Can phantom pain be fixed??

TMR is super helpful for a lot of amputees who experience phantom pain!

[@LCcoolcraft]

I'm really glad you're able to share your story and experiences so people can know how things work because I've been thinking about a story with an amputee as a main character and I've already learned so much! So thank you!

[@jenb.4720]

I just had this surgery a month ago. It took away 95% of my phantom pain. Good luck with your upcoming surgery.

[@ladydeath.x]

was it painful? im in between trying this or stem cells

[@eddavanleemputten9232]

Fingers crossed it works! I’ve recently had spinal surgery and am now dealing with a complication: neuropathic pain. My neurosurgeon told me what I’m experiencing is very similar to phantom pains. So I kind of have an inkling of what you’re dealing with. The last three months have seen me on an average of 3 hours of sleep total per night feeling as if someone is hacking away at my leg with a white-hot sword, alternating with feeling as if electric current is zapping through. The slightest touch to the sensitive areas is anything ranging from tiny electric shocks to the flesh getting torn off. Car rides are torture (the vibrations). The weirdest things trigger it. My neurosurgeon has now started me on a course of mild anti-depressants in the hope that it’ll help. Fingers crossed. My deepest respect! You’ve been dealing with this kind of thing for years. I’ve only had it for a short time. I really, REALLY hope your operation works!

[@karalantz6520]

I hope you find some relief for this, sounds absolutely awful I’m so sorry!!

[@eddavanleemputten9232]

@@karalantz6520 - Thank you! The anti-depressants are starting to take the edge off the pain. Thank goodness. If there isn’t sufficient improvement by the end of April I’m getting a referral to the pain management clinic for other solutions. Fingers crossed good ol’ healing with the support of the happy pills does the trick.

[@seesoux]

​@@eddavanleemputten9232 Have you ever heard of Fibromyalgia?

[@eddavanleemputten9232]

@@seesoux - A former colleague of mine has it. It’s horrible.

[@PhilliposeTerega]

@@eddavanleemputten9232 I also had a spinal cord injury I got neuropathic pain in my feet. Felt like a thousand hot needles stabbing my foot 24/7 for 5 months. I found that hypnosis took away all the pain after 3 weeks of trying it.

[@juliav.mcclelland2415]

Sending you all the positive energy in the world for success with this surgery, Jo!

[@margaretteragram9235]

I’m so glad to hear there’s something that can be done for phantom limb pain, losing the limb is painful enough.

[@terriehumphries6028]

I understand doing what you can to get rid of pain. I am not an amputee so my pain probably pales in comparison to yours. I am having surgery on my hand Tuesday. Hope your surgery works for you this time.

[@The214thRabidFangirl]

I don't think that there's much point in comparing 2 people's pain. You have your pain, and she has her pain and both pains are valid and deserve any relief manageable.

[@terriehumphries6028]

@@The214thRabidFangirl This is true.

[@whowhat.wherewhen]

Sending you good energy 😺

[@caroljo420]

A guy who had phantom pain in his missing hand, the doctors "tricked" hus brain by setting up a mirror in a box, and they put his good hand in the box, showing a reflection resembling his missing hand. He knew it wasn't real, but it worked for him anyway!!! Much ❤ to you, Jo!

[@iamspeaking6686]

Amazing that you are so lovely and informative about this all and willing to allow us to share here with you.

[@MyFatherLooksLikeAPallasCat]

Hope surgery goes well for you, Jo! I want you to know that I've been following you for a year now. I'm a young architect( got my bachelor's last year) and your videos helped me a great deal with designing more accessible buildings. I also started looking for more creators with disabilities who share their experiences and try to learn more and more about this subject. I feel amazing knowing that the few designs that I have done already accommodate people with a range of different needs. So thank you, and good luck with your journey! 💙

[@RustyDust101]

I wish you all the very best for your upcoming surgery, that it succeeds at completely removing those two symptoms.

[@DocAwkward]

I appreciate your medical videos. My cope of practice was really specific and I'm currently not doing anything in the medical community but I got pass by information on topics I didn't handle from a patient and it's helpful stuff to keep in the back pocket

[@colin5227]

I hope it can give you some pain relief this time! Good luck

[@poppythecat454]

I have phantom pain after my knee had to be amputated. As I have had 30 operations in 30 years, I cannot have any more surgeries unless absolutely necessary. Well done for you for showing your experience

[@dwcooke3118]

I've said it before... You are amazing and you make it so interesting to learn about amputee life. And yes, you are VERY SPECIAL. I'm a 75 y/o retired healthcare personnel and have dealt with pts dealing with phantom nerve pain. So happy to hear there is a procedure that can help most folks. Good luck on your next surg... 🤟🤗🙏🙏🙏🙏

[@nyn1966]

Good luck with surgery Jo. Phantom pain ain't no joke!

[@marksasahara1115]

Watching your YT shorts has been very informative and I love you sense of humor! Good luck with the next surgery! I hope it works!

[@trish9006]

I hope it goes well for you and maybe the second times the charm and will end up providing you some relief! Fingers crossed for you Jo

[@josephapodaca7307]

Awesome shirt! Great education on TMD

[@teto85]

I had it done and had to have a second go. It has been a blessing. Good luck with yours.

[@AskMia411]

I’m so happy that they’ve found ways to treat phantom limb pain!!! I’m not a amputee, but I deal with chronic pain that behaves in a similar way. Even though the treatment isn’t for my condition, I’m so happy that other people now have a way to cure their phantom chronic pain when it seemed untreatable before!!!! It gives me hope about my own condition, that there could someday be a cure and I could get my life back ❤❤❤ Very happy for you Jo , i hope the surgery works this time!!! Fingers crossed!!!

[@lenkaa1680]

Try Nature Force MED, it works for all sort of pain. It works on distance, too

[@jeffreyplum5259]

Good luck, you do great work for an under served group. You put your life out there openly, even the most private parts. God bless and heal you Dear.

[@crimsonraen]

Woooo! Best of luck with the new surgery!

[@GryphonDes]

You always make my day - and this news -- terrific! Good luck on the 2nd go-around hope it goes flawlessly

[@shronkler1994]

i literally cannot comprehend feeling things outside of your body, that's terrifying

[@mm4894]

Good luck. I wish you success.

[@TheEDFLegacy]

It makes perfect sense; just like a sensor on a computer or an alarm system, if you have nothing connected to it, it's going to yell at you for having something not connected to it. Since the brain and nervous system electrical pulses running through it, having something to have feedback on (your muscles) make a ton of sense.

[@10-AMPM-01]

I'm glad there are qualified professionals already on the task. When I heard you talk about phantom pain, I began thinking about the cause. The nerves remaining in your leg were developed to work with more tissue than you currently have. That's like a high pressure water line; where 14% of customers are cut off, and the remaining customers are forced to deal with over pressure. I hope you find relief with your upcoming procedures.

[@osayukithedoubleamputee]

I hope your surgery goes well!

[@cacao_0000]

"I'm nOt lIkE tHe oThEr gIrlS" "TMR dIdn'T wOrK oN mE" ✨

[@joycewade2502]

And it’s nice that the medical community recognized something needed to be done about it, and it just wasn’t and you guys head I love that for you

[@ZenQuagga]

Best of luck, keep us posted!💐

[@BodilyFunction]

I genuinely wish you the best of luck and hope it goes well for you this time

[@zarinepastakia7670]

Love you and your sunshine Jo!!! May the surgery succeed!!! Fingers n toes crossed!!!! Smile... No matter what, no matter who!!!! Thank you for bein amazing You!!! ❤

[@digitalharmony26]

Fingers crossed this one works for you. I know the feeling of being in the minority of people who don’t get the desired outcome of a medical treatment, medication or surgery. I’ve been that statistic in all three 😅 wishing you the best ❤

[@travershall2785]

Hope it works! I am also a BKA amputee. I just had a cryablation of the sciatic nerve....awesome results.

[@travershall2785]

Well, cryabilition worked for awhile away...will ask about TMR, thanks

[@CraigSmith-qq3sr]

A friend of mine had to have that surgery 3 times and finally worked. I remember being around him when that pain kicks in and is no joke so glad he's better now. I hope it works for you this time.😊

[@ilikechococookies342]

Fingers crossed these surgeries give you relief from phantom pain Jo!! ❤❤❤

[@TheSimmus]

Goddamn you're a real fighter. Still moving on even when a 90% chance fails. If I ever have kids, I'm gonna show them your videos, so they have a hero to look up to.

[@sewaggo]

Good luck with your next surgery. I hope it is successful. :) I appreciate watching your videos.

[@trash-heap3989]

I wish you the best for this surgical procedure!

[@muriel5826]

I wish you well with this surgery. You deserve a pain-free life (Or at least less pain if pain-free is unlikely ❤.)

[@alicecain4851]

Jo, I hope it and your other surgery is successful! Good luck!🍀🍀🍀

[@kathleenwelsh7966]

That's the best message on your top! 💜

[@kc9602]

Good luck, Jo, I hope it works for you 😊

[@alastor6673]

Holy moly this popped up in my feed and now I must know more! Oh jeez I’m gonna go binge your channel for a bit

[@GorditaGuerita]

This is so cool that there is a potential cure! So excited to hear about how it goes and sending good vibes!

[@lesleybruner1008]

Awesome stories you have all the time and I hope that surgery works for ya the second time 😊

[@qweasrdf]

Good luck! When I watch you, you make me believe I can overcome some similar obstacles I have. I get cluster headaches migraines from multiple concussions and have had multiple bones fracture as well. There's always a way if you keep searching and trying and hopefully I'll be able to get myself out of this hole! Thank you 😊 ope I gotta headache damn it I got too excited lmao 🤣

[@joebeach7759]

Hopefully the surgery works out perfectly! I just had to wait 5 years for my nerves to fix themselves.

[@SumArtist223]

Aw, i really hope this goes well for you! Best wishes and God bless you!😊

[@leewest8159]

Praying your surgery is successful!

[@hndit2u]

Interesting. Fingers crossed for your upcoming surgeries!

[@OCDisforme]

Here's hoping it works out the best for you; I've been watching you a few years now when looking for channels on handicap education and community. I'm dealing with hemistasis after suffering from a burst artery in my cerebellum. Although we don't have the same issues, we can learn from each other. Iam contemplating a move to Colorado Springs, as my sister and her family live there.

[@robertmatthews2154]

You're funny and high energy, keep it up!

[@NunontheRun]

OMG! all my fingers and toes crossed this time it works! positive vibes all in your direction!

[@shanechambers1459]

Jo good luck on your upcoming surgey. I have ha toes amputated from both feet and struggle every day with phantom Pain so i wish you good luck.

[@AlexandarHullRichter]

that's really cool. i figured it was just a permanent thing, but it's awesome that not everyone has to live with that!

[@declaroh]

When I was 12 I had a surgery where there was a 90% success rate, and I got to be a member of the 10% it didn’t succeed on and had to get a second surgery later. So I understand what it’s like to be a member of this infuriating club! Best of luck to you with your upcoming surgery.

[@leocervidae]

Tmr can also be used to help control prosthetics. Hand prosthetics are incredibly difficult to control using residual muscles, and if you’re an upper arm amputee there’s not a lot of muscle left to produce signals for the emg sensors. So they can take those nerves and redirect them into your pec muscle, which isn’t used much if you don’t have much arm left. You can still comtrol those nerves, they just control the pec muscle instead, which is a much large muscle and the emg signals a lot stronger!

[@Aimee0206]

Really hope the surgery works out for you!

[@thisisatonofbs]

I've seen studies on using what is known as a mirror box for amputees suffering from phantom limb pain. Basically the box creates a virtual version of the missing limb by using mirrors to project the existing limb to the other side. So, if you're missing your right hand, then you'd stick your left hand into the box and your right arm into the other side. Look down into the box and flex the left hand while looking at the mirror that appears to be the right hand. IIRC, they suggested that the visual feedback helps the brain calm down the signals going out to the missing limb and not getting a response back, hence the pain.

[@bobbolieu9013]

That is awesome that folks have options. I know a few amputees, and phantom pain is very real and excruciating most times. Two have lost partial legs, and one an arm. I wonder if it can work for other forms of nerve damage from surgeries other than amputation. I am looking forward to hear how your most recent surgery went in the area of long term results

[@judithlashbrook4684]

as someone with hypermobile eds i will cross not only my fingers but any other part of my body you could wish for to wish you the best outcome possible from your surgery!

[@soulspacehomestead4941]

Thank you for sharing your story and your life with all of us that is really loving of you to do. I just wanted to share what I have learned about what you are talking about regarding phantom pain. The reason for this pain or even the feeling that your leg is still there is because it is. We all have a soul, which is the real us and is also where our life is, and attached to this soul is our sprit body and attached to that is our physical body. The spirit and physical bodies are sensory apparatus of the soul, our real self. So when we loose and arm or leg from our physical body, that doesn’t mean that you lose it from your spirit body. Your spirit body still has two full legs. You could actually test this out and go to a medium who can speak with spirits and ask them if they see your two legs in your spirit body. The real question is why did you have it amputated, and the cause for any physical illness will always be emotional.

[@richardtheweaver4891]

Cool. I might try that. I've found that very intense massage helps (wooden or even metal implements can help spare your fingers). Massage schools teach people to avoid behind the knee because that's where the nerves are accessible. But if one is footless, the "nerve damage" has already been done (but talk to your doc). Anyway, it works for me.

[@adrianschick7300]

Good luck! hope it works this time!

[@MamaWheelz]

In the interim, I'd suggest using a strong vibration massager at the base of your skull. It helps interrupt the extra sensations between mind and limb. This also helps for folks with other nerve pain related disorders outside of their head/neck area. I hope this helps someone else out there, because it was a game changer for me. ❤😁♿

[@Pariah_Larry]

I love your sweater!

[@CJGfarm]

I wish you the best. I can imagine what you go through on a daily basis. I have both feet. However, I've recently been diagnosed with TTS (Tarsel Tunnel Syndrome) and it dictates my life. It controls what I can do and what I can't do. And I'm always obsessing about my shoes, orthotics, whether I should wear this padding or that padding under or on top of the orthodic. Im always buying new stuff to try. New socks, new cushiony insoles, nothing makes it better. I can never walk barefoot. I can't run, do jumping Jack's, play tennis, or do any exercise that requires my toe to bend backwards (no push ups, no burpees, no planks, etc) No squats or anything like it. I can walk short distances (100 yards maybe) before the pain starts. Totally sucks to have an injury that effects your ability to be mobile.

[@jeremycarpenter5550]

I'm so sorry baby you have to go through all these surgeries you need a vacation to recuperate and relax and heal .

[@budgiebreder]

A cure? Thats cool! I hope it works/helps this time for you!

[@HanaTheRussell]

Good luck !! I hope it works.

[@Qwerzxcv954]

That deceased limb's spirit is really nasty for giving you pain 💀

[@Heritage367]

I *really* hope the 2nd surgery is more successful. You've mentioned your pain has gotten worse over the past year or so, so it would be great if there was *any* reduction in your pain.

[@anyawillowfan]

The only 'fix' I know about (from TV tbf) is for those who are missing a limb on one side, use a mirror so it looks like you have both limbs and tense and relax the muscles - I'm curious if this is something you've done, if it helps etc. And fingers crossed the surgery works better for you this time.

[@nancylindsay4255]

LOVE what your t-shirt says!

[@imsmolandangery4274]

Love the slogan in your top

[@NapanTR]

Hope it works out for you. Thanks for the info.

[@billssmithy7352]

Good luck with the surgery! Retired Nurse question: Have you tried Radio Frequency Ablation (RFA) for these nerve issues?

[@spookypooky1362]

Modern medicine is amazing! I don't know how new the TMR surgery is (or if we just never got into it in high school biology which is very possible) but I only remember them talking about psychological solutions. I.E Seeing someone else rub the muscle that coincides with the persons phantom muscle pain/ itch the spot ect. Hoping for the best for!

[@chelseatappa284]

Bodies are weird! I hope you have better results this time

[@JohnMoyer-fk8oh]

Well I hope it worked I'm working my wat through the rabbit hole of your vids

[@rneustel388]

I’m really hoping this works for you this time. I deal with chronic nerve pain from peripheral neuropathy r/t diabetes and multiple back surgeries/fusions, so I know a little about what you’re dealing with, and it’s definitely not something I’d wish on anyone!

[@imogenoliver]

I hope the surgery good well Jo ☺️.

[@whowhat.wherewhen]

I hope the second time around goes well for you😺

[@marthashandley2637]

Yeah it's called phantom pain. It's your body that hasn't caught up with the brain. Thanks for sharing your story!❤

[@Asfragged]

On the bright side, you dont have a whole base full of captured enemy soldiers to manage or a giant metal robot to fight.

[@mr-pm4rz]

Post stroke limb pain can be irritating to roaring agonizing. I move the leg or arm ( walk or wobble it) to get relief. I hope your surgery works! : ))

[@khanyelwandlebe8065]

Love yo vid and may God help you through your phantom sensation pain sorry if I get it wrong

[@vickytaa1]

Dammit, when you are such a special girl that you fall into that 10%...

[@Anti-Gravity.]

‘I’m not like other girls, the surgery did nothing’

[@mikeizzano172]

Good story I hope it works for you this time ! Best wishes….

[@lisajones1438]

Wow! I really hope it works out!

[@melissahopkins8036]

My PLP is awful! I'll be asking about this surgery! Thanks!

[@drew55974]

Keep sharing your story I like your video

[@ericmorgan7210]

The thing that helped the most for my phantom pains, was getting off all of the pain, and nerve meds. That's not to say I don't have them still, but they're fleeting. The worst phantom feeling I deal with is an itch on my big toe, or the arch of my foot.

[@FlagCutie]

Of course Mr. Nub would be on that 10% 😂. Crossing my fingers for you so it actually works this time! ❤

[@lgrantnelson2863]

Hope it works. Wish you the best.

[@RavenBlaze]

Lost my boobs to cancer. I get phantom nipple sensation. So I totally respect your pain!

[@RentonThunder]

You got some nicks and cuts all over your good leg. Good. That shows that you are living your best active life.