19 Years Old, Disabled And A Lab Rat - Penny Pinching Mama Part 27

[@LivingOnADime]

This is Jill's story but to get her practical tips on what exactly she did to live on so little get our Penny Pinching Mama book here. www.livingonadime.com/store/penny-pinching-mama/

[@lostcontrol1981]

My husband usually overhears me watching your videos. Last night I said that you have chronic fatigue and Fibromyalgia- which his mother also has. 'No way do they have chronic fatigue' was his response. 'They would be in bed like my mom - not making all these videos'. So I had to explain to him all that you say - that you're in bed a lot of the time, you depend on others to help shop and do housework, etc. I can see how you get responses like this from others. I know what it's like to have a chronic illness and have people not believe you how sick you are. I often have people scream at me that I'm parked in handicapped parking because I don't look handicapped - despite using a handicapped parking placard. Keep educating everyone. The more people know, the more they'll understand. Love you guys. ❤️❤️❤️

[@cynthiastauffer8012]

My mom was the same way..she was permanently disabled when she was in her late 40's, but she still kept her appearance up. I guess if you are considered disabled you need to look like you are homeless or something. Her neurologist was one of the top rated in the country and he often said she should be in a wheelchair..but she persevered..amen sister. God brought you to it he will surely see you through it! The court room was full of demons that day, if you felt it they were there. Sounds to me like it was demons from the prosecuator, I wonder if his life changed that day? I'm glad you are both able to keep up with a few activities that make you happy. Love your show!! Take care :)

[@mawmawlinna]

I'm on disability. It was a similar situation. It bothered me, because I have had hard jobs in my past. Raised two girls on my own. Didn't ever seek help from government programs. My girls urged me to try for disability. (They are grown and married now) . I made one phone call to SSI. Not expecting anything. They sent me to their own doctors and bam I'm on disability. I just hate the judgmental people that look at me and think I don't look sick. My tax lady did that last time. Makes me ashamed. I'm changing tax ladies this year

[@chenoah7963]

Its terrible that you feel ashamed when you are burdened with something you didnt ask for.Ignore people and look after yourself!

[@chenoah7963]

Gosh what a horrible time you had with the system Tawra and its disgusting how people have to fight for assistance. Well done for what you have achieved and where you are today.

[@TeacherBeesABCs-123s]

My family is a testament to how much money you can save using this book! Family of 7, 8 mo ago spending 1200$/mo and now down to 500$/mo and could even go lower if I followed it more closely.

[@jillcooper172]

Oh My Mama Karaba that is unbelievable what a good job and way to go that is amazing keep us informed on how well you are doing

[@paulamonaghan3873]

I had to fight for my SSD too. I was told that I could no longer do my nursing job because of injuries that I had from the military (a VA doctor told me this). Then I had to deal with social security. In court, I had a similar experience where the disability guy kept saying I could do a canning line job. The judge told him to shut up and gave me the disability. People do not understand that I would much rather be able to work at my old job, with much better pay, than what I get on SSD. I can't even afford the Medicare B insurance payments so I don't have that. Anyway, I too can tell when you are having an off day (from the videos). Also as long as you cannot work a full 40 hour week you should stay on SSD. I enjoy your videos so keep them coming, when you are able and have a good day!

[@janicewilliams7105]

I finally got my disability one month before I turned 62.

[@brendahardin206]

So Paula how do you pay for Dr.s n Rx's ,that Medicare is well worth the cost.have you went to a public assistance office n applied for " Special Help " this is a program for low income people ,check it out,they may pay your Medicare premium for you.how do u get by with no insurance? I thought it was mandatory now .good luck !!!

[@lynnschmidt511]

I love your show., you are so real and infomative about everything. I was diagnosed with the same disease. America needs more people like you all. Thanks so much.

[@TheAAnne123]

Omg! I’m cracking up at Tawra’s winking and Jill saying “I can leave now (chuckle chuckle)” ~ I miss that special interaction that ONLY a mother and daughter can share -it’s such a special kind of friendship -my mom passed in 2011 and I miss her every day. Wake up people and appreciate your mother❣️❣️❣️❣️❣️❣️❣️❣️

[@kerrynwright]

Thanks for sharing your stories & especially for explaining about chronic fatigue. I have CFS/ME running through our family too! I have it + my brother + my middle son + my Dad had it. We've also worked out that both my Dad's Dad & his Dad must have had it too as all 3 of them had to stop working at about age 50 due to extreme fatigue & were in bed a lot!! My Dr hasn't seen a family with soooo many with CFS/ME running through it for generations. The only positive thing about that is that my family understand when I'm too exhausted to manage something. 🥰Blessings from South Australia💕🐨

[@TheSilverbird36]

I love you guys. You guys are my best friends. I watch penny-pinching mama every day. Thank you for your insight on how to live life within a family with faith, frugally, and with love for others.

[@sheilafelix113]

I agree being in a depressing situation is different from being depressed. Depression or Bipolar depression is a chemical imbalance. You can certainly be depressed about your situation but not be clinically depressed. I have Lupus (one of the first people diagnosed in the early 80's) I can be debilitating but my grandma said "Living with Lupus is better than the alterative!" (Meaning death) She wad right. I just keep trying. I am now 54 years old and a Mom, wife and nurse. You just keep going and work on a work rest routine. Great video.

[@connieswanson9645]

I fell down a flight of stairs at work and not only physically injured myself (neck, knees, back) I also got a right brain injury. Couldnt read, still cant do math, get lost easily. I got Disability on my first try. You have to have so much paperwork and other crazy stuff to show how bad off you are. To LOOK at me you think there is nothing wrong. TO TALK with me I seem OK.. But people who have known me before the brain injury can tell there is a problem. I get up every day and try to make something good happen. I dont complain. I particpiate as much as possible with my family and friends and with Church. I go with the Minister to visit shut-ins and nursing home patients. Some days are good, other days not so good. But I put a smile on my face, comb my hair and get dressed. I am so blessed in so many ways that a few bad days arent a big problem.

[@coralbishop8168]

You both look well now and are full of energy!

[@judys9201]

Thanks for sharing your story. I understand how hard it is to get disability, after becoming homeless with 3 kids i got on disability because of my health and the doctor said I couldn't work. But it only ssi, cause I didn't work my husband went into the military so I followed him around and it was hard for me to find a job. But I did work some but he wanted me to stay home once I start having kids. Now I find out a year later after getting accepted for disability that I have fibromyalgia and chronic fatigue they've tried to take it away from me twice which I had a light stroke of the stress of them taking it away I am going to be probably tested again soon but lawyer said once you get disability they have to prove that you're unfit to have it and you can go back to work I am 60 years old and my doctor said there's no way I can hold down a job I have bad kidneys can't control my bowels at times cause I have Crohn's disease. Yes i definitely don't make very much. I tell people all the time unless you have to do it this way it is better to be working cause I would better work than to scrape by at times but God provides in the end.now I find out i need a knee replacement done. Enjoy the video.

[@EluraCorenBooks]

Thank you so much! I told my husband that THIS (your discussion about being depressed vs being in a depressing situation) is why I got so pissed off when our doctor diagnosed me with depression. I wasn't depressed. Yes, I had emotional instability, but I was never bed bound or anything like that. I still worked, successfully, every day. We had a family of 7, and I did everything. No one else cleaned anything... seriously! I wasn't depressed, I was angry. So thank you for explaining the difference.

[@MagnoliaEmy]

No government assistance is a goldmine. If there's anyway to complicate a situation, government will find it!

[@jessical1969]

so true about the trying , and somehow the trying punishes you more and flares symptoms....depression comes later because of the debilitations

[@jerip4918]

Jill I am so excited you are back, your story is like a Mini Series, that I can not wait for the next episode

[@jillcooper172]

LOL Thank you JP

[@Laura32562]

I love you girls. I could empathise every word spoken, I am on disability for cfs and severe obstructive sleep apnea. My cfs is thought to have been caused from having the mononucleosis virus two times at the age of 16 then a year later getting a severe relapse of it and spent 11 days in the hospital. Great video.

[@kallimangum9799]

Love hearing your stories. I'd love to hear yours as well Tawra. It sure is amazing to see all of the miracles in our lives once we start paying attention to them. These stories always inspire me to look for them. Xoxox

[@Momofboys4]

Thank you for sharing your stories. Lots of trials and blessings. The fact that you both are sharing with smiles and laughter. Says a lot about you. It's really inspiring to watch. Please keep sharing. My family and I have been enjoying the cookbook. Thank you from one frugal mom to another. Lot's of cooking going on at my house. With 4 teenage boy's and my husband.

[@Momofboys4]

Im excited for todays show! I hope the school meeting went well for you today. You've got well behaved young adults.

[@sandi6818]

I was diagnosed with Fibromyalgia first over 10 years ago and then cfs. I truly believe the medical profession knows more abt it than they want us to believe. It does run in families. Hope u guys are doing well after the holidays. I’m taking it easy for a few days. Disability makes it hard for people with these conditions because they are invisible illnesses for the most part. Hard to prove. That’s awesome u were able to get approved.

[@jessical1969]

stress effects you physically with this illness, it exacerbates it somehow,it ramps all the symptoms up

[@cynthiacombest5]

You two have been through so much. I love how you always pray and rely on God to protect and help you. Thank you for the inspiration.

[@cheapchirping7368]

I just love watching your story!

[@jennjames5597]

I am going threw this all right now! I can't work because I have had many back surgeries. And have Non-Hep/Non-Alcohol Liver Disease! I have been fighting for 5 years but gave up! Now I am getting a lawyer. It is so hard to prove how sick I am!! All of my doctor's have me as Disabled, I just don't understand what is going on with the system!!

[@cackleberrycottage2340]

You are not alone. I have a Lyme co-infection which there is no cure for, chronic fatigue, fibromyalgia and several digestive disorders. I had to leave my job, which I loved, at a local water district in July of 2014. I took a 6 month leave to see if I would get well enough to go back to work, but I just got worse. I applied for SSDI in Dec. of 2014. They turned me down. I got a lawyer and had a hearing last May. They again turned me down. I am now 60 years old and have been working since I was 17 years old but that doesn't matter. They sent me a letter saying I was well enough to stand for 7 hours a day and that I could lift 50 lbs. I couldn't life 50 lbs before I got sick. They also claim that I told them I was running a soap making business, which isn't true. I had a soap making business and had to close it due to being unwell. They asked me for all my employment for the past15 years so I told them about the soap shop. They sent me to their doctor who looked at my husband and said "who is she trying to kid?" It was a horrible experience. It wasn't even a real doctors office. Just a couple rooms in a not so nice office building. There wasn't even a sink in the exam room. I was having a lot of pain that day and came into the office limping. My lawyer was livid when the decision came back. We are appealing, but by the time that goes through (sometime in 2019 if I am lucky) it will be 5 years since I applied and about 10 years that I have been unwell. If I wanted to rip off the system, I would have not waited until I was in my late 50's and early 60s to do it. It is terrible what they put people through nowadays.

[@brendahardin206]

Jenn James keep appealing your case,if u do get it the lawyer can't take more than 25% of your back pay.get counseling that will help your case .

[@jessical1969]

Jill you were lucky to get on the disability,especially back then, but I am so happy you were approved...thank goodness! maybe the CDC studies helped you? I never liked the CDC description of this illness until just recently. Their website is far more accurate and descriptive of the illness now. finally.

[@emilymiracle9605]

I'm looking forward to more of your story! Can't wait until it comes out!

[@GabbysMomG]

I have learned a few things lol from the book and I was frugal to start ... but I am aiming to take a 300 $ food budget ( one person 8 animals 2 eat 50% real food others eat up to 20% ) too 175... so far down to 240 $... the illness causes the depression in chronic illness not the other way around ... OH yes ;) I know all to well ;( hugs

[@lauriefleming2163]

I have been sick for the last 5 years doctors do not know what's wrong with me I have migraines really bad I used to sleep up to 24 hours at a time couldn't move my body maybe once a month I could get up and do something this past year has been the best I've been able to get up more and function a little better I don't sleep as long I'm still down once or twice a week and sometimes I'm down for 2 or 3 weeks at a time I stagger when I walk I thought it was because of the migraines but hearing your story maybe I have chronic fatigue syndrome

[@brendahardin206]

Laurie Fleming Rx.drugs may have you down more than anything,they about drove me nuts,till I said they aren't helping n went off n feel better now .

[@elenacala]

Gosh that sounds super creepy! You know I really do think that someday people will have to see/feel/live from the perspective of every person you've ever interacted with when we die. I'm sure that guy is gonna have to feel quite a bit of nasty stuff because he will get to see everything and feel everything from your perspective, what he made you feel. Makes me want to treat people like kings/queens so I don't have that experience.

[@CookingwithCatLover0330]

Great video! I love this series.

[@koryo.5129]

I know that government "assistance" isn't some great pay day. A single mother I know lost her job when the business closed unexpectedly. She tried to get Food Stamps, just to get by until she can get new job. They offered her $24 a month. If she was really careful, that would feed her family for what, 4-5 days? I have yet to meet someone living the good life on assistance.

[@brendahardin206]

Kory O. If she don't find work she needs to reapply each month ,because things change n she should get more per month depending on her past n present income ,no income,more food stamps.

[@brendahardin206]

Kory,also she could get AFDC for her n the kids + medical .

[@lynhanna917]

You do not need to explain, you have a debilitating illness that at any time can flare up and you may end up where you can not get out of bed and that is why you qualify for your disability payments. Anyone watching your videos can see when you are having a bad day, or we can see you start a video and in under an hour see you fade and how you are barely able to keep it together . I see it knowing that as soon as your video ends you are down and out. It is the nature of the illness and you attempting to get thru a 45 min video shows what grit you have.

[@LivingOnADime]

LOL! I try not to let it show but we may have to cut the shows. Even 3 days a week is just too much.

[@Mysticsoul77]

It's amazing what genetics can do. I had genetic testing done and now they want my 8 year old daughter to have genetic testing as well.

[@amandacaddy6254]

Have you looked at Ehlers Danlos Syndrome at all? There are several types, I would look at the hypermobile type, also called Joint Hypermobility Syndrome. 90% of people go undiagnosed, as doctors are not familiar with it, they instead get diagnosed with chronic fatigue and fibromyalgia, just like my mum and sister did, and it is genetic, but they have not found the gene for hypermobile type yet, so many people with it end up on disability, if they can actually get it, my sister managed to get it, but my mum could not. I have it as well, but it can present differently in each person. Once you know you have it, you can take steps to help manage it yourself, I found it very helpful to know, when we found out our family had it a few years ago.

[@joyful8072]

I'm watching your videos here and there which I enjoy a lot. I'd like to make a suggestion that you create playlists for your channel. The playlists could be organized along themes to make it easier for subscribers and lookey loos to find information.

[@LivingOnADime]

We do have everything organized in playlists.

[@joyful8072]

​@@LivingOnADime Ok, I don't know how I missed that. I do see a lot of things on play lists but I do not see this series of Penny Pinching Mama (20+ videos). I'm wondering why.

[@valeried4504]

God always provides...

[@brendahardin206]

Valerie D Yes, you are right if they were married for 10 years,n maybe widow pension if he has died !

[@gagandeepvirk1693]

I just love you guys

[@cocinandorico]

Love you ladies!!!

[@Jillieg1]

Do you know that your Mom can drawn off some of your Dad's Social Society. Your Mom needs to check on that.

[@marshamagic8551]

Where in Pennsylvania?

[@livingingflorida1111]

Wow...y'all have been through the ringer!!! God is soooo AMAZING!!! Lol!!! Love the courtroom story!!! Praise God!!!

[@judibohn1548]

Definitely a God thing. I had to wait almost 2 yrs. For mine and i had a lawyer. If you go off it they will make you pay it back so stay on it. Jill i told a friend it would be nice if i could even get enough to reach the poverty level id be grateful. I always worked..even b4 i could legally pay into taxes. And i hate not working...tho i am trying to do some stuff so that i can bring in more income. Very frustrating.

[@kowa5209]

Sorry, I live in England so this is all unknown to me. So does everyone in the US have to go to court to apply for Disability? And other kinds of allowances? Or is it different now... I am aware this was a long while ago. Thanks. Xx

[@jillcooper172]

It really depends Lucy. Each case is different

[@kowa5209]

That's honestly crazy to me. Over here in England you literally just have to fill in a form for most cases. It's slightly stricter now in that you have to go for regular meetings to continually prove that you're sick. That's interesting.

[@brendahardin206]

Lucy,it is hard to get disability in the US.I've been watching some UK u tube videos n the neighborhood has a hard time there,we have crazies here n you have them there,never heard of some of things people do to one another there in UK .

[@jill-e644]

what are your thoughts on CFS vs Adrenal fatigue...are they different or same....?

[@LivingOnADime]

They are not the same thing. People with CFS can have Adrenal Fatigue but Adrenal Fatigue is NOT CFS. I have CFS but DON'T have adrenal Fatigue.

[@brendahardin206]

Tawra,what treatments have helped you or your mom ?

[@kittmiller2212]

I have 25% hearing in one ear 20% in the other, I have a birth injury, "Erbs Palsy" the only thing I can do with my right arm is lift. I have Fibro, and because of my Dwarfism, I had low energy, My Dwarfism was corrected height wise, related issues not so much, I have life time asthma, never smoked, or drank, i have bad anemia, I went to disability at 25, and they turned me down, my asthma was so severe coupled with anemia, and they turned me down again, so I worked 90 hours a week from 1962- 2004, then I cared for my mom in a wheel chair, I carried her to the car to take her to dialysis three times a week for over 5 years in 2001 she passed away, I moved, and the next year I had two lung surgeries, then I got on disability because I had too, but I had to work full time while I waited 6 months for it, every penny of 400k paid for 2 lung surgeries, and 3 months later I received medicare. I get $1327. and out of that I save $427 a month. save for a roof, or a furnace, and other major repairs. I spend $80.00 a month on food, and $10.00 is for stocking up this week I got ten cans of petite diced tomatoes for $4.44, and 9 cans of tomato paste for $5.31 at Publix. I was on regular social security not SSI, now i'm on Social Security Retired at almost 72.

[@lovinitall6639]

In 91 I got $30 a week for groceries for 2 adults and 2 Children .I thought that was doing good.

[@meredithcoiner]

I love hearing your stories. I hate government red tape. In the end is that God always prevails!

[@coralbishop8168]

You can work and still be on disability there is a set amount such as $1200. A month.

[@tracyacemccandless6101]

Hi guys😘

[@pennynoto1]

You so deserve that disability. To hell with what other people think.

[@kristiecox7350]

Makes ya wonder what they put in your water there... 🤔😝