3 Years After Cauda Equina Syndrome

[@syedumair7963]

I went through CES surgery in January 2024, curently suffering bowel n bladder control issues, saddle anesthesia. Doctors said we dont have any medicines of sensation lost. But i m happy to see Ur recovery progress. It gives me support to fight against it. Thank u brother

[@user-vd8ke4oh2v]

Thanks sam two months and a half and you have been an inspiration to me. God bless you

[@Entvan]

Thanks for sharing your story. I had surgery cause of CES a week ago and I have a one month old newborn and this is the first positive story I found online. I really hope I'll regain at least something back.

[@Footballwithbikku]

Ma'am what were your symptoms?

[@sjpmeister]

Thank you for your video. I am recovering from CES now for 4 months. I went from bodybuilder to hardly walking making this very difficult. You don’t see any positive results from this syndrome anywhere. I have really been struggling with this and thankful I came across your video.

[@SAHiL_1987]

Your video gave me big hope. I'm 46 years & was diagnosed with CES in Dec 2023. I underwent surgery on the 4th day after I was convinced that it was an emergency. But the recovery has been remarkable. I got rid of the catheter in Feb 2024 about two months after the surgery & I have started walking on my own without much assistance. The Bowel issue has almost 90% resolved. Although the urine passed with little effort, I found a remarkable recovery in less than 4 months. Overall, I see myself pretty much recovered.

[@mahmoudabualfa3347]

Great to hear this

[@umairaniazi4824]

I have urine retention issue... I have surgery on 16april. I m much worried about it

[@admin0022]

18 months into recovery and I am able to use forearm crutches and travel about 300’. This has been the hardest thing I have ever done in my life. I watched all the videos and am encouraged by your recovery. I have given up most meds and am trying to work through the pain. Thanks for sharing your story!!

[@samraiborde8878]

Glad my vids have been helpful.. praying you get complete recovery. 😊

[@theresadavis-bowling2808]

Thank you so much for sharing your story. It’s been almost 3 years and I lost a lot with CES. I’m so happy that I don’t have to use a wheelchair, walker, or my leg braces. It has taken time but God has been with me the entire time. I’m so grateful and thankful to God for his grace and mercy.I will continue to fight because I want my whole life back.

[@dennisafriyie8674]

Did you have a foot drop and if so how did the foot come back alive?

[@theresadavis-bowling2808]

@@dennisafriyie8674 Good afternoon, yes I had/have foot drop. I work leg braces that were made and measured for me and I also attended therapy. I don’t use the braces anymore and I do work a job full time. I have a lot of nerve damage and it affects my legs and feet. I keep going praying and walking. I can’t run but I can walk sometimes after being on my feet to much when my legs are tired I can feel when the foot drop is coming where my leg can drag. At that point I must rest get as much rest as you can.

[@mateuszadam2903]

Thank you for sharing your story with us. Very inspiring. I had CES and had to have emergency surgery. I am 8 weeks post-op and doing well. I hope to recover as much as possible. Thank you for making this video and I’m so happy for your recovery

[@msjannifer]

Thank you for making this, my first cauda equina surgery was in 2015 and second one was year later. The second surgery I had drop foot after surgery, I had physical therapy for half a year. There is life after this.. just being more gentle with your body.

[@Ammerlaan88]

Thank you brother, I had surgery 8weeks ago and have had a recent set back with leg symptoms. Your video helped.

[@AliceinSunderland]

Hi Sam, thank you for sharing your story. It’s so inspirational hearing your advice on remaining positive. You’re very wise. Thank you for motivating me on my recovery from CES 🙏

[@annawilliams7650]

Thank you for sharing your story and I am so happy you have recovered so well and it is very inspiring to listen to you. I have recently been diagnosed with CES and had to have an emergency operation. Luckily I was much less effected than you and making a quicker recovery, but it was scary at the time and of course the worries about how I will be long term so it is very good to watch your videos and see how you continue to improve.

[@Entvan]

So you recovered fully? What issues did you have. Sorry I'm just looking for success stories to get motivated

[@costageoref3309]

Thank you Brother and God bless you too 🙏❤️

[@stevenwagner9912]

A person goes through a period of grieving after you are injured and you know your body will never heal enough to let you live the life you used to and wanted to. I think that is the hardest part. I have back problems. Haven't been diagnosed with CES but my surgeon said my spine is a train wreck from one end to the other and a textbook example of what can go wrong with a spine. I have come to terms with it but now my brother has almost exactly what I do except worse. The MRI reading did mention the CE was somewhat impinged at C3-4 I think. I hope he can find some help so he can have more function. He's a great guy who has had a rough life. As a kid he had asthma and nearly died several times. He had a son who got into drugs and ended up taking his life. He has2 grandsons he loves so much. So he needs to be able to be a part of their life. Been watching videos to learn as much as I can. Hope all of you find at least some relief from pain.

[@stevenwagner9912]

And thanks to the poster for this great video.

[@Candehcanes]

Can you make a video of pts you do. I stopped going because my pt people were small. I hace CES, 26. Sending you blessings on your recovery and improvement! Thanks for sharing

[@EileenDean]

Hi Sam, I have saved your video for inspiration. On June 1, 2022 I had a back operation that went wrong. I am 7 months working with physical therapists and at home. I'm so impressed with your recovery. Could you tell me about your physical regimen to recover? Did you have a trainer or go to a gym? Is there anything you found particularly helpful? Also I was wondering if you still have drop foot and if you still wear braces?

[@linalina-tj6md]

Thank you brother I'm so happy for you.

[@SujitPalandeMissionRun]

Wow it.. really inspiration story.....I felt like my story....so related.....thanks for sharing 🙏👍

[@erniealvarado5986]

Thanks for replying Sam... I hope goes well... I guess we have to do our part & leave the rest to the lord!!! God bless brotha

[@freestylers5563]

THANK YOU FOR SHARING THIS WITH THE COMMUNITY...MY BROTHER....OBRIGADO **

[@movingon.............6850]

I was discharged yesterday after my operation two days ago. All Esteemed To The Most High🔥

[@lynnemerrills4665]

Thankyou for sharing. God Blessx

[@bridgetpreston2100]

Thank you for sharing

[@maleko61]

Thank you for this

[@Amitkumar-tp9mc]

Apka video dekh ke mai bahut motivate hota hu

[@samraiborde8878]

Thanks

[@LolaBastinado]

Thank you so so much for sharing! My daughter was diagnosed with CES 11/2020

[@samraiborde8878]

Hope she gets better. Prayers n love

[@fathielgamati1987]

@@samraiborde8878 Hi my freind iam haveing ces for 8 month will you please help me and send me what to do and what recovre i need withig for your help thank you

[@user-wi3rw7zg3w]

dear kindly me guide the proper treatment and about your doctor for this treatment

[@uruasija9141]

When will sensation come after surgery please tell

[@geraldhammond2382]

Thanks for sharing 😊

[@RanjeetSingh-mw4ql]

How many days recovery start 1 St time

[@peteman8160]

Congratulations on your recovery. And your right it is a mental battle.. You will keep recovering its been 13 years for me and lm basicly back to normal again, still have some more healing to finish off. I know how hard it can be l know how you feel. It gets better, the longer you go faster you heal and the more healing you notice becuase all the small little healings start to add up to the over all big heal.

[@chrisnyasia7]

That's a great post, my friend... Extraordinarily inspirational...

[@erniealvarado5986]

Just had a question...Do you get electrical shocks in feet and do you have any type of numbness in legs or saddle area, I hope you can talk about it, if you have experience these type of symptoms. Thank you

[@samraiborde8878]

Yes I do get electrical shocks sometimes not ofteen.. mostly during weather change.. also saddle numbs and feet numbness too..

[@erniealvarado5986]

Has the numbness in saddle area changed or it’s still the same and also do you have numbness in the feet? Thanks for responding

[@samraiborde8878]

It's gotten a little better.. but still numb..

[@erniealvarado5986]

Thanks for replying, Because I had my surgery for CES in 3/2020 I still have numbness from my buttocks all the way down to my feet I was wondering if it will go away. I asked my doctor but he’s not sure everyone is different

[@samraiborde8878]

Well. That's a million dollar question.. we have to wait and see. How ur recovery progresses.. just be patient n concentrate on your physiotherapy.

[@Ranjana-ek1jg]

How are you now?? hope you're doing well ❤️‍🩹

[@Amitkumar-tp9mc]

Sir kya surgery ke Bad bhi apka buttock aur pair Mai dard rahta tha kya report sab normal hai phir bhi

[@taarockneupane600]

Sir please make a video with your exercises plz sir

[@dalwinderkaur4687]

Thanks sir for sharing ur story...m also suffering this disease..and had surgery 3 years ago..my story also same n I understand ur condition becoz mine is also same butafter 3 years I have back pain sometym...

[@samraiborde8878]

Hi there if you have pain consult a doctor

[@uruasija9141]

When will numbness go after surgery

[@forovusventure6651]

Hello Sam...I want to ask u, i was diagnosed of Cauda Equina Syndrome last 2 days.. I still have sensation on my bladder but my Sexual dysfunction.. My leg still ok, can walk.. Pain at the back subside.. Should i be doing surgery as fast as posiible for this Issue or just continue with Physio?

[@forovusventure6651]

Hospital only gives me Steroid to relief the pain n some inflammation.. Do u think it works without a surgery?

[@gautammalhotra2979]

​@@forovusventure6651surgery?? Or not

[@Preeti-lw9jc]

How are you now??did you had surgery??

[@jeffskyton4193]

Hello Sam, Its been 8 months now since i went through the surgery. My legs are recovering comparing from before. My issue is I am not able to ejaculate. I am afraid that i wont be able to have a child in the coming days. Can you please tell us your experience about this. Will it be fine afterwards or it will remain like this.

[@mrunstoppable5806]

Please reply i m also in the same dilemma

[@luqmanlatif1358]

Im in to 9th month of surgery got rid of catheter 3 months after surgery my bowel issues also improved but I still can’t get the erection which is stressing me a lot

[@user-uz6cq3pd4y]

Привет, а до операци были у тебя проблемы с мочеспусканием. Меня тоже оперировали пока ничего не изменилось​@@luqmanlatif1358

[@fashionvilla5385]

My father had swelling in his right foot and hips when does it go and why it is???

[@samraiborde8878]

Well swelling is common with this condition. Excersize should help in reducing it

[@jackhenderson4343]

Hi Sam!!! I hope you can give us an update and if you are experiencing any numbness in buttocks area; legs; feet and any electric shocks in feet.... Things are getting better for Me but very slowly, for the past 3 months I started riding my mountain bike and feels amazing to be able to do that.it’s been 13 months since my surgery... Thanks for you’re videos and God Blessed Sam

[@samraiborde8878]

Hey Jack.. Hope your doing well and safe.. well I still have numbness in my feet and parts of my leg.. Saddle area is ok.. I used to get electrical shocks. But now it's been 2 years don't get them.. I just have issues with balance sometimes.. but it getting better each day. Just keep positive things will get better. 😁

[@punamkk8794]

Hii Sam I'm 38 years old 8 February 2021 my surgery is done. My bladder issue is almost recovery , but my left feet has no sansation numbness, my right leg is strong n my left leg is also strong only my left feet has no sansation.... I'm feeling after surgery electric shock in my feet but still no sansation what can I do pls tell me

[@punamkk8794]

My feet is lifting but fingers are not moving

[@vijaybagariya7758]

@@punamkk8794how's your leg

[@punamkk8794]

@@vijaybagariya7758 it's better

[@punamkk8794]

Hii Sam, I had my surgery 8 February 2021 my bladder function is almost recovery mood my right leg is all well my weast is strong my only my left feet has no sansation my feet is lifting but my fingers are not moving yet what can i do, my Dr told me that no to worry it will be alright in 6 month after my surgery ihave feel electric shock in my feet ... Your fingers are moving

[@samraiborde8878]

Hey sure.. u can call me.

[@punamkk8794]

@@samraiborde8878 ur no pls

[@punamkk8794]

@@samraiborde8878 mobile no. Dijiye pls...

[@samraiborde8878]

@@punamkk8794 7507770313

[@jayateerth76]

Sir, my cousin has been diagnosed with this condition. Would like to discuss treatment options. Can you pls provide contact details so we can discuss?

[@samraiborde8878]

Sure send ur contact details

[@vijaypandi5237]

Sam without surgery how manage ces

[@samraiborde8878]

That you will have to ask your doctor. Because with a slip disk that is compressing your nevers there is lot of pain and only solution is surgery.. but if there is any option other than that your doctor would be best person answer that

[@punamkk8794]

Rpl pls sam

[@deepakrathore7723]

Did you get back ur all sensation

[@samraiborde8878]

Well on the sensation part.. I still have numb feet. N saddle area

[@uruasija9141]

When will numbness go after surgery???

[@uruasija9141]

​@@samraiborde8878how is numbness now??? Please tell

[@anasshaikh9037]

​@@uruasija9141aap ke bhi h kya quada equina

[@Dharam-Marg08]

Sir please Aapka no.

[@wesleymartin6506]

I've been living on the toilet for 14 years.ii

[@ionnicolai4684]

How you are now?why so long time you didn’t recovery?

[@Mark-fg9pf]

Hi Wes, can you describe what you mean? I find myself sitting on the toilet because i feel my bladder is not emptying fully.

[@mahmoudabualfa3347]

​@@Mark-fg9pfcould you tell us how r u now? did you had the surgery

[@Mark-fg9pf]

@@mahmoudabualfa3347 hi, no surgery ( yet ) The symptoms come and they go. If I over exhert myself I pay the price. My foot gets numb, then the shin, then thevbladder trouble if its really bad. I take some anyi inflamitory, stretch, traction. I lretty good after a whike.