Ask Dr. Yo: PPPD or MdDS- which one do I have? (and why it matters)

In this video, I explain how to identify which of these two chronic dizziness disorders (PPPD or MdDS) you have- and why it matters.
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My medical tests were normal, why am I still dizzy?
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First steps to take when you have chronic dizziness:
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How to treat your own PPPD/MdDS/chronic dizziness:
• How to treat your own ... DISCLAIMER: Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk.

[@KiaBear27]

Thank you for sharing this. I'm one of those people who has an overlap of symptoms from both conditions. My symptoms came on spontaneously 3 weeks after a traumatic event. I was told by my Vestibular therapist that my symptoms matched PPPD. But I kept hearing that the key difference between PPPD and MDDS is that you feel better when in motion if you have MDDS. So my symptoms matched up with PPPD but I also felt better when I was in motion. I kind of became a little obsessed with finding the exact right diagnosis, and had to let that go. In the end, the key to my recovery was doing VRT, CBT, managing my anxiety through meditation, and building back up to doing the things I was doing before. All of these things had to be done at the same time for me to recover. These days I do have flair ups every so often, but for the most part I'm 95% functional with little to no background dizziness.

[@TheSteadyCoach]

That is great, Kia! I am so glad to hear of your progress!

[@k.baller5140]

You give me some hope because medical doctors don't know anything about this... I hope it is just anxiety causing all this after my panic attack... It's like my neuro nerves are in hypertension panic mode and won't calm down... You said to eliminate stress but the stress is my dizziness... It's like chasing your own tail and you're stuck in a vicious cycle... I want to be normal again 😔 everyday is a struggle

[@TheSteadyCoach]

K., I know the dizziness is a huge source of stress, but in my experience, it’s not the real/underlying source of stress. Sometimes it is almost like the brain uses dizziness as a distraction from stress or trauma that is too painful or difficult to deal with. However helping stop the fear response to the dizziness is a huge part of getting better. Please try somatic tracking and see how that feels (Brain exercises playlist)

[@k.baller5140]

@@TheSteadyCoach I also get night sweats every night... Drenched... Keep waking up... Also I started getting this fluttering helicopter propeller sound in my left ear when it's quiet; it I cup my hands to the ear, I can hear it more clearly 😭😭😭 This is all anxiety disorder?!

[@TheSteadyCoach]

@@k.baller5140 have you ever had butterflies in your stomach when you are nervous? Emotions manifest in our bodies ALL the time. They just sometimes take on more extreme forms. Take a look back at the last year and see if you can figure out what kinds of stress you may have been under. Then make a list going back for several years. See if it starts to make more sense why your body is expressing emotions this way.

[@Theactualcurrentsea]

Wow, This is so relieving. I’ve been going nuts trying to figure out why being in movement makes me feel better. The second I’m sitting, laying, or standing still, I have instant vertigo. This first started in elevators, when I’d get off a short trip, I’d feel like I’d keep riding an elevator for hours. Even after a two story climb. I’ve resulted to self medicating with Benadryl, over the counter anxiety meds. I had gone weeks with no sleep, I was close to loosing a job where I was easily supporting my family, I was having terrible panic attacks every night when I’d finally fall asleep, I’d wake up heart pounding minutes later, spinning and completely disoriented. Just knowing I’m not alone, helps so so much.

[@TheSteadyCoach]

It is so common to have this particular pattern to symptoms! Assuming your medical tests are clear, this does not mean you have a rare neurological disorder with no cure. It means your brain is in danger mode.

[@Theactualcurrentsea]

@@TheSteadyCoach - First off, thank you for the time, it’s a rarity these days. So if it’s in danger mode, are all these symptoms a precursor to a bigger problem? It is slightly getting better with stretches, but I still wake up, at least, a few times each night and I’ll be in complete “Fight or flight” mode. I get up, put my arms as high as I can, and stretch till I catch my breath. So similar to your video here, I thought I was just having bouts of PTSD and panic attacks, really gas lighting myself. I still can’t convince myself that this isn’t all in my head… Not sure what I’m getting at here, it’s just tiring. Some days the fight does seem insurmountable, so I have to reach down deep to pull that motivation… Thank you for videos like these, they do help people and bring some solace to those of us that feel like we are loosing our minds. Well, maybe we are, a little, but that’s what makes us different than the status quo.

[@yendryrojas]

@@Theactualcurrentsea Hi! How are you ?

[@e.k8251]

Hi! I have the same problems here tot over 4 years! Do you still go on airplanes?

[@rohitchavan8061]

It's very Terrible to live life with it and complete ur responsibility towards life....what should I do to get relief friends...

[@sammiller2617]

Excellent clear explanation. I am currently working with Yonit as am making fantastic progress. I cannot recommend her enough. Her advice is spot on! Watch her videos again and again and really understand the root of this and you WILL recover. It’s not a comfortable or easy process at times but trust her!

[@TheSteadyCoach]

❤️❤️❤️❤️ so much love to you!

[@Lisaromo23]

Thank you so much! I’ve had MDDS after a cruise in 2019. It was very difficult for me and not much hope until I found your channel. Just by someone validating that this is real and there is a cause and solution makes me feel so much better. I will continue to utilize your videos. Thanks again!

[@TheSteadyCoach]

You're welcome, Lisa! There is hope!

[@MrELogo]

Hi Lisa, same thing with me. Been suffering from MdDs since 2010 after a cruise as well. My symptoms don't go away for months at a time, then just magically stops. But I know it won't be long until I feel I'm right back on that ship again. Working in the IT industry, it's hard to do simple tasks that I would otherwise easily do and having to sit in a seat for a 12hour shift makes things worse. It's so debilitating 😓 I try to avoid bus rides, elevators and even playgrounds where my kids can enjoy themselves. Here in South Africa, I'm yet to even find a doctor that can diagnose and treat this. I hope you find some relief soon.

[@Lisaromo23]

So sorry you have this too. I also deal with occipital issues that contribute to this too. These videos help me not feel so alone. I just keep working on my stress level and push through. It’s the only thing we can do. Hope you fine stillness soon! 🩷

[@velsieguevarra7355]

Thank you dr yonit now i understand whats happening to me..i have overlapping symptoms of pppd and mdds..i observe the symptoms of mdds after my Total hysterectomy surgery year 2016 ..and at the same time my personal relationship is not in good shape...there was a Time i have no symptoms for a year... after the pandemic my symptoms got worse its already overlapping pppd and mdds...im happy that i saw your channel few days ago..now i have high hope to recover..im still watching and listening to your videos understanding everything and how to do the exercises.. May God bless you 🙏.. you're a big help...im from Philippines..

[@TheSteadyCoach]

You're very welcome, Velsie! You are in good company on this channel!

[@MJ-zh4el]

I'm dealing with MdDS for the second time. 43 y/o female. The first event was about 2 years ago and went away relatively quickly. This second event is going on three weeks, after international travel. I'm very scared, but I'm grateful for your channel. I've contacted my primary care physician and I'm waiting for a referral. 🙏

[@TheSteadyCoach]

Very sorry you're going through this. I'm glad you're finding the channel helpful!

[@wildfrontiergoods]

This is interesting. I have been diagnosed with MD and pppd. I always feel much better when I ride my bike or am in constant motion. The problem is stillness. Standing still in a line or something like that is when my symptoms can be worse. Usually if I have to stand still I tend to rock side to side or purposely move around to feel better

[@TheSteadyCoach]

Yes, this is quite common with feeling better with movement. I discuss more about this in this video kzbin.info/www/bejne/bJ6zfJyFlpyJh5osi=Ra830dQprD0MIYvy

[@rle440]

I absolutely believe everything that you say about both of these “conditions” being neural circuit dizziness because I deal with both symptoms at different times. Most typically it’s PPPD for me but sometimes randomly it will be MDDS symptoms. Thank you for all of the help with your videos.

[@TheSteadyCoach]

Yes!! Thank you for sharing that, because that's been my experience with the great majority of my clients.

[@rle440]

@@TheSteadyCoach I have a quick question. In your experience how often is nausea a part of these conditions? All of the symptoms are tough but I still manage to function throughout the day, but the nausea (motion sickness feeling) is the one that is most difficult for me and can interfere with things the most. I don’t get it all of the time with the dizziness but frequently. Thanks!

[@TheSteadyCoach]

Not super common but definitely occurs for some folks. I have found somatic tracking works really really well for it. Self hypnosis does too. Search KZbin for self hypnosis for nausea and let me know what seems to work best!

[@rle440]

@@TheSteadyCoach thank you !

[@yendryrojas]

@@rle440 Hi! How are you??

[@staceypizzey1219]

I have had MdDS since June 12, 2024 when I got off the ship. Just found your videos lately while searching for help. We had one night, our first night at sea where it was very rocky (even cruise staff were sick the next morning)I woke up very sick. Fortunately I had a patch and put it on and went back to bed. Felt fine after that. Before going on cruise I was terrified that I would get sea sick. So I guess I brought this on myself. Been doing the exercises with the moving lines. It's better but not completely better. Will I have this slight feeling forever?

[@kevsan4850]

I actually got diagnosed with Vestibular Migraine. Dizziness that’s constant, which is leg heavy and imbalanced dizziness, and headaches that come and go are part of VM diagnosis. And now that I remember, back in February, I had vertigo which was then follow by a terrible headache. And then from then on, I only had vertigo for a few minutes and life was pretty much normal up until the end of June, in which was constant bouncing, and body moving with bad headaches. My neurologist prescribed me with Divalproex and B2. I’m going to do my own VRT as well and hopefully I feel better. What’s weird too is that when I run, I don’t feel the bouncing. So strange.

[@TheSteadyCoach]

Hi Kev, the not feeling the bouncing when running is a sure sign of neural circuit dizziness. Stay tuned, I have another video coming out soon about a patient of mine who had a vestibular migraine diagnosis. I’ll be talking about VM more in future videos.

[@kevsan4850]

@@TheSteadyCoach Can symptoms overlap like MdDS and PPPD, just like PPPD and VM? I’m only saying this because VM makes more sense to me since I’ve had migraines, ear fullness, tinnitus, and visual disturbances. It makes more sense but I’ll stay tuned!

[@yendryrojas]

@@kevsan4850 Hi! How are you?

[@pratikakarki5]

Hi Dr. Yonit, First of all, Thank You for posting these incredibly helpful videos for people suffering with dizziness (including me). It is almost an year since I first started having symptoms of dizziness. It started for the first time when I was on a long flight (9 hours). I had a severe dizziness on that flight followed by a panic attack as I didn’t know what was happening. That happened on my way back from a holiday, so I thought it was going to go away in few days with enough sleep and rest. Unfortunately, it kept happening. I saw doctors, physiotherapists and balance therapists. Nothing worked until I started watching your videos. I am a lot better now in terms of handling the anxiety and keeping calm (thanks to you and your brain exercises playlist), however, I am yet to be fully recovered. My symptom trigger is mostly related with movements. When I am on a train, when it’s moving it’s fine but as soon as it stops or moves slow I get really dizzy and my brain gets really confused but also if it’s moving too fast then that makes me confused and dizzy. I don’t avoid getting on a train, in fact, sometimes I take trains just to challenge myself to normalise my symptoms. Also, I get dizzy when I am working because I have to constantly look at computers and excel files (I am an accountant). I have managed to disregard the symptoms or accept the symptoms for when I am not on a moving vehicle but for the travel part is still an issue. I just wanted to get your suggestion in terms of what kind of exercises will be best for me and do you think I have PPPD or MDDS? Thank you again for changing lives and helping people to heal. 😊 YOU ARE AMAZING.

[@TheSteadyCoach]

Hi Pratika, you are not alone in what you are feeling. Please see this video as you may find an answer to your question here kzbin.info/www/bejne/oH7JepaPe7mlhJosi=SJ2AHHVIcMHg9xJO

[@angiefoster9179]

I think I have a mix of both. I have symptoms all the time for 3 months straight now. It gives me chronic headaches, can’t sleep ever! I also have ear pain. Idk if that’s normal or not- I feel like I’m going crazy , I can hardly function. I have an MRI next week. I’ve been through VRT therapy w/ no change. I had a hysterectomy in August 2023 and my symptoms came on in February of 2024- I was on vacation in Cancun and was swimming in the ocean. Waves were rough…. Idk if I got a virus in the ocean and got an inner ear infection. I’m really not sure how this started , but I just want it to stop.

[@Kenoqueen]

Hey again pretty lady! I’m glad to see the consistency in your posting of videos 😁 you’re helping so many of us! Merry Christmas to you and your family 🌲 🎅🏼

[@TheSteadyCoach]

☺️☺️ Merry Christmas, Amanda! I've got way more in the pipeline and some really cool new stuff coming in the new year!

[@captainbuggernut9565]

God I developed dizziness after a sinus infection. I find it affects me turning my head. I was sent to ENT and the consultant didn't even look in my ear. I was sent for an MRI still waiting for the result. Sometimes it feels like I'm off my trolley, other days its non existent. I have had a clutch of symptoms which have developed in the last 2 years. I use to cycle 120 miles a week. Now I have pain in my chest, back, arms and legs. Plus dizziness and tinnitus.

[@TheSteadyCoach]

I’m so sorry you’ve gone through this! There is a huge shortage of diagnostic audiologists who do vestibular testing and unfortunately your story is the norm. I hope you get answers soon.

[@majafilipovic1392]

Thanks for this video. I was diagnosed with spontaneous MdDs and this label weighs quite heavily on me - I sometimes wish it was PPPD as I seem to see way more success stories about that. I have wondered about VRT a lot as it seems to help so many people but when I try doing the exercises they all feel so easy to me and don’t trigger me at all (because movement is fine for me) and yet I have severe debilitating symptoms 24/7z

[@TheSteadyCoach]

Please watch my latest one on MdDS!!!! I go into depth on MdDS and how to manage it!

[@majafilipovic1392]

@@TheSteadyCoach i just did thank you!! i definitely relate a lot to what you say in it

[@crystalmiller7447]

I have mdds as well and it changed my life :(

[@yendryrojas]

@@majafilipovic1392 Hi!! How are you ?

[@joannaq659]

YES CAN YOU PLEASE DO VIDEOS ON MDDS vs PPPD ????? Im interested in things to provoke my dizziness.

[@fatmasharky5659]

Been watching your videos today and this one is amazing!!!! I had been wondering if my symptoms were PPPD or Mdds and worrying if treatments were different but now I’m exhilarated to know it doesn’t even matter and the approach is basically the same in essence!! However I think mine is most probably pppd as I had it all start after labyrinthitis and BPPV in May 2021. My symptoms included/includes woozy head feeling when turning my head left and right or up and down and pulling sensation while walking. I get a little pulling sometimes when im sitting but not that much as mostly when im laying down I feel better. Having said all that I just want to say to those reading this comment that i’m doing much better than I did when it first happened,that the good days outnumber the bad ones thank God!! You can get better from this. All the tips given by the amazing steady coach are on point! Thank you, Dr. Yonit!

[@TheSteadyCoach]

Thank you so very much for your kind words, Fatma! And I am even happier to hear you are starting to feel better.

[@fatmasharky5659]

@MaeganMemories I think things started to get better after 3 months, one day I woke up feeling not so bad and that decreased my anxiety and increased my belief that it really could get better. Then, I was hit with bad days again and then good ones and So I started to understand the pattern and that made me less anxious and worried. Just ride the bad days and bad symptoms out and don’t freak out about them, that’s what I still do. I did VRT which really helped as well and have been taking supplements. Vit D, magnesium glycinate , fish oil. Coq10 and vit B complex. Controlling anxiety and mindset is number 1 I would say. Also expose yourself gently to the busy environments and activities, that will re-train your brain. Best of luck!

[@yendryrojas]

@@fatmasharky5659 Hi!! How are you ?

[@fatmasharky5659]

@@yendryrojas doing very well, thank God!

[@Rose-gc8og]

@@fatmasharky5659 May I ask have you had the feeling of walking on a boat ( floor moving ) when walking ?

[@Megan_Jennifer]

I was going to ask you this! I was going to ask if I can treat MDDS with the VRT I’m currently doing? I thought that VRT is also to train the brain to no longer be dizzy from those movements? I have no idea if I have PPPD or MDDS anymore! 😅 movement such as walking and head movements trigger my symptoms BUT... movement from a car or bike makes my symptoms better!! When I’m laying still I feel rocking. (Laying still is the worst for me) I’m SOOO glad you said it doesn’t matter which I have! I love you for that 😂😂 online it says there’s no cure for MDDS!

[@TheSteadyCoach]

I feel like you need to tape a picture of me with the words "It doesn't matter which I have!" on your wall! :D :D :D VRT is just one facet of helping retrain the brain especially when someone has a lot of fear and avoidance of triggers. It can also be really helpful to get you out of fight or flight mode when you're stuck there. But I'd say that when people have many symptoms without any triggers, the emotional parts of the work become more important.

[@Megan_Jennifer]

The Steady Coach ha! I might do that. 😆 yeah... I seem to have a LOT of movement triggers!

[@donaldricher8815]

Hello. I have had constant vertigo for 30 years and driving a car makes me less dizzy. What type of exercises are you doing to get better. I hate living like this.

[@Megan_Jennifer]

@@donaldricher8815 check out my videos! I list what I did :)

[@ardilaja4692]

@@Megan_Jennifer hello megan where can i contact you?

[@cherlgolja5402]

I was exercising and jerked my head to the right and oh boy did I get dizzy I had to sit down to get stable and finished my exercises. Looking up and back get dizzy still and do feel off and laying flat I get dizzy. I force my self to exercise everday ! It slowing getting better ❤️‍🩹 I only see natural path doctors and haven’t decided who to see. LOVE YOU CHANNEL YOUR THE BEST !

[@AJ88874]

My PPPD started with really bad insomnia fueled by anxiety and panic. I started feeling dizzy after not being able to sleep.

[@TheSteadyCoach]

I just spoke to a client who had the same thing. The insomnia makes it very difficult for your brain to function properly.

[@yendryrojas]

@@AJ88874 Hi! How are you ?

[@Rose-gc8og]

@@AJ88874 May I ask have you had the feeling of walking on a boat ( floor moving ) when walking ?

[@endgamep]

Thanks. I have a mix of both. I think i got it from b12 deficency and stress. I feel unbalanced when walking. No problem when sitting or driving car. I think my vision system is compensating from unstable body sensation. Because my symproms get worse with eyes closed. And get better if i look down on my feet when walking.

[@TheSteadyCoach]

I'm sorry you're going through this. It's pretty common that something physical sets it off- once that's resolved though, the symptoms shouldn't keep going.

[@jdyer4596]

I’m in that situation right now they don’t know what’s wrong with me , I’ve started following you Dr and so far I have hope…. I have one question is tremors a part of this journey.

[@TheSteadyCoach]

Can be, definitely have this checked out by a neurologist to make sure there is no medical explanation.

[@user-hz3mm5ww4z]

I have a rocky sensation when I’m walking , especially in grocery stores . But when I am driving my car,I feel good . So does that mean I have a combo of both pppd or mdds ?

[@TheSteadyCoach]

Hi Sindhujit, it is common to feel better when driving. While I am not able to diagnose through a comment, you may find answers to your questions in this video kzbin.info/www/bejne/bJ6zfJyFlpyJh5osi=ppr6aMjK0QelJ1bR

[@user-hz3mm5ww4z]

⁠@@TheSteadyCoachi thought pppd patients have issues while driving . Mdds have not .

[@manikantabadam]

This is exactly me

[@Judi4Him4Ever]

I’m not sure where I fall! My neurologist has temporarily diagnosed me with PPPD and I am seeing a specialist at Stanford in December. I had balance testing done at Stanford and it showed definite vestibular system damage. I should mention that I had an acoustic neuroma removed via craniotomy in 2020. My, disequilibrium began then and has not improved at all. I have yet to find anyone post surgical AN with the level of unsteadiness that I have. I can’t drive. I walk with a cane. I am off kilter 24 seven, like being on the deck of a boat at sea. I would love it if anyone else post AN could weigh in! Your opinion, Doctor, especially is welcome.

[@TheSteadyCoach]

My friend also had a neuroma that was removed. No dizziness. This video explains why you might have it and how this fits in to my work! Ask Dr. Yo: can I recover from chronic dizziness (PPPD, MdDS, VM) if I have ear damage or weakness? kzbin.info/www/bejne/r2e4gqCEiNOJfNE

[@Judi4Him4Ever]

Thank you SO much! I am watching your recommended video with my husband and, to be honest, it makes more sense than any I’ve seen (and I’ve watched a lot). I have a doctor appt. this AM but will be in touch soon. I think I’d enjoy working with you.

[@lucilleclaricetorres998]

Yep that sums up my experience, had BPPV that led to PPPD. Everyone gaslighting me and keep telling me to wear my reading glasses - and they just made things worse. They're"reading" glasses for a reason right? I don't need the world magnified when I'm dizzy.

[@TheSteadyCoach]

I’m sorry this happened to you! Know that BPPV does bring on chronic dizziness symptoms in some people- I have seen that quite a bit. I’ll have a whole video devoted to that topic coming soon

[@Rose-gc8og]

May I ask have you had the feeling of walking on a boat ( floor moving ) when walking ?

[@scottmartison4334]

My wife has something, not diagnosed and not medically explainable. She will randomly get dizzy, have to hold onto something, see double, slurred speech, barely stand up, and worse of all the uncontrollable head shaking or tremor. Doing my own research led me here. Does this sound like pppd or mdds, or even both? She has had it her whole life but definitely more frequently as she is now 37.

[@TheSteadyCoach]

That sounds awful. I would definitely be looking into this with a neurologist. This does not sound like PPPD or MdDS. However it could be a functional neurological disorder, which is a similar phenomenon.

[@iggysanchez5681]

Yes please create that video!

[@TheSteadyCoach]

Hi Iggy, thank you! I have this on my list of content requests.

[@scottyhorey9128]

Thank you for this video, and for addressing these disorders. I have struggled with (some form) of subjective visual disorientation/dizziness for about 19 months now, and am continuing with the journey of learning how to improve. I have some great doctors, but still feel like there is learning to do about what is going on. Do you do ZOOM sessions of any kind?

[@TheSteadyCoach]

Hi Scott, I am so glad to hear you are making progress. I do work with clients remotely. If you’d like to get in touch, you can click Contact Me at the top of my channel- that will take you to my practice website. thesteadycoach.clientsecure.me/

[@carissakinder029]

@@TheSteadyCoach driving makes me feel drunk while moving. Also if I wake up and start walking around my house and in stores also get a pressure feeling in my head....any suggestions on what I should be doing excersise wise? Please help I've been dizzy for 9 weeks now 😫

[@TheSteadyCoach]

@@carissakinder029 sounds like you might have a visual component to your symptoms. Even head pressure can be a dizziness type symptom. Have you seen the latest video on visual vertigo? You might be able to use some virtual backgrounds with eye and head movements to practice some of the situations that bother you.

[@tinyty6570]

My b12 deficiency I think caused this My b12 was so close to zero which causes nerve damage unfortunately and I get dream like vision can’t walk really at all in stores or other

[@TheSteadyCoach]

Hi Tyler, I'm sorry to hear what happened to you- B12 deficiency can definitely cause some physical symptoms.

[@tinyty6570]

@@TheSteadyCoach I appreciate the response sorry that I had commented twice my other message was long apologize just been a lot going on Not any better from the day I started with the shots. Maybe cus the damage or didn’t get enough shots till only more recent

[@juliemoore6957]

So would meditation help? Relaxation exercises like "the body scan".

[@conniehinton2681]

I have a question-my PPPD started after I had emergency knee surgery to repair shattered kneecap…no head trauma/ear infections etc….why hasn’t my head recovered? (This was in 2007)…any thoughts? TIA

[@meganleigh3088]

I have both of these disorders and it’s so tough! How do you manage with both? I also love with POTS. X

[@TheSteadyCoach]

So, so tough. The treatment for both is the same, understanding the problem, losing fear, resuming activity and addressing stress and trauma.

[@sagigxxx]

Hey Dr. Yonit. I recently joined your wonderful community. I have to admit, I am now crying and in fear, I can‘t even explain. I don‘t know how to feel about any of this. I am so afraid I could have MDD but I will tell you why. Any help and answer from you would be so good to my heart and soul. My symptoms gets worse when I turn my head left and right up and down, it‘s like the picture is swaying for 1 seconds. Then it goes away. But… When I sit on the floor still with I feel the floor moving, like swaying a bit and also when I sit. When I stand, It‘s less severe, almost not noticable. But when I sleep on the left and right, I can feel it, not much. Only when I move my neck or head I feel that dizzy wave. But here is the deal: I am doing Vestibular excercises for one week now, and the moving on the floor almost stopped. Its a bit still there while sitting but not that much anymore. When I stand still and do balancing postures like The treew pose in yoga I can‘t feel the dizziness it goes away. After the Excercises I immerdiate feel better on the floor and sitting, it‘ like it‘s going away. But I am so scared now because since yesterday I am doing new balace, vestibular excercisws giving by my therapist, that includes excercises on the balance pad, and when I am doing them in standing still and with neck movement I don‘t feel anything, and the sitting and standing there is no dizzy feeling more. But since I am doing the new excercises I got so dizzy last night while laying in my bed side to side, then it got away after couple seconds when I was in still position. Then I woke up to sit and thr floor still and there was no swaying or movement. I sat in peace. This morning I woke up and that feeling got away, but I am so afraid that I got dizzier, because I felt so good all day yesterday. I am so discouraged now, I can‘t even explain and I am afraid I may have MDDs. Please replay my dear. Sending love and light. 🌸💜

[@TheSteadyCoach]

Please do not worry. This does not mean you have MdDS. These ups and downs are normal. I’ve made a few videos where I reassure you about all of this. Please take a few minutes and watch! Ask Dr. Yo: HELP! I have new symptoms or my chronic dizziness got worse. What does that mean?! kzbin.info/www/bejne/d4GyqGeDjMhgfcU why do VRT exercises make me feel worse kzbin.info/www/bejne/r328aIB9bK11qpI What does recovery look like? kzbin.info/www/bejne/sHvGiHikZp6Kack

[@yendryrojas]

Hi! How are you ?

[@Rose-gc8og]

May I ask have you had the feeling of walking on a boat ( floor moving ) when walking ?

[@PriyaDesai95]

From your experience, can mdds can get worse before better? I came back from a cruise a little over 2 weeks ago and have had the rocking and swaying sensation since. Before it was mainly bad with walking but now I feel it's there just staying still. My ENT put me on Prednisone and now I can't tell if my condition is getting worse or if it's the medication that is making me feel worse

[@annerousselin4079]

Thanks a lot for your videos. I discovered my disorder thanks to your vidéos.I m French and my vestibular therapist doesn't even Know there are different types of disorders... I go to rehab twice a week but I m not sure I do the correct exercices. I m feeling much better after 3 months of rehab and CBT but When I m standing still I feel a slight dizziness. This is the Last symptom I can't get away with... Do you have specific rehab for this Dizziness which doesn't stop when you don't move ?

[@TheSteadyCoach]

Hi Anne, so glad to hear about your progress. Don't worry, there are not really "wrong" or "right" exercises. If they cause symptoms, and you're getting better, you are doing the right exercises. For dizziness when standing still, have you tried somatic tracking? It's on the brain exercises playlist. You can stand and do the exercise while standing and feeling the slight dizziness.

[@irismelo7712]

Thanks for this I feel like i have both

[@TheSteadyCoach]

Could be, Iris- many people report lots of overlapping symptoms.

[@user-mf2pu3uz6t]

I was diagnosed with PPPD but I am confident I have MdDS. I feel my best when I am in motion. walking, riding or driving in a car, on a plane or on a ship. I feel great on a ship when I used to get seasick or airsick when I cruised or flew. I have been accepted into a MdDS research study at Mount Sinai Hospital in Manhattan Nov 5 - 10. What are your thoughts on this?

[@TheSteadyCoach]

There is nothing wrong with attempting the study. It can physically turn off the symptoms. My recommendation is to also implement the other things I talk about because it will make it more likely that the changes will stick. And it will give you options if it doesn’t work for you.

[@ginahs64]

How did your treatment go at Mount Sinai? I hope you had a positive experience. I was there in early June, but the protocol I received as part of the study was not helpful for my symptoms (primarily backward & left side gravitational pull). The at-home protocol I was given by Dr. Yakushin, based on my study protocol, has not made any impact on my symptoms. I am returning in 2 weeks for a different treatment, as my 6-month commitment to the study will be over. I also have visually induced dizziness while driving (pressure & pulling around the eyes, sensitivity to patterning on roadways from sun/tree shadows, but not as the passenger or while in any other type of passive motion. This makes it hard to get my kids where they need to go & to accomplish day-to-day tasks that require driving. I feel amazing while I’m outside running, though, so at least I still have that! It took about 18 months to be diagnosed with MdDs, and I’m currently 3 yrs into this nightmare. My symptoms began during a 30-minute drive home on winding backroads during a massive rainstorm (picture: windshield wipers going at their fastest speed). I started to feel nauseous, then dizzy on this drive and felt I was either going to vomit or pass out. I then panicked (had no idea that it was a panic attack, as it was my first). I pulled over for about 5 min. & then very carefully drive home. I felt shaken, but relatively normal as the adrenaline started to wear off…until the next morning when I got up for the day & the “trampoline walking” began and any time in stillness felt like I swaying/bobbing. Lying down for bed is by far the worst for me, though, but surprisingly, once I’m asleep I sleep well. I have hope for the next round of treatment, and I’ve just discovered Dr. Yonit today, so there’s a lot more I can be doing to recover. Not giving up!

[@karinajuulfolsing4881]

Thank you so much for clearifying cronic dizziness. A quick question... Can you suffer from both PPPD and MdDS at the same time? If so, is it still the same excersices you have to do? And of course the same main"job" to look into the "internal stress" 😉

[@TheSteadyCoach]

Hi Karina, in most cases, MdDS (especially when spontaneous) and PPPD are diagnoses that refer to the same thing and just have different symptoms (not true 100% of the time). Yes, I have seen many people whose symptoms overlap with both conditions.

[@janiceince1965]

@@TheSteadyCoach mine definitely over lap.. And came on gradually under extreme stress for a few years..

[@Lisaromo23]

I believe I have occipital issues which are similar to my vestibular issues. They run together with this off balance feeling.

[@furbydobby]

I suffered traumatic brain injury after an accident last Januari. I got hit by a car while cycling home. Causing TBI, stroke/brainbleeds all over, brain contusion and severse concussion. Also a lot of amnesia (retrograde & anterograde). Hospital, rehabilitation hospital and neurological rehabilitation therapists are all kinda clueless with my symptoms. And I am hoping to find more information. Maybe someone else reconizes? After the accident I feel like I'm on a boat. Inconcissent movement. It's not dizziness persé, more like being in the water and high waves are coming from all sides, swaying me in all directions. I don't feel lightheaded. It's more a feeling from deep inside my head. I can't sleep. I'm always wide awake, like in a constant survivalmode. I'm not tired either. While laying down I like my head 'blocked in'. With towel rolls. It helps me rest. While floating in the water, with the therapist helping me float, I felt like I was in a rollercoaster. Up, down, circles ... and I had to throw up and stabalize myself in the swimmingpool corner. Also constant are a low sounding echo/ringing in my ears. And 'migraine aura', wave-like visuals. Like watching the heat 'move' on a hot road. Anyome who reconizes my symptoms or has mpre information I could share with my socters and therapists here in the orthopedic & neurological rehab center? Thanks in advance and sorey for my grammer. I'm from the Netherlands.

[@furbydobby]

Side note: the floating was with eyes closed. With open eyes, it's not that severe. Only when I close my eyes it gets to the point of extreme and vomiting (excuse me)

[@TheSteadyCoach]

I’m so sorry for what you’ve gone through. Since you’ve had a traumatic brain injury and tissue damage may be the cause of your symptoms, it is not possible for me to give good advice on the best way forward. That said, many people with post concussion syndrome have fully recovered using these methods. This video will help. You need to ask your physicians if there is identifiable tissue damage that is causing these symptoms. kzbin.info/www/bejne/pXasYWttp9iChqM

[@lindamiller726]

What if when i close my eyes i don't know where my body is? I feel like I'm moving constantly and also get crazy symptoms when walking turning my head back and forth. Looking up or down gives me symptoms. Do i have a combo of both then? I'm spending more time doing somatic tracking. Trying the VOR exercises also. I agree my anxiety needs to be in check. Please respond. Thank you!! I haven't tried the kinetic test yet. Do you suggest this now? One more thing, car rides make me feel worse once I step out of my vehicle. I sway and feel off. I'm miserable 😢.

[@TheSteadyCoach]

I'm so sorry you are going through this, Linda. Please consider taking my free course on healing chronic dizziness. I go into more detail on recommendations and how to heal thesteadycoach.com/free-course

[@tracystandish3420]

You are great!!

[@TheSteadyCoach]

Thank you so much, Tracy!

[@kathygreen6043]

Is Ménière’s also neural circuit dizziness? I know exact when this started. It evolved into vestibular migraine, pppd, bppv, and mal de barquement.

[@TheSteadyCoach]

It's a tricky question and one that I need to address in a video. True Meniere's is not neural circuit dizziness, but most people who are diagnosed with Meniere's don't actually have Menieres- they have neural circuit dizziness.

[@watchoutforaj]

My tests weren't normal. VNG showed spontaneous unbeat nystagmus confirmed that I have dizziness of central origin. Diagnosed with mdds, vm, pppd, chiari malformation, dysautonomia, and so much more. There is literally nothing that helps despite the fact that I have been diagnosed now. My doctors are blaming all my symptoms on my stress levels causing migraines and then they shuffle me off to the next doctor who is also clueless. Unless i am willing to try antidepressants or antiepileptic medications I am screwed.

[@TheSteadyCoach]

I actually address this in the first module of my course (just released it yesterday and it's free- members.thesteadycoach.com/free-chronic-dizziness-course ). Central dizziness CAN cause physical symptoms like nystagmus. Your diagnoses are all different names for neural circuit dizziness. Your stress is 100% the driver behind your symptoms but not necessarily in the way you might think. Stress is not always external or obvious.

[@yendryrojas]

Hi! How are you ?

[@xNeroGamerPL]

And what if nothing triggers my symptoms? I have constant 24/7 lightheadedness and no matter if I walk or stay still it's always the same.

[@TheSteadyCoach]

Very common. Most people here start with 24/7 symptoms. This doesn’t exclude either diagnosis. I’m sorry you’re experiencing that.

[@xNeroGamerPL]

@@TheSteadyCoach Thank you for your answer! I hope it will get better with time.

[@sanchez4500]

Thanks again I'm still trying to figure out if I have PPPD after been to the ENT and my Dr and not ear related so they say also eye Dr... my symptoms lead to PPPD but I have had chronic neck pain along with all the symptoms I do suffer from chronic anxiety as well could that cause PPPD?

[@TheSteadyCoach]

Hi Fabian, good to see you here again! The chronic neck pain and anxiety are big red flags for PPPD. It's not so much that they "cause" PPPD, dizziness or vision problems. You can think of PPPD as a physical symptom of anxiety for some people. So people who have anxiety are much more likely to develop PPPD.

[@sanchez4500]

@@TheSteadyCoach Makes alot of sense ...Now the question is to find somone to help me with this.....I watch all your videos and try some exercises.....💚

[@TheSteadyCoach]

@@sanchez4500 I think you’ll be happy to hear I’m working on an exercise library and live seminars for people who can’t find help where they live or can’t work with someone remotely. There will have to be a subscription, but I want to keep it inexpensive so it is accessible to all. Stay tuned.

[@bebeautiful2286]

Hello dr yonit I have seen most people recover from pppd and mdds after 2 years but they are still saying that their symptoms get worse when they are stressed so is all these symptoms Dont get better for life long because before pppd if they are stressed they felt normal

[@TheSteadyCoach]

Hi there, this is a biased sample. All the people who recover to 100% and don't have recurrences are not on the internet talking about it- they are out living their lives.

[@lucykim1480]

Thanks for your video. Before, I was also very nervous about whether I had mdds or pppd because I always felt better when moving. So for a while, I did both the vestibular exercises for mdds and pppd.😂 I found a post on the pppd group where the guy said to treat pppd like depression and anxiety. Do you think he said that right?

[@TheSteadyCoach]

Hi Lucy, it depends on what he meant by treating it as anxiety or depression. Where I live, most people with anxiety or depression are just given pills or standard CBT therapy for those disorders, with poor success. I think the same can be said for PPPD. That said, I think it is wise to recognize that PPPD is often a physical expression of anxiety, so treating the PPPD has to involve treating the emotions around it as well. The brain and body are connected 100% of the time!

[@lucykim1480]

@@TheSteadyCoach This makes a lot of sense. That's why I do Vestibular Rehabilitation exercises with little to no results. It's weird that nothing trigger my symptoms. I still rotate my neck and move normally but the swaying, floating,.. symptoms are in the background when i am stillness

[@TheSteadyCoach]

@@lucykim1480 exactly, VRT doesn’t help very much when it doesn’t trigger symptoms. What you can do is use the exercises backwards. Start with a lot of movement (hard VRT exercises) and then work your way to ones that don’t involve a lot of movement. I’m planning a whole video explaining how to do VRT for chronic dizziness that has symptoms like yours.

[@lucykim1480]

@@TheSteadyCoach Thank you very much. I look forward to seeing your new video. Also, I noticed something that trigger symptoms when I watched the video on translate below (when i turn on the subtitle) and tried to follow the text.

[@yendryrojas]

@@lucykim1480 Hi!! How are you ?

[@AkAk-zc1if]

Thank you so much ❤❤❤❤

[@TheSteadyCoach]

You're welcome 😊

[@AmericanPrideStumpGrinding]

So my problem is not spinning but balance when standing and not moving. Exercise I feel better. Also anxiety is kicking in. Have some facial twitching and somewhat tired. Went on Es Cytalopram and that helped several years ago. May have to try that again. Not sure what exercise to do if standing still is the problem? Also when fishing on my boat I seem to be more stable with the boat movement?!

[@TheSteadyCoach]

Sounds like a perfect description of neural circuit dizziness!

[@elesabethv.c222]

What exercises can I do for meniers disease causing vertigo and dizziness?

[@TheSteadyCoach]

kzbin.info/www/bejne/aGHIhJKpjbmLeKM this may clarify

[@patlaing4489]

My symptoms came on the first time after a cruise. After 9 months they went away. I had done various exercises and other stuff to get to that point. I was diagnosed with Mdds. The second time I also got it after a cruise. Much milder and slightly different. I was again diagnosed with mdds and did VRT and had the opto kinetic treatment which helped slightly but the dizziness never completely went away. This is about ten years ago it restarted. I now wonder if it wasn't mdds. In that time I have already had Bppv which was treated and cured. Recently within 18 months of each other I have had covid and am suffering with long covid leaving me with aches and pains too. This also has made the dizziness worse. All the time I have the cog fog which makes doing more than one thing a day hard. I get worse and more tired as the day wears on. I now am not sure what to do for the best. Rest or exercise or what. If I rest I seize up and it takes a while to free off. I find some of your videos helpful but it is hard to know where I am going. Any ideas please Dr Yo.

[@TheSteadyCoach]

Hi Pat, so many years of suffering. I’m sorry. The good news is that the more symptoms you have, the more likely it is that you don’t actually have a bunch of different syndromes, rather just one- mind body syndrome. The best place to start is my course. It is 100% free. thesteadycoach.com/free-course

[@nicolalloyd8751]

Can you have both conditions at the same time? I had servere pain and partial deafness followed by extreme vertigo from a flight. After a couple of months this vertigo subsided into what I was diagnosed with as mdds. Purely as the only time it goes away is as a passenger in a car. I struggle extremely when standing still and head turns shops movements around me patterns etc but also struggling immensely when trying to walk the only time it settles in being a passenger in a car. On your description I fit exactly to how you describe both. I have recently just been diagnosed with 3pd. Do u have both? I suppose the ear issue on the flight could have created the 3pd and the actual flight itself created the mdds? I'd be interested in your thoughts on this?

[@TheSteadyCoach]

They’re both symptom based diagnoses, so yeah, most people I work with have some from multiple categories of “diagnosis.” These names are just descriptions of symptoms.

[@manikantabadam]

Is visual snow common with PPPD?

[@TheSteadyCoach]

Yes, kzbin.info/www/bejne/Z5iXn5iid5mAi8ksi=1wQuYt9kMwZKLWYO

[@marytaylor9016]

Can I travel with pppd does it ever go away

[@TheSteadyCoach]

kzbin.info/www/bejne/eInbaWOFbaeJq6M yes and yes

[@amandar614]

I have a swaying side to side motion that gets worse with stress/tiredness. Almost like I'm being pulled side to side by some gravitational pull. I have had this for about 3 to 4 months. It has gotten better but still present. I have learned to not be afraid of movement etc. I read online that you should avoid treadmills if you have mdds. Is that correct? I did walk/slow jog in intervals for 2 miles today and i noticed it intensified the swaying a few hours later this evening. Should i continue to use the treadmill or would walking/jogging outside be better? Also is it common for symptoms to intensify some during the days leading up to your menstrual cycle?

[@TheSteadyCoach]

Hi Amanda! I actually have videos where I go into more detail on both of these questions. Ask Dr. Yo: can I use a treadmill, bike or other cardio equipment while recovering from dizziness? kzbin.info/www/bejne/eoOvfn5-bdenebc and Why your chronic dizziness symptoms get WORSE around hormone changes- and how to use them to heal kzbin.info/www/bejne/bHvLaah4i9JlaNk

[@amandar614]

@@TheSteadyCoach awesome! Thankyou!

[@nmnuch6370]

I live in Thailand, How can I treat this symptoms with you?

[@TheSteadyCoach]

Hi there, the best way is to take the free course!! thesteadycoach.com/free-course

[@eceaksoy1619]

Please add Turkish translation to all your videos. I need to translate most things.

[@TheSteadyCoach]

Hi there, unfortunately this is up to KZbin's autotranslation for now- if you click CC and then the gear icon you can get autotranslated Turkish subtitles.

[@ariannefew]

Can you get mdds from uncompensated vestibulopathy ?

[@TheSteadyCoach]

You can definitely get MdDS type symptoms from vestibulopathy. It's not typical, but I've seen it.

[@Miroslav_R]

I felt like i was moving up and down for a day and now i feel like I’m am spinning or moving in bed do you know what this is

[@TheSteadyCoach]

Hi Andrej, neural circuit dizziness can manifest via many different symptoms, but it is also really important to get medical issues ruled out if you haven't already!

[@margotmcdonald7585]

Does it matter even if you believe that your MDDS was spontaneously triggered? I've heard people say it's almost impossible to get into remission after that... Thank you so much

[@TheSteadyCoach]

Does NOT matter. That is nonsense as far as I’m concerned. Same principles apply. I think those people get the reputation for “not getting better” because they get nothing but scary messages from others who don’t understand what’s wrong and their fear gets amplified 1000x.

[@sidraiqbal941]

So it doesnt matter if you have any? Both are curable in the same way??

[@tinyty6570]

Also sorry to comment twice but How do they tell difference between pots and this? My doctor mentioned pots to me not this but I may bring this up

[@TheSteadyCoach]

Hi Tyler, these videos are for people who have had medical issues ruled out- when someone has had a diagnosis like you've had with your B12 deficiency, this may not apply to you. When someone has neural circuit dizziness, POTS can have many of the same symptoms, it just tends to get triggered by different kinds of activities and also tends to result in a measurable change in blood pressure.

[@tinyty6570]

@@TheSteadyCoach do you have any suggestions on what I could do ? The b12 was so low I believe it’s called damage which resulted in something with the e vison my vision is dream like and strange and in stores people moving too fast bothers it and the floor moves. I’m on the shots already Been on them for about 10-11 months no improvement DRs finally upped the shots no improvement yet .. damage could of set in which could result in nerve damage to eyes and things bu eye doctors didn’t find anything. One eye doctor said I may need special eye therapy (kinda like what you teach ) but I can’t afford one It’s all been so difficult and I can barely walk They thought pots but don’t know yet B12 low could cause a temporary pots from damage or maybe it just mimicks pots Ether way I take the b12 shots but have no other clue what to do anymore Seen every specialist Imaginable that my insurance would cover Want to do anything at this point I only turned 25. Feel like my life fell through the cracks . When I had all these issues for months DRs didn’t take it seriously till it was too late and level was critical

[@TheSteadyCoach]

Tyler, if you have already addressed the medical issues, then my advice is to look outside of the biological causes and see what psychosocial components might be contributing to your symptoms. I explain all of this in the course. It may not totally apply to you because it's intended for vestibular disorders but the general techniques can help and it is 100% free. I feel very strongly that everyone should be able to access this info regardless of insurance or finances. You can sign up for it here members.thesteadycoach.com and scroll down to the see the course

[@tinyty6570]

@@TheSteadyCoach thanks so much! Even if it can just help the vison peice a bit it would be great ! Cus the low b12 can even cause damage to nerves to cause this And I do think from all the stress I may have depersonalization or something too Appreciate it I’ll sign up If it doesn’t help it was worth a shot 😊 have a great day

[@tinyty6570]

@@TheSteadyCoach also last thing wanted to say was I tried the excersises with the cards and next day had such a eye headache is that normal?

[@queensarah9622]

Is it possible to have both?? For a year now I was 100% sure I had pppd. I have all the symptoms for pppd but now that you mentioned this one I do realize that my dizzyness gets better when walking and it is the worse when standing or sitting still. But when my dizzyness is really bad it is bad to walk?? I’m so confused now. Also my test results are all clear and my dizzyness started from a. Panic attack so I don’t know which one I have. Also is mdds dangerous?? I feel so lost now because I thought I had pppd but now I think I have mdds?

[@queensarah9622]

Also is there any way I can contact you???

[@TheSteadyCoach]

Hi Sarah, in the video I mention that many, if not most, of my clients have symptoms that overlap with both conditions and that ultimately it does not matter. They are just different names for the same thing, neural circuit dizziness. MDDS is not dangerous. Please watch my video in the Ask Dr Yo playlist, “My medical tests came back normal. Why am I still dizzy?” If you click “contact me” at the top of the page, it’ll take you to my practice website, and you can contact me through there!

[@Rose-gc8og]

@@queensarah9622 May I ask have you had the feeling of walking on a boat ( floor moving ) when walking ?

[@lucykim1480]

Are "neural circuit dizziness" and "neurological disorder" the same? I am still learning english so i don't know if they are the same.😀

[@TheSteadyCoach]

Hi Lucy! Nope not the same thing. Neurological disorder usually means there is damage or illness. Neural circuit dizziness means there is no damage or illness. The body isn’t working right in both cases, but for neural circuit dizziness, it can be reversed (go back to normal)

[@lucykim1480]

@@TheSteadyCoachThanks for your answer. I'm relieved that you said neural circuit dizziness can go back to normal but I'm a bit confused, when i watch this clip kzbin.info/www/bejne/r6audmetmc2eipo they say mdds is a neurological disorder. Maybe they make a mistake?! And how do we know we don't have neurological disorder? Can MRI or CT scan find the damage

[@TheSteadyCoach]

I do not agree with them. There is no imaging study that can show MdDS. MdDS is diagnosed only based on peoples symptoms. Please understand that most medical doctors take the approach that the people in that video do. They agree with me that the cause is a mistake in the brain, they just do not agree with me that mistakes in the brain can be reversed by managing stress and emotions.

[@lucykim1480]

@@TheSteadyCoach And also control the anxiety it brings. That's why running to the doctor for medication and physical therapy usually doesn't help me much so I stopped visiting the doctor. What I am learning now is reducing my fear of mdds and practicing stress and anxiety management so that my brain has space to heal.

[@TheSteadyCoach]

@@lucykim1480

[@michelle9234]

Hello! I’m currently out of the country and I experienced symptoms of MdDS after getting off a 15 hour plane ride. As soon as the plane made a complete stop it still felt like the plane was moving but when I got out of my seat and started moving that’s when I felt normal. All the dizziness symptoms comes when I’m not moving and I’m just sitting down not doing anything. I have to fly back in the US in 2 weeks, is there any medication or anything that will prevent me from experiencing MdDS? Because as of now I’m not experiencing any MdDS symptoms as it has been a few weeks since I got off the plane.

[@TheSteadyCoach]

Hi Michelle, yes, as a matter of fact. I am not a medical doctor so I cannot recommend medication BUT at the Chicago Ear Institute they will often give patients who are prone to MDDS klonopin or other vestibular suppressants to temporarily take the vestibular system offline during the travel.

[@michelle9234]

@@TheSteadyCoach Hello🙂 Are the medications over the counter or is it a prescription? Because right after I come back in the US I’ll have to go straight to school and I’m scared of how my symptoms will act when I’m at school especially since I’ll be seated almost the whole time I’m there.

[@TheSteadyCoach]

@@michelle9234 prescription only and it's just to take while traveling. it's not something you would take at any other time. The idea is that it stops the vestibular system from overreacting to movement.