#124

  Рет қаралды 14,902

The Secret Life of Parkinson's

The Secret Life of Parkinson's

Күн бұрын

Пікірлер: 149
@sarahtalbot4363
@sarahtalbot4363 Күн бұрын
Great seeing you Beechy! Take care, love Sarah says hi (from soc media)
@betsysmith1422
@betsysmith1422 2 күн бұрын
What a game changer this could be. Inspirational!
@tracygrotefend6362
@tracygrotefend6362 Ай бұрын
I can't help but crying with joy. My partner has been diagnosed with PD. I see hope watching your videos.
@doriscorr334
@doriscorr334 2 ай бұрын
26:55 This is unbelievable. Fantastic. I want one. Hope this watch will be soon on the market. I hope the Pharma Industry will not like this. Greeting from Germany
@tan5846
@tan5846 Ай бұрын
You mean you Expect that ‘the big pharma industry will not like this’. I agree with you, and Carl is aware of this, too, as he alluded to during this interview. For this reason I doubly admire this man. Let’s stand together on making this work for the benefit of all. And Mrs. Beech deserves a pair of new jeans!
@kevinayres9902
@kevinayres9902 2 ай бұрын
I am really looking forward to getting the device. I believe in the interruption therapy. At night when I lay down on my bed, my legs ache and there is a buzzing like electricity flowing down my legs. I focus on trying to wiggle my ears and the sensations become very muted and go away fairly quickly. Like in a way the heart beat bear we kept in the crib with both our children. Thanks for presenting this idea and podcasting it.
@lisaclyburn1501
@lisaclyburn1501 2 ай бұрын
God bless you! I was told I need to start thinking about DBS and this discovery brought me to tears today. Thank you for sharing and giving me hope as a young onset Parky ❤❤❤
@glennastrickler102
@glennastrickler102 Ай бұрын
Please make available ASAP...God bless you Mr. Beech. Thank you Brian and Jessica for your wonderful podcast, helping all patients and caregivers.❤❤❤❤❤ Glenna
@Cailus3542
@Cailus3542 2 ай бұрын
Yowzer. When Carl started explaining the speech problem, struggling to say more than a syllable, I was gobsmacked. That is precisely what has happened to me over the past few months. I thought that was a psychiatric thing isolated to me, not an actual Parkinsonian symptom. French is my second language, which doesn't help matters, but...wow. Hearing another person describe an identical symptom to my own experience...it feels amazing. Validating, even. Beyond that, it does sound psychosomatic, so I absolutely respect Carl for acknowledging that it might be a placebo effect. I fervently hope not, of course. I'm 32, with severe cervical dystonia (along with other fun symptoms), so I have a lifetime of this to get through, and if this actually works, it would be incredible. I'm seeing a specialist in January who will (hopefully) finally diagnose me. After three hospital stays, MRI's, angioscanners, lumbar punctures, genetic testing and every other test that the neurologists have thrown at me, I'm very much ready to move on. My current treatment plan is just about enough, with an apomorphine pump keeping me on inbetween the times when I need to take the other stuff, but it's not the most stylish accessory. I'll be sure to mention Carl's work to the neurologist when I see her!
@Pingaheimer
@Pingaheimer 13 күн бұрын
Great comment, good luck on ur journey
@kfulcraft
@kfulcraft 2 ай бұрын
This is so encouraging and mind blowing…. And a Christian man. ❤ I feel that only someone with Parkinsons can truly understand the daily challenges and that if even one symptom can be quieted for a moment the relief is huge.
@americasblessing4166
@americasblessing4166 Ай бұрын
I agree . . . If even one!
@jimbenjamin3048
@jimbenjamin3048 Күн бұрын
What do you call this device?
@beverleypounder6718
@beverleypounder6718 15 сағат бұрын
@@jimbenjamin3048 “Beech band” after carl beech
@KSUmcdonald
@KSUmcdonald 2 ай бұрын
Thank you God for this Man and his purpose. Can't wait to try it out!!!!!!!
@kansasgrandmasstorytime7958
@kansasgrandmasstorytime7958 Ай бұрын
Just a fraction..I have trouble with shaking, talking, etc.
@americasblessing4166
@americasblessing4166 Ай бұрын
Only God’s spirit within could have ever done this great service to suffering humanity!
@ramanayak6538
@ramanayak6538 2 ай бұрын
You have stumbled upon something extraordinary! Mind blowing!! This gives hope to PD patients everywhere.. thank you so very much. Can't wait to try it.
@malcolmhiltz94
@malcolmhiltz94 Ай бұрын
Great interview, you two! (& excellent work behind the camera, Steve & Melissa!). This is incredibly awesome! I loved seeing the shocked looks while Carl was demonstrating the effectiveness of this product!!
@Rbeeline
@Rbeeline Ай бұрын
The Beech Band will be a game changer on so many levels. Great interview! (Pass it on!)
@SallyHanssen
@SallyHanssen 2 ай бұрын
This is amazing! As a Parkinsons patient who has problems with voice and tremor I can't begin to tell you the hope this brings. Happy tears!
@neilmeehan1114
@neilmeehan1114 Ай бұрын
It amazing 😂
@americasblessing4166
@americasblessing4166 Ай бұрын
Effective communication is what brightens one’s day. I believe it’s higher on the list than almost anything else.
@waltchalmers8752
@waltchalmers8752 17 күн бұрын
I hope you are practicing "TAPING", Walt
@beverleypounder6718
@beverleypounder6718 14 сағат бұрын
Thank you Carl Beech your amazing 🙏 God Bless you 😇
@TheSmithsons
@TheSmithsons 19 күн бұрын
Wow the contrast in Carl’s speech etc is amazing, and all the other benefits
@valeriesilvester8603
@valeriesilvester8603 Ай бұрын
I hope this is real and not a dream, I’m crying just thinking about the potential. Thank you so, so much❤️
@AnaAmaya-c7i
@AnaAmaya-c7i Ай бұрын
This is an amazing innovation. As a Speech and Language Therapist I am very excited to share with my clients... thank you.
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
Thanks for listening!
@JeanCattoi
@JeanCattoi Ай бұрын
Amazing discovery! I can’t wait to try it!
@nosilverbullet4pd998
@nosilverbullet4pd998 27 күн бұрын
Very impressive Carl, good luck with getting produced and thanks
@oldguycanada7734
@oldguycanada7734 2 ай бұрын
Wow! Impressive, can't wait for this. Luckily won't have to wait long as he's also weeks away from launching an app for smart watches! Great show, found your channel a few weeks back, Brian's dead pan stare makes me smile.
@Oldmanbah
@Oldmanbah 14 күн бұрын
Recently diagnosed and feel some relief after being dismissed of symptoms for over 10 years. Appreciate your site, helps me understanding what i have been experiencing.
@chrisbishop4302
@chrisbishop4302 2 ай бұрын
As a now retired professional drummer with Parkinson’s, Drummers have been using the pulse watches as metronomes(eg google Soundbrenner) for years. Love the show by the way. It has been so helpful to me since diagnosed four year ago.
@markjohnsondrummer3144
@markjohnsondrummer3144 Ай бұрын
Chris, were you forced to quit drumming due to Parkinson’s symptoms worsening over time?
@chrisbishop4302
@chrisbishop4302 Ай бұрын
@@markjohnsondrummer3144 Yes Mark.
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
Thanks!
@beechband
@beechband Ай бұрын
We experimented with them in development but we found the style and approach of the resonance and vibration could be refined to be more effective at a very specific hz
@glennastrickler102
@glennastrickler102 17 күн бұрын
Please make available in USA. GOD BLESS YOU 😊
@drharibains
@drharibains Ай бұрын
Congratulations Carl on your innovatory discovery. It shows how much we, as a community, can achieve when working together. If we leave all the work to medics and scientists, we get Levodopa after 200 years. By the way, I am a physician based not too far away in Derby. I too have lost count of the number of times I have been advised to speak slow or not at all. Keep up the good work Jessica and Brian.
@beechband
@beechband Ай бұрын
I’m based very near you in Chesterfield
@drharibains
@drharibains Ай бұрын
@@beechband Yes its a pleasant Derbyshire town. Our football team is more famous . As you go into the next phase of development, please let me know if I can help in any way. Cheers, Hari😉
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
Thanks for tuning in!
@alexcussons8468
@alexcussons8468 2 ай бұрын
Keep going , Carl . The world needs to listen to you . Xx
@VaruniLekamge
@VaruniLekamge 2 ай бұрын
Such great news for us PD patients who feel anxious about what the future holds for us . May God bless your wonderful work and the marketing of this wonderful device ! Please let us know when it is being marketed on line for PD patients outside the UK and the USA
@richardmellette
@richardmellette 7 күн бұрын
Simply amazing!
@colmar9493
@colmar9493 2 ай бұрын
I am a retired SLP whose husband has PD. I am very interested in this device and know that there are new vibration devices being used for gait freezing that are very successful. Fascinating how it not only improves fluency but also vocal intensity and articulation. You mentioned how it helped someone with autonomic tachycardia and high BP. My husband has very low BP and bradycardia (fluctuating) so it would be interesting to see if this might help even it out (in addition to the medications he already takes for his PD and low BP). I would love to see Mr Beech provide a CONTINUOUS speech sample while turning the device on and off. Thank you for the fascinating broadcast and congratulations on what appears to be a very helpful device, at least for some people!
@danpaulson6734
@danpaulson6734 2 ай бұрын
Unreal! Totally blows my mind!
@RunningWithParkinsons
@RunningWithParkinsons Ай бұрын
I just ran the New York marathon. This is amazing! Imagine instead of upping dosage of meds, having the body not taking on more medication. To have this device pick up and help just a bit. Sign me up! You could go one step further and put it in clothing. Just like the Whoop device.
@PeachyNanaUK
@PeachyNanaUK Ай бұрын
I’ve never cried so much at a KZbin video before. Beechy is just an amazing man. He should be recognised in some way. MBE or whatever. But I know that he won’t want this although he’ll be grateful. Sent to this world to help.
@americasblessing4166
@americasblessing4166 Ай бұрын
I cried a lot. I cry again each time I watch 11-year-old Megan see and hear her daddy speak clearly for the first time in her young life. There are no words to express the joy this young girl felt. She was moved to tears of joy …. Amazement!
@suregrip8853
@suregrip8853 Ай бұрын
Great video, can't wait to try one. There is hope out there. Thanks
@kathyrosecrans2738
@kathyrosecrans2738 Ай бұрын
Currently watching and you’re talking about tapping to go to sleep…. Lightbulb!!!! Isn’t this what we do when we pat a baby to sleep or pat a child or other person to comfort them in times of distress? We’ve done tapping (patting) for ages for the express means as a way to comfort! We pat/tap because it works!!
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
I honestly never thought if it that way!!! Oh my goodness! What a great way to explain it! I did that all the time with my babies.
@richardbeere8323
@richardbeere8323 2 ай бұрын
Great episode I can't wait to try it.
@KSUmcdonald
@KSUmcdonald 2 ай бұрын
What???!!!!!!! This looks Amazing and total game changer!!!!!!!!!!!!!!
@Justbekind-o7u
@Justbekind-o7u Ай бұрын
I'm in South Africa and so extremely excited 😢🎉
@paulaloegering447
@paulaloegering447 Ай бұрын
This would be so awesome! I want one!
@juliet-m31
@juliet-m31 2 ай бұрын
I just sent this to 4 fellow pwp. Thank you!❤❤❤
@brianschlottman9681
@brianschlottman9681 Ай бұрын
Fantastic interview and an inspiring guest.
@wowbitz
@wowbitz Ай бұрын
Thank you so much for sharing. This is giving hope of a better life to so many people with PD and so much more.... Thank you thank you thank you. 🙏🏼❤️
@LK-jn4uj
@LK-jn4uj 2 ай бұрын
So glad I watched this episode.
@StaverMarilyn
@StaverMarilyn 19 күн бұрын
I want! Yay! What a Blessing!
@LK-jn4uj
@LK-jn4uj 2 ай бұрын
So exciting!
@tonyah9789
@tonyah9789 11 сағат бұрын
God absolutely gave you this idea! Thank you Jesus!!
@johnpjf
@johnpjf 2 ай бұрын
Thank you for sharing
@pramilsirohi867
@pramilsirohi867 Ай бұрын
Great find for community 😊
@elsakemps392
@elsakemps392 Ай бұрын
This is so exciting! What a simple tool to give us relief with so many different symptoms! I can’t wait to try it out❤
@suemorrison5423
@suemorrison5423 Ай бұрын
Amen this is a blessing. ❤
@suemorrison5423
@suemorrison5423 Ай бұрын
I need to add something to what I said about this being a blessing. I was diagnosed a year ago but I know I have had it for years. When I got on to the dopamine it seems like a lot of things went wrong I started shaking more I ended up tripping. I can't walk without a cane or a walker . I've had pneumonia twice and this is all in one year I was diagnosed at the first of January. Granted I'm not young . I'm 74 but I'm definitely going to try the patting to get to sleep the tapping to stop my trimmers hurry and get this made we all need it so bad and I can tell you really need it too. Thank you thank you thank you and many blessings to come to you and your family and people that are working with you and your business .😊
@lorihorne9003
@lorihorne9003 15 күн бұрын
Love this
@MumtazKhan-zq5wr
@MumtazKhan-zq5wr Ай бұрын
Bless you It’s the vibration Cats purring is very healing too My cat choose to stay with people who need her . Who are not feeling well and purr constantly on them. She knows who needs her . She would sit on their lap or chest or hip sometimes head purring. She would sleep with them then move on to other person who needs her. Sometimes she is not with anyone and enjoys the window maybe because nobody needs her at that time . Last two days she was literally on my son’s lap when he was studying, he has autoimmune and was stressed with MOCKS It’s just amazing !!! How can I buy one in the U.K.?
@kellyrios5394
@kellyrios5394 2 ай бұрын
wow thanks so much for this!
@laurahobbs1936
@laurahobbs1936 Ай бұрын
I feel hope and joy.
@Rose-iu3ne
@Rose-iu3ne 11 күн бұрын
It’s amazing. I’m diagnosed, when I’m able to get one in Germany.
@CraigRichards-d9k
@CraigRichards-d9k Ай бұрын
God bless the beautiful people on this show🙏
@lanam3348
@lanam3348 Ай бұрын
Who else instantly searched “70 bpm music/ metronome” after watching this?!!! I’ve downloaded and playing as I heart bed. Thanking the Lord for this insight and willing vessels to share the info! 🙌✝️❤️🎶
@beechband
@beechband Ай бұрын
App with the precise and correct resonance coming soon!
@lanam3348
@lanam3348 Ай бұрын
@@beechband Awesomeness! God bless you as you serve Him!
@starphysio7184
@starphysio7184 Ай бұрын
I’m trying the Haptic app but no discernible result. Then again my symptoms are currently very mild.
@SandraLevene
@SandraLevene Ай бұрын
How do u lovely people do it. I think it is a wonderful devise .good luck to all of you.l have parkinson in my feet l havea tremor 24 hours a day..l always fall backwards so l cannot wait for it comeout❤
@stephendunn2733
@stephendunn2733 Ай бұрын
What a great video Carl, seeing the keyboard behind you I thought you were going to tell us about a music band you'd formed for Parkinson's, a very convincing demonstration! With all the millions going into Parkinson's research it amazes me that no one has come up with this idea already. Having recently been fortunate enough to have StN DBS, it stopped my Dystonia enabling me to walk my daughter down the isle, does the band help relieve your Dystonia? I wish you all the best for your device and the prrospect of it providing a simple non invasive method relief for the millions around the world suffering this condition.
@RossAFC
@RossAFC 2 ай бұрын
What a product what a guy amazing.
@LK-jn4uj
@LK-jn4uj 2 ай бұрын
“Tapped into some thing!” 🎉
@mkkb495
@mkkb495 Ай бұрын
Sign me up! I'm in!
@matteagles35
@matteagles35 Ай бұрын
Beechy you're a legend !
@beechband
@beechband Ай бұрын
❤❤❤
@pattirossiter1065
@pattirossiter1065 2 ай бұрын
Amazlng!
@craigcooper9967
@craigcooper9967 Ай бұрын
Amazing!
@hollycooper3875
@hollycooper3875 Ай бұрын
I've experienced miraculous success as a DBS patient. Yet, sometimes my gait and voice are weaker. Your device may restore me, completely? WOW, I have more hope!!! Keep us all informed to your progress 🥰
@JasonTracyFaithnotbeshaken
@JasonTracyFaithnotbeshaken Ай бұрын
I want to sign up for a preorder? This is phenomenal!
@stacey1994
@stacey1994 2 ай бұрын
WANT ONE!! 😮
@Pluris-s7o
@Pluris-s7o Ай бұрын
I’m ready to get my plane ticket to the UK fantastic news
@luaneaustad7654
@luaneaustad7654 Ай бұрын
What a wonderful young man! I just love him and his excellent idea! It is so exciting to have a grassroots idea come to fruition! In the meantime, I have tried something and I'm wondering if Carl thinks this would work. I downloaded a metronome app called Tack onto my phone and smartwatch. If I set the metronome to 70 beats per minute and then silence it, I can just feel the beats from my phone or from my watch. Thoughts?
@beechband
@beechband Ай бұрын
It will work but we’ve found it’s not quite as effective for a few reasons. You will gain a benefit tho. My latest vid shows a smart watch app we’ve developed
@luaneaustad7654
@luaneaustad7654 Ай бұрын
Wonderful!❤
@PLSRubyforestStudio
@PLSRubyforestStudio Ай бұрын
This news is awesome! I have the typical hand tremor, but the thing that is very hard to deal with is clenching, curling dystonia symptoms in my left foot. Have done one Botox injection treatment recently and that did not seem to work on the first session. Fortunately, the dystonia and tremor are dopamine responsive so there is some relief. I have tried off and on using red light therapy, and also a small percussive vibrator on my foot during these episodes. The vibrations seemed to be more helpful to disrupt the signaling. This led me to wondering about specific sound frequencies (Michael Tyrrell--Wholetones follower) or if a sound/tapping method like this device offers would be more on target. It [sounds] very promising! Sadly, I am not eligible for DBS, but one day I would love to turn on a device like this to stop breakout tremors/dystonia in their tracks.
@Anatomy_Prof
@Anatomy_Prof Ай бұрын
This is very interesting..... just some very first thoughts.... thinking out loud.... there may be a connection with the sensory input being provided and reticular formation, basal ganglia, thalamus interaction. Would be good to see this move to some type of study... all the best. keep up the good work all.
@roberttomasetti3654
@roberttomasetti3654 Ай бұрын
Let us know when it comes to market. Brilliant!
@alittlebitshaky
@alittlebitshaky Ай бұрын
I’m now rethinking my love of dot drawing. I can sit calmly and draw hundreds of dots. Maybe it’s my tapping therapy???
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
That's interesting! It's possible I guess!
@Rainbow-e3k
@Rainbow-e3k Ай бұрын
This is absolutely amazing I’m undiagnosed with what’s going on with me but I’ve seen one of Carl’s vids before about tapping which helped me walk better 👌 definitely would love one of these there great for people stuck in limbo with a diagnosis with symptoms and being turned away by doctors . I think this is amazing
@piapintus
@piapintus Ай бұрын
God bless you!
@debsarno2532
@debsarno2532 Ай бұрын
Amazing!! Put me on the list please…Australia
@briancampkin8103
@briancampkin8103 Ай бұрын
Wow this is just SO promising. Carl you are da man…I love your intention to reinvest the profits and make this affordable to all. Are you working with Canada on approvals there? Please advise and thank you for all you have done!❤
@beechband
@beechband Ай бұрын
It’s our intention to supply globally so we need help for each territory
@MichellePritchard-e1i
@MichellePritchard-e1i Ай бұрын
I sure hope they are talking with Apple. It would be awesome to add as one of the health apps on the Apple Watch (biggest selling watch in the world)
@beechband
@beechband Ай бұрын
Apps for smart watches coming very soon
@MichellePritchard-e1i
@MichellePritchard-e1i Ай бұрын
This is very exciting. I hope there will be an announcement when this is available. There are a couple of people in our Parkinson’s boxing class (we are in California, USA) that I would love to see how this might work for them (freezing and speech)
@SandraLevene
@SandraLevene Ай бұрын
Wonderful it
@leonelocruz8011
@leonelocruz8011 10 күн бұрын
Wow! Amazing!! Can I buy one if I travel to UK? I live in the US.
@robster021
@robster021 Ай бұрын
I want (need) one ❤
@nickgilkerson7055
@nickgilkerson7055 Ай бұрын
I’ve tried the cue 1 for two years but didn’t find it helpful. I returned it for a full refund. I’ve very interested in trying this, obviously. Can I please go on the list for a device 🤞🏻
@LK-jn4uj
@LK-jn4uj 2 ай бұрын
Wow wow wow! Is this for sale somewhere? I haven’t even gotten to the end of the video and I am sold sold sold for my dad.
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
Not yet...it's getting manufactured soon! (per Carl Beech)
@alexcussons8468
@alexcussons8468 2 ай бұрын
Please please promote Carl and the Beech Band .
@nolajacob5306
@nolajacob5306 Ай бұрын
Would love to get this for those of us in Australia. How do we get on his pre-production list?
@robcleminson7062
@robcleminson7062 2 ай бұрын
This is incredible, I’m also from Essex originally and suffer with similar symptoms. Excited to try this out!
@waltchalmers8752
@waltchalmers8752 23 күн бұрын
I would love to send Carl a check to help get this band available to PWP. Can you help me with that? Thanks for this wonderful info, Walt Chalmers in Camp Springs, MD, USA
@maximo1766
@maximo1766 2 ай бұрын
❤❤❤
@gregorylevy9279
@gregorylevy9279 2 ай бұрын
I'm a Parkinson patient how can I get one please!!!!
@arupdebbarma4420
@arupdebbarma4420 2 ай бұрын
When our vagus nerve damage. We develop Parkinson disease
@jenniferhollingsworth4423
@jenniferhollingsworth4423 Ай бұрын
Sign me up!!!!
@saraoutwest
@saraoutwest Ай бұрын
If tapping with your hand doesn’t work does that mean the device won’t either?
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
I don't think so. because when you are tapping yourself, you know you are doing it. While the device is on you just go about your day and hopefully it works when you are not concentrating on it.
@SouLightness
@SouLightness Ай бұрын
How can we avail from this. Im in Ireland. Lots of dystonia when meds wear off...very painful.
@AnnetteFanelli
@AnnetteFanelli 2 ай бұрын
I want it Today
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
Same!
@leonelocruz8011
@leonelocruz8011 10 күн бұрын
How can I be on the waiting list?
@mikeflannery5767
@mikeflannery5767 Ай бұрын
answering my own question. doing research they are way different.... How can I get The Beech Band
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
They are being manufacturered right now in the UK and Carl is going to look into options in the U.S. Not sure where you are located
@newworld6474
@newworld6474 2 ай бұрын
how about Canada?
@jimbenjamin3048
@jimbenjamin3048 Күн бұрын
What do you call this device?
@magiccharlie
@magiccharlie Ай бұрын
how is this different than a metronome watch or normal pulse watch?
@Karlos-74
@Karlos-74 Ай бұрын
How can I get one ?
@mikeflannery5767
@mikeflannery5767 Ай бұрын
Is this device the same as the Cala KIQ
@thesecretlifeofparkinsons
@thesecretlifeofparkinsons Ай бұрын
Not sure.
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