS. But I have pelvic prolapse issues, retroverted uterus, dysautonoma, slow skin healing, easy scaring, jaw dislocation from tbj, and more. I’m going to speak to my doctor about genetic testing. Thank you for this!

Dr.'s hate it when you educate and advocate for yourself.

I just saw your video. I was born in 1963. I was not diagnosed till around 2011, when my twins were 4. One of my twins was diagnosed with it. I am due a hysterectomy end of October. I hope I can get my surgeon to watch this. Im so angry that I have suffered for years. No doctor told me EDS affects womb too. Now my daughters both have issues, PCOS and PMDD.

I have had PRP treatment it works

My sister died last month, she had EDS but we don’t know what type she had , she had bladder infections all de time, she also had hydronephrosis, she needed a catéter to pi, she was 50 years old at the time she died, it looked the she had some vascular type

My sister died last month, she had EDS but we don’t know what type she had , she had bladder infections all de time, she also had hydronephrosis, she needed a catéter to pi, she was 50 years old at the time she died, it looked the she had some vascular type

I have eds from my maternal side. I was born very early and suddenly. The doctor called it an "incompetent cervix" back then. My Nana had early sudden births for all of her children as well. Even 10 years ago doctors had very little awareness of eds and pelvic floor issues. I'm glad doctors like you are out there doing the work.

Great video! I have hEDS but suspected to have actually classic or classic-like … this pretty much sums up many of the issues I have experienced. I’ve been told to an inverted uterus and there’s pelvic congestive syndrome 😅

Have you done a video on thrush? Especially embedded? Because this seems to be a bit of an issue with estrogen - how to deal with GSM and thrush, and does systemic also exasperate it?

Hi Dr. Babb, thank you so much for this. I’m in the process of getting this medication. I haven’t spoken to my gyn yet though. Do you still feel the same way about this medication? I’m so worried about the dizziness and possible fainting. Of course I would take right before going to sleep. I’m healthy, I don’t drink. I am 60 and post menopausal. I always enjoyed an active and healthy sex life with my husband. Just lately I have no desire and I want that feeling back. What do you think please? Thank you for any additional info and comments you might have now 2 years later Dr. Babb :)

Ok so not sure if anyone else has this, kinda gross but the rectocele thing---I am loosing the muscle tone to even push out crap and for a long time I have noticed that I can feel the crap in my rectum... through my vagina. Sometimes it takes extra effort to even fart. Sorry, big time TMI for real, but can I get a witness? I also get weird random pains in my vagina sidewall as a consequence of leg exercises (abductions and adductions) or the bounce from jogging. Is that a thing? I have not been diagnosed but I have been hyper mobile with loud creaky joints since I was 12-13 and am 40 now. Most frustrating thing is that now I am starting to get inflammation or stiffness that doesn't let me pop things back in place like I used to be able to when I was younger 😂. If my knees felt bent the wrong way I could literally bend over and manually just push them and they would loudly pop "back in place." I have one side that feels off that has been stuck like that since spring time and it's fall now. And yes, have had super heavy periods and bad anemia since adolescence. Whenever I report this, I am just told to get on the pill, and take iron, but somehow I have always felt that "the pill" wasn't the answer, plus I don't want to be even more hormonal and gain weight if I am not even sexually active.

can you talk more about eds the vascular one more in depth

Also chronic interstitial cystitis.

Wow! This is me. I been experiencing this in my marriage for years. I just thought I would live in a sexless marriage forever.

Here is what a bright young woman dematologist says re; LS. kzbin.info/www/bejne/qoXCg2tobtRrZ5Isi=yCyeetcNQzji78Um My thought is, if we can find the cause of this one painful complex, we might be able to help many other "Auto-imune" disorders. Bodies attacking themselves for no reason makes no sense to me. Back in the day, there were many words for coughing but causes were not understood. Asthma is not congestive heart failure or pneumonia. LS must be caused by something or a combination of somethings. If it really is genetic, where are the gene therapies?