♡ Blood Sugars & TPN: Adjusting My Rates! (30.05.19) | Amy's Life ♡

[@edsawarenesschannel]

I love you! So thankful to have you in my life. Thank you for being there and supporting me. To those who subscribe thank you! I am trying to improve my video quality. I am trying to learn all I can so thank you for giving me a chance.

[@imtherealnsa]

With all the shit in my life, I am somehow still healthy and able to donate blood. Usually my iron is too low, (not anemic, but not high enough for donation) but yesterday I finally successfully donated O-! Super grateful that I have the opportunity to help save lives, and I'll keep donating until they tell me I can't 😁

[@darkbluematter1753]

Nova Mae yay! That's so awesome!

[@jamietheduck]

When I finally got 18 years old I went to the station, but was told I can't donate blood because I have to take iron. So I stopped taking iron for just a few days, then the doctor checked my blood and it was already really down. So I have to take it like everytime and can't stop. And as long as I take it, I can't donate blood and I am so so sad about it!i would love to donate blood. Its so sad lol

[@amyslife4457]

Nova Mae your amaizng! Thank you! 🙏🏼💕💕

[@cathcoll7961]

Nova Mae Thank you You save many lives

[@alysonjade2461]

You’re such a good friend to those lucky enough to know you in person!!! You’re also so sweet to us, your KZbin family. We love you!!!

[@EvilPeanut1102]

I can't be the only one that says 'yeah' in time with the intro music! x💜x

[@paincreatesfame]

Not just you!

[@EvilPeanut1102]

@@paincreatesfame Every time! Lol x

[@amedeetje]

Hi Amy, I'm very new to your channel and I'm watching as many of your videos as I can to get the full idea of everything that is happening in your life. It's so much I just can't wrap my head around what you have to deal with! You're so strong and I find your vlogs so interesting and inspirational! I hope you have a great week x

[@ashleyjackson8595]

I am addicted to watched this channel each day and night.

[@okjessicah]

So happy to see a video from you today! I just got home from my colonoscopy and your vlogs always seem to cheer me up ♡♡♡

[@VxMyaxV]

Just a little tip, even if your skin is not dry you should still be using a moisturizer after you wash your face! If you don’t moisturize it can actually cause your skin to break out, even if you have acne prone or oily skin. Especially if you’re using a spot treatment as well! There’s a ton of really good moisturizers at the drug store, my favorite is neutrogena. Hopefully that was helpful even though it was completely unsolicited advice lol!! Really enjoyed the video, love you!!

[@OK-hi5ym]

Rachel’s accent is just perfection, I could listen to her talk allllll day

[@jenniferw1595]

Mecca Maxima looks like a store we have in the US called Sephora.

[@isabelladowsey-mclaren3698]

Jennifer W we have it to, Mecca maxima is just better

[@silc.1002]

Couldn’t wait to talk to my subs family and Amy I got Toms merchandise I’m so happy again I highly recommend the jumpers they are made of the highest quality material. It literally feels like a newborn’s bum please buy there merchandise you will not regret I’m getting another Amy’s jumper or sweatshirt in the USA 🇺🇸 plus they are so economical thank you Amy and Tom

[@eafj90]

My dad’s TPN has always had a silver bag over it - I suspect they use the same type for all TPN within the same health district regardless as it’s just to protect from light.

[@wiktorianowak1096]

I'm really happy that i found your channels a few months ago, and now I'm finally getting to my doctor for suspected hEDS and POTS, and you've been a crutch to me recently. Thank you for educating people about chronic illnesses

[@deniz_dee]

Oh gosh a maintenance guy was killed by the coffee vending machine in my uni last year. He was found at night time when there weren't many people walking about and I think the verdict was he was electrocuted which made his heart stop. There was some charring on the floor around the machine too. I was very reluctant to use those machines for a while and I still just press the buttons right in the middle of the plastic cover.

[@imtherealnsa]

Tom: "You're more likely to get bitten by another person, than you are to get bi-" AD 🙃

[@cathcoll7961]

When anyone starts a new thing It takes time to build confidence Rachel will get there ❤️

[@edsawarenesschannel]

Thank you

[@cathcoll7961]

The Painted Zebra (EDS Awareness) Your very welcome. Just believe in YOU. Then the rest will come 😀

[@edsawarenesschannel]

Cath Coll thank you! I am trying!

[@cathcoll7961]

The Painted Zebra (EDS Awareness) It took me till my 30s to gain my confidence to speak in front of groups of people. Look at what you have already achieved Each small step gets you closer to your goal You will do well 😀❤️

[@edsawarenesschannel]

Cath Coll thank you so much!! I have always loved public speaking

[@5p674]

Rachael has gorgeous eyes!

[@ElizaPrior]

admire your strength so much ❤

[@hannahw6561]

Hi darling, I’m in aromatherapy school, be careful where you buy oils. The only ones I trust currently (because they provide lab testing) is plant therapy and aromatics. Be sure when you pick out lavender that it has the Latin name “Lavandula angustifolia.” Other lavenders, such as spike lavender can cause issues with certain health ailments like epilepsy. Always dilute (5 drops per 30ml/oz is a good low 1% dilution... most recommended in people with chronic health issues), if you do use them neat (undiluted) do not do it often as it can cause you to develop an allergy. Personally vetiver puts me to sleep. First time I ever studied it (had to take a few nice Wiffs hahaha) I had to lie down for a nap. I’m also a potsy/mcas patient. Lots of love ❤️❤️

[@hannahw6561]

Ps... i also use vetiver in inhalers for people for panic attacks... works pretty good! So does bergamot (which is phototoxic so better for inhalation or use on skin that will not* be exposed to the sun), bergamot smells delicious (citrus) vetiver smells earthy.

[@kalisamagalski7804]

I have one trough MedicAlert. It has all your medical information ie allergies, disabilities, other emergent things. They assign a number, it has a 1-800 number that first responders or hospital can call. They give you a wallet card that has all the information as your bracelet as well as emergency contact, meds, missing person information. They send you 2 card so that you can give it to your significant other

[@ashleyjackson8595]

I should have been need to have my own MedicAlert bracelet because I had a cerebral palsy and autism since I was a little girl.

[@samf2539]

Death by vending machine is usually people shaking them because their food got stuck or they’re trying to get free food and then it falls on them usually! I know really dumb facts...

[@elanagreene1104]

Definitely get a good moisturizer. When you are treating acne most products dry your skin out and causes acne to get worse (even if you are oily) . If you are not moisturizing your skin also will over produce oil to over compensate for stripping your skin of its moisture while cleansing. I work in the beauty industry as a makeup artist however i have a huge focus on skincare. Home this helps. Keep in mind not all acne is bacterial. There is hormonal acne as well. They are actually treated very differently. If its bacterial than using a probiotic such as greek yogurt on your skin. Unfortunately hormonal skin issues are harder to treat however i found that the eminence eight greens (hot) mask helps astronomically! It has paprika which brings oxygenation to the surface of the skin (which makes bacteria harder to grow) it also has a high natural estrogen which helps target the hormonal breakouts! Good luck. You look great. Keep up the good work :)

[@impuriia]

You need color correcting concealer and/or full coverage concealer/foundation. I use an orange color corrector for my dark spots and then put my concealer + foundation over it and they're hardly visible unless you look VERY close lol

[@rebeccahwark8838]

The trick with setting spray is to use a beauty blender and press it into your skin.💜

[@rainyrainold]

I always thought I had oily skin. I started moisturizing and my skin is completely normal now. It turned out my skin was so dry that I was overproducing, once I evened that out my pimples almost completely went away except for a few tiny ones before my period. PLEASE MOISTURIZE after you wash. Try it for 10 days, you might have an "aha" moment.

[@jodiebates3103]

Hey Amy! In future wait for the NARS concealer from the UK when you see people from the UK or come back as it’s only £21.60 here!!! X

[@eafj90]

Jodie Bates that’s only slightly cheaper - with the current exchange rate that’s about $40 here!

[@WorthyMissJ]

Mecca Maxima is like a stand alone Sephora for those of us in the USA

[@janadams2978]

Hi Amy, love the idea of interesting facts, you should do it Tom, maybe alternate between that and ttmygh. Love smashbox make up, it’s so worth the price I reckon.😀👍

[@ebonylowe6171]

I could use one of those bracelets. Just today I almost passed out twice and was rushed to emergency room. I do have the app ICE on my phone.

[@kimpossible7505]

Yay! I got so excited to see you posted a vlog!

[@cathcoll7961]

I hope the tapering works lovely

[@theretallickjourney7839]

I'm addicted to watching you!!

[@ashleyjackson8595]

I am addicted to watching this channel each day and night.

[@ebonylowe6171]

Just know you are beautiful even without all that make-up.

[@janpulham2210]

I love Tom

[@jessthehorse2254]

Rachel's accent is amazing!! If I pick up anything heavier then about a clarinet, my arms will particularly dislocate and I have frequent dislocations and sprains. I have POTS and I don't really know if I have EDS....... What are.the odds???

[@LFlowers36-o3p]

Melanie lives approx 10 mile away from me. She was doing well following surgery in 2017 but has suddenly become unstable again. She now requires urgent surgery in Spain. Melanie's Mission To Live- Ehlers-Danlos Syndrome on Facebook.

[@celiaatkinson9621]

1000 ways to die was a show in the US.

[@traceywatson2092]

Death by vending machine...is a real thing. People shake the machine if their selection doesn’t fall to the bottom. Some shake it hard enough that it falls on them. Is a candy bar really worth it? 😳

[@dinosaurfun5965]

Amy, I saw on TV someone who had sepsis through a blocked and infected picc line used for tpn, it had happened so many times that they couldn't change the line, so they flushed the line with several different types of antibiotics into the patient, she was back again with the same thing a few months later, I guess she wasn't adhering to sterile procedures!🇬🇧👍😊

[@rmjames83]

Ur totally right! We all have to start somewhere!! I’ve Subbed to Rachael!! The spelling of our name is a bit unusual-so I’m stoked to find another Rachael-spelt the same as me!!!

[@samboling8339]

If you use a green corrector on your spots, under your concealer, you'll negate the red. Yellow will negate purples...

[@mrsvalentine5472]

Oh gosh, Amy. Having one of those days where I feel like noone around me gets it at all. Laying on the sofa with my legs up as I'm feeling so shaky today. I know noone with hEDS. Then I realised, I'll just watch Amy on KZbin! 😂 😘

[@juliannedavenport]

My dad can’t sleep with the lavender either, keeps him up.

[@pistacho_camel]

Amy in the car you spoke so fast that I almost went crazy hahaha I wish you had a translation into Spanish :( Tom is so funny, you make me happy! Greetings from Venezuela

[@ti2gr475]

Having worked at a company that made vending machine, the most stupid people do is tip them. They weigh a LOT and if you tip them too much they will fall over and crush you.

[@cathcoll7961]

So glad your doing ok Lovely

[@chloeselina9061]

Love your videos so so much! The only person I have notifications on for💗xxx

[@amyslife4457]

Backpacks and Flapjacks means a lot! Thank you ❤️❤️

[@lisaioannou6758]

Missed you. Good to see you and Tom.

[@graceblackett5052]

OMG my BF always seems to call when I'm asleep too. I'm gonna start texting him to tell him I'm napping! Good idea! 🦓🦓

[@livingwithhope235]

I subscribed to her :) Of course I’ll support her too!! ❤️

[@maryreynolds5310]

Always good to see you Amy! Love you too xo

[@kecrn4132]

What is the temperature like in Australia right now?? Your winter doesn’t look too bad!!!

[@Katie_Jo_21]

Thnx to you I read the five feet apart book. So so good!

[@ljpebz5014]

I've got a 'banana' powder that reacts with any setting spray I use.... a colleague pointed it & said.... 'have you been painting...' 🤣🤣🤣

[@penelopepolinsneemeyer4757]

Great video Amy xxxx

[@EllaJane1992]

I used no7 foundation and Avon concealer 👏🏼👏🏼

[@imogenoliver]

Totally Agree five feet apart is really good. Where is Harry Potter on the top five movie list?

[@laurawinchester8162]

You are truly an amazing person

[@ForeverLostInBook]

actually, in my residence hall, there was a guy who died from being crushed by a vending machine in 1998... that's how... love your videos, as always

[@rae1957tn]

I. Need to move there from May - Sept then come back to USA Sept - May as I hate the summer heat. I have Adrenal Insufficiency and it’s killing me this year. I have a medical ID like your gold one I got it from Amazon everyone loves it and can’t believe it’s a medical ID. .

[@melb6947]

I get taped up and taped down the start and end of each tpn if I dont getting off tpn my blood sugar can drop as low as 20 even on tpn I'm 23.5 (24) hr tpn my BSL can get to 20-70 I have D50W which is a dextrose 50 in water iv push. I have hypos it runs on my dad's side and my moms side is diabetic.

[@debraann9512]

I like the makeup 💛💛💛

[@cathcoll7961]

Lovely medical ID

[@bexnicexgirl]

Things that make me go "hmmm": do people deaf-from-birth think in images or sign language?

[@cassandrarumbaugh2896]

Shape tape from tarte ❤️ life saver lol

[@janegreen9378]

Lavender does nothing for me too!

[@Lil_sad62]

Oh my god you look so good 😍❤️❤️❤️

[@katg3024]

I was very confused about her saying that winter is here until I looked at her PO Box address and saw that she lives in Australia.😂😂😂

[@ButterflySimmer]

Have you got more news about your immune system condition? Good luck for your surgery date 😍.

[@施鹏-r6c]

i love you I LOVE YOU

[@Madijo70]

💜

[@cathcoll7961]

Good Night to you and Tom Love and Blessings ❤️❤️

[@MK-lv9no]

About getting your hand stuck in a vending machine.. 😂 What you try to describe actually does happen, only the toxins and the myoglobin from the destroyed muscle affect the kidneys mainly causing acute kidney failure. It's called rhabdomyolysis!

[@ebonylowe6171]

I subscribed Rachel.... I hope you'll have some beginner make up videos. :)

[@edsawarenesschannel]

Thank you! Definitely will do

[@alicce1248]

❤️

[@cathcoll7961]

Subscribed to Rachel’s channel

[@edsawarenesschannel]

Thank you

[@ayanneih]

Tarte shape tape!

[@eduardopadilla5505]

Things that make you go mm by you XD hahaha Keep laughing lots Amy! :D

[@Lucsaffron]

love you girl

[@sapphire842]

Hey Amy , if that ok I ask question, do u get bones assessment ? , I am wait for update bones assessment but it wait long list in Scotland, when I was 4 year old till now diagnosis danlos hyper mobile flexible high , I don’t talk about it much , I been back and front doctors near 2 years, but now I am wait list for Bones assessment angin , I wish we could right cure , big hug , I hope u an Tom ok hun

[@the1mrsmalinski136]

What shade of concealer do you use? I would love to send you one that I love!!

[@amyslife4457]

Casie Malinski usually the lightest shades, I’m pretty pale 😂😂

[@deannafranklin9216]

I just subscribed to Rachel

[@dulcevillamil6262]

I was literally looking for a new video like ten minutes ago

[@sonicksymphony8162]

Light, medium and full coverage is generally the terms (I have very visible spots too so I know the struggle)

[@chloegould3121]

Literally only just noticed all her piercings 👂

[@bettyarmontrout724]

I need a medical ID desperately but I don't have an Instagram account. Boo boo how.

[@Angelinajoy111]

Betty Armontrout They probably have a website too. Maybe google it?

[@vampirefox9932]

when was this made its summer lol

[@Hellosquirrel]

vampire fox she’s in Australia, it’s winter there.

[@vampirefox9932]

@@Hellosquirrel oh ok haha

[@nastroeniednja]

👍🏵️

[@georgia8678]

Holy heck makeup is expensive 😱 I’m actually glad I react to makeup 🤣 I’d never be buying anything else if I was buying makeup 😬

[@cathcoll7961]

Eek being bitten by people

[@alyssawssinging4039]

Hey Amy

[@cathcoll7961]

Make up 😀 I buy my lippie from Mecca 😀

[@rekyawong7158]

Vending Machine- Nado. 🌪 😅

[@cathcoll7961]

Sinus is horrid I feel for you Tom

[@lindajedeon9441]

So confused I was told you are a fake ???

[@sonicksymphony8162]

Who said she’s a fake? Not trying to start a fight just curious if you don’t mind. Thank.

[@kimpossible7505]

Linda Jedeon wow, serious?! She’s definitely not a fake.

[@audriannailski1811]

No she is not wtf

[@lindajedeon9441]

Audrianna Ilski I FOUND AMY ABOUT A YEAR AGO AND WATCH SOMEONE TEXT ME SAYING SHE IS A FAKE WITH ALL THE FAKE STUFF GOING AROUND WHO KNOWS ANYMORE BECAUSE I LIKE HER AND DO BELIEVE HER I STILL WATCH !

[@nickey081]

Amy is definitely not fake