♡ Update: I'm Struggling! | Amy's Life ♡

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Amy Lee Fisher

Amy Lee Fisher

Күн бұрын

Пікірлер: 606
@ChelsahChatter
@ChelsahChatter 3 жыл бұрын
So insane that one year later she died. I hope her doctor makes it to her funeral as she wished. I learned so much from you Amy. Sending love to Tom and family.
@GunsNRoses1123
@GunsNRoses1123 3 жыл бұрын
Yeah almost exactly, it's so extremely sad how it went. Here she still looks fairly healthy and hopeful. I remember watching this year ago, I couldn't have imagined that she's not here anymore. So much has happened and chanced in a year, it has been extremely difficult and so much death (in my own life too). Her death is extremely hard, I can't imagine how it is for the family.
@samhartford8677
@samhartford8677 3 жыл бұрын
Indeed. I had a premonition of what her doctor meant by not being able to see her again. Sorry. I was just being a realist.
@lyt6732
@lyt6732 3 жыл бұрын
I don’t particularly believe in an afterlife, but man, when certain people pass, I have to MAKE myself believe in order to cope with it. I want her to be looking down and see all the love she is STILL receiving. How important she was to so many. And that her videos are still being watched.
@Lorandoriginal
@Lorandoriginal 2 жыл бұрын
haha there’s an afterlife it’s a barrier of souls, some are punished some are not but meh I believe almost the entire of this population will be punished especially how normalised sins are like tattoing, drinking, dating, It’s hilarious y’all should’ve learned from your ancestors but it’s the eyes that are blind but the heart is, “every soul will taste death” - Quran eventually anyway
@strawberrymoon412
@strawberrymoon412 3 жыл бұрын
amy can't believe that you are really gone ; ; miss you so much, you were truly a light
@JixieDyeAuthor
@JixieDyeAuthor 4 жыл бұрын
I'm immuno-compromised too and having a hard time with isolation so if you need to talk I'd love that. Hope you stay safe and well and keep your spirits up! x
@deninelynch9556
@deninelynch9556 4 жыл бұрын
Me too. Scary huh?
@JixieDyeAuthor
@JixieDyeAuthor 4 жыл бұрын
@@deninelynch9556 It's nice to know that you're not alone in this. Nice to talk to others like me. x
@pileotires
@pileotires 4 жыл бұрын
Me too! I have a kidney transplant. Lots of stress about getting sick and not making it. Hope healthy people take care of us by protecting themselves.
@wifemomteacherlife7648
@wifemomteacherlife7648 4 жыл бұрын
I’m sorry that you’re struggling. This is such a strange time that we’re living in. I haven’t seen anyone in my family except for my husband and children (and I am so thankful for them!). My mom is far too susceptible because she has lupus and she’s been fighting cancer for the last two years. My dad hasn’t even left home because he’s so scared that he’ll bring something back to her, so they’ve been having everything delivered. My grandfather passed in July of last year, so my grandmother is completely alone and I hate that! I was spending a few days a week with her before all this happened, and now I can’t see her. It has been quite difficult to deal with everything that’s happening, but I want you to know that you are in my heart and my prayers. I know how isolation can affect the mind. ❤️
@rethinkeverything2982
@rethinkeverything2982 4 жыл бұрын
I was going through trying to get my EDS diagnosis before all this happened and now everything is on pause for that... i have no pain relief-it so scary to know I can’t just go to the er... praying for you mental and physical health love!! If you get bored film a video with all of your friends over video just informing your audience about what makes support such an important thing with chronic illness❤️
@SierraGal
@SierraGal 4 жыл бұрын
I feel your pain. I’ve been seeing my doctor every 3 months for many years. They called and canceled my appointments and now will mail me my prescriptions. Which is problematic because I don’t have mail delivery to my house, so I have to have people get my mail for me. If everyone would STAY HOME this would be over sooner. If you can keep in mind this isn’t forever, it’s temporary. We will have hugs again. I’m confident it will be soon.
@markanthony6152
@markanthony6152 3 жыл бұрын
The world will be safe again
@markanthony6152
@markanthony6152 3 жыл бұрын
Hi Sandra, how you?
@jessicarestivo4941
@jessicarestivo4941 4 жыл бұрын
this is honestly heartbreaking.. praying for you and the world. i hope everything will be okay. i’m so proud of you. keep fighting 💝
@spannerclyde6832
@spannerclyde6832 4 жыл бұрын
I have faith in you, and have faith you'll pull through and come out stronger on the other side
@Lunabwolffang23
@Lunabwolffang23 4 жыл бұрын
I feel you . I only get maybe about 3-5 hours sleep each night . My depression and anxiety is so bad at the moment and being away from my father isn’t helping me either . I hope that you can get through this . Know that you’re not alone in this I’m here for you girl
@TS-eo9uf
@TS-eo9uf 4 жыл бұрын
Having listened to you speak (I think I've watched/listened to every one of your videos over the past 6 months) has made me so much more careful during these scary times. Some people I know are not taking this seriously, and I keep explaining that there are young people with so much life left who are in danger if they (people I know, who think they're invincible due to being in their early 20s) go out willy-nilly and aren't careful. Your story is helping to wake people up to our reality. Thank you for putting yourself out there on YT and in general. Your story is making a difference.
@comegetthiscommentary
@comegetthiscommentary 4 жыл бұрын
Video idea... Film a realistic day in the life of immune-compromised and quarantine. Your day from start to finish.
@alyssawssinging4039
@alyssawssinging4039 4 жыл бұрын
Iam Keva i agree very good idea
@barbarapinna2011
@barbarapinna2011 4 жыл бұрын
Yeah and she could do a voiceover instead of a "vlog style" video
@jackiecosta7620
@jackiecosta7620 4 жыл бұрын
Suddenly there you were on my feed... nice to see you Amy. I ve started my doctor appts on video... it was ok I guess... they just sent my scripts electronically. You look great... stay positive girl!
@milenaermatinger8504
@milenaermatinger8504 4 жыл бұрын
It isn't so much different from healthy people. I have a severe gravt versus host desease (due to bone marrow transplant) I have 4 different immunosuppressive medications etc. I'm in the highest risk group. When it comes to corona I'm living a pretty normal live. Yes I have to be extra careful but there is not that much to tell really..
@shandahernandez9804
@shandahernandez9804 4 жыл бұрын
I completely understand. Im under isolation as well. I had my dr appointment yesterday over Zoom. Zoom doctor appointments till this is over. My husband is wearing a mask and gloves when he goes into pharmacy to get my meds and discards them before he enters our vehicle and takes my meds out of bag and all that for me. And, of course, same problem here with sleeping. The doctor said I could sit outside as long as I stayed within my yard and that the UV light is good for killing viruses. So, that has helped just to sit outside since our weather in the evenings here in Texas has been breezy and cool. Hang in there. We are all in this together. Thanks for sharing and reminding the rest of us that we are not the only ones.
@clifforddodson5459
@clifforddodson5459 4 жыл бұрын
Your a strong woman keep pushing on! Keep calling family and friends. Lot of people you don’t know are praying and pulling for you!
@QuietBloom
@QuietBloom 4 жыл бұрын
It sounds like you have a wonderful doctor. Virtual hugs love.
@Slastukin67
@Slastukin67 4 жыл бұрын
What a wonderful therapist! Would you come to my funeral? That is such a raw question and it shows how honest and open your relationship is. She's a keeper, for sure. Stay strong and healthy, Amy. We'll all get through this.
@abhigosal7558
@abhigosal7558 4 жыл бұрын
i have type 1 diabetes now for 6 years and the 1 day out of the hospital was sooooo hard so i can feel the pain you go though every day. I am only 10 years old and i love you vids. i really can’t leave the house to get medical supplies so i feel you. Have the best time you can have. medical things are hard to find any where now. Love your videos
@itsanorristhing3825
@itsanorristhing3825 4 жыл бұрын
Stay strong do what you need to do to stay healthy we will always be here to support you! Love your channel so informative your a insperation to me love you and Tom!
@itsanorristhing3825
@itsanorristhing3825 4 жыл бұрын
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@andrewbeard1380
@andrewbeard1380 4 жыл бұрын
It's good that your doctor really cares for you. As for everything that's going on, this all really sucks. I can't imagine the fear and stress you must be experiencing right now. I'm glad that you've found a couple little things to distract you. Hold on to those things and stay strong. I'll be praying and keeping you in my thoughts. We can get through this! ❤
@darkbluematter1753
@darkbluematter1753 4 жыл бұрын
This is a stressful time. My depression has gone from mild to strong the last few weeks. Thank you for filming this update video! Stay strong!
@karenlalonde7923
@karenlalonde7923 4 жыл бұрын
awe sweet girl you will be ok and your going to get through this thing you will live, just stay in try to be patient it is hard hun but this will pass, i live alone im 53 and im afraid to but i know it will pass and you and i will be ok hugs from Canada xoxoox
@dcrafts5445
@dcrafts5445 4 жыл бұрын
Thanks for your up date...I’m sorry your struggling with some things at the moment....Amy you are a strong young woman and this virus is making a lot of people feel the same as you... I have a son with DownSyndrome and I went to see him through the window for the first time since this all started and he’s very high functioning young man but he really struggled with not being able to hug me... I cried all the way back home. ... We FaceTime each other everyday... We very lucky to have that as some people don’t.... Amy please stay safe and be well and remember this to shall pass and sometime in the near future you will be moving into your beautiful new home....There is a light at the end of this tunnel....sending you much love from Ontario Canada❤️
@SM-nr3nq
@SM-nr3nq 3 жыл бұрын
Amy talking about how she would like her doctor to come to her funeral... breaks my heart. This can‘t be real. RIP beautiful soul😪❤️👼🏼
@samhartford8677
@samhartford8677 3 жыл бұрын
Yeah, but you knew it. I knew it. She knew it. The doctor knew it. It's just nobody wanted to know it. Not enough sad faces around.
@SM-nr3nq
@SM-nr3nq 3 жыл бұрын
@@samhartford8677 Not really
@samhartford8677
@samhartford8677 3 жыл бұрын
@@SM-nr3nq Well, I am really sorry, but that is only because you did not know enough. Not your fault. But one cannot be sustained on constant infusions of saline for too long. The body does not cope. No matter what they say about EDS and POTS, it's lethal if you get to this point. Given that they don't know the cause, they just cannot say it, but the medical literature is clear on the consequences of symptoms. Logically POTS will lead to heart failure, if it is not cured by itself. EDS can lead to death through other means. It's the same thing as saying to cancer patients that they have twice the amount to live, given they cannot exactly predict and the psychological belief is half of the thing.
@SM-nr3nq
@SM-nr3nq 3 жыл бұрын
@@samhartford8677 Yes, that makes sense. I can imagine that TPN is really damaging for the veins and overall for the body. It still was very shocking to me because she used to talk in q&a‘s about life expectation and everything it didn‘t sound that bad. Sorry if I made mistakes, English is not my first language:)
@chaoticyank5772
@chaoticyank5772 4 жыл бұрын
Totally, understand. Been working from home in the US for a few weeks now. Hardly ever leave the house. Stay strong, we will get through this.
@racheloram
@racheloram 4 жыл бұрын
Just got my isolation letter (live in england). Had been isolating for nearly 3 weeks after being sent home from work as a precaution. Kind of made it hit home a bit more than before, even though I knew I was in that category. Trying to keep doing stuff around the house and doing some light exercise like yoga regularly to try and not get unfit. I feel bad for my mother and brother who are stuck in because of me too. Hope you keep as well as possible x
@edenlovestech
@edenlovestech 4 жыл бұрын
Amy, I completely relate to what you are going through. I have an Autoimmune Disease and I’ve been in isolation for 3 weeks and only going out for essential shopping. And it’s been difficult for me emotionally especially since we don’t know exactly when this will be over or how things are gonna end up....it’s quite scary but we are all in this together and we can get through this. I will say for video suggestions: do a what’s in my purse video or even an updated medical supply video (even though you did one a year or so ago but I just love those types of videos). Also, you could take this time now to like clean out your emails, go through your closet and do some spring cleaning, or maybe learn to bake or cook something new! Idk I’ve been bored out of my mind too 😂😅. Anyhow girl, good luck and we are all in this together. ❤️
@Sarah-mo9lx
@Sarah-mo9lx 4 жыл бұрын
Hope you stay safe and healthy! I work at a pharmacy here in the US so I can't stay home unless myself or one my coworkers would get sick with this. Love you channel so much, best wishes to you and your family! Keep us updated ♡
@petecunnien5368
@petecunnien5368 4 жыл бұрын
My heart goes out to you!! I’m sure things will get better and so many people love you and know it’s hard but your going to be better for it!! Much love to you!!
@billiebluesheepie2907
@billiebluesheepie2907 4 жыл бұрын
It’s good to see you again. One idea that will make a great video is planning what things you’d like for your new house and the overall idea for each room. I’m currently on day twenty of self isolation. It is weird as I’ve had to stay home for my health many times, this time it seems the world is doing it with me too!
@glmn77
@glmn77 4 жыл бұрын
Amy, you being seriously & chronically ill has to be tough because even relatively healthy folks (in Illinois, USA) are feeling the emotional strain now. Besides social media & phone calling others, I have used the meditation apps online & they help. I'm glad you have your friend running errands for you & taking safety precautions for dispensing deliveries. Living in a very rural area here, lots of people have offered to shop or run errands for friends, neighbors, other family members. That means SO much to relieve some of the worry. Stay well & God bless!
@Justicia007
@Justicia007 4 жыл бұрын
Try not to worry so much, I know it's hard! I am immune-compromised and have a chronic illness. I still take rides in my car over to the docks or somewhere picturesque and put the windows down... Really important to get out a little bit but not near anyone. Hang in there, this too shall pass! 💗🙏
@ejdoug8328
@ejdoug8328 4 жыл бұрын
Hi Amy, I feel for you. I have a rare autoimmune and my anxiety level is through the roof, if I get 4 hours of sleep I'm lucky and it's very broken up sleep. I have a video idea. I dont know if its easy or not just because I know nothing about making them. I really enjoyed your asmr video. Especially the sound of your finger splints. Something like that would be nice and also help people relax and fall asleep and we could all use a little of that. Stay safe and healthy.
@donnaloveall1470
@donnaloveall1470 4 жыл бұрын
You hang on their girl!!! A lot of people love you and praying for you!
@sunny4jenny
@sunny4jenny 4 жыл бұрын
You are strong & smarty~ you will be ok! I live in the US & for abt a month now we’ve been in lock down, healthy or not, doesn’t matter. All jobs, businesses & stores were shut down. Only “essential workers” are allowed to work (hospital workers, pharmacies, food stores, etc) We will all get through it! 💛
@nowaybecky5023
@nowaybecky5023 4 жыл бұрын
Hi Amy! I’m Amie and I live in CA, USA. I have been on quarantine for about 3 weeks now due to having autoimmune disorders and cardiac conditions. I have found my sleep schedule is completely backwards now and having major issues with depression instead of my usual coconspirator of anxiety because I can’t go anywhere. FaceTime is better than not seeing anyone at all (I even FaceTime my grandma, who has been great about learning how to do it. It’s adorable!) and just general phone conversations instead of texting. I have found that it helps me relax when I can see or hear whomever I am talking with’s expressions. Makes me appreciate the humanity in it all. I wish you all the best during this crazy time and hope it starts to get better soon.... for us all!♥️💚
@samboling8339
@samboling8339 4 жыл бұрын
Amy, I am in the same situation. I cannot leave my home due to the current world situation. I have to face time for my job, and at first it was really hard, but now I am so grateful I get to see my friends, family, and co-workers. Know that we are all here, maybe not quite as deeply isolated, but this is all of our reality. Keep doing you, keep being open, and never give up! ❤️❤️❤️❤️❤️❤️❤️
@debraann9512
@debraann9512 3 жыл бұрын
I didn't realize how much her videos helped me cope. I miss her very much I can't even imagen how much her family misses her, I know how much I miss my love one's. Love you Amy Lee Fisher.💚💚💚
@babybluecheeks
@babybluecheeks 4 жыл бұрын
I'm so sorry that you're struggling xxxx. Maybe Tom can take footage of how the house is progressing if he hasn't already, also if you haven't already you can start thinking about colour patterns for the new house and styles that you want but I kinda imagine you might have done that already. I use the kindle app on my phone for books as I read a lot! Xxxx.
@horseygirl6232
@horseygirl6232 4 жыл бұрын
babybluex My thought exactly. It would be like a virtual tour of your new home. Or could you dress up, gloves, mask, long sleeve top over something else, big glasses the whole bit. And go when everyone has left, at least you wouldn’t feel like everyone staring and less risk. Then Tom opens all the doors anything like that. Then before you get back into your car discard the throw away stuff and bag the top to wash later. Would this be safe enough option?
@comegetthiscommentary
@comegetthiscommentary 4 жыл бұрын
Your Dr. is awesome for trying to protect you as best she could.. Coronavirus has mentally been affecting everyone. Everything you said is so relatable. Sending you a virtual 💓 from Michigan.
@dolamara
@dolamara 4 жыл бұрын
Baking video! Or art/craft? "Get ready with me" but not actually going anywhere? I wish you strength on these trying times !
@leezooka
@leezooka 4 жыл бұрын
My Baxter nurse has visited me at home every Monday for 28 months to do my dressing and bloods , she isn’t allowed to come anymore my husband now has to do it ..She will come again on 4th May to to my bloods and then every 2 months until the covid 19 situation improves..I’ll really miss her .. Had a call from Pharmacist at Baxter’s today to say I will be getting a delivery of off the shelf bags with my usual order to put aside just in case there are any unexpected problems with my usual delivery .. I’ve used off the shelf bags on holiday and was fine but I know many can’t tolerate them ...scary times for sure ...stay safe stay well Amy xxx
@fionascheibel977
@fionascheibel977 4 жыл бұрын
Yep. I live alone and where i live all but essential trips out of home are banned. So i cant see my mum or sister or catch up with friends. When i go to the supermarket shelves are still empty of many things and strict limits on others. My mental health had dipped to scary bad. This is a hard time for many people. I hope you can stay physically and mentally safe.
@ginaprocopio3230
@ginaprocopio3230 4 жыл бұрын
You are a great inspiration to all the young people who have a chronic illness. I hope you have a long happy life. You deserve it.
@aprilelliott9920
@aprilelliott9920 4 жыл бұрын
I'm sorry you're having such a rough time. This situation is really hard, and you're not alone. Just try to enjoy the down time, get some rest and wait for this to blow over. You got this 😘
@camouflagepeacock6414
@camouflagepeacock6414 4 жыл бұрын
Praying for ! You're a wonderful young lady. You have many people that care and pray for you!
@mallorygraves9311
@mallorygraves9311 4 жыл бұрын
I feel for you Amy. Just found out that I can’t get any of my injections for my nausea. So eating and even getting out of bed is not fun. Sending some love from Iowa and I hope it gets better for you.
@ChadDidNothingWrong
@ChadDidNothingWrong Жыл бұрын
Keep a supply of THC vape carts in case that happens. That stuff works incredibly well for nausea.
@ladygodiva1193
@ladygodiva1193 4 жыл бұрын
I know this must be so INCREDIBLY rough for you. You are so so strong. Plz stay safe! Edit: You doctor is badass!
@revamp-ideas101tv7
@revamp-ideas101tv7 4 жыл бұрын
Just a little note for you Amy, is that I Pray you will get some well deserved Sleep. What I think is happening to you is that your mind is a bit anxious with all this is going on around you and in the World today with this Covid-19 pandemic. ---- Sometimes it's nice to find a happy place or person who you enjoy talking to especially one who understands you and what you are going through. I have a friend with Lupus who lost a ton of weight. She is having similar fear during this pandemic. I talk to her often and just hearing her laugh is therapy for me and her too. Something like that helps both persons and brings your anxiety down. Music of interludes help as well , or looking at a book of Animals or plants you like. Prayers for you to be well you keep safe and take care. xoxoxo
@kristinwallace6551
@kristinwallace6551 4 жыл бұрын
Things are so hard right now! Chronic medical conditions are scary to control when you can't go to the doctor if you have an emergency. Stay safe! Sending my love!
@imogenoliver
@imogenoliver 4 жыл бұрын
I'm finding that I am very introverted so the staying at home doesn't bother me so much and most my friends don't really talk to me. Anyway but maybe easy video ideas or even something you could while face timing with friends is watching/reacting to shows movies etc, if it were on KZbin you could just do it live and not have to edit anything. Just an idea that randomly popped into my head.
@AW-si4dp
@AW-si4dp 4 жыл бұрын
I feel the same tbh
@milobar100
@milobar100 4 жыл бұрын
me too :)
@thin_white_duke1
@thin_white_duke1 4 жыл бұрын
Imogen Oliver good idea
@michellew7348
@michellew7348 4 жыл бұрын
I am exactly the same as you.
@lizzieturbeville4089
@lizzieturbeville4089 4 жыл бұрын
I agree, I have been staying at home a lot but it just hurts that I can't go see Mom etc.
@willusa2927
@willusa2927 4 жыл бұрын
Hey I struggle with stage 4 cancer but you seem to be worse off to me so you just take care of yourself and stay strong very proud of you
@thechronicillnessdiaries2773
@thechronicillnessdiaries2773 4 жыл бұрын
I am so sorry you are struggling right now. With autonomic disorder I go through periods of sleeping 12 plus hours and then being awake for 36 to 48 hrs straight. My sleep is never normal. Adrenal Cancer, type 1 diabetes, Graves disease, mast cell, POTs, Gastroparesis, cardiomyopathy, adrenal insufficiency and more have left me homebound for the past 5 years. I don't get out much so staying home during COVID19 doesn't feel much different. The hardest part is the stress of keeping myself out of the hospital during this time because of the virus. We have been on lock down for 3 weeks in my city. They just extended it for four more weeks....at least. I don't usually keep a schedule but right now I am keeping a loose schedule. When I wake up I am trying to for self-care (showering, brush teeth, lotion on my dry skin). As the day progresses I try to do some small cleaning or organization. Organizing my meds, tube feed stuff, and all my Hickman line supplies is a legit full time job. Then in the evening I watch a movie or tv series. I also like to read, play with my cats, and even play some video games on my tablet. I am enjoying this slower pace and the fact that medical offices are not constantly calling me.
@IziGryffindor
@IziGryffindor 4 жыл бұрын
You're so strong. Prayers for you xx
@olivial7777
@olivial7777 4 жыл бұрын
I feel you Amy, I take a type of chemo drug daily that makes me immunocompromised . My life is strictly animal crossing, naps, and working from home. It really wears you down. I don’t see my friends or my boyfriend. I have weekly meetings with my counsellor (virtually) that seem to help. You’re not alone in this.
@amandaanderson8254
@amandaanderson8254 4 жыл бұрын
I totally relate. Being in self isolation is really taking a toll on my mental health as well. One minute I am okay the next I am crying and don't know why. But I did do a group chat using zoom with some friends and it really helped. You could do a book suggestion video of books you've read that you really recommend. So far we have the same taste in books. Or you could do a makeup tour of the makeup you have and what your favorites are. Or how about ask on Instagram for suggestions to do to help keep you busy during self isolation.
@kimpossible7505
@kimpossible7505 4 жыл бұрын
I’m sorry Amy. This is such a difficult time, especially for those of us who fall into the high risk group. I definitely have my moments where I’m freaked out and feel like I’m suffocating. I try to keep myself distracted as much as possible. Lots of TV, board games, gardening, cooking, etc.
@corinacanizales9937
@corinacanizales9937 4 жыл бұрын
Hi Amy, I can understand what you’re going through. I have congenital heart disease, and I have to stay away From everyone too. I miss my family!!!!!! We would get together like 3-4 times a week and grill, swim, Play bingo, or other fun stuff. I need a heart and liver transplant at the present time, but its too dangerous For any kind of surgery, so my life is prolonging on meds, and the grace of God. I’m praying for you, and I love to watch you videos. Even though we have different kind of illness’s, I know Exactly where you’re coming from. You are a strong beautiful young lady, and God has your life planned out. Let’s continue on this journey of pain, discomfort, and frustration. We can do this!!!!
@rosemfflom5830
@rosemfflom5830 4 жыл бұрын
I hope you pull through this 💜💜
@miaombak655
@miaombak655 4 жыл бұрын
Hang in there sweetie. I'm in the same boat. It is hard. Even though being chronically ill and spending lot of time virtually at home, often alone is par for the course normally...this is different. To have all outside contacts down is difficult. Mine manifests occassional anxiety, often for no trigger reason, it just comes on..I hate it. I meditate daily, try to keep occupied at home etc, but my tiny appetite has virtually gone all together. I too have gastroparesis as one of my conditions, it's up and down. But I think the appetite situation atm is a stress sign, same as sleep or lack of. Also knowing you are high risk, like myself is frightening. We must be extra careful, it's essential. Know you are not alone. There are many of us out there. Keep hope and belief that this will pass and the extra effort and difficulties of fully isolating will be worth it longer term. Sending a gentle hug. xx
@jassj4859
@jassj4859 4 жыл бұрын
Mia Ombak I do not suffer from a chronic illness myself, but I really love your motivating words
@justanothertypicalartist3884
@justanothertypicalartist3884 4 жыл бұрын
A video one how you prepped for and took/take care of your tattoos and piercings. And how you get around having to take your piercings out for procedures and imaging, and how you tell doctors you can’t take them out in a way that causes them to understand that. Those videos would be so incredibly helpful
@gabigayko1863
@gabigayko1863 4 жыл бұрын
Please take it easy, it was just so nice to see your face. Let us know how you are doing when you can and that is enough for me, not that I wouldn’t mind more you. Just take and we will make it through.
@chrisbilnski4765
@chrisbilnski4765 4 жыл бұрын
Give us a tour of your animal crossing town
@hannahleigh2899
@hannahleigh2899 4 жыл бұрын
Chris Bilnski yes please!
@michellebarak3873
@michellebarak3873 4 жыл бұрын
Oh Amy! Same stuff going on here in Nebraska. I am immune compromised also due to my RA. So I've been isolated pretty much for weeks, except to go for groceries a few times with my husband. He has to help me, I can't physically do it on my own. Here they are encouraging people to at least go outside in their yards for fresh air or take a drive to break up the monotony. Being isolated in the same surroundings can drive you literally crazy! Still going to my Rheumatology appointments with precautions. Mask and hand sanitizer in tow. They are screening everyone very carefully at the entrance of the office, due to a majority of us being compromised. Thoughts to you, and hope we get over this sooner than later! By the way I never sleep either, you aren't alone.🥴
@Coco-yi2ct
@Coco-yi2ct 4 жыл бұрын
I am wishing you all the best, please stay safe. I would enjoy a video about your island on animal crossing !! :)
@Gloomuraii39
@Gloomuraii39 4 жыл бұрын
Not getting enough sleep is bad for you. I've been there, sleeping 1-3 hours of sleep a week. On top of that I am immunocompromised. I have been sick my entire life, I hope that you can get more sleep and stay safe Amy!
@maryannecross4220
@maryannecross4220 4 жыл бұрын
Hi sweetie, it’s bloody horrible isn’t it! I’m 59( yesterday😁) and also have health issues. I have not been out for a month and have been told at least 2 months more. I hate it, I’m bored, I’m fed up, nothing on the tv interests me! I’m just in a real funk. I’m not really complaining just letting you know your not on your own. Keep safe and well 😘🌈
@melissawalker3874
@melissawalker3874 4 жыл бұрын
I totally understand. I'm in kidney failure and I used to have to go in once a week to pick up my meds. Now my Dr has a service drop my pills at my front door. I also can't see my Mum because she's been going to the shops. Only thing keeping me distracted is doing silly crafts and playing with my cats. 16 days down, 26 more to go, I hope. Good luck, and stay safe. Hopefully this world altering crisis ends soon
@jennjeffs4893
@jennjeffs4893 4 жыл бұрын
I understand exactly what you're going through!! I too have been cut off from the world...I haven't seen my parents since Christmas. I worry so much for them. I can't sleep at all... STAY STRONG BEAUTIFUL!! YOU ARE NOT ALONE!! Much Love and invisible hugs from the USA!!
@bellaboo5429
@bellaboo5429 4 жыл бұрын
I live in Perth too & I’m also struggling with isolation. Because I work in an essential job, I’m working full time at home, plus home schooling, plus trying to keep myself connected to my family & friends. It’s such a crazy time to be alive & I feel so drained & empty. I just want to take my kiddo to the park, to see friends & colleagues.
@justynawelman8381
@justynawelman8381 4 жыл бұрын
Maybe talk about how your illnesses affected your life overall. Like education, friends, moving from the UK to Australia with your illnesses, and how to affects your everyday life, what chores you can do for example. And what's your day-to-day life? Do you only vlog and take care of your health? You could also do a whole video about your health journey from the beginning to today for people who don't know you and are new to your channel. They may be confused about why you had a feeding tube, and then now you have a hickman line. Also, you could explain how exactly it works (medically), how it goes into your heart and bypasses your digestive system.
@davidhaney1394
@davidhaney1394 4 жыл бұрын
Same here , I have bipolar disorder and this virus has me climbing the walls . Not looking like its going to be ending anytime soon too . Hope you stay safe hunni xx . much love . x
@aliciamiller2419
@aliciamiller2419 4 жыл бұрын
You are so amazing! I've been watching you for the past 2 years on and off and I'm glad you posted a video for an update about yourself. This is a very crazy time for everyone. I have three kids and my niece so it's been so difficult taking care of them and doing all their school plus I am terminally ill from polycystic kidneys and other health problems. You give me the courage to fight and try to look for the better things in life. Stay safe
@rachelgee7894
@rachelgee7894 4 жыл бұрын
I'd love an updated bullet journal showing if you've got updates!
@arn03
@arn03 4 жыл бұрын
You're strong and inspirational Amy. I wish you the best.
@benedettocalabrese6492
@benedettocalabrese6492 4 жыл бұрын
Hey Amy, be strong! It's okay to feel despondent at the moment. Just think of how many people are working non-stop to make sure that everybody, not just the healthy or the young, is okay. You won't be left behind, you're part of a beautiful pack. It's now a matter of resistance, the virus won't be here for long if we keep fighting. Please feel free to reach out to us in any way to express frustration, anxiety or even just to talk. Love ya xx
@maddykrantz
@maddykrantz 4 жыл бұрын
I hope you stay safe! You are the strongest and toughest person I’ve seen on YT and you continue to amaze me and inspire me with every single video you post.
@GoodMusicManiac999
@GoodMusicManiac999 4 жыл бұрын
Quarantine is taking a toll on us all. I am a very homebody person so I'm kind of comfortable with it, but now I'm starting to feel a bit nervous too. I miss going out for my usual walk and enjoy the beauty of spring, my choir sessions (we tried to rehearse via Skype but Internet connections here weren't helpful), even going shopping for normal household products in the specialized stores (we can't exit town limits without a reasonable cause: they say the local grocery shop would suffice. But everything's just not available there). I'm spending my time transcribing lots of accumulated KZbin recipes, exercising my vocal chords, making cakes and biscuits, reading and caring for my cats, and walking across the whole house. Let's really hope this evil monster will be defeated soon, it's putting too much stress and worries over my shoulders. Let's make it a true Resurrection. Happy Easter and take care Amy 💝💝💝💝
@YaoiScene
@YaoiScene 4 жыл бұрын
I worry about you, I am glad you posted! I have chronic disease but I've had to play fast n loose with covid cuz I am a single mom w/kids & still have to go out to shop and whatnot. Glad to be safe working from home but even deliveries gotta be sanitized I guess. What a rotten time we are in!
@norajung4513
@norajung4513 4 жыл бұрын
So sorry you are struggling. This is a crazy situation we are in. For me I am still working because I am considered essential. I work at Sam's so they are open. We do as much as we can to protect ourselves, but it is getting kind of scary. Please try to take care of yourself. Maybe see if you can get some puzzles or start a craft to distract yourself.
@ronnimesser
@ronnimesser 4 жыл бұрын
This absolutely sucks! I hate being on lockdown, but I have no choice. I am going on holiday at the end of the month for a month. The first 14 days will be under self isolation and I hope by the end of that things will be getting back to normal. Keep your head up - this is only temporary ☺️
@elainewarner6911
@elainewarner6911 4 жыл бұрын
Amy Lee you are never alone. All of us are lifting you up in our thoughts and in my prayer to God. This too will pass, lift up your beautiful eyes and know we are with you.
@89mikie
@89mikie 4 жыл бұрын
You are truly an amazing person!! I’m sorry you’re struggling and I hope things get better for you soon! ❤️❤️❤️
@jenilocke8255
@jenilocke8255 4 жыл бұрын
You are an amazingly strong (and beautiful) young woman. I had never heard of EDS even though I'm a nurse so thankyou for educating me (I watched quite a few of your vids). You really impressed me with your grace, strength and humour. Stay safe physically and emotionally in these difficult times. Virtual hugs 🤗
@moonylanatm_
@moonylanatm_ 4 жыл бұрын
Honestly I hope the situation change for the better and I hope u feel better soon 🙏
@AW-si4dp
@AW-si4dp 4 жыл бұрын
So good to see you Amy in these crazy times, All the best for you and your whole family! ❤️❤️❤️
@Dreaming_Joy
@Dreaming_Joy 4 жыл бұрын
Nope u not going anywhere far from us. M praying for you. U r so brave u know dat ryt. Much much power to you ❤️
@sarahnash7174
@sarahnash7174 4 жыл бұрын
Believe you me I feel you! Sending you love during this horrible time 💜💜💜
@starryxblue
@starryxblue 4 жыл бұрын
Stay strong Amy! It feels neverending but I promise it WILL end and you'll see all your loved ones and have the best time of your life :) xxx
@cherylh2021
@cherylh2021 4 жыл бұрын
I’m sorry to hear that you are struggling during these difficult times, stay strong! If people all over the world do their part, this will be over soon hopefully! I’m from Canada, and am also immune-compromised, I also am on 2 strong immuno-suppressant medications. I work in healthcare and our government is not allowing doctors to put “front-line essential” workers off work during this time just because they are immune-compromised, regardless of the risk to their health.
@samhartford8388
@samhartford8388 4 жыл бұрын
Oh honey. Stay strong. I've got a friend with cancer, renal deficiency, likely heart insufficiency, QT-syndrome and trauma-related dissociative syndrome and with covid-19 at home in complete isolation dealing with the fear of death. This is a stealthy enemy. Be real careful.
@FrankieFrankenstein7
@FrankieFrankenstein7 3 жыл бұрын
Watching this now Is so sad since now knowing she has passed away 😭.
@Omenie_
@Omenie_ 4 жыл бұрын
I feel you. I am not even immunocompromised and can't go out (it's heavily restriced where I am) and my family is over 100km away. Also, my grandpa has just had a kidney transplant on the weekend, so I have to worry about him as well ... it's not easy. I am just thankful that I can still work and have some contact with people. Stay safe Amy!
@erins4183
@erins4183 4 жыл бұрын
Just want to send you hugs xx I’m so sorry you’re struggling with all this. As hard as it is, you’re doing the right thing hun (we all are). All we can do is hang in there and get through this, let yourself feel whatever it is you feel and know that you aren’t alone 💐💐
@angelleadastray
@angelleadastray 4 жыл бұрын
Love you so much Amy!!! You are one of the most genuine people on KZbin!!! 💖
@bradmoyer9737
@bradmoyer9737 4 жыл бұрын
As a 69 year old in isolation with his 96 year old father and whose 72 year old brother is our point of contact with the outside world, please understand that I can empathize with you. I was so thankful to see this video and know that you are still alive, please keep the faith and look forward to the day you Tom and the kids will be sitting around the living room of your new home reminiscing about the “Difficult Times” in the past. God bless and keep your chin up. 🙏
@1jazzyphae
@1jazzyphae 4 жыл бұрын
Just found out yesterday my aunt is in an induced coma because of the virus. Today they want to see if she cam breathe on her own. If she doesn't I don't know what's going to happen.
@lisawinters4681
@lisawinters4681 4 жыл бұрын
I am so sorry to here this. I will keep your family in my prayers... 🙏🙏🙏
@lizzieturbeville4089
@lizzieturbeville4089 4 жыл бұрын
Oh no! I'll be praying for you!
@1jazzyphae
@1jazzyphae 4 жыл бұрын
@@lisawinters4681 thank you so much
@1jazzyphae
@1jazzyphae 4 жыл бұрын
@@lizzieturbeville4089 thank you💜💜💜
@JeannieShene
@JeannieShene 4 жыл бұрын
Prayers and love.
@BabvBlues
@BabvBlues 4 жыл бұрын
hope u are doing better!
@shantel4815
@shantel4815 3 жыл бұрын
😔
@samhartford8677
@samhartford8677 3 жыл бұрын
No, unfortunately not. She died on 1st of April 2021.
@noodle2269
@noodle2269 3 жыл бұрын
@@samhartford8677 this comment is a year old
@beeintelligent3259
@beeintelligent3259 4 жыл бұрын
Please keep in mind, I'm quarantined at home and I live alone. I'm high risk due to my diagnoses. So I don't even have another human to relate too. Keep your chin up and appreciate what you do have not what you don't have.
@markanthony6152
@markanthony6152 3 жыл бұрын
God has been keeping us all
@markanthony6152
@markanthony6152 3 жыл бұрын
Hi bee, how are you?
@AmyAndThePup
@AmyAndThePup 4 жыл бұрын
Sending hugs. I'm so sorry. I know how hard this is... but for you it's that much worse. I have so much compassion for you already, but this ... this virus needs to die off already... I hope you can video chat with your family. I know it's not the same at all, and might even make missing them worse. Try to hang on. Be safe. I'm so glad Tom is handling the meds that way, and that you'll still be able to have phone check-ins with your doctor. It's sad not knowing when/if you'll see them again. My therapist is in a higher risk age range, and is immunocompromised due to several health problems. It's not good. It's enough to make a person lose their head for a bit.
@eduardopadilla5505
@eduardopadilla5505 4 жыл бұрын
Keep going your way Amy, never stop no matter what!! find ways to make your life more easy to live it! :D Blessings to you.
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