This is my beautiful sister Ashley and her amazing family. Keeping ya'll in my prayers... ALWAYS! I love you!
@pammcreynolds4 ай бұрын
I was just told today by the PA I am seeing at the dermatologist that she is testing for this due to the symptoms I have. I have been fighting to find a doctor who would listen to me that something is not right. I had no idea what Carcinoid Syndrome was until I got off the phone and began searching. I will now know for a while for sure, but I intend to learn. Thank you so much for sharing your story and your commitment to courage and being your own advocate. I know about advocating for health as a caregiver to my husband, so I have already learned all the ins and outs. Thank you for encouraging me.
@user-rm2od5lt4f10 ай бұрын
Ashley, you are a WARRIOR! I'm so thankful to know you on this journey. YOUR journey, your attitude, and your wife all inspire me on my NET cancer journey. THANK YOU for serving our country and all you do! "Live as if you're living!" I love this! This is a beautiful story with 3 amazing humans (your son is precious, too). Thank you for being YOU!
@kacigisclair172210 ай бұрын
Wow, what a beautiful story!!! Keep on living Ashley!!!
@joycehendley669610 ай бұрын
Thank you for sharing your journey, Ashley. As a mother of a son living with NET, you’ve given me hope and reminded me that we can “live as if we’re living.” Wishing you continued healing and joy with your family.
@Thompson-rogers1419 ай бұрын
Hello Joyce your profile picture is beautiful just keep on smiling 😊
@BryanJobi5 ай бұрын
Prayers
@BryanJobi5 ай бұрын
Praying
@nettie44083 ай бұрын
Me too. Enlarged heart with mine. Jealing light love tp all dealing with this disease xx
@itsacountry10 ай бұрын
I've known Ashley since 2007, and she is the epitome of living that Carpe Diem life... her and Melissa are an inspiration. I say we add a new one, SEMPER CARPE! (It's Latin!)
@nicola725510 ай бұрын
Ashley!! You are a total warrior 👊, i got diagnosed with carcinoid lung tumour in 2021 after 2 years back and forth to the doctors, knowing there was something wrong but kept being told, i was young fit and healthy, i felt i was going crazy! But you doing all that research is unbelievable and so brave❤ i wish you and your family all the best for a long happy life together ❣️xx how cute your wee boy is also! 😊
@thomashaugh872010 ай бұрын
Best of luck with everything… you truly are beautiful and I hope with you
@CarcinoidNETs10 ай бұрын
thank you so much for watching and sharing your kind words!
@sylvie723810 ай бұрын
So proud to call this amazing person my friend. This was beautifully done.
@Thompson-rogers1419 ай бұрын
Hello Sylvie your profile picture is beautiful just keep on smiling 😊
@lyndac540010 ай бұрын
Thank you for sharing your journey. Your story is so similar to mine, especially about having to be my own advocate after a long journey of mis-diagnosis. It was also through my own research that led to discovering my symptoms were matching that of Carcinoid syndrome, with small bowel primary. I wish you all the best today and always.
@CarcinoidNETs10 ай бұрын
thank you for watching! and great job doing you're own research!
@AC-gk4wo9 ай бұрын
This is all too often the case with NET cancer. Let's continue to build awareness together so we can all be heard more readily and achieve early diagnoses!
@Thompson-rogers1419 ай бұрын
Hello 👋😊
@AC-gk4wo9 ай бұрын
Concur, Dr. Jonathan Strosberg at Moffitt Cancer Center is amazing. I owe much of my survival today to him.
@rhondanally521410 ай бұрын
I am 17 years post diagnosis with metastatic carcinoid cancer. I get my Sandostatin Lar shot in my bum every 28 days. The doctor that you need is Jonathan Strosberg in Tampa at Moffit Cancer Center. My local oncologist wanted to do targeted therapy so I went back to him for a consult. In my case he said no because my Mets are stable with the injection so why do something that could change that?
@Thompson-rogers1419 ай бұрын
Hello Rhonda how are you 😊
@lukerobson49629 ай бұрын
Ashley, I'm glad you found out what was wrong with you. You're a fighter. Keep fighting!