CF Strong: Colin on late diagnosis of CF

[@ginamiller8554]

Thank you for sharing. I am 65-1/2 & just diagnosed May 1 (in San Diego California. ) Have you been approved for modulator therapy? I know ~10% of the people with pathogenic mutations and diagnosed don’t have a ‘miracle med’ yet. I feel lucky that both of my pathogenic mutations are covered. I begin at a small dose next week. Wishing you all the best 🙏

[@stanlong8761]

Colin, Did the any of the doctors give you a sweat test ? Did you suffer with sinus and lung congestion throughout life before your started to get very ill in Australia? Happy you have got your diagnosis and are doing well.

[@kaypendergast5676]

Colin - I hear your story .... have lived my own version.

[@travisrichards5951]

What were your symptoms that you were experiencing? You seem to have skipped over that

[@kaypendergast5676]

Yes. I want to know too... I'm guessing he got an NTM like me.

[@kaypendergast5676]

Do you have CF?

[@outdoorbill6271]

I was wondering the same thing!