Idk why but knowing she had a boyfriend made me really happy. I'm so glad she found a guy so supportive and understanding.
@roasta90134 жыл бұрын
Dreamie Queen totally agree! I would like this comment but it’s at 69.. so you can comment back if it goes past 69 likes (which I’m sure it will) so I can like this 😊
@avocadojune93684 жыл бұрын
@@roasta9013 it's past 69....I was wondering y can't you like it at 69?😊
@roasta90134 жыл бұрын
Avocado June well I’m sorry but I already noticed it was past 69 and I’ve liked it. It’s just a silly number
@Alexandra-gv9bo4 жыл бұрын
@@roasta9013 Haha you are cute not telling her But its a bit stupid to dont like when its 69 haha
@Alexandra-gv9bo4 жыл бұрын
@@honks9484 you are mean :c
@ber53825 жыл бұрын
Bless these people who have to cope with horrible conditions while I feel sorry for myself when my phone is taken away.
@maramluvsu5 жыл бұрын
(: xd god bless Carly
@AM-ll2ni4 жыл бұрын
Aman to that! 🙏😇
@arablox4254 жыл бұрын
you just exposed half of us in the comments 😔
@averie95294 жыл бұрын
I agree so much. :((. I can’t even stand a hour without internet.. other than when I sleep..
@juliecuster25254 жыл бұрын
Mashel Khan I don’t even sleep
@poppergurl5 жыл бұрын
"not often do you need to talk to the ground."
@jeanakatherine93695 жыл бұрын
Ikr! She cracked me up there!
@Me-zt1gk5 жыл бұрын
I thought that was adorable
@mariehicks84725 жыл бұрын
@@Me-zt1gk how's that adorable lol 😂🤣
@Me-zt1gk5 жыл бұрын
@@mariehicks8472 I have no idea just found it cute XD
@mariehicks84725 жыл бұрын
@@Me-zt1gk oh
@ramengurung99133 жыл бұрын
Can we all just say congrats to that doctor who knew what her condition was despite it being very rare and unheard of. Usually you would hear of people having to go to several doctors before getting a proper diagnosis.
@liviemillie64553 жыл бұрын
THIS.
@mkfan61672 жыл бұрын
His name is Dr William Schmit, he diagnosed FOP on mystery diagnosis
@isabelfuller55322 жыл бұрын
Cheers to Dr schmitt
@kanefears42452 жыл бұрын
St. Louis has great hospitals & staff
@reidleblanc3140 Жыл бұрын
for real. I'm so jealous of her. I've been undiagnosed for 19 years.
@Joy2ThaWorld5 жыл бұрын
Lord I am not thankful enough...bless her❤❤
@mrchunk075 жыл бұрын
Amen 😊
@moric46775 жыл бұрын
@Chase bricks 7 why so racist?
@peachytv51025 жыл бұрын
The lord? Girl the lord was the one who did this to her
@Joy2ThaWorld5 жыл бұрын
@@peachytv5102 pretty sure that was science.
@archivechannel235 жыл бұрын
@@Joy2ThaWorld No. That's not how it works. I'm guessing you don't go to church or talk about lord stuff
@iantawashington-allotey99135 жыл бұрын
Thank God for loving parents.
@lansiman5 жыл бұрын
ironically God might be responsible for this whole thing
@watermarqkiki69725 жыл бұрын
God has a reason everything... Even the things we cannot understand. He doesn't want bad things to happen but gives evil permission because his plans will always turn for good
@lansiman5 жыл бұрын
Watermarqkiki we don't apply the same excuse to a murderer, why the double standard here
@watermarqkiki69725 жыл бұрын
There is no double standard. God allows evil knowing that his ultimate plan will turn it for good. It is that way because of the fall of Man. He knows all things. All things that will happen in the end. Why are we asking " why did you let this happen God? Why are you doing this?" As if we are just in questioning a holy and perfect God. Until we have committed no since we have no place to judge what is just stand worthy of God.
@iantawashington-allotey99135 жыл бұрын
Watermarqkiki that’s your belief. Everyone has the right to express themselves.
@dahoose4 жыл бұрын
Bless her 😭 whenever she talks she sounds like she’s in so much pain and she still manages to smile 😫❤️ I hope she gets better.
@punsiemckale66904 жыл бұрын
Survival of the fittest
@skyo-uc2dw4 жыл бұрын
Yeah bless her she's amazing 😢
@galaxy_animeuvu79794 жыл бұрын
Umm yeah and I hope she gets better too but idk if she will
@nfislife40174 жыл бұрын
I don’t think she will get better i don’t think she can😢
@Gunita234 жыл бұрын
God please bless her!
@nerysghemor57813 жыл бұрын
WHAT A BLESSING that the doctor immediately checked her feet and made sure she avoided any unnecessary surgery. I was wondering why she seemed to be less advanced in the course of the disease at her age than most people I've seen in the past...it's GOT to be because of being diagnosed immediately by the first doctor to see signs.. WOW.
@dylangacha394 жыл бұрын
I feel so horrible for her... It’s sad because she did nothing to deserve this.
@ii.jokopondro57414 жыл бұрын
unfair world maybe unfair god
@mousetrap19634 жыл бұрын
@@punsiemckale6690 that's not funny
@punsiemckale66904 жыл бұрын
@Honey lol
@walkerunite97634 жыл бұрын
Punsie Mckale your mean
@jkerthegreat74004 жыл бұрын
Punsie Mckale it’s not funny
@dmnds2dst5 жыл бұрын
Bless her heart. Hopefully they find a cure
@bellgarling88995 жыл бұрын
Yea I hope they find a cure as well
@Candicedickinsonllc5 жыл бұрын
support researchers ! every day students and people like you are working for a cure
@dmnds2dst5 жыл бұрын
Angelo Stevens I would donate and start something to find a cure but I’m poor
@dmnds2dst5 жыл бұрын
So all I have is hope
@leelunk82355 жыл бұрын
EVERY YEAR THAT PASSES, CURE OR NOT, HER BODY IS IN WARFARE...ALL SORTS OF INTERNAL DAMAGE IS OCCURRING FROM THIS DISEASE THAT CAN'T BE REVERSED UNFORTUNATELY
@sweetsadise5235 жыл бұрын
One day; I wish. You'll wake up& everything will be back to normal.
@reemclaughlin42605 жыл бұрын
That was so sweet. I agree.
@lesleytay5 жыл бұрын
My prayer🙏🏾
@nicjade7045 жыл бұрын
I like your comment, however, this is her ‘normal’ now unfortunately
@umaruchan63315 жыл бұрын
Facts
@salientspoon5 жыл бұрын
🙏🏻
@eliya34242 жыл бұрын
“Not often do you need to talk to the ground” she has such a good attitude and is so funny 😄
@shelocsher23962 жыл бұрын
That tickled me lol
@caroline43232 жыл бұрын
Great sense of humour. Made me laugh, too.
@The_Chess_GM Жыл бұрын
Not that funny
@bruh-104 Жыл бұрын
@@The_Chess_GM the name 💀
@The_Chess_GM Жыл бұрын
@@bruh-104 buttcheck
@Vegard19865 жыл бұрын
Docuseries like these remind me that we are all fortunate to have our health, even if we do not have Kylie's followers, Jeff Bezos net worth, etc. I am not saying we shouldn't improve or complain, but rather be more mindful in areas we are fortunate. Be strong.
@Kruz3r5 жыл бұрын
Well said young man.
@hustlingahhparris65805 жыл бұрын
Amen 🙏🙏
@BobTheBuilder-dk5ry5 жыл бұрын
vyugzs vyugzs Nobody would want to be Jeff bezos 🤮 sorry I reallllly hate him
@cooldude21065 жыл бұрын
@@BobTheBuilder-dk5ry hate kylie too
@rosiecolliass58195 жыл бұрын
🙌🏻
@ShadyJed4 жыл бұрын
I love how her parents arent afraid to joke about things.
@altkitty1353 жыл бұрын
what
@sorrowtears37543 жыл бұрын
and she also herself is able to smile and be proud of herself and feeling as if this is something that pushes her down
@saraswinerton72023 жыл бұрын
What
@michellep95363 жыл бұрын
What do you guys mean, "what"? Her dad said she wasn't good at swimming and her mom said she doesn't cook. It's nice they joke and laugh as if she is normal in every way ❤😊
@ThePsychosis923 жыл бұрын
Most ppl with disablities r kindered souls.i feel i might just be a brat and fk the world and god or w/e.
@michelleclarke72705 жыл бұрын
Omg so sad ,why do we complain about silly stuff?
@no-yj2cf5 жыл бұрын
Because we're human. I'm sure she complains about "first world problems" as well. It's natural
@bellchic58675 жыл бұрын
Because everyone's issues are still issues
@kikimadison18045 жыл бұрын
Michelle Clarke because we believe no one has health issues and we’re selfish
@viviesme5 жыл бұрын
Just because your issues may not be as severe as hers, doesn’t mean they can be disregarded.
@strudelh5 жыл бұрын
@@kikimadison1804 speak for yourself, that's not the case for everyone...
@orli.carmell3 жыл бұрын
she does more than i do in a month, and she is almost stone- she is a queen.
@tonytoni13032 жыл бұрын
Just a bunch of lazy heathens
@nettkiyajoseph5072 жыл бұрын
@@Mini-wd7qz can I play with u
@santiosnekbrekerz3897 Жыл бұрын
@@nettkiyajoseph507 Weirdo.
@purple6705 Жыл бұрын
@@nettkiyajoseph507 ⚠️🤨⚠️ weirdo alert?!1?1!
@Not_Elana Жыл бұрын
@@nettkiyajoseph507 Weirdo
@martheh85145 жыл бұрын
"Its a condition where your muscles turn into bone" And then I realized that the heart is a muscle too 😖😭
@barbiana54935 жыл бұрын
Wait so what's gonna happen? Is her heart going to turn into bone and her heart will stop?
@Jessica-wc9zw5 жыл бұрын
@@barbiana5493 yes
@ilickcatsforaliving7225 жыл бұрын
Well your heart is also an organ so it might not turn to bone but it could happen. 😭😭😡😰 Pray for her :(
@ellab35115 жыл бұрын
does like movement help it stay active and not turn to bone? or is it just boom now its bone?
@Jessica-wc9zw5 жыл бұрын
@@ellab3511 the moviments that she have right now will stop someday cause the legs gonna turn into bones.....sorry for my bad english
@kessclaxton85665 жыл бұрын
her parents are amazing and she’s so beautiful. wishing you the best 🙏🏻🙏🏻
@stan34495 жыл бұрын
She's not.
@ttunique87025 жыл бұрын
She is beautiful what are u talking about shes not stacy
@ttunique87025 жыл бұрын
I mean stan what ever she has a dense and u playing what if u were in her shoe
@haley26085 жыл бұрын
Stan34 no you are the not beautiful if your saying this
@MajinMuse5 жыл бұрын
Thats the high five emoji (On iPhones)
@stellasy71304 жыл бұрын
If my child was born different, my heart would shatter but I'd still love my child anyway
@simplymichele59464 жыл бұрын
like im saying this is actually one of my biggest fears, bc i will have to see my child suffer or go through all of that. I would be terrified, like what if i lost them. And it will pain me so much to see and feel all of it. But no matter what my childs battle is my battle, i will love them no matter what!!
@ihaveleftthisaccount37104 жыл бұрын
@@simplymichele5946 Adopt.
@ihaveleftthisaccount37104 жыл бұрын
Dont have a child, you risk putting them through this. Dying a slow and painful death and in mental pain.
@ihaveleftthisaccount37104 жыл бұрын
@Maou Sama Selfish as hell. I know it will be better to have my own. But you could save a child from orphanages and not contribute to overpopulation.
@ihaveleftthisaccount37104 жыл бұрын
@Maou Sama Yes I do understand I have asian parents but I'm going against all that because I dont want to bring another human being into this world out of my own selfish wants. More people hurts the environment and they may end up with a mental or physical disease. There are many children in orphanages. I want to contribute to this world not harm it.
@10ON102 жыл бұрын
*Billy deserves an applaud for holding up humanity, and I wish Carli the best in life...*
@10ON10 Жыл бұрын
@Shakipyo Wow, so nice of you, Sending you some good vibes... 😊
@darronsanders9916 Жыл бұрын
Are you suggesting that he is doing charity work?
@ellaelliott44159 ай бұрын
Sounds like you’re saying she’s a burden. She’s a human being. Billy doesn’t need a round of applause for loving her. It’s not charity work. That’s really offensive, what you said. Do better.
@sumathisaravan5 жыл бұрын
No one here is talking about her boyfriend Seems like he is a brave guy to take care of carly eventhough he knows she is suffering from a serious disease..... God bless him Thanks for the likes.....these likes are not just likes but PROVES HUMANITY.
@taciturntam9515 жыл бұрын
It just proves his love is unconditional ❤️
@yu96664 жыл бұрын
yeah, cute guy.
@Eunostos4 жыл бұрын
@@antytheant ... she's living a full life just fine. If you'd be too cowardly or weak or full of self-pity to do so that's fine, but don't project.
@akklo37254 жыл бұрын
ya true ... no one is talking about him
@lishthefish574 жыл бұрын
carli*
@marbledfashion96164 жыл бұрын
Born different genuinely scares me. Because if my child was born different my heart would shatter.
@sanyspring69234 жыл бұрын
If your child was born with some of these deseases you would at least know what to do and how to treat them
@free52664 жыл бұрын
It would scare me because I truly believe I would become physical regularly due to mean people. I do not like people who are cruel especially to the disabled population.
@janedoe27844 жыл бұрын
Yeah you would have to homeschool and stuff
@dcannon01104 жыл бұрын
And your love for your child Will move you to pick up ur heart and become strong for not only yourself but for her - a mother’s love for her child is really phenomenal - take care.
@amandalovestrey4 жыл бұрын
It does shatter your heart...But then you adapt and love your child regardless. You just let them be what they are and cherish the moments. My special needs daughter is now 14.
@DetrickROS5 жыл бұрын
0:52 She did not just compare herself to a flamingo😭❤️
@basbuggezginci785 жыл бұрын
She did lol
@plebwood23335 жыл бұрын
@Clorox Bleach Sad but true
@kwingle5 жыл бұрын
Flamingos are graceful and beautiful :o ❤️
@aribfan89055 жыл бұрын
She did
@micahxoxoxo5 жыл бұрын
im the 1000th like
@Aurequin2 жыл бұрын
4:37 the way her mom nudges her dad warmed my heart❤️
@saara.basraa4 жыл бұрын
Her back swelling was so scary....i feel so bad for all the pain she went through.
@katea22795 жыл бұрын
I love the Mom’s look and elbow when the Dad said, “She was on the swim team, she wasn’t very good.” 😂😂😂
@allidoiscry41195 жыл бұрын
Dad is a savage
@elainechu63535 жыл бұрын
Moms so cute😂
@danielacosta-xc9rx5 жыл бұрын
Project Lullaby Lmao chill
@plebwood23335 жыл бұрын
@@danielacosta-xc9rx Its probably good advice tbh
@rainismyname63965 жыл бұрын
Hi sister xxdd straight BOIIIISS
@sarasadiq69184 жыл бұрын
She's so sweet. I really hope that a cure is found soon. I teared up when they talked about her love for sports. I can't imagine my life without figure skating. She's so incredibly strong
@aarongibson90273 жыл бұрын
This sort of thing can't really be cured, only slowed down or stopped but it will still be in your system. The surgeons would have to individually splice the DNA in every cell in the patient's body.
@roachfacesrs52703 жыл бұрын
It's chronic.
@kachoo21352 жыл бұрын
I have seen another girl, Ashley Kurpiel, who also has FOP
@azazello1784 Жыл бұрын
Figure skating is lame.
@XxwolphyxX5776 Жыл бұрын
SAME FIGURESKATING IS MY LIFE BRO
@tessadoyle13 жыл бұрын
i’m so glad that she has a positive attitude, and it really makes a difference. she seems like a genuinely nice and caring person. i’m also really glad that she’s has caring parents who really care about her. 💕
@kimpossible5853 жыл бұрын
her family are members at my country club. some of the nicest and genuine people I have ever met.
@issystar965 жыл бұрын
"I remember what I still have, and I'm thankful for that" She is a super hero!
@kaleycooper91114 жыл бұрын
I just thought about how periods must suck. She literally can’t move her hip. Bless her soul 🙏🏼
@lathafalls76753 жыл бұрын
She might had surgery to stop having her periods
@vayermenoviko0linixD3 жыл бұрын
There's a chance she doesn't have a period. A lot of people that develop serious conditions stop experiencing things like periods or have them more rarely, like once a year or every few months randomly. Sometimes the medications they're on contribute to that as well
@sillysadupe3 жыл бұрын
I haven't gotten my period but I've got the signs. my birthday is next week. if anything, I just want my period AFTER my birthday lol that would suck if I got my period to share with my birthday though..
@raziyaazeez7603 жыл бұрын
@@sillysadupe 😂 ya I feel you ❤️
@sillysadupe3 жыл бұрын
@@raziyaazeez760 😂😂😭😭
@dogtoes31924 жыл бұрын
Dad: “she wasn’t very good” Mom: n u d g e
@repent.4 жыл бұрын
Cute picture
@dogtoes31924 жыл бұрын
Nessa P you too! also thanks, it’s my dog
@repent.4 жыл бұрын
@@dogtoes3192 np, and thanks! 🥰 Cute dog! 🐾
@hisokamorow36114 жыл бұрын
@@dogtoes3192 is it a lucky dog?
@dogtoes31924 жыл бұрын
Big Brody what do you mean?
@amruthag71613 жыл бұрын
Caring boyfriend , her outfit, inspiring quotes all over her house.. She's like a real life Hazel Grace
@teresasaputo79723 жыл бұрын
She even seems like a nice girl
@tinkerbell87853 жыл бұрын
ISTG
@sutxkh3 жыл бұрын
ikr
@sould34853 жыл бұрын
@@teresasaputo7972 No choice. With all that , do you even have time to be a bad person 😕?
@edenontheorbit97782 жыл бұрын
Yeah...
@pandaaussiegirl3305 жыл бұрын
God protect this girl at all cost she is living from a horrible medical condition may god bless her💝
@imanepink5 жыл бұрын
God would have protected her by not making her suffer in the first place
@mandygouw27455 жыл бұрын
God doesn't exist If he did he wouldn't have given her this in the first place
@ariana08695 жыл бұрын
@@mandygouw2745 Shut up just believe in your own religon ! I don't mean it to be rude .
@alanthomas1105 жыл бұрын
God??? 🤦♂️🤦♂️🤦♂️ What a joke!!!
@imanepink5 жыл бұрын
@@alanthomas110 agreed
@melakaitekashi12955 жыл бұрын
amazing family. amazing boyfriend. i’m so happy that she is so loved and supported.
@justinnix13474 жыл бұрын
It is because she is a woman. If I was in this position my family would get rid of me and hate me. No camera crews no nothing, just poisoned food and water.
@TheUKNutter4 жыл бұрын
Justin Nix Sounds about right. I’m a guy with a different disability, but never had this support.
@jocelynmendoza95064 жыл бұрын
TheUKNutter I’m so sorry to hear that
@TheUKNutter4 жыл бұрын
J Keeping it 100 That’s alright. She told me to “stop faking it”.
@lilkeyla57694 жыл бұрын
@@TheUKNutter it depends on the parents, not gender
@tanyiahsworld87465 жыл бұрын
Awww 😭 I need to stop complaining about the little things in life when others have it worse 😭😭 God Bless you girl I hope they find a cure to help u
@no-yj2cf5 жыл бұрын
@RIXETHEM facts my guy. We can't beat ourselves up over complaining. Complaining is natural!
@imanepink5 жыл бұрын
God bless me that he (God) could have stopped it before but DIDN'T hmm seems selfish to me
@hqnnah92615 жыл бұрын
Imane Pink he’s not selfish- some things he (God) wants us to figure out. But at least he not letting her die and she’s has loving parents and everything💖
@lindagatwiri8695 жыл бұрын
That's what I was thinking as well
@oddfcherry5 жыл бұрын
But you won’t stop complaining. It’s human nature.
@ellamarie-MakeJesusKnown2 жыл бұрын
Shout out to Carli's Mom and Dad being so supportive and doing everything they can to help her.
@jessmolly26904 жыл бұрын
She always sounds like on the verge of tears I feel so bad
@redvealnix4 жыл бұрын
The people who disliked were crying so hard that they didn’t see which button they pushed.
@repent.4 жыл бұрын
I sure hope so. I really don't feel comfortable with judging people I have not seen, but I hope they disliked because they didn't like seeing this dear angel in such discomfort. 💟
@changedusernameaagain16764 жыл бұрын
This comment is getting annoying I see it on every video like this.
@crimstar40264 жыл бұрын
@@changedusernameaagain1676 Okay?
@elbryan47514 жыл бұрын
@@changedusernameaagain1676 your name is more annoying🤣
@yourlocalbear68804 жыл бұрын
Ir they disliked cause they felt bad for her??
@BuZZKiLLMcGee5 жыл бұрын
She's got that positive energy that will help her and the people that love and surrounds her to get though this bull. Keep that energy sweety
@pineneedle1163 жыл бұрын
4:33 Dad: “She wasn’t very good,” Mom: 😅😬
@marietatiene5 жыл бұрын
And here I am complaining about getting 3 chin hairs because I am girl. Not knowing that there are people who have serious conditions. Forgive me lord if I am ever ungrateful. God bless you Carly💞
@Stargur15 жыл бұрын
Girl its called tweezers cuz thts what i do
@gordonramsayslambsauce5 жыл бұрын
Some girls have actual beards. Some just naturally have a little bit of hair. It's nothing wrong with you, it's just how your body grows
@r.a.y._.97755 жыл бұрын
😂😂😂😂😂
@Super1222914 жыл бұрын
Gordan Ramsey's Lamb Sauce disgusting
@lilkeyla57694 жыл бұрын
@@Super122291 :/ just stop, if a guy has hair its fine?? But a girl its gross? And they cant even help it dude, born that way
@ridhimagohiya16624 жыл бұрын
when her father said "she was on the swim team but she wasnt very good" and her mom nudged him...THAT WAS SO CUTE
@bonkchoy68812 жыл бұрын
yeah ahahaha they're amazing though ^^
@-eli-57615 жыл бұрын
Tall girl: I hAvE sIzE 13 nIkEs This girl: Literally growing a second skeleton
@Mod-rw9cw5 жыл бұрын
Eli Eschenbach and least give her the courtesy of spelling literally correct.
@gamingwithkev82085 жыл бұрын
What?
@sk8erboyz8335 жыл бұрын
Being tall is still worse lmao
@gby83145 жыл бұрын
Sk8er boyz ur stupid
@mariejesus55215 жыл бұрын
Sk8er boyz what noooo it’s like if you where saying that being short is worse then cAnCeR 😐
@ginamcmanama20183 жыл бұрын
this woman is a hero, she still does everything she can.
@rabidduolingogirl4 жыл бұрын
My mom has a friend who has FOP. It’s horrible, but, I think there are a few medications for it that somewhat help with it. I’m very sorry for you guys.
@azarune.64 жыл бұрын
Whats fop?❤️
@purplesnowcone20564 жыл бұрын
@@azarune.6 The disease
@ender43444 жыл бұрын
• P U R P L E S N O W C O N E • they're asking what the disease is
@ender43444 жыл бұрын
I hope your mom's friend is okay. I don't know what FOP is, though, sorry, but I still wish her a happy life
@purplesnowcone20564 жыл бұрын
@@ender4344 The disease in the video
@ashleymoon51405 жыл бұрын
😭 why can't everyone just be born without bad things is that so much to ask for poor girl
@floramecabatingan22214 жыл бұрын
they are the the gift from God for all those people who aren't grateful of their body.and im one of those but this kind of people changed me.
@mangograpes97004 жыл бұрын
FLORAME CABATINGAN so being born with something that causes pain and death is a gift for others to see themselves better? Screw that
@krypto13904 жыл бұрын
Mango Grapes you have a great point
@unknownarmy33814 жыл бұрын
I call people who was born like that "special" I never seen one but. If I do, I want to take care of them..
@costia004 жыл бұрын
@@floramecabatingan2221 what?? So God cursed this girl with this disease so others are more grateful for their health? What kind of evil god are we talking about?
@drippysquid18305 жыл бұрын
she was not good at swimming -Dad
@pamelalopez235 жыл бұрын
Zachary Franco mom comes in defense! Jejeje 😏
@kspuck795 жыл бұрын
Zachary Franco so me
@shawng93873 жыл бұрын
I have very severe allodynia on my skin my clothing my blankets anything that touches my skin feels like a million tiny glass shards scraping my skin 24/7 never goes away, I watch these videos to get the feeling of not being alone with horrible medical conditions, I appreciate these types of channels and the support they get from everyone
@shawng93872 жыл бұрын
@China Cash thanks for the comment, I still feel exactly the same 24/7 the only thing that's seeming to change is my mindset... as in like accepting this pain is never going away and accepting anything I do is going to cause pain... so I am trying to ignore it and just live life much as I can
@janbartley819gmail Жыл бұрын
Hello Shawn.. how are you doing?
@kailykhoikhoi72494 жыл бұрын
I really need to stop complaining about my life...
@nolieimhellabi99924 жыл бұрын
No you don’t! You have the right to express and feel negative emotions about your life! Don’t hide them just because you don’t have the same struggles as her!
@crimstar40264 жыл бұрын
Just because someone has a more drastic situation than you doesn't mean you can't feel sad over things. Life can be hard at times, and dismissing your problems is unhealthy and self-destructive. Never feel bad or as if you're ungrateful for being a normal person with struggles. 😣
@Prickly_Cactus_19934 жыл бұрын
We all have struggles, it is not good for you to never complain or feel bad. It is like feeling bad every time you eat and drink because there are others who cannot, it is just bad to think that way.
@auveus50364 жыл бұрын
I really need to stop complaining about my wife...
@yunifer12263 жыл бұрын
@@auveus5036 Dad what are you doing here?
@Umm7535 жыл бұрын
I feel bad for her I can’t imagine how scary it would be to wake up every day knowing that
@colorbar.s5 жыл бұрын
Or taking a fall and having to patiently wait if it's going to make your life significantly harder.
@fadwahtag41905 жыл бұрын
So much sadness and illness in this world. I complain about 1 dreadlock falling out of my head, when I should be forever grateful to the Most High for allowing me to be healthy. God bless her and her family. Stay strong!
@chloerebecca23995 жыл бұрын
Everybody's struggles are valid though, you shouldn't feel bad for complaining if its something that affects you♥️
@colorbar.s5 жыл бұрын
@@chloerebecca2399 Still good to appreciate what you have.
@shannonly233 жыл бұрын
Let’s just all take a moment to appreciate our amazing bodies and everything they do for us.
@rubinashaikh1984 жыл бұрын
Why would people dislike this video I mean like what?
@Sumaya-sheeko4 жыл бұрын
Like there is nothing to dislike here
@repent.4 жыл бұрын
Exactly!
@clarek14254 жыл бұрын
I think they do it because either they think it’s a bad thing and don’t understand what disliking means. Or they just are rude and need to grow up
@charlottehorani59314 жыл бұрын
Clare K yeah, when I was little and first started KZbin and I watched sad videos..I didn’t know if I should like or dislike because it’s sad and i felt like it was cruel to like something like that.
@VflyTrap4 жыл бұрын
pop tarts that’s what I thought as a little kid too
@Kitty-uw7dy4 жыл бұрын
“She wasn’t very good “ *elbows him * “but she tried “
@tinkerbell87853 жыл бұрын
hahahaha
@Aikoyoutube3 жыл бұрын
lmao i love this
@Pippa113 жыл бұрын
Time stamp?
@mirafalk25253 жыл бұрын
@@Pippa11 4:36 (:
@cromwellthewombat71543 жыл бұрын
That was so cute
@peytonsage65044 жыл бұрын
Dad: she was on the swim team and she wasn’t really good but she competed anyway Mom: bangs elbow in to him Me: 😂 Thanks for the likes it would mean a lot if you subscribed to my KZbin channel
@bogdanstojanovic25404 жыл бұрын
Camya Thompson Its funny cus its a typical familly thing. No need to get ur nipples in a twist, snowflake
@char.agi244 жыл бұрын
@@bogdanstojanovic2540 damn you tell her 😂
@fairyulz4 жыл бұрын
@@bogdanstojanovic2540 IKR?
@princessi39894 жыл бұрын
@@bogdanstojanovic2540 Lol 😂😂 Can u be my friend ?
@SweetTokk4 жыл бұрын
HAHAHA I WAS going to comment that until I saw your comment HAHAHAHA LOL
@Starixa80 Жыл бұрын
I actually know someone personally that's dealing with this. I think she's 11 now. She has to fly to Florida to get the bones broken every few weeks. People that deal with this illness are so strong
@647amar4 жыл бұрын
It’s kinda rude to say she is Turning to stone like just say bone
@oj66654 жыл бұрын
Views and views ohh yeah did I forgot? Views
@647amar4 жыл бұрын
True
@beatricelouran75064 жыл бұрын
It's for DA VEIWS
@TheNDrules4 жыл бұрын
YT FortNite kid people do forget and they could have dropped the s and the t and replace it with a B
@terrylap61324 жыл бұрын
Classic Chip YT Why? It’s literally called “Stone Man Syndrome”. Unless you want them to say the scientific name every time they talk about it (90% of the video), by the way, the scientific name is Fibrodysplasia Ossificans Proggressiva (FOP)
@aestheticchild64144 жыл бұрын
I love how she and her family strives to be positive, despite her condition.
@ashtreya16744 жыл бұрын
She has such nice understanding parents, and she seems like such a nice person , i feel really bad for her 😭
@meowpoosaymeow3 жыл бұрын
She is so strong 🥺, if I was here, I couldn't handle this situation
@mateasrnec52355 жыл бұрын
"So i stand like a flamingo" she did not 😭💛
@GrassKiddo1234 жыл бұрын
Nice you stand like flamingo the roblox youtuber cool 😎
@scarletthecat6324 жыл бұрын
COOL STUFF this is the problem with kids nowadays
@changedusernameaagain16764 жыл бұрын
@@scarletthecat632 and bts fans. : video about someone dying *Somebody with bts profile picture comments* Replies: omg army 💜
@rachelfleig50025 жыл бұрын
You're such an inspirational girl.🖤 Thank you for sharing.
@puppiesgacha29485 жыл бұрын
She is so freaking brave. It makes me feel so blessed to have movement. She seems more positive then I ever would be. She is so strong and she inspires me so much. I hope she lives a long and full life even with these movement restrictions.♥️
@Sanahhhhh6984 жыл бұрын
Bless you
@coughdropsh3 жыл бұрын
Omg I’m so glad they did a video on this! A friend of my brother’s in my neighborhood has FOP and we do fundraisers and stuff for him as often as possible!! And I try explaining his condition to my other friends and they don’t really understand how serious it is. I knew there had to be others with it but all I’d ever heard of was our friend, so I’m glad people are starting to talk about it. I really really hope they can find a cure or a treatment asap!! 🙏
@goddesshatmehit48615 жыл бұрын
This poor girl she’s so young 😭😭 hope they find a way to help her my god
@brookeg66705 жыл бұрын
Damn I gotta get myself a billy 😩 he seems so caring
@michelemcguire89955 жыл бұрын
Philip s are caring
@Autumn_Forest_5 жыл бұрын
Michele Mcguire LMAO So are guys named Carlos :D
@alicehillman5 жыл бұрын
I gotta get me one of them billies... *We’Re gOing tO tHe SUperMarkEt, kiDs*
@CqstleByers4 жыл бұрын
She's a strong woman 💪🏻👩🏻💪🏻
@UnDeR_mY_uMbReLlA2 жыл бұрын
This girl NEEDS someone to show her that this, her disease, makes her stronger than everyone else. I bet that if anyone else had this condition, we wouldn't be able to survive 2 days. Bless her heart for being so strong and amazing.
@professionaldillydallier4 жыл бұрын
“She wasn’t very good” then her mom just hits her dad softly💀😂
@user-fs3dw9no4t4 жыл бұрын
Timestamp?
@AngelaChristineK4 жыл бұрын
@@user-fs3dw9no4t 4:38
@4cannibal5 жыл бұрын
"not often do you have to talk to the ground" shes so precious aa i'm glad she's able to speak about this with humor
@SAUCEOHOLIC5 жыл бұрын
Bless her heart 😢
@human._bean3 жыл бұрын
I honestly wish her all the best in the future. She looks so sweet and caring, I hope that one day they will find a cure to FOP and she will be able to achieve all of her goals and live her dream life, along with all of the people that are in her situation.
@hoop19154 жыл бұрын
1 like = 1 prayer. So sad she has that we are lucky we don't have that but she is beautiful the way she is
@mgpgandara84544 жыл бұрын
Even though no one will believe me: I know a person who also has this exact same disease but she just turned 4 and is already walking like an 80- year-old. It's terrible...
@repent.4 жыл бұрын
I felt terrible for her, and I hope she gets better. This is a rare disease, I'm so sorry she was born with it. Yet, it only makes her different, more unique, more special, and that, my friend, is a blessing on its own. ❤️
@VflyTrap4 жыл бұрын
Ik there is no cure currently but I hope that she lives a happy life with the people that she loves
@crimstar40264 жыл бұрын
Hey, err, how is she doing at the moment? Is she alright? 😣
@jusluvfifi4 жыл бұрын
😭😭😭
@suzannetapia60434 жыл бұрын
Look all I want u to tell her is that everything is fine she might not see it and things might be hard on her but all u need for a good life is people that love u and everything will be ok
@jacobjensen35775 жыл бұрын
I fell sorry for her she seems so sweet, This reminds me of how lucky iam, Hope you get better
@jet8195 жыл бұрын
This isnt something you get better from
@aminslimani94495 жыл бұрын
@@jet819 you never know, maybe there will be a cure in the near future
@jacobjensen35775 жыл бұрын
@@jet819 what do you Know About that? Shes on trial medication Maybe it works on her
@askme44505 жыл бұрын
Jacob Jensen In the video they talk about how there is NO cure so she won’t get better unless science advances even more but considering how this disease isn’t very common I highly doubt there will be a cure within her life time but I hope I’m wrong.
@yaboiavery59865 жыл бұрын
There only 800 people with it, we aren't lucky she's just unlucky If I'm misunderstanding I'm sorry and I was hoping for someone to explain to me
@brandilepage40523 жыл бұрын
She is so strong, god bless her beautiful soul. I can’t imagine how hard living this way is, and yet she stays positive and has a beautiful spirit.
@mrc60325 жыл бұрын
Bless her heart. Her family. Her boyfriend. I really like her signature stance. She's one of a kind.
@felipessunshine4 жыл бұрын
"Not often do you need to talk to the ground" lol, she's really funny. I hope she gets better somehow...
@Khxyd5 жыл бұрын
Me:I’m 23 and turning to stone Mom: *its because of that phone*
@Dreandchip5 жыл бұрын
😂 😂 😂 I rarely laugh out loud but this was it!!!
@babyxsosuh18565 жыл бұрын
Going to hell. ☠️☠️
@anti-socialwaffle1555 жыл бұрын
😂 😂😂😂😂😂
@kiralefebvre70185 жыл бұрын
😂😂🤣🤣
@verranfehlberg11545 жыл бұрын
Niya Jasmine ikr, these people aren’t thankful enough at all
@margaretteathena92423 жыл бұрын
This kind of story is something that makes us pause and reflect about our life's journey. Be always thankful of what we are into because the gift of life itself is the greatest gift we could ever had.
@phae66094 жыл бұрын
Wow. She's so strong. When it said that her jaw locked at seven, I felt that. My jaw has been locked for the past five months and we have no idea why, and I can only open it about an inch wide, so I really know how she feels with that specific aspect. But having to constantly live with it... I can't imagine. She's a real inspiration to me!
@cat60243 жыл бұрын
I’m so sorry for you and her :(
@Helpadoggoreachsubs2 жыл бұрын
Lol
@indrayadav81052 жыл бұрын
Brother hope u are better now
@flowerducky2762 жыл бұрын
@@Helpadoggoreachsubs eh?!
@nonkululekongqola45682 жыл бұрын
Is it painful?
@вєяяуик4 жыл бұрын
*Whoever disliked this means they are not human.....*
@lavender_heart38314 жыл бұрын
VioletpawzUwU Cuz
@karolinaplayz47734 жыл бұрын
@VioletpawzUwU what do you expect? theres gachas everywhere smh
@reiizenin4 жыл бұрын
but I'm an alien monkey and liked it...😿
@thegentleman80124 жыл бұрын
I disliked...
@вєяяуик4 жыл бұрын
@@thegentleman8012 dont worry :') ik u dont mean to dislike the video-
@Alexandra-fr1rz5 жыл бұрын
Wow she’s living her best life.... you know some people would think oh it must suck to have loved ones have to help/care for you but I’m thinking wow having that bond and love for someone is really what life is all about
@Red_Proton2 жыл бұрын
Everyone in this family is staying so strong and brave. It's not easy for any one of them. My heart goes out to them.
@rudywong66724 жыл бұрын
She's tough to face all her conditions. And she meets up a man whose had a golden heart to accept all the conditions.. salute
@stanleywandungu55524 жыл бұрын
This teaches alot in appreciating your self coz you never know what someone else is going through
@galescott84334 жыл бұрын
HOW COULD PEOPLE PUT EIGHT HUNDRED EIGHTY SIX THUMBS DOWN? REALLY?? HOW CRUEL! IF IT IS HARD TO WATCH,AND DO NOT WATCH,AND IT IS VERY EDUCATIONAL, LEARNED ALOT, GOD BLESS YOU SO MUCH! TO THOSE PEOPLE WITH THE THUMBS DOWN, HOPE FOR YOU THAT NOTHING EVER COMES YOUR WAY THAT YOU WILL HAVE. TO GROW UP, THIS YOUNG WOMAN IS TRULY AMAZING! I HAVE WORKED AT HOSPITAL OVER FORTY YEARS, SEEN EVERY THING, PEOPLE WITH DISABILITYS ARE SO BRAVE AND STRONG, THANKFUL, DO NOT FEEL SORRY FOR THERE SELVES!
@itsjustalf77473 жыл бұрын
“Not often do you need to talk to the ground” Why is this so true tho I talk to the ground personally on some occasions
@Purplegirllovescats5 жыл бұрын
It’s especially sad when awful things happen to young people because they have so much of their lives left to live. 😢
@fatoomgacha62315 жыл бұрын
Omg I feel so bad for her! All the best 🖤🙌🏻
@katyaolivan60855 жыл бұрын
Even that happened to her she is still so lucky to have that kind of parents. God Bless all of them 😊
@CJ-wr7wq3 жыл бұрын
I love that her labrador dogs are with her everywhere and won't leave her ❤️ dogs are loyal 🦮
@loulouandtalulah4304 жыл бұрын
I cried this is so sad but she just carries on with life unlike some people in this earth but she never gives up which made me so happy for her xxx I hope she never gives up on herself and carry on people we are all perfect
@curlynature92285 жыл бұрын
Just to think we take so much of this for granted
@leonamvinoy30084 жыл бұрын
"Not often do you need to talk to the ground" Thats right
@frodhor11113 жыл бұрын
The joy and support this family has and seeing Carly still full of spirit to fight for a better future are just amazing. Bless you, all.
@angelinaann31194 жыл бұрын
I really need to stop complaining about stupid stuff because this poor girl doesn’t deserve to go through this God bless her and I hope for the best 🙏🏻❤️🙏🏻❤️🙏🏻❤️🙏🏻❤️
@spacekid55323 жыл бұрын
@CEREAL STEALER I don’t think she meant it like that. I think she only meant like bad stuff or something. And I am so sorry about your loss ❤️ 😭 it isn’t easy.
@spacekid55323 жыл бұрын
@CEREAL STEALER no problem
@vynuul4 жыл бұрын
I graduated her same high school this year! Much love and support to her and her family.
@rymaoutofstock4 жыл бұрын
I'm so glad she has such a good people in her life.
@jilljones15023 жыл бұрын
Happy for her to have someone who loves her who doesn’t see the disorder. Great parents super support system she’s blessed.