I had retuximad, made me go to hospital for 3 days. Never again

Do you loose hair after the rituximab infusion?

I have all this pain 💔 and it feels like you've gone crazy in the gym with weight's for 4 hours and pulled muscles ect ..my hands hurt more than my feet! Anyone else? Also is anyone better in dry heat? The desert is BLISS to me

❤️ Hi, Dear! I'm Lupus Patient as well. 👍

Does it hurt the needle and have you.have any side effects I have to.have my first one im nervous

❤

❤love how honest you are. Thank uou!!

This is what I feel…. Omg this resonates so much. I was diagnosed with Ankylosing Spondylitis…. But all you are telling me sounds like my symptoms

Im about to start on this

I’ll be starting this therapy weekly soon. I hope it’s been helpful for you. I have long-term/chronic Reactive Arthritis, although am prescribed SCIg for CID. It should help out both conditions!

Thank you for sharing your story. You explained it very clearly ❤

I'm having pain in my knees, severe back pain and the balls of my hips😱. It feels like every muscle too in my back knees and hips are bad. I wake up feeling like someone beat me up with a baseball bat in those areas. The stiffness doesn't end even hours and the pain now lasts all day. When I was 20 I got a cold and lost complete use of my hands for 2 weeks. Now 33 I wake up with the pain taking my breathe away. I get these small bumbs all over my skin and breakouts now and really bad dry throat. But its severe. Inalsi injured my back and had a baby naturally 10 months ago since I've been pregnant. So idk if its that itself making it worse. But my pain is absolutely debilitating. I'm scared to go to the doctor but I need to and your making me want to. I don't know what else it could be. My dad has RA and my mom has bad oseteo, and degenerative bone disease in her back. They both had it in their 20s. But I struggle to do basic things with my baby because the pain is so bad. I feel horrible about it.

I wound up with a dirt bag dr also.. He said I'd be dead in 3-6 months because I was a drunk. Then a GI guy said I was making it all up and it was all in my head

Just started 500mg twice a day and in 2 weeks will go up to 1000mg a day.

How are you now 2025? I also have R/A .I was diagnosed after 2 yrs of pain struggling alone .. Now i can move freely with continues medications

What a beautiful poster you made for the fire department. ❤

❤

That was so nice Elaine..I am so glad you are safe and out of the path of danger! Please continue to take care of you and David and Wednesday and keep us posted so we don't worry.

My functional doctor gave me 1mg and told me to open it up to mix it with water into a syringe then to take 1 10th of it to start so 0.1 because I’m super sensitive and reactive. So I’m not sure whether starting at an extremelyyyyyyy low dose would make a difference or not. I’m yet to start yet to see how I react I’m intrigued as I have a lot of issues including gut issues so I hope it doesn’t react this way also! ❤

Hi…early in this journey! Loved your video!!! More pls.

You are so brave. I’m wondering if you are treating your condition with diet or medication. I am convinced diet is the way forward. Heal the gut to reduce symptoms. Good luck. X

I watched the parade on tv. Very long this year almost 2 hours,it’s a tradition of our family to watch. I have also traveled twice to the parade in person. Such a must for everyone.the smell from the floats are unbelievable.thank you for posting ❤all the best in the new year

In my 30's my fingers and wrist would swell so bad that if I left my rings on my hand and slept I have woken up and had to get the rings cut off. Then my right foot and leg would drag and I would trip all the time I first thought I had MS. Previously diagnosed with Fibromyalgia. When the doctor sees this it's a fake disease and in my head. Today I am 50 just got diagnosed last month the best news that it's not in my head. Numbness in hands and feet pins and needles in hand and feet. Loss of my feet working like your hands I couldn't walk several years of falling up the stairs I told all my doctors and specialist and I would cry because I knew something was wrong I even had a MRI on my knee in November that showed nothing knee has been the size of Three large potatoes then the other knee started to swell I prayed to God so hard, cried my heart out then found a rheumatologist who diagnosed me two days later for anyone else like us out here it will take or could take years to get diagnosed I showed symptoms but I think they blamed it on the Fibromyalgia. Thanks for sharing your story and I hope that you are feeling better ❤

In my 30's my fingers and wrist would swell so bad that if I left my rings on my hand and slept I have woken up and had to get the rings cut off. Then my right foot and leg would drag and I would trip all the time I first thought I had MS. Previously diagnosed with Fibromyalgia. When the doctor sees this it's a fake disease and in my head. Today I am 50 just got diagnosed last month the best news that it's not in my head. Numbness in hands and feet pins and needles in hand and feet. Loss of my feet working like your hands I couldn't walk several years of falling up the stairs I told all my doctors and specialist and I would cry because I knew something was wrong I even had a MRI on my knee in November that showed nothing knee has been the size of Three large potatoes then the other knee started to swell I prayed to God so hard, cried my heart out then found a rheumatologist who diagnosed me two days later for anyone else like us out here it will take or could take years to get diagnosed I showed symptoms but I think they blamed it on the Fibromyalgia

Thank,you for some much needed words of wisdom! This will be my 2025 priority.Please let us know how you are doing when you feel able. You are in my prayers.

Thank you!!

Love your energy and your honesty! It was so great to meet you on FaceTime!

Does any one else with scleroderma and rheumatoid arthritis have heart problems? My pulse runs quite slow at 20 to 50 beats per minute along with something called pvc's...

You do not need make up!! You look fabulous. Stay positive x

I have seropositive rhumatoid arthritis, nearly 5 years now, it's a blast! 😂

So what is the a Best thing to do for this ? 🤷‍♂️

I’m having my first round for kidney disease and I’m so scared !!

How it cured mam??

❤❤❤ Thank you so much ! You helped lift the guilt so much .

I been 10 years living with rymtoidarthritis. Before dynosist

my face goes bright red ache everywhere just by sitting outside or going out fpr the day like christmas shopping a little bit more than normally have to do this year doing dinner rather be at work all the stress of making a big dinner and people in the house.

Your story is my story ...same age and everything. I was diagnosed in 1995 and do the math I'm 65 and I have tried everything and my body couldn't tolerate the biologics and I was just in time for them ...but thru it because I had a my answers to all my swollen joints and fever and a Dr actually told me I just didn't want to work! So I feel for you but are young now and they have developed med that you can take now and you have so many options for you and your Dr to talk thru...and keep moving I was in if you just pour ice/heat on it and rest...good luck on your journey

👍 32 years & counting of chronic illness that just keeps collecting extra diagnoses does become draining. I’ve learned not to look back, embrace the day be it good, bad or different & do yr best on that day. Yesterday is history, tomorrow is a mystery, today is a present just do you @ yr pace. I believe a lot of health guilt is put on people with invisible illnesses b/c it can’t be seen, family & friends often don’t quite grasp how a day that’s “planned” can suddenly turn upside down & you need to rest. I’ve made the decision it’s their guilt for them to deal with, our health is important first & foremost. Merry Christmas to all, take care Best wishes from South Australia🦘🐨🇦🇺💐 ⛪️🙏🏻🎄🧑‍🎄🎅

Oh yes, this rings true. I was a sugar addict and I ate poorly for so many years. I feel like that was the trigger that started my systemic lupus that I have a predisposition for. Just because it’s in my genetics, it didn’t necessarily mean I had to get lupus but my lousy diet and maybe the stress in my workplace brought it on. I blame myself for the diet part of it.

No guilt 2025

I needed this! Thank you! 🙏🏻

Oh yeah, big time! I don't live in MY body any more. It's been taken over by all this "stuff", why? What did I do? But, 2025 ....NO GUILT !! ❤

No guilt 2025 🦋🫶🏻👏💎🎊🎉

No guilt 2025 ❤️‍🩹🤲🏻

Feel better Elaine !

Are you still on methotrexate? If yes, do you still feel bad for days after taking or has your body adjusted? I can’t imagine working all week and feeling sick all weekend.

Apparently I have had RA since I was around 22. I would just crash feeling like I had the flu. Bad pain in shoulders and neck. I would explain symptoms to people, go to doctors and everyone said that there was nothing wrong with me and I was a bit of a hypochondriac. About 4 years ago I had the same thing as you feeling it in my index finger then it moved to my wrist but mostly my lungs. Breathing became laboured. Anyway finally at 59 a dr did a test for RA and from the damage to my lungs and back said that have probably had it since my early 20s. Funny I am a legal secretary too. But Australian.

Im going through the same thing cant even open a water bottle my whole body hurts 🤕

I needed this today. I have UCTD and today I feel awful. Scary. I keep asking God if I’m dying. Coupled with fatigue is anxiety. Wondering if it’s the disease or something else. And, with UCTD there is such little information around. It’s treated just like RA. I was on plaquenil which caused terrible side effects. My rheumatologist will not give me anything else. So, I’m on nothing.

Thank you for helping realize I'm not alone. I've been going through difficult past few months. Trying to stay positive and take 1 day at a time. I try not to think too far in advance, for my own mental health.