1 Week after Ulcerative Colitis Diagnosis (Thoughts, Symptoms, Diet) | My IBD Journey with UC

[@mattb6704]

I’ve been living with UC for three years now. Remission for 2 years and now I’ve randomly flared up again. It’s such a horrible disease. Keep your chin up 👍🏻

[@saravanankrish9423]

Me too remission for 2 years i am going to do sigmoidoscopy

[@linkinparkcky88]

Me too! I been in remission for two years and I am now currently in a flared for the first time in two years

[@a_m7ammad]

@@linkinparkcky88 how are you right know ? Is everything is ok ?

[@linkinparkcky88]

@@a_m7ammad fortunately yes! Thank you! I got it under control with cabbage juice every day for like two weeks, usual probiotics and prebiotics, easy to digest foods and most importantly reduced stress

[@a_m7ammad]

@@linkinparkcky88 thanks for sharing I need to taste cabbage juice, for me, my nutrition is egg with coconut oil, bowled broccoli + carrots + potato + chicken - salads in general + pomegranate juice + I used to eat a banana each morning but it runs your stomach .. Im glad that you feel good hope always.

[@fredquimby3260]

Hi, I've been living with UC for 30+ years and still enjoying my life! It comes and go's and can be quite debilitating but you have to work through the challenges. More positives then negatives !!!

[@aydoesoul]

What are the positives ?

[@everything2857]

Fred Quimbly. Did you get surgery?

[@gamechanger432]

Are you ok or got surgery

[@mackenzie201]

23 and diagnosed 9 months ago. Attempting to reverse the disease naturally with healing whole food, detoxification of the body and a whole shit load of supplements! It is a debilitating and lonely disease. The gut and mind are directly linked so inflammation in the gut cause inflammation in the mind (anxiety, depression) and visa versa. Very tricky and so god damn painful. Flares seem like they may never end but the most important part is to stay positive and keep your mind calm and in a healing state. Stay healthy folks ♥️🙏🏻

[@jamescary6124]

Very hard on the mind for sure. It changed everything

[@edwardkennedy9919]

Carnivore diet

[@mackenzie201]

@@edwardkennedy9919 animal product is actually linked to many types of cancers and diseases, awful for inflammation and not natural for our bodies or digestive systems! Best thing to do is a high carb vegan diet, best for the body :)

[@edwardkennedy9919]

@@mackenzie201 Incorrect, before agriculture came along human beings ate meat, human beings thrive on an animal based diet and it's incorrect it causes cancers.

[@luzdelcarmen928]

Im 20 years old and got diagnosed with ulcerative colitis this summer of july. It does get better, and flares will calm down :]

[@jaglass5353]

I had the same issue you had It was so bad I was down to 85 pounds. I went to a gastronologist. I went on Antispasm to stop the spasms and cramps. I had to go on a bland diet. It was a very slow process. I even had to take anti anxiety meds. You will get better. I have been in remission for over ten years. In does takes time.

[@victoribarbo2709]

Congrats! I’m still in a flare up after a year

[@chaitraraju9783]

Wats diet and meda

[@Indianadawg]

24, just diagnosed. Dad had it too. Welcome to the shit show folks. Here’s to the road back to genuine health and happiness. Patience and discipline everyone, cheers 🍻🍻

[@officialsuperrad]

That’s around when I got diagnosed, don’t worry it can be manageable. Quit drinking now if you do, you’ll thank me later, smoke pot especially for the cramps

[@Eurovirgo80]

Floating on a raft in the ocean: That is a great analogy. I was diagnosed at age 22. I’m now 42. For 19 years, oral medications kept me mostly in remission. Then, a little over a year ago, I had an incredible flare, and I’ve been on the biologic journey since. Stay strong, and thank you for sharing your experiences. Und gute Besserung!

[@hannahkwit7905]

I’ve never heard anyone describe it all better 💜

[@almostaustin]

Haha - I feel so awkward in unscripted videos, but thank you!

[@nickslifevlogs]

I love your aura despite this condition., I know you'll get through this. You're not alone. 😊🙏

[@agendarecords2530]

Thank you soooooo much for your words! I had...have? A colitis after an infection from Shigella (through food poisoning). It’s only been about a month since hospitalization & medication & I’m still recovering & bewildered, but this is a spark of hope, just THANK YOU!!!!!!

[@glens4918]

Hang in there mate, it’s hard but keep trying and looking after yourself.

[@tschandraheinze1680]

I just got diagnosed myself............. feeling so much pain and numb to life I can't hardly function. I haven't even gotten into the special doc 😢 thanks for your videos

[@itispam]

Thank you for coming across as so 'normal' as so many on You Tube give some dubious accounts of their condition and treatment. My daughter is going through the whole scenario as yourself now and I totally appreciate your honesty and pure candid approach to this nasty condition which is more prevalent than we ever realised. Bless you and hoping that when I access more of your story, well you will not have had any more flareups.

[@baharmojgani6201]

Thank you for sharing. My son was diagnosed with UC 1.5 weeks ago and I’m so grateful for your connection.

[@joeamado2693]

I was diagnosed 14years went into remission never had a flare or problems forgot I even had UC. Then I just went on a trip to Costa Rica and now I had a flare. I’m struggling. I went over 12 years no problems and in those years I had healthy lifestyle and unhealthy lifestyle.

[@harleyadam8787]

Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through

[@victoribarbo2709]

I’ve had UC since I was 15 (21 now). For a good 5 years i didn’t have any major problems. Now I have been flared up for a year and feeling much worse. It can come and go, but the the advice i can give you is; manage your stress and eat diverse

[@tifftiff2017]

I just got it like 2weeks ago , this is my 1st week without medicine and I’m scared at work cause I work outside and today I had a flare up and I just feel defeated and broken. Im 27 and I thought I was healthy. I’m so scared to eat certain foods and it’s just like wow I can’t eat or drink that anymore . Good luck dude ,I feel you

[@Michelle-qd9gm]

Bless you keep strong hun

[@Michelle-qd9gm]

I had my emergency surgery for UC nearly 4 weeks ago the operation was horrific spent 3 days in icu then 2 weeks in hospital am home now like you trying to get my head around it all never even heard of colitis before and learning to do the Stoma bag am like you again listening to people who has been there with the disease and it’s really good to watch you are not alone the recovering pain is painful as well It is all mind blowing for anyone it’s hard taking it all in with the foods as well what you can’t and can have

[@jaybot303functionerror4]

You will get there, I have Acute pan U.C. Since 1993 when I was 16. I needed my 1st surgery in 2020, like you I ended up in I.C.U. with pneumonia & sepsis. I was in hospital for nearly a month, I.C.U. for 2 weeks. I am much improved now, exercise & good fresh food helps me. Unfortunately my dad died from cancer last year which has set off a flare in my remaining colon. I am waiting for a date for my J pouch. Even with how acute my U.C. is I got years of remission & achieved quite a lot. Speak to a Crohn’s & Colitus charity in your area they are good for up to date news plus treatments. It can be very overwhelming at 1st, but you will hopefully find a balance so u have good periods of remission.

[@Michelle-qd9gm]

@@jaybot303functionerror4 hi thankyou so much for your reply I am doing ok I’ve just been back in hospital for 12 days With my asthma been really bad since Xmas theve to,d me I’ve got OCD god with my disability’s and my colitis now this anything else they can Chuck at me My colitis has been hard to get used to but I can change my bag now without getting all worked up and worried I do keep in contact with my stoma nurse at the hospital if I am worried or my output is not right it’s not easy but I do wish you the best your brave and you will be fine good luck with your j pouch I know it’s going to be ok sorry to hear about your dad 🙁. To you 😊🙏🤗

[@jaybot303functionerror4]

@@Michelle-qd9gm Thanks, I have pretty bad Anxiety & suffer from panic attacks, with a bit of O.C.D. Anxiety is being recognised as a symptom of inflammatory Bowel disease, mine gets worse as I flare, so with Brian fog it gets pretty overwhelming at times. I found contacting the N.H.S. Mental health services helped me get used to having a stoma, alongside coping mechanisms for me anxiety. Best of luck with your surgery, things do get better, exercise really helped me.

[@Michelle-qd9gm]

@@jaybot303functionerror4 hi I can’t do much excercise as I am in a wheelchair it is weird you said that about anxiety though I said to the doctor that since having my soma I’ve always been dry nothing I drink helps at all the doctor said it’s because you’ve got anxiety never heard of that one before so maybe your right what you said I had my first anxiety attack before Xmas it was terrible I just needed to get back home and close the door I felt really poorly with it my friend said I didn’t look well at all It’s a nasty thing to have I had breast cancer and that bought my depression on with all the treatment I had to have So now it’s in my records I’ve got anxiety and depression so what you said then the doctor maybe my colitis has got something to do with my anxiety because I didn’t believe him at first how could this be so thankyou you have helped me open my eyes 👀 a bit to what he said to me

[@Michelle-qd9gm]

@@jaybot303functionerror4 I will look into the nhs mental health services to help me cope better with my stoma as well thankyou for all the information you have given me

[@AKking27]

I’ve had UC since March last year… everything you said mirrors me. I also use to love my foods and I use to do lots of cardio but now I’m going through a flaire ups it’s not nice

[@harleyadam8787]

Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through

[@bunnynahi4461]

Don't give up I know you can do this my bro proud of you for talking about this it mustn't have been easy

[@ardacaliskan]

Hey guys, it’s my 6th year as a 22 year old with UC. You should check out Jay Pravda’s research and spread it. I wonder what you’ll think about it, might be something valuable there. He uses RDHLA to eliminate the colonic hydrogen peroxide which seems to be the source of this disease and not something autoimmune. Unfortunately RDHLA cannot be found anywhere :(

[@claudiaburg5435]

Thank you for sharing your journey. A young relative was just diagnosed. Hopefully this will give him encouragement.

[@kerrytabak7585]

Work on fixing your digestion and healing your "leaky gut" and research your microbiome. All play vital roles in getting your health back.

[@grantisntwarm2886]

I’ve have UC for a year now and im starting to have blood in my stool again. I just hate flare up’s, but gotta just keep pushing through it 💪

[@ariannakern5585]

I am in the exact same boat about everything. the same boat in the middle of the ocean with no land in sight.

[@luisangeltorrestorres6493]

The nights are the worst for me too, also the mornings. I feel a little relieve after I take the prednisone but it starts to get bad again in the night. Listening to you, it's like listening to myself really 😔

[@joannacuellar2430]

How is your side effects with taking the prednisone

[@luisangeltorrestorres6493]

@@joannacuellar2430 I've gained some weight, it makes me hungrier, and I've been having a little acne on my face and back. I think it makes me more easy to get irritated by people.

[@Michelle-qd9gm]

@@luisangeltorrestorres6493 am the same am staving some days

[@LuisMartinez-cv8ei]

Does anyone experience pain by their kidney area during a flare ? Currently going through a flare and seems like my whole body is in pain

[@colieclardy2118]

I have pain around there. I haven’t been diagnosed with uc yet but I should know here in the next week

[@tyrnei6877]

My father has the same. You learn to live with it, he says. But it will be ... more exhausting for you. Still ... keep your head up

[@MF-rw3rb]

How do doctors diagnose this? I got scoped through both ends, neither doctor mentioned seeing inflammation or polyps.

[@grahamsgoneagain]

I'm binge watching your videos. Scared in the hospital with a new flared colon. Now about to start remicade. Not sure but they wanna take my colon if it doesn't work. I'm freaking out. Any advice for me to ask before I take remicade??

[@almostaustin]

Hey Graham - So sorry to hear you are in the hospital. I know how scary and uncertain things can be, especially in talks about removing the colon. "Mental Strength" and "Optimism" can seem like shallow advice in light of feeling like your body is "betraying" you with nothing you can do to stop it on your own, but I'm convinced that attitude got me through the worst of it. Remicade works for a lot of people, but if for some reason it doesn't, something else will. For Remicade (in my experience), make sure you are hydrated, and if you can, try to eat something light before the infusion. I made a video on my experience with Remicade as well that you could find helpful.

[@reedfinn7826]

I got my dx 3 weeks ago from a colonoscopy appointment. Not even seen my GP yet. My diet is so bland right now, can't even eat my favourite tangerines. I've eliminated so much and I've lost 15lbs already. So. Hang in there. X

[@harleyadam8787]

Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through

[@baharmojgani6201]

SCD diet helps more than anything. Please consider it. It worked for my cousin and I’m hoping it works for my son.

[@debbiealice9257]

Giving up dairy has helped

[@joannacuellar2430]

I was diagnosed with UC back in 2015.. it’s been a battle ever single day since than.

[@harleyadam8787]

Reach out to Dr folonsho, he can help your cousin, he is a herbal doctor, who deals on plants and natural treatment, he healed my husband from chrons disease,I can only imagine what he/she is going through

[@officialsuperrad]

Great vid (I’m sorry you’re one of us now) I hope you’re in remission!! It can be manageable but it can suck so bad if you let it go. Posting from toilet right now at 6 am lol

[@rmc1894]

I’ve had this almost two years when it first happened the hospital sent me home twice they didn’t do absolutely nothing except have me wait in the er for hours just to tell me you need to go see a gastroenterologist anyways after almost a year of agony and no professional help I found a doctor that done a colonoscopy and gave me mesalamine it worked great but last weekend I had a flare up and it was sooooq painful it was so bad but yeah like you said stress levels have a lot to do with it. Need to stay strong thank God I’m feeling better now and I hope you do too

[@a_m7ammad]

Diagnosed 6 months ago my flare up with nightmare and since I had left sided ulcerative colitis and dr wrote for me 2mg pentasa additionally I went into extreme diet and into remission mood and after six month my descent colon was almost cured of colitis but my colonoscopy showed new colitis in my contraverse colon right know the doctor added cortisol to my prescription which has side effects but I’m managing it .

[@satyajitbehera1979]

What was your symptoms actually? And what was the diet during your treatment period?

[@bnbcraft6666]

I'm a 23 year old man and was diagnosed 2 1/2 weeks ago and had a severe case of UC where I had inflammation from end to end but thankfully my body reacted very well to the steroids so thankfully I didn't have to get surgery im feeling better but I'm still having diarrhea issues (especially at night) but hopefully when i start my biological injections it'll go back to normal

[@almostaustin]

Thanks for sharing! I’m sorry you have to go through this. Sounds like your head-game is strong, and that’s half the battle most days. Wishing you a speedy recovery with biologics and beyond.

[@edwardkennedy9919]

Cut out sugar and all processed foods, keto/carnivore diets are very good.

[@Michiko-San]

The thing that’s really dumb about this condition is that nobody knows if you’re form of UC is forever or just something that will come and go away forever, managing stress and staying relaxed is great thing to do to ease symptoms. Do research on the condition but don’t be scared of the potential dangers of the condition because it’s really tough on the mind when you hear things like death etc.

[@stealthbomberbaby]

Keep away from anything with sugar in, eat small portions.

[@humbleprincess2820]

Very hard to deal with.I can't go out for too long because I may need to use the bathroom.I have to sleep certain ways so my stomach won't hurt.Right side is the best for me.Having to wear a pad because you are scared you won't make it to the bathroom in time.

[@heatherfont]

Do you take medication? My son just diagnosed ulcerative colitis & his autistic. Can diet change avoid medication treatment?

[@dpapa9410]

I'm with you man. I'm 37 and got the diagnosis last week. How has life been since?

[@Michelle-qd9gm]

How you doing now ?

[@dpapa9410]

@@Michelle-qd9gm I'm taking mesalamine. I'm eating a super healthy diet. No sugar, no Milk, no fried food. Still able to eat beef which is good. No more blood. I'm having solid stools. Some tummy rumbling if i eat raw onions or garlic or ginger. Overall, I'm feeling good. Some fatigue.

[@simsart]

@@dpapa9410 it’s nice to see that some of your symptoms have subsided with mesalamine! do you continue to incorporate whole wheat/ whole grain into your diet - or did you find that eating white is better for you? I’m still figuring out what changes to make in my diet; I find that the mesalamine has worked for some symptoms but not all.

[@dpapa9410]

@@simsart I'm sticking with white rice, and regular pasta for now. Sourdough bread only. I have cheated with some white buns. I tried buying sugar free condiments. I'm new to plant based items. I'm making sure I need clean ingredients. No bad oils. I use avacado oil now

[@pammystories1]

@@dpapa9410 please am also trying plant base and am also quitting my job, please do you take supplement please tell me about it

[@elliegeorge8444]

I am new to having this and Chrons :( in my lower bowl it’s been very hard I lost my job due to it as keep trowing up and needed the loo to flare up getting new infections starting next week :( very scared and nervous

[@vishalchaudhary-nf6gr]

i was diagnosed with ulcerative colitis and i was very distressed but i got to know about Ulcerative colitis care pack by planet ayurveda and i got permanent releif. must try for better results

[@themindfulsky7634]

I was also diagnosed with UC. The carnivore diet has significantly reduced my symptoms. No fruits, No veggies, No seeds, No meds. It seems strict but it has worked for me. You still can get all nutrients with this diet.

[@aleesharenea8565]

So you been eating meat?? The only meat I can Tolerate with UC is Turkey,Fish and Chicken. Beef makes my symptoms worse.

[@themindfulsky7634]

@@aleesharenea8565 Yes, I can eat any meat. A lot of my journey to remission was trial and error. Seeing what works for my body. Your diet may look different or it may not.

[@aleesharenea8565]

@@themindfulsky7634 Do you take medication to stay in Remission? Im still learning on what I need to do I have been having alot of flare ups.

[@themindfulsky7634]

@@aleesharenea8565 I don’t take any medication. Nutrition and reducing stress led me to remission.

[@themindfulsky7634]

If you want my email. I can tell you more about what’s worked for me.

[@gsc76]

I see you haven’t posted in a while. I was diagnosed 2 weeks ago. Taking forever to get to see a gi dr and my 40 mg of prednisone is over and I’m didn’t really help at all. I need to know what type of pain is normal. The pain in my left flank under my ribs and back is so intense.

[@jeffreyacujedo7697]

How are u now,,, I have the same essue,,, I have a pain in my left under my ribs,

[@rohitbajaj2410]

Thank you so much for sharing this informative video. My uncle was suffering from the same disease for 5 years. Last 3 years was like hell for him. As he has to go 8-9 times motions in a day with uncontrollable mucous & bleeding. He had grown very weak & his immune system was failing due to regular use of modern steroidal drugs. Then my elder brother advised him to go for Planet Ayurveda's UC care pack. Uncle used the same for 6 months continuously, now he is having lesser trouble & his health is also healing fastly.

[@sidhussain915]

Planet Ayurveda is very commercial they constantly send you emails to buy products in $ which are not regulated and checked for harmful metals

[@rkrk8525]

sadly no cure....just medicine...2 nd step steroids ....3rd step remicade and last stage is removal of colon

[@bunnynahi4461]

Ur not alone

[@Knighttus]

How are you now? Pls keep us updated

[@user-tt2ci5xw5w]

My son was diagnosed with UC at the age of 19..😢nightmare for a mother.

[@ktpedigo8799]

Your videos are great okease jeep doing them

[@bladerrunner6444]

Try intermittent fasting. Fermented foods and keifir.

[@gaddmeister]

You certainly have plenty of energy. I was wiped out and definitely not well enough to do a video like you, not is my daughter who is the same.

[@63frogsinahat84]

I have uc and my nights are the worst.

[@Abhijeet578]

same here

[@darkbloodgt6577]

Diet is so hard

[@jonyluthra7393]

Hey Austin wish you good health i too understand this dieses very well my sister suffered this two year back I was also disturb seeing her in so much pain and stress but I'm thankful to our herbs and planet Ayurveda for reliving her from this painful disease.

[@jamescary6124]

Bone broth and milk kefir!

[@jamescary6124]

Could be years. Prob the rest of our lives

[@shivanichhabra1166]

Nice information, agar apko ulcrative colitis ki problem thik na ho pa rhi ho to ap planet ayurveda se apna treatment krwa sakte ho .

[@rkrk8525]

sadly no cure....

[@almostaustin]

haha - not with that attitude! It's true tho, from a clinical perspective at least. However, it's my personal belief that there is simply not enough scientific research on the gut microbiome and adjacent fields for this to be an objective diagnosis and outlook for IBD. I started with severe pan ulcerative colitis, and through meds and a dramatic change to my diet I am doing better. Whether or not changing my diet will be a long-term fix to manage the disease... idk, but "no cure" is a little near-sighted in my opinion.

[@rkrk8525]

@@almostaustin I have 10 years having UC....tried all kind of things homeopathy , ayurvedic, therapy , change of diet, but nothing worked..but once or twice a year I get a flare....unlike your I have left sided coilitis. ...your is pan coilitis which may get bad in time....I guess the last resort is remicade and if that does not work then removal of colon..(#ucfree).this is a disease horrible than cancer. .... ..if you get cured or on remission for longer time do share me your diet I will try that, also add probiotic in your diet....till then stay strong stay safe...Stay blessed...tc

[@harleyadam8787]

@@rkrk8525 Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now

[@rkrk8525]

@@harleyadam8787 that guy is a fraud...he is asking to deposite the amount in advance when confronted about this he started to abuse and became very aggressive by using slang words .....Stay away from such scam

[@harleyadam8787]

@@rkrk8525 are you sure you reach out to the right mail, he healed my husband, and that's been more than 3 years now, am only curious as to why Dr folonsho would react the way you said

[@TreeOfWisdom2]

Change your diet right away! You may still have time.