A DOCTOR did this to MY HAND | Complex Regional Pain Syndrome Q&A

[@novasorbit]

As a fellow disabled person I've known that the best way to be educated on a topic like a medical condition is straight from someone's experience! This was incredibly informative and I learned so much. Even though you apologized beforehand if something wasn't explained well, I learned so much about CRPS having known very little and been confused in the past by explanations/articles about it. I have always loved hearing other people's experiences with disability, and this was a really raw way of presenting information, which is honestly really educational, so thank you!! I also love your philosophy you described; I can mourn things about the past, but eventually I need to use that to pick myself up and accomplish whatever I can. Because yes, even one small accomplishment is a victory!

[@joraston]

As a fellow chronic pain sufferer it is so true that there is no one size fits all with pain management. What suits one person doesn’t necessarily suit or is practical for another. I feel that my pain management specialist is probably my most important specialist than my GP. I have AS, fibromyalgia, Psoriatic arthritis, Sjogrens, Schuerrmans and undifferentiated connective tissue disorder. Like you I find trying to be as physically and mentally active as possible does help with trying to cope with daily pain. I too was a teacher(music and classroom) until I was forced to retire in August 2016. At times I still find it hard as I taught for almost 30yrs and I still miss it.

[@jopohl1071]

Loved watching this (through tears) - am so proud of you my darling. Miss you and Bessler 🐕 so much xxxx

[@strawberry0gurt.]

has the doctor ever faced consequences for this or was there ever an investigation done? i’ve always wondered how this type of stuff is allowed to continue 😭

[@emilymorris5289]

You have really helped me feel less alone since I had a traumatic thumb injury 7 months ago. Drs are starting to consider CRPS, I really struggle with the cold it goes purple and burns like crazy! I know things will get better!

[@amyepohl]

Hope you get more answers soon. You’re definitely not alone ❤

[@jsc9000]

Such a great video for so many reasons. You are so good at explaining stuff (must be the teacher in you). Your recent dare devil antics are amazing. The vertical slope😱❤

[@amyepohl]

Always been a dare devil, one thing I’ll never let my illness take from me 😅

[@angelblazevicius2001]

No matter who you are Amy, you’re always be beautiful

[@hhdbhn302]

I'm so jealous of you. If I would ever suffer from a chronic illness idk what I'd do. I have no friends and only my mum who works fulltime and lives in a different city. You're very lucky

[@amyepohl]

Yes I’m very lucky for my family, it definitely took going through this to show me who my true friends are ❤

[@Julia-b7f1c]

I admire your reply to the dr one. I have a great unremitting hatred of the a****"e who did my spinal surgery. He ripped the nerves in my spine apart leaving me paraplegic Cauda Equina Syndrome. He didnt put anything in my hospital notes (I checked) for several days. I couldn't wee, feel temperature difference in my toes and other strange happenings I didnt understand. I could have sued but I didnt have the strength to do it. I have always worked in the insurance industry so I have a realistic understanding of the process. I did want an appology from him. I sat in a room with the ahole and general manager of the hospital and a nurse to help me understand any medical terminology. I made him literally squirm in his seat, that what i wanted to see. He said he was sorry. I kept my cool till i left the building then just screamed in the wind. It was very quiet there so noone around but it got out the tension. 16years and counting.

[@itsjessbrophy3113]

Crps is horrible I have it in my hand aswell and i wouldn’t wish it on my wrist enemy watching your videos really help me throught it I ways thank you Amy I always say it’s like my hand going throught a meat processor/ grinder 🧡🧡🧡🧡🧡🧡🧡🧡🧡🧡🧡 sending love xx

[@lauramcwilliam258]

I also have crps and this was also negligence! I am now bedbound with full time carer due to this. I also suffer from similar vitamin/mineral deficiencies as my body can’t absorb. Now I am experiencing gastrointestinal issues so see them in 2 weeks time to discuss this. Would be nice to speak to someone with similar issues. I have spoken to your mum on tik tok emails before as well xx

[@leannadavies7440]

Hi Amy I have sore hands to I have pain issues I personally love reading ❤😊 I wear compression gloves at Times ahhh Amy never feel like a burden My family rock as well love your vids ♥️👍

[@leannadavies7440]

My ankle was so sore I wanted to rip it off ❤❤❤ awww 😢 healing now Im on medication/cream

[@itsjessbrophy3113]

From a crps warrior thank you for sharing your story my brother is a paramedic and he is trained not to use reuse needles ❤❤❤ ps love bess in the background I watched the interview u did with what is pain or something xx ❤❤

[@lena_lark]

hi, nad and using splints seems to be a thing that would help. as you're not using them, i wonder why it's not an option for you?

[@DannyxDusty]

Thank you for sharing you story❤

[@amyepohl]

Thanks for listening❤

[@fuzzydragons]

I have nerve pain 24/7 from MS and yeah you just tend to get use to the pain (meds can help dampen the pain but they dont always work), unless its a really bad day and then i just cry 😛😑 Life does go on with a chronic illness/condition, its just different and there are sometimes good and bad days ❤ (You have made me aware tht they should have been using a different needle when they put botox in my face (3 injections, different places,TMJ issues and if they dont like it, im reporting them. Also explains why the third injection really bloody hurt. And come to think about it, they didn't clean the injection sites either🤨😠)

[@morgenabel7949]

I have fibromyalgia, it is a wide spead pain disorder... so I know how you feel being in pain.

[@amandahaskin7230]

Hi Amy I love seeing your videos I have crps as well and know how hard it is I’ve having the worst flare up at the moment my Arlo my Labrador is so good at looking after me I got him as a puppy after I lost my first dog my Milly and he alerts to seizures for me as well I don’t know what I would do without my Arlo he is 8 now

[@itsjessbrophy3113]

Bess having an itch in the background xx

[@FarhanKhan-hv6sx]

I can’t find her on Instagram ???

[@iSheree]

Doctors are humans but they aren't the ones that have to live with their mistakes every single day. I have suffered my whole life due to medical negligence.

[@DogLover1718]

How much can u move ur hand at its best

[@ChloeWells-zs5ux]

❤❤

[@nickybeechking7565]

When meet you Amy love you ❤❤❤❤❤❤❤