10 Signs You Have Epilepsy Without Knowing

[@DrOmarDanoun]

✅Get evaluated by Dr. Omar Danoun directly appointment.dromardanoun.com you can book your appointment today for age 16 years and older. In USA please call the clinic

[@jamyDodger]

I recently was taken to And E as I wS jerking I just woke up felt unwell and began jerking like I was listening to music I a car. I was fully aware but couldn't stop it and my right arm started suffering spasticity and took on a life of its own twisting. I did have an episode when I was 18 (I'm now 53) where I felt dizzy and unwell and started jerking and got on my knees I was aware of what was happening but couldn't stop it. No idea what is happening though.

[@SUNSHINERAINBOW81]

Your so ignorant Dejan vulnerable is having preliminary visions that are bow coming to pass but people who don't have gifts as such say things such as yourself just be quiet 🤫

[@SarafinaSummers]

Probably have to have a seven-figure income to be seen by you. Sad, to be able to afford actually decent healthcare in this country, you have to be born rich. If you are on Medicaid, you literally get the scraps. Every epilepsies has canceled appointments on me even before they see me. They see other neurologist, mark my seizures down as “psychogenic “, because they don’t show up on EEG, even though an interictal wave was picked up in 2009, and nobody wants to see me since. Strangely enough, though, epilepsy meds work for between three and six months, then stop. And they worked even before I knew that the medication I had been placed on was an epilepsy med. I thought it was strictly for nerve pain. So… I have more questions than answers, and have had so since I was 16 years old.

[@SarafinaSummers]

@@SUNSHINERAINBOW81 not how this works. Temporal lobe epilepsy has been mistaken for hundreds of thousands of years by people like you as religious experiences, and they can even feel like them. That is why epilepsy has been called “the sacred disease “. Save the preaching for church. leave medicine to the medical professionals.

[@StacySirbu-jb5be]

​@SarafinaSummers mine are marked as psychogenic also just because I don't have a seizure the day the test. It's not how seizures work. They expect you to seizure on the day it happens..you can't control them. So how does that work?

[@courtney3661]

My health anxiety cannot handle this

[@jagorzravnice]

same 😭 i have a lot of these symptoms but nearly all of them are caused by severe anxiety/stress

[@harishv7]

Same 😢😕

[@NjJohannsen-uq6xe]

It took 7 doctors and 10 neurologists and over 32 years for a neurologist to listen to 3 basic symptoms to get a diagnosis of Left Temporal Lobe Epilepsy and a very abnormal reading (some brain damage) after ONE simple EEG! I had terrible symptoms, headaches, cyclical vomiting, off balance, body cramping, slurred speech, passing out episodes, loss of finding words, auditory, and visual hallucinations. ONE GREAT NEUROLOGIST listened to me for ten minutes and says "I think you're having seizures"! I'm on 3 meds and better. But before this, I went through unnecessary procedures and not properly dx, which has lead to brain damage from not being treated for years. Sad that too many doctors dismiss patients.

[@carmenvazquez3514]

I'm sorry that happened to you. 😢

[@NjJohannsen-uq6xe]

@carmenvazquez3514 Thank you. Your videos are very informative, and I appreciate that.

[@amuseme01]

Mine started at 12 years old. They made me stay up for a 24 hour EEG, nothing; every time I had one and was taken to the hospital, they checked my blood sugar (I was an overweight teen) thinking it was diabetes. I'm 37 now and I've given up looking for answers, I live in a small town with no Neorologist and my insurance won't cover any out of state. I find keeping my stress to a minimum helps because the higher my stress levels it seems, the higher the chance of a seizure.

[@rachealhahn]

7 doctors UGH who wants and has time to do all that, these dam doctors. I am thinking that is was i have but i am not a doctor.

[@NjJohannsen-uq6xe]

@amuseme01 Yes, minimal stress and staying in a calm place helps a lot.

[@curtistinemiller4646]

My baby daughter Jazana'e had Epilipsey ,She passed February 2022,RIP. ANGEL.

[@shuffman8094]

Im so sorry 🙏🏼💔

[@cjsrescues]

My daughter, 24, died from a seizure in 2017. My condolences.

[@user_angelmum]

💔

[@piamp1454]

🙏💔 ❤

[@catmoore2443]

​@@cjsrescues My condolences to you both .

[@tshaika9165]

Amazing how many parallels there are with auras before migraine attacks.

[@ritadyer9295]

Yeah. This got me wondering about it myself. I have those auras. I take some Advil when I get them now since I made the connection last year.

[@ROTALOT]

My severe chronic migraine is from metabolic problems with sulfur and ammonia. I get the whole cycle of personality changes, visual disturbances, and horrific pain. I can't tolerate anything pharma, or caffeine or nicotine or alcohol or NSAIDS. Mmj is my only respite.

[@Pressity1]

Great. Twice I’ve had “migraines” that started with aura and weakness, landed me in the ER unconscious, battery of tests, EXCEPT FOR EEG! They didn’t do the bleeping eeg until weeks after! I’ve been getting the migraines with aura, for me it’s blind spots specifically, since I was 8. That first hospitalization from migraines was 6 months after having my first child, the second was while I was three months pregnant with my second child.

[@abbyb6958]

I have migraines but never with aura. I started having what seemed to be temporal lobe seizures but was just told my the neurologist that it’s a migraine aura (even though I never got a migraine after)🤦🏼‍♀️ EEG was normal but I wasn’t experiencing any symptoms during it so🤷🏼‍♀️

[@Davinia77]

I get auras before migraines

[@Sydopath]

I was diagnosed with temporal lobe epilepsy after a grand mal at age 52. But for 4 years before this I was having terrible thoughts of terror and doom, poor memory and sometimes hallucinations. The GP diagnosed it as depression / stress and prescribed SSRIs, which didn’t help. Now I’m on Keppra I don’t have those hallucinations or bad thoughts. I wonder how many other people are misdiagnosed like I was.

[@alterman156channel]

It is easy to misdiagnose epilepsy. Sometimes the only sure sign of epilepsy is an obvious seizure such as a tonic/clonic (you called it grand mal). While epilepsy is understood much better than it used to be, it can be misdiagnosed. At least in your case the seizures were bought under control and you're able to function again. Just be careful about driving and make sure that you can be expected to remain seizure free before considering having a driver's license again.

[@asiaroman1973]

I was misdiagnosed till I was mid30s . I got epilepsy from a head injury.

[@alterman156channel]

@@asiaroman1973 How are you doing with the epilepsy. Are you seizure free.

[@Sydopath]

@@alterman156channel Thanks. I’m 62 now, and have been driving again for 8 years. I have to re-apply for a licence every 3 years, and the Neurologist does an MRI scan and checks the results. I also have to see a psychologist for this assessment, who gives me long & short term memory tests.

[@rickfisher1987]

My First Grand Mal , I was 18

[@chereejeanclark932]

I was diagnosed with silent seizures. Everything would get really bright and I would feel like I was getting hot then I'd just kinda went limp. I could hear but not answer. After coming out of it I'd be super sleepy. Been medicated and grateful to have not had them anymore.

[@ezpz4646]

What meds did you get lamotrigine?

[@chinookvalley]

And some people wonder why so many of us don't trust the medical system and the medical INSURANCE system. They just don't know what they are doing and blame us for their failures. Thank you Dr Danoun.

[@declaringpond2276]

Ok first of all, yes the insurance system is bad and needs to be remade into universal free healthcare. Secondly, doctors are over worked and underpaided. Especially doctors in public clinics and emergency rooms. It's hard to blame them when they push away their 100th patient that day because they only had 4 hours of sleep Lastly, diagnosing is like troubleshooting. So many symptoms overlap and you have to start with the most common problem and go from there.

[@Tox666xicshockk]

I have had partial epilepsy ever since I was a child. I didn't know I had epilepsy until I turned 21. I used to tell my parents I felt deja vu alot but nobody really thought much of it and it got to a point I wasn't really believed because I was told "no one has deja vu that often". After I turned 21, I woke up to my first grand-mal seizure. My fiance was standing over me telling me I just had a seizure in my sleep. After that I went to see a neurologist and learned that all my life I have had temporal lobe epilepsy. When I was a child I don't think I ever had a full blown seizure in my sleep so I think that's why no one really knew I had seizures. Not even my teachers caught on.

[@rachealhahn]

Yes the deja vu

[@peneljsmith]

my cat had grand mal seizures. Because the pills given to her were bad for her liver, I decided to use valerian for her. It worked quite well. Fluffy passed away 11 1/2 years ago. She was a very gentle cat, and was a therapy cat at a seniors' residence for 9 years.

[@lydenenaylor1177]

My son suffered petite Mal seizures of up to 72 times in one day, around the age of two. At the age of 8 years, I treated him with Cannabis oil. He is nearly 18 years old and has not had another seizure since taking Cannabis oil, 10 years ago.

[@ivanamicimici]

Amazing. Cannabis saved my life when I got cancer. It seems to work for many things,this magical plant is so powerful.

[@MessageViolation]

CBD oil is a Godsend. Keppra almost killed me, and all of the other meds damaged my body. CBD oil gives so many freedom from being lab rats. I hope more people read your comment and gain their freedom like so many of us did.

[@mickeyoshea2035]

That is amazing. I remember in Minnesota years ago the governor (Ventura) and his wife championed for legalizing cannabis for medical use because their son had epilepsy.

[@mortusdoll]

i’m so glad you found a treatment that works for him, I wish it was more accepted and accessible for those who need it

[@lydenenaylor1177]

@mortusdoll Absolutely agree. I was determined to keep the medicine as clean/pure as possible, so I ended up breaking multiple laws to produce the miraculous medicine myself.😕

[@sarahkeller7630]

A friend I have started having this weird dejavu and it was making her feel like she was an observer and not really there Turns out she has epilepsy. Crazy.

[@stephaniesomer5934]

Wtf is this on my recommended?! I’m completely freaked out…what does the algorithm know that i don’t…🥴😬 🤗❤️🇺🇸

[@Drosenv]

Probably that someone you know is having seizures. I have 2 loved ones with cancer, I always know before they tell me that things have gotten worse, because I start getting ads for specific cancer drugs on youtube. Recently I got ads for bone cancer meds and neither person started with bone cancer, 3 days later my friend tells me it's spread to her pelvis and spine.

[@MisterEpsilon]

Reading all these comments of people going through the same things as I, makes me really feel at home... It hurts to see so many others in pain..

[@clarekent4110]

2:34 Now I want to know what line from Star Wars he hears during seizures.

[@disodosid]

RIGHT?!

[@sherrysolman]

Search your heart, you know it to be true. 😂

[@TheTangyStar]

“I’ve got a bad feeling about this”

[@Featheryfaith7]

I have neurological POTs and I have some of these issues. Thank you so much! My heart specialist doctor said I can have seizures with this illness.

[@cloudthief8918]

POTS can cause seizures?

[@Featheryfaith7]

@cloudthief8918 Yes. I have the neurological one. My doc told me to becareful of not being too stressed out. There's like three types of POTs. I have the neurological dangerous one and I am unable to work.. 😟

[@melearina]

This video is truly helpful for people experiencing these symptoms. As a person with epilepsy, I highly approve of these explanations and describe them as detailed. They provide me with validation/reassurance that the symptoms (like the goosebumps, deja vu, weird smell, and taste) I feel are legit. We appreciate this, Doc Omar! Thanks!

[@kaelizard7]

Thank you for your videos. Being educated makes my epilepsy a lot less scary.

[@tedwilliams1994]

Diagnosed at the age of 8. Numerous medications and restricted from football, baseball, and wrestling in school. I had a temporal lobectomy performed at the age of 22. I then became a firefighter/EMT and received awards from 9/11 and firefighter of the year. I later suffered a TBI and now suffer from dacrystic seizures after being struck in head where I had had surgery. Vns and 3 medications are now being used to help with these seizures. I have been from the University of Virginia Medical Center to Virginia Commonwealth University Medical Center to Cleveland Mayo Clinic to now Duke University Medical Center. This epilepsy has resulted in various limitations.

[@iamthebock]

I had auras as long as i could remember but didnt know what they were. Started having partial clonic petite mal front temporal lobe seizures for 2 months in freshman year of college. Had a positive EEG with light sensitivity (i used to do the same reaction on the school bus on sunny days and no one told me!). Started medications and seizures stopped but my college career was ruined because i couldn't stay awake in class. 2 years without seizures go by and i quit my meds. Find out it was pseudoseizures (a type of migraine) from extreme stress and anxiety from college. I was able to change my career path but im still paying for wasted student loans and lost scholarships.

[@Hxtice]

I’m sorry to hear that you went through such a life-changing situation because of your condition. Wish you the best for your future.

[@SpreadingTheGoodNewsDaily]

You are incredibly strong for that, good job man I wish you the best in life. God bless you

[@danielleelizaharpz]

I was misdiagnosed for over 15 years before my seizures were properly diagnosed. I really appreciate this video Xo

[@Arturrodeldziko]

As an epileptic i 100% agree. Deja vu at the morning, being mindless, especially after stressing days...

[@ZERO-ky8vm]

same here, but I had my brain surgery so I should be finally free

[@alterman156channel]

Epilepsy can be a difficult condition to deal with. However with good care, it is often manageable.

[@MARYWILLIAMS-n6d]

Are you feeling happier? I think I might have absence. Always losing things. Blank out while standing for example in a store. God bless you.

[@MARYWILLIAMS-n6d]

What does deja vu mean?

[@beezelbeezel6137]

​@MARYWILLIAMS-n6d déjà vu essentially means "already seen". It's when you have the intense feeling that something that is currently happening has already happened to you at some point in the past, usually very simple situations/dialogues etc. I have that sometimes and it's really freaky

[@trishthedishluna]

After brain surgery I get dejavue seizures they're terrifying. Flashing images and then convulsions. I had multiple surgeries and hemorrhages in my right occipital lobe.

[@olatokede]

Please can you do a video explaining how you read EEGs. Especially how you differentiate normal variants from true epileptiform patterns. Thank you

[@innconspicuous]

Yes please!

[@truthlewis9182]

So heart pain or palpitations in the chest could be a possible sezuire symptom

[@gabriellam1894]

I've had those all my life (27) for as long as I can remember. Doctors just told me it was anxiety, but now I'm curious to see if it might be epilepsy. I've had a lot of similar symptoms in this video since I was a kid and I'd tell adults (doctors too) and they would never give me an answer. I'm going to definitely be talking to my doctor soon

[@jrodgers674]

hey Dr Omar. I just want to thank you for what you do. I had my first sizure several years ago but no one belived me. You have been more useful to me than my actual doctors. you are a great teacher, and have made it easier to tell my doctors what is going on. I once had a nero dr tell me "i dont do dizzy go see a ear nose and throat doctor. I would share more but you know... you tube and private info. Just know that i was undiagnosed by everyone but my Dogs. they where the first to tell me i was epeleptic. You taught me how to get the point across and speak properly to these folks and because of you i have seen a 50% or more reduction in my conditions. thank you so much for what you do pls never change because you changed my life. hey happy new year by the way.

[@Sox726]

My son died from SUDEP SUDDEN UNEXPECTED DEATH IN EPILEPSY 12 years ago. We had never heard of it. He had left temporal lobe epilepsy and had tonic clonic seizures.

[@kellyk7682]

My brother just passed from sudep. Tonic clonic and other aura seizures 😢

[@theirmom4723]

This is our greatest fear with our fear.

[@Youmightknow111]

I'm so sorry. This is my fear. I go to bed every night not knowing if I will wake up. I try to make the best out of each day ❤. Just know your Son is in Heaven ❤

[@Zarathustran]

Is that like SIDS but in older children? Why unexpected? Abused kids die all the time. Kid's epileptic because of chaotic parenting. Believe me, he expected it. And then you heard of "SUDEP"🙄. They say stomach-sleeping causes SIDS, but that's because a defensive posture against scowling or menacing mothers prompts some of them to take offense to their child turning his back and punish it with crib-smothering. Stomach is the autistic sleeping position because the pathogenic etiology of infanticide and ASD is postpartum psychosis (wish for the child to become "unborn"), see? It's egodefensive undoing. Difference is compulsion to abuse the kid represses filicidal obsession to the unconscious. Still using it for validation 12 years later because you have a weak ego with a martyr complex like my own mother. Epilepsy, autism, "SIDS" (infanticide), "SUDEP" (filicide), schizophrenia are all much more prevalent in males because of female father-cathected rage (daddy issues). Your mother didn't nurture you because your father wanted you to be a son. So, in turn, your narcissistic husband's adoration of his son as a mini-me threatened you. It's not your fault you were developmentally unprepared for motherhood or that people are too stupid to figure out what you did. They're also too stupid to figure out Freud only got his Oedipal theory backwards for not realizing as a victim of the same abuse dynamic Sophocles' play Oedipus Rex would never have been written if paranoid father-son rivalry weren't a default human psychopathology borderline mothers have been inducing in unsupportive fathers for thousands of years. Not natural for a kid to compete with his father and certainly babies can't formulate incestuous spite. Footstep-following is a solicitation of approval from kids whose own interests were never encouraged anyway. Just is what it is. You need to develop some real virtue of your own and stop coasting on the virtue potential you stole from your own kid IMO. Is your BPD diagnosed? Asking because clearly it's untreated.

[@Zarathustran]

@@kellyk7682 Now that the old scapegoat's gone you or one of your siblings will become the new family toilet, you know. Has to be that way because they're not going to talk negatively about the dead kid. So keep your wits about you.

[@aniavu9901]

Ive always suspected being epileptic but doctors always said its impossible. Ive been seeing neurologists (for a different reason) and this video popped up, reminding me i could ask one of them if i actually do or do not have epilepsy. And maybe it can shed some light on whats i'm currently dealing with (why im currently seeing neurologists). Thank you for this very informative video!

[@MisterEpsilon]

I was diagnosed with a seizure disorder(more than likely tonic clonic) 5 years ago, and I've developed tics, not just myoclonic jerks(although those do happen too alongside tics). This video has been more helpful than my neurologist... She was a C U Next Tuesday so I'm not surprised she didn't solveanything

[@MisterEpsilon]

Every single one of my seizures(except the first, I lost my memory several hours before and 24 hours after) I've experienced deja vu, which is my trigger to sit and notify people I'm going to have a seizure, and my mother has noticed I get the '1000 yard stare' as well.

[@jeanjaz]

What is 'C U Next Tuesday'?

[@MisterEpsilon]

@jeanjaz haha, look at the capital letters and make it a word

[@SOPH_THEMONSTAFARTSMELLA]

I grew up with epilepsy and very frequent seizures, especially at night, but I grew out of them when I was 7. I’m still susceptible to having a seizure from extreme anxiety or flashing lights though

[@devon_darko]

I developed myoclonic epilepsy starting in my early 20's, they were so bad and constant by the time I was 23 that I finally had to seek help and get medicated. I'm very lucky to have always been on the same low dose of Keppra and seizure-free for 7 years. Myoclonic jerks are horrible. I was at the point that they were just an all day thing. The ONLY time they stopped was when I was sleeping. They'd immediately start again as soon as I got up. People I worked with thought I was clumsy because I always dropped stuff when I'd suddenly jerk. And I don't think people realize that you also feel absolutely horrible all day, too. It feels like you haven't slept for 24 hours and you're sick to your stomach and just feel generally awful.

[@nancyfriend4156]

I've had myoclonic jerks for a few years now, I also have Dysautonomia. I sometimes get a nanoseconds warning before the jerk, not enough time to do anything about it. The worst part is when it causes me to bite my tongue. I found that taking Topiramate as a migraine preventative has really eased my jerks since it is also an anti-epileptic drug. My arms no longer fly up at least.

[@sewmeonekenobi639]

I think you are the first person I’ve met who has similar episodes as me. I have nocturnal tongue biting caused by Myoclonic jerks in my sleep.

[@sonofaguppy6708]

@@sewmeonekenobi639I have the same. Even though my medication now controls the jerks and the tonic clonic/ grand mahl seizures, I still sometimes bite my tongue in my sleep so bad that it wakes me up.

[@umi2751]

Omg I experiencie thoss

[@chanabayla1823]

I believe that's the generic for Topamax which if yes be sure u drink a lot of fluids before kidney/gallbladder stones are very common

[@nancyfriend4156]

@chanabayla1823 yes, it is Topamax. Thanks for the warning, I've been taking it for a few years and tolerated it well so far.

[@globaleffect1969]

I just posted one of my seizures videos on my youtube channel. I have been getting seizures for a little over 3 years. My seizures always happen when I am sleeping, most of the time it happens right after I fall asleep. I never remember anything that happens during the seizure, my seizures are very bad, most of them last over 5 minutes and I end up very weak and tired for one to two weeks after I have a seizures. The most i've had was five seizures in a row one after another, they said I would come out of the seizure for about a minute or two then have another one. I'm not working right now so im struggling to pay bills. I was told by the neurologist 3 years ago to apply for disability but never did because I didn't know how to. I think I got brain damage because now I seem to forget many things, i'll walk into a room to get something or do something and I totally forget why i walked in the room to begin with, i'll stand there trying to remember and sometimes I will remember after about 30 seconds or more, I sometimes will remember what I was gonna do like a day or two later. It sucks, because I was used to being the provider at home and now I feel useless. I'm ashamed of myself for not being able to provide for my family like I used to.

[@sirsmilealot5458]

Stuck home now on a 90 day no drive. Here’s to you my friend. You are not alone.

[@Youmightknow111]

Stay strong. It isn't your fault. I am in the same boat, my seizures stated 4 years ago and I am just now able to get my Driver's License back. It takes time and love. Don't give up❤

[@globaleffect1969]

@@sirsmilealot5458 Did the doctor tell you not to drive or did they take your license away? My doctor told me I'm not supposed to be driving for a certain time after a seizure but my license wasn't taken away and he didn't really know how long I'm not supposed to drive. He set me up with a different neurologist that will explain all that to me next week. My last neurologist really just asked my wife questions about my seizures since i don't remember anything during my seizures and kept wanting to up my dose, I want to get off the meds but when I try, I end up getting seizures. Doc got after me and told me to take my meds the right way.

[@amandarourke7645]

Try and do a parasitic cleanse pmc.ncbi.nlm.nih.gov/articles/PMC9038815/#:~:text=One%20of%20the%20most%20frequently,the%20larvae%20of%20Taenia%20solium. and also take a heavy metal cleanse after that (zeolite for human consumption , capsules ) and add “cell food “ mineral drops to your water and take multivitamins. Can’t say it would work, but you never know!

[@amandarourke7645]

And being ashamed of yourself is not going to fix the problem! You only feel that way because your brain needs a rewiring now…. it’s possible. Sometimes life can bring us to rock bottom, and all of a sudden at the highest peak of the mountain. Don’t give up, you are the only person who can pull yourself out of this. Apply for disability! Ask people for help. Asking for help is apart of pulling yourself out of this! Join a support group, try natural remedies (similar to what i listed ). Apparently having parasites can cause seizures! Regular doctors just throw medicine at us…. masking and not fixing.

[@delilahalex9703]

I've had seizures since I was born, 3 types. They are still hard to get down to this day. So many medications, so many overdoses, blood and pain. They aren't fun but we can get through it. Day by day.

[@jeanwixted2058]

I love the way you explain the different sezures,Thank you ❤

[@SallyBrown8341]

Yes I know all about this stuff I have been dealing with Seizures All my life life Since I was three years old I'm 41 years old now I actually take medication every day to keep my seizures under control.

[@sonofaguppy6708]

What do you take? I’ve been on Keppra for 17 years now. I’ve been on many and this was the only one that worked.

[@morgan0]

i know i have seizures, but it’s the knowing that i’m having one and being aware of it that has made doctors say i don’t have epilepsy. 🤷‍♀️ they’re mostly under control nowadays and i know my triggers and all that so it’s behind other concerns for now.

[@morgan0]

yeah like stress definitely makes me more prone to it, but it’s not the worst thing for me, being cold and sugar have consistently been the worst for me for a long long time. and flashing lights maybe a little but they can def make me feel unwell. mine started as a medicine reaction and then just became permanent, maybe mental health and trauma played a role in biasing me towards that but it’s not the full picture for sure. but yeah like if i have some severe health worry, that is also definitely a trigger. it’s complex and my seizures are honestly pretty normal with the exception of being conscious and remembering it, i’ve only blacked out a few times during one before, so it really bugs me whenever doctors try to pull the “that’s not a seizure” card and say it’s some complex thing without any good name to refer to it to myself or others. just say it’s non-epileptic if you need to be specific then and there.

[@Mami-Florida]

My brother suffered with grandma sezuires and he passed away in 2009 he was only 29 years old

[@chanabayla1823]

As an epileptic and a volunteer for the epilepsy foundation, once diagnosed or if u suspect that u may have it your best bet is to see an epileptologist not just a regular neurologist as they specialize specifically in epilepsy

[@arwinaBluKat]

For awhile I’ve thought I’ve been having seizures. Major Deja vu, abnormal crying spells and smelling smoke-thought I was having an aura. But I went to the neurologist and he said no. 😢

[@tshaika9165]

Maybe try a better neurologist? Not all of them know. Could be migraine symptoms as well.

[@pommiebears]

You need to get a second opinion.

[@arwinaBluKat]

@@tshaika9165 I had an EEG with no a negative to seizures.

[@Icantchangemyhandlehelp]

If it ISNT seizures then it might be something else going on in the brain. Either way, worth going back or getting a second opinion for.

[@arwinaBluKat]

@Icantchangemyhandlehelp I tried to get a CT scan and insurance won’t approve it. We don’t have a lot of doctors here and if I go out of town I run the risk of my insurance not approving it because it’s “out of network.”

[@RubberMony]

Lol what's the line from Star Wars though? I feel like that's important context here 😂

[@izzycurer1260]

Each seisure, they get the next line of the movie

[@StephanieLewis-bz8xf]

Yeh....way to leave us hanging.

[@JahBreed]

Wow. This just keeps getting better with each piece of media I watch. I described all of this to Dr.Alan Jackson at HSC Winnipeg after having a grandmal at work as a Painter. He acted mystified and offered no advice while denying my job coild have caused the condition. Funny, my boss the multi-millionaire contractor was saved quite a bit of trouble while my Life is over.

[@HiddenRoyal1472]

I would love to have a doctor like you, since all my other doctors have retired long ago and since I have a very complex case, and I’m very involved in my course of treatments etc... For starters I have a Hx left last temp lobe glioma, surgery, severe migraines that lead to seizures if not controlled, however I have had many adverse Rx to typical treatments. One medication that has greatly helped, but is not recommended by the medical community even tho it has improved my seizure activity as well as several other symptoms.... As for my EEG, I do have an extremely high beta wave and well, like I’ve mentioned, I like to be very involved in my medical care. Also, I’ve been a PT in multiple medical research papers, studies, and journals...which was very fun having to sit for hours in an old time auditorium in a certain Boston medical center with lots of MD’s, students, yada yada... all staring at me and I felt like a goldfish... but it was all for the betterment in progress.... however, I’m truly looking for a different course of treatment now since the medication I have been on for 15 years is truly taking it’s toll on my organs. Honestly, I didn’t think I would be still around with my other medical conditions... but alas, here I am going on since 1986 from onset of my complex medical history...etc... *** *Would you Dr. Omar Danoun be interested in a case that is the most complex* and within its complexities genetic mutations and other organ involvements (which I suspect, if my theory is correct, fix the genes, along with the neural synaptic overload [is what I like to call it] and few other hypothesis that may perhaps lead up to possible a cure being the best outcome) ??? I definitely have quite the odd personality now, but I did have a medical background, majored in biochemistry, however my neural synaptic pathways have degraded and almost like I’m having early onset dementia. Looking at my old notes is like looking at cuneiform tablets, and sufferer from CRS along with an uncensored albeit uncontrolled mouth where I literally speak my mind, but looking for answers and a solution all at once. Kinda like now, I’m typing such a long comment for all to see, however, I wanted to ask just one person who may have the ability to change everything for the better.... thank you for your time. I truly appreciate it if you read through all of this and could help etc... I did see a link for evaluation, but thought I’d start here and progress forward there....

[@DrOmarDanoun]

Yes I am happy to help. I can do complete evaluation and give you the best medical opinion. Please call the clinic and get your appointment

[@gabriellam1894]

Not even a minute in and it's hit so much on the head already. Time to talk to my Dr

[@oliviacraner8156]

I absolutely hate having Epilepsy. Its really messed my life up these last few yrs. Sometimes I wonder if I have had it alot longer but didnt notice it till about 3 yrs ago...

[@amandadewet4022]

Watch Chris Oyakhilome

[@pommiebears]

I have lived with it since I was 11 years old. I’m 50 now. What is the point in hating it? You have it, deal with it, and don’t let it define you. It messes most of our lives up. Three years? I take Tegretol for my grand mal seizures. Works ok. I have had more concussions that you have had hot dinners. You HAVE to get up, dust off, and CARRY ON. Stay away from stress.

[@mozhdehbashirian]

Such a nicem short, yet informative video! I'm sure this will be helful for a lot of viewers. Thanks for the vid💮

[@StephanieWood-h9n]

I've had seizures sense I was a kid they just got worse as I got older. I've been put on many different medications then taken off and put on others. It became to were I have no control of my hands, no balance, can't walk in a straight line, jaw contently shakes, Drs took away my driver licence memory shot, no idea where I am what happened and more after a seizure. Finally got a seizure Dr who had me go get a scan, and the ones they put all over your head. I have petite and grandmal all over my brain. They decided to put DBS's in me like they do for parkinson's patients on my left and right side. Some days it helps other day's not so much.

[@AyeYoTay]

Have you tried Keppra?

[@StephanieWood-h9n]

@AyeYoTay I've heard of that name before, but I will check with the doctor to see if I was ever on it or a safe one for me to switch to

[@tiki4677]

I was kicked in the head by my Shetland pony when I was 8 or 9. I had my first seizure (that we knew of) when I was 12. I was in a school parking lot and then I “woke up” in an ambulance being told that I had a seizure. My seizures are dramatic and happen spontaneously. I have no pre warning before they happen I just wake up on the floor somewhere. I’m delusional after some of them and will hear things. I get a bad sense of paranoia and a sense of “something isn’t right here” for about 2 days. I was told that when our cat walked passed me while on the floor right after the initial seizure that my eyes widened and I got a terrified look on my face. I’ve had to have my wrists strapped to a gurney after a seizure because I became combative when they tried giving me an IV.

[@joshriver75]

I get Vuja De all the time. It's the strangest feeling that none of this has ever happened before.

[@LeeM50]

Can having ocular migraines be related to seizures? No pain or nausea. Get the crazy zig zag lines and some dizziness

[@gypsy8942]

I have those as well and it is my understanding that they are a form of seizures.

[@JRSonOfRichard]

Good question. Because I have the same symptoms from 15 years old. And was told I have complicated migraines. I cannot see very well when it happens. And I am disoriented/dizzy. It lasts about half an hour. But sometimes longer.

[@accaeffe8032]

​@@JRSonOfRichard I have the same. I've had migraines since I was about 14. Through my life my migraines have changed a lot. Now I have them mire often, they are shorter and I don't have headache and nausea, but the zigzag circles and I can't see well. I also slower to type on the keyboard and I make a lot of mistakes, but I'm good with numbers. It's weird. I react to changes in the atmospheric pressure.

[@JRSonOfRichard]

@accaeffe8032 I never heard someone say I react with atmospheric changes. I do exactly the same. Doctors have told me that it must be in my head and imagination. But it's true. If barometric pressure changes I don't feel well. I until my system gets used. to it. I am affected by cold and hot.

[@JRSonOfRichard]

@@accaeffe8032 changes in weather make me sick too. I don't really get headaches anymore, but like you the zig zag and flashes make me nearly blind. I also feel weird sometimes, like I am not here, like I am dreaming. It's not a good feeling. It's scary actually, because I think I am going crazy. But it goes away. Idk what to think.

[@GothicCinderz]

My ex-husband has Grandma seizures. It's a motor function seizure because he is basically riding an imaginary bike. But along with all of these seizures comes a deterioration of behavioral norms? It's definitely strange

[@mimiexplay]

Have a goodday doc omar i am so happy of your videos you shared very informative you help people who are suffering with this condition. ❤ May i ask if Do you have any suggestion of vitamins for brains i am suffering poor memory i forgot things easily and i am so depress because i cant do all my work properly my co-workers cannot trust me in any tasking at work and laugh at me my depression and anxiety is getting worse i pretend that it not hurt me i also forgot events and names of people and i have trouble in analyzing, memorizing,fucosing like other normal people do i always think that i am different to them 😢😢. I always ask myself what is the cause? Why me? Can i recover of this kind of illness? When? 😢😭

[@globaleffect1969]

Same here, I worked a new job and could never remember the lady's name I was working with and others. I would always say Mam or Sir to people even way younger to me because I didn't want them to know I couldn't remember their name, bad thing we only had 3 employees at my last job. If I was doing something and someone would interrupt me, I would lose my train of thought for a while and have to try to remember what I was just gonna do. Hey I hear you on the part about depression, I just posted a video of one of my seizures and will be posting more when I get time. I feel useless and im broke and struggling with bills big time. I'm so depressed because I feel so useless and Yet I have not told anyone that sometimes I think it be better for me to just be . I hope I get better but now I constantly get headaches that last 4 hours or more. My memory is getting bad. Stay strong, hopefully we can get through this.

[@gerardopc1]

I have nocturnal epilepsy since I was 12. 2024 is the first year that I had zero seizures

[@sewmeonekenobi639]

I have nocturnal tongue biting.

[@MisterEpsilon]

Good for you bro!

[@CubanMelanin]

4:30 Scary I found out at 32 in the worse way and started having day time grand mals , these I had as a child but undiagnosed would wake up on the floor or bloody mouth

[@Dghhvgjnb]

What i learned, epilepsy is not sickness itself, it's symptom of something and it depends about your doctor, some find reason some don't, it's also business for medical industry if reason is not find, Big pharma medicine, i recommend everyone with epilepsy first thing to do it correct your eating, trying keto diet and maybe fasting.

[@kyliejacobs6817]

Keto and my daily exercise is helping me greatly

[@MunibZadran]

I agree with you

[@cjaynesxoxo69]

THIS!!

[@henrytang2203]

Based.

[@AndreaValentine-w4o]

@@Dghhvgjnb things we probably have been trying ourselves for years.

[@ThisIsForDrew]

Darn … best video to date.

[@Nudibranch_]

My neurologist says he can’t diagnose me unless he sees me have a seizure or sees videos of me having one. I have had three generalized clonic tonic, or that’s what it seemed like to everyone around me and one where I was alone so I don’t know exactly what it was but I felt the same as I did with the others afterwards with loss of memory, slurred speech, difficulty walking and then muscle soreness and headache. during the most recent one I stopped breathing. I have strange symptoms like some of the ones described in the video without having a seizure and even though I’m taking medication now I’m still worried every time I taste or smell something weird or feel dizzy or like I’m in a dream

[@Laura-v9p7q]

I had undiagnosed hydrocephalus after a neck fusion mishap where an artery was nicked and I had to have 2 until of blood. I was fine for months after the surgery, recovered well but I started losing my balance and had to use a cane, then I would suddenly get sick about half an hour after eating. then what took me to the er were these very intense unstopping violent vertigo the one thing that stopped them was Ativan, just like seizures, which I also have. but stopping with Ativan threw off the er. docs so they decided I had anxiety and left it at that. I had to go downtown Phoenix when I got so sick I had trouble with light and thinking I was going to die. that hospital saw what the two close er docs did not and I had the surgery I needed. I have kipper-feil syndrome so my neck is badly messed up.

[@ScaryBoomBoomGun]

This is making me look harder at my migraines, weird auras (taste), heart palpitations, IBS....

[@darcieclements4880]

Some of that could be food allergies too. Man it is difficult to distinguish...

[@chanabayla1823]

​@@darcieclements4880seizures in general can be caused by alot of things buy that's not epilepsy

[@yourhighness6826]

Amazing video! I have a pacemaker for the heart stopping and survived status elipticus ❤

[@DrOmarDanoun]

Thank you for sharing your experience

[@Youmightknow111]

Oh wow. I will talk to my doctor about this!

[@ChantelStays]

This whole time... I dont think ive been having severe migraines but instead ..potentially epilepsy. I dont respond to migraine medications ..... This resonates, I wish I could find a good neuro 😢

[@wendy645]

You. Me. Same boat. 😢

[@ChantelStays]

@wendy645 I'm hoping for answers for us both.

[@makenziegabrielled]

This video reinforces my theory that bipolar disorder and epilepsy are related.

[@tanyakilbane7636]

For sure, 💯

[@lorefreak94]

I have a cat with epilepsy and am trying to understand it better. (he is on medicine for it now, I am not using KZbin as my only source of info) It could happen while he was awake or asleep. His legs would go ridged, sometimes bent sometimes straight. He would turn to the left like if he was to groom his hip and lick frantically, sometimes he would be licking the air sometimes he would be licking his hip. Other than his fast licking his while body would go rigid and quiver/shiver. He would usually end up rolled and upside down by the time it was over. In going rigid he would sometimes launch himself off of chairs. The whole thing would only last about five seconds. He would stop look around confided for a couple seconds then resume doing normal cat things. Now on his medicine these are greatly suppressed. During the first week on it he would sometimes stagger and act drunk for a few seconds. Now on that medicine for a few months sometimes I see him pause what he is doing and the left side of his face twitches for a moment then he resumes what he was doing. Just wondering how this experience would compare to a person who also has epilepsy. Does what medicine one goes on depend on what part of the brain got it?

[@MaLeaAnya]

My daughter started having seizures at 19yo she has waking grand mal seizures. She was having up to 3 a week. She quit smoking cannabis and she hasn't had one in almost 3 months. We never thought that could be a trigger.

[@GeraldSmithjr-j6n]

This may be a trigger for me !?!?!

[@GeraldSmithjr-j6n]

I’d love to talk more to you !

[@abbyb6958]

On and off for years I’ve had random bouts of SEVERE Deja vu with racing heart, sweating, and nausea. It also becomes more difficult to speak but still possible. After a bout that lasted several hours I went to a neurologist and was told it’s just a migraine aura (even though there’s never a migraine after and I’ve only ever had migraines without aura). I had an EEG but it came back normal because I wasn’t experiencing any symptoms at the time. I’m scared I’m eventually gonna have a more severe seizure and I don’t know what to do bc I can’t afford to see another neurologist for a second opinion

[@chanabayla1823]

Contact your local epilepsy foundation

[@DeanneSmeaton]

How interesting. I was diagnosed with partial seizures at 16. (34 now) My dad has it and I told him about some weird feeling I was having which he knew as auroas. It always started as a dejavu feeling and I would be awake but stare blankly with my lips smacking. Then I end up with the biggest headache and a sick tummy. Mine is controlled with medication luckily. Only when I am more stressed and I don’t take my medication correctly (timing etc. ) I can get them.

[@victoriabryant3078]

I have been dealing with grand and petite mal seizures. Thank god they’re typically nocturnal but I would advise staying away from stimulants before sleep for anyone suffering with similar things as well as avoiding MSG which is heavy in processed foods.

[@waleedmasseekh673]

Dr omer thank you for all the helpful and informative videos May Allah Bless You Inshallah

[@kingrex593]

Shame not all Drs know this though as they only go on obvious seizures and EEGs which can actually be normal

[@ThatJay283]

as a kid i had 2 grand mal seizures, so i got tested for epilepsy (involved sitting in front of a big flashing light while having an EEG). thankfully the test was negative. (also my health anxiety goes crazy with these kinds of videos)

[@shaekrieger3430]

I had severe epilepsy as a child, to the point where my parents were told that is wouldn't be able to go to mainstream school. I have been medication free since I was 5 and I am now 45. I have had a fewer absence seizures in the past the worst one that I was aware of was in line at the bank with my little sister, I was apparently standing unresponsive in line for about 30sec. I went to a neurologist who did an eeg and nothing was found. The dr was quite rude and said that either I had never had epilepsy at all or that I was cured, dispite the information that I had from my mum about my medical history including all the different meds I had been on. Since then I have had some scary migraines and odd aura moments. But apparently 'I am cured'.

[@mabinogidrws]

I'm waiting to see a neurologist. May be for some months more. I'm 42 and a migraineur (not sure if that means anything here). Last year, I developed tremor and myoclonic jerking constantly. The tremor has its own good and bad days. The past week, I've had bad myoclonic jerks and I dropped a full glass of juice today because my hands just went spastic. I don't even have enough strength in my legs to squat down and clean it up properly. I just feel wobbly and weak. When I'm lying down, either just my legs from my hips down will jerk, or my whole body, which can be startling. The past week, I've had more entire body jerks and also my arms and hands. I don't even know how to explain it, but I'll tap my phone screen without meaning to because my hand just twitches randomly. My doctor has never seen it before and she wrote seizures on my paperwork for my government payments, and the lady there couldn't find a suitable enough label to put me into so she put me in the epilepsy tab. I wish they'd hurry up because I have no idea why my electricity has gone haywire 😩 I feel like a fragile old lady walking around, avoiding stairs, etc.

[@_InsertName_]

I faint out of too much hypertension, overthinking as a result of anxiety. Only once while I fainted, I was conscious but body wasn't moving. I lose bladder control upon unconsciousness. I do get nauseous and dizzy feeling out of nowhere. Obviously sweating and heart racing are there. It especially happens when I see blood. I was diagnosed with epilepsy because doctors found no other symptom(s). I wonder if it was correct diagnosis or misdiagnosis of vasovagal syncope. I'm saying this as I don't have typical seizures.

[@amilan409]

I wish you were near me so I could book a session ( if insurance would pay ) I have had some issue that has stumped dr's and they won't help me with. I know you can't formally diagnose me over the internet ... and I'm not sure anyone can. I do not know if these are really bad vertigo spells or some type of seizure .. the first episodes I had as a teen and into my 20's were , all of a sudden it would feel like there wear gears in my head that were all moving out of sync, vision would start to blur, room spin and i would repeated vomit off and on for 12 hours ( food, liquid, bile then foam) sleeping or whatever between vomits, no nausea or upset stomach though, more like reflex and my head would feel awful, i would cover my head so i couldn't see the room spinning. there was obviously some stomach element to it and I did deal with acid reflux a bit back then too .... I did find that for a while, eating cream of potato soup helped some , then about 10-15 year later they started again, not with vomiting though, these may be triggered by slight movement of my head or they cause me to move it, it still feels awful inside my head, and I usually have to hold my head and stare intently at something ( usually swear while doing this, because it's such an awful, scary feeling, the same vision distortion and slight confusion, or like i sink into my own thoughts, Thank God these don't last long, a few minutes, and when these ones pass I feel very tired. I've had a couple others that did not have typical symptoms but like disasociation, slight confusion and a headache ( lasting a few minutes) then very tired too. my neurologist told me since it involves my stomach talk to my gastroenterologist, my gastroenterologist told me that since it envolves my head talk to my neurologist, my new primary is dismissive and the primary who i grew up seeing wishes he could figure it. ( sadly that primary is retiring now ) Any clue ? thanks for any thoughts or suggestions ... or even just reading and caring !

[@servedbot7377]

Ty doc, you taught me a new word

[@tinelarsen1292]

Execellent explaination 👍 Thank you so much for sharing your knowledge 🙏🙏

[@kathleenralston2192]

Huh. Makes me wonder about a couple of things. Very infrequently, when in that state when I am falling into sleep, I feel a huge electric like shock that not only wakes me up, but my whole body jerks. Fortunately it doesn't happen often. I assumed it happened to everyone until a relative saw it and I said Don't you hate when that happens? Nobody has any idea what I am talking about. Maybe it's a seizure. I don't really know.

[@beautifulvictory9683]

Doubt it's a seizure. You can google this to figure it out. Hypnic jerk.

[@sewmeonekenobi639]

Sounds like myoclones or myoclonic jerks.

[@beautifulvictory9683]

It's doubtful it's a seizure. Hypnic jerk. A lot of people get them.

[@kathleenralston2192]

@@beautifulvictory9683 Thanks. Good to know. Nobody I have mentioned it to has ever heard of it. Seldom happens and isn't really a problem. Just strange.

[@beautifulvictory9683]

@kathleenralston2192, I was just dozing off and nearly had one. No joke! Nothing to worry about IMHO if they're not a problem. I've always had them here or there. 😴😉

[@Xen-AM]

Is there any info on why some have seizures and their eeg didn’t show it? I had an EEG and when they flashed the lights in my eyes it made me have a seizure but there were no epileptic discharges on the eeg.

[@chanabayla1823]

Maybe it's pnes or another condition also seizures don't always show up. Talk w/your dr

[@Xen-AM]

@ I did talk to several doctors. Unfortunately they dismissed it because there were no epileptic surges on the ECG and it only happened once. My psych was the only one who acknowledged that she’s heard of PNES and that it can happen. I’m really glad it only happened once. People tried to tell me it was probably just a panic attack. But I’ve had panic attacks since I was 17. Never ever have I had a panic attack like that before or after that. It was only when the lights were flashing on my eyes when they were trying to trigger one

[@lolaloliepop]

I've had GEFS+ my whole life but grand mals are pretty easy for people to recognize and tell me later about. The problem is more EMTs not taking me to the hospital because even though my medical dog tag says I have febrile seizures (ie the cause as an adult is either some extreme illness spiking a fever or heat stroke) and assuming I'm fully connscious in a post-ictal state (so I wake up god knows how much longer later in a utility closet just confused how I teleported). But after being put on meds as an adult my "ocular migraines" stopped. They weren't ocular migraines, they were focal seizures (the colorful spots are pretty poorly differentiated online, it took a friend who gets actual ocular migraines sending me a video of something pretty similar to what she sees....and for her it's not calming and almost psychadelic)

[@cupcakebruh]

I have not been diagnosed with epilepsy but I do experience deja vu fairly often and I've experienced my eyes perking back and forth a few times. I'm not sure how to bring it up with my doctor and for him to take me seriously.

[@tryptophyl]

one thing i notice (stress induced) extreme twitching or blinking or gripping in the right side of the body

[@Sidera17]

I suffered an ABI in 2013 and have experienced multiple issues like described here, except I cannot get diagnosed with anything bc every EEG is normal. You have to trigger them specifically with loud noises, lack of sleep or nutritIon, high emotional stress, lack of sleep, flashing lights. I'm not sure how to get someone to test in this manner. I used to have the type where it went from one section of the body to the next. Arm, torso, legs, torso, arm. I even videotaped it. Doctors dismissed it. I had no idea this was a type of seizure! Recently, the je mais vu symptoms seem to be the worst. I have trouble understanding that the day is all linked bc if I have a brain click, it feels like I skipped to the next day and I have trouble remembering what happened. Multiple clicks can happen in one day and if I ever fall asleep in the day it's so much worse. I know seizures can be classified as non-epileptic, but it seems nobody treats them or labels them psychosomatic.

[@chanabayla1823]

Anything that the brain does can be a seizure

[@Neylena]

I often feel my ears pop and then feel a rush of air up my cervical spine, behind my ears - this is air that I can audibly 'hear' same when I need to burp, I can hear the ear coming up my trachea. Usually after i'll get a rush of shivers. I also am very sensitive to lights and especially DISLIKE flashing lights like the ones used in road crossings, police cars and ambulances and artificial screen lights give me a massive headache. Is this something that could be related to epilepsy or something else?

[@Mmmmmkay-n6v]

Yeah ive had seizure salads since i was born😂 every day in a haze but im still alive thank god;

[@flxmkr]

Is it true that if a person passes out with their eyes open, this can be a seizure? I’d been passing out for years, and my husband told me that when I pass out, my eyes are open. My mom slept with her eyes open, so I shrugged it off. But when I pass out, o get a weird (cool looking, to be honest) pulsating design that pulsated outward and is full of color. Alternatively, my vision becomes darker as a white crescent shape grows brighter and brighter while it grows more and more into a round donut shape that fills into a bright circle with a very dark background. This is what I thought was the “light” people saw before death until I experienced THAT in my sleep and saw my dead grandmother (which didn’t resemble what I sometimes experience before fainting). I also get shivers on one side of my scalp, but I don’t think it involves the rest of the body.

[@tanyakilbane7636]

Yes, that is a seizure

[@amuseme01]

My last know to me seizure was when I was 27 and was the same as all the other ones I've had. Felt like an ice block dropped in my stomach, which is my sign that I have seconds to sit or lay down, followed by weakness, then I awake. General confusion for I have no clue how long. Previous witnessed seizures of mine, my whole left side goes stiff and I stop breathing for a minute or more. My mom has stated she knows I'm coming out of it because I start snoring. I have been known to be in the middle of conversations only to stop and stare off into space; my dad's mom was also epileptic. Thankfully, neither of my kids have shown signs or symptoms.

[@dianafarmer5445]

Just wondering, could it cause Panic Attacks too?

[@pommiebears]

Yes.

[@nataliaalfonso2662]

Yes

[@tiki4677]

Terrible ones. It’s insane the things your mind will do during or after a seizure.

[@Greeneyesengage]

I had 2 grand mal seizures back to back and was on life support in the icu for weeks…. I don’t remember anything about that day…. But my head was cracked open in the front… my nose looked broken but wasn’t…. I was covered in bruises from head to toe….. the doctor said he’s surprised that I’m basically fine because they had several grown men trying to hold me down while they were trying to intubate me….. waking up and not remembering things makes me feel like guest in my own body…. I haven’t had a seizure since… I’m on medication for them but if I had epilepsy wouldn’t I have had seizures beforehand? Or after? They diagnosed me only because I had 2 back to back… I dunno I just feel like it’s weird that I don’t have common symptoms…. I mean besides always being clumsy, intense migraines,and bad memory…. I don’t have the normal indicators for it…

[@SarafinaSummers]

You were diagnosed because you had two back to back without provocation, such as drug intoxication, infection, fever, etc./Gentle

[@chanabayla1823]

Epilepsy is a very mysterious and unpredictable disorder so, no u may have not had any of that nature before or, u had other ones and maybe they were dismissed because u didn't think it was a seizure.

[@Athena540]

I know two people who had Grand mal seizures right before starting the menstrual cycle. After going through menopause the seizures stopped completely. Has any testing been done to see if the testosterone or estrogen levels can cause seizures?

[@Jayla-dj2gj]

No they won't test for that they just give toxic meds that contribute to "unexplained" death in epilepsy. They've known for decades that progesterone can help a lot of seizures. It's doesn't pay the pharma industry well if we can just rub some bio identical hormone on our skin. It's also very helpful in males.

[@pommiebears]

Yes,and they can cause seizures.

[@SarafinaSummers]

Very well known. They are called CATAMENIAL seizures.

[@kathiejohns1418]

What,a crying spell can actually be a seizure if there is no reason for the crying spell?

[@DrOmarDanoun]

It has to be taken into a context and do evaluation by a neurologist not just by itself.. Crying is part of the seizure with multiple other symptoms

[@ivalivengood]

I cry uncontrollably, can't stop.

[@nonasmith2405]

I thought my headache free flashing lights were migraine

[@nataliaalfonso2662]

Migraines are often seizures

[@chanabayla1823]

They maybe just migraines. It's hard to tell even w/eeg only sometimes which I think I why drs tend to medicate w/the drugs that are typically used for both

[@Truth.Watcher]

I knew someone who had to listen to one of his dad’s Christian songs for the seizure to not occur when he felt one coming on him.

[@illyrianfairy]

Can you please do a video on PVNH next please? Thank you! Big fan of your work.

[@DrOmarDanoun]

Great suggestion! I did write an article about that in the epilepsy foundation website

[@helenarichard]

I had focal seizures after watching a movie lately. I had seizures (costo attacks) when I had Tietze Syndrome. And now suddenly I had a horror period where I went clonic tonic from the pain.

[@helenarichard]

The focal seizures felt like a half minute each time, always being stuck in a dark space and a familiar person talking to me in a threatening way. I would get anxious and nauseous but not able to get out of it. A rush would be present on the front of my head. After it all, I would not remember anything from inside the seizure, but I would remember I had had it.

[@Chippychips83]

I sometimes start singing for no reason when I'm about to brain glitch.

[@cathywestholt5324]

I have myoclonic epilepsy. My first seizure was a grand mal when I was five years old riding in the back seat of the car on vacation. When my mom saw me I had already turned blue. Fortunately the hospital was just ahead and I was brought back. Since then it has been primarily myoclonic. I have a long aura. I am thankful because it gives me enough time to take my rescue med and get settled somewhere safe and still. I think my aura is the most bizarre in the world. No one I have found has the second part. First I get this kind of woosh over my head from the back of my skull up over my forehead. It will happen a few times. If I take my rescue med right after the first or second one of those, I can usually prevent the jerks. Now the weird part.....I have a big urge and need to poop. If I was not sure if the first feeling was part of the aura, this in combination is a sure sign. Of course the bathroom is the least safe room in the house for a fall. I have both a wheelchair and a rollator walker. I don't walk around the house if I feel anything. I use the wheelchair. It's a little too big to get through the smaller bathroom door. I push my rollator ahead of me as I ride in my wheelchair to the bathroom. Instead of pushing it in front of me, I keep it behind me so if I start to go down I will land on the seat instead of the floor. I have a cellphone case with a wrist strap. If I have any jerks, my phone can't fly across the room. Sometimes I have needed 911. I can call them on speaker phone, and if my hand jerks I still have my phone. I have had this for 65 years now. I wish Depakote had not added on 135 lbs. It gave me 100% control. The constant weight gain called for a change. I want to thank you so very much for specializing in this! There are many neurologists, but not nearly enough focusing on epilepsy. ❤

[@suzybearheart530]

The urge to poop - does it come before or after your rescue meds? I've noticed the rescue meds make my kiddo poop A LOT after. Made potty training loads of fun, lol.

[@cathywestholt5324]

@suzybearheart530 it just happens. Doesn't matter if I've taken the rescue medication or not. Most of the time the rescue med wouldn't have time enough to work. It's scary when I think I have made it through that part, have gotten settled in my recliner, and that big urge happens again. Now there is a bigger danger of a fall if that med is not working quickly enough. I live in an apartment. I have bad knees and really do need an ADA height toilet. One night when this was happening, I stood up to pull up my pants, and went back down on the seat. Tried again, and went down on the toilet harder and broke the tank. Water was running everywhere! I called my neighbors. He got the water turned off, his wife stayed with me and 911 came. He called maintenance and I got a new toilet....and ADA height. I guess I found a silver lining in that seizure. I would still have a regular lower one without that. LOL I hope your son does well 💜💜💜

[@Kaygottics]

I have Conversion and Tourette's. So, I've really wrecked my head and neck, as it's severe. However, my neurologist always just insists that my brain looks fine and basically that it's all good, at least considering. It's so frustrating that I've just stopped going.

[@Sugarglidergirl101]

I thought I was crazy in high school when I kept telling my mom I’m having weird Deja vu moments in class followed by completely forgetting what the teacher said during that period of time. I was actually to the point where I convinced myself that it was a certain word, words, or phrases that triggered it but I would just forget the word after lol

[@TheCatSlavex2]

I've had epilepsy all of my life. The VNS, didn't work. Gabitril, Caused a 6 and a half hour Status... under Supervision. Without Warning is Worse. Whatever Memory is Gone, is Usually, but Not Always, Gone for Good. The Focus is in the left Temporal Lobe, so the Focus is Inoperable. A Very Bad Temper!

[@pommiebears]

I take an old drug, Tegretol, also known as carbamazepine. It works well for me. I have a TERRIBLE temper, and I call it the red mist. Not as bad now I’m older, but I was really awful to control once I lost my temper when younger. I too have left temporal lobe epilepsy, grand mal seizures.

[@tiki4677]

The VNS doesn’t work for me either. It helps me not get too terribly sick afterwards but that’s it.

[@TinaLouise73]

i am awaiting to see a neurologist but my seizures are triggered randomly and come on out of the blue I know instantly I am conscious but my mouth goes really dry and it feels lije my throat is closing up cant breathe or soeak n my muscles tense up like having rigor wiout being dead! only med thst helps is a benzidiazeoams but GP refuses to up my dose desoite my concerns and family history! I hate it its scary n I have to buy AS medications online atm bcoz my GP refuses to help me until I get to see a neurologist which giving the NHS waiting lists cud be st LEAST 6 moths! I COULD be dead by then!