Angelman Syndrome - What is it? - ASSERT

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AngelmanUK

AngelmanUK

Күн бұрын

Пікірлер: 63
@yahya4370
@yahya4370 6 жыл бұрын
I was blessed to work with a high schooler with Angelman syndrome; that experience was immeasurable joy.
@exolprincess
@exolprincess 6 жыл бұрын
Yakima Ellison I currently work with a girl who has Angelmen Syndrome and it certainly is a blessing. She is one of the sweetest things ever!
@elijahvincent985
@elijahvincent985 2 жыл бұрын
Being a highly-functional autistic man, I used to have special needs classes. In some of these classes, I studied with a girl, (whose name will be kept private) now a woman, who has Angelman syndrome. Every time, I walked into the classroom when she was there, her face just lit up beaming a big smile when she saw me, occasionally followed by an excited giggle. Her precious smile helped me get through some tough days back then. It was a little saddening to know she'll never walk or talk, but what gave me peace is knowing the eternal state of happiness she is always in. Could you imagine how beautiful it must be to not ever know of the world's problems or to not ever know what sadness is? I wish not the condition on anybody, but instead, the infectious and wonderful level of joy that sweet girl feels. Sometimes, being a special needs individual does not mean having a disability, but rather, a different ability. In this awesome girl's case, her ability continues to make others, including myself, smile and be optimistic. One of my favorite things she would often do is hold my hand after I greet her. I know the condition was named after a Doctor, but to my view, they're literally Angels on Earth, shining with the rare ability to spread total positivity. I haven't seen her since I graduated High school in 2015, but I'm still in touch with some of the students and staff who went where I went and those closest to her say she's continuing to make others happy, nearing 25 years of age.
@jessicareid7613
@jessicareid7613 2 жыл бұрын
This was incredibly touching and sweet to read. Thank you for sharing your experiences
@otmama2
@otmama2 2 жыл бұрын
What a beautiful tribute you have given her here. Bless you
@leeanngarney5081
@leeanngarney5081 2 жыл бұрын
Thank you. I needed to hear these words today. A beautiful soul I know lost her fight with AS 3 days ago😢 these words brought some much needed comfort to a grieving heart. Thank you.🙏
@suzukik1941
@suzukik1941 4 жыл бұрын
I wish these were the videos that get millions of views. An absolutely wonderful and important video. Thank you so much for creating it
@MarkHowardSellSykes
@MarkHowardSellSykes 7 жыл бұрын
My nephew has just been diagnosed with AS. This is a lovely film. Thank you.
@angelmanuk7239
@angelmanuk7239 7 жыл бұрын
We have created (and are still making) more films in this series to try and offer lots of details about Angelman Syndrome. Hopefully these will be useful for you and your family - take a look at our channel for them all. Also, ASSERT (www.angelmanuk.org) help lots of families with a new diagnosis, please do get in touch if you want to discuss the details of your nephew. Perhaps we will get to meet you and your nephew at the one local events for International Angelman Syndrome Day (IAD)!! Thanks for the support Mark!
@t-alimichael3363
@t-alimichael3363 Жыл бұрын
Wish my Medical prof break it down as simple as you little one. The always happy syndrome. Thanks for sharing!
@chadimifatimaez_zahra8957
@chadimifatimaez_zahra8957 3 жыл бұрын
The happiness u can feel while ur watching them smile
@Handycan-x8m
@Handycan-x8m 3 жыл бұрын
When I was in second grade there was this little girl that was in My class that has this condition she was the most sweet and innocent person I course I didn't understand it at the time but I remember playing with toys with her and It always made me so happy to be around her God bless these sweet souls
@MargauxVanham
@MargauxVanham 2 жыл бұрын
My 18 months old just been diagnosed. He is already capable of so many thing we don’t believe in limitation. Watch world! 💙😁
@aimeefrosland5708
@aimeefrosland5708 4 жыл бұрын
I have heard of angel man's syndrome but I didn't know what it was! Thanks for this for education me!
@louisaradice4439
@louisaradice4439 6 жыл бұрын
"Effect" is the noun, "affect" is the verb.
@Archemetics
@Archemetics 4 жыл бұрын
My nephew has angelman syndrome but he always smiles, he's about 8 and I wouldn't let anything happen to him
@mjh1623
@mjh1623 4 жыл бұрын
I’ll come round and throw it down the stairs
@Archemetics
@Archemetics 4 жыл бұрын
@@mjh1623 Damn bro, what a comedian 😐
@mjh1623
@mjh1623 4 жыл бұрын
@@Archemetics ur nephews a comedian
@Archemetics
@Archemetics 4 жыл бұрын
@@mjh1623 real funny bro 😐
@chelanthompson2172
@chelanthompson2172 4 жыл бұрын
@@Archemetics dudes a weirdo
@kittykitkat4968
@kittykitkat4968 2 жыл бұрын
They are full of smile, how amazing
@sneham3861
@sneham3861 6 жыл бұрын
Great piece of knowledge
@r.e.dbeefs6855
@r.e.dbeefs6855 4 жыл бұрын
My dinner lady at school has it her name is jill please pray for her
@Angie_299
@Angie_299 4 жыл бұрын
If you give anybody with this condition depression you pretty much killed the person
@KarasevaIra
@KarasevaIra 3 жыл бұрын
Amazing video!
@ASMR_Orangely
@ASMR_Orangely 3 жыл бұрын
*THE NAME OF THIS SYNDROME IS BEAUTIFUL THO, “ANGELMAN”.*
@misswannadie1316
@misswannadie1316 4 жыл бұрын
My fiancee daughter has angelman syndrome she's 1 and a half ❤️ very sweet baby
@elizabethwilliams9108
@elizabethwilliams9108 4 жыл бұрын
That's so sad to hear you are still suffering from this same situation. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation, He can also help cure yours permanently
@shouqalesaei4971
@shouqalesaei4971 3 жыл бұрын
My sister has angelman syndrome too, I’m sending all my prayers 💗
@shouqalesaei4971
@shouqalesaei4971 3 жыл бұрын
@@elizabethwilliams9108 my sister has angelman syndrome shes 11 years old now, there is no cure
@dozni0563
@dozni0563 3 жыл бұрын
@@shouqalesaei4971 I guess i'm kinda late but this is the second video i saw your comment on so i figured i'd respond. I have the same situation and my younger sister is turning 15 in a month. I wish the best of luck to you and your family in this journey that we were forced upon.
@alexsandraalves8705
@alexsandraalves8705 2 жыл бұрын
Meu filho descobri agora ele 4 anos o mais difícil é controle do corpo.
@lemerlemet9481
@lemerlemet9481 3 жыл бұрын
My uncle was diognosed with as when he was maybe under 10 he is now 22 and he is currently right under me because I’m up stairs 😅 wonderful video
@SpookyBabe0229
@SpookyBabe0229 3 жыл бұрын
What app is used to communicate on the tablet? Do they need special software?
@ginacable5376
@ginacable5376 7 жыл бұрын
where does the name come from?
@angelmanuk7239
@angelmanuk7239 7 жыл бұрын
Hi Gina, The name formed because Harry Angelman (13 August 1915 - 8 August 1996) was a British consultant paediatrician who identified Angelman Syndrome. Thanks for your question!
@ginacable5376
@ginacable5376 7 жыл бұрын
ASSERT UK thank you very much for answering me.
@ameladanovic898
@ameladanovic898 5 жыл бұрын
I thought it also had something to do with the handflapping. My two kids have autism but the more I find out about this syndrome the more I think my younger son was wrongly diagnosed as he is a very very happy child, he sleeps very little we've had nights where he would sleep less than 30 mins and be up and hyper as ever where as our older boy sleeps fine (well as good as can expected when the little brother is up and about)
@chelanthompson2172
@chelanthompson2172 4 жыл бұрын
@@ameladanovic898 I don’t have any kids but I imagine having two autistic kids, while lovely and enjoyable, could be a lil hard. Hope all’s well with your fam
@pinkmarshmallow666
@pinkmarshmallow666 4 жыл бұрын
What causes the happiness?
@b1gblqqdybamboompresident676
@b1gblqqdybamboompresident676 3 жыл бұрын
😀😃😄😁😆😅🤣😂😉
@ChristmasSpirit606
@ChristmasSpirit606 3 жыл бұрын
if this could be balanced with depression....
@alexsandraalves8705
@alexsandraalves8705 2 жыл бұрын
Infelizmente aqui no Brasil não achei ainda pessoas ou locais que saibam lidar com angelman , tudo que ouço é impossível mais se há melhora já é um possível.
@storieswithumi8706
@storieswithumi8706 4 жыл бұрын
They are angels that's why they have angelman syndrome.
@shelleyrightmyer6421
@shelleyrightmyer6421 2 жыл бұрын
ilove you somuch miss ❤
@Ike-Mi
@Ike-Mi 5 ай бұрын
i have angelman syndrome. im like a angel. i dont talk nomore, i have trouble walking because im flexing and bad posture. and i think the cause is the cvnt 24 gene
@Angel3es
@Angel3es 3 жыл бұрын
What happens to them after there parents die ?
@Green8628
@Green8628 3 жыл бұрын
It is a worry I have everyday. My son has autism and doesn’t speak. They’re not the same but very similar. I just hope my other children will take care of him when I’m no longer here.
@simonedinizmaldonado
@simonedinizmaldonado 5 жыл бұрын
Legendas!!!
@lisalamb8130
@lisalamb8130 2 жыл бұрын
I have Prader Will syndrome it’s the opposite. It is also on the 15 chromosome. I’m am the daughter of Lisa
@marionma1272
@marionma1272 7 жыл бұрын
Hi, your video is really interesting. I'd like to translate it to share it with french people. Do you agree? For now, the video isn't open to subtitle. Thank you very much :-)
@angelmanuk7239
@angelmanuk7239 7 жыл бұрын
Hello Marion, We'd love to be able to share this film with more people around the world. Please email the filmmakers about this at speak@seespeakhear.com Thanks!
@no-gs7uz
@no-gs7uz 4 жыл бұрын
I named my chanel after a syndrome- I-
@lemerlemet9481
@lemerlemet9481 3 жыл бұрын
Did you know it was a syndrome?
@code988yay
@code988yay 4 жыл бұрын
Ooo british people
@elizabethwilliams9108
@elizabethwilliams9108 4 жыл бұрын
That's so sad to hear you are still suffering from this same situation. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation, He can also help cure yours permanently
@davereid2246
@davereid2246 3 жыл бұрын
@@elizabethwilliams9108 Please stick to your podcasts and stop posting this nonsense about a cure.
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