Complex Regional Pain Syndrome CRPS, on the Doctors Show. Dr. Joshua Prager discusses case

[@jesushchrist4647]

27 years i have had crps (rsd same thing) regarded as the most painful disease known to man...diet will not touch this disease..sorry.

[@Lexilea68]

I have CRPS in my leg. I find when I consume inflammatory products I suffer with an increase in pain. I do believe diet is crucial. Our bodies are a temple of God.

[@LDuke-pc7kq]

This show is So insulting to REAL Chronic disease patients, talking about breakfast?! ...Never Once talked about Pain Care!😠 This kind of show only stigmatizes the community More and misinforms the public

[@LDuke-pc7kq]

@@Lexilea68 Same but it's not a cure for chronic disease and these type 'fuzzy show' pieces are why True patients have people 'blaming them' for their own illnesses and giving diet advice. Less pain is not no pain nor being free of pain to the point your not disabled Still with disease

[@brotherabdullah]

Actually approximately 70% of overall health originates from the gut! So it is crucial that this is focused upon by rejuvenating good gut flora by implementing live probiotic cultures - eating unpasteurized sauerkraut and drinking kefir yogurt drinks and prebiotics - foods rich in fibre to "kick start" gut biome and re-balancing - restoring happiness, good health and proper functionality ... kzbin.info/www/bejne/Zom0oKFrga2oaLc kzbin.info/www/bejne/qZSnnq2fftyIe7s kzbin.info?v=_PLD5RLLvfQ kzbin.info/www/bejne/g6rJep2EgL5nfLs

[@abbykirkwood3227]

my dad has CRPS and he's had it for 30 years, most of his body is covered in CRPS and we live in a small town with barely any doctors and to go to bigger places is way over budget. this is sad to see that SHE gets special treatment while other people who have it way worse than her have to go through hell.

[@armedprophet3321]

I agree, it’s all about ratings. It’s fake sympathy, it’s only for their wallets.

[@risadarcy1565]

Why did they talk about diet?! I know diet is important for overall health but in this case it just seems completely irrelevant. I have CRPS (new name for RSD) and mine rarely swells so looks much less dramatic than hers but it goes all sorts of funky colours. I had a flare up where I couldn’t have anything near my leg (pain is normally only in my knee), the slightest touch anywhere from mid thigh right to my toes sent such an intense burning pain up my leg that I would scream, even going outside hurt from the breeze and sitting in the car on the way to A&E was excruciating from all the bumps, all whilst on so many pain killers and nerve blockers that they couldn’t give me anymore for fear of me passing out. I have been on so many pain killers and nerve blockers that I literally couldn’t keep my eyes open (I fell asleep whilst sitting on a desk during a lesson at school and fell of the desk, I was sent home the next day for falling asleep and slept from midday until the next morning all because of the medication), at one point I was on so many medications that I went completely blind (only for about 10 minutes but it was still scary) and my coordination was so bad that I couldn’t stand even when holding on to a desk. So if none of that worked, why is changing my diet going to work?! He talked about processed foods being inflammatory but I already take enough anti-inflammatory drugs to require another tablet to protect my stomach from them, so surely she would be taking anti-inflammatory drugs too, especially as her leg is that swollen. Talking about diet just makes me think they aren’t taking it seriously. CRPS is supposed to be one of the most painful diseases on earth, a vegetable isn’t going to fix it!

[@brendamyers6320]

Exactly.. diet--wow..My pain was so high I threw up and lost weight down to 80 pounds at 5'6".. Pain so severe unable to an Dif I did the pain hot hard I threw everything up. I was dying.. I was fortunate to find a young Dr who did injections in my back trying to hit the nerve which went down to the foot.. I took meds for pain yrs. After 20 yrs and lots of injections I can mow walk and have no RSD / CRPS.. my foot was swollen and real dark.. It was a nightmare. Prayers to you and anyone who is going through it. Min began when a Dr operated on my foot..

[@lynnjimarie1]

I agree. This is coming from the glial cells in the brain, over-reacting and setting off the nervous system, which in turn causes a sensitivity to the circulating catecholamines . It's not food. What a simplistic understanding this doctor had and that's the kind of idiotic advice one gets from people who have no clue about crps

[@larahenderson1261]

Doomed to failure huh? Way to give hope doc. Most real people are never going to get a 'team of doctors working together' to solve or help with a pain syndrome- not even theMayo clinic tried that for me. Just passed the buck and sent me on my way like all the others

[@darlenebotma3703]

My first time experience with RSD was when I broke my wrist in 2010. I was put in a cast and the horrendous pain along with marshmallow swelling continued to increase so extreme and unbearable. It took 3 doctors before it was diagnosed as RSD as it was triggered due to the TRAUMA from the fracture. RSD is so rare that unless the doctor is on top of things, it can go on and on. The cast needed to be split for relief. A long recovery! Not until 8 years later when I had total knee replacement, it struck again! I never gave it a thought when I was headed for surgery. Once again, TRAUMA to my knee set RSD into motion. It settled in my calf down and into my foot. Pain so extreme along with an elephant leg and foot, that I was ready to die. Thanks to one fantastic dedicated PT who recognized the condition. He made PT visits 3 days a week for 4 months. I was diligent with my home PT but also in a lift chair 45 minutes out of an hour. It was a long summer. Now it's one year later. I occasionally feel sensitivity in that area and also my arm, but no pain. I take Neurotin daily to help keep the nerves settled. I can't live life in fear of another TRAUMA to my body but let's just say that I think twice about doing things such as riding a bike. My heart goes out to anyone to suffers with RSD. We are a small group but wouldn't wish this on my worst enemy. My prayers to all of you.

[@Catlover-jr4mj]

Darlene Botma that’s why every good doctor says you should not make any operations if you have CRPS, only in case your life is in danger, otherwise I would not recommend doing that, or you can get a new CRPS! 🌸

[@jerrylarson8169]

There is hope! My wife has been suffering with CRPS for ten years. Drugs, ketomine infusions, nerve stimulator, nerve blocks, RF. I was googling a couple of months ago and found a hypnotist who had CRPS and she went to Germany to a hypnotist. She has been drug and pain free for 5 years. Advanced Pathways in Irvine California.The ladies name is Traci Patterson, spread this to all who have lived with this painful condition. We went down last week for a week long intensive therapy session. She is pain free and weening off of all of her meds. Pain level 0 for 11 days now.

[@mydrmsr]

Useless segment. I was looking forward to actually hearing some education. Very disappointed.

[@mikehunt6107]

I knew all this before I got crps

[@gregbisesi9966]

Mike Hunt Lol I like the Mike Hunt. We used to use that name at restaurants where they’d call out your name off the reservation list. Anyway look into Neridronate infusions. My wife has had them and it works if your CRPS isn’t too advanced.

[@digthatcrazybeep1168]

She has an extreme case. I watched this show and still had absolutely no idea that this is what could be wrong with me. It could help alot more people if the symptoms were discussed more realistically and the affected guest wasn't in such an advanced, extreme stage of the disease. I received my diagnosis three weeks ago, after 14 years of pain and ridicule by not only the medical community, also by my family and friends. It would be greatly appreciated if your producer's would revisit this devastating disease in an upcoming show.

[@thecraftycyborg9024]

DigThatCrazy Beep - I'm glad you finally found your answers. It took me 6 years to find my answers and even then it was a total fluke. I bumped into my old pediatrician while at the mall, he commented on my cane (it was only in one leg at the time), I gave him a brief rundown, and he looked me dead in the eye and said, "Have you ever heard of RSD?" I had been asking my doctors for the last 4 years if that's what was wrong with me and they always blew me off because my leg doesn't look like this woman's. I told him yes, I'd heard of it, and he told me to book an appointment to see him asap. I had my first snb and got 2 hours of pain relief. That's all it took to cement the diagnosis for me. (SNBs don't work for all patients, though.) several months later, I finally found out why my doc had recognized it so quickly. He has CRPS type I in his foot. He got a diagnosis in only 4 weeks, had daily nerve blocks for a week, and was in remission by the 2 month mark. He knows how damned lucky he was to get an answer so fast and thus have that shot at remission. So he sold his pediatrics clinic and went back to school to become a pain doc.

[@creativegirl9710]

agree! It doesn't have to be that severe. Hope you found releif.

[@creativegirl9710]

@@thecraftycyborg9024 Did you do any ketamine infusions? I've had an epidural nerve block done and did nothing. Now they're suggesting the sympathetic nerve block. I've done two ketamine infusions but no miracles yet.

[@jasperbarlow2582]

The medical community should keep their ridicule to themselves, they are supposedly professionals, i once had a gp with similar traits, i complained about wrist pain after an injury,was sent for X-ray and nothing allegedly showed up. I received a phone call 3 weeks later, i had a portion of fractured bone floating around in there!!!

[@gregbisesi9966]

How is she sitting there smiling and giggling. My wife’s foot wasn’t 1/3 of the size of hers and she was in 24/7 misery with CRPS. 3 years later she’s in remission thanks to Neridronate infusions and our physician in Italy. Now there is validity to the anti inflammatory diets. My wife tries to follow that. Even though the CRPS is in remission, she is still healing from the damage from the multiple surgeries and damage to the nerves and circulation in the foot. God bless CRPS/RSD warriors.

[@oliviaortiz5989]

I said the same thing thing, she's all happy, as if she has no pain, I like to know what meds is she on????

[@creativegirl9710]

agree. and her toe nails are polished. That is like the last thing I've thought about in years. They must have gave her a complimentary make-over to feel better. And maybe they gave her some meds to sit there.

[@michelleb2u]

I think this is absolutely ridiculous telling her that eating a pastry is making her RSD worse... I'd love him to feel what she's going through for 15min... Just stupid. You cannot do hyperbaric at advanced stages of RSD and most of us don't get the treatments when they can help because our diagnoses were missed when they could have helped.

[@lisaowens2970]

I got excited when I saw there was an episode about RSD, it's hard to come by. I thought I was going to learn something about this horrible disease I'm suffering with. But instead it's just another "talk show" giving away things to someone who can probably afford them. Waste of time. Who has Dr's that actually communicate, that's a nice suggestion.

[@misskristin3655]

I have been suffering from post stroke pain on my entire right side for almost 18 months. It is unbearable. I found a few research papers about vestibular caloric stimulation and how it can help thalamic pain syndrome. I convinced my dr to do it today, and it worked! My pain level has dropped from about a 7-8 to a 3-4. It is a miracle. It is so easy to do, and a little uncomfortable but not painful at all. Basically the nurse irrigated my ears with really cold water. It makes your eyes jump and makes the room spin for a minute or two. It was nothing compared to the pain I have had every day. This was at 10:00 this morning, and now 12 hours later there has been a definite reduction in the pain. The burning sensation is almost gone, and the edge is off of the general pain. The tingling is still there, but not as intense. According to the research, it could even get better in the next few days. I am going back to the dr to do it again next week. It is truly a miracle and I can not believe it worked. Here is the research I found -- www.researchgate.net/publication/5305658_Behavioural_evidence_for_vestibular_stimulation_as_a_treatment_for_post-stroke_pain. It has given me hope when I thought there was none, and I was doomed to a lifetime of horrible pain. I am only 45 years old and have lots of life left to live! PLEASE try it - it is so easy - I want to shout it from the rooftops! Kristin

[@hillbillyheart217]

I’m a hillbilly…per the name…and my family has a cattle farm. We hunt and eat wild venison, wild hog, grass fed beef, and locally or self grown veggies. I think my more nature rich lifestyle helped reduce the severity, though I have lots of damage from the injury…which was when I was a wilderness boot camp counselor and attacked with an ax. It took over six years for a diagnosis due to how rural I am and the absolute disdain most doctors showed to someone who was experiencing pain…even with radical color change, skin changes, and now I’m going crippled due to muscle wasting even with my team of doctors and physical therapists. But I am one of the lucky ones…and I keep reminding myself of that. But this is a monster of a disorder.

[@1128Imagine]

I have fully body CRPS that started with a DVT in one calf. Each time it spread to another limb and now is in all four extremities and in my back has been more torturous than before. I am with a good pain management team, have a spinal cord stimulator but my flares last 3-6 mos. i am finally going in for inpatient ketamine infustions. It is the most unbelievable miserable condition to have. I eat healthy, drink gallons of ice water to try to cool the lava and have gone the thru the hell bootcamp of FRP. So in totality you can have a toolbox with tools, but quality of life no matter what is diminshed.

[@thecraftycyborg9024]

April Castaneda - I also have full body CRPS with organ involvement. I'm putting off ketamine as long as is humanly possible. It's the last "big gun" we haven't tried, and I'm saving it for the day my pain has me planning my suicide. I know that sounds nuts to most people, but ketamine loses its effectiveness over the years. My interventional pain doc is amazing and lives with severe pain himself, so he understand that if a treatment is only going to help for a few years, then you get every drop out of the treatment(s) before it. For now, I do warm water PT, which serves as both PT and desensitization therapy, am on oral meds, have a SCS, get biweekly Central sympathetic blocks (sympathetic med mix, but done like an epidural, so as to hit both sides of my body at the same time), and get biweekly IV meds including lidocaine. All told, my pain hovers around a 6 on average, though the last 2 weeks have been 7-8 territory and I'm miserable.

[@blackcitroenlove]

In my case, they just retrained the brain via physical therapy, nerve blocks, and gradual desensitisation. I was VERY LUCKY in that the first doctor I saw, a podiatrist, noticed the CRPS setting up and immediately started the protocol. The accident I was in that caused my CRPS has left me permanently physically disabled, but because of his help I am in remission from the CRPS. Just the normal pains and aches from the bone & joint damage, nothing like what I did have.

[@r.c.6545]

I can't believe I was excited for this to hit the air and hoped it would help us CRPS sufferers in some way.. It was pretty much dismissive. I have lived pure hell for 8 years and I know others have suffered WAY worse. This was a joke from a show I once respected. How... wow I hoped they would help open peoples eyes even a little.. wow. Where was the coverage? Did I miss the real segment? Is this just a tiny part of what they put on air? Is there a different video that is the "Full version" of this?

[@thecraftycyborg9024]

Ryan Carifelle - This was pretty much it... I was with you, I was so excited to see it on national media. And then they posted this monstrosity. It's a disgrace to them as both journalists and doctors. I wish they have a redaction segment. They need to see if the can fly in Keith from the old RSDHope.org website. The website is no longer active, but he and his family ran the charity for quite a few years and have been amazing advocates for this disease.

[@thecraftycyborg9024]

In the world of "shitty tv coverage that really disappointed you", a guy from a local CRPS group was on tv here a few years back on the morning news. He has CRPS in one arm. He spent the entire interview talking about how it's not a disability, it's a disease and patients can have full, fulfilling lives if they want. All I could do was gape from my seat in my wheelchair. Maybe it's not a disability for him, but it is for thousands of patients. All his tv appearance did is make those of us who are disabled from the condition look like lazy assholes.

[@TheZibbor]

I wish it was not such a dismissive, "look what you eat here," because it sounds like he's blaming her. Anyone can get this, and most docs have no Idea what it is or how to help. I hoped it would be more educational too. The people who suffer from it are doing tons of research, and here Im asking a doc to just google it.

[@Destinyirus278]

It’s very annoying that they included her diet to try & shame her like she caused her disease by eating.. when that’s not true at all. There is now being studies done that are showing CRPS can have an autoimmune aspect to it.. the ONLY interesting part about CRPS that I’ve seen is the fact if u have an injury, accident, body train & you take high doses of vitamin C immediately after the injury some studies have shown that those patients didn’t develop CRPS (but drs still don’t know what the exact cause is) it’s a real disease with severe complications & health issues but a lot of drs don’t know anything about CRPS & it’s led some drs to believing its just a minor thing or some drs believing it’s related to fibromyalgia (but it’s not at all) it’s actually more related to autoimmune diseases because the body is having an abnormal reaction/ response to some body trauma (which could be a minor injury or major injury like surgery, car accidents, etc) as someone who struggles with CRPS &, mast cell activation & gastroparesis I’ve had alot of drs explain that CRPS should be approached as an autoimmune/ & nervous system disease & not just a pain disease. While some people with CRPS can get better from nerve blocks of ketamine infusions, there are other patients with CRPS that have severe cases like myself & other people I’ve met with CRPS..

[@Dluu22]

I'm not sure how much this will help people suffering from CRPS. But my mother had an ankle sprain 7 years ago and has been diagnosed w/ CRPS. Long story short, she's been seeing a traditional Chinese acupuncturist who trained in Taiwan (we live in Canada). His treatments are painful however after 1 month, my moms pain has lessened substantially. We are continuing the treatment and will see how it goes but so far it's been good news. I'm sure most if not all of you have tried many different treatments including acupuncture but most of them are not the traditional kind. He put the needles in my mom and twizzled them around her hand/arm although her pain was in her ankle (acupuncture point perhaps?) I know this may sound stupid and I am a bit skeptical since I'm studying Kinesiology and University trying to get into Physical Therapy but my mom swears it helps. I hope this has helped some of you in some way and I wish you all the best.

[@lisagreig2003]

Dluu22 , I'm happy for your mom if acupuncture has helped her. But the Doctors that have seen thousands of patients ( the true pioneers ) say stay away from needles. It can spread that way. There is a seminar that is going to be in North Carolina and if you look into this . You could even look on line about this.( Mine spread after Doctors messed up) I'm just trying to help.I too have had acupuncture . But no way any more . Take care

[@kellymurphy7914]

I have CRPS in the same leg and it has started effecting my other leg. It’s not like this though, I can’t even imagine because I know how bad I suffer. I’m praying for her

[@Huemongus1]

My legs don't get swollen but the rest of the symptom do happen

[@jenniturtleburger3708]

I have atypical facial pain. It’s awful.

[@JessBeautyJunkie]

Get ketamine infusions, people. KETAMINE.

[@RateYourPain1to10]

AGREED!!! I have an episode on my channel where I interviewed a Board Certified Anesthesiologist that runs a Ketamine Therapy clinic. He gives lots of great info! kzbin.info/www/bejne/nmKqdXyme710ftk

[@abriel6412]

Tried it..doesn't work and expensive

[@creativegirl9710]

trying now. How many did it take for you to get rid of chronic pain issues?

[@creativegirl9710]

Oh my God! That poor lady. Yes diet is huge, won't be the magic overnight cure, but she should have been on a clean organic diet. That is the first thing an ND had me do when I started complaining of arthritis issues. I hope she got better.

[@Tallulah_Jane]

There is no cure for CRPS/RSD!

[@weedman7491]

my mums had complex regional pain syndrome since i was 10, I'm 18 now and its only getting worse, it's in her shoulder ever since i was 10 i had to cook, clean, put her bra on, open her water bottles, put her shoulder back into place when it pops itself out of place, everything for her and jt kills me to see her in pain everyday, she vomits from the amount of pain she is in there is nothing the doctors, specialists can do it's now spreading to her back and neck, ive been depressed since i was 12 wanting to kill myself and shes the only reason i haven't, its just her and i in the household i can't describe how hard it is to see a loved one go through this, it just tears you up inside, anyone out there with CRPS or has a loved one with CRPS stay strong and be supportive its hell on earth, i just want my old mum back i miss her so much most says she doesn't even leave her bed

[@katemason8085]

What a great show i have CRPS and i stopped coffee after surgery and drank green tea cut out all junk foods and replaced with fruit vegies salmon no red meat and i was feeling great for 6 months i starting bad habits about 6 weeks ago and went back to coffee and the burning hasnt stopped im going to start again tomorrow he help me realise i was doing something right..

[@LauraTeAhoWhite]

I have CPRS in my left leg, I've found that eating fresh fruit and veges helps, as well as drinking plenty of water. It won't cure it, but it will help with preventing aggravating flare ups.

[@tech-ii5sh]

Laura you are on a great track to be on. I do agree and also discovered that getting on a Gluten free diet help a lot when it comes to flair ups and also reduced my pain down to about 20% from the whopping 100%.

[@rirning2192]

I have RSD that is much worse than hers and I am a vegan health nut doesn't make a difference

[@creativegirl9710]

It's worse because of your "vegan" diet. Your destroying your own body. You need quality meats, fats, and oils for the body to function.

[@bethanymae7164]

It's not her diet that needs changing!!! she needs physiotherapy

[@oliviaortiz5989]

Even that won't heal her!! Phisyotherapy helps but doesn't heal! I just wondering what she's on, she doesn't seem to be in pain🤢

[@l8on99]

I have had my injury for almost 6 years and have developed CRPS in the past 5-6 months. What is this woman thinking(dumb) with what garbage she is eating? I know that I cannot eat processed foods with this or products that have big labels of ingredients it just makes it way worse. BTW my leg looks like that too only on the foot and ankle though. My message is, if you came here to learn about CRPS do not eat anything that has more than 1 ingredient if possible or sugars, caffeine and chemicals just please prepare everything yourself. If you buy meat buy it fresh not in a pre-package(slices, marinated etc) and cook it yourself. When you drink water, filter it maybe but don't buy it, use it from the tap(yes, it is better). For sugar eat fruit and vegetables not candy and cherry/processed pies etc. eat good chocolate on its own with almonds say and less ingredients or go to a family bakery only not a convenient store/Wal Mart or anything. Go back to basics when an apple was an apple. This woman is eating all crap and it worsens the condition as seen here. I know cause I feel it everyday change and am poor so I can't always be on top of it. Buy a loin of pork, season it with all your single ingredients and cook it great. Then cook your veg and potatoes and toss a salad for starters. Make your own muffins or soups, keep only good bread from a bakery and eat as much single ingredient foods as possible. This will help your pain and symptoms everyday and although painful to stand or work(hands or feet affected) do it or train your partner/family if possible but do not buy McCain crap and Swanson dinners, ready made anything or even crackers and chips whatever ever again. A single ingredient diet will help you immensely I swear and what I mean by that is cooking with 1 pure ingredient(potatoes say) added with 1 ingredient(milk) or many(butter, salt, pepper, fresh garlic) combined and voila, Garlic Mashed Potatoes. Buy that pre-made and you have 25 ingredients and all are fake and bad. Buy simple so you know on the package it is that thing with maybe a single small preservative or salt etc. for packaging, that is it. Hope I have helped someone here because I have realized this is a major factor in worsening the condition and it only take a little more time and smarts to help you feel better.. Praises

[@tech-ii5sh]

I8on99 is correct with a lot of what he is telling here. I also have CRPS for about 14 years now and have also been through a lot as well. There are some parts I like to add and possible help correct him as well on what he has stated. I hope you do not mine I8on99. This is what I have learned my self and seems to help me a lot with my problems. Keep away from any thing that contains aspartame and sugar's as much as you can if possible. I use Stevia in the Raw for it is a plant and not chemicals' any how. Sugar is a poison and can also cause many complications besides causing CRPS to get worse. Big part I learned is try to go Gluten free diet. Avoid processed meat and most things that are white for these contain Gluten. Also avoid whole wheat flour and corn flour for these are very high in Gluten. Change the white potato to either red or sweet potatoes and or a yam if desired. White foods are high in gluten and will also cause the starch to turn to sugar in your system which is not a good thing. A gluten diet will also help rid you of over 55 diseases that it causes which includes mental, emotional, internal problems such as kidney, liver and other digestive complication as well as neurotic issues such as complications with fibromyalgia and even CRPS. Helps a lot with lowering the pain level too. Feel free to give it a try. Try going gluten free for about two weeks to feel the difference.

[@blackcitroenlove]

Mine just happened due to a nerve injury after a car accident. Thankfully the podiatrist (a musician friend of ours, weirdly enough) started treatment protocol VERY early. I dealt with it for a year or so, and I am now in remission.

[@janicebray9478]

I will never understand the nerve pain that I have suffered after the broken wrist ten years ago. I have thoughts of ending my life!! I do not know how to live with it (CRPS) However, I have grandchildren that love me. WHAT IS THIS AGGRESSIVE PAIN?

[@michelehaime6737]

I HAVE FIBRO ,CMP TMJ,I'VE BEEN IN 8 SEV CAR ACCIDENT'S,. I HAVE SEVERE EDEMA, RED RASH ,SEVERE BURNING ,AND I WAS DIAGNOSED WITH CRPS ,I ACTUALLY BEGAN TO BLEED FROM THE INSIDE OUT. NOW I'VE HAD SEVERE ABUSE OF EVERY KIND SINCE AGE 3 , BUT I'M ON MY 6TH CASE OF NASTY SHINGLES .I AM CHOOSING TO SHARE THIS ,BUT MY CRPS FEELS EXACTLY LIKE MY SHINGLES!!!I I CANNOT STRESS TO ALL DRS OUT THERE ,IF YOU TRUST YOUR PATIENT IS HONEST AND THEY SAY IM HURTING/BURNING PLEASE TRUST THEM!MY HUSBAND' SPRAYED MY VEGETABLE GARDEN ,AND I WAS ADAMANT, THAT WE NEVER USE PESTICIDES OR INSECTICIDES !AFTER THAT I LOST /MISCARRIED OUR TWIN'S ,AND BLESSED WITH 3 CH,12OBGYNS SAID WE'D NEVER HAVE.MY HUSBAND OF 22 YRS LEFT ME ,AND 240,000$ ALL NATURAL AFTER 5 YRS ,NOTHING WORKED. AT SHELTER 2 YRS AGO, AFTER LOSING EVERYTHING I HAVE EVER WORKED FOR, DRS TOLD STAFF ,IF M NEEDS MEDS ,PLEASE GIVE TO HER.IT TOOK NE 2 HRS TO GET OUT OF BED. NO RASH NO BURN'S NOTHING, BUT IT FEEL'S LIKE BAD SHINGLES.ONE STAFF MEMBER ROLLED HER EYE'S ,AND TNIS DIDN'T GO OVER WELL WITH OTHER'S, SHE HANDED ME MY MED BAG, AS THERE IN LOCK UP @ SHELTER, I TOOK MED'S ,AND I SAT THERE ,FEELING REALLY NAUSEATED ,I SAID I FEEK SICK, THIS MADE HER VERY ANGRY ,AND 7 SECONDS LATER ,I BEGAN DRIPPING BLOOD FROM ARM'S HAND'S FINGERS, EVERYWHERE, IT WA'S 1ST TIME WITHOUT SEEING B RASH RAW AND SEVERELY SWOLLEN. IT WASN'T UNTIL MY 4TH SHINGLES ,THAT I REALIZED, OMG THIS CRPS IS IDENTICAL TO SHINGLES PAIN AND SYMPTOM WISE..DIET DID HELP WITH ME ,IT DEPENDS ON IMMUNE SYSTEM ,I GET WORSE ,WHILE SOME WHO DO GET FLU SHOT,HELP'S OTHER'S . BLOOD TYPE DIET BOOKS I'VE READ ARE INTERESTING BECAUSE IF YOUR "O POSITIVE FOR EXAMPLE ,MOST OF THEM WERE MEAT EATERS ,@ I'VE SEEN SO MUCH WEIGHT LOSS ,ALL BECAUSE THEY'VE INCORPORATED THE HEALTHY OMEGA 3 FATTY ACID OIL'S, KRILL OIL ,SALMON OIL, OLIVEOIL !

[@sarahdudley4434]

THIS SYNDROME IS,1,AGONY,AND2,LEADS TO LONG TERM DISABILITY.I WAS THE SAME,A SMALL CUT IN MY SKIN FROM SHOE LACES,(WEAR SOCKS!) PLEASE BE MORE AWARE OF THIS CONDITION,CAUSE NO GP DIAGNOSED ME,OR 22 VISITS(INPATIENT) THIS YEAR,EVERY DR OR CONSULTANT I FOUND WAS NOT REALLY AWARE OF THIS CONDITION,SHAME ON THEM!!!,SLEBBY33

[@김보준-m7g]

제발 도와주세요! crps 죽도록 아픈 통증과, 난치성 질환에대해 무료 재능기부합니다. 어려운 사람들을 위해 많이 알려주세요. 043)276 - 1080 행복의 신은 당신을 사랑합니다.

[@tinodikmans43]

보장 법사 석 hy i am from the netherlands,seeying this video didn't make me happy.My wife is on this moment treated in a revelidationcentre in the netherlands.Food is not the solution.!! the treatment that she gets is called PEPT.or pain exposure physical therapy. After 5 years of in and out hospitals this works! look on the internet for pept.its no hocus pocus.5 years in a wheelchair.....and now she is walking with less pain.Ask your fysiotherapist..tino

[@brendamyers2077]

Tino Dikmans Just So Sad I also have the illness, she must have been drugged, because when I had my foot swollen and bright red then really dark as if it was a deep bruise, air hurt I would throw up--was no eating when I was in the flare. He said it was the worse case--" WELL I wonder how many cases he has actually seen since we all know it is rare. Yes wasted time to tell others. I agree with all you say.

[@TheManofsorrows]

poor lady OMG!

[@mikellwingard6874]

Give me a break! This very painful condition has nothing to do with eating processed food! Hyperbolic chambers don't work either!, do your homework !!!

[@robinsmiley8067]

Mikell Wingard ok so what DOES WORK???? or is everyone doomed to SUFFER the rest of their lives?? You are so negative and offer NO HELP OR POSITIVE THOUGHTS...WHY did you bother to comment???

[@Krazycougar22]

Other treatments can help to relieve some pain but CRPS/RSD has NO cure. This disease WILL come back the older you get. As grim as it may sound, this disease can make peoples life a living hell and many people have killed themselves because of the pain. I just got out of the hospital two weeks ago from my five day Ketamine infusion and I STILL have pain. Life isn't always rainbows and puppies.

[@thecraftycyborg9024]

This whole segment pissed me off so damn much. I've had CRPS for nearly half my life- 13.5 years (I'm 30). I have CRPS type II, the rarer type, and mine was triggered by breaking my hip and needing a major reconstructive surgery to fix it. I currently use a combo of oral meds, IV lidocaine, biweekly nerve blocks, Spinal Cord Stimulator, and physical/desensitization therapy. Oh, and diuretics (lasix) to help with the edema which can get very severe in my legs without it (I don't know why it's not used more often, honestly!). All of that keeps my pain down to about a 6 on a good day or an 8 on a really bad day. I've been a 7 for the last 5 days and it's been hell. I usually use forearm crutches to get around, since my right leg where it all started and it's still the worst area. But my CRPS is full body and it's been slowly worsening over the last 2 years, leaving me in hell. I'm really struggling to use my crutches for any sort of distance, including often struggling with the grocery store. I'm at the point of looking into a motorized wheelchair and I've had to stop working recently and that scares me. I never thought I'd be this bad, this young. I'd always hoped to make it to 40 before I had to give up on working. It doesn't help that I have autoimmune issues, too, like so many of us do.

[@michelehaime6737]

As a CRPS sufferer, I am allergic to 90% of all the meds on the market ,not everyone gets it all. It's important to try and share. You never know , it may help some, and not other's. Its the thought that count's. It is heartbreaking to see ANYONE suffer.

[@rachels1616]

I have full body CRPS and my big issue is the swelling of my stomach and lower back,. I have swelling all over, but the swelling of my stomach I hate so much. I look like I am pregnant all the time. Is there anything to help this?

[@katemason8085]

that poor women.. her pain resistance must be so high

[@weedman7491]

Kate Mason it stays the same, everyday is constant agony my mum has had it in her shoulder for 8.5 years now and she describes it has someone stabbing her with a Sherrard knife under her skin so sad to see her in pain day in day out

[@thecraftycyborg9024]

I can't really answer that for her, since I'm not her, but I can answer it from my perspective as someone who has full body CRPS. Does she have a higher pain tolerance? Yes and no. No, she still feels every bit of the agony. The most common symptom of CRPS is the feeling of being dipped in gasoline and lit on fire. I also cope with extreme muscle aches like I've been run over by a bulldozer, the feeling of having my bones broken with a pickaxe, deep, red hot stabbing pains, an odd cold fire feeling that's impossible to describe adequately, muscle spasms, the feeling of being wrapped in barbed wire, and most fabrics feel like barbed wire or sandpaper to me. And on the flip side, yes, our pain tolerance is higher. When you live every day at a 5+ on the pain scale (for me a 5 is a fantastic day, a 6/10 is average, a 7 is my normal daily spikes, and only really bad flare ups or injuries push me to the 8-10 range), you learn to cope and adapt. My pain doc says if someone comes to him saying they hurt their back a few weeks ago and their pain is totally an 8, but the patient is upright, moving under their own steam, and carrying on normal conversation, he doesn't believe that it's really an 8. Someone new to pain wouldn't be capable of functioning. But if a CRPS patient comes in, carrying on normal conversation and even laughing some, and they say their pain is an 8, he totally believes it. We've got the practice with both coping and faking it.

[@severednerve5598]

why can I not find the ketamine depression episdode anywhere??

[@RateYourPain1to10]

I know your comment here was from a long time ago but if you are still looking for solid info on Ketamine Infusions, I have an episode on my channel where I interview a Board Certified Anesthesiologist that runs a Ketamine Therapy clinic. He gives lots of great info! kzbin.info/www/bejne/nmKqdXyme710ftk

[@mrsdebrahenderson]

SOMEONE PLEASE HELP ME....

[@blackcitroenlove]

A TENS unit fixes it most of the time. I had it for a couple of years, TENS rewired everything. It's all about the neurological loops.

[@Tallulah_Jane]

There is no cure for CRPS/RSD! AND NO TENS DOES NOT FIX THIS DISEASE!

[@brendamyers6320]

I was throwing up--unable to eat...down to 83 pounds.. NO food

[@lysstaylor]

Thats not rsd. thats crps. i have rsd and rsd doesnt have much inflamation just change of color but not inflamation. diet change WILL NOT fix it. if you have rsd or crps go to a rheumotoligist.

[@christyinthecarolinas]

lil alyssaa rsd and crps is the same thing. the name has just changed throughout the years. some sufferer's of crps/rsd do have swelling like that.

[@kylerglover3477]

RSD and CRPS are the EXACT same thing. Just because you don't have that much swelling, doesn't mean other people don't. I have it too and I don't have that much swelling, we both are very blessed not to have that part of CRPS. Most people with it do.

[@thecraftycyborg9024]

The name CRPS popped up about 15-20 years ago, so I'm always amazed how uneducated some doctors and supposed advocates can be about the change. It leads to so much confusion. RSD/RND/(insert 6 other names here) is now known as CRPS type I. CRPS type I is when the injury is less traumatic to the nerves and the body really, really overreacts. They think there might be a genetic link to who develops CRPS type I, considering how a stubbed toe can set it off. Type I accounts for 90% of cases and occurs in 1 in 5,000 people. Causalgia, which is far less known, is what became CRPS type II. Basically, type II only happens when the nerves are severely, visibly, obviously injured. This category includes people who got it from a spinal cord injury, traumatic brain jury, surgery, compound fractures, that kind of thing. In the past, many type II patients were misdiagnosed as type I simply because it's so rare most doctors never knew it was it's own thing. Only 10% of all CRPS patients are type II, meaning only 1 in 50,000 people will develop it in their lifetime. Both forms are very much CRPS, despite them starting off differently. The symptoms, progression, etc are all extremely similar. Whether of not someone has edema (swelling), or any other single symptom, doesn't differentiate the type. Only the trigger can determine the type.

[@thecraftycyborg9024]

Kyler Glover - I was so damned lucky and had very little edema for the first 12 years. (Although believe it or not, I've had doctors assume that means my case is more mild and less painful than other patients...) But I broke my foot in two places due to the start of osteoporosis about 1.5 years ago and have had edema ever since. I now take a diuretic to help keep the excess fluid levels down as it was getting to a point where we were concerned it was pinching nerves and effecting my balance and pain levels. On a bad day, I can lose 5lbs in fluids alone, and can watch my legs shrink to close to a normal size through the day.

[@lindsaykokennen4901]

Rsd and crps are the same thing...rsd is the old name that not used much anymore. Not everyone has swelling, so just color change.

[@Mo.inthedeepend]

Yeah I just got diagnosed with six kids and a husband sure it was the pop tart I ate ten years ago … take a hike the doctors

[@marlesebezuidenhout2036]

The Spero Clinic in America, Dr Katinka van der Merwe, seems to be having success stories with helping patients who suffer from CRPS, Fibromyalgia, etc. All the best to all of you.

[@emmamyers6091]

She’s incredible I’m actually at the spero clinic right now and so many people are leaving pain free

[@peterpamlockwood]

try CBD oil ( hemp) in EU its the number one pain treatment....wife has CRPS BOTH feet........will be trying soon its legal most countrys ..good luck...never give up!!!!

[@EE-dk7bw]

How sad ! People who are vegans still have rsd!

[@creativegirl9710]

that's because it's not an ideal "diet." They eat crap, they don't eat a balanced diet. Our bodies need quality meats, fats and oil. Our brain needs animal fats to even think straight. Our nerves need collagen, fats, etc.

[@laurelsingsit3507]

Is this cause by bacteria or a virus?

[@lynseymoat363]

Neither. Usually after trauma. Its a malfunction of the nerves

[@creativegirl9710]

That's a good question. Nobody really knows. Having Lyme disease can cause "trauma" to the body. It effects the nerves. I was diagnosed with chronic Lyme in 2016. Only after I had arthritis from head to toe and nerve pain all over. I treated and treated for lyme. Ozone helped me the most. But I can not get rid of the nerve pain my my left foot. Drs now think it's CRPS. So it could be an internal "injury" or trauma per se.

[@julesmpc1314]

Physiatrists...thats the medical area that should be heading this.

[@meredithbarson775]

"STAND UP TO RSD/CRPS" CALLING ON ALL MUSICIANS PLEASE STAND UP AND HELP US PUT ON THE LARGEST BENEFIT TELEVISED CONCERT SO WE CAN BRING EXTREME AWARENESS TO THE PEOPLE. AND TO MY FELLOW WARRIORS THE MAIN CAMPAIGN IS ON INSTAGRAM I AK YOU TO JOIN MY FIGHT, IM ON ALL SOCIAL MEDIA WHERE YOU CAN REACH ME. MANY BLESSINGS.