Cholangiocarcinoma patient Matt Reidy's biomarker story

  Рет қаралды 9,606

Cholangiocarcinoma Foundation

Cholangiocarcinoma Foundation

Күн бұрын

Matt talks about how getting biomarker testing changed his course of treatment after he found out he had the MLH1 mutation. Learn more at biomarkersmatter.org.

Пікірлер: 40
@sylviarogier1
@sylviarogier1 6 ай бұрын
Wow! A success story. That's great.
@pitstoppete80
@pitstoppete80 23 күн бұрын
Hey Matt glad to see things got better for you. Can I ask please what stage was yours at ? My dad just got diagnosed with stage four last week 😢
@LinFromMinn
@LinFromMinn 10 ай бұрын
Praying for my brother Stage 3, age 69. Thank you for posting this message of information and HOPE.
@tg6952
@tg6952 6 ай бұрын
How is he?
@LinFromMinn
@LinFromMinn 6 ай бұрын
Tonight things look quite grim. He wants to stop all treatments and go hospice. We all in our family are broken hearted.
@tg6952
@tg6952 6 ай бұрын
@@LinFromMinn similar my father last words.. he said I want to get back home and next day he died... .:/ in February.. just 57 yeases old.. stay strong... :( know how u feel..
@LinFromMinn
@LinFromMinn 6 ай бұрын
@@tg6952 I'm so sad to hear that. I offer my condolences. Losing him means so many things will change; my heart goes out to you....
@tg6952
@tg6952 6 ай бұрын
@@LinFromMinn thank you, trying to be positive and keep going :( how is your brother? :/
@marshagoldstein2434
@marshagoldstein2434 2 жыл бұрын
💚Hugs
@mariag3880
@mariag3880 Жыл бұрын
Blessed
@Robsav-yx6vi
@Robsav-yx6vi Жыл бұрын
Greatest outcome, inspiring. Great health and joy to You and your family.
@cruzthird
@cruzthird 9 ай бұрын
Jan 10th, 2024 is the date of my Whipple. Diagnosed Feb 28, 2023. Looks promising. How are u doing? Today is Dec 29, 2023.
@MattReidy
@MattReidy 7 ай бұрын
Alive and well. Thanks.
@anjaliraj7778
@anjaliraj7778 Жыл бұрын
Hi I need support , I am from India is this treatment possible in india??? My father is diagnosed with bile duct cancer in 2020 December and after surgery it came back and he is now in 4th stage . Chemotherapy and radiation failed
@indrasapkota9010
@indrasapkota9010 Жыл бұрын
how is he
@anjaliraj7778
@anjaliraj7778 Жыл бұрын
@@indrasapkota9010 last month,he passed away
@lakshmiskaivannam429
@lakshmiskaivannam429 Жыл бұрын
What type of surgery was done and which hospital the surgery was done
@anjaliraj7778
@anjaliraj7778 Жыл бұрын
@@lakshmiskaivannam429 SGPGI Lucknow, Whipple procedure
@gemum4219
@gemum4219 11 ай бұрын
My father did too. He had a tumor that had not spread - it was only in the bile duct. He was a candidate for it's removal because the tumor was well-defined and because it was not spread all over his body. He was in good health, his liver was good, he had good blood lab results before the surgery, he was eating, going to the bathroom normally and ambulating fine. He even began eating and ambulating after his surgery. That is until he got an infection from the hospital which overwhelmed his system. He contracted Clostridium difficile in the hospital and when he was supposed to go home a week after the surgery because and expected to do a "full recovery" (per doctor), when he contracted the infection it was downhill from there and less than a month after his surgery, he died. It is so frustrating when things like this happen. I feel something more can be done. I am so sorry for your loss.
@Lee-sv8su
@Lee-sv8su 2 жыл бұрын
What is the name of the drug they used that has made him better??
@TonyClarkeThinks
@TonyClarkeThinks 2 жыл бұрын
Ketruda
@Ukepa
@Ukepa 11 ай бұрын
Keytruda (pembrolizumab)
@australiandiamondinformati7883
@australiandiamondinformati7883 Жыл бұрын
Just been diagnosed with advanced
@raghavgarg1196
@raghavgarg1196 Жыл бұрын
Who is your surgeon? My dad just had his surgery.
@nightly522
@nightly522 6 ай бұрын
wow, fantastic. very happy for you
@ekinnard
@ekinnard 3 ай бұрын
how common is this mutation?
@ekinnard
@ekinnard 3 ай бұрын
I am going to Mayo. STAT
@pRQYifIQywIon0myDHH3qA
@pRQYifIQywIon0myDHH3qA Жыл бұрын
are you still with us
@MattReidy
@MattReidy 7 ай бұрын
I am! Cancer free!
@LinFromMinn
@LinFromMinn 6 ай бұрын
Thanks for update! Such good news! Maybe you can do a video update attached to this one, Matt. Everybody needs to see good things happen. I'm glad you have good things happening for you. Just saying a little prayer of thanks for your powerful story, Matt.
@LinFromMinn
@LinFromMinn 6 ай бұрын
@@MattReidy I wrote under your comment from 3 weeks ago that you posted when someone asked "are you still with us?" Basically I thank you for sharing and ask that you do a short video update. 🙏
@moiragonzalez7089
@moiragonzalez7089 2 жыл бұрын
Inmuno therapy for idh2?
@dickreidy9043
@dickreidy9043 Жыл бұрын
Pray daily for your good health xomom
@Ukepa
@Ukepa 11 ай бұрын
thank you, Matt, it's so rare to hear any good news for this disease/mutation. Keytruda seems to be a possible answer to other forms of cancer, too
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