MY LIFE WITH UC - What Is Ulcerative Colitis?

[@ryanalexharris]

Great video. In a flare right now and I forgot how it feels. It has been a long time since I’ve been this bad. For anyone reading, cutting out gluten and dairy are the first two objectives I would plan for. Gluten breaks down the junctions in the small intestine. Most of us are also lactose intolerant, as we lose the enzyme that breaks down lactose after adolescence. Nutrition will go a long way in managing the disease! Meds are definitely necessary when things are bad, though. Everyone is different, but look into the SCD diet, the AIP diet, or GAPS if you’re up for real intensity. I haven’t managed to stay on one consistently. It’s a lot of work. A lot. I hope anyone reading this will find peace and happiness in their healing. Only those with IBD truly know how I feel. We’re in this together. Love.

[@amnvendetta5289]

try carnivore dieet for 2/3 monhts

[@janetoche1725]

Thanks so much my bf just got diagnosed with UC and we are at the moment pretty overwhelmed with everything but gradually we are trying to stay positive and research on any helpful informations that will help us as family in the new normal life for us now. Thanks everyone here for sharing their experiences and advice and of course for making this video ❤️❤️❤️🌈🌈🌈

[@idreeskhan8885]

I dont know if I have this disease but I fear I might. I had a constant urge to urinate for like 7 months and now I am having problems going to the toilet too. Fevers and general weakness were common during the stage where I 'only' had an urge to urinate. I think it could be IBD. How likely is it to end up in hospital? I never want to get sick and taken to the emergency room, can this be avoided?

[@janetoche1725]

@@idreeskhan8885 you have to see the doctor asap!!! I wish you all the best 🥰🥰🥰🙏🙏

[@idreeskhan8885]

@@janetoche1725 I got and even a month after going they still havent sent me a letter....

[@markwoodson8085]

I just want to say you did an outstanding job explaining this disease. Probably better than half the Drs. They rush you in and rush you out like cattle. I hope that the treatments get better for people with this. I'm sure this is not easy to live with so stay strong.

[@alexcabaangable]

agree 100%

[@mariahconklin4150]

Exactly! I went to one dr and he said that I need to eat vegetable. Went to an actual doctor urgent care and they took what I was saying seriously

[@queenofcamp832]

This is so true. My boyfriend was diagnosed with UC about 2 years ago and they explained the diagnosis to him super quickly while he was still high on the sedatives from his colonoscopy. He asked for them to bring me in as he couldn't process what they were saying and they simply shoved a leaflet in my hand and ushered us out of the room. This video is so much more helpful and less daunting.

[@sarabouamri8758]

Really did explain it so well better then drs for sure 🙏

[@Lidiam2023]

@@queenofcamp832 hey! How has your boyfriend been? My boyfriend got diagnosed with colitis yesterday and I’m worried.

[@UOITDurhamCollegeNSO]

It's obvious that this video was not easy for you to make, and I'd like to thank you for pushing through. Excellent work. I wish you many flare-free days.

[@FromSimone]

Shoutout to all my other Canadians living with this! You're not alone 🙋🏻‍♀️

[@jj6440]

it hurts alot :(

[@Rohan-go4oo]

I found your video comforting. 20 years I have had UC. The last 10 years have been tolerable. As a man, the worst part, is the lack of understanding, or even empathy. I had work mates mock me, for needing to go to the toilet, even though they had known for 5 years I had a chronic condition. My own mother has made disparaging comments, relating to me being sick. If I had cancer, they would be giving hugs, comforting me, but UC, they think you are not really sick. You just have diarrhoea (×20 times a day, for 10 years).

[@hassanmazza1831]

I’m sorry to hear that mate. As a Male it is harder and not only is it a condition that affects your digestive system but your whole body, mentally too, and thats not considered in people’s feelings and attitudes towards chronic conditions. I hope you find relief and ease in your life, as I wish with all sufferers

[@edwardkennedy9919]

I've had uc for 18yrs, diet plays a big part I've found the carnivore diet to be very helpful.

[@garythesnail7631]

I've been diagnosed this morning I'm a man 20 and I'm worried.

[@Rohan-go4oo]

@@garythesnail7631 Was your diagnosis 'severe' UC? I didn't seek assistance until I was extremely unwell, fainted in the shower, from internal bleeding, and had to have numerous blood transfusions. I was given medical advice from a GP and non specific surgeon that hindered my management. Things turned around for me, by being included in a research study, being conducted by a professor at a university. His told me, not to fall into the trap, of looking for miracle cures, just eat a normal varied diet. Keep at the high end of a normal weight range, don't get overly fat, but muscle weight it OK. For an example, I went through Army basic training at 90kg, I wasn't an athlete, but didn't struggle through fitness training. When I was 30, really sick, and first admitted to hospital, I was less than 70kg. Now, at 50 years old, I am 110kg, and the doctors are not concerned by my weight. Once you have a good gastroenteroligist, follow pill taking regime ... exactly. When they tell you to have a colonoscopy, endoscopy, MRI, do it ... don't put it off. The drugs you take, may be different in your country, when I started on mine, it was always an issue, with the pharmacist, they didn't like that the 3 drugs prescribed were seemingly, contradictory to each other. I am still taking them 15 years later, and are in pretty good health.

[@edwardkennedy9919]

@@garythesnail7631 change your diet, cut out sugar, all processed foods.

[@pittchaser]

Thank you. My mum just sent me this video. I've been in hospital for a week and just found out I have severe UC. I was in pain for over a week at home before this, constantly going to the toilet and in extreme pain. I'm 32, have also been recently diagnosed with psoriatic arthritis. I've been so down but now I'm learning more its getting easier. They estimate ill be out of hospital in 5 days. Can't wait, I need my life back! Thanks again, from Western Australia :)

[@sheebaahmad4830]

UC makes bones weak. Also one can have osteoporosis alongwith UC. I hope all UC patients heal soon

[@Србомбоница86]

You are from a rich country ,you are lucky ,people with this illness die in many countries

[@ashrafraza9738]

@@sheebaahmad4830 hindi me Bata sakti hai kya please

[@constancelupo4752]

I was diagnosed with UC at age 71 I'm so sorry you have to deal with it at such a young age.

[@olir3601]

Aw I was diagnosed at 7, I’m 15 now. I’ve always wished I had more time to be healthy. I’m sure you do to!

[@subratadas9942]

@@olir3601 How are you now? Any further problems are you facing?

[@slyboy45]

74 here!

[@blackpistolcompany3482]

This is the best video on UC I've ever watched. Taught me more in one watch than I've learned since being diagnosed 4+ years ago. Ill be saving this video to rewatch for sure. Thanks for your work.

[@simonhainaux2579]

Just wanted to say I truly admire your courage, you are an amazing person. To everyone diagnozed keep strong, you are not alone, have an amazing life!

[@thcdelirious1235]

We're trying lmao

[@dthomas6739]

Thank you. I need that.😥

[@robertbosch1187]

Hello Simon

[@heartstrummer]

I agree, a really clear presentation from this lovely young woman.

[@deefreeman59]

Damn girl...you should be a spokesperson for this disease. BRAVO! I don 't have Crohn's or UC but I totally understand it now!

[@mjmj4544]

It’s 4 years since you uploaded the vid. Hope you are doing well and that you are in peace.

[@Xuevium]

She has Never one single time, responded to any comments on here or even given a single like. That is really lame and sad, especially after years have gone by.

[@AnonymousanonymousA]

@@Xuevium don't think it's her specific channel

[@dancerloverish]

@@Xuevium It looks like it isn’t her channel. Most probably she was asked to share this info. Also, probably for advertising the app she was talking about in her video….

[@konchilatte5330]

Whenever I get stressed I have an episode

[@V1b2910]

Me : Get stressed. UC : Welcome to the next episode of "You're F***d".

[@mcildaftie]

Great video. Thanks for doing this

[@mariahconklin4150]

Me to! This is why I’m getting tested at urgent care tonight

[@eliaskanaan5960]

Same

[@SkinnLotion]

I was just diagnosed 2 days ago and this really helped me understand a lot. I didn’t know how to tell me job nor have I ever called in or missed work, but some how I pulled through and told them what was going on with my body. I’m now working on a food journal to prepare myself for my new normal.

[@a_m7ammad]

How do you feel right now

[@MikeTheGreatCC12]

How were you diagnosed?

[@michaelsix9684]

UC is hell, got it at 20, at 56 it led to colon cancer, now wear an ostomy appliance, my colon gave out after 36 yrs. it's a tough disease to live with and it ruined my life

[@langstonmcguire386]

I've had it UC fir 2 years and its ruff but God is still good in the midst of everything goin on around us. Thank you so much 4 the video. Keep strong life is just a moment that leads to eternity. You will be in my prayers. @effie siamalekas

[@m0ony1]

I was studying this topic today for my med school and glad i came through this video. Such a helpful and emotional video.. thank you so much for sharing your story. God bless you and my heartfelt prayers for you and everyone suffering from ulcerative colitis.

[@graspknowledge8799]

@@Michelle-qd9gm hey I’m from India 🇮🇳 and I got uc it’s been 1year I’m under medication I have a question will it completely get back to normal someday or I would have this pain my all life

[@umernawab4558]

@@graspknowledge8799 Hi I’m from Pakistan 🇵🇰 and I’m pretty sure there is no known cure for ulcerative colitis same as hypertension but yes it can be controlled with medications like it will calm the inflammation and it’s good that you manage the diseases rather than the disease manage you so I hope it will be a bit informative for you and you will feel better soon…

[@ashrafraza9738]

@@umernawab4558 bhai aap mujhe hindi me samjha sakte ho kya please

[@umernawab4558]

@@ashrafraza9738 bhai is bimari ka abhi tak koi muqamal ilaaj nahi aya par inflammation ko rokny ky liye ap dawai ly sakty ho…

[@ashrafraza9738]

@@umernawab4558 aapne kon si davayi li?

[@artformarket]

5 years later and this is still the BEST video I've seen on the topic. Thanks for the courage. Really.

[@Xuevium]

5 years later and she has Never one single time had the humanity to like one single comment, or reply to one single comment. That is really sad.

[@RavenDeandra2015]

I just got diagnosed so this really helped me understand what’s going on. I’ve really been so embarrassed this past month because I haven’t been able to work and when I do I’m stuck in the bathroom. Thank you for giving me hope

[@pgrieger]

I have lived with UC almost 40 years now...didn't realise my age until calculating...life is possible with all considered. I cycle, fluctuate in weight/shape and dance to all genres. Seems to be genetic and theories of stressful environment are popular around me but I am amazed that you explain things so detailed. I understand more than ever and hope to come across more about your sharing. You taught me logically linked biological concepts that I never knew eventhough I researched about embarrassing symptoms and possible IBD issues from the age of 10 years. Thank you for every word, overcoming embarrassment and most if all sharing about you. More than appreciated and admired.

[@atij6356]

I have been diagnosed with diverticulosis and get diverticulitis flare ups way to often. I came to this video to understand if I have symptoms of UC and might have been misdiagnosed. You have explained this very well, and I pray for everyone living with UC.

[@knash965]

Thank you for making this. I was diagnosed around 6 years ago. Right now, I'm in the middle of a flare and I hate it. I hope you're doing well!

[@suliyachannel1739]

Are you feeling better now ? How did you improve it ?

[@knash965]

@@suliyachannel1739 Doing better now! I haven't done much other than stay on my meds. I do what I can to reduce stress too.

[@patricekelly8897]

I can’t thank you enough for this, it helps this 71 year old to understand what happened to me during my UC ❤

[@Tugboat511]

I was just diagnosed two days ago and have been researching like crazy. This is the best, most honest assessment I have seen. Thanks for your honesty.

[@amandawesley580]

Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now

[@Destination_diaries27]

How are you? I just dianosed with colitis.

[@kathykerkhoff9234]

I am newly diagnosed and 67 years old! thank you for this wonderful explanation of the disease. It IS the best I've seen yet! I do so hope you are doing well and that I can get out of this flare and succeed as you have shown me is possible. I am a nurse and had many patients throughout my career with this disease but never thought I'd be at the other END of the issue! Thank you for your courage to do this for us new folks!

[@nildhar4998]

Kathy what is your condition now?

[@jamledger5238]

Damn that’s hard, it’s really amazing that our bodies stay together at all

[@booz394]

Just diagnosed. Thank you for this video, it is much appreciated … I was taken aback when you said that it’s common within the Jewish community; as our Jewish community here in Southern Africa is so small - that the doctors here didn’t mention it me - but I guess it all makes even more sense now. Thanks again, wishing you much health.

[@gailtriff3024]

what a sweetheart you are!! I’d love to be your Gramma! I’m really proud of your ability to talk honestly and very openly about your symptoms, Honey!! I’ve been having symptoms for many years.. but what seems to have started this OVER THE TOP EPISODE, seems to have been a terrible stress and anxiety attack concerning someone I. My life.. I became really sick, had awful unloads of bloody, mucous stools… along with serious pain! I’m still trying to discover everything I can about both IBS and IBD! I want to thank you most sincerely, for your enlightening video!

[@michewilk]

Thank you for sharing..I was diagnosed as a child at the age 12..It sucks so bad..I am now 51 and I went into remission for a decade and now its back in my 50's........you are so brave and I am proud of you .. Covid stress brought it back

[@recepie-house]

How did it go into remission

[@darb4091]

Big kudos to her for stepping forward and sharing her story. 21 years ago I had my colon removed because of UC; when push came to shove I was so sick for so long that I happily handed it over on a gold platter. That left me with an ostomy bag for six months before they did J pouch surgery which is essentially when they build an internal ostomy bag out of small intestine. An extreme outcome, but ever since been happy and healthy without any incidence of UC.

[@kmackblack]

This is what they’re pushing on me right now. I’ve only been diagnosed for 4 months and I’m just not mentally ready for surgery. I’ve just started infusion treatments and if I don’t respond to this I’m just going to have the surgery. I’ve been told by the surgeon that the second surgery (j pouch) has an 80% success rate and the other 20% have a stoma bag forever. That’s heavy for me as I’m in my 30s. But if I continue on with quality of life diminishing then I’ll take my chances.

[@darb4091]

@dani cali I can remember when I was first diagnosed and the doctor explained the worst case scenario to me and I thought to myself that I would rather die than than have my colon removed and live with an ostomy (a 20 something thinking), but in the end, when push came to shove I knew that it had to happen and accepted it. Good luck.

[@insertmyidentityhere]

I don’t know how someone could be truly healthy without the colon, that’s where all the bacteria and flora are… your microbiome determines your health…

[@ashleymcdonald82]

Thank you so much for the clarification because I’m new to this horrible disease and nobody around me understands what I’m going through at times. You taught me more then the doctors smh

[@gc3187]

My heart goes out to you. My daughter is 22 and was diagnosed in January. Although she has had stomach issues for a few years and we went to so many doctors but none of them found anything wrong until this January. I thank you for sharing this video.

[@MikeTheGreatCC12]

Hello, how was your daughter diagnosed? For example, colonoscopy, imaging, blood work, etc? I would appreciate it as I'm currently trying to diagnose myself.

[@rynos1360]

@@MikeTheGreatCC12 I had a colonoscopy last year they didn't find anything, then yesterday I had another one and I've been diagnosed with uc

[@kalsingh2629]

Thank you for sharing your journey with us. As a parent with a teenage son recently diagnosed with UC, we are going through a mixed bag of emotions. We have good days and some not so good days. Your video gives us hope and the strength we need to focus on the positive. God bless you.

[@TheRealNighthawkBaby]

Got very sick in 2020 , was passing so much nonstop blood and bleeding , was very sick , very weak , thought I was dying literally was going to die , Entivio biologics saved my life , gave me my life back, thank God , all inflammation is gone and bleeding ulcers healed , in long full term remission thank God

[@lagadora]

One of the best videos on that disease. Clear, to the point, no nonsense. Great to show people who ask me: How are you doing? No more do I have to add. Thanks.

[@Higgins444]

When I was first diagnosed I was 215 and it dropped me to 165 and recently I have a lost of appetite and more frequent bathroom runs in the middle of the night.

[@edgywedgie9307]

I was diagnosed recently, I only dropped 20 pounds but I was already light so not good. I also have a loss of appetite, I cant even finish a burger anymore

[@jcs_gaming_3118]

lol 🤣 yeii there's something good about this. Weight loss 🤣

[@watrgrl2]

I’ve also lost weight but I desperately needed to lose so that’s fine. I hear you about night time bathroom visits. It’s very disruptive of sleep. Sometimes I just give up and take a nap the next day if possible.

[@paulweakley2272]

Wow! sorry i am 7 years behind since you posted this, but that was a very helpful good and interesting video (also you are brave in coming out with all that) Thank You

[@illawallaroo]

Such a helpful video! I’m researching for a member of my family who has UC.

[@geekygirlnz]

Just been diganosed, thank you so much for this. This has been the best information so far

[@4themotherload]

My 7 year old was recently diagnosed with UC. It's journeys like yours that you are sharing that will help not only parents but the patients. I hope your doing well and thriving😊 - thank you for sharing!

[@cindydaugherty7689]

Great informative video. I am 70 and was diagnosed two days ago. You were thorough and spoke slowly enough I could process the information.

[@smidel]

I’m 13 and I was diagnosed with UC when I was 10 and I’ve jumped between so many medications. It’s pretty overwhelming sometimes and it hasn’t gotten better, my gastroenterologist says that I’m the first of his patients to be on this special $4,000 medication every 4 weeks so I hope it does the job and I can get to a stable place and not have to worry about getting chunks of my intestines cut out.

[@dthomas6739]

So sorry...I pray to God that healing come through for you. I was 30th when I was diagnose and like the video said, they don't give a good explanation. Now i am 67th and after a good years along with med, this time gotten more aggressive but, I am still trusting God and that this shall pass and we'll get better soon. God bless you.

[@thrashncrash4046]

I was diagnosed with Ulcerative Colitis at the age of 15. Now I am 37 year's old and still deal with it. Hang in there it will get better for you. Never let this disease get you down.

[@Vércingétorix9273]

Im 13 aswell and i have all of the symptoms of IBD. I hope i don't have it

[@zzbug17]

I feel you. Ive had huge stomach aches sense i was 6 and everyone told me i was overreacting and i was stressed so i just took tylenol constantly. in 2020 of august it got miserable, couldn’t eat and dropped down to 57 pounds. In december they finally took me serious and i got a colonoscopy. Found out i had severe uc. I was originally given an option of a infusion or the humira shot. I did humira (and i dont really think it did much). Eventually they gave me a pill of mesmaline! That helped…but it doesn’t go as far as it needs. So they gave me they gave me a choice between another pill or mesmaline that goes the other way. I chose the pill asap!! But… they gave me the mesmaline because they thought it would make me better. That’s where i am right now, i’m hiding so i don’t have to do it. I feel like it’s NEVER going to get better and i’m wondering why they think this is better? It just brings me more pain.

[@Xuevium]

@@zzbug17 - Hey there, Zuri 👋 my name is Kel and I have very bad Ulcerative Colitis with bleeding and severe stomach cramping and pain. Please do Not just hide away. I am on the max dose of Mesalamine, taken daily, and even though i have always been extremely sensitive to all drugs, the Mesalamine does not even give me any side effects at all.. and that is a miracle, and it Does work! But just remember that it takes time... typically numerous weeks of taking it daily before you see the good results. The key is starting it asap, and staying on it. And if you are in the middle of a bad UC Flare that will not stop, then they need to give you a second med as well, like Prednisone or Uceris rectal foam. I highly recommend Uceris foam, if you can afford it, or get your insurance to cover it. I really hope that you get better soon and find relief. I know first hand about suffering terribly from this disease, to the point where I did not want to live anymore. Getting on, and staying on a combination of medications is Nessesary for this disease.

[@butterflygirl3359]

My mom was diagnosed with UC in her 50’s, I got it in my 30’s and my son, (who is now a physician!), started showing symptoms at age 10. My mother’s father died of colon cancer and we wonder if he had it too. It is very important to find a good IBD center to work with you to find the right treatments to achieve and maintain remission. This is a very difficult disease to live with but it does not have to take over your life. Please remember to get your colonoscopies once you’ve had UC for 8 to 10 yrs and especially if you’ve had pan colitis. That every two yr screening is one I never, ever miss. Thank you for speaking about this and for being a source of support for so many.

[@mr.jiveman3213]

I was diagnosed with UC when I was 16. I've been in remicade for 15 years. Just got a colonoscopy last week, I am in Deep remission. No traces of anything wrong in my colon. I know this disease sucks when flared up. However, it is possible to go into remission! I am so happy , I beat it ! You guys can too

[@gdragon3541]

Can i know how you treated the disease coz i got UC too its been 5 years

[@mr.jiveman3213]

@@gdragon3541 Intermittent fasting was crucial. Also , I drink a lot of kefir. At least 8 oz daily. It's packed with probiotics. I cut out alcohol 100%. One thing I've been studying lately is medical marijuana suppositories. It goes directly to the colon.

[@recepie-house]

@@mr.jiveman3213 can u eat anything now

[@ravibharadwaj5384]

Hello, my daughter(16) has been diagnosed with UC yesterday. Doctor has advised remicade or Humira. We are a bit confused considering Remicade and Humira works with Immune System. But looking at your post, if feels like Remicade is a very good treatment option. Any idea on what kind of food that she can try(I am trying grain free food from today) as we are vegetarians but take eggs.

[@mr.jiveman3213]

@@ravibharadwaj5384 hi , sorry to hear your daughter is suffering from UC . Remicade has worked wonders for me. It takes the inflammation down significantly. I stay away from dairy , I notice that my body doesn’t react well to it. I can eat a fairly normal diet , I just always make sure to include my kefir smoothies.

[@aquaholic3]

Thanks for such a great video. I’m 62 and was diagnosed UC at 59. In a flare as I write this and, to be honest, and scared that the “bag” might be in my future. Anyway, you’re a very brave young lady and will look up you more recent videos to see if there are any updates.

[@dthomas6739]

I understand every word that you shared. I myself going through this UC(ulcer colitis). The concerns when the urge comes to go to the bathroom is very stresful. My family is very supportive and also my job too. I hope that you get better. God bless you. Thank you.!

[@andym9122]

OMG thank, thank, thank you for this wonderful video. I was just diagnosed. And it's so hard and scary for me because you don't know what to expect. I swear I saw different video and left it on auto play and your video played. Not sure if it was a sign but I honestly thank you for this video information 🙏🙏

[@markturner1292]

Great video. I have UC at age 51. There are many treatments. So far Xeljanz works for me. With that I’m 99% better. But yes, before the meds every place you went you had to know where the bathroom was.

[@DGBTV]

Thank you. I've been dealing with this since I was a teenager and I am now 62. Has affected my whole life, career decisions. And last night I just had a flare up. You have explained this to me better than all the doctors. That I've talked to over these past 40 plus years. Thank you and I hope you feel a lot better from texas. P.s I found that taking soy lecithin has really helped me.Over the past 10 years with flare-ups.They also have sunflower lecithin That you can find at your local stores or online😊

[@wisetow10]

This breaks my heart. I dealt with severe Crohns for 8 years and it was the worse quality of life I have ever experienced. Somehow I came off of all my medications after strict diet and exercise including running. I know that sounds crazy because it seems impossible during flares but I was in do or die mode. So often times I wished I would die rather than live that way. Continual bleeding and pain. So after roughly 5 years of remission, I have let my diet go, gained weight, stopped exercising, and currently going through a divorce, I’m convinced the stress got me back to here. So back to putting in the hard work of doing all I can do to be the best me I can and hope for the best. Asking for all of your prayers and I will def be praying for you. Anyone who has ever experienced this knows that it’s no joke. However there are way more of us out there than you may realize. Keep your head up the best you can and treat your body well. Love all of you!!!!! Get well soon.

[@ronniethornley5578]

Thanks for sharing. I know the pain all too well, every morning I feel like I’ve been hit by a train in My abdominal area. And the frequent bathroom trips are crippling, as well as the accidents that can and most likely WILL occur if you have this terrible disease. I’m so sorry for all the stress you’ve been going through it def makes things much worse, as I am too going through some hard times. Stay up, I’d say I would pray for you but i forget to pray even for myself lol. I’ll try and remember. Keep up!

[@sleventysixty7488]

hi did you use medication to go into remission then change your lifestyle or did you achieve remission soely without meds

[@sydneyr6555]

Wow I have never related so much to all of the symptoms you mentioned! Still trying to figure out what works for my body.. This video is so true!

[@pacopeso8474]

My friend had ulcerative colitis in 1971 and had to have a colostomy installed in 1972. He is doing well and I learned from his condition.

[@solatrons6642]

Thanks Thanks Thanks from the heart .. 😀 I can clearly see that it wasn't easy for you to make this great video (which is really useful), still you did it :) Appreciate a lot your efforts and help

[@fattsmcgee5686]

Thank you for this video. My 20 year old son was diagnosed today. This was really helpful. I hope you’re doing well.

[@rue1x25]

I’m 20 was diagnosed at 18 but I know your son is strong he will get through it

[@rue1x25]

@Alfred Einstein fatigue painful bloating stomach most of the time blood in stool nausea and pain in lower abdominal

[@rue1x25]

@Alfred Einstein yes diet is the best thing

[@rue1x25]

@Alfred Einstein don’t try to rely on medication to much trust me.

[@rue1x25]

@Alfred Einstein yea like anything bro

[@evangelinedorsey2551]

Best video ever, better explained than a doctor and or a nurse. I rather go to you to explain my illness. You are so good at this and this may be your calling. Please adventure into explaining other illness. You really capture my attention and clearly explain everything I needed to know and more. 👍⚘🙏💞 Continue to be blessed and a blessing to others. Thank you

[@m6muthi]

We are all in this together. Words can help and has an impact on all of us. Wishing everyone that are having symptoms to stay calm and all storms end, eventually 🙏 so just hang in there 🤗

[@jaznicole8]

Thank you for making this video. My Daughter who is only 18 was just diagnosed a few weeks ago. It has been extremely difficult watching her go through this. She has been in bed for a straight week. I’m trying my best to have her get up and move around but she has no energy. We are seeing the doctor today to discuss her symptoms. I’m hoping things start looking up very soon.

[@BubblesSis]

I’ve had UC for 10 years and because I was diagnosed at such a young age, I was never interested in knowing much about it. Thank you for this simple yet informative video!!

[@drserendipitous3597]

Hey just wanna ask did you conceived or have babies while being a uc patient? I am a ic patient myself and so scared of pregnancy outcomes

[@calebjames2928]

Thank you so much for this. Video saved for rewatching. I learnt more in these 10 minutes than I have talking with my doctor and specialists over the last few months. I found it encouraging as well, which for any sufferers of UC, is something sorely needed as it can feel like a lonely and pretty dark battle at times. Thank you.

[@madisonfinnan9085]

I was just diagnosed in march after being incapacitated for the entire month of February with this and it really threw me for a loop in every way. Your video made me feel so much better. I’m currently in a family vacation having the worst flare since my very first one. Hearing that you went through much the same things I did, like extreme weight loss over a short period of time, and total loss of muscle due to inactivity and lack of diet made me feel more normal myself. Even what you said about not being able to stand up and walk was the same. Right before my colonoscopy I was 124 lbs which was 18 lighter after just 10 days, and I wasn’t able to stand or walk or talk without gasping for breath and having my vision white out. When I was first hospitalized I needed to get three bags of blood transfused because I was severely anemic. I hope you’re doing well, and I hope everyone else in the comments going through it new and experienced are also doing well!

[@eiriktonnies]

I was just diagnosed as well, the steroids are taking effect but the weight loss has been heart breaking as i was in great shape only two months ago. Ive been reading up on many people being in reemission for years with the right diet!

[@suliyachannel1739]

😭😭😭😭😭😭😭😭😭😭. It’s me right now. I’ll have my first colonoscopy in April

[@carlito7555]

I got mild UC whatever that means. I was recently diagnosed after my father passed away, so I think mines is definitely stress related. Great video 🙏

[@speedracer8724]

Sorry to hear that, I have pancolitis so my entire colon can become inflamed, got diagnosed at 23, I've had about 4 flare ups since then I'm 25 now. I've found too much sugar and stress are my main contributors so Ive since cut out most sugar from my diet and take it easier at work. Tylenol and omperazole/pantoprazole are great for treating the flare ups and getting through the day

[@idreeskhan8885]

All these lockdowns, depression and having to stay home in a dirty, impoverished household I think certainly had its past. Of course the genetical aspect may be there but the environment has to trigger it.

[@idreeskhan8885]

I dont know if I have this disease but I fear I might. I had a constant urge to urinate for like 7 months and now I am having problems going to the toilet too. Fevers and general weakness were common during the stage where I 'only' had an urge to urinate. I think it could be IBD. How likely is it to end up in hospital? I never want to get sick and taken to the emergency room, can this be avoided?

[@idreeskhan8885]

@@speedracer8724 I dont know if I have this disease but I fear I might. I had a constant urge to urinate for like 7 months and now I am having problems going to the toilet too. Fevers and general weakness were common during the stage where I 'only' had an urge to urinate. I think it could be IBD. How likely is it to end up in hospital? I never want to get sick and taken to the emergency room, can this be avoided?

[@MikeTheGreatCC12]

@@idreeskhan8885 Hi, how are you doing? Did you get a diagnosis? What have you been doing to help yourself? What has worked and what hasn't?

[@ellebelle8515]

Well done. This is one of the best videos I have seen that explains all facets of the IBD. Very helpful. Thank you.

[@eddierobles2137]

Thank you so much for your video . I was recently diagnosed with colitis and your info has helped me understand better what I am facing. 👍👍

[@markmcla]

That was an excellent summary of UC. I hope you're feeling ok. I was suffering quite a bit from UC until I finally received an infusion of remicade. In addition to remicade infusions, I drink a big glass of water first thing in the morning. And I drink homemade kefir from unpasturized whole milk everyday too. In just 2 months, I've regained the 25lbs of weight I had lost, and I can hike Mt Baldy again! This guy, Kenny Honnas, has some very helpful youtube videos on how to change your lifestyle if you are diagnosed with UC. Good luck to you, and to all others who are suffering with UC!

[@annastiasiacox9422]

Thank you so so much for this!!! I was diagnosed this year and definitely needed this.

[@marcuspeart6196]

Thank you for this video. It's 3:30 am and I was just diagnosed a few weeks ago. I'm struggling to eat and the bleeding is extremely constant. I just want to be ok and help people. I'm a nurse aide and there is no way for me to do that job in this condition. I feel so trapped. Thank you for making this video and making me not feel alone.

[@NIBIR]

Stress, lactose and large meals.. avoiding them gives respite

[@Lisa-oi7ye]

Amazing info and excellent presentation. You are a wonderful mature young adult. Bless you.

[@telassparks9481]

Hey, thanks for sharing your story. It took a lot of guts?! It was very informative and simply explained. Sharing your story helps destigmatize the disease. You’ve done a public service (PSA) by testifying to your trials + tribulations. You’re a super hero! I feel slightly better knowing that they’re other people also enduring through this like me. I think talking about it and sharing tips can help us get thru this. I’m currently immersing myself into yoga. I believe I’m on the right path. I believe ulcerative colitis can be managed and possibly cured taking a holistic approach. Meaning, it takes a bunch a “lifestyle choices” that will keep the disease in remission. Eat right, exercise right, sleep right!!! Thanks, again. Stay humble + healthy!!

[@marklafollett4033]

I just got diagnosed today. It’s been 3 days of get off the toilet. No energy, hoping the meds will help. Absolutely great video. Great information!!!

[@YakobtoshiNakamoto]

I’m 28 and just been diagnosed with mild UC. Just completed an 8 week course of steroids and hopefully it does seem to have reduced inflammation. I also had the fatigue and anaemia so can totally relate to nearly passing out just walking to the bathroom, it’s horrible! I’m just trying to learn as much about UC as possible so thank you for this video, it helped a lot!

[@queenofcamp832]

My boyfriend got diagnosed nearly 2 years ago. He did the 8 week course of steroids too and has been on mesalazine ever since. His flare ups are very rare now (maybe 3 a year) and they aren’t anywhere near as bad as they used to be. I hope you’re coping as well as you can with it. One piece of advice I’d give is don’t listen to anyone telling you there’s one solid answer to all of this. We tried several different diets with my boyfriend but nothing seemed to make much difference so it didn’t seem worth the hassle. He eats whatever he wants, trying to be as healthy as possible, and just listens to his body. If he has a flare we think if he ate anything unusual recently that may have triggered it and try to find patterns. Everybody’s different so take your time with it and go easy on yourself :)

[@sheebaahmad4830]

Steroids has too much side effects. Didn't you noticed any side effects with taking steroids

[@moeslim3]

I was diagnosed with infectious proctitis and I’m already 28! I’m already scared it’s gonna spread more! 😢

[@amitpalbains9361]

@@sheebaahmad4830side effects are typically long term use. Typically if they give you steroids it’s very short term. If you take it long term not only do the side effects kick in, the relief you get decreases as well because your body starts getting used to it.

[@shaygyrl2749]

THANK❤ YOU for YOUR 1)Personal Story 2)The Very Thorough Info/Education on a Very Topic to Discuss🎉🎉🎉 3)Your Detailed Info:"One Day /Meal@A Time This info will give OTHERS the FAITH❤ THEY NEED

[@kenoslice]

Hi everyone I'm 25 and I had my first(and worse) flare up at 22 without even knowing what a flare up was. I was immobilized and on the verge of tears. I went to the hospital got written down as stomach ache and wait 4 hours. I was doing bad, to the point other patients started asking was I ok. Long story short I got to the back finally had some bloodwork and was given tylenol. I was back within a few week with a new flare up not as bad but now after the first one very concerning. They treated me way better this time and came back and said I could possibly have colitis. I'm currently in the middle of one now and I'm used to having it happen every once and a while but over the last couple weeks it's been consistent. I've had to call out twice in the last 2 weeks. Is that normal to have a week or 2 where it's worse than usual. Wishing you guys comfortably and peace. Glad to know I'm not alone in this, because to most others when I explain it they just think like oh stomach aches go poop.😂 Theyll never truly understand

[@TheMrjetdoc35]

I've had this for 12 years. You've hit every topic, symptoms, and advice perfectly. Thanks for sharing. Keep up the good fight!

[@jocelynleon5827]

Thank you so much! I just had a flare and it’s so hard to make people understand what UC is

[@Thanos-lx9vi]

Its difficult bc I dont know how to tell people i bleed when i poop. It’s embarrassing

[@clivebadger4251]

Well done you that was the best information iv had honestly sweetheart. Keep up the good work sweetheart 😘

[@thestudent839]

Just got diagnosed at 21 years old medication is helping please anyone that has a bloody stool go to the er - I literally went 1 year after my first bloody stool and my ulcer colitis is bad

[@abdulllahi1482]

Me too I was diagnosed with ibd this years and my stomach is actually getting better just waiting for the medicine I mean my stomach is not getting Better but way back last year it was terrible

[@sazzlepop321]

What an eloquent and strong young woman. Thank you 🙏🏻

[@val71999]

thanks for explaining it to me better than my doctor did... omg

[@justsomedude444]

Really good video. Ever since I got diagnosed with left-sided colitis, it has impacted every aspect of my life way more than I ever thought it would. It gets super discouraging having to use the bathroom every 15-30 min. I wish doctors would explain this to their patients the way you did. I plan to take more precautions, eat healthier, and stay on top of whatever meds I may need to use because I'm afraid of missing out on so much in life. This disease can be so controlling. My heart truly goes out to everyone who's struggling with it as well. God bless.

[@Lilliz91]

I’ve been thinking if I have this, as I get often stomach pain and often have to a lot in the bathroom.

[@TheFunfairfan]

This is such an incredible video I was diagnosed just 10 days ago. I honestly thought I was dying. I’m so lucky I got to 39 before my first severe flare. I cannot wait for this flare to end and hope I can go into remission.

[@SHOWNTELLx]

Thank you so much for making this video. It makes so much sense. I have experiences so many flares up and was so confused for so long. Thank you for clarifying everything and making it so easy to understand.

[@luceroramos24]

I was recently diagnosed with Uc at 29 years old and felt super stressed and hopeless but this video definitely helped me understand more and feel better Thank you

[@TechWeLove]

Thank-you for sharing your story with all of us. We pray for you to endure through this, and to find the proper balance to managing those symptoms.

[@matissparadise5799]

Very helpful very helpful thank you so much

[@jessicapustizzi9992]

I probably have this. I was just in the hospital for a day for tests. thank you so much for this it really helps me learn about it

[@michaezell4607]

I was in the hospital back on wednesday for terrible nausea and vomiting and after having an abdominal CAT scan they confirmed a diagnosis of acute mild colitis and am just now only starting to recover as I'm now at least able to eat apple sauce in small amounts without throwing it up almost immediately. Even though I appear to be getting better I'm terribly afraid of getting worse at any minute.

[@TheChrislewis1989]

You'll know if you have it. It'll hurt really bad and feel like you're constipated even if you don't have to go. It sucks! Good luck and hope everything turned out all good!

[@user-yp1fb4pn1e]

thank you so much for this video.....hope you are feeling better and you have found the right medication to keep you at bay. I'm truly sorry, i feel for you. I was diagnosed recently. take care of yourself.

[@mavernicasimms4856]

I'm living with ulcerative colitis for the pass 20 years and to be honest I don't understand anything about it my treatment don't really works I just wish their was a cure going to the toilet so often is more than I can bare I feel like I will never be normal again I'm praying the Lord will send a cure soon

[@jabingox772]

@@payalchauhan9638 which medicines do you take? Lately I take digestive bitters, digestive enzymes, potassium, l glutamine, zinc carnosine, probiotics

[@jabingox772]

Did you try tweaking your diet? Any food intolerences, low carb/hi carb, low fat/high fat, elimination diets, etc?

[@lyt_w8t]

@@marechell66 I gave up smoking tobacco like 5 years ago but honestly still smoke a small bit of the waccy baccy every day

[@valitsaki1924]

Barbara Oneill helped me with this the most. She also stated and explained in one of her books that UC and IBD can develop from a course of anti biotics, this was my case unfortunately :/.

[@princzainzain5201]

Thank you for the much needed information . God bless you and my heartfelt prayers for you speedy recovery

[@mason_branstrator]

Awesome video!!! Super helpful for understanding this disease better!

[@Matt7loc]

Thank you I just got diagnosed with this and I was tripping out about it

[@karennotaro3459]

Thank you. A really informative video. You explain it really well.

[@charliefontaine778]

I just got diagnosed and I’m so stressed I already am diagnosed with endometriosis which already makes my life a Constant struggle

[@vikingwind25]

Thank you so much! What a brave and intelligent young lady. You posted this 6 years ago. I would love to hear where you are today. I have just started this journey.

[@mrclean2022]

You're clearly a sweet person and thank you for having the courage to share some really helpful and personal information about something that would be tough for anyone to deal with. Your video was a million times better than a video of a robot voice just reading facts and symptoms to you. That being said, someone I care about and is close to me has been dealing with this lately, hopefully others can share more of what's working for them besides just medication. To you (or anyone reading this) Does fasting help? Which foods trigger you? What's the longest period of remission you've experienced and what contributed to that the most do you think? Thank you, hope to exchange information with you and/or others and share ideas to improve one's quality of life.

[@sakanablesakanable]

Can you Please tell me if Gluten free and Lactose free Diet has worked for you?

[@pgrieger]

I watched twice and learnt more...again. Our NORMAL life is a blessing and we have this illness because we are strong enough to live with it. My BPD and ADHT are helping me to be distracted but I wish my life could be explained to make sense like this video. I would write a book or make an epic film about my life❤

[@luis07221990]

Thank you so much for sharing!!!! Very encouraging didn't know if there was hope but you definitely have given me hope thanks for explaining in depth! Every point hit home brought me to tears God l you!

[@juanitagonzalez8333]

💖

[@TestaRosssa_]

Just got back from the ER with a 103 fever, unbearable cramps, and bloody diarrhea. I felt scared finding out this is a chronic disease. I can't thank you enough for this informative video! You have lowered my anxiety greatly. 💖

[@amandawesley580]

Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now

[@keithyoung7381]

My Brother was just diagnosed with this a year ago. I was diagnosed with a different autoimmune disease. We are both Canadian. I feel all of this is connected somehow. The rise in autoimmune disease in the last 50 years is astounding. I have noticed for me, cutting out gluten made a huge difference. We need to investigate autoimmune conditions like theres no tomorrow.

[@jergenbergen7290]

First of all, I have had Colitis Ulcerosa since I was 13. I am now 26. This is all hard to explain but I am trying to help, I am not selling snake-oil. Through the years I have read a lot, and it seems one possible cause for IBD is candida. A strain of bacteria/ mushroom that overwhelms the colon, thus the gut-flora becomes unbalanced. Candida burrows itself to instestinal walls, thus making the colon infected in these areas. Infection creates ulcers --> All the bad symptoms. So, how does one even get candida? One explanation is the following --> one eats too many antibiotics --> the healthy bacteria is all out of whack --> one eats lots of sugar --> maybe stresses too much, drinks too much alcohol, smokes --> candida thrives and multiplies. Call me crazy but I believe a bad gut-flora/ bacteria is the cause of Colitis Ulcerosa and Crohn's Disease. So to get rid of those, one needs to get rid of candida. Probiotics (latero flora is what I use at the moment.) And probiotic foods go a long way. Kefir, bananas, blueberries, (unsweetened) cacao-powder help. Also it seems people with IBD have problems with lymfatic system? Exercise helps with that. I'm sorry for such a long reply. This is a mess. Just wanted you to know, there is hope.

[@keithyoung7381]

@@jergenbergen7290 well said.

[@amandawesley580]

Try contacting Dr folonsho, he Is a herbal doctor, he healed me from UC, this disease is really terrible, I can only feel what you are going through now