My Daily Peritoneal Dialysis | TUTORIAL (Amia Machine)

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Dawn Raven

Dawn Raven

Күн бұрын

Пікірлер: 1 000
@DawnRaven
@DawnRaven Жыл бұрын
Manual PD Dialysis Tutorial (Home Dialysis w/o the machine) WATCH THE TUTORIAL HERE: kzbin.info/www/bejne/rp7LaJaOjpeWlcU
@MegaScuba01
@MegaScuba01 Жыл бұрын
Amazing video. Thank you for sharing. This information will help so many people.
@ericamiller3585
@ericamiller3585 Жыл бұрын
You're an awesome Nurse Educator and SHEroe!!! Godspeed Beautiful ❤❤❤❤
@claudialawson3656
@claudialawson3656 Жыл бұрын
why do you do dialysis twice a day..I may be starting too soon but I was told I would do it at night only I was just wondering thanks for the videoyou are very good..
@SavvyLiaison30
@SavvyLiaison30 Жыл бұрын
Hi, l read your question it's good 👍. I'm stage4 and I'm trying to prepare myself for this new world of PD that's coming . I have to start making changes in my home to make sure things stay in order and sterile. Thx u for your question 👍✌️👋
@sassyscorpio8885
@sassyscorpio8885 4 ай бұрын
WA​@@ericamiller3585
@chargenurse1865
@chargenurse1865 3 жыл бұрын
I just wanted to let you know that I’m now 10 days post kidney transplant. I feel so much better already. GFR went from 3 to a GFR of 65. I remember watching your videos and I would have so much hope. You are truly a beautiful soul on the inside and most definitely out. I pray that you receive your transplant soon and live your life. Thank you so much for sharing your kidney disease struggle as you are so brave for doing so. Love you Dawn Evans.. Stay strong.
@DawnRaven
@DawnRaven 3 жыл бұрын
OMG REALLY!! That is amazing, I am so happy for you!!! I love that! Take care of it and remember to take those anti rejection meds! And you are very welcome!!!
@IAintY0M0mma
@IAintY0M0mma Жыл бұрын
Wow
@irisragan6048
@irisragan6048 Жыл бұрын
Thanks! My first time watching. My 82 yr young mom is about to start dialysis. I feel this form of dialysis is the way to go for her. We are all over the place with emotions. We have time but my sisters and I are trying to get in front of the unknown. With the help of the Lord, we will be strong for her.
@IAintY0M0mma
@IAintY0M0mma Жыл бұрын
Every so often I return to watch to familiarize myself since sun at a GFR if 6 and being fitted for catheter son. I’m terrified. I’m depressed. I’m going back and forth in my head whether I want to just let go and let what happens happens or to hope for a better life with Peri Dialysis. I’m so tired and feel drained everyday. I have 2 older kids who don’t understand my exhaustion and depression so ignore it and 2 teens in the house who don’t know what to do but watch me sleep when I shut down half the week. I’ve given all I can I just want to stop feeing like a dead battery or used up trash. I shut myself in my room sleeping and puking every other week .
@henriettaescano7727
@henriettaescano7727 Жыл бұрын
@@irisragan6048I’m happy to read when families make time to care for family on dialysis. Praying for your patience and strength because no matter how much we try to prepare, there are so many unexpected events related to dialysis. I was on my husband’s chairside for 7 years and surprises just keep coming. Fortunately, he got a transplant after 7 years of waiting.
@CindyMoore-te2yj
@CindyMoore-te2yj Жыл бұрын
My dad was one of the first HOME dialysis patients. We had a TV crew come to our house to interview us. My mom learned how to use the machine, it was a lot different then. When my dad was connected to the machine, hoses ran down our shower and we all stayed awake listening for alarms all night while he was on it. He ran on it 3 times a week. He had both his kidneys removed and was not a candidate for transplant so he could not use the bathroom, the machine did it for him. He did pass. And mother had to much stress from him and also passed.
@DawnRaven
@DawnRaven Жыл бұрын
Bless you!! But how cool that he was one of the first to really be able to experience that and I'm sure because of his experience they learned how to make them more and more efficient! Hope you're in great spirits! sending love
@bellabrown2787
@bellabrown2787 Жыл бұрын
Sincere condolences for your loss dear 🙏🏾
@Harr385
@Harr385 Жыл бұрын
God Bless You ❤
@QueenZposton
@QueenZposton Жыл бұрын
🙏🏾🙏🏾🙏🏾
@kalisgoldsby8665
@kalisgoldsby8665 Жыл бұрын
💔
@ryanjones7202
@ryanjones7202 Жыл бұрын
As a registered dietitian that works with many dialysis patients both PD and HD seeing you take such care with your PD sessions and equipment is a breath of fresh air! Youd be surprised at how many people are very unsafe and unsanitary which further increases the already high risk of infection.
@angelalovell5669
@angelalovell5669 Жыл бұрын
I wouldn't be that surprised. This is exhausting to watch, let alone live, and when you factor in the mental health effects of chronic conditions and the fact that mental health barely gets a look in, if you're in a national healthcare situation or you have to pay for your own (if you can), it makes perfect sense that people would have trouble maintaining these standards. Ugh, and then there's the fact that you may have been on dialysis for over a decade in some cases... as tragic as it is that people are in this situation, I am not surprised. (sorry if this sounds salty and personal, it's not - I just lived with a good friend suffering through dialysis for years co-morbid with a lot of mental illness and it was tough on everyone even though he was a complete trooper)
@Bewefau
@Bewefau 7 ай бұрын
well the I risk is human error.
@aircooledvolks
@aircooledvolks Жыл бұрын
Hi Guys, I am in my 70s and has been doing Peritonial Dialysis at home times a day and am using 1.5 bags. I opted for the manual type because it is only 20 mins draining and 10 mins filling up. It’s been more than a year now and I feel really great and healthy. I still do volunteer work at a nursing home close y, do my daily chores without any problem. I have a PD machine fr Baxter but I preferred the manual so I myself can control the process instead of using the machine all night while sleeping. FOLKS..do not be scared.It is not scary . It’s just the word “. DIALYSIS”. That people are scared but it will make life healthier. GOD BLESS US ALL WHO ARE IN THIS PREDICAMENT.
@MsDF936
@MsDF936 Жыл бұрын
I heard someone call it "lifeaylsis" once and I think that is a better word.
@trustinginhim3189
@trustinginhim3189 Жыл бұрын
Thank you!
@pennyfergurson2347
@pennyfergurson2347 5 ай бұрын
It is scary i am facing this decision soon i have faith in God Almighty but it is still overwhelming feeling
@alisondawson5116
@alisondawson5116 10 күн бұрын
Really ? In your 70’s you brave brave woman doing your own dialysis at home. Recently diagnosed with kidney capacity of only 11% and feeling pretty scared. Am considering my options, you can read my story above but I want to feel like you again, I haven't felt well in ages. I went zip, straight to stage five kidney failure without any knowledge of trouble just thought I was tired until dr. Did blood test for my diabetes and my kidney capacity was under 25 ! I asked him “what the hell happened to stages 1 through four ???” Of course no answers. I’m scared but you have given me hope. I write to you from Queensland, Australia as I couldn’t find a video like this brave young woman’s one made in Australia ~~ so much for the lucky country ! Thank you, Alison 💕💕💕🐾🐾🐾🇦🇺🇦🇺🇦🇺xoxox
@filnor605
@filnor605 Жыл бұрын
You're such a brave girl doing your treatment carefully and calm. I am 73 yrs. old with CKD stage 3b. Trying to control and watch out for my diet to avoid dialysis. Hope to reach the age of 80 and I'm ready to go. Good luck to us and all kidney patients. 😊😊
@DawnRaven
@DawnRaven Жыл бұрын
Thank you!! I love the attention to lifestyle change to avoid dialysis for CKD patients. That will always be the first recommendation. Good luck to you!
@loyal_kea
@loyal_kea 2 жыл бұрын
Thank you, thank you, thank you for taking the time to share this intimate part of your life! My husband recently had his PD catheter placed and we’re about to go into training once he heals fully. This video was EXACTLY what I was looking for to help me actually see what our lives will look like. You are Godsend. I hope you are still doing well. Thank you so much.
@MikeSmith-cn6ub
@MikeSmith-cn6ub 2 жыл бұрын
Can you let me know any ends and outs I should know about this as my son just got this implanted in him and we'll be starting this prosses soon and I would love to hear your honest honest experience with this Thank You in advance and I'll be looking for your reply if you can
@MikeSmith-cn6ub
@MikeSmith-cn6ub 2 жыл бұрын
I really need to know about this prosses and what your experience was with this prosee.. thanks in advance for taking time at your conveince to tellvme how your experience has been with this process 🙏.
@MikeSmith-cn6ub
@MikeSmith-cn6ub 2 жыл бұрын
Ke ke my son has had his putbin and I was just curious about your husband's experience with this new way of doing the treatments
@DawnRaven
@DawnRaven Жыл бұрын
I hope your husband is doing well and you’re holding up to! It’s been a year so I also hope you’re adjusted well.
@BarryHewitt-wt2ek
@BarryHewitt-wt2ek Жыл бұрын
​@@MikeSmith-cn6ubof
@damnitjanet3037
@damnitjanet3037 Жыл бұрын
I did this for a bit over a year in 2016. My kidneys came back! Last week my gfr was 52. There is always a miracle.
@dragicat.s.1564
@dragicat.s.1564 Жыл бұрын
😮please more infor. Thank you
@damnitjanet3037
@damnitjanet3037 Жыл бұрын
@@dragicat.s.1564 I stayed on a diabetic diet. No dark soda of any kind. Nurse said I was only the second patient to do that in her years of nursing.
@patriciachepkemoi9892
@patriciachepkemoi9892 10 ай бұрын
That's amazing. I wish to see such a miracle happen to my son 2yrs 6 months. He is admitted with CKD and Gfr of 10. Now on PD. I have lost all hope...but the boy seem to be stronger than ever.
@lalagodinez1953
@lalagodinez1953 8 ай бұрын
Is there any possibility to stop the dialysis if the kidneys came back?
@kelseyatlow2526
@kelseyatlow2526 6 ай бұрын
❤❤❤❤❤Sooooo glad for you!!!! God bless you
@fabulousfadez
@fabulousfadez 3 жыл бұрын
Thanks for the video. I just started PD a couple of weeks ago. Its definitely a life changer. I was feeling discouraged and depressed that I have to go though this at such a young age. I felt like my life was over. Its good to see other people keeping a positive outlook while on PD. It helps me with my anxiety.
@jasonfarr1
@jasonfarr1 3 жыл бұрын
Stay strong this is one of many hurdles u will face in life I personally am not on dialysis but my ex girlfriend was and I had to do everything for her as if I was on it myself so I understand what one must go thru just know ur not alone and if u ever need an ear to bend just to vent please feel free to reach out I’m sorry that you have to go thru this and people should know the importance of being a living donor we take advantage of our bodies and take for granted the benefits of having 2 kidneys when there are people out here that would do anything just to have one that works😢 stay strong everyone🙏🏽
@Hitman7xx
@Hitman7xx 3 жыл бұрын
My mom is on dialysis and she battles with depression, I worry about her so much. It has brought us closer though atleast we can say that. Stay strong out there!
@fabulousfadez
@fabulousfadez 2 жыл бұрын
@Tron Prime Initially started with 9 hours. Now I'm doing 8 hours
@fabulousfadez
@fabulousfadez 2 жыл бұрын
@Tron Prime 7 nights a week
@kt343434
@kt343434 Жыл бұрын
Hey, are you still doing PD ? I get mine placed tomorrow and I’m nervous. What you think of it ?
@DanielMartinez-ef6pq
@DanielMartinez-ef6pq 2 жыл бұрын
I know it's 2 years later, but this is honestly really cool to see this machine in use (as much as it sucks that it HAS to be used.) I work with a company that builds these very machines (I actually worked on the doors where the cassette sits and the monitors today), so it's interesting to see it fully and in use.
@DawnRaven
@DawnRaven 2 жыл бұрын
This is the second brand of machines I dealt with and this one was by far more convenient and comfortable. You may not know it, or think of it in this way, but if you do here's a reminder...you are part of truly improving the quality of life for those with CKD!
@sandyrodriguez8397
@sandyrodriguez8397 3 жыл бұрын
Nursing student here, amazing video. Thank you for emphasizing the importance to preventing infection!
@astriddelacruz910
@astriddelacruz910 6 ай бұрын
Very true!
@melindapearson295
@melindapearson295 Жыл бұрын
EXCELLENT VIDEO!!!!!!! You would make a super dialysis nurse and an instructor. I have been a nurse for 40+ and home dialysis has come a long way!! Thank you for sharing your journey.
@DawnRaven
@DawnRaven Жыл бұрын
Wow, thank you!
@brandiholt7627
@brandiholt7627 3 ай бұрын
Im at 12% awaiting transplant approval. Been waiting 8 months now. About to start pd soon. This is a lot but you make it seem not so scary
@josephoutward
@josephoutward Жыл бұрын
Had to haul and stack those same Baxter boxes, red, green, yellow for my girlfriend of twenty years. She passed two years ago yesterday. I wish you the very best Dawn...Remember to seize the day beautiful lady!
@lewayneembry2613
@lewayneembry2613 2 жыл бұрын
I have a nephew thats doing dialysis and i can see now how important and how much preparing they go thru to practically stay alive! I pray to God that each patient will be healed thru the Blood of Jesus 😇🙏
@earniemaedeen2703
@earniemaedeen2703 29 күн бұрын
Thank you for your demonstration of this process. I am probably within 6 weeks of getting an abdominal shunt. I am 69 and have been blessed to have avoided this for 15-20 years. My daughter found your video and sent me a link. You make this look very doable and I am already well acquainted with clean technique. Wish you many more years of managing your kidney disease. Thank you.
@steveb2854
@steveb2854 2 жыл бұрын
Thank you very much for this video. I am at a GFR of 15, so I am told that I will have to do this soon while I am waiting to be approved for a transplant. I am scared to death quite honestly and the rollercoaster of emotions is just overwhelming at times. I feel like I am being swept into a version of my life that I despise.
@brianbrowne9385
@brianbrowne9385 2 жыл бұрын
I was there two years ago change ur diet hold on to ur kidneys long as possible i started dialysis when I dropped to 5%
@DawnRaven
@DawnRaven Жыл бұрын
I hope you're doing okay, would love an update.
@steveb2854
@steveb2854 Жыл бұрын
Thank you very much for caring. I have been on hemodialysis since late October and it is going as well as can be expected. My albumin level is not going up much so it is delaying my progress. I did get approved for a transplant but I have to wait for an improvement in the blood protein. I am trying to remain strong but going through it mostly alone can be tough. I will keep fighting. Thanks again for asking since that alone means more than you know.
@DawnRaven
@DawnRaven Жыл бұрын
@@steveb2854 I understand completely how isolating the disease can be. Let me ask you a question, how much would it benefit you if I held a monthly 30min zoom call for those of afflicted with this illness at different stages just so we can offer support within OUR COMMUNITY? Because believe me Steve you are not alone. Stay strong and don't give up!
@grundycountymemorialhospit2218
@grundycountymemorialhospit2218 Жыл бұрын
@@DawnRaven Yes, it can sure be isolating. If one isn't careful, you can be swept into a version of your life that you despise. I think it would be helpful to hear from people who are experiencing the same things since that can give first-hand insight. Personally, I can talk to people on the "outside" only so much because I can't expect them to understand what I go through on a daily basis. Hearing about other patient's experiences would be super helpful. I tend not to talk much at dialysis because the center I go to just isn't conducive to that and a lot of patients are elderly. I would especially like to hear about post-transplant experiences since, with any luck, I will be there in the summer.
@kathyhoogerwerf2738
@kathyhoogerwerf2738 Жыл бұрын
I am a 79 yr old woman who has been fighting kidney failure for 15 years but now time is running out for me. I am very active and have decided that peritoneal is best for me with the reasoning that the ups and downs for feeling well is les with this method. My doctors agree with this decision. My GFR 6 weeks ago was 21 and I just ho;d my breath each time I go for blood work. Thank you very much for giving me some idea of what my future is going to look like. God Bless. Kathy
@danabrajevic4913
@danabrajevic4913 Жыл бұрын
My mom is same age and in training now. You two should chat
@68elise
@68elise Жыл бұрын
@@danabrajevic4913 my Dad was playing tennis 3 times a week a month a go and now doing dialysis 3 times a week. We need to see that other active 70/80 year olds are doing PD.
@JoseLopez-yx4et
@JoseLopez-yx4et Жыл бұрын
I’m 28 years old and about to start my dialysis journey. Seeing this video and your recent videos really has me crying with hope. Thank you for sharing your experience
@Ma-gx9tm
@Ma-gx9tm Жыл бұрын
God bless you. I did my daughter dialysis in the 90s at home. It wasn't this easy then, she received her transplant then at age 12. Doing fine. May God continue to bless and protect you. It takes a lot of courage to show this publicly. Thank you for sharing.
@DawnRaven
@DawnRaven Жыл бұрын
In the 90s and she's still doing fine!! That is extremely inspiring!!
@vendraminisheppard1647
@vendraminisheppard1647 2 жыл бұрын
Hello! I am not a kidney patient, but my grandmother was one. The only problem is she waited too long to get the help she needed and if she would have done so, maybe she would be alive today. I'm very thankful for this video, you have taught me something. I feel like becoming a diabetic doctor. Everyone needs to know why it's important and how to take care of themselves. Thank you.
@Folkdawg
@Folkdawg 8 ай бұрын
Drink a gallon of lemon water everyday for three months it'll cure you
@nikkiagreen2161
@nikkiagreen2161 2 жыл бұрын
I’m so nervous. I go tomorrow to get my pd catheter installed. I’m at a center right now getting dialysis and researching. Thank you for this video. It’s overwhelming but very educational.
@Renee-ms6di
@Renee-ms6di 2 жыл бұрын
It can be very overwhelming. But it is so much better than hemodialysis. Pd gives you so much freedom during your day to be back to a semi normal life. I was quite intimidated during my training. But once you start doing it for about 2 months you'll be good at it. God bless you 🙏🏾
@tasmaniandevil7610
@tasmaniandevil7610 Жыл бұрын
Nikki’s I just had my ports installed and still a little nervous,are you pleased with peritoneal dialysis?
@priyankakapoor4193
@priyankakapoor4193 Жыл бұрын
@@Renee-ms6di Hi Renee! How are you doing now? Pls share your inputs regarding the infection risk. Thanks
@greenmouseguard
@greenmouseguard Жыл бұрын
Im getting my pd in 8 days. How are doing with everything ? Im scared Im overwhelmed Im confused aIm trying to be brave. Please give me some advice 🙏🙏🙏
@michelleheadley2911
@michelleheadley2911 Жыл бұрын
Someone tell me it doesn’t hurt still? I had w catheter flush and it was literally the most painful thing ever. I begged them to stop. And I’m supposed to go again soon. All I keep hearing is it gets better but I’m honestly terrified.
@ellenpellerine3988
@ellenpellerine3988 Жыл бұрын
Hi Dawn! I have to see the surgeon for PDcath today and am pretty overwhelmed by the whole thing. Watching you calmly going about your business with set up has put me somewhat at easy. The one the company showed looked like I couldn't possibly handle it at home, but you made me feel it's doable. Such a life changing moment to have this all happening. Kidney disease is a real creeper. It sure snuck up on me!
@DawnRaven
@DawnRaven Жыл бұрын
I hope your managing okay! Please send an update
@greenmouseguard
@greenmouseguard Жыл бұрын
Yes it is way too overwelming. I saw my surgeon & left. I called back to reschedule my catheter surgery 2 weeks later. Its real but almost too much for your brain to process and deal with. Never mind the life changes.. I will receive it in a week and 1 day from now. . Im trying to watch as many videos as I can to adjust and accept snd be possitive.!🙏🙏🙏
@haydeecastillo4621
@haydeecastillo4621 Жыл бұрын
How are you doing today
@bansisoni2293
@bansisoni2293 Жыл бұрын
Pls don’t worry. I was totally overwhelmed in the beginning, but I promise you, that soon it will become 2nd nature to you and you’ll do it in a cinch. I’m in London, and had a older machine and typed manual for instructions!😂 Good luck to both of you 👍🏾❤️❤️❤️
@dianegrimmitt4004
@dianegrimmitt4004 Жыл бұрын
I thought doing my hubby's TPN took a while to do. Great to see another person taking seriously to ensuring everything is aseptic to protect against infection
@DawnRaven
@DawnRaven Жыл бұрын
Preventing infection was my entire motivation!
@lizzybeary
@lizzybeary Жыл бұрын
Your skills are on point. I know this video is 3yrs old so I don't know if anyone has ever told you this or if you do this now, but the only thing I would recommend is putting on your mask before you put on your gloves. I see that you end up essentially cleaning the gloves when you use the disinfectant but it's a good habit to get into. You do an excellent job though.
@unclejollyroger
@unclejollyroger 8 ай бұрын
Maybe it's Davita or even the standards in my state but what i was shown for keeping it sterile falls way short from what you demonstrated. Thank you for the video
@lindamaidani5035
@lindamaidani5035 Жыл бұрын
thanks Dawn, great job! I am 75 and trying to prevent dialysis, but you made the PD not seem so bad. Hope you are doing well.
@danoconnor3720
@danoconnor3720 Жыл бұрын
I get the pd tube in a month. I'm 77 and didn't want to get a transplant. My daughter volunteered to be a donor but refused since she has a young family and may need it herself someday. Who knows what the future holds but I accept what comes.
@DawnRaven
@DawnRaven Жыл бұрын
I know many who have opted out of getting a transplant. The foresight for your daughter is admirable and loving. I hope PD gives you the healthy quality of life that gives you peace!
@davidolley7283
@davidolley7283 4 ай бұрын
Hi, I am a 76 year old man that has just been diagnosed with stage 3b / 4 ckd. i am gathering info that I feel might help me in the future. Can I just compliment you on your presentation. It was the best and most helpful that I have seen. I will be following your other videos. Well done and thank you David Olley France
@dwaineaustin44
@dwaineaustin44 Жыл бұрын
Hello. Thanks sharing I'm 6yrs into doing dialysis, tried home treatment for a hot minute , long story short, I got infected. Decided to go back to the center for treatment, long story short , decided to give it another go...have been in training for the pass 2weeks. Expecting to start next week with home traing....again thanks for the video and the encouragement from the other posting ...WE GOT THIS !!! GOD BLESS
@destinybergeron9092
@destinybergeron9092 2 жыл бұрын
I’m about to learn how to use this machine I’ve been doing it manually. I love seeing someone younger like me doing this. It makes me feel better
@AngelGilbert-c4y
@AngelGilbert-c4y 3 ай бұрын
I saw a guy doing the peritoneal dialysis manually. No machine. And it finishes faster when lying down. He does it 3× a day. Bless the hearts of all who do this. I find it so hard and expensive if not covered. I wish you the best.
@leac.s.2334
@leac.s.2334 3 жыл бұрын
As a paediatric nurse this was really helpful! I just met a baby boy with kidney struggles who’s also on PD and I’m thriving to learn more about this type of treatment
@DawnRaven
@DawnRaven 3 жыл бұрын
I’m glad!! I love nurses who have that dedication.. thank you for your service
@kennymartin7877
@kennymartin7877 4 ай бұрын
I did home hemodialysis in 87. I did my own needle sticks. I was 11.
@Youngboldandregal
@Youngboldandregal 4 жыл бұрын
You are such a champ! 🙌🏾 You’re a fighter and we love your spirit! Sending you well wishes
@evon5289
@evon5289 8 ай бұрын
You are beautiful strong woman and my Prayers are with you. My brother in law went through the same thing and was Blessed with a kidney after 15 months and he’s doing so so much better. GOD BLESS YOU SISTER🙏🏽🙏🏽🙏🏽🌹
@rox2346
@rox2346 Жыл бұрын
Thank you for sharing this part of your life with us. May you continue to thrive.
@DawnRaven
@DawnRaven Жыл бұрын
Thank you for watching!
@lakeviamcclelland9224
@lakeviamcclelland9224 Жыл бұрын
I was the caregiver of my uncle who was a double transplant recipient (liver/kidney) in 2012. He spent a year in dialysis prior to this and was in ESRD. It was tough couple of years & I learned a lot. Here we are in 2023, and now my momma (his sister) was recently diagnosed w/ CKD and she’s gone from stage 3 to 4 within 6-7 months as she was trying to establish care. Her quality of life has improved drastically now that we have the “smoking gun “ but we’re all in shock, fear because…not only are we going through it again…but it’s my momma this time. Thank you for sharing your journey. As her primary caregiver I’m trying to learn as much about these different treatments as that is her next phase. ❤❤❤
@DawnRaven
@DawnRaven Жыл бұрын
You are a tremendous blessing to them! I hope you yourself are also doing well!
@RicaRee1991
@RicaRee1991 2 жыл бұрын
This was so informative! I’m a hemodialysis in center nurse and I always wanted to crocs over into home hemo and PD! I looooove how you are so involved in your own care and super attentive to infection control.
@meanderingmaggie8821
@meanderingmaggie8821 Ай бұрын
🦋 Beautiful job explaining your process and self care! I’m watching so that I may be able to help elderly friend who is hoping to do home dialysis. It seems overwhelming right now, but you’re so calm and thorough. I hope to be this calm and care-filled with my friend. Bless you!
@RealMexFoodShouldntGiveUDrrhea
@RealMexFoodShouldntGiveUDrrhea Жыл бұрын
Wow! My dad went to a center to do his dialysis 3 times a week for 4 hours. It was detrimental to his mental and emotional health. He’s 1 year post kidney transplant and he’s doing much better. I used to watch these videos to try to learn as much as possible. I have so much admiration for anyone going though any stage of kidney failure.
@chadstreamsam1700
@chadstreamsam1700 Жыл бұрын
I'm currently at the hospital in a bigger town (my town doesnt have the specialists) and i'm given a choice to either to automatical dialysis every day or come here from another town 3 times a week (for free).Idk which to choose,first option i have cats i love and im afraid they might do something bad,second is travelling every week.What's your dad's experience about it?Would he do automatic dialysis instead,thinking about it now?
@xyndijade2864
@xyndijade2864 8 ай бұрын
Thank you, sonmuch for sharing! My husband is going through this, and like you he is very fit. I'm trying to convince him to get PD, but he says he can't be active with it. I am going to let him see this video, and you, in an attempt to persuade him. This is an unfortunate condition to find yourself, so its very meaningful to me to see somoene dealing so well with this. Thank you so much for sharing! It matters!
@lyletanner744
@lyletanner744 3 жыл бұрын
Thank you so much. I go into the Hospital Thursday 11/21/ 21 for the port for my PD. I'm not as unsure as before thanks to your video. My thoughts and prayers are with you as you and I walk through the same Forrest.
@DawnRaven
@DawnRaven 3 жыл бұрын
Good luck to you! You'll find your rhythm in it.
@lauralasko1705
@lauralasko1705 4 ай бұрын
Your tutorial is very good and I learned quite a bit. My daughter had a port a cath when she had cancer so I understand about how easily a person can get an infection if you do not sterilize everything properly. This is so nice of you to create these videos for people to learn from. Thank you !
@laquandabaker9515
@laquandabaker9515 2 жыл бұрын
My God sister just got her access today and this looks like a lot. Praying for you.
@sunnynsydney4705
@sunnynsydney4705 Жыл бұрын
Prayers for you and your sister.
@talapeanutbutter4250
@talapeanutbutter4250 Жыл бұрын
I find it very interesting. Not only do you follow the directions, you go above and beyond just to be sure you won’t get an infection! Great going and thank you for sharing! May God continue to watch over you! 😇
@DawnRaven
@DawnRaven Жыл бұрын
Thank you so much
@dellawhite7606
@dellawhite7606 4 жыл бұрын
Hello Dawn This is a great video.Very informative and easy to follow.I'm a dialysis patient as well and have been for 6 years.I'm doing in-center dialysis.I'm going back and forth about doing home dialysis.You make it look so easy.You didn't mention if you were on the transplant list or not.I'm not eligible for a transplant because of other health issues so dialysis is it for me.If you are on the transplant list I hope you get one soon.If you are not, keep making these videos and letting us know how you're doing.You're helping a lot of people and you may not even know it.God Bless you and stay safe
@DawnRaven
@DawnRaven 4 жыл бұрын
I am on the list, if you don't mind me asking what makes you ineligible? But thank you for the message it really inspires me to keep making more videos.
@haydeecastillo4621
@haydeecastillo4621 Жыл бұрын
How are you feeling
@blahblah2176
@blahblah2176 11 ай бұрын
@@DawnRavenother health issues, like heart and diseases/infections.
@ambroseavery5229
@ambroseavery5229 3 ай бұрын
Thanks for sharing. I’ve been on hemodialysis for about ten months now. I’ve seen some comments that folks are so anxious & dreading going through the whole ordeal that they are about to have a “nervous breakdown!” I can assure you it’s not a death-sentence folks. There’s no pain involved w/hemodialysis, you basically just have to sit there for four hours, three times a week. The center I go to has your own personal TV, w/cable that you can watch, (which to be honest, is what you’d probably be doing anyway!) There’s no pain involved, so you don’t have to be anxious. I’ll be getting my port to start home PD in a couple of weeks, so this video was very helpful, & informative. Thanks again!
@Photography333
@Photography333 Жыл бұрын
I do my pd 5 nights a week. My eGFR is 15 since I started it I started at 10 so I am a little higher. It’s just like you got here. I am way older I am 58. I don’t pray but I do hope , perhaps one day I’ll find a donor. Nice video!
@priyankakapoor4193
@priyankakapoor4193 Жыл бұрын
@Duane Loya- Hello , pls share your views on infection risk too. Thanks
@KristinaChestnut
@KristinaChestnut 2 жыл бұрын
I'm at stage 5 and will be starting dialysis soon.I'm not excited about it,but I'm watching a few videos to know what to expect.
@trustinginhim3189
@trustinginhim3189 Жыл бұрын
Me too. How are you now?
@KristinaChestnut
@KristinaChestnut Жыл бұрын
@trustinginhim3189 I'm doing ok.i had an additional surgery to fix the vein that had narrowed'its fine now.How are you doing?
@trustinginhim3189
@trustinginhim3189 Жыл бұрын
@KristinaChestnut I'm ok. I'm probably going to start out with PD versus hemo. I was interested in hemo, but I had stage 3 breast cancer in 2011 and had 31 lymphnodes removed in my left arm. With hemo, I'd need the fistula in the rt arm, my dominate arm and I'd have no arm left for blood pressure and blood draws because you can't use an arm for those things with no nodes. I'm nervous. I work part-time and hope I'll be ok to continue because as you know, inflation is killing us all. Thank you for letting me know how you are. Are you able to still lead a normal life in spite of the time consuming dialysis?
@KristinaChestnut
@KristinaChestnut Жыл бұрын
@trustinginhim3189 wow,that's gotta be rough.I'm sorry you've had to go through so much.I haven't started dialysis yet.My kidney function is at 15% right now and I'm trying to prolong the need for dialysis for as long as I possibly can.I need to lose some weight but I am always so tired with little energy.
@trustinginhim3189
@trustinginhim3189 Жыл бұрын
@KristinaChestnut I'm right with you. I'm at 16%. I'm trying to cut out dairy and meat because I heard that helps. It's really hard. And, yes, the tiredness is difficult. Do they give you iron shots yet? I see my doc on the 31st. Not sure how low our iron has to get in order to get iron shots. This may help you. New symptom: itchy, flaky, scalp. Frustrating. Kristina, I'll add you to my prayer list. I pray the Lord will heal us, or use this somehow in our lives.❤️
@AmonBreen
@AmonBreen 2 жыл бұрын
Thank you Dawn this is really helpful. I had a preemptive transplant 7 years ago and now my graft failing with GFR 10, so will be on PD soon until hopefully I go on the transplant list. I understand how scary and unsettling dialysis is, but lucky for us CKD patients, there is a way to survive and keep going on.
@DawnRaven
@DawnRaven 2 жыл бұрын
It's actually such a blessing.
@luthervannsessomsjr8362
@luthervannsessomsjr8362 Жыл бұрын
Dawn, thank you for the feedback , I've been looking also at the artificial kidney, when it's ready, thanks again and live well.
@davidimhoff2118
@davidimhoff2118 Жыл бұрын
I'm sure this was recommended because I had a kidney transplant in 2007. I actually had a heart transplant in 1997. Being so far out I don't check my blood pressure as often but I will be on blood pressure meds for life. Just as you know. Because my mom new immediately that she was donating we chose to do the dialysis where I drove 40 miles into a Boston, MA Monday, Wednesday, and Friday. We could of done this but I'm glad we didn't because it's a lot of work. Plus when they fit me for the port and I came out of the surgery they immediately put me on dialysis because they stated it was worse than they thought a thing the time. To this day I gained 30 lbs from Covid so I have to watch my sugar and what I eat to make sure everything runs normal. I saw the thumbnail of you getting a transplant. I'm very happy for you. I will take a look at that video too. I am actually disabled because after my kidney transplant my energy dropped and all the spots where I've had procedures and surgeries started to hurt. It's rather depressing.
@davidimhoff2118
@davidimhoff2118 Жыл бұрын
It's important to say that you disinfecting everything is so smart. You don't want infection and your extra steps are VERY smart.
@DawnRaven
@DawnRaven Жыл бұрын
I know with your bp it can be tricky but what about working/ doing cardio? You think that may work help with your overall wellbeing- maybe low impact workouts like swimming or riding a bike?
@Jordan-gd9or
@Jordan-gd9or Жыл бұрын
I just wanted to send some hope, strength, love and prayer to you. My mom was on the exact same thing and its very hard. I sadly lost her on New Years Day 2015 to the disease. Keep strong beautiful!
@PatriciaBattles-q9s
@PatriciaBattles-q9s Жыл бұрын
Great informative video. I am a retired nurse who used to work in hemo dialysis and peritoneal dialysis. Wow...the capd equipment has surely changed. You do an amazing tutorial.
@12mryeah
@12mryeah 3 жыл бұрын
Keep fighting, keep grinding, keep blessing. You are an amazing and brave woman!!!!
@DawnRaven
@DawnRaven 3 жыл бұрын
Thank you so much!!
@symplypeechie6496
@symplypeechie6496 11 ай бұрын
Thank you for this video. My son was just diagnosed with critical kidney failure and has started dialysis in the hospital. I am so scared of what happens once he’s discharged from the hospital. This video eased my mind a lot. Thank you again!
@jasonfarr1
@jasonfarr1 3 жыл бұрын
I love the steps you take to keep everything as sterile and clean as possible my ex girlfriend was on dialysis and she couldn’t grasp it for some reason so I did everything for her and it would always aggravate me how everything was like a joke to her especially the cleaning aspect of it I would have to basically yell at her and constantly tell her how important lt is to keep everything clean so she didn’t catch an infection 🤦🏻‍♂️
@DawnRaven
@DawnRaven 3 жыл бұрын
No, nothing funny about it. too many infections can cause you to lose your port or even worse. Glad she had you.
@jasonfarr1
@jasonfarr1 3 жыл бұрын
@@DawnRaven thank you 🙏🏽 I sent her your video maybe it will motivate her thank you for the video!!
@sunnynsydney4705
@sunnynsydney4705 Жыл бұрын
@@jasonfarr1 you’re a good guy, even if you guys broke up you still care about her.
@jasonfarr1
@jasonfarr1 Жыл бұрын
@@sunnynsydney4705 thank you 🙏🏽
@priyankakapoor4193
@priyankakapoor4193 Жыл бұрын
@@jasonfarr1 God bless you 🌸 it's so so kind of you to take care of her upto this level. One quick question- did she ever catch infection by any chance?
@helenbradford2569
@helenbradford2569 Жыл бұрын
She's so beautiful. And there are do many steps I can't believe she does this by herself. Good job.
@fasamah.kollie8767
@fasamah.kollie8767 Жыл бұрын
You are a blessing on to those who share similar story but I’m proud of your steps. Keep up your good work and thanks for inspiring generations to come and bringing hope and sense of living. I’m Fasama from Liberia 🇱🇷
@christaq3528
@christaq3528 Жыл бұрын
Adding your channel because you are an amazing, resilient, and powerful individual and I want to learn from you, tap into your strength vicariously ❤
@DawnRaven
@DawnRaven Жыл бұрын
Sending you all of the strength you need!! Thank you for the sub 💕
@christaq3528
@christaq3528 Жыл бұрын
@@DawnRaven thank you so much 😊😊
@jeff824
@jeff824 2 жыл бұрын
Thanks, Dawn. My wife and I just watched your video. I'm 69 and just got out of hospital with pneumonia, ckd and A-fib. We think we will go this route over the hemodialysis . Chair availability is tough right now and I didn't want to live in the hospital for several months. PD hopefully will solve some of my issues. Best of luck, Dawn.
@DawnRaven
@DawnRaven 2 жыл бұрын
Hello Jeff, PD can be tedious at first but with the motivation of staying out of the hospital And having more quality of life you can do it
@kristykorte4866
@kristykorte4866 Жыл бұрын
You are a hero I'm going to send this to my sister-in-law in St Louis
@DawnRaven
@DawnRaven Жыл бұрын
Yes have her sub!& thank you!
@KurrstineA
@KurrstineA 3 жыл бұрын
Thank you so very much for sharing this! I’m a nursing student and we don’t learn very much about this treatment unless we specialize. My dad is starting PD in the coming weeks and my mom and I are trying to adjust. It’s all very overwhelming as he had a stroke a few years ago and his CKD progressed to stage 4. I commend you for your great attitude and education on this. Thank you from the bottom of my heart!
@DawnRaven
@DawnRaven 3 жыл бұрын
You are so welcome, this message right here is the exact reason I started this KZbin. I will say that this is a lot to do every day and can become overwhelming at times, so the support from you and your mom will help tremendously. But if consistent, he will be absolutely fine. It gets easier!
@KurrstineA
@KurrstineA 3 жыл бұрын
@@DawnRaven thank you so much for this
@KurrstineA
@KurrstineA 3 жыл бұрын
@@DawnRaven can I ask you where your dialysis supply cart is from?
@DawnRaven
@DawnRaven 3 жыл бұрын
It was apart of my first home dialysis delivery, but I was living in Los Angeles at the time and going to a Davita clinic. If you dont receive I have some Amazon suggestions of similarities in the description of the video.
@KurrstineA
@KurrstineA 3 жыл бұрын
@@DawnRaven thank you so much! We are in Los Angeles too but we are going through Baxter to do the home delivery. I will look into it I appreciate the feedback
@DawnRaven
@DawnRaven Жыл бұрын
I recieved my living donor transplant on September 1st, 2021 WATCH THE VLOG HERE: kzbin.info/www/bejne/nqmzpaqAha-FpKM
@lisabaxter7786
@lisabaxter7786 Жыл бұрын
Congrats a billion blessings
@mohammadamir541
@mohammadamir541 Жыл бұрын
wow good for u
@yabayehvlog.2431
@yabayehvlog.2431 Жыл бұрын
Congrats ❤❤
@henriettaescano7727
@henriettaescano7727 Жыл бұрын
Congratulations! Praying for continued healing and happiness with your new kidney. My husband will have his 5th anniversary of kidney transplant this month. It’s a new life!
@katbrown1449
@katbrown1449 Жыл бұрын
🙏
@kibaik2280
@kibaik2280 2 жыл бұрын
Thank you Dawn. I do both machine and manual depending on my schedule. This video is great because it allows me to see other patients and how they deal with their sterile process. It's funny to see those damn familiar boxes that take up so much space.
@DawnRaven
@DawnRaven 2 жыл бұрын
You're very welcome.
@andregonsalvez9244
@andregonsalvez9244 2 жыл бұрын
Wow you take care ! I go to the hospital for my dialysis . I have been on dialysis for 5 years now . Stay strong and positive.
@patriciaensey8601
@patriciaensey8601 9 ай бұрын
I have heard many say they could not do all at home and also so correctly so they go to the hospital to and get it done .
@jasongobert5678
@jasongobert5678 2 жыл бұрын
I have my surgery in the morning I'm nervous and scared right now. I'm just staying positive
@Jackster310
@Jackster310 Жыл бұрын
RESPECT to you. For dealing with your situation with such grace and for helping others with your videos.
@DawnRaven
@DawnRaven Жыл бұрын
Thank you for that!!🫶🏽
@loindagubatanga4680
@loindagubatanga4680 3 жыл бұрын
Hi, Dawn! You are sych an inspiration. You are giving me a lot of strength. Tomorrow is my PD catheter insertion surgery. My egfr went down to 6. I'm a bit scared but thank you for your tutorial. This is very informative. Hopefully everything is doing well for all of us soon.
@DawnRaven
@DawnRaven 3 жыл бұрын
Hope your surgery went well and that you get along amazing doing PD.
@loindagubatanga4680
@loindagubatanga4680 3 жыл бұрын
@@DawnRaven it's the 3rd day after my surgery. The 1st & 2nd day was hard. I vomit many times and was in pain. I was reluctant to take pain killers but i have to in order to move around. I was able to poop the third day and it made me feel great. I can do this with the support of my husband and my 3 children. Thanks, Dawn 😊
@RidaMoLive
@RidaMoLive Жыл бұрын
@loindagubatanga4680 how are you doing? Are you currently on dialysis? I pray all is well with both of you ladies.
@shaunbourne4158
@shaunbourne4158 Жыл бұрын
Hello, I just came across this video I went through dialysis for 7 years finally 2017 I was Blessed with a kidney. Not sure if you are still doing treatments but I will keep you in my Prayers wish you the best this takes so much out of you but you can do it as we see . God Bless
@DawnRaven
@DawnRaven Жыл бұрын
Thank you so much! I actually did receive my new kidney!
@1980starjustice
@1980starjustice 3 жыл бұрын
Dawn, you are awesome💯….I’m on the cusp of being placed on Dialysis as my kidney function declined rapidly in the past year since COVID….Gfr fell below 6% and I’m on the ropes on whether to do hemodialysis or Peritoneal dialysis…I’m really leaning toward “peritoneal” for the convenience for I’m a very extremely busy guy with a hectic schedule and your video has given much needed insight…and for that I thank you. Your strength, courage and fight has truly been an inspiration….never been depressed or sad about my diagnosis in 2015 at stage 3…. It’s the discipline and commitment to do this faithfully everyday without fail that’s challenging because if I’m tired one night and decide to skip home treatment there are serious repercussions that I fear.
@DawnRaven
@DawnRaven 3 жыл бұрын
Those are the options to weigh. For me, it truly has become part of my routine. I try not to look at it like an inconvenience and instead a way to exercise my freedom. But continue to look at pros and cons, make a list and I'm sure you'll find your answer. Goodluck.
@1980starjustice
@1980starjustice 3 жыл бұрын
@@DawnRaven See, I love your attitude and approach with this….you’re a God send 🙏🏾❤️❤️❤️ thank you Dawn. I’ve subscribed to your channel…it’s very educational, inspirational and motivational. 💪🏾❤️💪🏾.
@galaxyearth60
@galaxyearth60 2 жыл бұрын
Here's some helpful information most doctors don't give their patients. Remember it's YOUR choice of what type of dialysis to get and with hemodialysis, you can have more freedom, more choices. The National Library of Medicine The start of dialysis treatment is a critical step in the care management of chronic renal failure patients. When hemodialysis is performed three times a week, rapid loss of kidney function and of urine volume output generally occur and this represents an unfavorable prognostic factor. Instead, reducing frequency of hemodialysis sessions, as well as peritoneal dialysis, can contribute to a lesser decrease of residual renal function. Unfortunately, the existing protocols for an incremental hemodialysis approach are not particularly common and they are generally limited to a twice a week hemodialysis schedule. In addition to clinical and economic reasons, an incremental approach to ESRD also contributes to better social and psychological adaptation by the patients to the dramatic change in living conditions linked to the maintenance dialysis treatment. In patients who have attitude for low-protein nutritional therapy, a once weekly dialysis schedule combined with low-protein, low-phosphorus, normal to high energy diet in the remaining six days of the week can be implemented in selected patients. In our experience, this kind of program produced important clinical results and reduction in costs and hospitalization. When compared with three times a week dialysis schedule, a greater protection of residual renal function and of urine volume output, lower increase in 2 microglobulin, better control of phosphorus and less consumption of phosphate binders and erythropoietin were observed. Careful clinical monitoring and nutrition is essential for the safety and optimization of infrequent hemodialysis. Long-term follow-up analysis shows favorable effects on the overall survival. Furthermore, twice a week hemodialysis is not the only option for an incremental approach of dialysis commencing. In patients who have a good attitude for low-protein nutritional therapy, its arrangement with a program of once weekly dialysis represents a real and effective alternative.
@Jquitta
@Jquitta Жыл бұрын
I did this now I have had my transplant for almost 23 years
@DawnRaven
@DawnRaven Жыл бұрын
That's amazing, how are things holding up?
@chargenurse1865
@chargenurse1865 4 жыл бұрын
Wow. God bless you. I feel like such a wimp complaining about being on dialysis and you are looking like a superwoman.🙌🏿
@DawnRaven
@DawnRaven 3 жыл бұрын
Stay Strong!
@anejorhum1665
@anejorhum1665 3 жыл бұрын
We have the same thoughts as well!.. im gonna start my PD on next Monday. I just got lucky I lived in Western Australia, so everything is free for my PD and that is a blessing though.
@DawnRaven
@DawnRaven 3 жыл бұрын
OMG I wish the US would adopt those practices. Most definitely a huge blessing not having to worry about those medical financial hills to climb
@ygrivera
@ygrivera Жыл бұрын
I came across this video and thank you for posting it. This will help patients that’s new to the PD dialysis treatment. My son is post kidney transplant for 3 years now and prior was on PD dialysis using the Amia machine. My son Donovan had a similar set up and his room was basically a hospital room with the PD equipment/supplies and he also learned how to manual PD. Awesome video for new patients. This is one of the best treatment for kidney dialysis patients. God bless and I pray you receive a kidney match.
@DawnRaven
@DawnRaven Жыл бұрын
What an incredible momma you are. I am currently 1.5 yrs post transplant
@100ccSuperRat
@100ccSuperRat 2 жыл бұрын
great tutorial. I went through PD training recently myself, only thing I do different is secure the room by turn off the air conditioner system fan before connecting / disconnecting.
@sheilahunter8807
@sheilahunter8807 Жыл бұрын
Your video is the first one we watch my husbands on home dialysis. God bless you for all the help that you give us and others❤️
@freshstrated_funkgodsgangs4210
@freshstrated_funkgodsgangs4210 3 жыл бұрын
Blessings dear, I'm starting my pd journey in few weeks, catheter surgery in cple days , keep Shinin🌹😘
@DawnRaven
@DawnRaven 3 жыл бұрын
Just follow the steps consistently and you will be fine. Huge transition from hemo.
@AuntDuddie
@AuntDuddie 2 ай бұрын
I just watched this video. Thank you so much for your time, effort and professionalism. My CKD was just bumped up to stage 5 and pending blood labs this Thursday. Thank you again.
@davidchang4999
@davidchang4999 2 жыл бұрын
Thanks for this video. My brother is starting PD and it is super helpful to see what it will be like for him
@DawnRaven
@DawnRaven 2 жыл бұрын
Kind and considerate of you to educate yourself.
@ILOVEAlways-iw6pe
@ILOVEAlways-iw6pe Ай бұрын
Is was very informative. I really dont want to start dialysis but your tutorial is making my decision a bit easier. My concern is lack of energy. I need to keep moving I have so much life to live. I will stay prayerful as I decide.
@Paula-ps1vi
@Paula-ps1vi Жыл бұрын
Dawn thank you so much for this video. My mom is going to need dialysis and this video is very informative. The doctor really has encouraged doing this method of dialysis. I’m at the beginning of my research process. I’m already thinking going to a center is going to be a better fit for her. I can see the necessity that everything is super sterile every step of the way, and this would be a huge concern.
@yojanarodriguez7916
@yojanarodriguez7916 6 ай бұрын
I hope this message finds you healthy and well. I just wanted to say thank you, I am currently in the hospital with my 5 month old who we discovered at month 2 had a rare genetic condition called SPLIS only 100 people known worldwide, SPLIS affects different parts of the body, and unfortunately causes end stage renal failure rapidly. This past Sunday, Praise God my daughter had a seizure for the first time ever, but i say Praise God because it alerted us that her kidneys that were functioning at 100% at 2 months of age, were close to end stage renal failure. We have been in the hospital now since Sunday, as they have supplemented and replaced her electrolytes and what her body needs to get her to a place where a catheter for PD can be placed. I came across your youtube page as I tried to learn more about how PD works, thank you for your transparency and thank you for making it seem as though it is challenging, life and PD can co-exist, and if this is the process we have to follow for the next few years until Kaya my 5 month old can God willing get a transplant, so be it. God is in the mist of all this, and I have full faith that Kaya will be healed, and sometimes healing looks a lot of different ways. Also, like you, both me and my husband played Ball, I am 6'2 and he is 6'7, so from one athlete to another your grit is dope 💪💪🏀 Thank you for taking the time to read this, and I will be sure to go back to your channel for more guidance. I apologize for the long message, but genuinely grateful to have found your channel.
@DawnRaven
@DawnRaven 5 ай бұрын
Sent you an email
@jayfreezer65
@jayfreezer65 2 жыл бұрын
Oh my God! I have to do this everyday for the rest of my life? I am so scared right now! I just got diagnosed stage 5 a couple of weeks ago. I'm a 50 year old man and I'm freaking out, you're so calm and cool and so young! You really make it seem like it's no big deal. You are one tough cookie. Thanks for this cool video, you really impressed me with how you got a handle on this thing. I start my journey in a month! Wish me luck! Continue to take good care of yourself.
@ClassicRockDJdotcom
@ClassicRockDJdotcom 2 жыл бұрын
Hello I am pretty much in same boat as you, and also scared sh#tless about what future holds. I am 65 yrs old kidneys failed in mar 2022 (operating at less than 2% ) creatinine was over 15 ! They said I got to ER a few hrs before I died.........I have been on dialysis 3x a week going to clinic. It's beating the hell outta me wipes me out but feel better next day (day off from treatment).........I am in process of getting started with home dialysis PD and like you this looks very much scary to do, and if i understand correctly it has to be done approximately 8 hrs a day every day............Im am not sure of the advantage of this>! I suppose I cant try it and if it become to cumbersome to continue I can go back to treatment in the clinic> Or the other option of stopping dialysis altogether and checking out, life really seems like hell right now SORRY TO SAY :(
@DawnRaven
@DawnRaven 2 жыл бұрын
Hope it's going well for you. Mentally I learned to understand that this was just what it was for me, and of course that took some time and a lot of why me's. This is your new normal, and that is absolutely okay.
@DawnRaven
@DawnRaven 2 жыл бұрын
Hope it's going well for you!
@andrewdownie444
@andrewdownie444 2 жыл бұрын
I am 58 and stage 4 on the verge of stage 5. I feel the same way. Not looking forward to this, but people do seem to get through. We need to look to them for inspiration and guidance. Hang in there.
@danabrajevic4913
@danabrajevic4913 Жыл бұрын
You can do it while you are sleeping. My mom is 80 and also very scared. She is in training now and doing it. It’s difficult for her to lift the bags and get the caps off, but she will never give up. Hang in there.
@joycesharfner6968
@joycesharfner6968 Жыл бұрын
Your a brave lady.❤. Didn't know this type of treatment could be done @ home yourself.Blessings plus healing!❤ Thank You! Joy ATL 8.2023
@robinrivera4759
@robinrivera4759 3 жыл бұрын
Thank you for this. I'm thinking about doing home dialysis and this was so helpful. Much love. R. R.
@DawnRaven
@DawnRaven 3 жыл бұрын
Thank you for watching
@chadstreamsam1700
@chadstreamsam1700 Жыл бұрын
I'm 20 and i'm at my regional hospital (for 2 weeks already,really want to go home).My doctor told me next week i might get to choose dialysis:either this one at home every day or hemodialysis in the hospital,traveling 3 times a week from another town (my hometown does not have hemodialysis machines).Automatic dialysis looks better overall and the doctor says so too,but i'm afraid of my cats (no i'm not gonna get rid of them) do something bad at night while i'm getting the healing i need.
@mikhammett
@mikhammett Жыл бұрын
Hi Dawn! Thank you so much for posting this video! I have been suffering from CKD for almost 20 years now and I finally have to go on dialysis. I was diagnosed with lupus when I turned 30 and then my kidneys started failing when I turned 34. Now I'm 53 and will be starting PD in the next few months. I have searched and searched for donors, but because I have a very rare blood type, I've pretty much given up hope. I am blood type B positive, which apparently only 9% of people have. I have been dreading starting dialysis, but watching your video has helped me really understand how it works. Watching you go through all the steps has really put my mind at ease. Thank you so much for posting this.
@melj4417
@melj4417 Жыл бұрын
I have the same story, 53 this yr. Diagnosed with lupus 20yrs ago. Kidneys started failing. Was told by my Doc TODAY that I have to start preparing for dialysis. When they told me about this home one I was very adamant that I would rather go the hospital to do it. Now that I've seen this video I feel more comfortable.
@mikhammett
@mikhammett Жыл бұрын
Hi Mel so sorry to hear that. It's nice to know I'm not alone.
@jerryatrivette3313
@jerryatrivette3313 Жыл бұрын
Thanks for your video I am just 2 weeks into my training for home hemo keep up the good work we are all in this together
@DawnRaven
@DawnRaven Жыл бұрын
Goodluck Jerry!
@PDwitVeeDubb
@PDwitVeeDubb 2 жыл бұрын
whoa! I was trained never suppose to wipe the blue tip on the transfer set neither the patient connector on the cassette its already sterile. i been on PD since 2013
@pennyfergurson2347
@pennyfergurson2347 5 ай бұрын
Wow that gives me true hope thank you for sharing that
@jasonhoughton2929
@jasonhoughton2929 10 ай бұрын
I’m familiar with all that in 2018 in my 40s. I went on peritoneal dialysis with Fercinious and Baxter. After 4 years of dialysis I got a kidney transplant at tampa general hospital April of 22 been doing great. Hopefully you can get a transplant soon. You feel like your young again..
@ohevshalomel
@ohevshalomel Жыл бұрын
I have to admit, I saw the word “peritoneal” in the title, mistook it for another word starting with “peri-“, and thought, “Oh, God, on top of having to do dialysis, these poor people have to have the port installed down *there*?” 😂 I don’t know why this video about dialysis came up in my feed in the middle of the night, but I’m glad it did. I learned more than I knew before. (I had no idea how much kidney patients struggled with blood pressure!) You are too young to have to deal with this (not that anyone should have to). I hope you get a transplant really soon. 🍀
@jackiedepaz7982
@jackiedepaz7982 2 жыл бұрын
I just started dialysis like a month ago and didn’t know you could clean the transfer set like the way you did. I was told to not touch it and connect really slow
@danabrajevic4913
@danabrajevic4913 Жыл бұрын
My mom was told same thing. She cleans and drys the outside transfer set before connecting
@LC-xo7yi
@LC-xo7yi 3 ай бұрын
I hope you're well and recovered; totally healed and restored from kidney disease. I was diagnosed at 11 and had to start dialysis last year. I have had many ups and downz with hemo-mostly due to access issues. I'm hoping to qualify for PD and plan to give it a try. Thank you for sharing your experience. I pray all who are on this thread are healed and made whole in Jesus name. Amen. Be encouraged all.
@ChampayneDC
@ChampayneDC 4 жыл бұрын
Thanks so much for sharing. I'm in the process of having dialysis and not sure if my doctor will have me on the home dialysis but I'm a little afraid. I'm in the counseling stage, etc. Stay strong and I will be following you for more help and inspiration to get through this along with you. sending you cyber hugs and prayer.
@DawnRaven
@DawnRaven 4 жыл бұрын
Do what’s best for you. I’m so grateful for home dialysis it’s much more convenient for me and my lifestyle. I wish you luck and sending my love to you!
@bellah8393
@bellah8393 Жыл бұрын
You are a strong young woman. Thank you for sharing your personal story. It was very informative. I wish you good health and happiness.
@caz2888
@caz2888 2 жыл бұрын
i do my dads dialysis and we use the brand baxter too i always very gently giggle the bags it makes us both laugh lol
@jaxson6133
@jaxson6133 9 ай бұрын
Thank you for your time in showing me the tutorial for home dialysis, when i was in the renal ward today a nurse came over to me only and asked if i would like to do dialysis at home, when im back in on Thursday she is going to run me through it, i have a number of questions regarding material supplies and how to discard of used materials here in the uk. Much appreciated and all the best
@debrafletcher4629
@debrafletcher4629 Жыл бұрын
I am about to start dialysis. I am a little scared and happened to find your video. Thank God I found you. I'm not sure which one they plan on me doing, so I also watched it as well. Thank you
@DawnRaven
@DawnRaven Жыл бұрын
Good luck to you on your journey!!
@BMCLegacy
@BMCLegacy Жыл бұрын
Thank you for your transparency. Those of us who have never dealt with dialysis can have a greater respect and understanding of your life. I am in aw of your strength
@DawnRaven
@DawnRaven Жыл бұрын
I love when people who have no ties to this tune in. Thank you for watching!
@100ccSuperRat
@100ccSuperRat 2 жыл бұрын
keep up the good work! I use a different machine (Baxter home choice pro), also with Davita home PD myself. its a much better process for ME than hemo dialysis.
@DawnRaven
@DawnRaven 2 жыл бұрын
I was originally on the Baxter machine as well. I agree 100% about hemodialysis.
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