♡ Ehlers Danlos Q&A: My Life Expectancy, Mental Health + More! | Amy Lee Fisher ♡

♡ Ehlers Danlos Q&A: My Life Expectancy, Mental Health + More! ♡
EDS my Journey to a Diagnosis: • ♡ EDS Awareness 2018: ...
What is EDS? : • ♡ What Is Ehlers Danlo...
My Most Asked Questions: • ♡ My Most Asked Questi...
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♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.gov/ency/article/...
• POTS: www.nhs.uk/conditions/postural...
• M.E/CFS: www.nhs.uk/conditions/Chronic-...
• FIBRO: www.nhs.uk/Conditions/ Fibromyalgia/Pages/Introduction.aspx
• EDS: www.nhs.uk/Conditions/ehlers-d...
• GASTROPARESIS: www.nhs.uk/conditions/gastropa...
• MCAD: www.ukmasto.org/ukmasto-medica...
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[@BuuWaterloo]

My heart hurts so bad after the news of Amy passing away.. can't believe she's not in this world anymore. And now this was recommended to me and I want to cry. I hope she is in a better place, free and running. I'll miss you 💗

[@w.a.1816]

It’s so unbelievable to think she isn’t here anymore

[@chloemangan2813]

It doesn’t feel real :(

[@ollieishere4122]

I found out she passed why I was at work yesterday. I almost cried. Then this morning this was recommended to me as well and I was like, why does KZbin hate.

[@maggiejacques37292]

So sad

[@kkenel6919]

I know right I am crushed 😢😥😢😥😢😥 she is still here tho just in a different form

[@deanaf]

Why did this pop up now? You are amazing! You will be missed and remembered by so many. We love you, Amy.

[@deanaf]

@@Schrodingers_Kat thanks. We know that.

[@deanaf]

@@Schrodingers_Kat no. Don't apologize. Honest mistake. I was trying to find a way to explain it and couldn't. I wasn't trying to sound like a dick. I apologize.

[@cannonball6372]

kzbin.info/www/bejne/i5jRoIdvnMmqqq8

[@justcallmecraycray7671]

Having this recommended after you find out that this beautiful soul has passed on crying is a understatement hurts my heart God bless all her loved ones and family. Friends this is a huge loss such an amazing person 🤍🙏🏼🫂🥺

[@kkenel6919]

❤️😥❤️😥 I know I can’t even process the emotional stuff anymore I just keep telling myself that she is no longer suffering and she is in a better place 😥😥😥I still can’t believe it tho

[@meslzr1]

Same, feel so sad. I hadn't hit the like button. Also I left the tablet reproducing her videos with all commercials, maybe helps Tom s tiny bit

[@_fvdb_9669]

Same.. ever since i watched that video YT has been recommending her videos to me. I just couldnt rewatch them until now. Still shook from the news:/

[@kkenel6919]

@Jim Blogs yes and that is sad it is just that this video is about her and she passed as a very young lady and well known! Lots of people are sad and lots of people are also dealing with other people passing too I’m sure so we also need to except that some people are going to take it more seriously then others! You are right tho just this is about her!💕

[@irishrose7053]

I just found out its been a month. I had no idea n a year ago i posted. Sorry everyone hugs

[@kristynkazumi]

Hearing all her goals and plans to marry Tom and have kids is heart wrenching

[@maxoh6100]

😢 why is the world so cruel she was such a beautiful soul

[@cannonball6372]

kzbin.info/www/bejne/i5jRoIdvnMmqqq8

[@teijaflink2226]

Sounds like she sadly had a very severe form of EDS with heart issues.

[@rjkbuny]

All the girl wants is to have a good life with kids and travel, then her last yr of life there's COVID, aka zero traveling.... Gosh, I really hope u're visiting every place u ever wanted to see in the afterlife. RIP Amy.

[@Lucas-ic6ok]

💔😔

[@barbarakiser5622]

I wasn’t diagnosed until I was 50. Yes, I’m in pain, yes I have dislocations, and other issues... but they are small compared to this young lady. Rest In Peace.

[@pamela6564]

Oh Amy! I miss you already!!! My heart is breaking of hearing of your passing, I have a daughter your age and my heart breaks for you mother. You are so loved and I will miss you forever.

[@kkenel6919]

I know right I can’t handle it 😖😩😫😥😥😥

[@stephyadams8317]

I still cant believe she has gone, I have watched her for years, I still tear up when I think of her. It's not fair, it's just not fair!

[@sweetluvgurl]

I know. I cried when I found out.

[@davidlagomarsino4850]

I agree it is definitely not fair! She loved life so much even during the tough times and I am sure she went down fighting. God bless

[@bellarogue2099]

My heart breaks for her family, Tom, and friends. I cried on and off all day when I found out she passed. She was such a bright beautiful soul. She was so brave and always tried to have such a positive outlook no matter what she was facing. She was a one of a kind. We'll miss you sweet angel. My prayers go out to her loved ones.

[@KaileexLove]

I love the way your finger braces look. They actually look so high fashion, they’re super badass. I would totally wear them if it wasn’t morally wrong to do so (I don’t need them so I don’t want to make them fashion when people need them for serious things).

[@emilie2667]

KaileexLove Kiwii Honestly!

[@imanjadwat5704]

I actually thought they were just rings and they looked so cool

[@kyliefenick3838]

omg i thought those were rings i was about to ask where she got them lol

[@emerly820]

I know right! They look so cute but I don’t want to be that guy 😂

[@1jazzyphae]

@Gold Gold exactly. People don't realize if you hype it up and make it popular it actually helps us. If it wasn't for it being a fad being gluten free us celiacs would still have no options and the food would still be nasty

[@yallfing4310]

And in less than 2 yrs gone! Life just seems so unfair at times 😢 May she rest in peace 🕊️

[@makydenparreira5170]

I didn’t even know those were braces on your fingers!!! The whole time I thought they were rings!! They are so fashionable! I love them!😂💓

[@kristinadriggers7709]

Omg right

[@ti2gr475]

I thought so too

[@TheAlsdkf]

Same here , I was just admiring them thinking they look so pretty !

[@xxskylarmnxx6296]

they dont ship to uk😅 and I'm only 12 so I cant afford them and my fingers are really painful do you have any other recommendations

[@alleedanells6343]

They helped her fingers due to the hypermobility.

[@carpediem4091]

I think KZbin recommended this because I was searching Ehler-Danlos disease because my best friends child has been diagnosed with it and I want to know more to be able to support her more. Thank you so much for this video. Edit: Now reading the comments I've realized that she has unfortunately passed... I'm so sorry for everyone who is feeling her loss

[@McCreaFamilyHomestead]

R.I.P. Amy. You will be greatly missed. Fly high sweet girl. You are no longer in pain ❤️

[@sgough83]

What happened? Did they say cause of death? So sad

[@McCreaFamilyHomestead]

@@sgough83 not Tom hasn't said but I'm sure it was something with her heart. She has been in and out of the hospital since Nov or Dec because she had a massive heart attack. Do you follow her on Instagram?

[@abigray8585]

@@McCreaFamilyHomestead there’s a new video that says she’s had a few blood clots and her heart kept stopping I believe. So it was most likely her heart and the blood clots. I don’t want to assume anything though as I don’t want to upset Tom and the family.

[@McCreaFamilyHomestead]

@@abigray8585 I knew about all that from her Instagram. She posted a few times over there while in the hospital

[@andreaa.9709]

It's so eerie watching this a few days after her passing. Gosh. I barely knew her and I miss her.

[@hvrtguys]

When my grandmother was 65 she was told by a doctor that she had a deformed heart and that she wouldn't live very long. She lived to be 101 years old.

[@hongobongo8069]

I love that. Doctors shouldn't be giving out 'life expectancies' that's not their job. That's the Morticians job.

[@holiday-td6hx]

Shhhhhh Jared D....Amy wants everyone to believe she's going to die young. Of course she'll die young from either Sepsis or another infection, she won't die from her supposed medical issues. Most of these people die from Sepsis or other types of infections. You have to realize most of these Anorexic people want feeding tubes etc. so they don't have to eat real food. I haven't a clue why doctors allow this, it's ridiculous. Doctors can only 'guess" your life span. I had an uncle diagnosed with cancer and was told he'd be dead in 6 months. (he was 70 yrs old) Funny, he lived to be 95 yrs old and died in his sleep.

[@sydney3338]

holiday 2406 her stomach is paralyzed

[@pandas9803]

holiday 2406 she’s not anorexic she has a condition called EDS her stomach is physically paralyzed. She physically can’t digest food. She tries to eat as much as she can. Stop trying to self diagnose others. Doctors don’t give out medical attention to people who are faking. I don’t know how she could possibly fake a multiple doctors, scans, nurses, surgeons, and solid evidence but ok Dr.Holiday2406 😂

[@madz1100]

@@holiday-td6hx idiotic moron. Quit commenting if all you're going to do is insult this amazing young lady. Your ignorance is astounding. Go educate yourself. If you're capable.

[@stevenglansberg4448]

This poor girl. How could someone have so many horrible illnesses? It's just not right. I hope shes no longer in pain and I'm glad she doesn't have to deal with this stuff anymore but she didn't deserve any of it.

[@tessmarsh2088]

She definitely had alot of suffering in her life and she handled it like a champ.. I pray she is with Jesus, that he is hugging her and telling her how much he loves her.

[@hillarylopes7557]

You touched the lives of so many Amy. You don't realise how much you contributed to chronic illness education. You will be sorely missed. An angel is now in heaven. Condolences and prayers to your loved ones.

[@danielleparker2525]

RIP thank you for being a voice for the chronic illness community. I have POTS and MCAS, watching you helped me on my hard days. ❤️

[@beingme5655]

I have followed Amy for years & I’m so upset she’s passed away. I’m glad she’s no longer in any pain. Amy’s legacy will continue for years to come. The number of people the news of her passing has reached is obvious by the comment section of her videos. She’ll continue to help, educate & spread her positive outlook with millions of people to come. I hope you’re resting peacefully & my thoughts & wishes go out to Amy’s friends & family ♥️

[@mariettasatifka8371]

Amy was a precious human being. I will miss her for the rest of my life.😭💕😣

[@kkenel6919]

Ikr I literally can’t believe it

[@annegreenwood3624]

it’s sad watching this knowing she recently passed she was a ray of light an inspiration to so many i well miss her rip

[@jacijay724]

This video keeps popping up in my recommended and keeps reminding me of her passing. So, so sad about this news. Amy inspired me so much, I'm in nursing school because of her. I owe her a lot and I hope wherever she is now she is at peace 💗💗💗💗

[@lauraborabee903]

She had no idea she would only live for another year.. rest in piece sweet Amy you will be missed 💗

[@lyt6732]

yeah.. definitely didnt expect it. she seemed to always bounce back.

[@sweetluvgurl]

@@lyt6732 That is one of the bad things I’ve noticed about chronic illnesses is people get used to them pulling through a lot of health scares, but sadly, eventually, their luck runs out. I say that as a person with chronic health issues, myself.

[@lauraborabee903]

@@lyt6732 That's true... I'm very sad but also happy she is no longer in pain...

[@jordiflower]

@@sweetluvgurl :(

[@johnbrady1211]

Damn, Amy! I'm a T-7 para with all the complications you could have that go along with it. I was in a motorcycle accident 31years ago this year. I was 35 when I was hit by a hit and run driver who t-boned me when he blew through a stop sign. They never thought I would survive through the night because of the massive trauma. Through the years I have contacted awful diseases and complications from the VA health system. I have bags and tubes for my bodily functions. I jokingly call it "my plumbing". And in the spirit of the video topic, my doctor told me "you're defying the odds"! With all the complications, I'm still here! But despite all that and being paralyzed, I gotta give you credit Amy. You have a better attitude than me despite all the adversity you face. I have a lot of respect for people like yourself and how you deal with your health issues. You are so educated about your health and self sufficient. All the best wishes to you... John

[@virustwin]

im so sorry you have to go through that man. i'm a praying man so ill be praying for you.

[@Jesus_is_Lord555]

God bless you❤

[@oldsouthernwhitelady949]

I am southern granny. I was rushed pretty badly y thieves chashing each other. Now 25 years later I am enjoying my grandchildren and being lazy. I find something good because I lived.

[@johnbrady1211]

@@markotik2 Hey Mark, I wouldn't call what you describe as miniscule! When you have a life altering incident like we both had, it's not like fracturing an arm or leg bone and having it heal up and you move on with your life as it was. You and me were active people and if you were like me, you were a type A personality. I was an adrenaline junky. I crewed and flew a Black Hawk helicopter, was a Paratrooper, motorcyclist, etc. This year is my 32nd year of being paralyzed only in the last two years am I coming to grips with it. I spent 30 years angry and contemplating suicide. But, I had a family to support. A wife, two small children. I just took two years off to get used to being paralyzed then went back to college, learned a trade using computers and went back to work for the military as a civilian. Like you, I have to make enough trips to the VA hospitals that they all know me personally now. Thankfully, they have cleaned up the horrible conditions in the facilities I go to. A little to late. I have to deal with the unsterile conditions they were in 30 years ago. I survived a couple of killer hospital critters, thank God for my strong immune system. But it left me with many complications. Like you. It sucks and I take many meds to keep functioning, like you. I'm 66 and retired now. I wish I had some words of wisdom to give you, but I don't. You will find a way of you want to. If you're strong enough and motivated. Look at Amy. She's so strong. Man, I give her props for being a fighter. Know your limitations and learn to accept them is all I can say. It took me several decades to find that out. Try pushing it from time to time. You might get frustrated. So use what you can. If you can feed yourself and do anything that makes you more independent, do it. You'll feel like you accomplished something. Let me add something. Everyone used to tell me how lucky I was to survive. I always thought my excessive chase for the next adrenaline rush would either bring me satisfaction or kill me. I never thought I would be stuck in the middle like this. So people used to tell me there are others that are worse off than me. But it never made me feel any better knowing someone else was worse off than me. What a dumb thing to say, I used to think. Well, Mark. Best regards and stay safe... John

[@markotik2]

John Brady Thank for your kind words - it all means a lot. I contracted MRSB in hospital and was so ill - was in for 3 months that time. Yeah it sucks taking so many meds - and I have =to take OxyContin 3 times a day, Pregabs along with the strongest amount of gabapintin allowed in a day - 1200mg - 400 x 3 times a day for really bad nerve damage / /= 24 hour lasting Fentanyl patches are on my arm all the time and I have prefilled morphine syringes I end up needing to inject 3 or 4 times a day. Plus Xanax and Bromazem, Xanax for during the day and Temazepam for night with Ambien for when I have restless nights + when the pain gets unbearable keeping me awake. Also 16 x dihydrocodiene 4 times a day, plus a few other various tablets of unpronounceable names. I’ll admit ?I have a huge opiate addiction but at least ?I don’t have to pay for them currently. I too should have died - ‘I died twice on the table but am glad ?I’m alive but need edjing a carer is shit - I can’t go shopping, nor cook tea, repack up for things when I do Manage to go shopping I can’t reach the shelves. Bad days and good days but believe I’ll be on large amounts of opiates forever and go into withdrawal if I’m even just a few hours without them. I liter7finally came terms with it at the start of this before this crap happened and now I’m in high risk category. Now I just can’t go out at all as my local shops moved an extra mile away and there’s hardly any taxi services to help. Your comments are great my friend- really have cheered me up a little so thanks a lot for that ✌️ Yeah I loved bikes and because I was a Flight Attendant for KLM airlines so could travel round the world every week but in japan I found a special edition, tuned to with mm’s of the legal limits I found a Yamaha eliminator in custom blue yellow with red highlands limited edition unable to buy here so go it sent back and it was my xmas prescient to myself - but toook it out on SMS’s even on quiet roads - was opening it up and leaning down on the windy country roads befor the pissed idiot hit me - then left th scene immediately. Sometimes AI give up but thing well. Im Alive and that’s a blessing. I too was a junky for the extreme - tried wingsuit flying and have BASE jumped about 50 times. Raced bikes and my Nissan GTR round the Nurburgring Nordsliefe a lot of times. I do miss my bikes but it’s annoying more that I won’t get to take my Ariel Atom and my race replica Ducati round the track. I used to do extreme sports like skydiving and racing in fast cars but obviously a II never to theres again. And the illness regarding my stomach needed tubes and bags give me huge anxiety- scared if they leak. Worse in a wheelchair.. But yes that you for sharing this- 35 years is a long time for you. That’s not good.AT ALL. Anyway one more thing - it’s been reading your replies. Gives me hope fir the future.thank so mush.

[@mariekatherine5238]

So sad to learn she passed away.😥 Despite her shortened life Amy did a tremendous amount to educate and increase awareness of this disorder. May she RIP! ⛅️ 👼 ⛅️

[@jacijay724]

What the hell girl, I found your channel two days ago and can't stop viewing. I don't even have any connection to the topic, it's something I've never really thought about before until now and I'm finding it so educational and interesting. Keep it up!! You're super inspiring :)

[@kavitadeva]

Thank You for being open about your health. So sorry there is so much going on that impacts your life. You give me hope.

[@susansollee1839]

Although you have a chronic condition, I praise you for your bravery. You are a role model. You are a lovely young lady🌻🤗💕💕💕

[@imtoopunkrockforthis3604]

I have Elhers Danlos too (but a different type) and PoTS. It's amazing to see you doing so much despite these conditions and it lovely to see you spreading awareness about EDS because nobody ever seems to get it!! ❤️❤️❤️

[@ondinee4855]

You have definitely changed my life, Amy. Thank you so much, for being such an amazingly positive and genuine person. You have given me the strength to take pride in who I am, and, watching your videos, I feel less alone in my own battles. Love and support you always 💕

[@karirosenelson]

I am so thankful I found your channel. I have POTS and a connective tissue disorder (though not EDS) with a lot of the same complications other than the digestive system paralysis. It is so fascinating to hear your experiences with these conditions. Thanks so much for sharing.

[@laurenwilliams2439]

It's so frustrating at times because my EDS affected my mental health, and then Doctor's believed that my physical health problems were in my head, when both were having a knock on affect on each other, thankfully now my Doctor's understand the difference but also the way they overlap. I'm now working really hard on repairing both, they've been neglected of help for years but I feel I'm starting to move in the right direction. Thank you for educating, raising awareness and sharing your story, it's comforting to know you're not alone. ❤

[@angelasamusements4786]

You are going to be missed so much, sweet girl. I am still in shock that you're gone. I hope Tom or your family can fill us in on what you had planned on telling us later. What happened? God speed, sweetie!!

[@Neesa313]

Thank you so so much for bringing those splints to my attention! I ordered mine before the video even ended. You've saved me a lot of pain and discomfort! Love from South Korea! x

[@martinataylor7702]

I think it's great the way you talk about everything , you just say what you have to say and keep its real , good on you

[@melesiawright4137]

You are a warrior and an amazing advocate for this condition. Thank you for sharing your story and personal life with us. You handle everything with such grace and poise. Thank you for being the face of never giving up.

[@hannahsworld2275]

This popped up for me to watch , after your passing. I miss you so much Amy!!! I hope your running free and doing what you want up there. I love you!!! 🥺🥰🥺

[@Laura-rp2ce]

You really are a blessing for us all! Even though I don't have EDS or particular health issues you always help me being positive and smile at life and I learnt so much about your condition that honestly I didn't know before watching your channel. So thank you so much and keep fighting and smiling!

[@pokemum1222]

You are amazing, really impressed with your positive outlook on life. My dad is having late stage stomach cancer and is currently on TPN, don't think he can handle home TPN like you. God bless and continue to live life to the fullest.

[@cynthiacherry9077]

Amy you do a fantastic job in explaining EDS. You being positive and spilling that over to your viewers is wonderful. I to have some major health issues I deal with on a constant bases. Sometimes you can start to feel beat down. I just get up take a deep breath and realize that it could always be worse. I've had people ask me how do you do it? I just tell them it is, what it is. You just have to get out there and live your life to the fullest. Take each day your are given and enjoy the little things that most people take for granted. Thank you for your videos. You are a survivor and a warrior. God speed.

[@amanda_howerton]

I miss you so much sweet girl. I can't believe you're really gone... I truly cannot wrap my head around it. I just can't. I'm so sad, my heart is broken to pieces. I never thought this would happen, I just didn't. It doesn't seem fair. Amy brought so much positivity, love, light & strength to everyone. She was the brightest light & the world is a bit darker without her here. I'll miss her forever. I wish she wasn't gone, but I hope she's in a much better place & is no longer in any pain or worry. I love her so much. Prayers to Tom & Amy's family. She was so wonderful, a truly beautiful soul! Forever & Always.

[@chrissy_crumbles]

Yes...I hate that every single time I go to the hospital or see a new doctor they always either ask "have you been diagnosed with anxiety" or say "i see you have a history of anxiety" Yes, I do have anxiety, but I can tell the difference in the symptoms. Sigh.

[@ConestogaCreek]

yourmomisa fish - they are looking for any excuse to do nothing

[@agostonbazmajer1100]

@lada zibarova Fake what? Most of these conditions have very objective, measurable symptoms and signs that you can test for. The only reason why they don't do that is because they are paid the same money regardless of actually helping anyone. If you go to a private doctor and pay them, they will have the incentive to actually try and help you because it nets them more money.

[@johncrowerdoe5527]

@lada zibarova Problem is not faking. It's imagining diseases you don't have (hypochondria) and the sick brain causing actual problems elsewhere (psychosomatic problems). Because noone has a complete understanding of the human brain, lots of doctors will wrongly guess that all your real physical issues are just complications from your mental issue and not do tests that cause any difficulty (like a tiny risk of needle infections when drawing blood).

[@caitlyn7343]

I agree. I have anxiety. I went in to the ER with symptoms not at all fitting to anxiety and they were sure it was anxiety and I was being paranoid. I pushed for tests. Turns out I had a blood clotting condition and if I got sent home I would have died within the next day or two. I got hospitalized for a week and need transfusions. I had bruises that turned black, blood blisters in my mouth and throat and ridiculously heavy menstrual blessing, like every 15-30 needing to change my tampon bleeding. But it was just anxiety they thought

[@mmc5005]

Today , everyone suffers from some kind of anxiety. Stress is killing us.

[@rmjames83]

I think I’ve mentioned it before, but when ur chronically unwell, cruising is the BOMB!!

[@lsmael0ggemas996]

You're such an inspiration Amy...no matter what goes on in your life you always stay positive and keep pushing forward. U help me so much everyday in my own struggles. Thank you so much for this♡ keep up the great work!

[@ariannaborgra5352]

I was diagnosed with POTs MCAS and Fibromyalgia along with mental illness. Two doctors kicked me out of their office telling me everything was all in my head and that I was faking being sick. We finally got a great team of doctors and I’m trying to get back to normal. It’s hard with chronic illness but I try to stay positive and keep others that are struggling just as positive. Thank you for shining a light on chronic illness! It really makes people feel less alone. P.S if you want to travel you can always call the airports ahead of time and they can help you figure out a way to accommodate you. I travel a lot in the states and have had help from air lines. The longest trip I have planned is Australia in September so that’s going to be an interesting trip with chronic illness.

[@kkenel6919]

Fly high queen 👑 we love you and miss you 😢 gone but NEVER forgotten

[@wally2786]

It’s beautiful and very sad that we still get to see you. It’s especially good when you are looking so healthy and you’re just chattering away!! Missing all your joy.

[@Karrambide]

I'm glad this was recommended to me. I miss you, Amy!

[@crazymangaming9679]

I was just watching the hip surgery vlog and this notification popped up now I’m a happy guy

[@candyhebert3943]

You seriously brighten my day! I just adore your channel and you! Keep smiling and keep being you! 🙂😊

[@guardiansanimalrescuestate7289]

My heart hurts upon hearing she passed. It’s also important to let people know how much they are loved and cared about........life is so short and we never know when someone’s time is up.

[@SuperCsokiii]

I really hope that God keeps you here for a long time. Your positive soul is just inspiring and you are way too nice to go early. Life is sadly too fragile, but we will cherish every moment you share with us. 💕

[@SuperCsokiii]

My heart hurts reading my comment back. I can't process this, I wished for a longer time for you here. Hope you are know pain free darling. Sending lots of prayers, love and strength for Tom and her family and friends. ♥

[@alysonjade2461]

Love sit down Q&A’s like this. Thank you for sharing!!!

[@karrobat8260]

If you keep up with most of her vids like me and already know what she’s talking about throughout the video, 11:54 is her life expectancy

[@stephaniemaspero6876]

I loved her videos. She is such a positive young woman and did a great job bringing awareness about these conditions. I hope she is at peace. Beautiful soul gone too soon ♥️

[@meganbirdwell5044]

Love how your face lights up when you talk about your future and goals, I wish you the absolute best and know you'll reach every single one of them!

[@amineyilmaz6582]

Joo ei se ole vielä tullut mitään muuta ku ei ole mitään infoa kun ei oo vielä ihan hyvin menee menee ihan mukavasti menee ihan mukavasti menee ihanin mukavasti menee

[@dinosaurfun5965]

I think you are so stoical about your illness, you seem so very positive in your outlook, a very informative but not scary video x😊🧓

[@margaretmayberry7766]

RIP MY FRIEND your a true hero and one beautiful lady ! I'm glad your not in pain any more you will be greatly missed. Thanks for all you helped .

[@patriciaruth2894]

RIP Amy. You will not be forgotten by all the people you touched by your strenghth, courage and incredible positive attitude.

[@Biiuopp]

Only if she knew that she had less than 2 years to live :( rest in peace baby girl❤️ you’re pain free in there ❤️

[@millyk908]

i just found your channel and for some reason started crying because finally someone understands!!

[@mildredleslie4483]

HI I WATCH YOU ALL THE TIME. THANK YOU FOR TELLING ME ABOUT YOUR SELF. I HAVE A CHRONIC ILLNESS. IN PAIN EVERY DAY, SO UNDERSTAND YOUR PAIN.

[@leonardovinicius460]

I think your emotional parsimony is elegant and that “gives” us a stance of acceptance of a “robust” maturity that impresses me. Many years of living for you, the imponderable is more visible than predictions.

[@maryreynolds5310]

Yes Amy, live your life the fullest!! You are so worth it! I wish you nothing but the best, ALWAYS! I love ya! xo

[@pattihawks8514]

You handle your illnesses with such positivity; at least with us! You’re a very mature young person, and I admire your courage! ♥️🙏✌️🦋

[@cathcoll7961]

I totally agree My mental health was affected by my illnesses So much so At 21 I spent 5weeks in a Mental health hospital At 50 I still work through them I for the past 20 years Have also helped others with their Mental health issues Asking for help is hard Yet the biggest step Loving today’s Q&A lovely ❤️

[@toddfromflorida]

You are an inspiration. I have never posted on or watched for that matter this type of video but it popped up in my feed one day so I watched a few of your videos. Youa re dealing with a lot in life and handling it as good as anyone I could imagine and making the best of it. You are a beautiful, well spoken, and very brave young lady and I only wish the best for you. You put many things in my life into perspective and for that, I thank you.

[@bryanbrizak2631]

My issues are related to mental health since the age of nine your attitude and outlook is so wonderful in the best sense. I try awfully hard to stay positive been hospitalized dozens of times self harm etc. The point is thank you for the strength I can't imagine comes easily I thought for a long while the end of my story was already written I've reassessed that. So thank you, truly. Bryan

[@kerry3546]

❤️ you’re still sending your message, and it help us to this day.

[@silc.1002]

Your an EXCELLENT teacher 👩‍🏫. Thank you 🙏 for answering such pertinent questions. Amy you can do anything you want cuz your a “DOER”!!!

[@Littlebit681]

Thank you for always being so open with people as it's not always easy to do. I also thought the finger braces were cool fashionable rings at first. Amy, I admire your spirit and determination and honesty with people when they bombard you with questions. I'm sure that's not always an easy thing to do. ❤

[@lascielthe-fallen4536]

I have really have enjoyed learning about EDS you do a wonderful job about explaining your condition and why you need to do the things you do. You are so comfortable sharing everything about "this is my typical day" you are an inspiration to other people who are going through thier own challenges. I wish all the best and please keep making your videos.

[@NurseMickiLea]

Love that you have goals and a realistic view on living for the day not with and expiration date❤️

[@isthisnametaken6618]

Such a positive way to live, isn't it? 😍

[@jrtheatreproductions8943]

Omg this girl popped up on the feed. Geez what a massive loss. Such a lovely girl. Sooooo brave

[@kitcatj9703]

Gosh, I would get so excited when I received notifications that Amy had posted a new video to her channel. Wasn’t ready for her last post. Absolutely heartbreaking. 💔 Sure will miss receiving that notification. Rest easy sweet Amy, you deserve it. 😢

[@Logan-io9jy]

I'm hopefully going to get an EDS diagnosis next month and it blows my mind that my bladder issues (which sound eerily similar to yours) could be caused by EDS. As soon as you described it I felt so relieved that I wasn't alone!

[@lottiatbeaniecodesigns4681]

They have electric heated packs on groupon, mine is lilac. Hope this helps xx The brand is called Dickens!

[@kovacsemoke633]

I don't feel sorry for you. I admire you girl! I admire your positivity and how strong you are. You are amazing! Stay strong and never stope being you! I really hope that soon enough you will have all those things that you wish for xx Lots of hugs and love to you 🤗😘

[@bussinbussin2618]

I hope she’s in heaven eating all the food she wants💔🕊she was a fighter

[@cannonball6372]

Well if she didn’t believe that Jesus Christ died and shed his blood for her sins then she’s will not go to heaven and she made it very clear in the past she didn’t. I just hope she had a change of heart before she died otherwise she’s in hell right now. Sad but it’s the truth

[@omni1001]

@@cannonball6372 🖕not the time mate

[@debradonley3825]

@@omni1001 But true, nonetheless.

[@cannonball6372]

@@debradonley3825 that’s right sis and when things like this happen it should encourage other people to think about their souls as we are not guaranteed tomorrow !!! God bless u

[@cannonball6372]

@@MomentoJori I really don’t care to be honest, the truth is the truth, and if reading this can help just one person think about their soul and come to faith in Christ Jesus then it’s all worth it. Have a nice day !!!

[@sarahb4356]

Thanks for the Hot Pod recommendation, got myself one from my local chemist warehouse and it warms up to just the right temp and that thing has stayed warm for literally HOURS! My frozen feet Thankyou so much x

[@bgctrinity]

It's so strange going back and watching this. She's talking about it, but if she only knew she had just under 2 years left. She really did fight so hard.

[@nusratkhan723]

She gave courage to soany people out there fighting something openly or closed behind the doors... I miss her💕💕💕💕💕

[@paincreatesfame]

Watching those ads all the way through because I gotta help out ❤️ you’re so strong and I’m glad to support and watch your videos

[@KaileexLove]

Sadie Blackwell if you skip ads do they still get $$ from it???

[@amyleefisher52]

Thank you so much! ❤️❤️

[@deannasydney9756]

Rest easy and peacefully beautiful girl. my heart hurts knowing you arent here anymore. watched you for so long. Miss you forever

[@ivyjay8777]

it feels lik yesterday i found out you passed. ive been in and out of hospital the past 3 years being tube fed for a severe eating disorder that i likely wont recover from. i found your videos and i just really want to thank you for everything. i would always watch your videos in hospital and even though we’re both struggling with very different illnesses but years ago finding someone who also had an NJ tube helped me so so much. i always felt embarrassed going out with my tube and you have really helped my confidence. i dont know why im talking to you, its just really hard to imagine you’re gone, youve helped so many people and you were so so brave in the face of chronic illness.

[@Odiekins]

How come you say you won’t recover?

[@bioshawna]

I don't know you but dont stop fighting 😢🙏🏻 or try not to. I'm not in your shoes so I don't hold or know the full weight of what you're going through but I hope you do recover, and feel better soon. 💕

[@feliciaxu1816]

Miss you so much and your video cheered me up when those bad things and emotions came. RIP Amy and we love you so much

[@mustwereallydothis]

I often forget that I'm not hooked up and push around my IV pole when I don't need to. I have even wandered around outside with it when it's no even hooked up to me. Its always good for a belly laugh when someone finally notices.

[@saraelizabeth_82]

Since I have found your video, I cant stop watching. You are a very smart bright young woman❣ so tough! I am a CNA and I dont know half the things you do. Nor have taken care of someone with half of your medical conditions. You have definitely impacted my life and someone I look forward to seeing. Lots of love to you❣

[@lisaioannou6758]

I posted on the wrong video. I wrote to you telling you that your videos help me get through the days with my chronic illnesses. And to keep up the great work you do. You help me so much and I believe many others ❤️❤️

[@MDI.PHOTOGRAPHY828]

You're always such a joy to watch/see.... always beautiful love. Cheers! Good luck on your upcoming operation .

[@GLGC688]

I have EDS and was just searching for videos about people like me. Seeing that she died is absolutely terrifying. I'm so sorry for her family.

[@izzystopa9381]

the thing about popping your joints back in & it not making a lot of sound is so true!!

[@brookegonzales08]

Makes me sad you were such an amazing inspiration to me be free from all pain suffering fly high angel

[@HollehhMarie]

I know someone who has EDS, is trying to recover from an eating disorder, and is currently pregnant 😬 I can’t imagine what she’s going through but I’m happy that she’s getting the chance to bring a sweet little boy into the world!

[@pandapearl385]

I understand a lot of what you're saying. I have a debilitating connective tissue disease and right now its eating my big toe so I cant move it or it will dissolve all the connective tissue and become free floating. It's also affecting my liver. I have stage 3 liver disease. And I had 2 heart attacks from inflammation not artery blockage. All the vessels in my heart spasmed shut. The whole thing I've been through in my life has really affected my mental health, especially the hip dislocation. That made me crazy. I would wake up screaming. You are my heroine! Your positive attitude and self confidence are an inspiration to me. Thank you so much for your vids, they really help me. I feel like I have a friend who understands what I go through. I cant thank you enough.

[@aeriok8486]

Some day I hope I have the courage to put my story out there like you have. You truly are amazing 🙂

[@sanna8451]

One of my best friends have EDS. Kind of scary to learn about all about the possible effects it could have, but you also helped me to understand a lot about how it works! :)

[@savannahcruthers1783]

I just got diagnosed with hEDS this summer, and bc the drs all knew I had a history of serious mental health issues I always found myself feeling the need to specify that "no this is not in my head, I actually see my joints go out of place, my friends do as well" and it was always so terrifying for me bc I felt like they wouldn't believe me. And can I just say the last few months have been a real mess for me with my health, it seems like it's all deteriorated so fast. It's been especially difficult with my mental health, just being trapped in the thoughts of how I will never function properly and I can never do the things I want or be a "useful" part of society (whatever that even really means), but my friend pointed me toward your channel and it's so nice (in a cruel way) being able to have someone that understands the physical problems I have. So just thank you for existing through this I guess. You're doing good with your life

[@bioshawna]

I know your comment is old but... I know how you feel. I live w chronic illness and mental health issues combined and for the longest time I beat myself up for not being able to hold down a proper 9-5. The best thing I ever did for myself (starting in my 30s) was accepting my limitations with chronic illness and chronic fatigue. Don't set yourself up for failure by trying to fit the mold of what you or others perceive to be 'the right way'. My health has actually gotten better with knowing my limits and refusing to go past them. Listen to your body 💕