Doddie Weir frustrated by slow progress finding MND treatments

[@lisarollins5842]

Recently lost my sister to this cruel condition 💔 It is indeed the hardest thing to see a loved one suffer this way....Great work by Doddie....

[@rory6089]

RIP Doddie - A lovely fella!

[@emmahopps5463]

My dad was hoping to get on the Edinburgh drug trial but because of covid it didn't happen. He passed away June last year after a 18 month battle with MND , I wouldn't wish this illness on my worst enemy.

[@patrickowens6523]

It's ridiculous the way mnd patients get treated

[@emmahopps5463]

@@patrickowens6523 my dad couldn't get the help he needed because no one was doing home visits because of covid. We were basically left to get on with it.

[@patrickowens6523]

@@emmahopps5463 well I tell you what's really sick Emma is they don't give people tracheostomies on the NHS who have MND also I'd have thought your father's carers would be essential workers ridiculous isn't it

[@emmahopps5463]

@@patrickowens6523 we had careers but couldn't get him speech therapist or electric wheelchair assessment. We couldn't have night care so had to rely on Marie curie when they were available. I was caring for my mam as well as she's disabled, I was lucky if I got an hours sleep most nights. We couldn't understand him any longer so he gave up trying. Council were building him an extension with wet room and bedroom they dragged their feet for months he died before it was finished. He had to sleep in his chair until he died. He had a heart attack so didn't get to the point where his breathing was affected.

[@fostexfan160]

R.I.P. Doddie Weir.....great player and a great man😔

[@alanlittle3941]

❤

[@patrickowens6523]

Doddie if you are reading this I'm pretty sure anabolic steroids are the answer to fixing this if you have enough of the right material to rebuild the nerves and anabolic steroids in your system it should make you heal or at least halt progression, there are certain anabolic steroids given to burns victims that not only regrow skin but also I'm sure repair nerve damage, I'm pretty sure that this is what is the benifitual effect that the nurown volunteers are basically paying £150,000 for as the stem cell treatment for anything is a far off reality, they do I know jab the patients with a steroid when they get given stem cells but I do not know which one

[@junedewar3551]

Have you given thought to Chloramycidine and Hydro-chloroquine? Looks like I haven't spelled them correctly. Some medical practitioners who have been sacked for using these claim they are cheep and effective drugs that they have used to successfully cure and treat the effects of COVID disease. I could be wrong but I think the disease has been injected into people before lockdowns began. My daughter was injected December 2015 to allow her to work with the public. She died March 2020 of Motor Neurone Disease but had COVID at that time which she contracted from a health professional who was arranging a wheel-chair for her.

[@patrickowens6523]

@@junedewar3551 I can't read your full comment?

[@siobhankennedy2812]

what an inspiration!

[@patrickowens6523]

My partner/ex partner has mnd please let me and other people know if you can about the effects of steroids

[@jayal6698]

What the decline with this illness is so fast and bad