CNN's Meg Tirrell sits down with Johnny Lubin, one of the first in the world to try a new kind of medicine that uses a gene-editing tool called CRISPR to offer a potential cure for sickle cell disease. #CNN #News
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@cloudythagreat8 ай бұрын
Beyond happy for him I’ve had sickle cell for 21 years and I went through the same gene editing process and it’s been more than a dream come true just when I was all out of options and just biding my time this was presented to me and my family and I’ve been in the best physical health of my life ever since💯👍🏽
@TheLawrence058 ай бұрын
So you are actually the first on the planet to have the editing?
@teresalegler27778 ай бұрын
Wonderful news. Prayers for continued good health.
@jakegutierrez74708 ай бұрын
A few hundred people have actually already been cured of sickle cell through gene editing, the boy in the video is just one of the first teenagers to have it done !@@TheLawrence05
@cloudythagreat8 ай бұрын
@@TheLawrence05 not on the planet but one of the first people in Cleveland
@cloudythagreat8 ай бұрын
@@teresalegler2777 thank you !
@afrolatinagrl8 ай бұрын
I lost three sisters to sickle cell, and it brings me joy to see this. I wish all the best to Johnny and all the other patients.
@mach15538 ай бұрын
I hope it works w/o side effects.
@lawsattitude19998 ай бұрын
Sorry to hear this.
@lawsattitude19998 ай бұрын
@@mach1553 There will be side effects. Let's just hope that they ain't major and the treatment is still worthwhile.
@xDueyx7 ай бұрын
There won’t be any
@voorkobserve47168 ай бұрын
In Canada, 6 beds out of ten are used for people afflicted with schizophrenia. Gene editing will be a major turn point for humanity and hopefully for the best.
@tatum6353 ай бұрын
at very HIGH costs at first. it could take decades to be affordable when it finally gets approved for the general public.
@anandvannalath310428 күн бұрын
@@tatum635 Unfortunately, you're right. I watched another video by SciShow about gene therapy and it was talking about sickle cell treatments. The treatment cost around $2.5 million, though hopefully with societal pressure and the rate of development of technology this can become a treatment available to everyone.
@DerScheisse21 күн бұрын
I would imagine the health industry would disapprove having their business taken away.
@BurritoMassacre8 ай бұрын
What a sweet kid. Wishing him a lifetime of success and health.
@MentalPistol7 ай бұрын
you sweet for that
@jevinday8 ай бұрын
"do you feel like a medical pioneer?" "I don't know, I feel like a guinea pig" This kid is funny 😂 I hope he's doing well
@wegotthis2478 ай бұрын
His smile and demeanor are infectious!!! That huge smile made me click for the story😁Such great news for him and his family. High five to the doctors, researchers, and funding!!!
@kimberlyaccurso19218 ай бұрын
What a beautiful young man. Best wishes for a fantastic pain free life !🙏🏻❤️
@martyschrader8 ай бұрын
It doesn't hurt that they chose a good-looking, well-spoken kid from good-looking, well-spoken parents. Walking advertisements. Well done.
@MsMarmimaКүн бұрын
? Why make things weird
@psychologicalpotatoe8 ай бұрын
Bro is just a straight up chill dude fr
@lpg123388 ай бұрын
Hopefully the young man has a long and healthy life.
@marshmello66368 ай бұрын
Nope he is just sterile now
@Januaryschild8 ай бұрын
How do you figure that since the cells edited were hemoglobin not sex cells?
@madelinemanor33678 ай бұрын
Go Johnny go! Your attitude is amazing, and your smile is the brightest 👍👍👍 from a California Granny 👍🥰
@tragicrhythm8 ай бұрын
Extraordinary technology and outcome. Hope the results are lifelong for the kid!
@ssmt28 ай бұрын
Ya gotta love modern medical science! Hopefully the cost can be brought down enough that the treatment can be made available to everyone that needs it.
@MandyX198 ай бұрын
This is amazing! I hope this is something they are able to make more affordable or a procedure that insurance covers to help sickle-cell patients and their suffering. But we know how the insurance companies are. Either way this is amazing!
@teresalegler27778 ай бұрын
Fantastic news! Best of luck! Love the progress in Medicine.
@thiosemicarbizidebenzoylal29218 ай бұрын
How this possibly could cost 2 million dollars is a mystery once you understand this procedure. Fraud in medicine is ridiculous.
@afanaobeba78768 ай бұрын
You bet! Milking every penny from every potential patient. The high cost is possibly because of the small pool of eligible patients who can actually afford it. If there were 10 million potential clients, the cost would likely be more reasonable.
@thiosemicarbizidebenzoylal29218 ай бұрын
@@afanaobeba7876 I read the research paper and this is Easily done for under 25k if that. 2 million is some fictitious number made up by a scammer.
@RedzicMuharem8 ай бұрын
can you offer it cheaper?
@thiosemicarbizidebenzoylal29218 ай бұрын
@@RedzicMuharem Dang right if i am allowed to use the proprietary information and facilities SUBSIDIZED by the government.
@RedzicMuharem8 ай бұрын
@@thiosemicarbizidebenzoylal2921 then go do it
@ADAJ3KINGANGEL8 ай бұрын
Know your blood type and that of your partner so your kids don’t have to go through the pain of sickle cell.
@956018 ай бұрын
How does blood type affect this?
@ADAJ3KINGANGEL8 ай бұрын
@@95601 people with ro subtype are affecting the most. Sickle cell mostly affects people of African descent because it’s a mutation that fends off malaria.
@jinxterpinxter8 ай бұрын
Sickle cell has NOTHING to do with blood type.
@bmjpdx92228 ай бұрын
@@ADAJ3KINGANGEL Thank you. Never knew the connection with malaria -- the good news is, the bad news is.
@redstarchrille8 ай бұрын
@@ADAJ3KINGANGEL Kid... No mutation are not for fending of malaria, but people with it dont get as sick, due to malaria parasite cant bind to misshaped blood cells. Mutation happens at an rate of 1 in 10^-8 per generation. hemoglobin type is not a blood type.
@Omarbrown2047 ай бұрын
😢😢I can’t wait to get my son this cure I go through so much with him
@calvinmurry10968 ай бұрын
Don't forget Henrietta lack. And a bunch of other stuff done to blacks. Including experiments on me. I have thalassemia and sickle cell trait.
@angel-vz7ii8 ай бұрын
What a cute kid. Wish him all the best. Be well.😊
@edpoletto80488 ай бұрын
Incredible!!!!!!! All the best to you. Another reason why health care should be universal.
@alexanderangelo72848 ай бұрын
This is only the beginning....
@MissesWitch5 ай бұрын
"cool and freaky" is exactly how I'd imagine it to be!
@lowellbrown11224 ай бұрын
Did they talk about the drawback? The risk of developing cancer
@scillyautomatic8 ай бұрын
If the past three years have taught me anything it's that scientist always have public safety FIRST in mind. And that they would never misuse their mountains of grant money for nefarious reasons...
@scillyautomatic8 ай бұрын
This technology WILL be used by bad people with bad intent for money, power, fame, control.... you name it.
@Jecoopster8 ай бұрын
You sound like an antivaxer😂
@Welmosca8 ай бұрын
Right?
@sireconde59698 ай бұрын
@@Welmoscawow sarcasm. I wonder if u ever visited a doctor, use any science related medicine, or anything that science? Just a thought.
@gregsutter18058 ай бұрын
Polls now show 24% of u.s. citizens know one person thats been injured by the c19 vaxx and updates. Soon the public will be outraged.
@codename4958 ай бұрын
What an amazing thing! I remember patients coming into the ED in SC crisis. So much pain and suffering. How wonderful!
@kjmtraveler249310 күн бұрын
Praying for the success of this treatment
@smooth24778 ай бұрын
Amazing story so happy for the family
@springbloom59408 ай бұрын
Genetic engineering will never ever go wrong
@Inmyownleague8 ай бұрын
Not from the point of view of the ruling elite
@springbloom59408 ай бұрын
@@Inmyownleague Yup. Already experimenting on black children 🙄
@jaegeru35354 ай бұрын
Get your zombie bunkers ready
@BlanBonco2 ай бұрын
It could go wrong sure but with him we will be able to see what happens. Crops and animals are another story.
@davericks42288 ай бұрын
So cool! Great news for this young man's future :)
@monicarust23838 ай бұрын
Precious boy! Great news!!!❤❤❤
@whitebluesky69328 ай бұрын
Hope it helps him feel better 🙏🙏🙏
@Thaiurbangarden8 ай бұрын
Omg this kids is so smart and hilarious! I love his personality! I’m glad his treatment is working and pray the treatment last longer than expected!
@soulchorea8 ай бұрын
Man this kid is a perfect 50/50 blend of his parents 😄
@wendigo538 ай бұрын
Mr. Lubin now 17 feet tall.
@katyafaucher44688 ай бұрын
What this kind of procedure open the door to terrifies me.
@kjdnyhmghfvb5 ай бұрын
The diseases that they are helping, should be terrifying you
@JoiCarlaBodyBar4 ай бұрын
Yeah...... Even you can see the unsettledness in his face. He may be smiling but it's still a concern. I actually see the concern in the sense even though he's smiling but everyone else is trying to throw it under the rug Yes, he may feel better and I'm glad he feels better but I know at night time he's thinking. I just wish the parents would have waited
@Johnieboi8 ай бұрын
Scientists are amazing.
@malachite0728 ай бұрын
Thanks to them we can have what we want and need.
@shanenoel12707 ай бұрын
@@malachite072 YEAH! At a cost. High blood pressure, diabetes and heart disease has been around since time. Scientist have done nothing to cure any of those diseases. There are more people suffering from those diseases.. are they not? Scientists are frauds in la coats.
@afanaobeba78768 ай бұрын
$2million!!!!!! WTF!
@timnottage862617 күн бұрын
exactly!!!
@tiffanyannejocelyn69088 ай бұрын
God love you johnny! I hope it's permanent.
@saturdaysequalsyouth8 ай бұрын
The future will be stranger than any of us mere mortals could have possibly imagined
@BlahstarRecords16 күн бұрын
it will be good and bad, just like the world has always been
@manonyc10197 ай бұрын
Thank god that boy looks so happy now
@seanspartan20238 ай бұрын
This is how "I Am Legend" starts.
@margaretenoha53948 ай бұрын
Banker Cabal Eugenics
@Kenny-tl7ir6 ай бұрын
You are moaning over a kid being cured of a deadly disease. How miserable are you?
@ghostmantagshome-er6pb8 ай бұрын
We are on the right track.
@z3iro3838 ай бұрын
"Curing sickle cell disease" sounds like the most unrealistic, far-off fantasy, mentioned in the same sentence as "bring world peace" and "make unicorns real." But we might've just done it for real.
@tiffanyalberti20293 ай бұрын
3 of my blood relatives died in less than a year. 98 percent of my family is dead. I lost my father to kidney disease. My mom to Alzheimers. My uncle to a heart attack. My family has a long list of sicknesses and illnesses. One day my families medical history is going to come to take me out as well. I am so close to being the last surviving member of my family. If my parents genetically engineered me and their parents engineered them then this would not be happening to me. I was born in 1980. No such thing as genetic engineering then. Maybe it's not that bad.
@payasoinfeliz8 ай бұрын
I used to play online video games a lot. I befriended another player through this game, he was friendly, and we played several times per week. Then one day he stopped logging on. I later found out he died of sickle cell disease. Was super sad to hear about it. I didn't even know about the disease beforehand, and had no idea he had it. Glad to see this advancement saving lives. Game on!
@williamhornabrook80818 ай бұрын
$2 million per treatment is super eye watering, but this is beginning and that should come way down over time. Very exciting stuff!
@sb52248 ай бұрын
It is to be covered by employer insurance and Medicaid.
@NoSoyYo-TV7 ай бұрын
I wish I could help in someway. Look at that smile. Give those scientists what they need .
@wearedustinthewindinthewin72397 ай бұрын
Hope this medical treatment is lifelong.
@JesusChristDenton_77 ай бұрын
"We are not only men of science: we are men of hope." - Dr. Jonas Venture
@Smiley_1017 ай бұрын
I remembered 9 years ago when my nephew were born and we found out he has Down syndrome I went online looking for cure for him and at the time it was gene editing it was an early stage . I remembered being hopeful that one day there will be something out there for my nephew and I’m so happy that we getting closer n closer . I know there so many peoples would benefits so much from this and hopefully they can make it affordable for everyone as well
@rileydahlgren26144 ай бұрын
cure? whats wrong with him? are you implying the enforcement of eugenics? The same eugenics that led Hitler to kill millions, spearheaded caste systems?
@oddlilbird8 ай бұрын
This is wonderful!! Congratulations✨💜✨
@dlite69998 ай бұрын
My boyfriend has Tri Cickle cell anemia I wonder if this therapy "chrisper "Curious to hear more good news about this treatment working for many diseases
@pakman37778 ай бұрын
I hope everything works out how they think it will
@larrymunn52798 ай бұрын
Probably not. Gene editing to my understanding at this stage is just breaking a link and making sure it stays broken as the body will attempt to repair it. It's messy. But, could be old news already I ain't heard much about it in years. Gotta start somewhere if you have a place to start from. Long as it can do more good than harm.
@IAmTruth-xj4es8 ай бұрын
Every time I hear of gene editing or therapy, I think of Jesse Gelsinger and all the lessons from that trial gone wrong. Still, I very much hope this young man continues to heal from sickle cell. Wish him all the best.
@lisamareeaccary51328 ай бұрын
Wow ! That’s amazing, I hope it’s a cure for him ❤
@captaingoodguySentientA.I.8 ай бұрын
when you vote for “affordable housing” it has nothing to do with making housing more affordable to the average homebuyer. what you’re actually voting for is more HUD housing or housing for drug addicts, felons, and mentally ill people. affordable housing is a scam run by democrats.
@johnnykananaskis3358 ай бұрын
2 million dollars per treatment? That's pathetic
@redstarchrille8 ай бұрын
Human body have 35 trillion red blood cells that has to be modified. And this with modified DNA markers at the exact spot.
@patrickwalsh46158 ай бұрын
That's murica! 🇺🇸 💩🇺🇸💩🇺🇸
@dysfunc1218 ай бұрын
2 million per treatment? That's steep.
@severtone2638 ай бұрын
$ 2 Million! That is way out of reach for most people..... even after the price goes down. Say it goes down in cost by 90% (which is a VERY generous estimate here), it is still going to be $ 200,000. Still out of reach.
@sb52248 ай бұрын
I see your point. But, from commercialization point of view, it took 12 years of research and almost $1.5 billion dollars in research funds. So, they have to charge a high price so that they can pay back the investors with great earnings. Secondly, it will be reimbursed by employer insurance and Medicaid in US and other nationalized insurance systems in EU. However, yes it won't be accessible to people in under-developed countries. That will take 50 more years. You need top medical facilities to administer this complicated treatment (there are only 10 in US who have the capacity).
@Hakushodemon8 ай бұрын
very cool. id watch a documentary on this new medical technique. its expensive now but it could become widely available with enough rich people using it. after awhile it could become cheap
@paperbagbrown13268 ай бұрын
What's harder to find? A bone marrow donor, or $2,000,000?
@Fredfredfredfredfredfredfred5 ай бұрын
I’m pretty sure the first drum clip was that one drum beat
@zazo16253 ай бұрын
HAH yes I was looking for someone else who heard it
@Fredfredfredfredfredfredfred3 ай бұрын
@@zazo1625given the circumstances, our boy trolled exquisitely. 🤌
@sa47698 ай бұрын
I’m very happy for him
@joefreeman37725 ай бұрын
Amazing, black people being selected to be the first to trial a controversial new Bio Technology? Reminds of the Tuskegee Syphilis Study
@Kleineganz3 ай бұрын
Well, in this case they are treating an ailment that primarily affects Black people. One hopes the medical community has learned since the days of such horrific experiments.
@metamorphic758 ай бұрын
So, is this a treatment or a cure?
@larrymunn52798 ай бұрын
It's not a once and done thing once a gene is switched off or taken out of service your body will attempt to repair the damage. You have to ensure it cannot it takes a few rounds.
@ungrateful-668 ай бұрын
It’s a neglected disease in the pharmaceutical industry for a good reason.
@paleocon7778 ай бұрын
Justice for Jonathan Lewis
@herosnational54598 ай бұрын
2 millions traitement? 😢
@asrar21000Ай бұрын
I have sickle cell disease and wondering where I can receive the treatment in the U.S ?
@PenelopePitstop8888 ай бұрын
Glad for biomedical science❣ So, if you're a person with "sticky blood" could that perhaps explain intractable or complex pain syndrome?
@larrymunn52798 ай бұрын
I dunno I just remember my RN buddy telling me that sickle cell anemia is one of the most painful conditions you can have. I imagine it wouldn't be a mystery if it's that bad.
@itsabovemenow10168 ай бұрын
I can't understand why this procedure costs two million dollars.
@sb52248 ай бұрын
Because it took 12 years of research and almost $1.5 billion dollars in research funds. Where do you think that money comes from?
@itsabovemenow10168 ай бұрын
@@sb5224 the insurance company to whom we pay premiums even though they can refuse us the benefits from the.12 years and $1.5 of research their customers paid for.
@jensonee6 ай бұрын
what could go wrong with trying new medical procedures on blacks.
@sporter5273 ай бұрын
damn das crazy
@jensonee3 ай бұрын
@@sporter527 that was
@john_wick18 ай бұрын
I wish he can be a real mutant super hero
@michaelleon20388 ай бұрын
Kid’s got good taste in video games.
@chichomx6238 ай бұрын
No you don’t need a donor just 2 MILLION 🤦🏻♂️ let me just get that out my account… crazy
@nyfinest4878 ай бұрын
Science is not cheap, what do you expect. With time it will get cheaper. Jesus you people always bitch about everything
@MissesWitch5 ай бұрын
he went from a deficiency to an upgrade!
@meredithdriscoll30678 ай бұрын
So happy for him 🥰
@CharlesReedPi5 ай бұрын
"You don't need a donor?" Tell me you don't understand gene therapy without telling me you don't understand gene therapy
@user-fb5pt7kw7lАй бұрын
What a smart awesome kid.
@DionneLong-km4kwАй бұрын
Only people facing possible death should undergo such changes they are unaware of how it is going to effect them in the long run. Johnny's testimony is promising. I hope he is really healed, and has no equaling side effects, like turning into a bacterium! I hope he received good sequences, and most of all sustaining. Life sustaining is important, even if life must be done alone, because we're never truly alone; here with you, right here! 7 months ago CNN. A testimony of 2 years, living sickle cell pain free.
@shondmichael13638 ай бұрын
2 million dollars per treatment. Seems like our people will be better off using the money to fund crspr labs and geneticist training colleges at HCBUs.
@Klonkus8 ай бұрын
Your people? Dude, they aren't going to help any of us.
@connormartin13228 ай бұрын
A lab capable of performing CRISPR typically needs an NIH P01 center grant, something to tune of $50 million minimum.
@ObsidianElohim3 ай бұрын
Man that little dude got mad charisma. That's Tupac reincarnated right there.
@LucasCosta-io8vr7 ай бұрын
Just thinking about the implications os mind blowing
@teenahweenah26082 ай бұрын
JUST SAY NO to ALLOPATHIC medicine.
@margaretcarter12885 ай бұрын
Thank you to the new station for doing this story that affects mainly Black people hats off to you!
@peachessmalls185717 күн бұрын
God please bless the doctors who helping people with sicle cell anemia, i hope they come up with a cure😊
@bertog12178 ай бұрын
They've been doing this in China for awhile now
@TheFinav8 ай бұрын
Turns out... he IS a superhero.
@sewoh1005 ай бұрын
10 years Furries will be real
@halohat22868 ай бұрын
This is the future and one of the greatest achievements of mankind of my lifetime.
@markstevens17297 ай бұрын
To get the cost down to something not designed to make the rich richer, find this treatment outside the US.
@DeanPickersgill4 ай бұрын
Such a lovely story.
@pixpusha8 ай бұрын
Sickle cell kids have strokes early because of their mis-shapened red blood cells. It's incredibly sad.
@kwakuosei518 ай бұрын
This awesome! Happy for them. Hopefully they can make this more accessible. In the meantime I'll have to figure out how to make 6 million+ to give my family a shot at trying this
@RL.RachelLaurin8 ай бұрын
Crisper and gene editing? Sounds like the movie Rampage 🙃
@verilyveronica84308 ай бұрын
It’s how humanity ends itself but not our problem now .
@redstarchrille8 ай бұрын
@@verilyveronica8430 Kids... gene editing is nothing new. it's have been done since the 60s. The new things is the technices of doing it. Both are regulated by laws both national and international.
@verilyveronica84308 ай бұрын
@@redstarchrille It does not change what I said in any way
@Iknowyoumadnow8 ай бұрын
Who.... must be before my time, carry on boomer
@Iknowyoumadnow8 ай бұрын
@@redstarchrilleyou should "edit" your remedial comment SMH
@ozzieman43928 ай бұрын
Best wishes for a long healthy and happy life!
@moderndaycaveman251919 күн бұрын
So pretty much if you have the money you can get cured.... WOW
@therealmr.incredible31794 ай бұрын
No gene editing for that Face 💀
@duncan83455 ай бұрын
2 million dollars for treatment!!!!🤯 The hell!!!🤒😢😭.........This world is completely turning into a place of have vs have nots.😢