It’s the worst having to question if you had a seizure. I experience partial nocturnal seizures. I jerk and have weird behavior. Most times I’m angry about something and I always say fuck 🤷🏼‍♀️😂 I have dreams that I’m having a focal aware seizure and I’ll jerk awake. I think it’s my brains way of preventing a tonic clonic

Yea, some of mine are unaware. I think we share the emotions after. Im looking for a new support group. My old one went all digital to add more ppl. But I like hangout with ppl that understand rather than judge

What you describe is exactly what happened to me last night. I want sure whether it was a dream or really happened. I partially remember taking my TV remote, turning TV on then off then doing the same thing again. So I'm pretty certain I had one last night and i also woke up with a migraine. Your video helped me not feel like I'm losing my mind.. no pun intended. Thank you

Had an aura leading into an absence whilst riding a bicycle a few times now. Showed my neurologist the distance: about 500m on a print of a map. I always take the same route and came out of the absence down the route.

So many questions unanswered: - If you wear that sweater over a white shirt and walk around in a sunny sweaty day, will the dye stain the white shirt? - Does the color retain well over 10-20 washes? - Can you wash it with lighter colored clothes?

Ive just ordered the Ocean Blue to hopefully dye a no longer white cotton/linen summer dress and lightweight wool cardigan. Praying that it will do both at the same time. How prices have changed now £9.95. Has anyone done more than 1 item together? How did they turn out please?.

I have similar seizures, I usually get an aura like a rising rush in my stomach or a smell. This gives me time to sit down.

Thank you very helpful ❤

I used to gouge my skin off, upon waking. A sudden grab, very hard. Would make me bleed. I'd feel like I was hit by a bus, very fatigued, and just felt like total shit. This started 7 years ago, but stopped a few years back.

Monthly cycle triggers these, too. At most, 2 weeks before starting menstruation, and sometimes before ovulation.

Stay away from caffeine and chocolate. I have partial onsets. I start to fall asleep, then suddenly start feeling VERY weird. Like, non-local and dizzy, and I stop breathing. It's not apnea, it's neurological. I then start tensing in my abdomen, and my my pelvic floor muscles start contracting. At this point, I start hallucinating metallic colors, all very deep sea aquatic in nature. I have an extreme anxiety/panic response. My heart races, but is very weak and shallow. This happens every time I start drifting, for hours. Before this began about 9 years ago, I suffered from severe nightmares and sleep paralysis upon waking, every night. Literally, every night. This is horrifying, when it happens. Keeps me awake all night. Chocolate really triggers it.

It's not rare. At all. Most partial onset seizures happen around stage 1 and 2 sleep.

Hi thank you for sharing this video, what was the name of the other medication, not keppra the other one, thanks again

Also change your coffee to decaf

Hi I’ve been having weird sensations in my sleep at times and had a hard time finding anything about it online. I have rhythmic movements upwards and the wave motion semi wakes me up. I have frontal and temporal lobe epilepsy. I noticed a few months ago my 6 year old having the same motion in her sleep. It’s not obvious to see, but body palpitations is the best way I can think to describe it.

Newly diagnosed too and think I had one today for the first time. How I can describe it is it felt like my hearing was super strong and sensitive and thoughts in my head repeated loudly and I'd get vertigo type feeling dizziness with eyes closed and laying down. I thought I was going crazy then when my eyes shut around the edges there was this glow that stayed when I opened them. Thank you for this x

I have grand mal seizures for 52 years as long as your seizures for 6 months are in good condition you haven't had any you should be able to get your driver's license back from the DMV now I live in California I don't know where you live but I don't know why your neurologist is not giving you your driver's license back

Thank you for sharing this

I have simple and mostly complex partial seizures, am now 38 but when it started mid 90s when i was 10, id have TC seizures that literally came out of the blue. Mostly while asleep during the night, only every now and then during the day. Was ok through most of my 20s even after stopping meds. Returned when i was almost 30. This time around though amd neurologist have told me its my left temporal lobe where my seizures start. My wife managed to get one or two on video, for the consultant i was under at my local hospital who last year has referred me to Neurological Hospital in London where im atm going through the process of evaluation for surgery. Theyve told me that a Vagus Nerve Stimulator or Deep Brain Stimulator are 2 methods that could be used if it came to it, but the consultant im being looked after by has told me her preferred route is going to be a partial lobectomy and brain tissue removal if they can locate the starting point of the seizures and it not being too large an area. Have had a couple of the tests, and tbh feel bloody frightened of the outcome of what this might be😕

Seems a bit of a waste a whole Dye for one item .

I am very glad I found this video 😢. So many things everyone describes r what I’ve been feeling. It gives me a peace knowing I’m not the only one. Waiting to see a neurologist. Thank you for sharing

I know what you mean I'm trying to explain it to everybody what's going on but I can't really explain it!! You are not alone.

I didn't even use the washing machine 💀💀💀💀💀.oops

Epilepsy needs more awareness. No one likes to talk about it

I've been having weird symptoms my whole life and been labled hypochondriac actually been in the hospital for having seizures and they tell me they don't know why and they send me home recently in the last month I've had three one I ended up in the hospital but I've been having focal aware seizure since I was a little boy and that's the symptoms I keep going to the doctor with and they keep telling me I'm wacky so my focal seizures are like this I sometimes break out into a sweat I get shaky I get this upwelling in my gut and I just kind of field Doom and Gloom and that I might pass out sometimes I have most times I don't I also get pins and needles up the middle of my back and down my arms and in my feet sometimes happens multiple times a day but always happens at least once I've just been calling it my weirdness all my life I'm 61

My father age,71 (almost) is having such nocturnal seizures since 2016. Its me who is only attendant of him who is nursing him in his postictal state. Dear Annie watching you and listening your worthy experiences is very informative. I shalla pray for you to God that He bless you with complete recovery and a joyful healthy life. Amin

Great video but the way to use Dylon is to soak the item in the Dylon for about 20 to 30 minutes spin it dry without washing the colour out !! hanging it out to dry then once it’s dry then give it a wash at 30° and the colour will stay in the fabric if you put the Dylon in the washing machine with the fabric and put it on a normal wash most of the colour will wash out it’s essential to dye the fabric and let it dry in the open air first then wash it

Have you considered the ketogenic diet?

I have the very same symptoms as you and I've had it happen once while asleep when I woke I couldn't speak properly and had memory loss aswell thank you so much I felt like every time I tried tell my friends or family what was happening and how it felt that I was crazy I could hear what I was saying and thought myself that sounds so crazy but its what's happening

It looks fantastic,, I'm looking to get the Orange one .. Thanks Annie Bean ☺🙏🏻🍊🧡🌟

I have undiagnosed focal aware seizures... But I'm on a seizure med. I keep explaining to my doctor that i have these "episodes" where I literally will stop mid sentence... not be able to remember what I was talking about, I lip smack, everything around me gets darker, I feel like I'm pulled from my body as well. I USUALLY get a migraine with it though. I've tried and I've tried to get my doctor to send me to a neurologist but she won't. No migraine meds worked. I've only ever had one "tv" seizure. It was a few weeks after a really bad head injury. My leg started twitching, then my arm, and then my entire body started spazzing out. I went to the ER and what did they tell me? Migraine. Just a migraine. My doctor put my on a seizure medication tho... and so far I've barely had ANY symptoms of ANYTHING. For the first time in two years... I have some relief. The only thing I'm worried about is if I get an EEG and it doesn't show any seizures because of the meds I'm on...?

Just listening to you describe how seizures affect you... brought tears to my eyes. To finally hear someone describe the very same feelings that I have. Wishing you best, your latest subscriber ❤

This is so relatable from last 5 months i am having similar symptoms i wake up at night jittery and shaking and from time to time have nightmares that i do not are really nightmares or not but when i wake up from them its a strange feeling like fighting to wake up and my legs and hands are stretched have gone to multiple doctors all say its anxiety but I dont know what is wrong

Hellow I live in Michigan, do you notice any type of flashing lights/colors while that is happening? I think I've been having this? 😢

Ok, so my dad has epilepsy and I have these times where my entire body almost feels like it's slightly vibrating almost buzzing and then I feel almost like I'm half asleep and slightly disconnected from what's going on. I can still converse when it's happening but it just makes me feel really foggy and not quite with it. It never last long but I'll often lay down until it passes . Is this similar to yall who have been diagnosed experience?

I have confirmed by EEG epilepsy, and I did not know, I know I "felt weird" but no one really noticed, I have a hard time describing what it FEELS like. I need more info about what folks feel like during auras.

I can finally put the words on what has been happening to me since I was a kid. I used to do sleep apnoea and then this evolved into these nocturnal seizures. Usually I am partly conscious and having a bad dream when this happens and I can feel my body moving and having a resistance pushed against and I can also feel that I am opening my mouth very wide as if I wanted to scream usually I do wake up with a very strange feeling and for the next hours or days I am very tired I have no muscle strength at all and I’m feeling very lightheaded and I need to take long long naps yesterday I had to take my day off from work and I slept until 9 pm.

I enjoyed listening to your video. I also have epilepsy. Thank you for your story.

I'm newly diagnosed at 41. I love that you said you can't tell if that's normal or if its epilepsy. Realizing I was having seizures and not knowing that they were seizures, and now I'm hyperaware looking to try and determine what is and what isn't a seizure, and its hard to tell. Some parts are obvious, but others not so much.

When you have them can you talk??

I also have partial complex seizures with loss of consciousness. My epilepsy is resistant. At the moment I'm taking 10 pills a day, 4 different medicines and it's still not 100% under control. I've had 7 seizures since the beginning of the year. Next week I'm going to do an EEG video

Would that not break or do damage to the washing machine by putting that plastic hard ball inside ..must be so noisy when the machine is on having that inside

I have focal aware. It makes me sick to my stomach.

Thanks for sharing!

Thank you for your tips!

I used Dylon in my washing machine and my white jumper has patches of grey stain all over the jumper do you know why this has happened and if it it can be removed

Those shorts look so good on you, please show more

My family and my close friends know how to react to such situations. They just don't ask any questions coz we simply are in a state of confusion. Sometimes we tend to ask irrelevant questions coz we try to be normal ASAP but it becomes embarrassing for us when others don't know how to react and they get scared. Similar incident happened while i was in office and i started randomly asking question to an unknown colleague and she was frightened. Thanks to my friend who handled the situation. This also created an inferiority and i try to avoid crowded place just to avoid embarrassment P.S: because of this doctor have told me that i cannot drive☹️

I don't want to do it in the washing machine. It's just a bucket hat i want to dye. How do I do it?

I resonate with feeling crappy about wondering why it happened and wishing you could have stopped it somehow. For me it almost feels like if I was able to somehow just try harder before it sets in, that I could make it stop. Of course that’s never been successful 😂