Epilepsy: Frequent Q&A

Here is the most requested video from my last video! I hope you enjoy!
Please find more information here: www.epilepsy.org.uk

[@jordandavis3434]

I have absence seizures too. I never hear people talk about these, I wish they were discussed more because people have such a hard time understanding that not all seizures are like the grand mals they are on TV. So I just really really appreciate you making this video!! It’s nice to know I’m not alone in what I’m going through.

[@DummyPages]

I'd love to see day in the life videos from you! Examples of your typical days so we could see how you deal with your epilepsy in every day situations. ☺️

[@mikeykavanagh6058]

I absolutely love the fact that you have created this channel as i have had epilepsy from the age of 2-6 and then I grew out of it and then I was diagnosed again at 11 and I have blank abscesses as well as seizures. I would just like to say thanks for making people aware.

[@tegteolmeda768]

My daughter is 11 and gets them..it's so sad to see her go through that and not be able to help!!she's been having them since she was 4 that I catch on to it..You hit Everything on the spot!! Praying for you as well..GREAT VIDEO:)..

[@MyEpilepsyStoryBrogan]

tegte olmeda Thank you so much! X

[@reuben8734]

I love this channel as a teenager with epilepsy I have grown up having different seizures at the moment I have abscesses And I find it comforting to see that there is someone like me out there with epilepsy to

[@MyEpilepsyStoryBrogan]

ReubenCvloggs wow thank you so much! And i know what your feeling and it definately needs more awareness 🙂

[@reuben8734]

MyEpilepsyStory Brogan yeah through my primary I got bullied and now as a year 10 some teachers actually bully me about it a d just don't understand I would love to raise awareness but I genuinely just can't as im the only 1 in my school who is epileptic 😞😔

[@ailsa9136]

ReubenCvloggs You should report the teachers or something, they shouldn't be able to do that, I feel so sorry for you 😭😭

[@reuben8734]

Ailsa Thompson I have but the school have done nothing about it

[@AA-rc1ny]

Videos like these accomplish wonders for Epileptics (me included)...wonders that even doctors could not achieve. It creates a sense of a safe, close-knit community. Keep up the great work! #MyEpilpesyStory Brogan @MyEpilpesyStory Brogan

[@tiffanyheilman6119]

Thank you for sharing your story. My 6yr old daughter is currently having a 24hr EEG done to see if she's having more absence seizures. The video you posted while having absence seizures made me start to cry because it was exactly how my daughter is :/ I feel guilty for all the times I've felt frustrated with her when she's tried to tell me a story or answer a question I've asked and it seemed like she just wasn't focused and taking forever to get it out :(

[@kirklauermann7651]

Tiffany this is exactly how my wife and I felt about our daughter. We would get so frustrated with our daughter because it would take so long for her to articulate her words.

[@nikih3434]

Thank you for posting both of your videos, my daughter's absences seizures seem to have returned, she's still too young to understand. I am about to show your first video to her teachers. X

[@top1lad760]

Diagnosed with Gelastic Seizures after cutting my tongue two weeks ago. On a KZbin marathon watching people with epilepsy and also how they feel about their epilepsy. Keep up the vids, you’re doing great.

[@PeacchEdits]

Hi, love the video! :) I was just diagnosed with epilepsy 2 weeks ago after suffering 4 or 5 tonic seizures and two tonic-clonic seizures in the span of 2 days. Needless to say I'm pretty confused at the moment but I have found there is a lot of information out there about epilepsy and I am am grateful for videos such as this one as they help me realise that I'm not alone in this struggle.

[@MiaBunnyStudyRoom]

Thank you for sharing. This really helped my current case with a child with absence seizure. Hope you a Merry Christmas and a Happy New Year.

[@DoomstaKurLz187]

Love your videos. I started having absence seizures a couple years ago, either shortly before or shortly after my 31st birthday. Finally figured out I was having them when I had one and fell in the kitchen and was brought to hospital, before that friends, family and my bosses thought I was day dreaming or spacing out all the time.

[@MyEpilepsyStoryBrogan]

DoomstaKurLz187 Thank you! And yes thats the thing with absences they are so difficult to diagnose as they look so like daydreaming!

[@odayin_gold]

:O Mindblown! I just found your videos and I relate so much! I've had these short episodes of "not thinking", as I call it, for as long as I can remember (I am 21 now). I would just suddenly stop whatever I was doing, and simply don't think for up to a minute. It never really bothered me, a little annoying sometimes, but also kind of funny. It has become less as well. Is it possible that I am having abscense seizures? Crazy.

[@theCidisIn]

I've been curious about seizures and came across these vids. The sympathy is palpable. Keep carrying on. Sending good vibes your way 🙏

[@theCidisIn]

I'd love to see more about the Neuro chemistry of these because I love that kinda stuff. Neuro chemistry, I mean.

[@Jeremy_95531]

Thank you for your videos. We just found out today that our 18 year old daughter is having frequent absence seizures. Been having Grand mall seizures for a couple of years now. Now I understand why she seems kind of slow and confused so often.

[@smythie27]

As usual Brogan you summed up the effects of partial seizures perfectly. I have always had difficulty trying to explain those around me what the effects of epilepsy has on especially after an partial seizure episode. Some times it may take me 30 minutes to recover other times it may take be considerably longer. Thank you for explaining the effects of epilepsy. Importantly, it really doesn't prevent you doing most normal activities, some people though, through miss understanding want to wrap you up in a cotton ball.

[@kirklauermann7651]

I'm so grateful for your first and second video. Had it not been for your first video I would have written off my daughter having them bc hers are not anything like other videos i've researched. She only has hers when she talks and conversations are difficult for her. Looses train of thought it is so hard for her to recall words. It is because of your video that we are going to have our daughter tested tomorrow for her EEG. She is 12 yrs old. Can you describe what school was like for you? My daughter is also Dyslexic that is why I ask. Her neuro psychologist said that she scored off the charts HIGH (genius) during a portion of her IQ testing but then dropped 70 points all of sudden suggested we have her tested for seizures. I was shocked thought no way I've never seen her have one. Then I came across your video and thought that is her that is what she does! Again thank you so much!

[@zivotsbohomWASABI]

how ia your daughter doing? was she diagnosed with epi?

[@gabbygrace5524]

My first one happened in 8th grade and I had a horrible headache and put my head down but I don’t remember falling asleep.my principle came in and thought I was being defiance and yelled at me to get up .they told me they shook my body and yelled at me to get up and when 10 mins passed they still didn’t call 911 .around 20 mins later I woke up white as paper and was very confused but overwhelmed bc everyone was telling me I was in trouble for ‘ignoring ‘ her .i called my mom and I ended up having a panic attack then went to the hospital and a neurologist.it happened again while I was talking to my mom and my doctor told me it was absentee seizure and lately it’s been happing more and more .my sister asked me where somthing was and I knew the answer and tried to tell her but I felt like I was blocked and didn’t know how to get the words out my mouth .nobody knows it is happening a lot and even if they do they just tell me I’m forgetful but it’s hard because I know the answer but when I want to get the words out my mouth my mind goes black and I start to studder it and is scary.im now 16 and this has been happening for around 4ish years

[@pedromayorga]

Hi... I just watched the two videos on your channel and I found it pretty interesting... why don't you make vlogs about your life in general?

[@MyEpilepsyStoryBrogan]

Pedro Mayorga thank you 🙂 and What sort of vlog would you like to see? 😎

[@marijuanaknowsomething6743]

Pedro Mayorga I think she should too! Her videos were interesting.

[@GandharaBlogspotCa]

About boys, living in your part of UK, and nice places to visit in your town.

[@neural_storm166]

​@@MyEpilepsyStoryBrogan I agree with him you should make a vlog, ive had epilepsy too for the last 11 years, I have different types of seizures then you ,but your posts are great,pls make a vlog for people like you and me

[@markuriarte777]

Can you explain what an absence seizure feels like? I get something that makes me go into a blank stare and my head is up on the air but my brain feels like blood is going slowly through my brain and a twitchy feeling... I have yet to find answers.. please let me know. I also get eye twitches and feel like I can’t look away from what I’m staring at and get confused and my words get jumbled..

[@Elkat196]

For those who are still confused about the difference in the seizure and day dreaming. During a day dream, for me at least, you are aware of what you’re thinking and your imagination, while in a seizure isn’t something you can tell happened; you don’t even know you’ve had one yourself. I can only explain this by saying imagine you’re a tv. The tv pauses, but everything on the screen is still on. When you unpause the screen, though, everything continues like nothing ever happened.

[@scottyvenable1931]

My sister gets them unfortunatly. They are usually triggered by sudden loud noises, beeps, flashing lights and mostly sirens (like ambulance). If she's sitting down, she will just zone out and not move a muscle, her eyes don't even move she will just stare their aimlessly until her service dog comes up to her and "snaps her out of it" as we call it. If she's standing up and she hears or sees the triggers, she will fall DEAD WEIGHT onto the ground until her service dog comes. It's been going on for a few years now and the doctors still don't know exactly what it is or how it works. It seems like an absence but is a lot more robotic and cryptic being as she looks like her brain just shut down completely. Anyone else have the same or know of something similar?

[@kittenlover9270]

I can relate I have epilepsy and hydrocephalus i have had it since I was 8

[@gasmaskboi19371945]

I think I've been having absence seizures recently. I was epileptic as a kid, but I was too young to remember the experience. To describe my feelings of what's been happening recently: I sort of freeze, I'm still "conscious", but not aware... if that makes sense? Like I can still see and hear everything, but I can't think, and I'm just frozen. Everything also feels sort of slowed down and dim. I feel completely drained and weak before and after this happens as well.

[@Carlyfraser]

This is exactly how I feel. It’s like a buffering video.

[@anonb4632]

I've definitely seen people have petit mal. One guy I used to go to the pub with would occasionally blank out and stare into space for ten seconds or so. I've never had grand mal, but I do wonder if I have had petit mal in the past. I used to get called space cadet myself when I started out at secondary school. I did daydream sometimes, but I wonder if I had this as well. My teachers would complain I wasn't paying attention to my mum, but I got fairly good marks (most of the time). I was interested to read it's quite common amongst childrem and adolescents. I reckon absence seizures are probably more common than realised.

[@GandharaBlogspotCa]

Absence seizures would be missed because they do look like forgetfulness and willfulness when they aren't under the person's control.

[@lithiumkid]

@@GandharaBlogspotCa i don’t think they look like that, people are just quick to blame you for your experiences and label anything odd or inconvenient to them as intentional behavior & character flaws (laziness, not caring about school, rudeness, etc).

[@fallingnutria89fletcher79]

I learnt so much from this. Thank you

[@chrisclose7793]

my fiancee suffers from grand mau epilepsy if thats how its pronounced and when she has a seizure i comfort her when she comes round as she is completely frightened when she comes round

[@halle5085]

Thank you so much for the info and the great video! I'd love to learn more about your life and how you think others should approach someone with epilepsy. Is there anything we can do to help or make your life easier?

[@JustJ25]

This gonna be a long comment so just don't read mine, I've had seizures since I was 8 or 9 I've had the full spectrum of epilepsy I now have grand mal seizures I can tell you all I lose my memory when an episode is happing I flail my arms everything locks up I choked on my tough every time, when it's done I get into an extreme vomiting session, I puked blood once. I can feel them coming it's a sense of panic or rethinking the same thing over and over again, you can dream and see it happing, well in my case the thing that sets me off is pure lights not sleeping more specially the part of sleep where you're going to sleep and awake and waking up but still asleep I tried many pills and bearly getting on to a medication that works for me. What I'm trying to say is if you ever see someone having one of these seziers hold them but have them on there side I freak out less when some dose this for me if you tell the person everything is going to be ok or is ok they will come down faster and if you can't, put something under there head so they don't get hurt anymore but always have them on their side. It's goddam important to put them on their side, I'll let you know some people treat us differently don't do that we just do this at times. I want to also address this a lot of people say in my case or this what happens for me example one person can have 200 seizes a day and be on the same medication as a person with grand mal what's important here is there's the right amount of the medication for each person that's all I have to say so far if anyone has any questions feel free

[@spike84able]

Just watched. Do you ever feel like you drop things alot? I feel my fine motor skills are messed with by my epilepsy.

[@Sab.86]

10 year this year I’ve had epilepsy and I’m not allowed to drive too I’m now 25

[@IMCproductions]

My god you’re an amazing person

[@emilymoseley7054]

I was 10 when I first had a seizure. It’s the same type of seizures that you have. I got mine from when I went to the dentist and they gave me too much gas. I found out because I had one in school I was completely out of it and I had written on my paper that my name was issabela (my name is Emily) and I got all the questions wrong... the teacher quickly noticed something was wrong and sent me to the nurse. The nurse called home and I went home. The rest is a blur but I was told when I got home I undressed and walked around the house... my dad took me to the hospital where I stayed for 3 days but it felt like forever. I can’t remember any of it but I was told I was violent.

[@lithiumkid]

wait, you had a grand mal seizure or an absence seizure?

[@GandharaBlogspotCa]

If CBD were available, would you try it to control your seizures?

[@lithiumkid]

i believe the THC is what helps with seizures and epilepsy. CBD isn’t as effective for that, but it’s good for plenty of other conditions.

[@Marco-nx5tj]

For some reason i did not get a notification of your video

[@justlucky683]

Gws.. i like ur videos. 🥰 And u ar so beautiful.

[@21kirsty21]

I got diagnosed just short of 2 years ago and I’m nearly 30 I’m on keppra which makes me angry clobazam and tegretol, I’m having a lot of drop seizures no auras or warnings just wake up on the floor drooling sometimes if it’s a bad one I’ve wet myself, I may need a VNS i

[@HiMyNameIsLoay]

How are you doing now?

[@good-bye-anxiety9899]

Do you have A blog

[@lowlifelowriding]

It’s so hard my sister I think is having absent seizures... we are watching tv or she’s eating and she stares up and to the left often like every couple of seconds,, I would ask her something and she would response .. sometime she would be staring and off and then start smiling is this absent seizures ? We are taking her to the doctor tomorrow... she actually walked out of school and got lost today and we had family and cops looking for her

[@catlady7183]

What do these seizures feel like?? Do you lose comciousness??

[@SkylordOzer]

Hi there! I'm 24 and had 8 tonic-clonic seizures last year as well as many focal seizures since age 16... I would be interested to know if you are on any medication at all? Any birth control or any thing other than your anti-epileptics. Thanks in advance! A xx

[@Carlyfraser]

Hello! My doctor and parents have been talking about me maybe having absences. I’m going to have a sleep deprived eeg in a little bit and I wanna ask, have you ever had one of these?

[@ti_1776]

My daughter has them and is now 12 she was diagnosed at the age of 5 what advice can you give her about coping with them and did the doctors ever tell you that they will go away.

[@marlenl7662]

My family has had a history of epilepsy. I had a seizure at 7 but since then it’s been only chronic migraines. Could my epilepsy come back. 14 btw

[@erinhicks9156]

Marlen L if you only ever had one seizure and tested negative on an ecg then it’s probably not going to come back. Not a doctor though

[@GandharaBlogspotCa]

eeg for seizures, ecg for heart.

[@sofka2001]

Take care :)

[@booalvarez2389]

It burns mine so bad i ta it with keppra as well

[@booalvarez2389]

When you tryed ethosuximide did it burn ur stomach

[@IMCproductions]

A beautiful woman

[@sofka2001]

Gosh you are beautiful It's kinda dumb to comment of people's physic but you are so cute. Like a basket of cherry and a tall glass of milk Cheers from Bruxelles