Ankylosing spondylitis - Flare up diary Part 1

[@AnkylosingSpondylitisMan]

Please feel free to subscribe youtube.com/@ankylosingspondylitisman?si=BgIS1_0-eZb9RJQO?sub_confirmation=1

[@tenminutetokyo2643]

Also I wanted to mention for headaches I keep several wet washcloths in the 'fridge. When you get a headache, lay down in a dark room and put one of the cloths on your eyes. When the coldness wears off, get another one and repeat. I found I could make the headaches go away in 30 mins that way.

[@OfTheAstro]

Thanks for sharing this! The pain and discomfort you describe is all too familiar to me. It’s difficult to convey to others unless you’ve gone through it. The feelings of complete frustration and desperation that go along with it takes such a toll on ones mental health, especially without proper support.

[@AnkylosingSpondylitisMan]

Totally agree. It's tough so much of the time. I have family around me that help with support, so I'm lucky in that respect. Thanks for your comment, appreciated.

[@kimberlypuravida5690]

Thank you so much. I am in a major flare right now and the pain and despair is so high.

[@Trailrunner1978]

I have Ankylosing spondylitis. Very helpful video. Its very similiar to my flair ups. It very much helps too see that I am not alone. The flair ups are the worst part of this disease for me. Stay strong mate! 👍

[@AnkylosingSpondylitisMan]

Thanks, I know what you mean knowing there are others in our same situation. It kind of validates everything we go through.

[@terjibeder6871]

Thank you for your videos. Hope you'll recover soon from your flare. It's horrible each and every time.

[@AnkylosingSpondylitisMan]

Thank you

[@tenminutetokyo2643]

I found they were related to food - eating carbs or sugars the day before. I found if I ate nothing but green vegetables for 4+ days, it caused a massive improvement. Interrupting established sleep paterns also seems to cause it.

[@annap1191]

Thanks for sharing your story. Did you get diagnosed via blood test?

[@AnkylosingSpondylitisMan]

Hi, sorry for the delay in replying. I was diagnosed with a combination of blood tests (for inflammation markers & HLA-B27 gene), MRI scans, x-ray and there may have been a CT scan in amongst it, I can't remember specifically though.

[@annap1191]

You mentioned the deep massager. What brand is it?

[@AnkylosingSpondylitisMan]

I have two now - the hand held massager is by renpho, and the deep massager is by MaxKare

[@Dime.Society]

Hey, funny how things work, I have this same condition. I HAD Lyme an it morphed into rheumatoid arthritis. My first flare up was brought on by drinking red wine. My spine hurt so bad I thought my body was gonna break in half, sort of flu type symptoms leading up to it. The only thing I can do is sleep it off. I changed my diet, no meat, I only focus 🧘‍♀️ on me. Xoxo 😘

[@AnkylosingSpondylitisMan]

Sorry to hear that. Flare ups are the worst, but recognising triggers is a big part to avoid bringing them on. It's great that you have found a good diet, and you're looking after yourself 🙂

[@tenminutetokyo2643]

I found eliminating all carbs + sugars helped a lot.

[@katyevans4097]

Currently waiting for a blood test to come back, I was diagnosed with fibromyalgia a couple of years back. I seemed to get covid and have never been right s since , it’s really got so bad in the last 6 months. Started off in my neck then all my upper back/spine hands and feet . Also migraines too , on top of ulcerative colitis obviously this has an awful effect on my mental health, but I manage things pretty well now, especially after quitting smoking a few months ago. Best thing I ever did, now I feel more in control. When I watched your video it’s just like watching myself, and listening to you is very similar. My dad also had ankylosing spondylitis, but he died when I was young. I know this disease is hereditary:-( … sometimes I find I can only relate to people who are going through the same. Best wishes, Kate x

[@nihilism3]

Please make indonesia sobtitle

[@AnkylosingSpondylitisMan]

I've added subtitles for you :-)

[@elysseandsebbie8667]

hello pappa