Dr. Tim Tollestrup Facebook Live on CRPS

[@sundaysommers1476]

I was crippled by CRPS for 25 years. I was homebound, took lots of meds, used crutches and a wheelchair, and couldn’t wear socks or shoes. I was in constant pain, my leg and foot were discolored and swollen. Dr. Tollestrup diagnosed me from a distance. I flew to Las Vegas , he confirmed the diagnosis on a Monday disconnected the nerve on Tuesday, and I walked pain-free on Wednesday. It has been 16 months and I use no meds and have no limitations from CRPS. I call that a cure.

[@susanpreciose4021]

Ya’

[@susanpreciose4021]

Misnomer!

[@daleval2182]

That's awesome

[@marcusaurelius2242]

I believe you are a "one off." Congratulations on remission.

[@ivetamorin7062]

That is wonderful, my daughter is 14 and she injured her thumb when she was 9 and was diagnose with CRPS and her life turned to hell. Could you please tell me what are the symtoms of disconnection of the nerve. I know loosing the pain is a huge win, but just curious what impact it has on your every day functions. Thank you

[@ilenemorris8285]

It confirms that it isn't in my head! I had many doctors tell me that one even said to go see a physicist! I have never felt so alone

[@susanpreciose4021]

Thanks you!! So dam true!! 16 years now. CRPS w: deng disc disease, 13 surgeries and more to come

[@TimTollestrupMD]

You probably have injured peripheral nerves in addition to whatever spine pathology you are dealing with.

[@susanpreciose4021]

@@TimTollestrupMD yes. I do, in 2004, I was barely tapped by a van at a stop in the rain approaching a circle, a semi truck was coming from the East, i waited to go, let him pass because of my tires have spun before in the rain, so my timing would be off etc: but the van thought I was going to go, and I would had if the rd wS dry?? No, damage to the car, we didn’t exchange any ins info, by over the next few month I was feeling strange sensations? I went to an orthopedic Dr, and the x-rays showed their were bone spurs sitting on the cord, after the mri, surgeon put me directly in the hospital, I ran them, 6 miles daily, used to get up at 4 am, ran on the treadmill and put the door at 6:30 to go to work, teaching, special education. After the surgery of c-5,6, shaved the osteoporosis, but the brain didn’t recognize they were off the cord,, did physical therapy for a year: and the therapists said ur not getting better, Surgeon then did a clean out of the Formina. Still was burning!! Badly too, so that was where my journey began!

[@mariamarino138]

Seven years of severe pain 😢 don’t socialize anymore, can’t sit in a restaurant, can’t sleep, and when stabbing pain happens, it’s as if I’m being TORTURED!!!😢😢😢

[@erikaorrissHD33]

I had a severe case of Guillain Barre in 2001, I was left with paralyzed toes and limited dorsiflexion. However, I have had pain, terrible neuropathy below my knew to my toes since I had Guillain Barre. I found you because I broke my foot. I think the foot will heal, but you have given me hope for the pain I have dealt with for years with the neuropathy in my feet.

[@pamelamorgan6805]

Hello Dr Tollestrup I seen you back in 2017 and I was diagnosed with CRPS from a orthopedic doctor because of a surgery I had from a doctor in 2014. I had unexplained pain and burning in my Right leg from my knee down and other symptoms such as a feeling of bugs crawling in my leg a warm sensation of water flowing inside my leg and a feeling of being shocked I still have those still to this day but I ended up with a total knee replacement because I had osteoarthritis and ended up being bone on bone I was shocked that I found an orthopedic surgeon that would operate on me but he did because I could barely walk well didn't have much good options to choose from so I proceeded with the surgery although I'm finding that I'm having difficulty with physical therapy now and bending my leg and my burning has come back and my symptoms are more magnified and it's difficult to bend my knee I have severe swelling and I ended up with an infection in my knee I can only hope that it is time progresses but things would get better but even my foot is severely swollen and it doesn't take much just being on my foot trying to walk with my Walker I end up swelling from my knee down to my foot the pain is horrible I don't know what else to do but I know that you're a wonderful doctor and I do appreciate what you did for me I just wish that I could find a cure I'm under pain management and they have done synthetic blocks but they don't seem to help me I do take pain management meds but they don't help that much go for my knee from the surgery that I had but not for the CRPS I guess there's just no hope I feel like I can't function some days I can only hope that I can get some sort of range of motion in my knee if you have any suggestions I truly appreciate that Dr Tollestrup what you do is truly wonderful keep up the great work that you do and making a difference in so many people's lives thank you.

[@tysonjordan-knox5004]

Tim your the first doctor that has given me hope ! I fell 25 feet out of a tree and landed on the outside of my right ankle fractured it in 4 places and a fibula fracture I never had surgery but I’m sure the doc left the cast on too long I was in the cast from 14weeks no physio till last week and it’s been 7 months now being passed around by doctors in. Vancouver bc , I’m sure it’s a compressed nerve in my foot or below the knee I had a nerve test and they said the nerves were ok in the leg but they can’t see or put the needles in my foot so now I’m just getting lumbar blocks and nothing works I would love to come get surgery from you if you think I’m a good candidate PLEASE GET BACK TO ME ID LOVE TO TRY IT OUT , THANKS🙏🙏🙏

[@marcusaurelius2242]

Please understand these surgeries are far from 100% successful. It could work, it may not. I have had CRPS since 2014 and let the Dr's screw up my life. Please tread carefully, because once you go under the knife with any invasive procedure, there is no turning back. EVER. I would be happy to discuss with you off0line.

[@mlcarey1000]

Severe ankle break 1977, total ankle replacement 2009, 6 RFAs that last 12 to 24 months. Now have osteoporosis from hyperparathyroidism. Going through 2 trials for a new peripheral nerve modulator. First trial was 80% effective. Looking forward to the implant. Wishing you well. It's biopsychosocial. I recommend CBT psychotherapy to help with pain management

[@dr.thomasklinemdphdmedical2890]

A large percentage of people with CRPS respond well to pain medications (opioids) over the long haul and if not addicted initially will never addict (genetically controlled) . In terms of side effects in long term treatment are rare.

[@sundaysommers1476]

Why would someone take opiods when they can get permanent total relief surgically?

[@dr.thomasklinemdphdmedical2890]

@@sundaysommers1476 If that is possible, of course surgery would first choice, if definitive

[@dr.thomasklinemdphdmedical2890]

There is no surgery for CRPS

[@kerrysly1]

Sorry to disagree but they are just living with the pain meanwhile they could live pain free thru the surgery that Dr. Tullestrup offers. I know personally what he can do when someone has suffered for over ten years with CRPS.

[@kerrysly1]

Wrong, with surgery it can be reversed. It would be better for you to contact and talk to Dr. Tollestrup and learn what he does rather than rest in old dogma.@@dr.thomasklinemdphdmedical2890

[@debbiefarrar7356]

So many doctors or people have never heard of CPRS which doesn’t help us My first doctor thought it was in my head after my fall. I said l want a 2nd opinion and this other doctor recognised what l had Thank Goodness

[@Ra-thesunking]

Thank you so much

[@debbiefarrar7356]

I live in Australia I have had CPR Type 2 for 17 yrs it was after a fall. It’s in my right arm and hand. I have constant burning pain. I found medication a waste of time as it didn’t work. I was on Lyrica for 7 yrs still had pain and it made me like a zombie rather not have medication they put me on another drug before the Lyrica didn’t work either. I do exercise but l can’t do some things or do them gradually and nothing for too long. Remember if you don’t use you lose. Get some vitamin B1 & B2 for nerves l found out recently as l had a stroke in my left leg through a a terrible relationship the stress bought on the stroke but now l have been left problems with my knee and foot for just over 3 years l exercise in the pool 3 days a week to help my leg and arm I have 2 problems now. I have to keep going and keep smiling the pool is helping my well being and l can walk better as l can’t do what l use to be able to do. I wonder if all my problems have come from a stressful life from a child of abuse to marriage of abuse and violence and then another bad relationship Now l focus on myself and live on my own to heal. I was told nothing they can do for CPR there is no cure This podcast is interesting

[@kerrysly1]

Please contact Dr. Tollestrup and then make the trip for a surgery. I know it will cost you but there is fundraising and people that can help with the cost. My partner had CRPS for 12 years from a bad biceps tendon surgery at the elbow that lead to pain like yours in the arm, shoulder, hand and then down the leg. Dr. T. has reduce her pain by 90%. There remains one old botched ulnar nerve surgery that could be repaired that could lead to 100% recover. Long story short he knows what to do for these kind of nerve problems.

[@Dan_Alien]

Learned more about my disease from you. Than over 12 years with my pain mang doc. Gosh I wish i could see you just to see if you could help me. Thinking of getting the pain pump even though I'm not on a high dose of opiods but my doc won't increase and all i do is lay in bed. Thank you

[@richardzelmer8117]

Very painful most doctors don't care and do nothing about it not giving the right drugs for it and don't care

[@stevenpeaketrainsandstuff3682]

Just got diagnosed yesterday. My right hand is swollen, skin is changing colour and my wrist feels like it has fibreglass shards imbedded in the skin. Started two weeks ago for no reason. Man this is a pain, it's gonna make work interesting.

[@debwatson56]

This KZbin video has actually given me some hope. Facebook shuts me down whenever I ask about cures or problems that cause this disorder. Tim tollestrup has given me some hope for a cure. Now if we can get into see him or another doctor who uses the same treatment.

[@marcusaurelius2242]

Where is he coming up with these stats and percentages for nerve surgery for CRPS? Where? What happens if his surgery fails?? Then, what? I'm sure this a good, well meaning DR but I want to know exactly how many people he has operated on with CRPS? How many have achieved remission?

[@sundaysommers1476]

Google : surgical treatment for CRPS a of the upper and lower extremities by Dr. Lee Dellon. Two techniques are used , a disconnect which is 100% and a nerve decompression, which is about 80%.

[@melodysheehan7760]

I developed CRPS in 2017 in my right leg due to having a surgery. I then had a nother surgery TKR i was diagnosed with CRPS in 2018 buy my Dr. I haven't been seen for it since 2020 the beginning of covid.

[@christomlinson9583]

That's what this is doing to me it is driving me crazy I'm to the point where nobody will come around me hardly anymore because I'm in pain all the time I never sleep I can't walk I can't do anything The pain pills I get sometimes help but it in turn makes it works what do I do what do I have to do to come and see you

[@MrSolesaver2]

Thanks for your help.

[@ClaraWashington-ze6mb]

I've watched for 27 mins and I was diagnosed with CRPS after an injury to my left outer ankle bone and have unimaginable pain all over both feet legs groin arms hands neck head fingers. I am alone 53 yr. Old woman 5 ft 2 and now about 105 pounds I have fallen out in the middle of a conversation just dropped to the ground. I have tremors that feel like the earth is shaking ! I Tip over sometimes and have trouble breathing. I can't understand what I am supposed to do when I have flare ups it's a living nightmare I have fought the desire to stab myself in the legs I have extreme hot and cold areas and pain from my head to toes I have numbness in some fingers and parts of my leg. I could go on and on but please help me with this intolerable pain that lasts for days and weeks. I could go on and on but I was injured over 2 years ago and I'm terrified that I will just die from it

[@sharicooper-michener8177]

I have had this for 45 years. It has been a difficult thing to endure. I was diagnosed by Dr. Swartzman in Philly and Dr. Kirkpatrick from Tampa. It took me many years to find them. I tried the Ketamine but I got terrible hallucination from it and had to be taken out of the meds. Mine developed after a car accident and by the time I got the first diagnosis I was told nothing could be done. I have to be on opiates now as after a back surgery to correct it, it got worse. I have a constant deep burning in the buttocks and left leg. I am never without it and even with meds I still have it.

[@kerrysly1]

My partner suffer for 12 years beh=fore I found Dr. T and after 2 surgeries she is a new person and is almost to 90% pain free. I feel that one more surgery would do the trick but she is tired of being cut on and I understand that as I have had many orthopedic surgeries. Call him now.

[@elainebraindrain3174]

Death sentence is true. Pain drives one to insanity!

[@amberhogan6968]

I know this video is at least a year old so I am stretching my hope for a reply. In 2019 I tore some ligaments in my right ankle. I underwent ankle stabilization/ligament repair surgery and was told that the surgery was very common and my recovery period should be somewhere around 6 weeks. A few days after surgery I fell trying to dress myself after my bath. I had a surgical splint. I actually landed in me foot that was splinted. It was after hours and I couldn’t call the doctor until the following morning but the swelling got so bad that my toes were turning purple. I ended up going to the local E.R. They cut off the splint. Elevated and iced the foot and re-splinted it. The surgeon said that I should be fine at my check up and I was put in a hard cast for 4 weeks. After the cast came off and I started walking is when my nightmare began. It has been 3 years of hell. I can not wear socks or shoes. I wear flip flops year round. The strap on the flip flop feels like it’s made of sand spurs. My foot swells and burns constantly. On good days I feel like my foot is stuck in an ant hill and being stung by wasps. On the bad days I feel like my foot is filled with lava. Like it is stuck on a stove burner. My foot swells and becomes discolored. I was diagnosed with RSD by the surgeon and he said he could fix it by removing a portion of nerve from my foot/leg. That still did not fix the issue. It actually intensified it. I was sent to pain management and brushed off. His exact words were “well idk, it may just be because you have red hair, fair skin and freckles”. ?!?!?!.....anyways... on to a new doctor and he sent me to a neurologist, I had nerve conduction testing done and there was no nerve damage found. I’ve had sympathetic nerve blocks as well. There HAS to be some answers somewhere or something that can be done. I’m tired of being brushed off by one doctor after another or basically treated like it’s all in my head. I asked for the foot to be amputated and was told no. I actually tried to pay my mother in law to help me shoot the foot. I was too chicken to pull the trigger so I told her I would hold my shot gun with the barrel on my foot and I’d look away while she pulled the trigger. I told her I’d pay her and then tell the doctors in the ER that I accidentally shot my foot and they’d have to amputate. I later learned that the RSD could still be there and just relocate to another limb so I’m glad I did not do that. They are now discussing the spinal stimulator but I am still doing my research on it. Please if you read this let me know if you know of anyway I can fix this. I literally can’t take much more of this hell. I just want my life back. I want my kids to have their mom back. Thank you in advance.

[@sundaysommers1476]

Dr. Tollestrup does not use nerve conduction study for diagnosis of peripheral nerve injury. You need an anesthetic block of the suspected nerve. He will evaluate your case if you send him a detailed history of the problem with dates. He will order tests that he needs to make a tentative diagnosis. Contact his five for a guideline to write your history.

[@kerrysly1]

Sorry to see this so late. my partner had the stimulator installed with all the promises and it was a disaster. A couple of years after the stim nonsense we went to DR. Tollestrup and had the second surgery in early January of 2023. She is doing super great after twelve years of suffering.

[@amussukk]

One year ago my backoperation brake down when I just got up from bed. I got a horrible pain and peroneusparalysis in my right foot. The pain in my foot has not gone away and it is difficult to walk. I have numbles and tingling, swollen, red colour. I have gababentin as medicin. Is there any hope to get healed?

[@shawnobrien5496]

January 2018 I had a work injury in which I had a fractured left shoulder and 1 month later I developed swelling in my left arm and hand,and the DR told me that I developed a nerve disease called CRPS so after every procedure they did for me over a 2 year period and my arm and had swelled like I was wearing a baseball glove on my hand. So March 13 of 20/20 I had above elbow amputation, and was told I was the first person in Canada to loose my arm due to CRPS,so after 10 months with no pain my CRPS came back.

[@TimTollestrupMD]

That is such a shame Shawn. You probably had/have thoracic outlet syndrome which is totally correctable. Now you are probably still dealing with the TOS as well as residual limb pain and phantom pain - I’m just guessing at the last two but both are common with the type of amputation you had. If you are still having a lot of pain, it’s potentially fixable.

[@shawnobrien5496]

@@TimTollestrupMD would like to chat more feel free to email me at [e-mail]

[@shawnobrien5496]

Would like to live chat with you I still have lots of questions DR in my area aren’t sure what to do with me

[@florencedonald6419]

@@shawnobrien5496 That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently

[@florencedonald6419]

@@shawnobrien5496 4 years ago I was suffering with CRPS and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. Including CRPS , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CRPS and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 1 months of use, I am now free from CRPS , all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: [e-mail] or contact Dr. through his whats-app: [phone] They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.

[@ikamtoo2672]

I've had crps type 1 and type 2 for 15 yrs now. i've had soo many treatments its ridiculous. im doing okay for what can be accepted but the swelling and the pain is thru the roof! ketamine treatments is the only thing that helped me. hopefully things go better for you but it is a ruthless situation that only gets better with proper diagnosis and treatment and not giving up! the more i push the less it hurts but it always hurts so its not a blessing by any means its a curse that you can deal with!! It's hard but you can do it!

[@mlcarey1000]

CBT psychotherapy has helped me so much. Would recommend it. I've had it since 1977. Stanford pain clinic helped

[@sundaysommers1476]

Surgical treatment is very effective in most cases.

[@michellebaker4536]

I’ve been told and tested of having RSD which started after I broke my wrist in two places.but in 2008 I had to have back surgery and ended up with nerve damage because the dr was to busy to slow down we’ll say. And after braking my wrist and being tested and treated with blockers it went away.then after another back surgery and it being my 4th ( through the years before the brake ) and having to have nerve’s burn in my back from me messing it up AGAIN I ended up with that crap again ( CRPS/RSD ) on the whole left side of my body and now it seems like I can’t find anybody to help around here. ( Tulsa,Okla ) do you take Medicare and Medicaid ??

[@janpoole910]

What happened to the 58 minute video??? This one just starts at the comments questions and isn't the full video! I saw the original and this isn't it!! Can you put up the original again??? Please.

[@christomlinson9583]

Dear doctor tells you my name is Chris Thompson I'm from Joplin Missouri I had a back surgery in 2010 and went horribly wrong and everything settled in my feet I have been up for 13 years to get a doctor to even talk to me I've listened to your seminars I'm convinced that you're the man that might be able to tell me what happened It is in both of my feet my back is started out spinal stenosis and then it turned into this I felt these symptoms animmediately after the anesthesia started wearing off I knew that there was something wrong my feet all of a sudden felt toasty warm now they feel frostbit after 13 years and I still can't get nobody to help me What should I do how do I get to you

[@kerrysly1]

Contact his office. The info is right under this video.

[@junemaybe]

I need help. Please, dear God. I would appreciate getting my story out to u & others. I was diagnosed with/ type 1 & type 2. A pain pump surgery started it all.

[@Rain11Eleven]

8 years going on crps think it stemmed from a car accident I'm 30 lost most of my good years I have a spinal cord stimulator that has some help but only a small percentage at times can't get social security or disability bc I dnt have much work history bc of crps I'm stuck any advice is worth listening to ....an to think crps patients have the rest of there lives possibly to deal with this.

[@daleval2182]

After hearing you, i know you give me a life again, i met 4 of the 5 main symptoms , sadly im not insured and little money restricted, I'm in Canada, under a rather restrictive social medicine, do you know of a Canadian with you're skills Dr?

[@TimTollestrupMD]

Hi Dale. Unfortunately there is no one in Canada who does this kind of surgery. I actually grew up in BC. While there are certainly problems with our system down here in the US, it’s much better than any socialized system in the world.

[@daleval2182]

@@TimTollestrupMD if finance allows me, i will contact you're office, Thanks for the reply Dr. Tim, I like you're style, the described process makes perfect sense. 👍🇺🇸🇨🇦

[@DawnMycoe]

hi am new on ere called dawn i had a hysterectomy 2006 i live in uk .after my surgery i was referred too the pain team one of the docs started me straight on morph this was in 2007 he gave me a injection into he said my femoral nerve i aint felt my left leg he injected in my left of my stomache all around the site went a white colour same as injection he saw me for 3yrs then 3yrs to day he discharged me i no of 3 others who he damaged i suffer with burning weakness, tingling pins n needles severe pain spasms in my legs still on a lot of morph also my bladder shut down so now have a mytrofanoff in 2016

[@DawnMycoe]

i also forgot the best bit when he inserted the needle he couldn't get the rest in so he wiggled it in a circle motion .

[@adapickett8358]

How do upu contact this Dr??

[@tone569]

I just go diagnosed and my hand is swelling up like a balloon its purple and i can move my fingers it started right after I had flexor tendon surgery to the back of my hand 14 weeks latter my had not healing and my EMG results was normal my initial injury I lacerated the top part of my hand from the middle knuckle of my ring finger to my wrist

[@smcremix8791]

have you seen anyone with thoracic outlet syndrome come down with CRPS after they have had their surgery?

[@edytazientek8535]

I had thoracic outlet syndrome and now I have CRPS in my all left hand and arm

[@ginolopresti2997]

What is the cost to have this surgury done

[@sundaysommers1476]

It depends on which nerves and how many.

[@christomlinson9583]

To added comments to my last text my feet are numb beyond numb the pain is undescribable they feel like they're frost b**** and they are purple and slowing what do I do now

[@nikojeffries9076]

I had a total knee replacement and have been dealing with this since the surgery. I have had sensitivity to my knee and on my scar, so that's when my ortho told me that it sounds like CRPS. This is horrible. Last weekend, I started experiencing constant burning! They've had me on Gabapentin for this. What else is there for me to do?

[@sundaysommers1476]

Surgery.

[@Shaun-zl8yy]

What surgery do you do 4 it????

[@ClaraWashington-ze6mb]

45 mins into the video now and my anxiety and pain ,my relationships have suffered I don't know what or how to do things I used to work out and swim surf water skiing and just life love and now I cry every day. Please tell me how to keep pushing through I also hurt myself accidentally Its hard to describe the level of twisting fiery pulling relentless. Nights up to 3 or 4 days with no sleep. I haven't worked in over 2 years and I was being paid On wirkmans compensation yntil i got diagnosed wuth CRPS. I was dropped like a hot potato. I'm not on meds I have no treatment and the side effects are making me feel like I will die 53:57

[@annap1191]

My upper trapezius and levator scapulae has massive knots in it. It's getting bigger and bigger and more painful. How do you treat it and prevent it from getting bigger?

[@MrSolesaver2]

How much groin pain should you have with maralgia paresthetica. Still have the same pain I had preop arthroplasty of the hip I had to groin pain before and now I still have the groin pain with numbness and tingling in the lateral aspect of the side of the thigh. Lateral cutaneous femoral nerve disorder.

[@TimTollestrupMD]

Sounds like the LFCN is definitely involved but you could have other nerve damage as well like the femoral branch of the genitofemoral nerve or the ilioinguinal or iliohypogastric nerves depending on exactly where the pain is located.

[@Mdme.X]

Is swelling a symptom of 'crps'? nTOS caused swelling for 1year near my brachial plex.

[@TimTollestrupMD]

Any kind of nerve problem can result in swelling. How was the diagnosis of nTOS arrived at and have you had surgery for it yet?

[@johnsampath7034]

I. Doctor says I specificity. After having a fusion the back of the neck.and can't do anything about it.

[@anking9664]

Sir , Dr Tim how we get to know about this , that this CRPS patient require surgery or not.means what type of investigations we go through to diagnose peripharal nerve compression or damage.

[@TimTollestrupMD]

I have to examine the patient myself.

[@anking9664]

@@TimTollestrupMD its difficult for us to come there.so please write investigations which we can go through.Actualy sir we are from India .so please suggest.

[@TimTollestrupMD]

@@anking9664 There is no one in India who does what I do, therefore I can’t really suggest anything or anyone that you can go see unfortunately.

[@johnsampath7034]

I have specificity for I would like if you could help me. I want to if have office in Illinois.

[@mariamarino138]

Which is the “best” type of specialist to see for CRPS, and where are you located?

[@kerrysly1]

Contact him thru the info below the video. It is not likely that he can read all these comments. He helped my partner after 12 years of suffering.

[@scotteranger4524]

@@kerrysly1 Define help, please?

[@katyakl-r6c]

Leaving in Germany no treatment nobody help me i have serious allodynia😢 help me with info pls what can I do?

[@annap1191]

Can you get CRPS after a one level neck fusion?

[@gregsepaniac8966]

How do I find a Dr to consider Ketamine for my CRPS type ll? I l live in Pittsburgh

[@marcusaurelius2242]

I think you're on the wrong page.

[@mlcarey1000]

Ketamine pain clinics are available in NV. I know many who have helped by the treatments coupled with pain mgmt psychotherapy.

[@sharicooper-michener8177]

How do we get in touch with this doctor

[@istherehelp58]

It’s my foot only that burns

[@gregsepaniac8966]

No I don’t think I want ketamine!!

[@debwatson56]

I would love to get into see you. I feel like the walking dead. Except walking is 90% gone. I hurt and burn so bad I don't sleep well. Traded all my clothes in for dresses. I wear crocs. I broke my leg. A tibia plateau fracture which was a 5 on orthopedic scale. Because it never got better and pain was always there; the orthopedic doctor did a total knee replacement. Now the pain after 5 years is suicide pain for sure. It's always past a 10 on the scale. It swells, turns 3 colors. Has destroyed my veins in the leg. Its shiny. And burns all the time. I need real serious help. My life is not a living happy life. I've driven everyone away from me because I'm a 100% miserable. So I fend for myself. And I'm not a spring chicken. 71. If you can cut that nerve, I'd fly down and stay, until I'm better. Thanks, your the only doctor who's given any hope.

[@ClaraWashington-ze6mb]

58:38 my entire body dear God

[@andrea4246]

Coding creates the paycheck. RSD was not a good code for money anymore. Once the system acknowledged Ptsd for Vets, they began coding of CRPS to make Money. Code it under a bigger umbrella on paper. Greed

[@Jennings9462]

He does not sound like he knows that much about it. I have Reflex Sympathetic Dystrophy (RSD) following being hit by a car. It took 3 and half years for me to be told by a Doctor I had never seen looked at my leg and x-rays he had just taken. So far he seems to lack confidence and isn’t saying anything I didn’t know 1 hour after I got my hands on an iPad and I was seeing the best Orthopedists at UCLA before switching to the “best” in Santa Monica California. On the West Side of Los Angeles and you live in a very nice part of Pacific Palisades, every Doctor is the best particularly if you are paying cash. But I am just a lowly Attorney who was a well known $1, 700. per hour head of Litigation for the top Law firm in Washington DC who represented 2 major Medical Centers in DC. I have full body RSD and the best Neurophomalogist couldn’t come up with anything until I mentioned that I had RSD. Then she noticed that I had Primary Progressive Multiple Sclerosis. He just doesn’t seem, to me, to have confidence. I had PPMS when I was hit by a car and spent over 13 hours in surgery and am mostly metal on my right side. I am now housebound and wheelchair bound. The Doctor now is now sounding more knowledgeable but he hasn’t said anything I couldn’t have told him.

[@sundaysommers1476]

He has helped so many people with nerve injuries, which often happen during surgery. I was unable to walk for 25 years. I had wheelchair. I walked the day after he did surgery on my leg.

[@VFan755]

@@sundaysommers1476 thank you for your response a neighbor of ours was just diagnosed after wrist surgery and is in so much pain. I am referring her to this Dr.

[@kerrysly1]

He knows his business and helped my partner after she suffered for 12 years from CRPS.

[@j2dabmusic554]

how did you get in touch with him...my sister is suicidal right now, im looking for help@@sundaysommers1476

[@scotteranger4524]

@@kerrysly1 HOW HAS HE HELPED?