It's absolutely... well, disgusting how many get treated, or not treated to be specific. It blows my mind that this really is going on.. It's terribly dangerous. Power in the wrong hands hey, patients having to clear the mistakes up with help of charities...what can you say. Together we will set the textbooks straight 🫂 try at least. You are a hero btw, keep speaking your wisdom and the truth and you are very fair too btw, to both sides. And there are gems of doctors offering support, but the system does need a total overhaul 👍

I was in a&e after getting hit by a bus last year. A doctor came in to see me and I told him that I have non-epileptic seizures because I thought that would be important information. His response was, "Oh, I don't believe in all that". Scary.

Why is the word tics blocked out a bit?

Wait…you are supposed to ask follow up questions??

Same

Well thank you little lady. Educated me. You speak so eloquently and with confidence.

Thank you 😊 I've been having the worst thoughts,that I dont mean.ive been extra stressed and down .that's when the brain attacks itself.

Thank you for this

What's the periodic bird call and click? Is it some kind of stim? So far, I find it endearing. Oh, I see. I checked your other videos. Tourette's. I thought it might be.

Sometimes it’s hard to communicate with people because of my autism

3:09 people will ask me "Can't you just stop the tick with your willpower?" And then I tell them I'm an expert at willpower. That willpower is my superpower because for every one kick that they see it's the 500 premonitory urges that preceded that tick that they DON'T see that I was sweating to suppress. That seems to give them a new perspective on the magnitude of what we are up against. Well done on this video. Thank you for sharing.

I have never understood how people can look at the invention that was made so that people who have trouble walking can get around independently and think "people who use this are lazy/failed/are lesser" . Like..... I would think that giving up and never getting out of bed again is failing. These wheel chairs are a tool, medical equipment, that people can use to do MORE than they other wise would be able to. When I was trying to walk and dislocating multiple joints my physical health decreased really badly and I was very unhappy with self persepctive, but once I started to use the wheel chair, 1. every thing took three times as long to do BUT 2. I was still getting MORE done and 3. my physical health, mental health and self perspective greatly increased. I am more healthy when I use the wheelchair and thats not just talking about my joints staying in place, thats talking about reuniting with my communities, rejoinging activities I throught I had lost access to, and knowing what its like to not be in constant pain. using the wheelchair allows me to not have to worry about having a seizure and sustaining further injuries, it allows me to know ill be safe in the event of a faint (I have seat belts ) . it allows me to express my self with accessories and lights and features. it gives me better access to things other people take for granted like getting further education or for some people employment. So.... tell me again how using a wheel chair is some how "failing"? I just dont see the logic in people saying that.

love the shades, v snazzy!😎😉

I have a friend who is actually a Naturopath from Australia Jessica Millroy i have mentioned her before and she has her business (Inside Out Natural Medicine)located in Melbourne of course has clients from other parts of the world through remote video calls. She is an expert on Lyme disease has personally treated her own Lyme with different herbs a long process of healing. I think there should be more studies on longterm effects using antipsychotic medication, i know one case i met in person who has Tourette and was prescribed as a kid a strong antipsychotic medication(at the time they didn't understand the dangers/risks)he had been on it for years is still trying to wean off which is not easy. Now his brain chemicals have been permanently changed and damaged. I was prescribed an antipsychotic medication when my Tourette was diagnosed that i have weaned off and use alternative approaches like diet limiting sugar intake, incorporating more greens/vegetables, take supplements like magnesium, do breath work + yoga daily, vagus nerve stimulation exercises they help with reducing anxiety and i have learned to be very attuned to my body's sensations when there is tension i relax my muscles something i learned to do through meditation. I do all of this on a consistent basis to create new neural pathways/wiring in the brain also have a journaling routine. These days my tics are very much reduced and unnoticeable at times also my anxiety has been much more mild.

My breathing tics are something like exhaling 2 times in the nose constantly and sometimes my breathing tics are connected to my stomach even at times im talkinng i pause just to have the beathing tics and stomach tics before speaking again sometimes my breathing tics gone and get a new tick like blinking my eye constantly or moving my legs, its aweful, thought im crazy, i did not not that im not alone with this kind of condition thank you for sharing

What other natural things do you do to keep your tics reduced?

I have tourettes and too much vitamin B12 triggers rage attacks for me

Hi, can you list those herbs you mentioned in your video, please?

You are a beautiful young lady! God bless you!

Very good talk thank you

Hello darling. Did you try the keto diet. I saw your video about diet and tics years ago.

I also have autism so I’m trying to act like I’m a good kid because I get made fun of by bullying

for months i've had the can't satisfy the breath one 😭

My toddler has developed facial tics after getting strep..Im shaking and I dont understand what treatment is..she no longer seems to have strep and I dont understand. Does she still need antibiotic??

😱 what an idiot that was and I was in tears 😭 the whole show just 😢😢😢😢😢😢😢😢😢😢😢😢😢😢❤😢❤😢😢❤😢❤😢😢❤😢❤😢

Where did you get the llama it’s so cuteeee

But the thing is, they learn those swear words , if they have not been learning swear words from when they ere young they cannot have coprolaria right?

I gave up on nerotypical people a long time ago they bring nothing but pain and suffering to me anymore. They veiw us as the freaks and black sheep while I veiw them as nothing more than slaves to society. The only people that nero divergents can trust is other nerodivergents.

Wow lots of information, and presented very well. Thank you!

I've had so many imaging tests done, so much blood work done and I'm living in pain with no diagnosis at all. I've been scheduled for surgery for something I don't have, I've been to countless doctors, I've had my heart chemically stopped and told it was anxiety and I was put on Valium. I feel crazy. It's awful.

Thank you for making this video! I found it very entertaining + informative :>

Thank you for advocating for our children!!

Growing up autistic I had to learn to hide a lot of my stims, but now when I do the more obvious ones like hand flapping and rocking fast I feel shame. Every once in a while I will catch myself doing it without knowing. It feels good like rolling up in a warm blanket

I’m autistic as well I stim as well but I stim a lot when it comes to music I shake my head and body side to side flap my hands and rub my hands against my knuckles I do stim different stuff as well but it’s most intense when I play a song I really like

From what I have experienced, no matter what I take, my tics are either worse or I'm sleeping all day. In saying that I also have ADHD, Autism and CPTSD.

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I’m scared that people will think I’m disgusting if I use one

fab video as always, was wondering whether you’d consider doing like a weekly podcast discussing the news stories of the time? you are just so articulate and thoughtful i would love to hear your opinions on the current issues that make daily headlines😊

Where's your ig?

I have a question I chew on my fingers sometimes and on my necklace that broke should I get a chewable necklace?

am honestly impressed you managed to fan for the whole video that would screw my arm🤣

How fake can these people be, seems they just making fun of ppl who really have it

I am not sure if this is what I have but I have a tic where I strain my throat but kind of “sucking in” and then straining my chest and it’s absolutely horrible, it makes me lightheaded and I don’t know what to do

I was referred for CBIT when I was diagnosed with TS as an adult, and I chose not to go because from the information I've read and clips I've seen of the therapy, it isn't anything beyond what I've learned living with undiagnosed tics - suppression and redirection. I know how not to "give into" the urge to tic, but the problem is that it doesn't really solve anything, it just allows me to appear normal to people. I am not bothered by my tics when I'm alone, even when they are quite bad. I want to be accepted the way I am - I don't need a "cure".

It’s crucial to say this!!! Thank you!!!

oh my gosh. as soon as you talked about phantom tics I started smiling so hard. not that they're "amazing* or anything, but because I have literally never heard anyone else describe exactly what I'm feeling. I've tried so hard to explain it to family, therapists, psychiatrists, Google, but it just never made sense. thank you, thank you, thank you for letting me know I'm not alone. ❤

What’s your problem

This type of tic destroyed my marriage. It didn't have to, but the controlling, manipulative jerk she is, and being extremely self-righteous with an insistence on always "acting appropriately" (other than her emotional fits to leverage control), all of which was probably some form of OCD scrupulosity in her, she always assigned darkness and sin to my words and actions that were "crude" tics. What made it worse was an obsession with the "Love Languages" from some books she read, and since she claimed "words of affirmation" from the philosophy as her requirements to feel loved, she thought of crude tics as the opposite of affirming words, since it was so offensive to her more righteous sensitivities, so I was being extra messed up. I knew she needed compliments and poetry but gave her offensive words to have to hear instead, how awful of me. My attempts to get her to understand by sharing information like this in videos and articles, so she could know I'm having a tic and not hating on her, were all in vain -she never watched or read or listened to anything, claiming it was all me making excuses and even claimed I was trying to control her (with information), or instruct her how to serve me, and I should just go get treated by a professional if I really had something, and it would be fixed so she wouldn't have to deal with it. She sort of believed me that I had OCD and Tourette's, but she didn't believe the extent of it, thinking I was leaning into it as excuse to be crude, and there was still a darkness from me that turned the coprolalia crude instead of just being benign tics. Thank you for speaking about this and getting the word out, but you can explain this as eloquently as human language can make possible, and people still need to open their hearts, minds, and eyes to the truth of it and just accept what doesn't always make sense. They have to stop making assumptions and correlations and accusations that project their own insecurities onto strange behavior.