i have type 12 cataplexy i accidentally spilled hot coffee while laughing on a midget and he screamed and punched me in the balls

you arent a doctor. John butler is better than you. this is making me laugh so im losing controlllllllllll of mygttyy hansadfgad.

Is there a risk in using an ASV machine to manage complex sleep apnea, even if the central apnea might not be pathological? I seem to fall into that category, as I definitely have obstructive apnea with some central apnea, but there is no medical reason why I should have central apnea. The ASV machine definitely helps me get better sleep, but is using the ASV in this case a bad idea?

Resmed bipap ST-A saved my life

I have an active lawsuit going right now because of sublingual buprenorphine causing me to have all my teeth pulled. Buprenorphine literally caused all my teeth to start breaking apart and falling out. I had a few bad teeth before i started taking Suboxone, but after i started taking 2 a day is when i noticed my teeth literally falling out of my head. I just signed the lawyer agreement yesterday and i couldn't be more happy. I've been living without teeth for over a year now.

I was dropped overnight from the neupro patch. I still experience problems with my legs

Do any of you get a repeating dream every time you wake up

I have found Claritin (loratadine) to be a safe antihistamine for sufferers of RLS as it does not cross the blood-brain barrier. It's also non-drowsy.

You have a nice selection of ties. I do, too. The pink shirt is very flattering. Thank you for your concise and important, informative videos here. But I have a question: the things in your bookcase behind you hardly ever change. The doll, for example, has never moved. Do you not use these items? What about the books? OK, thanks for your work with us who suffer from RLS.

Thanks for the video. Question for you - Is anyone even trying to come up with a cure for this condition? All I see are studies that try to use it as a biomarker for Parkinson's or other more serious Neurodegenerative diseases.

Or does central apnea cause heart failure from lack of oxygen and adrenaline fro waking every couple of minutrs

beetroot!! nitric oxide booster sups. sleep apnea and ox saturation cure. ( Im not over weight so not certain about weight impact) 🙂 give it a try.

God bless, sir, but you need to sit across from your window when filming, not right in front of it.

That’s a very bold statement saying that narcolepsy type two most likely doesn’t exist. Have you done any serious Clinical research in regards to narcolepsy type two side-by-side with idiopathic hypersomnia? Have you read any of the cutting edge and most recent research by Dr. Emmanuel Mignot? You mentioned yourself in your video that people that go into REM sleep during daytime testing is highly unusual. If you combine that with a latency rating of three or four and a patient goes into rem sleep three or four or even five times and they don’t do “shift work”, which is the only excuse That you have given in this video, what do you call it? It’s fine if you believe some people are being misdiagnosed, and I think that’s fair to say. However when any/all other explanations that are not an issue or have anything to do with people with these symptoms what are you going to call it? Is not the treatment still the same? Also, genetically many patients diagnosed with narcolepsy also have the genetic predisposition or precursor to bipolar disorder, and it is suspected that these genetic pairings can be common with other neurological and psychological disorders. Please please if you’ve not read or watched any of Dr. Emmanuel Mignots work, please do so.

Yes, it can be a quick sharp painful feeling making the leg kick

I’m going to ask my pcp if she will look at your videos

Ive had rls for 30 years. For years I held the record for the most involuntary leg movements during a sleep study at the local Sleep Clinic. ln those 30 years, the drugs prescribed as treatments either did not work or had serious side effects. For the past 6 years Kratom has worked for me. If you change the strains, you will not get accustomed to it that it no longer works, and you will not need to take larger doses. I the past six years, I have not become addicted to kratom (kratom has been used by drug addicts to beat their drug addictions) nor have I experienced any psychological side effects. I get so tired of the medical and pharmaceutical community using such scare tactics. Instead of spending more time and dollars researching the cause and cure for RLS (not enough people have have RLS to make such an effort viable), people spread falsehoods.

lol you can’t have good sleep if you’ve got restless legs, but tell me, why does melatonin make my restless legs much worse, it basically gives me augmentation like the dopamine agonists.

If I’d found this channel months ago I wouldn’t of gone on methadone

I’m in Australia and we have a public health system and even here they’re super reluctant to give us iron infusions, in fact it was the only useful info I got from the neurologist.

You should just say that anyone that takes opiates consistently for months will develop a physical addiction/dependance, yoir just going to confuse everyone by starting off explaining how different treatments have varying levels of opiate dosing/treatments,, the only way they won’t get dependant is if they dont take it everyday and it WILL NOT BE EASY TO TAPER OFF if they have a chemical dependence, thays flat out wrong that only someone who’s never had to do it and is relying on studies to inform his opinion. I understand your trying to destigmatise opiates so people can make more rational decisions about their treatment, but if you obfuscate and people end up with dependency, they’ll feel betrayed, I know when I had stage 4 cancer they told me I couldn’t get addicted , now 11 years later I’m still on opiates because of that dependency, which means I have to be on a much higher dose of methadone to treat rls. Also it Didn’t take that long for me to experience augmentation , after 2 weeks of being on any dopamine agonist I got augmentation, so bad it went through my arms, but I have sibo and my house has mycotoxins

Can certain medications cause this? My husband takes meds for afib and has started doing violent things in his sleep. He’s very physically fit & strong, and I woke up with his big fist pushing into my face. Very scary! Before that, he had jumped out of bed a couple of times, and has yelled out many times. Only started after taking those heart meds. He’ll discuss this with his Dr. next visit, but just wondering if anyone else has experienced this after starting new meds.

Wasn't the biological cause of narcolepsy type 1 only discovered about 30 years ago? Do you believe a lumbar puncture is the correct way to diagnose it? Do you really believe that CBT and lifestyle intervention are the only appropriate treatments for N2 and IH? I'm trying to understand and be open minded. It's hard when you have a personal stake in this. Of course, lifestyle modification is important for anyone. But that can be very hard to do, if not essentially impossible, without medication as well. Malingering is a very specific thing. It isn't the same as a functional disorder. One is a patient doing it for personal gain, the other is the patient not doing it to themselves but their mind is making it happen (psychosomatic). If certain medications help improve a patient's life, then why should it matter what the etiology is? There seems to be a big comorbidity with narcolepsy and ADHD. There are even some studies that show ADHD might cause excessive daytime sleepiness. What do you think of that? Another thing... It seems a lot of people diagnosed N2 possibly have cataplexy yet don't realize it. There are varying degrees of cataplexy. For some people, it's feeling muscle weakness with intense emotions, but never actually falling asleep. So perhaps some people are misdiagnosed N2 when really they have N1? Do you think it's impossible that N2 has a legitimate biological cause? Or is it just that you think it shouldn't be grouped with N1, because obviously it doesn't have the same biological cause as N1? All of the symptoms are the same other than cataplexy. I can't think of any specific examples right now, but I'm pretty sure there are some other diseases / disorders that are similar in that way (same set of symptoms, different biological cause, classed as the same disease but different types).

I got lost in this about what to do when the meds I’m on don’t work anymore.

How do I get my doctor to write a prescription of iron infusion? We go to a nurse Practitioner.

Can you actually die from not having this?

Hago este comentario por si a alguien le puede ayudar. Le diagnosticaron a mi hijo con 19 años hipersomnia o narcolepsia tipo 2. No estaba claro. Se hizo las pruebas de latencia del sueño y confirmaron esto. Le empezaron a dar medicamentos que le producian mucha tolerancia y tenia que subir a menudo las dosis. Además no comía porque le quitaban el apetito. Tuvo que e dejar su carrera de derecho y empresariales. Entró en depresión. Decidimos dejar los medicamentos y cambiar hábitos de vida: Deporte diario Comida saludable. Muchos vegetales. Exposición a la luz de la mañana. Horarios regulares de comida. Cenar temprano para dejar al cerebro reparar por la noche. Añadir algunos suplementos: Vit D, Omega 3 y todas las vitaminas del grupo B. En 4 meses mejoró del todo. Pero los cambios ya se iban notando un poco antes. Han pasado ya 4 años. No ha vuelto a tomar medicamentos. Dejó también el café. Retomó sus estudios y ya los ha terminado. No sé si esta experiencia podrá ayudar a alguien. Por lo menos creo que sería bueno hacer todo esto por si sirviera. Si con esto no hubiera mejora, entonces pensaría tomar medicamentos, pero no sin antes intentar hacer estos cambios saludables. Y encontrar familiares que puedan animar y ayudar, para no desanimarse! Mucho ánimo a todos!

Hello Dr Berkowski, I have severe RLS and have been on Ropinirole for 10 years. I have had augmentation for a few years now and am getting to the top of my dosage level. I want to taper off of Ropinirole as my augmentation symptoms are almost unbearable. You mentioned other drugs that can help with the withdrawal symptoms... what meds are they? Also, after leaving ropinirole, what is there to take for RLS??? I'm 57 yrs old and have had RLS since I was 17. I know that I will need some form of medication for RLS Right now my symptoms are all day long and I cannot sit to rest without my legs going crazy and I cannot take more Ropinirole. I've had iron infusions with no result and take a lot of vitamins/calcium daily due to prior gastric bypass so my levels are good. Opinion? Please...

Thanks for your post. I dont have RLS but a bullet partially severed my Perennial nerve (CRPS2) in left leg over 25 years ago and the best solution i have had is high dose opioids ie. 240mg oxycodine slow release per day. I had been on this dosage for over 20 years until "opioid crisis" and the VA cut me by 60+% and almost killed me. Previously i had never shown any signs of withdrawal or addiction. I have been mostly bedridden for over three years because of their expirimentation and am fighting for a stronger dose. Stanford and other pain management people have consistently told VA THAT Ineed my doseage restored. NOTE☆ The 240mg sr/day never stopped my pain completely. At best it left me between 3 and 4 on 1 - 10 scale. CRPS2 is rated at 4 times higher than child delivery and is ofter called "SUICIDE DISEASE". The point is the so called "opioid crisis" is not accurately reporting the problem. Most people who are properly prescribed opioids do not become addicted (they dont take enough to actually stop the pain but rather enough to be functional and still feel at least some pain.) Thanks again for your post.

At most a few seconds???? Not to step on your credentials, but I think your assessment of length of cataplexy attacks to be lacking

I'm getting nightly flare ups of RLS that are fairly severe lately. It's a nasty, capricious affliction. I never know when. I've never heard of Kratom. My pain management doctor gives me tramadol for it, and adds topiramate when it's very severe. I'll talk to him about trying this Kratom for a couple of weeks to get off the Tram. Thanks for this great video. You never hear much about RLS.

Experiencing a traumatic event like a lose of three parents, one by suicide, and a very difficult divorce, could these increase your chance of RBD? If so, are cases like this more likely to return to normal baseline or is it more likely for the RBD to stay with the patient even through several years of treatment?

thank you ver nuch for your effort an a very comprehensive site

You are very helpful dr Berkowski . Thank you very much

Thank you very much for this important warning . It is life saving .

Yes! Luckily have dental but 70% of my teeth deteriorated over 4-5 yrs. Had to get crowns and that was painful.

doctor ...when i start to sleep .. Between awake to sleep ...i feels like forget to breathe but it doesn't happen all night and also doesn't happen everyday...what it could be

My brother is a 21-year old male. He started waking up gasping for air during sleep about 1.5 years ago. He feels extremely exhausted during daytime. So he got several tests done: 1. PNS Scan: There’s not really anything abnormal in the scan. He doesn’t snore either and is normal weight. 2. Polysomnography: He got this test done at the sleep lab several times. He claims that he couldn’t fall asleep during those tests due to trying to sleep in a new environment. So, he got home tests done and was diagnosed with mild sleep apnea about AHI 10. But he later got another sleep study at the lab. There I see he slept for 315 minutes and was awake for 15 minutes in that time. His AHI is 1.1, and all the sleep apnea episodes were CSA. 3. Other tests: He got his heart test ECG + Echocardiogram + ETT normal. His brain MRI report also says normal. He got his blood tests done as well. Everything is normal except little high cholesterol. When he first got this symptom, he didn’t use any medication that now. Now he takes cholesterol med and Clonazepam before sleep. 4. He developed involuntary limb and leg movements during sleep. It’s pretty frequent in him. No doctor has been able to suggest an effective treatment. He tried different antidepressants because of doctors’ prescription. Nothing helped. He is struggling a lot in his university due to this. We really have no clue what should improve his condition. I truly hope you see this comment and share some helpful tips.

Kratom messed up my thyroid and gave me drug induced Lupus. Not for me............ I went through WD coming off kratom - and RLS was terrible!!!

I’ve had RSL since childhood, I’m now 68. Now it’s progressed to major contractions of my limbs at night. My pcp hasn’t checked iron or ferritin levels but I’m concerned about taking iron at my age as I’ve heard it contributes to cardiovascular disease. Are muscular contractions a form of RSL?

I am currently on Neupro 3mg patch along with Hydromorphone 2mg 3 x daily. I know since I am on this patch it is basically treating my system the same way mirapex did before the NEUPRO came into interest ? Can you recommend a regime that might help my symptoms but not take me down thr Agonist road?

very informative, thanks

😢 almost 8 years of 600 mg...

Hi! I was diagnose in 2016 and since I've been taking 600 mg pregabalin. I want to stop or take a lower dose. Does a TENS have some studies as a 2nd line treatment? 🫰🏻

Diagnosed with Pugalustica Dementia. The stimulate effect is A-MAY-ZING in helping my brain to wake up in the mornings. One of my past medics shunned me for saying that, and tried to get me to take prescribed "meth". Those types of stimulates make me so sick, and my heart feels like its about to jump out of my chest. My heart, nor body has never felt any of those types of side effects from Kratom. On the RLS. Well it had never helped for me. I can always get up when it gets really bad, and take a pain med. MY DISCLAIMER: I know there are many different strains/cultivars of Kratom. I only purchase a red/green blend, and so I honestly do not know what other strains are like, nor do i know their "side effects". I have been buying this red/green Kratom blend for nearly 10 years. 1 tablespoon per cup of decaf coffee and i will have an average of 5 cups. Then 1 or 2 cups in the late afternoon. 8 years ago, i learned that dosage amount is my perfect zone, and have never needed to increase it. There has also been many times where i had to choose bills before Kratom, and stop taking it for a month at a time. Sure there are withdrawal issues, but it is nothing like a good ole fashion opiate withdrawal. But if someone is havinf opiate withdrawals, even from morphine, a red/green blend can easily stop the sickness feeling. It doesnt do anything for the blasties, but it will let you feel like normal human during the day. Anyways, it always makes me cringe when people say Kratom does this or that to them, and the people never disclose the strain they take. That is a very important detail i wish people started including. Sorry for the rambling. 😊 OH CRAP EDIT: I was just seeking possible other methods for helping my RLS as its in my elbows also. I would like to find a better way to stop it besides taking one of my pain meds.

This has been exactly why the struggle with diagnosis had been so difficult for me. Although with NT1 I can honestly say the only medications that have sufficient effect are the ones I have been on for cataplexy. Although on one medication I developed status catiplecticus which was an absuletly horroble time that went on for some time. And even now that i have switched medications, i still have a battle with the condition, especially if my dosages are missed. I always have had quite severe cataplexy attackx post sleep, but when the medication began to cause it, it became a struggle throughout the day for very long periods of time and the fatigue i suffered from the cataplexy was horrendous. I can honestly say that misdiagnosis contributes a lot of problems. And the amount of false diagnosis in australia for type 2 has caused statistics to be altered which has massively affected study accuracy and results, which in turn isnt helpful for those of us with NT1/2

I have anxiety as I injured my back and I have been stressing and have had anxiety for past 2 months and my sleep is like this for weeks and weeks and idk what to do

So we are actually sleeping, just very lightly?

Would you say it's normal to have trouble falling asleep when I only had 12 hours of awake time then tried to sleep?

suggesting buprenorphine for kratom withdrawal is like recommending someone get a tiger to help with their mouse problem