Albino Girl Answers: Top 10 Questions About Albinism

In honour of February being low vision awareness month, let's talk about albinism!
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Video Filmed on Lumix G7 and iPhone X.

[@ljbertini713]

This is so educational! Thank you so much for sharing! I’m a Medieval fantasy author and am currently writing a novel in which one of the main characters is a girl with albinism. I want to make sure she’s represented as accurately and respectfully as possible. ❤️ Thank you for your videos, they’re so helpful!

[@UnsightlyOpinions]

Really glad you enjoyed it! I am happy to chat if you need any more direction or have questions about albinism!

[@ljbertini713]

Unsightly Opinions Thank you so much! I would love that! I’ll definitely let you know if anything in particular comes to mind! ❤️

[@adrianalog]

She just told you how "Whites" were created, but it went over you'd head She has Oculo 1 you who claim to be White are Oculo 2, because you produce melanin This astagmus is seen in Albino Africans None of you who claim to be White are not as pale as she is

[@rbuk001]

I’m planning to write a story about a girl with albinism in the entertainment industry. I just wish we saw more people with albinism in movies and so on. I hope your book turned out well

[@alexismpaltatzis]

I've never expected to hear an angel explain herself, in such scientific way

[@SmokingEssy7887]

I have always found albinism so cool ever since I was a teenager I used to study it in high school (or at least look up info online) I think it's so terrible that people treat people with this disorder different because it's just wrong (and I can relate I have autism and we are made fun of also) love this video and please don't change anything I think you are beautiful

[@arx3516]

But they do need a bit of make up. Just a bit of eyeliner and maybe even darkening the eyebrows really improve the look.

[@SmokingEssy7887]

@@arx3516Sure but only if they want to

[@ritabright9323]

​@@arx3516no

[@ArjunRajYT]

I have Albinsim too

[@MW-gs8wz]

As a fellow albino I loved your video I feel you represented of us is on point Great video

[@UnsightlyOpinions]

Thank you so much! I’m glad you felt it was accurate. That’s always my goal! :)

[@Hunteress14]

With albinism some people have thought my hair is dyed. When I get this in public I used to say “I get my color from God. While most people with my hair color get it from a bottle for hundreds to thousands of dollars,”

[@UnsightlyOpinions]

I’ve had the exact same thing! Constantly. Who’s your hairdresser? What did you use to lift your colour? What’s your natural colour. I found out hanging out with some colleagues after working there for 6 months that they were all thinking I was constantly touching up my roots and re-dying my hair and couldn’t figure out how I managed to afford it. I laughed so hard when they told me.

[@PEACEinYESHUA-oj7vc1pk7w]

You look stunning, you are very beautiful@@UnsightlyOpinions

[@TJDYNAMITE1]

You are a beautiful girl from the inside and the outside, with or without albinism.

[@tuba_ogtheuniquelybeardeda7572]

Love your channel, you have help me understand even more. I am a lower degree. The doctor told my parents I was 85%. Many prayers! You are a gorgeous young lady, inside and out!!

[@UnsightlyOpinions]

Thanks so much! Always glad to have a fellow PWA in the community! :)

[@emilyhird2332]

What a fabulous video! It was informative, interesting and helpful. You are an amazing, strong woman, bless you -Louise and Emily ❤️

[@fatima-tuj-zohora435]

Thank you so much for answering this type of questions. I'm also an albino and I face this type of questions everyday.

[@UnsightlyOpinions]

Glad it was helpful! I know we all experience these things. Hopefully with a little more awareness it becomes fewer and farther in-between!

[@thecat3309]

saaaaaame

[@kreepykittycreations]

Oh my gosh, I love your hair >///< gorgeous! And thank you so much for such an eloquently put and informative video 😊 I'm writing a novel with a main character with albinism, so it makes a big difference hearing opinions and points of view of people who have albinism (instead of simply reading articles, which are informative but so impersonal) It breaks my heart to see/hear about how people in Tanzania with albinism are treated 😥💔 no one should have to live in fear just because they were born a certain way - and even though it seems to be a big problem, you never really see anything being done about it 😐

[@allieb9655]

Thank you so very much for this educational message. I put the link in my group, The "-isms" of Discrimination - A Safe Space To Learn. I want people to understand we are all humans who deserve love, understanding, kindness, and respect. It is my hope that education will help accomplish this. Again, thank you!

[@LawrenceChung]

It's amazing how you can be so articulate in answering the questions without clues. You're doing very well and I am so glad I found your channel! Thank you for the info!

[@UnsightlyOpinions]

I’m so glad you enjoyed the video!

[@aliciamarie9704]

I’m legally blind, blonde, and blue eyed. Makes me wonder how often blue eyed people have vision issues & how related to vision is melanin. Great video!

[@UnsightlyOpinions]

Thanks! Usually your eye colour really doesn't cause vision issues, unless it's directly related to pigment like albinism, or iris development -- aniriidia. While it is true that people with blue eyes are more prone to UV damage and optic cancers and some kinds of cataracts because blue eyes have less melanin and less ability to protect from UV rays, there isn't really a link to blindness due to blue eyes alone. :)

[@stephenlangsl67]

You don't need to dye You're hair. You're hair is beautiful just the way it is.

[@UnsightlyOpinions]

Aww thanks. I’m pretty happy with it the way it is :)

[@turbinexman]

Your videos are so informative and enlightening!! You are such a beautiful woman, inside and out!!

[@hngi26]

It’s so educational, I am so moved by your presentation, with your good sense of humor and your bright outlook on life, everyone should be more open and sensitive when come across someone with albinism. Thank you!❤😊

[@NancyLou51]

I’m reading Zeru Zeru Girl. It intrigued me to learn more about albinism. Thank you for your information! You’re a beautiful lady.

[@georgestokes5116]

thank you for juust going through all the stuff in just making this video. you did a great job

[@UnsightlyOpinions]

Thanks so much! I’m glad you found it informative and enjoyable! :)

[@buffienguyen]

this is really informative! thank you for your efforts :)

[@UnsightlyOpinions]

My pleasure!

[@nemanjarosic6092]

Thanks for great video. You look stunning 🥰

[@kikems7388]

This is fascinating, and you talk so articularly and clear.. And You're gorgeous

[@UnsightlyOpinions]

Thank you! I’m glad you found it interesting. :)

[@tltate]

I really enjoy your videos. And FYI, you are pretty gorgeous! I do wish you didn't have to deal with such pain with your eyes. Keep making content. You do a great job. I like learning about people. You're a great teacher.

[@ccjohncc1]

Thank you for sharing your story and information on this fascinating topic. I find you very humble, personable and very likable. Signed your latest subscriber :)

[@UnsightlyOpinions]

Thank you so much John! So glad to have you in our little community! :)

[@LEXPIX]

Good stuff. Keep up the good work fellow PWA.

[@massiveworld3481]

As a fellow albino , I love the video , though i am new . You are leaving your life and going on with it with so much problems thats great ,,,, 💖

[@BlindTechAdventures]

As a trainer, I have to say that you're exceptional at conveying this information. Great job!

[@UnsightlyOpinions]

I appreciate that! Thank you.

[@ididntseethatcoming6161]

Thank you for sharing this video it was very informative I have really enjoyed it.

[@UnsightlyOpinions]

Thank you so much! I’m glad you liked it!😊

[@horceliesindawambongo8583]

Thank you for the insight!

[@UnsightlyOpinions]

My pleasure! I’m glad you enjoyed it!

[@bellapath3517]

this is such a great and informative video! i love it! i actually didnt know that people with albinism also have optic nerve hypoplasia, my eye doctor never told me i guess. cant wait for more content!

[@UnsightlyOpinions]

Thanks! I'm really glad you liked it. Yeah! Neither did I until a few years ago. Maybe it depends on the type of albinism and that changes how much the optic nerve is affected? I'm not entirely sure. But always wanting to learn more!

[@bellapath3517]

@@UnsightlyOpinions my eye doctor never told me I had it so maybe it depends on the type of Albinism?

[@happypuppy8221]

Very good content. Excellently presented.

[@UnsightlyOpinions]

Thank you! :)

[@fionaowen5164]

Thank you for this you are beautiful

[@shwetasharma9666]

beautifuly explained all parts❤️

[@UnsightlyOpinions]

Thank you so much! I’m really glad you found it informative. 😊

[@theunknownone2189]

I absolutely love your hair!

[@UnsightlyOpinions]

Thank you so much!

[@theunknownone2189]

@@UnsightlyOpinions I'm currently working on a book that has a character with albinism in it. Do you have any suggestions on the development?

[@marilynns7138]

I really love this channel it's awesome to see someone like me on KZbin. I have albanism.

[@UnsightlyOpinions]

I’m so glad you are enjoying it! And even more delighted to have a fellow PWA in the community! Wishing you the best. :)

[@ianmurray246]

Love your videos

[@UnsightlyOpinions]

Thank you so much! 😊

[@guaraguaoo1]

You are a very smart girl and beautiful in all aspects, I learn with you in this video more that I learn in the university related to albinism. It is a very informative video and the way you present it makes it interesting to watch. Thank you for your excellent presentation and keep doing it.

[@UnsightlyOpinions]

Thank you so much. Comments like this make what I do feel worth it. 😊

[@PEACEinYESHUA-oj7vc1pk7w]

This is so fascinating. I Love your videos and you have an amazing personality and you are so knowledgeable. I had a friend who had albinism, At the time I didn't know she was albino. Her family and siblings were of black African descent, she looked exactly the same with African hair texture but it was blonde, her skin was white and her eyes blue. I used to wonder why she looked different. I never asked because I didn't want to be rude. We worked at the same riding stables as kids and she was amazing. It's only now I realise she was albino. hank you so much for your channel and for providing important education about this unique condition. You are incredible and very beautiful

[@richardwanamaker9080]

I was aware of most of the info you stated. Still interesting to hear all those details. You are certainly very beautiful, bright, intelligent. What is it you do for a living, what are your goals in life?

[@lovellhorrors1586]

I'm trying to write a story that involves a girl with albinism as one of the main protagonists. This info helps.

[@UnsightlyOpinions]

Good luck on your book! Make sure you talk to lots of folks with albinism because one experience is not everyone’s :)

[@lovellhorrors1586]

@@UnsightlyOpinions I'll be sure to do that. Or at least research a lot of different people with it if I can't talk to them. Thanks for the wish of luck.

[@Medical101]

I like how you answered your question. #HighInterllect 👏

[@dennisbonner1970]

Thank for the education on Albionism

[@imrannasir9982]

Very detailed information, looking for a detailed material from a long time. Thank you so much dear. An Albino from 🇮🇳

[@UnsightlyOpinions]

Thank you so much! I’m glad I could help out. I’m sure we’ve faced a lot of the same questions over the years. I’ll keep working to put out good info 😊

[@GA-nv1gq]

You are awesome !!! 🤍👼🏼

[@gutsagabriel]

❤Thank you. My son is 3 months Old and was born in UAE. We had a tough time finding just a doctor who would fully explain to us in detail like the way you did. Now we know better.

[@UnsightlyOpinions]

So glad to be of assistance. If you ever have specific questions I'm always happy to help where I can. :)

[@fightnet]

u are an angel x

[@stewartmatthews1551]

This information is very useful to know about albinos because I have trying to find some good research on them and couldn't find anything concrete thank you for bringing this to my attention I will definitely keep this in mind I think albino women look really beautiful too it's kind of unique to see something like that

[@cicad2007]

Beautiful! 🙂

[@user-ux2vc2gr6p]

Sending you love 💗💗💗

[@tudormiller8898]

I love your channel. You're so gorgeous. Watching from London UK.

[@tudormiller8898]

I don't understand why as a culture we're so obsessed with tanning and brown skin. Porcelain white skin and white hair are just as beautiful as brown skin and brown or black hair. .

[@Leo-nh9ui]

Hello so my mum actually trying to create a children's book about a boy who has albinism it is specifically meant for children in Africa to learn more about albinism since in Africa it is really bad to be albino. She was interviewed and the video was released today it's called "the perception of albinism". I know it's not right to promote something but I think that this book could change so much especially in countries with a lot of misconceptions.

[@UnsightlyOpinions]

I’m glad your mom is trying to change prescriptions. Good luck on her book launch.

[@Leo-nh9ui]

@@UnsightlyOpinions Thank you ☺️

[@soaringeagle5418]

A beautiful and intelligent woman. I wish you well.

[@belikethat4871]

YOU ARE BEAUTIFUL LOVE FROM PHILIPPINES

[@UnsightlyOpinions]

Thanks so much! Glad to have you :)

[@sashypooh409]

Is your profile pic a Filipino star??

[@belikethat4871]

@@sashypooh409 robbie rosa former member of MENUDO they are puerto rican menudo ruled the philippines /world wayback 80s, one of his was companion was ricky martin

[@sashypooh409]

@@belikethat4871 aah I understand now, he was a part of Menudo?! Good to know 😊I've heard of Menudo ... Robbie looks.Filipino in that little pic. Thanks for.explaining!

[@heseniortab1826]

Thank you! That was a really good explanation of the visual issues of albinos. While I have some pigment in skin and hair, I have all the occular issues in full measure. I have been made to feel that it was not "appropriate for me to use a white cane because"you can see!" When I was younger and with better reflexes, I could take it, but I now also have a nuerological disorder and after several bad falls, I got mobility training and walked with a support cane and a mobility cane and I now wish I had that decades ago. Thanks for being here and being a peer-mentor for us... Great job!

[@UnsightlyOpinions]

I had a similar experience and a horrible accident before a cane was given to me. I had "too much sight" for a cane when that was truly never the case. I'm glad you have a better way to manage things now. Always here to help and befriend fellow PWAs (melanin or not ;P as we are all fall under the albinism umbrella) :)

[@glennarnold4108]

Outstanding presentation. Extremely informative. Thank You !!! 👍👍👍

[@UnsightlyOpinions]

Thanks!

[@619alison619]

Your voice is so soothing, could listen to you all day 💜 was wondering are any of your other senses heightened due to loss of vision?

[@UnsightlyOpinions]

That's so kind of you to say! That's a bit of a difficult one to answer and it changes depending on who you talk to. Most people would agree that if you lose a sense that you definitely pay attention to the ones you have more. I have certain skills that I don't know I would have if I wasn't blind like auditory spacial awareness so I would lean to saying yes, but with the caveat that it isn't like in the movies where your other senses totally makes up for the ones you are missing.

[@davidguymon1673]

I actually had a teacher who was albino, but he didn't lose his vision due to albinism. He actually lost is vision due to an accident when he was a cop during a drug bust where the perp threw acid in his eyes.

[@UnsightlyOpinions]

My goodness! That sounds like an awful accident to take what vision he had left.

[@auburneytuckerson2959]

Not even albino rodents or lagomorphs (rabbits and hares) have red eyes. Blood vessels exposed behind the eyes make their pupils appear red. The same with humans applies to them. Rodents and lagomorphs have their irises and sclera (white part of the eye) mostly covered by the eye socket. You hardly see their irises.

[@aliciamarie9704]

I think you understand eyes better than any eye dr.

[@auburneytuckerson2959]

Why albinos have impaired vision SHORT ANSWER: Melanin is crucial in the development of the eye, so with no melanin, the eye is underdeveloped, causing impaired vision.

[@EclecticallyEccentric]

Have you personally ever had someone believe you have magic powers or are evil? Also, super cool and interesting video!

[@UnsightlyOpinions]

Believe it or not I have! I was stopped at the grocery store once when someone wanted to just shake my hand because of the good luck and energy it would provide. Same thing has happened a few other places. One guy wanted my hair. That was a bit creepy. I’ve also had people run away and scream ghost and demon when I walked into a room.

[@EclecticallyEccentric]

@@UnsightlyOpinions Shaking hands sounds kind of weird, but harmless enough, and at least they thought you had magic powers in a good way and not evil. The hair thing sounds extremely creepy. But that might be because of a story my dad told me about a patient out at a state psychiatric hospital. My dad worked there as a behavior analyst at the time, later becoming a program manager. This particular hospital specializes and deals almost exclusively with male convicted sex offenders(basically people who have served their time in prison, but have been analyzed by a team of professionals, and two or more psychologists, at least one psychiatrist, a profiler and/or behavior analyst, and a judge, have all ruled them to be too dangerous to release put into society). Anyway, there was a new psych tech there and was in a program where she'd spend a few days shadowing different people, taking notes and learning more about what they did out in the different units. She was shadowing my dad as they did rounds on one particular unit(I don't remember which one, but since she was new, I don't think it was unit 9, the behavioral one). A patient came up to her and very matter-of-factly came up to her and asked if he could have a lock of her hair. He explained that he would like to tape it up on his wall so he could pet it, and think about petting her. She politely told him no, which he accepted, disappointed. Then when she and my father left the room and walked down the hall, my dad went behind her and whispered, "Put the lotion in the basket." Being called a ghost or demon is simply rude. Unless it's from a small child, or perhaps an extremely superstitious person who should know better, whoever says it clearly knows it's untrue and just says it for shock value. Someone who looks different is probably quite aware of the fact that they do, and there's not much need to point it out rudely. In my opinion, you don't look much like a demon or ghost. More like a kind of fairy.

[@michaelwalley2115]

specific mutation in SLC24A5, called A111T, is found in virtually everyone of European ancestry( (Asians) A111T denotes albimi

[@jayrhodes3766]

Talking about cataracts, ive had them since birth! A few in each eye I think (I don’t remember)

[@UnsightlyOpinions]

I'm not sure how many I have either but I know that I have at least one in each eye too. :)

[@PinkLilyGarden]

You’re the coolest living Targaryen 🔥

[@allenbarrow4904]

Thank you for sharing your experiences with the world at large. This maybe a foolish questions, you be the judge. Have you did lab tests to find what nutritional defiencies at the cellular level?? You have been offered an EEG ( brain scan ) to monitor brain activity of the eyes during movement or rest? Have you increase or lower the Zinc levels towards your eyes or Optic Nerves? Do some research with a Neuro Optimologists to find more answers if it help. They specialize these matters. I hope I did help, thank you for listening

[@Ashish-oq8pg]

Thanks.

[@davidguymon1673]

I also have optic nerve hypoplasia.

[@lifeisbeautiful1575]

You are angel ♥ Most beautiful

[@mohdsalihakaseaman7191]

Yeah you are an Angel I love you😘

[@roul4842]

Very interesting.

[@UnsightlyOpinions]

I’m glad you found it informative! :)

[@benhurn8277]

I would only add that you can try mating with an albino-or someone who may carry the gene, and if you also carry the gene, it is possible to produce an albino child, but wanting to do that would just be so wrong. Brilliant young lady. Thank you, dear!

[@jaassil]

Yes. Your left eye is “looking for” your nose. But is really mild.

[@jamesdoran2734]

Thank you

[@UnsightlyOpinions]

My pleasure! I’m glad you enjoyed it. :)

[@gyptax]

What happens if you spend time outside without sun protection? Do you sunburn severely? Thank you for making this wonderful presentation. I learned a lot and I really admire what a clear and confident speaker you are.

[@deanblackwell2090]

Yup - I blistered a lot as a kid - We were a bit clueless back then about sun protection

[@gyptax]

@@deanblackwell2090 Thank you for sharing!

[@davidpumpkinsjr.5108]

If someone asks if you have superpowers, say "Let's see... (wave your fingers in a strange manner) I guess not, you're still here."

[@user-mh1so2sm3u]

The National Association for Albinism and Hypopigmentation actually says that parents whom daughter that is diagmosed with OA it's extremely uncommon because the gene for OA is on the x chromsome which means that OA is called x-linked OA. Which mean only woman carry the gene for it. The only way a daughter can have OA is if her father has and her mother has a copy of the x chromsone .

[@davidguymon1673]

us with congenital cataracts also don't have depth perception either. I don't have any depth perception due to my left eye veering off to the left.

[@v262]

You re pretty ❤❤

[@jamaldinosaur8815]

Nice videos! Hope you make more 😄 Also do u have an IG??

[@jamaldinosaur8815]

Oops sorry i saw it in ur description

[@UnsightlyOpinions]

More to come! Glad you enjoyed.

[@HainiDjokovic1995]

@@UnsightlyOpinions are you Daenerys Stormborn? Haha

[@magician2242]

Great video, I am 23 and have OCA, I live in Canada

[@UnsightlyOpinions]

Glad to know another Canadian (besides myself) with OCA!

[@magician2242]

Unsightly Opinions if you haven’t already, set up a RDSP for yourself. Great way to save for retirement. What province do you live in? I am in ON, city called Thunder Bay

[@UnsightlyOpinions]

I’m out west. I’ve had one for quite a while. Good advice :)

[@kashanalikhan2121]

I'm albino as well

[@annettebonteri3234]

You should totally do a youtube channel! It doesn't even gotta be about albinism, but im just saying its always good to have representation on all kinds of platforms to inform people of who you are and normalize people with different features :). If I had a youtube channel I'd totally wanna do paranormal videos or anime reviews, but alas I am too shy to do that UwU

[@kashanalikhan2121]

@@annettebonteri3234 yup

[@soundcollections1020]

What happens when a normal melanin man marries an albino woman? What could be the outcome of their children?

[@UnsightlyOpinions]

There is a chance they may have an albino child. Albinism is recessive meaning that one copy of the changed gene must be inherited from each parent. Many people are carriers of the gene and never know or show albinism in their family. If the pigmented individual is not a carrier there will no or very little chance of an albino child. There is some slight differences for ocular albinism because that gene is x linked so it will depend on whether the child is male or female.

[@bananian]

Do you need to stay out of the sun or do any special preparation before going out or you just live your life normally?

[@UnsightlyOpinions]

I need to be very careful because I sunburn very easily. So either long pants/sleeves and a hat or high spf sunscreen. Other than that my life is pretty normal.

[@chichishigaraki8943]

Umm this question might sound like mocking and inappropriate but I am just curious Can albinism also affect the genitilia's color

[@haroldjr1969]

You are beautiful

[@andrewayne225]

U look really beautiful as an albino. I actually have a drawing of a character who has albanism.

[@AppleCore360]

I'm uneducated about this, so maybe this is a silly question. About the eyes, could color lenses help with the intake of light?

[@UnsightlyOpinions]

Not a silly question at all. I could wear tinted contacts but I found they were very expensive and irritated my eyes. It wouldn’t help my vision at all because the problem is with my retina and optic nerve not how the light comes in.

[@AppleCore360]

@@UnsightlyOpinions so nice of you to answer! Thank you :)

[@bronsondeliac2625]

Great video. I have severe vitiligo & am approximately 70% depigmented. I had always thought that vitiligo was a form of albinism, but technically its not. Although in practical terms its very similar. Unfortunately, it's on my face & head & it's turning my hair white 😄😩

[@UnsightlyOpinions]

Thanks! I have had a long journey learning to love myself as I am and for the way I look. One day I’m sure you will love your white hair. It’s such a unique colour most people spend thousands to (not quite) achieve. 💜

[@carltonclark5194]

she is beautiful to me

[@orcaslug]

Humans are not rodents? Breaking news right there!

[@aniruddhajathar705]

Hi I like your video

[@orcaslug]

Wait some people really ask if you can catch albinism?!

[@UnsightlyOpinions]

You wouldn’t believe the things I have heard. Lol

[@kevinjones2145]

I have achromatopsia an my acquit is bat 20!/180. Would you share with us your acuity?

[@UnsightlyOpinions]

When I was younger I was around 20/400 but my vision deteriorated and they haven’t given me a number in years it’s somewhere worse than 20/1000

[@larico2700]

Damn

[@parwanamohammadi590]

Hi i have a question i have a little spot i my stomach and it is vary vary light then my oder skin my eye site is ok but i do get effective when i see the light dose it mean something about albinism or vitiligo

[@UnsightlyOpinions]

Hi there! Both vitiligo and albinism are very different conditions and affect people in different ways. I would suggest talking to your doctor about it if you are concerned! :) Wishing you good health.

[@parwanamohammadi590]

Unsightly Opinions thanks, my family will take me the doctor i will tell you what the doctor will say :)

[@Ariba-oc3ci]

How to draw eyebrow through liner or brown pencil ? On daily basis

[@UnsightlyOpinions]

I don’t typically use a brown pencil on my eyebrows, but the way I do it with a white pencil is I start at the centre and using short motions work my way to the outside and then comb it through with a spoolie

[@rachelelgavi5194]

How do you keep your hair so white? My daughter is albino and her hair turns yellow (not the roots, just the length) and she is frustrated with it.

[@UnsightlyOpinions]

One thing you can try is a purple conditioner or shampoo. Not for every wash, but once a week for maintenance of bright white hair. The other thing I find yellows our hair is shampoos with additives and colours in the shampoo and conditioner. Look for one that’s white or as uncoloured as possible. I have no proof of this, but sulphite free shampoos seem to yellow hair less at least for me!

[@9730108876]

Love from albino in India.

[@UnsightlyOpinions]

Always happy to meet a fellow person with albinism. :)

[@martinacarey8045]

My son was born with albinism i am afraid for thecstigma he may face . How did you handle it and how was it introduced to u by ur parents

[@UnsightlyOpinions]

I completely understand your fear and apprehension. Know that your son is capable of anything he puts his mind to. I likely learned of my albumism at the same time as my parents, because I was diagnosed very late. I think I started asking questions about why I was needing to do things different than other children (sunscreen, large print, braille, aide, O&M, etc.), and that is when my parents explained about albinism to me. While your son may experience some discrimination or stigma associated with albinism, the world is a much friendlier place now than it was 20 some odd years ago. If and when something comes up, be his advocate, and support him and his needs. Hug him, tell him your on his side, and doing everything you can to help him succeed and while it won’t help prevent any problems from coming up, it’ll let him know he can come to you with problems and you will always be there when he needs you most. That’s the best advice I can give. Good luck 💜

[@user-or4ud6ow9w]

I thought the most severe kind was the one that also has a neurologic disorder linked to it

[@UnsightlyOpinions]

You are correct. There are two kinds of albinism which have other complications associated with them - notably Hermansky-Pudlak Syndrome and Chediak-Higashi. However, I was referring to lack of pigmentation. People with the more complex forms of albinism like HPS or CH usually have more pigment than OCA1A

[@user-or4ud6ow9w]

@@UnsightlyOpinions thank you so much

[@UnsightlyOpinions]

@@user-or4ud6ow9w My pleasure! I’m impressed most people have never heard of the neurological or blood issues that some folks with albinism have.

[@globalwellwisher]

i like Oca type 1a Albinism Albinos looks like Angels i do love all the with having oca1a albinism type Albinism looks Angels and Mythical legendary legends i love oca1a albinism,s Pure White skin colour and White hair and cool types of eye colour And Very good content.