What Is It Like Living With a Disability? | Born To Be Different | Part 5 | Origin

Born to be different follows the lives of six extraordinary children all born with a disability.
Exploring the hopes, fears and lives of their families as they deal with medical interventions and extreme emotions.
In this final episode, the children enter their fifth year and we see the progress they've made.
Subscribe for more: bit.ly/3oNs1Lv
Watch More Below
Parenting Documentaries: bit.ly/3m10TpX
I Want My Mummy: bit.ly/340dT94
Delivering Babies with Emma Willis: bit.ly/2IAZFUN
The Biggest Families: bit.ly/2VXXkGJ

[@wisedred]

Up til now Shelby's mom has only been a walking red flag to me but this just crossed the line "I think it teaches the other children how life really is" Alright so up til now this series showcased a few aspects of Shelby's siblings: - "I hope she dies" boy - "I'm worried about Shelby" boy, coping his neglect by focusing his attention on "the same thing as mommy, if it's important to her and to me as well, she will notice me and she will love me" - a little girl who barely got one intervention since this all started (but she sure smiles a lot and jumps well on the trampoline) I know raising a disabled child is hard but I'm flabbergastered about how human nature is able to lie to itself to such an extent To me all that only hides a constant need of feeling useful / required rather than anything else. You wouldn't want more children knowing you're the carrier of an extremely crippling gene that will severely impede on a child's life expectency. That is just utter disrespect towards that poor eventual child and towards life in general. Imagine what pain your children must go through... I'm so done with her.

[@FlutePlayer777]

I think its silly not to have prenatal testing. I like being prepared for whatever comes.

[@astralb.2647]

RIP Shelby. I'm glad she's finally not suffering anymore.

[@pearlkelly6337]

And RIP William as well

[@ninacoppard7397]

​@pearlkelly6337 how do u know this plz x

[@hydrooxy84]

When did each pass away

[@ninacoppard7397]

​@hydrooxy84 shelby passed away over 10 years ago I think not sure bout William

[@pearlkelly6337]

@@ninacoppard7397 William passed away as well

[@bobbiejoe2920]

How can Zoe's dad leave her and her mom alone she's such a beautiful child ❤️🙏❤️💯

[@Temptation666]

well he left his two oldest children to be with Zoe's mom. So i am not surprised. He is a quitter

[@MsDogMom]

He has .. 6 kids. He’s a deadbeat ….

[@EVALLOYD]

What about Selbie's dad. He walked out on his wife, his 3 other kids, no mention of him either so doesn't seem to be in his kids life at all, at least Zoé's dad is still in contact. And I really don't understand Zoe's mum having another baby with the same guy, don't people know that contraception is available or what. No woman should "fall' pregnant for goodness sake, we all know how babies are made, surely.

[@ninacoppard7397]

​@EVALLOYD zoe mum and dad was still together when mum got pregnant

[@Jacoe413]

As a carrier of condition that can be severely disabling ( I am moderately affected). I can't imagine just blindly going into pregnancy. I really don't think Vikki was in a place mentally to be in the position she is in here.

[@IlaughedIcried]

Phew....yeah. Her faith-based values are really not in tune with her genetic issues. It's really aggravating witnessing her choices.

[@beyedoc]

Same. I have made the gut wrenching devotion not to have children for that reason.

[@astralb.2647]

I have a "mild" genetic disorder, but I will never have kids. I don't want this for them.

[@mariantabaksmith6557]

She is being selfish, why not give your love to the child you do have. I think it's child abuse to bring more disabled kids into your world, knowing how they will suffer. Sh she needs therapy to figure out why she wants the attention of being a mom to disabled kids.

[@Bettinasisrg]

Totally agree! It's not like she doesn't have kids and is desperate to be a Mom, in fact it's the opposite because she's neglecting the kids she does have to get the attention her disabled child gives her. I get a real martyrdom from her which is selfish. I don't think it's intentional and I think she'd really benefit from counseling.

[@ThereIsNoGod.]

Shelbys mom rather get a another severely disabled child than adopt or stop and take care of her already existing children is not just selfish, its cruel. There are so many amazing children that need a home and you dont need to be blood related to be a real family. And they are not childless, how can they even say this? Shelbys life quality is questionable and her brother died and she carrys on like nothing is wrong with that. That makes me really sad actually.

[@mariannelovesbabies8559]

Lovely u battlelax I am disablred. Com and killl me.

[@nok953]

@@mariannelovesbabies8559 are you as disabled as Shelby?

[@bethanymay7720]

I disagree

[@Temptation666]

Agree. I wonder if she got a tendency for Munchausen's and NEED the attention a sick child gives her.

[@Temptation666]

@@mariannelovesbabies8559 your quality of life is not in question is it? Do you suffer every minut of your life just so your mummy can be happy? Shelby only reacts to ligt and sound. There is no joy in her life no matter what her mother thinks. And neither will there be in the next child's life if it has the gen. Not getting tested when there are 50% chance is both irresponsible and cruel. Like it or not. She is disgusting PS: i got a sick child too. I am not talking out my ass.

[@IlaughedIcried]

Nathan is such a sweet, outgoing, joyful child, and I feel fairly certain that it's largely because his parents are SO unconditionally loving. From the very start, they've been so positive abut his worth, and have seen him as a unique individual, noticing his personality, his ability to learn and express himself. They seem like really kind, compassionate, intelligent people, and they're obviously so connected and in tune with each other as a couple as well (they often say the same thing at the same time - it's so cute!). I've really loved watching their family, and how adorable Nathan is.

[@joydavis9264]

Bless little Emily's heart; I think she felt like she was being tattled on for not catheterizing at the Dr.'s office and so she tried to lie and say she did catheterize like she was supposed to, and then when mom told the Dr. she might do it if he told her and so he did tell her, she thought she was being scolded by him for not doing it, even though he was nice about it. She just felt that way, and that's why she got teary eyed at the end.

[@judithlashbrook4684]

As a wheelchair user, using one opens so many doors for me, it's amazing! From my point of view using a wheelchair isn't "giving up" it's accessing a life that is "normal" as possible!

[@slantos2668]

Her mom's attitude seems really self-centred through the whole series tbh.

[@kaycollarfeild]

My bro got spinabifida, his wheel chair gives him lots of freedom really. Means he can go out eith everyone else but walk when he can

[@jenlfpotter3870]

I'd love more freedom without a lot of discomfort, cramping, swelling, pain, caused by Lymphoedema in the past 5 years or so, but I've never been able to persuade my own mum a wheelchair could revolutionise how far I could travel no matter how I was feeling at the time I wanted to get from A to b, be able to keep up with everybody else without having to ask everybody else to wait up while I rest on a bench or prop up on a post or a wall to take the immense weight off one foot at a time. My mum was just adamant I wouldn't manage a wheelchair with a white stick in my right hand as I'm vision impaired, but I know at least two people who are vision impaired who use power chairs or scooters with a wlong white cane as well.

[@kimberlyhayes6006]

Did I just cry when Nathans class came to his birthday party and everybody included him in what they were doing? Yes, yes , I did.

[@donyacalderon6492]

These kids are precious and their parents are wonderful. Prayers for all these families

[@linda9115]

A special development school is best. They have wonderful staff to help with the needs of the child. Smaller class size with support teacher.l enjoyed watching these little troupers grow up. Well done parents.❤❤❤

[@Bettinasisrg]

Yes and the caregivers need a lot more praise.

[@GAGGYuRus]

Emily is actually my cousin. That’s the only reason I’m here 😂

[@slantos2668]

Emily has got so much spunk! I love watching her voice all her opinions and dreams. She seems like a really happy child.

[@kccarpenter7680]

Appreciated hearing medical professionals provide clear, direct and honest assessments of the children’s prognoses.

[@lmrharper3586]

That poor Hamish his parents are just so unknowingly horrible . I couldnt believe it when they said Hamish would one day ask questions and say “why did you do this” He can live a wonderful life get married have kids.He probably won’t ,his parents will emotionally cripple him with their attitude.

[@melissalove2463]

I’m annoyed by Hamish’s parents cause compared to the other parents in this series he is perfect & all they do is hang on to the negative. That can’t be good for him !

[@Temptation666]

Agreed there is nothing wrong with Hamish. He is short. so what. maybe he will get complicated when he get older. like backpains. But that is for then. Now he is a fine boy. Enjoy him instead of envying taller kids.

[@buckfideniimd8546]

They’re dealing with it the the way they can. It’s not just short bones it’s a whole condition.

[@IlaughedIcried]

They've been like that through the entire series, since he was born. His grandmother continually says disparaging things about him, like, "If he can't be a beautiful child, I hope he compensates in some other way." It's horrible.

[@maryl1735]

@@IlaughedIcried The grandmother is dreadful. I just hope she rarely gets to see him. That would be better for Hamish and a relief for her, I’m sure.

[@kianaone2610]

You do realize that someone who has dwarfism actually have a lot of medical issues right? Your ever see little people big world? Both parents have dwarfism. Two different types. They adopted two children who also have dwarfism. The mother had to go through over 20 surgeries. Not for lengthening legs or anything, but medical to actually save her life. Her husband also had several surgeries. Their son(the one they adopted) had to have surgery as well. And so did their daughter that they adopted. Another family with dwarfism who also had a TV series also had several children with dwarfism. They too had to have surgeries due to comicatiins with dwarfism. Yes he is healthy right now at this moment, but with his type of dwarfism he could end up needing 20+ surgeries just to save his life.

[@zomb_bree7950]

i love this series

[@kimiisland9802]

Shelbys mom is horrible. I get angry just listening to her. She is so selfish and cant see reality.

[@Quila1125]

ya some dont its sad. They should of let my cousins younger cousin go when she was little. She was born with heart issue and no hip socket. other then that she was fine till she got sick and was brought back to many times. leaving her severely brain damaged. I saw her not to long ago and shes in her early 20s. lays in a wheelchair with her mouth wide open and looks deformed. no quality of life. i know its hard to let them go and some really dont think about that. they feel that if shes alive thats best thing. but its not

[@katefevre6222]

bless all these children

[@Bettinasisrg]

Shelbie's Mother is being selfish and to me she's liking the attention her disabled daughter brings. And how is any drug controversial when there's a chance it may help?! I wondered if they even tried CBD for Daniel's seizures? I'm so over the illusory drug morality.

[@eruncensored]

When she said new medicine I yelled out CBD I FREAKING HOPE!!!! But nope

[@Amy-qo6xf]

Such a sweetheart!❤️

[@ninacoppard7397]

What an amazing young girl zoe is ❤ absolutely gorgeous

[@dmsmiles4044]

Vikki seems like an amazing mother. So stronge and capable. I think i would also want more children even though the risk. But i dont think i could be so stronge as she has shown to be.

[@that_weird_one]

I've never seen anyone else with Tuberous schlerosis. My brother has it, far more severely (he doesn't really understand anything, but to an extent thats better than him being distressed). I'm always shocked how little exposure TSC gets

[@evakurl]

That’s so cute that Shelby’s mom is above genetic testing but is not above using all that juicy medical care money 🤩 you choose having kids “the natural way” then let them pass naturally (within couple of hours without additional oxygen, inhalers, immediate medical attention)

[@pearlkelly6337]

May she rest in peace and William, so sad

[@DevonPixie1991]

Those attitudes Paula describes about ADHD still exist 20 years down the line this is in spite of increased awareness

[@slantos2668]

I just started watching, and cannot comprehend the amount of selfishness on the part of Vicky.

[@hannahmullen4897]

part 6?

[@supercreeperstar5976]

Add more please please please add more

[@rducky136]

Emily is a nurse now

[@hannah8377]

First time seeing part 5 i saw part 1 and 2 and 3 abd 4 but not 5

[@jokehokke283]

Judging is easy if you are not knowing what it means to be parents of a disabeld child. The judging in the reaction do distrub me very much.

[@bobbiejoe2920]

Emily is such a little darling ❤️😘9

[@shirleyscott8879]

How can that mother keep on having children when she’s neglecting the ones she has. She also knows there is a good chance of them having a debilitating condition. Irresponsible

[@alvarovaldovinos6836]

The second mother, named Vicky, she will suffer quite a lot because of her stubbornness and ignorance. Her children will pay partially the price of her ego. Very Sad.

[@ninacoppard7397]

I think shelby mum very selfish to keep having kids knowing they could be born like Shelby. That is no life for a child 😢😢

[@marybuschbacher1883]

My grandson that was born with bad kidneys. At one point the drput the appendex and connected it from belly button and bladder He has taken care sine it was put in .

[@ms.patriciaheron9061]

❤

[@serverelfrogue9597]

Poor Shelby she should have been let go along time ago savor syndrome is a real thing

[@Quila1125]

I know she didnt wanna lose Shelby but she never thought about the quality of life she lives. Its not fair to neither of them. when someone has no quality of life and just lays their its not right.

[@ourcreativebeehive]

My daughter needed a leg surgery. We could make her an inch shorter or an inch taller. We took the shorter option as the taller option is very painful.

[@AS-qg1xu]

I think it's easier for women to go through life being short than it is for men. Perhaps if you had a son instead of a daughter, you would have chosen the taller option?

[@Loveroffood41]

Being disabled can be very hard.

[@Temptation666]

Shelbys mother is so irresponsible it has long since become cruelty

[@user-kh6qu4zc2h]

😊

[@angelgabel7741]

I have a question where can I watch the whole series of this I can't seem to find this in order or where else to watch it on KZbin or Hulu

[@LivvyAlexW]

I wish I knew

[@lannguyen-pu1db]

You type name and number of episodes and the "search", a very small thingy/picture/icon 🔎 at the top left corner or wherever else on the screen.

[@juliettefu7244]

Hi, I was wondering if I could have your permission to translate this video into Chinese and share it on platforms like Chinese TikTok. I really enjoyed the content and I think it would be a hit in China. Of course, I'll make sure to credit you and include a link to your KZbin channel in the post. Let me know if you're cool with it and if you have any specific preferences for the translation. Thanks a lot for considering this request - looking forward to potentially working together on this. thank you❤

[@juliettefu7244]

Hello, I would like to follow up on my previous message regarding the translation request. I am a big fan of your KZbin videos and I believe that one of your videos would resonate well with Chinese audiences if translated. I would like to seek your permission to translate the video into Chinese and share it on platforms like Chinese TikTok. I assure you that proper credits will be given to you, and I will include a link to your KZbin channel in the post. Thank you for considering this request

[@butterflygirl3359]

As long as Shelby’s parents are paying for all the medical care she needs themselves and are willing and able to do so for any future children they choose to bring into the world, then it’s no one’s business but their own.

[@stepht7508]

There's no way they could have payed her medical bills...I gather they have the NHS

[@astralb.2647]

Think about those kids, though. Shelby suffered for 19 years. That's absolutely horrible

[@Anonymous_Gambito]

​@@astralb.2647 You can't claim that. Lots of people live in pain and yet they'd rather be alive and like to be alive. Just because someone suffers that doesn't mean their life is merely suffering. Not killing your disabled child isn't "selfish"

[@astralb.2647]

@Anonymous_Gambito there's a difference between a "disabled" child and someone like Shelby, who had no quality of life at all. I am disabled myself, and I'm in pain every single second, but my life still has quality to it. But Shelby's life didn't have that.

[@Anonymous_Gambito]

@@astralb.2647 You can't speak fo her, only for yourself

[@amandawood204]

Poor William has a horrible self pitying mother!

[@hydrooxy84]

Damn how old is this

[@pearlkelly6337]

It first aired 2003

[@dr.valbell6427]

Yeah her kids have certainly learned some things like how immature & selfish Mommy is, how Mommy is unable & unwilling to give each of her children the same attention and love as Shelbie. And now the village idiot is pregnant AGAIN despite the risks & dangers. What is she going to do if the new baby has the same disability? She can’t care for two such disabled children. And it’s upsetting to see that adorable little Shelbie unable to walk, talk or play or meaningfully interact with anyone. Her quality of life is basically non-existent. In truth, Vicki has a Charlie ‘hole’ and is unfairly keeping her alive to suffer just so Vicki can fill that ‘Charlie hole’ with Shelbie.

[@claudialandgraf4450]

Shelbys mum is a supermum. I have deep respect for her bravery and that she refused the scan. We should vallue life in its self more.

[@Temptation666]

i don't. She is being irresponsible boarding on cruelty in the name of her religion. Shelby and Shelbys siblings pay the price. I wonder if she got a tendency for Munchausen's and need the attention a sick child gives her.

[@astralb.2647]

Clearly, you don't know what it is like to have a genetic disease. Shelby's entire life was just suffering. There's nothing noble about that. My disorder isn't usually life-threatening, but I still wish I wasn't born a lot of the time.

[@myoldvhstapes]

She didn't refuse an ultrasound scan. She chose not to do IVF with pre-implantation genetic testing.

[@kallinskai1427]

She's what 5 or 4? Who cares about the nappies kids usually stop all on their own, maybe around 6. They act like young toddlers are not allowed nappies at her age, so not true

[@serenaplante3966]

Most kids stop wearing nappies in the day time at 2 or 3. By 4yo, it's unusual and noticed by peers.

[@kallinskai1427]

@serenaplante3966 well nappies can mean pull ups and not just diapers kids around 3 to 4 can still wear pull ups it's totally normal to prevent accidents

[@gypsy3446]

I'm pleased Anne Marie is over that guy,because she's gorgeous looking woman and there will be much nicer men then him around, or best of all just stay free and get 1 night stands when you want to.😊😅😂❤ from Australia 🇦🇺 ♥️