Ehlers Danlos Syndrome Awareness Month - Living With Ehlers Danlos Syndrome EDS - Part 1

[@NoSleepFromBrooklynAdventures]

Hi Fellow KZbinr. I have EDS too. I'm 50 and it sure does cause a lot of issues. I've gotten used to being in bed. I like to draw zentangle and I'm playing with watercolors now. I save all my energy to participate with my daughter when she gets home from school. Now we're entering summer break in NYC and I'm panicking about how I'll be able to keep up this summer. I'm wishing the best for you. Do you think your vision is from dry eyes? Mine is going too and my dr thinks that is a big part of it. She had me do a stem cell lens in each eye for several days to help repair the dry corneas. It helped briefly...it may be worth looking into, my insurance covered it.

[@KevinGrahamArt]

Sorry I didn’t respond sooner. No my eyes aren’t from dry eyes. They still don’t know what causing it. My one eye has gone completely blind a few times now. Freaks me out. So scared of going blind. I haven’t been posting a ton of stuff cause my Ehlers etc has been kicking my butt. It’s so depressing