Dementia - Responding to comments

[@Giacccomo]

Having had 3 family members with dementia the beginning of this video was.... sobering. Wishing you the best and I hope you can find some peace and comfort despite this curse.

[@mrping2603]

Love your personality, glad you are sharing your struggle. Also, happy you're respectful of your own boundaries, please only share what you're comfortable with. Also, as a video idea: show us some things you do to cope, deal with stress, keep engaged. I'd love to see you practicing music.

[@Revontuletband]

Thank you for making these videos, you're very brave to share this. Also, your videos really do look very good!

[@nicksterp2805]

Thanks Frazer. I like that you responded to the comments in video format and not just typing a response. Keep up the good work

[@lisaa9430]

My dad has vascular dementia, and your video really helped me. Thank you so much 💕

[@mira13791]

I truly hope you will never feel alone on your journey. Hang in there Fraser c:

[@susanne4028]

Everything you say is so understandable and relatable. Thank you. My mother started to have first signs at 60, now she is 90, but thanks to my dad, she can still live at home. She's quite confused sometimes, orientation sometimes not good, and of course short-term memory problems. She is diagnosed. She still recognizes us all and even does small house chores. She has always been an extremely - and I mean extremely - positive, uplifting, happy person. Maybe that has slowed down her illness that much. I wonder. Anyways. Her mother had the same and I'm going to be 60 this June....and listening to you and others I feel, that I have started to have similar symptoms too. I don't want to get tested as of now, it would be too much for me to handle. I am happy I found your channel. All the best to you. Greetings from Switzerland

[@neosapienz7885]

You’re doing great, by the way. Thank you.

[@laddieokelley6095]

You're absolutely right about "Do not go gentle into that good night." I try to connect with Pema Chodron's Buddhist advice to soften in times of heartbreak or distress and let it flow through and around you. To fight might well lead to further distress.

[@MsCValentiner]

❤Your work with this channel is very, very important. Thank you so much for doing it. ❤

[@sgregg5257]

Love, in the end, is really what we need. My mother in law is in the very last stages and all we can do is love. And that does make a difference. Even without this diagnosis, life is just a shit show that is out of our control. We go through with a set of preconceptions that we constantly fight to uphold, rather than just surrendering to the current and enjoying the ride such as it is. Wishing you all the best from Boring Oregon.

[@SandyTCF]

I watch a YT channel of a guy whose spouse has early onset dementia. They are older than you but still young. From the videos I’ve seen (many!!!) the love she continues to absorb and respond to is powerful ❤❤❤❤❤❤❤. I have found that with others I’ve known and loved with Alzheimer’s or other forms of dementia.

[@BulyssesBwachowski]

You are a very good KZbinr for having less than a thousand subs. Great work my man. Good luck on your journey.

[@thomase5374]

I do not struggle with this myself. My exposure to dementia and Alzheimer's has been largely indirect. Growing up my dad would always tell stories about his grandfather, and I heard relatives on that side of the family talk about cognitive impairment all the time. Growing up, it created a deep deep fear in me. Probably my greatest fear. I only just discovered your channel by happenstance. Maybe it was the algorithm wanting to make me afraid or bait me into engagement? Either way, it had the opposite effect. Seeing how you talk about this and the sense of normalcy in your life has been inspiring. You speak with clarity, intelligence, and honesty. Watching these videos has fundamentally changed the way that I view dementia and Alzheimer's disease for the better.

[@jeanbot]

Thank you for sharing these videos! I hope you can sustain where you are for a while. My mother has dementia and I think the brain fog and lack of working memory is similar to someone who is really stoned.

[@donnam2012]

You are so honest and so humble. It's so refreshing to hear you levelly respond to all manner of suggestions made in the comments and that you find many of them helpful was good to hear. I'm the person you mentioned in the video whose Young Onset AD partner was "in denial" for all those years. I just wanted to add something, from the partner's perspective, and I hope you find it helpful. The dementia diagnosis has brought us closer together, and the steps we have taken to adjust our lives to it has improved our quality of life and enjoyment of life. I now understand how hard everything was for him, and I am more patient and hopefully more helpful. I also want to say - "It's not all bad". There is a lot of love, appreciation, and we really enjoy the simple things in life, now. The illusion of control over the future has been swept away. I was the same with the doom and gloom, the videos, I could not even bear to be in "carers' support groups" and so on, it just depressed me. Most of the AD people were so much older, a generation or two older, and seemed not to be "like us". I wanted to focus one what was still possible for my partner because everyone's experience is different. We have done the no processed food diet, he has taken up running, he works with an exercise physiologist, he takes various supplements. He meditates and we walk in nature. Not to try and "cure" the condition, but just because, as you say "It can't hurt!" and it adds to quality of life. We are all about quality of life, now, which is why he's not on any medications, and not seeing specialists - these create a lot of stress and they don't seem to have much to offer, although they have all been keen to get him into drug trials. I have a science background and have read lots of papers. It's overwhelming and I honestly came to the conclusion "They don't know much. They are still at the beginning". I think your decision to enjoy your time, to find ways to live with meaning and love, is perfectly reasonable and is the course we decided on, too. There are papers about covid's effect on the hippocampus - that covid causes brain inflammation and effects that can be permanent is not really in dispute, I believe. For this reason my partner and I are very careful to avoid infection with the virus that causes covid. We mask indoors with others, including on public transport and in medical settings, and have not been infected as far as we know. Actually, we've not had a contagious illness since 2019. Thank you again and I do hope some of my comments are helpful. It's not all bad. My husband has remained his gentle, kind self, his personality has not been changed. Everyone's course is different.

[@donnam2012]

PS - I understand what you mean about the "dismissive" comments. What is that? People said to me "Oh yes, my husband is like that" or "Oh, yes I do that too" - why do they do that? It drives me nuts. I just shake my head! I think you are right, it's a kind of denial. But it's really very unhelpful!

[@gabrielle-uk3nl]

Thank you very much for sharing your story! I admire you for being strong and open. You help others to understand the symptoms. Have a good day and greetings from Norway.

[@CamxCam.]

Hope you continue to post

[@pascalrobot]

Hi, I just watched your videos and found them very valuable. I am glad if sharing your experience online can bring you comfort. I don't know if you are interested in fictional depictions of Alzheimer's, but if so - I strongly recommend watching "This Is Us". There's a main character there who gets diagnosed (it's not early onset though, she is already relatively old), and her progression is shown slowly over a few seasons. The series deals with loss quite often, but I find it does it in a gentle, hopeful way. The show is full of flashbacks, and when it comes to this character with Alzheimer's, the message seems to be about love. She is still the same person and she is loved by others in the same way, regardless of what she is able to do or remember. In any case, good luck with your journey. I wish you the best of days

[@theprodigalson4003]

I’m very glad I found your channel. I will watch every video, Should I remember! 🤣 it’s important to count our blessings. And have gratitude for every second even if it hurts. Use your brain for things, u can recover a lot. I believe there’s hope as long as we live and breathe. Languages watching and learning alternate languages to my own mother tongue, and maths, different maths, I’ve found help immensely. Love to u brother. We’re in this together

[@markgoodwin183]

You seem like a very nice person. Please keep making the videos.

[@mwearne8711]

Thank you, Fraser, for posting your videos. It's a gift to many to have such honesty and 'real' thoughts about a diagnosis that really isn't fair. Finding the balance between quality of life, or quantity, is incredibly personal. I hope you find what that balance is for you. We lost my Father in Law to Alzheimers. He was an avid musician, and right to the very end he could pick up a guitar and sing. To be fair, there were many 'extended mixes' where verses might be repeated a few times, however, he never forgot the how and it would bring him (and us!) such joy. We are very sure that it helped him retain as much cognitive ability for as long as was possible. He also loved to work with his hands, a talented artist and wood turner. I do believe that creative activites, like photography, will also help, if this is where your heart is. We were lucky, he never forgot his kids. He always knew on some level who we were. I believe you are right in that we will always recognise love, even if we can't verbalise it.

[@DanielAusMV-op9mi]

That's a very important video, also i want to say i think you are very beautiful. It is all just so relatable. I dont really have much else to say i think, except i wish you all the best 🐝❤❤❤🐦 Ah yes there is one thing i would like to share, my spiritual background, which you dont have to believe but i do and I would like you to hear it is, Sanatan Dharma, and this tradition firmly believes in Dharma, which says that Universal Wellbeing is the purpose of the Universe and that all beings, even if inactive are moving towards wellbeing. Im not like a scholar in this but they are very sure of it and it makes sense i think Have a nice day ❤❤

[@ellepwnzstevedaily]

I appreciate the candidness you present here. If I can ask a question: in your first video you mentioned not remembering how to turn off or start your partner’s car (can’t remember which gave you issue). Do you intend to drive as long as you’re able? Do you have a plan for that time? Again, thank you for your videos

[@DontBeATree]

I would love to have you on my channel. Your videos are so honest. Thank you for these

[@theprodigalson4003]

Mary Schwartz and let’s play guitar are awesome for guitar learning! I am self taught from them. Just do it for fun mate, any time spent doing it will be beneficial. And enjoy every moment. What we have, our minds though addled, are much more than what another may have, and we have lived far longer than a lot of people have

[@lukaswater25]

Don t forget to make vlogs when you are doing someting at home, or when you go for a walk, and keep talking and singing as well. Saty focus and hard, I watched with my sister whose husband has dementia as well, but you look more better than him. God bless you mate!!

[@SuperTruthTruth]

Have you been checked for NPH? (Normal pressure hydrocephalus). It can mimic dementia.

[@stainglassfox]

If you’re willing, I’d be very interested in hearing about how Psilocybin effects your symptoms

[@kosurmyne]

im not one to push drug usage on others but i would be lying if i said i do not wonder what might come of that, as someone who has taken both lsd and shrooms

[@asmodeuso27]

man, ignore people saying you should do this or that. do whatever the hell you want to, whatever makes you happy. it’s your life, not theirs.

[@marnoch4632]

Beautiful video. Thank you for making it. I too have significant brain fog, and have asked my doctor three times if I could have alzheimers. He dismisses it each time. I have a question, can people have other symptoms like body aches and muscle weakness?

[@mwearne8711]

I can't answer the questions you have, but what I will say is that over the years, I've learned I have to advocate for myself. If you feel you are being dismissed, seek another opinion. At the very least it can give you peace of mind - doctors are not gods, they are human.

[@pubhag]

I can't help diagnostically, but I have chronic fatigue and I have significant brain fog, body aches and muscle weakness when I'm in a 'crash' period. I hope you find some answers, it's really hard not knowing what's going on.

[@adambenus8951]

My specific problem is that I don't use certain types of memory, for example my image memory is at 150%, I don't have a problem with body movement memory either, I noticed that after hearing my memory is completely zero (close), for example, my problem is that I built myself up in such a way throughout my life that I regret the time to remember (take it literally), mainly what happened to me didn't matter, I didn't experience my feelings, no I valued myself, I enjoyed the pleasures and only that mattered and only at that moment, and everything starts from here, if my memories don't matter, then my brain is with me, then neutral knowledge definitely is, now I slowed down, I write memories for each day and I read them in retrospect every day and let the memories come and activate my brain, it works for me(google translate)

[@edwong4178]

I’m hearing some avoidance, but that’s only natural as you’re moving towards acceptance. Perhaps individual counselling might be useful as you work through grieving the life you thought you had and the one you now need to face. All the best.

[@EliseVeldt-xc5wl]

if you eat 2 kitkat bars with raw herring youll be cured of everything. dont forget to put an onion in your sock too

[@suzanne296]

Im confused i watched your other video. Do you have dementia. I get the feeling you do. Please know your a person not a dx. My mom died in 2015 of dementia. Im 62 and go to the neurologist in March. I've had few times of not remembering a names. I don't think it's cause for concern but my god it worries me.

[@PentaxSource]

Have you tried focusing on your diet and supplements? Sometimes adding healthy fats like avocado, olive oil, or omega-3s can really make a difference in your mood and energy levels. And as for supplements, magnesium, B vitamins, and vitamin D can also help support your overall well-being. Keep going, you're doing great

[@ForeverYoung20092]

Once you have it you have it. There’s things you can do to slow it down such as cross word puzzles or “learning a new instrument” as you mentioned but it is a progressive decline. Everyone always claims to know the cure. If there is one why do the richest people in the world die from these diseases ?

[@andrewwood3597]

Most are claiming a way of arresting Alzheimer's progress, not a "cure".

[@NickFields4]

In case it helps: m.kzbin.info/www/bejne/opmTlqyPj6h4ecU&pp=ygUNZGFsZSBicmVkZXNlbg%3D%3D Perhaps his claims are overblown. But could provide a map for which rabbit hole(s), if any, are worth incorporating. In any case, much love from a random guy on the Internet 💞💞💞💞💞

[@LilahPearson-c7o]

kzbin.info/www/bejne/sKGWqpSJeriNicU

[@annipsy2185]

idk if your doctors gave you any meds but...my mom had some meds that i recall i looked up and it basically said it was for dementia. i dont recall the name of the drug but im just saying theres some meds for it

[@Elucidator18]

No fad diet does anything special. A balanced diet has always been what is best

[@andrewwood3597]

There is evidence that ketogenic diets can enhance the cognitive function of dementia patients.

[@Goldenretriever-k8m]

Gamma 40 light therapy is so easy! Just buy the light from the best company for it because they test the light and literally just chill in the room with it on. You can exercise with it on like you regular routine or read, or meditate or watch tv if you really wanted

[@eugene4175]

Can you share the timing of your Covid infection, Covid vaccines and beginning of memory issues? What was the order, in other words.

[@FinneasJedidiah]

Shut up. Stop spreading conspiracies. If there was a link, it would be found. Imagine the fame a researcher could get if they found a link. Any neurologist would LOVE the chance to publish that research.

[@eugene4175]

​@@FinneasJedidiahit's not my theory, its KZbinr's SO. Doctors are a conformist bunch and are afraid of disciplinary action from their medical boards. Personally i'm curious if the spike protein can plug up blood vessels near the brain.

[@derbybOyzZ]

What were your covid vaccine batch numbers? I could check the databases to see if they had a high incidence rate of damage.

[@ProvinsFruen]

In the video, you talked about living with Alzheimer's at our age, which really struck a chord with me. I wanted to share some thoughts on diet and health, especially how they seem to relate to conditions like yours. **Who defines a "healthy" diet anyway?** When we eat carbs, they're broken down into sugars, which then spike our blood sugar levels. That's where insulin comes in to shuttle this sugar into our cells. **Do we really need dietary sugar?** Surprisingly, our bodies can make all the sugar they need. However, too much sugar can fuel inflammation, which is not just linked to Alzheimer's but also to cancer. **The Link Between Inflammation and Alzheimer's** There's emerging research suggesting a strong connection between inflammation and Alzheimer's, much like with other metabolic diseases. **A Dietary Experiment: The Carnivore Diet** I'd like to suggest trying the carnivore diet for six weeks. It's an elimination diet where you only eat meat, which can help you identify if certain foods are triggering your symptoms. If you feel better after this period, gradually introduce low-carb vegetables to see if they affect you. **My Personal Experience** I tried this diet after hearing about its benefits from Jordan Peterson, especially for his daughter's health issues. I've had rheumatoid arthritis for 14 years, and after just four weeks on this diet, my pain dropped dramatically from an 8/10 to a 2/10. Even my extra heartbeats, which doctors said I'd have to live with or manage with beta-blockers, disappeared completely. After the initial eight weeks, I transitioned to a ketogenic diet, which I've found beneficial. **Metabolic Health and Diet** A lot of research points towards the importance of metabolic health in managing chronic conditions. Here are some experts you might want to look into for more insights: - Dr. Thomas Seyfried - Dr. Tony Hampton - Dr. Anthony Chaffee - Dr. Ken Berry - Dr. Robert Kiltz - Dr. Philip Ovadia - Dr. Georgia Ede I encourage you to consider this dietary shift. It might just offer some relief or insight into managing your condition. Remember, everyone's body is different, but exploring diet as part of your health management could be enlightening. I am so sorry for you and your family to go through this, I hope this comment is ok for you 💕 I just felt like I at least had to share my thoughts and experience, it have had a profound effect on my life, and I can see a pattern and explanation that makes sense to me, I feel like it gets all the way back to the root cause, and not only treating the symptoms.

[@brookeb7994]

Yes! I second all this. 🙌 Also, Dr Mary Newport talks about her experience putting her husband on a ketogenic diet. She's written several books. And Dr Chris Palmer has a book: "Brain Energy: A Revolutionary Breakthrough in Understanding Mental Health--and Improving Treatment for Anxiety, Depression, OCD, PTSD, and More "

[@Chris-2020-s9h]

As far as I know there no cure for dementia😮😊😊😊

[@Andrew-yf3lu]

Carnivore diet would hurt you tbh, it's not a freeroll. It won't help with you with alzheimers but will increase your risk of diabetes, heart disease. But don't listen to me, discuss the evidence with the health professionals.

[@andrewwood3597]

How come when you do Google searches for keto + diabetes and keto + Alzheimer's you get links to research that shows positive results? My HbA1C level went down, indicating a reduced risk of T2D and while cholesterol went up the ratio remained perfect with low triglycerides and a good Hdl count. Heart disease, in the unlikely event that it developed, would be far easier to manage than Alzheimer's. Considering that 25% of the body's total cholesterol is found in the brain it seems likely that cholesterol is quite important for healthy brain function.

[@picking4profit]

Sorry but you are wrong about meat causing diabetes and heart disease. I was pre-diabetic before I ate a carnivore diet and I am no longer pre-diabetic now. I do eat some carbs now but not a lot and meat, fish, dairy and egg form at least 80% of my diet. My metabolic health is great now I no longer eat the diet my government told me was healthy!. I was an early adopter of the carnivore diet in 2018 and ate carnivore for 3 and a half years. The carnivore diet has helped many thousands of people heal their bodies and will continue to do so. Eating processed food is the problem regarding diabetes and heart disease, specifically seed oils, wheat and high fructose corn syrup. One you eliminate the crap from your diet, your health will dramatically improve

[@G-wk4gt]

Carnivore diet or other Meat or other protein food like cheese, doesn’t raise glucose. I’m not a doctor. But You need a little carbohydrates for your brain.

[@andrewwood3597]

@@G-wk4gt The ingestion of carbohydrate is not essential for brain function as the liver uses a process called gluconeogenesis to convert proteins into glucose.

[@G-wk4gt]

@ I didn’t know that. Why do I get crabby then when I give up carbs for just two days? lol

[@ingenederland7919]

This life is ending. But after this life we as spirit are not ending. I found great hope in trusting Jesus in my journey as pilgrim in this life heading towards eternal life.