Antiphospholipid Syndrome (APS) Case Files (Gut, Tinnitus, and Migraine) - Prof Graham Hughes

[@caribooryan7996]

I don't think Covid had anything to do with mine, I was diagnosed with APS last year after having symptoms of what I thought was clotting for years, I was just too young and fit to meet the criteria to be tested but I had problems none the less. I suffered a lot but I'm still alive and thankful! I survived clotting in my lungs, blocked arteries in my legs plus some terrible frostbite on my one foot. I stopped smoking, drinking, eating too much. My ears are always ringing, I usually cant feel my legs and my endurance is terrible, I would do anything to have normal again. Please save me Warfarin!

[@PsychiatrySimplified]

Thank you for sharing your personal experience 🙏

[@jeffery9448]

They're very similar... Antibodies are the same... DR Jason Knight out of the university of Michigan lab studies on C-19 and APS it's very interesting

[@jeffery9448]

BTW I've had the APSLA FOR eleven years

[@Wildewhitley]

I've had APS all my life, started with DVT at 9 years old, pulmonary embolisms by 16 and so on for 34 years, was on wafrin for 25 years. Eliquis is the way to go for long-term care ❤. But I learned it's all coming from food!! A long-term exposure to foods I'm sensitive to. So I went organic and cut red meat, gluten, dairy, nightshade vegetables, and caffeine! I have seen more progress in all areas of my health since!! It's food! You're immune system picks up on pesticide & herbicide treated foods, which is almost all foods these days!!!

[@jeffery9448]

@@Wildewhitley I believe your right... I just recently met a doctor who told me to get off warfarin using diet and I'm gonna go that way too

[@draghynmystress]

My boyfriend is writing this for me. I am a 48 year old female I am diagnosed with APS and Lupus SLE. I am literally in a hospital room right now with high blood pressure and the room is spinning and it has been spinning since Monday (it is Wednesday evening). I have a severe headache too. They did try a blood pressure medication, I responded to the blood pressure medication for a short period of time and I got relief. All my symptoms stopped. However it wore off and they do not want to give more because my blood pressure dropped too low a few times. They have done heart tests, brain scans, etc. No answers and nobody wants to listen to me that it is the APS. I just got a blood pressure reading of 143/102. P. S. I have had multiple early stage pregnancy miscarriages in my 20's. Several people in my family are diagnosed with APS, and some are diagnosed with Lupus SLE.

[@rachelnemeth9576]

I've recently developed small numbers of petechiae appearing on my face (1-4 per day, more if I am doing strenuous exercise). Because of this, my doctor sent me for lab work which indicates APS. It will be 3 months to 1 year before I can be seen by a Rheumatologist. I have no history of blood clots. I wonder if the petechiae is a result of APS? I'm also concerned about imminent stroke because my grandmother had a massive stroke that incapacitated her for more than 2 years before she passed away.

[@PsychiatrySimplified]

There are several skin manifestations of APS with petechial rash, livedo, purpura as some of them. Thrombocytopenia can result in easy bruising and petechial rash as well. One can also see a haematologist with expertise in this condition. Hope this helps. We have a series of other videos on APS on our channel. You may find them useful. psychscenehub.com/video/neuropsychiatric-manifestations-in-aps-by-prof-graham-hughes/

[@redamohamed1293]

APS had a myriad of manifestations, and clinicians should be aware of this chameleon disease.

[@PsychiatrySimplified]

Yes absolutely.

[@vettriley675]

I have been taking Vitamin E Baby Aspirin and support socks, my legs feel so much better. I work 1Ohrs on my feet 4 days a week.

[@greyhaircrafter]

Very interesting! I was diagnosed APS 12 years ago. I had thyroid removed due to cancer 2 years ago. My dad has dvt, Ménière’s disease, my brother has celiac disease and my mom and I both have migraines. Could this all be related?

[@PsychiatrySimplified]

It's not uncommon to hear similar history in individuals with Autoimmune conditions as family members tend to have related but different issues often.

[@vettriley675]

Wondering what specialist should I see. I was diagnosed years ago., After 4 miscarriages, 16wks,20wks and 25 wks preterm birth, died 6 months later. My father had tia's but he had a history of drug abuse and grandmother his mom almost died of a blood clott. My symptoms are my legs have always ached as earlier as my 20's at work, support hose help somewhat, no migraines , no tinnitus , went for doppler studies nothing found but nothing else. Standing in place to wash dishes and standing in place in general my legs ache.I am going to try baby aspirin and vitamin E. No sure what else?

[@PsychiatrySimplified]

It would be good to speak to a general practitioner /family physician first to carry out an assessment - they can then make the appropriate referral based on the examination. Wish you well.

[@khanjadoon4740]

I recently got diagnosed with APS and lost eyesight from my left eye due to the clot but I lost half of my eyesoght from my left eye not full, now i am taking pills like Xcept vita-6 and loprin I want to ask what else should I follow?

[@PsychiatrySimplified]

Sorry to hear. APS can affect multiple systems and hence it is important that a physician coordinates all treatment. All treatments should be individualised.

[@brianengelson8020]

This is what happens when get a flu shot every year.