Life With Our Undiagnosed Special Needs Children | On The Red Dot | Undiagnosed - Part 1

In Singapore, 3% of babies are born with a birth defect every year. Some conditions remain a mystery as limitations of genetic testing left the cause unknown.
Twins Dzakir and Dzakwan were hospitalised at age 1 when doctors saw they do not resemble their parents, nor babble or make eye contact. 17 years later, the family is still looking for the cause of their lack of speech and other conditions.
After Anand and Suman saw their first-born Atira experiencing trouble learning to sit, walk and speak, they took all tests to ensure their next child would be normal, only to have Seana display the same signs of delay. When no known condition could explain what the sisters have, doctors started investigating if it could be something undiscovered.
16-year-old Jayden has always shared a room with his three sisters, as his low muscle tone and lack of speech leaves him dependent for help for all self-care activities. His parents were left in uncertainty as the cause of his condition remained unknown.
WATCH MORE Undiagnosed
Part 2: • Our Children With Rare...
=========
About On The Red Dot: CNA's weekly programme documents the stories of ordinary Singaporeans and celebrates their resilience, identity and sense of belonging.
===========
On The Red Dot playlist: • On The Red Dot | Full ...
#CNAInsider #OnTheRedDot #Undiagnosed #GlobalDevelopmentalDelay #GeneticDisease
For more, SUBSCRIBE to CNA INSIDER!
cna.asia/insideryoutubesub
Follow CNA INSIDER on:
Instagram: / cnainsider
Facebook: / cnainsider
Website: cna.asia/cnainsider

[@CNAInsider]

Watch Part 2 of Undiagnosed here:

[@ash3227]

I applaud the parents for putting that much effort into brushing their teeth. I’ve seen many caregivers and even staff just refuse to brush teeth because it’s too hard

[@doggysolution3489]

To all the parents of special needs child, you are the best dad and mum. Dont give up, the time you invested will always reap the fruit of your labour. Always positive, all needed is time and patience..God give you the extraordinary strength...

[@Nhaila]

Hello, my brother showcases a lot of the same behaviours as the twins in this documentary: developmental delay, walking on tiptoes, sunken face, gut issues, chronic constipation, cannot gain weight. My parents never looked into genetic testing and just accepted that he was meant to be on this earth as he was. Things only get harder as he grows older and it truly takes a village to take care of an adult child. The government helps but no one can truly give the care a family can, especially strangers. These parents are doing amazing, I commend them for the love and care they give to their children, you will be rewarded in the quality of life your children will have.

[@chaeyoung6133]

I highly respect these selfless parents for treating their children with so much love & care, not giving up hope on them. It made me tear up when they’re all so patient towards their children. Praying for the best 🙏🏻

[@tiffinyanderson4403]

Every parent in this video has devoted their lives to their children and they’re overcoming the stigma that still exist especially in some cultures. But these parents are so devoted to their children.

[@mistiewaters2185]

Jayden walks so well in the pool. It's amazing really. All these children have one thing in common,and IMO the most important, they have loving people looking and working with them.

[@maryellenputnam-reinhardt3305]

As someone with no children, I found myself just praying for these poor babies (and parents) life is hard enough.❤

[@sitimarjani823]

I knew Jayden’s sister Jeslyn in primary school. We were friends and she always knew how to made people smile. I have seen her family before at school events. Bless her and her family. She was so nice. We were classmates and I really miss her

[@aniraz90s]

My eldest son was diagnosed with mild autism and it was very difficult for me to accept it or wrap my head around it. I can't imagine how it would be like to get undiagnosed condition. I have to be thankful/grateful that my son is still able to walk and be independent. My youngest son is also showing signs of autism and I'm sending him to get diagnosed soon. It's not easy dealing with special needs children especially when it's more than one. I sent both my kids to EIPIC at SPD school. I saw a lot of improvement after attending. I just hope that one day, all the parents will have an answer for the conditions of their child. 🙏

[@vanessakrugman2781]

My son is severely intellectually impaired and is basically a 23 year old man who has the abilities of an infant ..Im exhausted and still taking care of him at home..Sometimes i want to give up but i dont ...My shoes are really hard ones to be in..God has really given me a cross to bare..

[@LovelyJanelabsyu]

These children are very lucky to have such loving and selfless parents.

[@lenacheney]

I give these parents alot of respect. I have 1 special needs 4 year old with autism and 1 is incredibly difficult let alone 2 or 3. These parents are amazing

[@tiasara5967]

I wish the world was chock full of the kind of people this family is. What calm intelligence.

[@gwendee]

I work with special needs kids by teaching them movement through Parkour. Really opens my eyes to how much we take regular things for granted such as walking and even jumping. For my spec needs kids, when they achieve milestones like being able to jump up with 2 legs, both me and their parents celebrate together and it's such a heartwarming thing to experience. These kids are a really lovely bunch, and all deserve a chance and for people in general to be more patient and less judgemental towards them. Thankful that there is more awareness created through documentaries like these.

[@rdu239]

I love these types of segments as it highlights various life challenges every parents face, that its not always happy and stress free to every families, I applaud the parents for putting so much effort, patience and understanding on raising their children with special needs

[@roxanaescobar5645]

I just caught myself smiling when he was able to brush his own teeth!!

[@jeffreyzain]

This brings tears to my eyes. Kudos to these parents for taking good care of their special needs children. Berat mata memandang, berat lagi bahu memikul 🙏

[@vickythefist7062]

All these parents are amazing .it must be so hard. You can feel and see the love. It must be so worrying for the parents to that they will one day be to old to look after them and who will care for the children once they are adults because strangers never can give the same live or care. I wish them happiness and peace and that one day they will get the answers that they deserve and need . Wish there were more people in the world like these amazing humans . I've got a disease where I know I won't make it to 60 and I'm 44 now and I was sat feeling sorry for myself today (was having a painfull and bad day. ). And then I watched this and thought to myself snap out of it .I'm blessed compared to these family's . At least I had 40 "normal" years and thankfully my 3 children are now all healthy and happy adults . So THANKYOU for making me realise my life is no where near as bad as I thought it was . You will have helped and educated so many people with this film and itmust have been hard letting the filmcrew into your personal life . Love and prayers from the UK xx

[@Kat-tr2ig]

Jayden reminds me of my son, Alex, who has cerebral palsy. And Alex also hated the Happy Birthday song, too (although I think he hated balloons much, much more. Even as an adult now he still won't go near or touch a balloon). The twins at the beginning also appear to have CP (it's much more common in twins) and maybe autism. I hope the families find answers soon. Having a diagnose doesn't really change anything, but just being able to put a name to something makes it more understandable.