Chris And Kelsie Snow Still Full Of Hope In Spite Of ALS Diagnosis

Last June, Chris Snow found out he is afflicted by Familial ALS. Four men in the last two generations of Snows have died from the disease. It’s been seven months since diagnosis. Kelsie, Chris’ wife, thought by this time she would be pushing Chris to the rink in a wheelchair. Instead, Chris is still skating and coaching the team.
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[@michaeljordan3907]

Fight on my friend I am 63 years old and starting my fourth year of ALS I’m progressing but feel that every day is a good day to have a good day

[@AmaanAAAA]

I appreciate Kelsie's words that "hope is everything". I'll appreciate each day a bit more, best wishes to the Snow family in these hard times.

[@timjacob1397]

This is so tragic, i am so sorry for his wife and kids.

[@elcrazy8017]

I’m over here suffering and complaining of Anxiety when ALS is worse and they are more mentally strong than me

[@happytobehere200]

Chris and Kelcie are warriors. Truly exceptionally strong people. Thank you for sharing your story. I’m so sorry

[@dylanmccallum9141]

Such an inspiration🙌 wish nothing but the best to the snow family❤️

[@walterwhiteside2740]

His poor wife was heartbroken at his honoring this season. Such a strong woman .

[@jancraig9298]

Did he pass away ?

[@oscarshah7305]

I have als for the last seven years and I am still full of hope ,every soul has its appointed time to leave this cruel but beautiful world despite of any illness. everyone eventually leave. don't worry my friend I know how you feel but thankful for what you have rather than what you don't have

[@geraldhoffman2606]

Yes sir

[@jeannineterese1037]

I hope you’re still doing well. Sending love❤️

[@PittsburghPenguin]

Bless you, my friend. Hope you’re doing well.

[@Brody-Aleksander]

❤

[@bienvenidoroman6521]

I was diagnosed 8/1/22 with ALS. Going for another opinión on the 31st. I'm also legally blind with AMD. I don't fear the outcome. But I fear for my family. I couldn't get a neurologist to get a 2nd opinion, even Buffalo General wouldn't even return my calls. I don't know what to expect but watching your video was helpful. Thank you. God bless you and your family.

[@SylveonMujigaeOfficial]

RIP Chris Snow…

[@phil6610]

RIP Snowy. Much love.

[@GateKeeper36]

ALS is scary n painful way to die.

[@susanpache4063]

Chris passed away in October 2023.

[@hairbsb7908]

I've been diagnosed with progressive bulbar palsy mnd. I'm going through a real rough patch right now as the peg was a failure. Hopefully a rig will work. I cry multiple times a day

[@davidfleck9635]

How is Chris doing today? My husband was diagnosed in two and a half years he had passed

[@gigabit9823]

RIP Chris.

[@jonah.donohue]

He's not dead

[@Glock7eventeen]

@@jonah.donohueyes he is

[@zachnelson4843]

This is so sad 😢😢😢😢😢😢😢😢😢

[@madeleine7411]

Keep fighting, Chris. There will be a cure.

[@McPopperson]

Rest In Peace ❤❤

[@Mmmleftovers]

RIP brother

[@jacobrocks7]

RIP Chris

[@bobsmith962]

God bless you

[@InHitchWeTrust]

I need to know what trial is he on, please. I have a family member who is going to lose a battle if medication won't came on time.

[@tomnewman8827]

Rip Chris

[@erichalstead2603]

So in clinical trials they can tell you you are getting meds and give you saline basically?!? That should be illegal

[@SweetVern]

Some clinical trials are blinded for many reasons and the patient is well aware of this before signing consent. It’s not just the patient but often times the sponsor, study team, treatment/clinic team etc.. who are also excluded from knowing if a patient is getting the drug or the placebo. They aren’t told it’s the drug and given saline, they are told it could be either or.

[@bajskuk]

RIP.

[@Rantsack]

When I see this, it pains me to see what the family is going through, BUT why are they making it like a family that is NOT financially struggling, famous and successful husband and the stay at home wife is having a hard time being a care taker for her husband and caring for her kids. There are people who can’t even afford to see a doctor, medications, pay their bills, some can’t get a job, some has a job or two and go to school and able to take care of their kids and significant other. They make it seem like this family has it the hardest with a family member with ALS.

[@TheIllegalalienfool]

I am single guy no kids no parents if I were to get als I would take a cocktail that would end my life . I am grateful that this is allowed in california

[@Neeper78]

RIP Snowy.

[@Glock7eventeen]

RIP

[@N-Line12]

damn this is sad

[@London31]

Do the children of Chris Snow potentially carry the gene? If it were me I'd have screening (if it's possible) of the foetus. I could never inflict this hideous condition on my children.

[@jean-pierredalles8743]

BLIND STUDIES ARE A SHAME . ARE WE MICE ?

[@MM-mp2dw]

Chris and many others are wrong when saying ALS is an extremely rare disease. While only about 1 in 50.000 has it at a point in time (that's because most ALS sufferers are not around for long after diagnosis) the chance that ALS hits any of us in our lifetime is actually not that low, something around 1 in 800.

[@maryamkaramkhel6353]

It is closer to 1 in 300 though and it is on the rise. In Australia it has gotten up to 1 in 180. People seem to forget that 90% of ALS is sporadic - non genetic- this can really happen out of the blue to anyone.

[@fernemcallister6774]

Is there a test for hereditary ALS?

[@fahimanwar94]

What treatment did he get?

[@pam164]

Its obviously hereditary in this case. What a shame awful disease

[@Bum_Hip]

It’s not a miracle, that he’s doing well. It’s not god, it’s not prayer. It’s science. Thank scientific research if you’re looking to thank something, or someone. That said, I wish him, and his family all the best. This man is truly inspiring.

[@brodendelauretis7424]

Well said.

[@brodendelauretis7424]

@AKsleepygirl Thanks

[@AmongGumTrees]

@AKsleepygirl He didn't know initially, but then went on to an open label extension phase where he knows he's getting the trial medication.

[@CompetitiveMike777]

God gives intelligence

[@Trigger-xw9gq]

@@Amy1974-x5n Why Won't God heal amputees? (You may want to Google that).

[@scottlee8498]

Why would you have kids when you know you have the hereditary fatal disease? Very selfish.

[@maryamkaramkhel6353]

They could have not known that it was hereditary when the children were born. Most cases of ALS are sporadic (90%), meaning no family history or no single genetic mutation is responsible for the illness. It hits people randomly out of the blue 9 out of 10 times. When the children were born they may have had 1 ALS case in their family so they did not know if it was genetic. Then when other relatives got it they realized it was genetic and were tested for it. I would never have children if I had genetic ALS unless it was done through IVF so that one can remove the embryos with the sick gene and implant one without the defect gene. I also find people who have genetic ALS in their family, but that are afraid to find out if they themselves carry the gene (50-50%), before having kids, incredibly selfish. It should be illegal to pass the genes on knowingly.

[@scottlee8498]

@@maryamkaramkhel6353 well said. I'm a nurse and have had ALS patients. I'm familiar with the two types of ALS. I just find it hard to believe he had no clue this was hereditary with all the relatives that had it.

[@maryamkaramkhel6353]

@@scottlee8498 all it takes is all, or all except one, of his relatives getting it after his second child was concieved. It is a possibility, but it does seem a tad bit unlikely.

[@scottlee8498]

@@maryamkaramkhel6353 agreed

[@GTschumacher]

@@maryamkaramkhel6353 how are you?hope your well

[@fuckoff187]

I feel bad for him but why would you have children with these terrible genes? If I were his son I'd be terrified my whole life. Whay are the odds one of his kids or future grandchildren get this nasty disease?

[@finestnostalgia]

50/50 chance for each child. I agree at some point they need to stop having children if diseases like this are known to be in the family .