Author says life has become ‘survival’ for men with Post-Finasteride Syndrome

[@wolfkingsigma2795]

I survived homelessness and an abusive dad, losing my mom to cancer with this life destroying illness for years. No money or help. Just a family and doctors who thought I was a nuisance. Glad a book is coming out. May these evil bastards, who are responsible, burn in hell for eternity.

[@Vectorman2X]

Nightmare, i hope the best for you, and i can feel you besides the homelessness part, all others i can relate

[@emmaester5284]

Hun-get a tens machine-pads down your spine and on nerves where there’s no feeling-xxx please try it

[@MT-nu3vl]

Thank you so much Mary for your dedication towards bringing awareness to this devastating disease and helping to support the men and their families who have had their lives destroyed by Finasteride. I am so sorry for what you have had to go through with your partner. I send my love and blessings to the both of you.

[@astongrad930]

From 5 minutes into watching this podcast I'm outstanded how well she articulated the condition as an observer.

[@christofferbrandel6491]

Same.

[@Re-Destro]

Awful conversation. How is she "well articulated?" Saying stuff like "you know" or "dozens dozens dozens dozens" of men and using the word "like" every other sentence almost.

[@DT-et8vk]

Thank you for bringing more awareness to this syndrome. Good luck with your book.

[@northernstar6526]

Thank you for speaking out, Mary, and for supporting your partner! I have a supporting partner as well and cannot be more thankful. Unfortunately, many are not that lucky and PFS rips their relationship apart.

[@jordyeggermont2179]

I remember Mary was already very active on forums about this issue when I was going through PFS in 2018-19. I was only 21 and it actually meant a lot to me. I also shortly spoke to Mary and she listened to my story. Thank you for all you are doing, it has unmeasurable value.

[@jordyeggermont2179]

to add, I fully recovered after about two years. I only took the medication for three days which is crazy. But even after such a short treatment, I experienced the typical two week period where everything went back to being ok after quitting, to then undergo the crash. This then persisted for a month I would say and afterwards the symptoms became gradually better.

[@MC-pc2hf]

The story of PFS is a true horror - thank you both for documenting the suffering and gaslighting that patients are going through!

[@hhhvvdjdjrjdjjx5453]

You’re amazing Mary. Thank u for ur efforts and for speaking out!

[@AC-ns4gu]

Thank you for your efforts in bringing awareness to PFS. Can’t wait for the book release!

[@brendantaylor3570]

Grateful to see this thoughtful discussion and documentation after 10 years with PFS. Thank you.

[@Sam-rm9hp]

Thanks for bringing awareness to this. You're a hero.

[@kathleent1085]

Thank you for bringing awareness to pfs

[@jeysmith7445]

What a warrior.

[@mortenskov7482]

THANK YOU.

[@nontacticalgaming3888]

I will pass out soon..I cant take this anymore

[@jasonablah7702]

Companies like ForHims & other male telemedicine companies that have advertisements on basically every podcast are handing out finasteride prescriptions like candy.

[@brendantaylor3570]

It’s astounding how you can get any pharmaceutical if it makes enough money. Whatever happened to doctors and the Hippocratic Oath of setting the standard in protecting patients instead of just profiting? I don’t know many other health conditions where you are questioned or even put on the defensive by doctors over significant and specific bodily changes. If doctors can’t warn people of risk, or worse downplay the risk, or regulate this in any sense I don’t know who can. It’s certainly not going to be big pharma.

[@antoneckhart4010]

​@@brendantaylor3570i believe there is something far more insidious behind it all. Think which demographic is affected and what is going on in Europe and America.

[@JB-yh8so]

Where can we get the book?

[@TheAjmos]

Why did we ever think we could just take chemicals that don't belong in our body's with no repercussions.

[@baskinsmichael]

Thank you. My testimonial is the following: I started taking the pill and was not very disciplined with the taking of it so there wasn’t an abrupt change but over time this time I started experiencing a level of detachment that is very lonely. You don’t feel connected or interested in the world which only furthers your depression. I became increasingly intolerant of foods and had panic attacks. But for me the biggest issues were body pain and the inability to make decisions. Maybe that’s what people mean when they say brain dog but I could not decide the next step in my day- it all felt like an insurmountable complexity to get through the day’s choice. And the body pain was constant- it was pain of my joints and back. I don’t think the drug created the pain but amplified small pains or injuries I already had into a constant higher amplitude pain that I could not ignore. It was really debilitating and made it hard to focus. Overall, I would say that the drug made me very pragmatic and practical but removed my ability to hope and and connect which are pretty vital for making it through a rough patch in life and replaced it with a feeling of dread and anger. Again I don’t think this drug creates new feelings but only removes your ability to navigate and compartmentalize or move past these negative feelings. If you’re on this drug, please pay attention to the small signs because mental changes are so subtle and hard to see as actual problems. After stopping, it seems the symptoms have gone away and I hope it says this way.

[@jamie0008]

A warrior

[@ashleysilver5594]

True. I have it for 12 years now. Mental sides are worst.

[@domienballegeer5943]

How did you develop this? Just after using some Fin?

[@ashleysilver5594]

@@domienballegeer5943 8 months of finasteride and 4 months of dutasteride. Total 1 year. This was 2011-2012. Within weeks of stopping a whole plethora of side effects like joint pains and abdominal shooting pains, insomnia, vertigo, floaters, lowered sense of smell and taste and serious depression and brain fog. Dont touch this poison when it hits your life is screwed. Since then a lot of sides have subside except the brain fog.

[@jordyeggermont2179]

After watching the discussion, I feel like I need to tell my story. Maybe someone might find hope in it. I fist took finasteride back in January 2018, I only took it for three days. I immediately started noticing changes. It started out with mild headaches, to feeling a loss of libido. I immediately stopped the medication and was back ok for about a week, whereafter I experienced this typical crash. I was hospitalized for a month during this period. I had severe brain fog, depression, feeling a disconnect between the brain and the dick, no sensitivity on the tip of the dick, no morning wood, when I would be able to come there was no sensation of having an orgasm in the brain. During the worst time at the start I also had no appetite, insomnia, ... After about a month, things started improving. Slowly I was starting to feel more like myself again. The recovery definitely went in ups and downs. After about 1,5 to 2 years I was fully recovered. I did not try anything and felt like I had to trust my body's ability to recover first. Now, im not saying that this is what you should do. At the time I was just to scared to do things that would be make it worse or prohibit my body to heal. I can say that going to the tanning salon during the winters definitely helped for me at improving my overall mood, and further taking care of your body, eating healthily, exercising. I think it's important to realize that almost all the people that do recover never come back to speak about it. So there are many more recovery stories that are just not being shared. For anybody going through this hell right now, I wish you a lot of courage and strength. Please don't lose hope, take it day by day and don't give up. within a year you might find yourself in a different situation. I'm sorry that this happened to both you and me.

[@carlosboyano9349]

Life has become suicidal

[@AC-ns4gu]

I really feel for you as a fellow sufferer. How long have you had PFS?

[@carlosboyano9349]

@@AC-ns4gu PSSD now fine

[@AC-ns4gu]

@@carlosboyano9349 Good to hear you’re feeling better!

[@nkyvision]

carlos are u got pfs? whats your syptoms and how you cure yourself

[@antoneckhart4010]

​@@nkyvisioni wish people would reply. People need to remember what sites and accounts they use.