Epilepsy in schools: what does a myoclonic seizure look like?

[@sockpuppetbitme]

Wow, i got screamed at for 'being on drugs' and booted out of the classroom. I literally dropped out of yr11 feeling ashamed of myself. If someone had just asked if I was OK I might have ended up finding some help from a doctor or something, rather than being a loner for another 15 years. That would have been so cool to be treated with some kindness and help. I can only imagine how good that would have felt for the guy. You can literally save a person from years of shame and existential turmoil by just assisting when they are in a trouble. These 2 people are Angels from heaven.

[@ContentFall757Gaming]

I'm terribly sorry to hear what you went through. If you'd ever like somebody to speak to, I'm always here for you. I wish you all the very best :)

[@hambone2740]

@Cody N cool of y'all to have some empathy for him and what he experienced. The world needs a lot more empathetic people!

[@heathermitchell9967]

I started to say, that is not how it is in America lol People just stare and walk over you. Blame you for being a distraction in class. Would be nice to have someone care.

[@mom4u412012]

Dec 1st. I tried a small piece of marijuana laced brownies. And I started having these seizures and uncontrollable vomiting. Was accused in the er. After I called 911. Of intentionally hitting my arm on the bed rail. Even medical staff can be clueless or intentionally blind

[@Saffie15]

Ye

[@Will-st1pg]

I came to this video seeking knowledge and left with “ya muppet” so I think it’s been a good day

[@michellenegron313]

Lmao muppet ....Poor guy must have been dozing off...I get it tho (hate it when that happens...it makes me self conscious but what can u do 🤷🏻‍♀️ no one is perfect)...surprised they didn't show him repeatedly dropping/throwing stuff in his hand (involuntary) as well...lol so many ppl have gotten mad at me because they thought I threw something at them intentionally. I broke a lot of glass bottles as a kid....not fun...i was called clumsy and careless. There was one unfortunate time when I chucked my friends brand new digital camera at her as I tried to take a picture...that was embarrassing....I accidentally hit her w it when that happened too...😬

[@dahkari2003]

my son deals with this. his looks almost identical. he is currently in keppra. thank you for this. in trying to get him to a point where he understand that other people go through this and that he is not alone.

[@isaacxvx]

KnowtoriousKYM has your son had any heart surgery or any birth defect?

[@wellhelltherefellwhuman4637]

Omg I'm on Keppra! I also have these, but the Keppra doesn't stop themfor me. Tell your son that there are many people who have epilepsy, and even people without epilepsy can still experience these seizures. They are annoying, but once the dosages are right for him, things will get much better!💜

[@danielledewitt1]

KnowtoriousKYM Keppra doesn’t work.

[@annastaisyamason6109]

@@danielledewitt1 ur right, it doesn't. I have Grand-Mal, absent, and focal seizures. And I've been on Keppra, it's made me very violent. I'm now on Clorazepate.

[@danielledewitt1]

Annastaisya Mason I’m now on briviact since about 7 days ago.

[@samd8018]

I suffer with this. It starts off a mild limb shake in addition to a half-second loss of conscious, depending if I’m in a relaxed environment it can go away. Sadly if I’m somewhere in a crowd or uncomfortable it can turn into a full seizure. Edit: I believe epilepsy needs more awareness as it isn’t just a straight seizure brought on by flashing lights, it can be brought on by many things in addition to symptoms showing (the twitches as an example).

[@alondraacosta-mora6504]

hey can this seizure be cured? my head twitches a little like that guy but not that extreme.

[@samd8018]

@@alondraacosta-mora6504 Have you been diagnosed and seen a doctor? I’m not a doctor so I can’t say whether you’ll be cured.

[@Chris_Travis_Scott_Joplin]

Man I would always shake and drop shit like my soap or my scrubber in the shower and it would piss me off so hard lmao. And this was before I knew it was seizures. Now I’ll just get out of the shower as soon as I have 1

[@samd8018]

@@Chris_Travis_Scott_Joplin I'm sorry to hear man, if it's any help I usually lay down or sit down when showering.

[@tammylaronde8593]

@@alondraacosta-mora6504 There's no cure for any form of epilepsy. Medication and management are the strategies. Some epileptics get some relief from ketogenic diets. If you are not diagnosed, see a neurologist first.

[@mgthebee7043]

I've watched like 6 of these videos and I have no reason to I just could

[@Joy-do5yt]

Mee too

[@rachel_a_whisman17]

I have epilepsy, I have a reason to watch these

[@thehourlycookie1123]

Bruh my teacher would be like “DUDE KNOCK IT OFF!!”

[@roradye]

I'm sorry that happens to you. Teachers should be more educated about this so they can help students instead of being so insensitive.

[@PhasmalForge]

@@scrollingthecomments.4043 I failed a written part of my HSC due to a poorly timed seizure ended up with a 0 for a whole written section the school I was at was useless

[@jennastange7561]

Seizures no fun. I feel the same way

[@mytwentyeeonechemicalroman2401]

'The tail you muppet' honestly something I'd say

[@alanlowry2794]

Why are people disliking the video because this is showing how to save lives

[@wellhelltherefellwhuman4637]

.....it's not

[@blessingofori]

Well, hellø there, felløw human! Actually yes because Cameron Boyce died from this

[@carysrose819]

Blessing Ofori yes, but that would have been a tonic-clonic seizure.

[@sexysteve4487]

Bruh thats not how it works

[@spicycrocss]

@@blessingofori Myoclonic seizures aren't life threatening, they're just annoying.

[@Lunaliladee]

This has happened to me several times in the last 4 years. I was diagnosed with vertigo, but I don't think vertigo causes muscle spasms/ body convulsions that I have. This is a very good example of what happens to me, so I think I need to be tested.

[@Emilypwilson]

any updates?

[@Lunaliladee]

I wasn't treated seriously😅 my parents arent the best believers or listeners. The symptoms I had haven't happened at all this year, so I can only hope it got better on its own

[@That1AwkwardDude]

@@Lunaliladee Just keep up with it, & monitor yourself! See if you're able to just go to a doctor without talking to your parents, that is extremely important to get tested out, which I'm sure you know! I do hope it works out for you! One of my best friends has grand mal seizures (dropping to the ground & full on body convulsions..) & if it lasts more than 5 minutes, it can do serious damage for him, & could potentially be fatal..

[@Lunaliladee]

Yeah I understand, thank you for the info! Fortunately, it hasn't happened to me since, and I am in much better health. I still get vertigo, (i dont take medication, but when i do, it does go away for a long while)but no shaking with it. Hopefully I'm fine now, but if something similar ever happens again I will try to get treated

[@That1AwkwardDude]

@@Lunaliladee I'm glad to hear that!! 🤗 Hopefully they stay gone!!!

[@tobiaslueks8374]

I’ve always wanted to know what I look like while having a seizure

[@flamingoonfleek]

Tobias Lueks it’s scary. Half of my family are epileptic

[@felicityfoster8105]

Can’t u get a family member to take video to show u

[@spicycrocss]

I'm so tempted to video myself the next time I have a seizure but I'm scared that I'll just chuck my phone out of my hands trying to set it up-

[@nefelibata636]

same, but my friend told me what the tonic-clonic one looked like , and i think i'll pass on hearing about how bad i was. am so glad i haven't had them, a full-on one, in ages, thank goodness, just myoclonic and atomic ones. i meant _atonic!!!_

[@kristinwiebold2433]

I sort of wanted to know too but I don't think any of my seizures look what what they displayed.

[@gmehaywood4010]

This is exactly what I have- sometimes it’s just one and other times it’s around 4-5 times. I’ve been getting them since I was 12/13 and particularly happens when there’s a flashing light. I got diagnosed 3 days ago at age 18

[@thesecretnewbie8872]

I have this happen but I’m trying to go to a neurologist. I drop pencils and stuff in the classroom and earlier today I dropped some mushrooms on the floor for my pizza 😔 I’m 21 and it’s been happening since I was 13/14. I never really thought much about it until by mother saw me have a contraction one night and was like WTF was that

[@wavxy7454]

@@thesecretnewbie8872 yup neglect, it’s a hard thing parents always say I’m just having anxiety attacks. But no my muscles feel awful my eyes hurt, I’m dropping stuff randomly forget shi, shake drool, stop breathing, and have lost my mind and feel like I’m constantly falling down a cliff, doctors even said it was generalized anxiety disorder. But I don’t even think it was that I don’t even know where I am. Still and it’s been over a month

[@owenbarrett8815]

The boys acting is amazing in this

[@chandlerM1999]

Thank you for sharing this video. I’m currently a Soldier in the United States Army. I experienced a severe tonic clonic seizure in the barracks. I’ve been experiencing a muscle spasms/jerking in my legs that last for 1-2 seconds since my tonic clonic seizure. I’m currently getting in the process of discharged from the Army.

[@naomiruth8030]

I’m so sorry to hear you are in the process of being discharged. I really hope you get the help and support you need in order to recover… and that the next chapter in your life still brings you fulfilment and happiness!

[@chandlerM1999]

@@naomiruth8030 Thank you very much for your support.

[@ravichebrolu1180]

@@chandlerM1999 how are you now sir..?? What doctors told?? How long you should be on medication??

[@Moes_Prep_and_Tech]

I wanted to Join the Military when I was just out of high school, seizures was one of the disqualifications, along being color blind

[@trevorhudson3357]

I started having myoclonic and frontal temporal seizures in the 8th grade. However, I wasn't diagnosed until I was 21yo. I barely knew my name most days and I existed in total fear an isolation for the majority of my teen age years. When I was finally diagnosed, my life changed completely. Finally, my sick brain no longer had control over me. I graduated from H.S., college. Got married and had a family. But I still have epilepsy, which I will not allow to rule my life. If you have epilepsy, get educated about the disorder, the medicines and other treatments out there that will allow you to have a somewhat normal life.

[@vickyshepherd7506]

Hello Trevor, Thanks for sharing, can I ask a question, was your frontal temporal seizures diagnosed as that? Thank you.

[@latoyawilson1671]

I was diagnosed with epilepsy in 2011.. I’ve had every episode you came name. Had them in my sleep. Sometimes 12 in a day every other day. The drops can be talking to someone and automatically fall out of nowhere. Starring off into space. Now I’m starting to have twitches. My head feel like it’s being electrocuted. My neck will twitch like it’s being twisted around from the opposite side of my body and then my right side will go numb. I will shake and then have real bad crying spells. Its one of the worse diseases a person can have. Epilepsy needs to have awareness then what it has. For anyone that suffer with this. Keep your head up and continue to be strong.❤️ #Epilepsyawareness

[@trud6346]

12 a day that's a lot and I have epilepsy and I had a seizure at school outside an my friend said nothing 2 get me help until 1 of my classmates ran over 2 me and got the teacher and my friend is always concerned for me now and I had one at lunch before 2 and it was scary and so embarrassing for 200 kids in my grade to just watch and some laughed at me is what Mt friend said #spreadepilepsyawarrness

[@jellybean3599]

This was spot on. I hate them...because I'm conscious initially and my arms and legs will jolt simultaneously, then I zone out for a minute and then I finally relax and then I'm wiped out for the rest of the day. Lack of sleep or extreme stress can set them off...or missing a dose of my med.

[@Moes_Prep_and_Tech]

if i wake up in the middle of the night, can't sleep then turn on the computer or look at my phone for an hour or 2 till I can fall back asleep it happens to me, it might be the blue light

[@haannguyen4402]

My classmate had a seizure last year, and he said exhaustion can trigger them

[@mimikidstv5570]

I lived with JME for 22 years of my life. Skipping just three doses would result in a grand mal seizure, that happened 6 times. Past 11 years I religiously took Levetiracetam, had a healthy baby girl too. And for the past two months I'm completely medicine free, that's a first in all these years. All the doctors who said a patient of JME has to live with it for life, have been proven wrong. Blessed to be sharing this 🙏

[@supriyamorajkar539]

My 8 month baby boy diagonsed with this ...pls guide me..I am in vvery much tension

[@danielledewitt1]

@@supriyamorajkar539 Get the child a neurologist.

[@aangibhayani30]

I have this too... I've been having these jerks for past 5 years , my doctor prescribed me with Levigress 500, but my question is that are you you and your baby healthy, because I've read that it's could be dangerous to get pregnant if we're taking these medicines. I'm in my early 20's so I hope you understand where I'm coming from.

[@mimikidstv5570]

@@supriyamorajkar539 I hope you have met with a child neurologist. They are the best to guide you with the appropriate course of action.

[@mimikidstv5570]

@@aangibhayani30 We are both perfectly healthy. JME can happen to anyone, doesn't at all mean it's hereditary. My daughter will be 6 soon and she is a prodigy 🤞🏻🙏🏻 I've also just completed a whole year without medication, and it's all been good by God's grace. But I tapered it off very slowly across 2 years. So one must listen to their body and it's signs at all times. And stay away from highly stressful situations as much as possible. All the best.

[@coolNerdnextdoor]

I remember the first time i had an epileptic seizure in year 9 My friends thought I was possessed by some spirit and everyone ran away..nobody bothered calling a teacher or the nurse. After that, I consulted several doctors and was on different meds for 2 years yet I kept on having seizures. I was forced by my teachers to drop out of the school long jump team because teachers as well as my closest friends thought that I was "mentally ill" (the exact words kids used to pick on me). Fast forward to 2022: I've been on meds for 5 years now and my seizures have almost stopped. One of my doctors used to tell me that I'm gonna have it for a lifetime but I'm so grateful that I'm doing ok and I'm currently in med school, trying to be a neurologist. If you have epilepsy and you're reading this, I really hope that u stop caring about whatever rude or depreciating things others say (I wish I had stood up against my bullies in high school) and yes, you're gonna be fine ! Peace ✌

[@권혜리-y1j]

"mentally ill" like NO. Seriously stop. How can people be this rude I just wanna give them a puиch in their faces

[@suvekshyarb]

💗💗🙏🙏

[@lilbangtan2957]

I had my first crisis at 14, but I went undiagnosed for almost 3 years, I am now 23 and my seizures have almost stopped, and I'm currently in med school too :) I wanted to be a neurologist for that reason as well, but I now want to be a surgeon actually :D lol, just wanted to share my story too hehehe!!

[@coolNerdnextdoor]

@@lilbangtan2957 thanks for sharing. I really hope that you become a surgeon! Teachers at school used to tell me that epileptics can't get into med school, leave alone specializing in something as difficult as neurology. However, my neurologist told me that he suffered from refractory epilepsy throughout his 20s and 30s yet he kept going. This is what keeps me motivated. Best of luck 👍

[@mjpop07._]

Hi

[@batoolissa6983]

Watching this triggered my myoclonic epilepsy

[@mollywarr5359]

I wish people would be nice to me like that. because a couple of weeks ago I had one in college and now everyone takes the mick out of me. :( :( :( :(

[@kawaiiweirdostuff3626]

Molly Warr well that's what happens a lot but just don't think about it and be strong you can handle it from there right?

[@mollywarr5359]

+Kawaii kitty Stuff your so right thank you :):):):):):):):)

[@rachelarnold9523]

Molly Warr sorry to hear that. poor you to have a fit in class. having a seizure is not fun and that's really insensitive of the class to take the mick.

[@marybruce1209]

The people in the class I don’t think they know what it’s like to have a seizure. I have lot and lots seizures a day I get comments but I try my best to keep on the bright side. I think you should do that as well

[@wellhelltherefellwhuman4637]

@@mollywarr5359 I have seizures, and I mainly get myoclonic seizures and absences in class, so I'll literally almost be hitting people in the face, and I'll have to apologise. It's so annoying! But with the absences it makes it hard to concentrate in lessons. I sit next to this kid who is always like "You never listen in lessons, and you never come to school on time and you hardly do anything at school" but I always reply with "yeah, you're academically smart, but that doesn't mean that you know much. You clearly know nothing about me. I work extremely hard, probably harder than you, to maintain and improve my grades. Please don't say stuff like that to me, because it only makes you look ignorant and rude!"

[@qtxholo3502]

The only reason I watch these is that in school me and my friend were at the library and she just started acting all weird she just stared at the wall and I didn’t know what to do so I watch these to try and help just in case it happens again, cause it Happens a lot to her

[@mahrukhyar2648]

I think she might have had a focal seizure but I’m no doctor 🤷🏻‍♀️

[@lilyk5898]

My friend has frequent seizures (tonic clonic) and I tend to be around when she can sense one beginning, I started watching these so I know how to deal with her calmly as my anxiety is triggered everytime I see her seizing

[@itsnoterin]

Hey, If you don't know what she has then reply back cause I think she may have absence seizures Its nothing to worry about! (Their mind just goes blank like and they just stare)

[@helloiamsuperrandom]

@@itsnoterin its probably best to worry about it tho, at least don't just ignore it. some epileptics like myself started off having only absence seizures but then moved on to much more dangerous seizures such as tonic clonic seizures. in addition, absence seizures can be really dangerous themselves if you have them at the wrong time, say while you're running on the treadmill

[@michellenegron313]

@@helloiamsuperrandom I have found myself standing right in the middle of traffic on a bz street...that was scary

[@DarthCyren]

Finally a video that really shows it.... good..

[@hils1015]

I've only ever had this happen to me when lying down on the sofa or bed whilst falling asleep then my legs and arms, usually one of each would just go flying in some random direction which would wake me up for a few seconds then I'd fall back asleep. It would happen over and over and over again until at some point I fell into a deep sleep then either it stopped happening or I was just no longer aware of it. I think I also get it in my face. It just randomly starts crumpling up by itself without me voluntarily moving my facial muscles. My GP said I was having hypnogogic jerks. They stopped on their own.

[@huggieauggie8205]

Me too. I'm sorry what your going through. But I couldn't help but laugh when you said "flying in random directions" XD. But any way I wish you well

[@hils1015]

xX QuinTrinWins Xx hahaha it's perfectly ok. I read over my post and it is kind of funny.

[@Sarah.Riedel]

Hil S hynogogic jerks are common and don't indicate epileptic activity. It becomes a seizure only when certain patterns appear on an EEG and usually the patient has to have a full blown grand mal seizure before they ever realize anything is "wrong." Myoclonic jerks as a type of epilepsy can occur anytime of day and aren't related to falling asleep although they do tend to happen when you're tired. JME or myoclonic epilepsy as a diagnosis always includes tonic-clonic seizures as well as the jerks. (I have JME.)

[@LordofFullmetal]

I looked this up because my partner has the same thing. It's actually totally normal and NOT a sign of epilepsy. You should only be concerned if it starts happening when you're fully awake and alert, standing up, etc.

[@KTR2022]

@@Sarah.Riedel I know this is a pretty late question but I hope you can answer me, I'm desperate. I'm currently going through the very same thing Hil S is talking about so much so that I was trying to sleep and gave up and came back to yt because of these weird jerks on my arms, legs, neck (lasting about one second) going random places. I've been having them since June and they started the very same night I came back from a neurologist with other complaints who was dismissive enough to diagnose me with "depression" and because I've been diagnosed with a thyroid disorder in the meantime every little thing I complain about is automatically dismissed as being caused by the thyroid - which I call bullshit- when it might well be something else. I've also managed to get an MRI on arms and legs and nothing came of it. I haven't yet had them when awake or aware, only when I'm trying to fall asleep, should I be worried? What are your symptoms? Do you feel this weird sensations in your head?

[@hopefullynotgoinghell6364]

I just found this out at 35 pissed of as crucified half my social life not knowing

[@tilly_guest1]

She legit looks and sounds like a younger version of my sister in law

[@kyleschneider8096]

I am a 15 year old boy and just recently got diagnosed with jme. This happens in class on the time and it is so embarrassing because everyone stairs at me. I am on Kempra now I am hoping that this upcoming school year gets better!

[@alexandriasimental4096]

Hope you are doing well

[@Emilypwilson]

any updates? i have jme too and i’m 17.

[@angierose5144]

My kids and I both have a type of myoclonic seizure that lasts for hours to days, whole body, half conscious, vomiting, vertigo, breathing issues during episodes. Doctors still haven't figured it out but, guess what? We've been on the wait list to see a Neurologist for more than five years! I've dealt with these seizures for over 20 years and doctors here in Australia still haven't figured it out even though I've told them what it is. Just spent three years going through genetics only to be dumped by yet another doctor. We get these episodes every week, sometimes three times in a week. If anyone knows of a decent doctor in Australia that can help, please tell me. I'm desperate to get answers.

[@TurtleMyrtle12]

You've been on a waiting list for five years?? Does Australia have socialist healthcare? Is that why the wait is so long?

[@epilepsyaction]

Hi Angie I'm sorry to hear of your situation. This must be a stressful and unsetting time for you. As we are a UK based epilepsy charity we don't have information on consultants and services in Australia. I wonder if you have contacted Epilepsy Action Australia to see if they can help. www.epilepsy.org.au/ Regards Diane Helpline Team

[@nefelibata636]

i just get one jolt, sometimes another one or two but they're almost always spaced apart and not as immediate as this. i have them most days, thank you for bringing attention to them in this simple yet effective video, nice one, respect! 😊👏🏻✅

[@rubydeep1191]

Are you medicated? It literally ruined my life till i went to a neurologist and received medecine.

[@sadalien9049]

I feel like every teacher should see these videos.

[@naomiruth8030]

I know that boy was acting but oh my god, the second he jerked forward I instantly felt his pain! I suffered these all through out school but no one cared to noticed any thing was wrong until I had my first tonic clonic aged 19. It’s like a light switch gets flipped on and off in your head and your whole body or limbs just jerk. It’s a horrible feeling because it’s so uncontrollable. The amount of things I’ve flung across the room! Thank you for the video, such a good ideas to see what seizures look like an a school setting x

[@thenalover]

I have Epilepsy and I feel like such an outcast. The people around me now don’t have Epilepsy and all staff can do is call an ambulance if I have a seizure I freak out after a seizure cause it scares me I had been diagnosed with Epilepsy when I was 5 months old and now I’m 20 When I was in high school I had a seizure and the two student helpers caught it and told my teacher At least she and the student helpers respected me And I also can say that my mom is a huge help too She’s a nurse so she can help me in big ways If she wasn’t a nurse I wouldn’t be typing this comment today Thanks Mom

[@speedyboi4623]

This happens when I’m in a car and the sun shining through the trees causes an almost flashing light pattern as I drive by and it gives me a little jerk. If that makes sense.

[@kirstyleannerichards6825]

Happens to me too, on any kind of transport and if I walk past a fence and the sun flashes, still haven’t gone to a doctor tho but I probably should :)):(

[@spicycrocss]

Me too!! Whenever I'm on like car rides or on the bus and the sun flashes through the trees I'll start getting jerks. They make me self conscious though cause whenever I have seizures after waking up no one sees me because I'm usually just alone in my room but when I'm in a vehicle everyone I'm with can see

[@speedyboi4623]

Spicy Crocs yeah it is scary even tho I haven’t had a seizure in a while. But the embarrassment of having a seizure would be too much for me. Only had them when I was little.

[@georgia3718]

Same here. I’ve had it for years, didn’t realise this was epilepsy until I got diagnosed a few months ago

[@rubydeep1191]

Go to a neurologist or family doctor if you have these symptoms! I've been on meds for 3 years and it saved my life.

[@ClownlyChuckles]

I thought this was just normal until I was diagnosed with myoclonic epilepsy a couple years ago. How I managed to think that for almost two decades... idk.

[@margiecarter2096]

She was mean to him

[@krissykayak8640]

That’s just how us British are like

[@bleak3304]

oh no she was a meanie! ;~;

[@astrowolvez]

I guess I have this. It was worse when I was in high school, I probably would sleep for like ten minutes so many days and in the early morning my arms would seemingly flail uncontrollably and feel odd and it was so embarrassing and I hoped no one would notice. It’s not that bad now and only recently started popping back up like once or twice.

[@Moes_Prep_and_Tech]

I think I have this, it happens early in the morning after a night of drinking. I would be afraid to drive or hold a cup of Hot tea early in the morning when I wake up out of fear of snapping for a second or 2. I've spilt many drinks on myself because of this, I'm aware and the best description I can give is like a jolt of lighting hitting you briefly,

[@sophiaashcraft8146]

I will just be vibing then BOOM myoclonic seizure. I have Juvenile Myoclonic Seizure disorder. It's real annoying and embarrassing. Today i was in Circle K and I had a myoclonic seizure in front of the whole store.

[@sethhammes9456]

I fight with Grand Mals, and Myoclonic seizures. As soon as he showed a n example of one, I was reminded how scary even the small ones are.

[@danielledewitt1]

We don’t call them grand mals anymore, we call them tonic clonic seizure.

[@Eli-me2vs]

i swear i’ve been having myoclonic seizures, usually during the morning to around lunch (10:30) I will have these were hand twitches where they will hit against the wall or throw things and just shake. Then they start up again around history (last period) because i really tired but idk if it’s a tremor or seizure or tourette’s. another thing i noticed they get sorta bad when i gets stressed. and i get this fuzzy feeling like down my spine till they happen

[@karinavladislavna439]

yea ,it also gets pretty bad when I'm stressed too or didn't have enough sleep ,i hate it when it starts at work it is so embarrassing..also things falling from my hands and i have this few seconds-mins confusion

[@erichodges9536]

@@karinavladislavna439 I've started to notice in the last couple of month's that I can't hold on to my cell phone or tools at work when it happens. I literally will just drop or throw whatever is my hands across the room, and if it like I dose off fora Milla second.

[@karinavladislavna439]

@@erichodges9536 yea,same here it is just so terrible and embarrassing

[@ananyab5553]

@@karinavladislavna439 mine is provoked by menstruation.

[@TheRealBatPool]

I had these happening to me for 2 years with people telling me it was fine including doctors until I started having grand mals and then I was sent to a neurologist to figure out I have juvenile myoclonic epilepsy (JME)

[@seashellcat3740]

had a friend in elementary school who had seizures where (not meant offensively) it was almost if his mentality was of someone else like I saw him in a different light. He would scream and yell for somebody to help him and would just overall appear to be super stressed in a way. It was really sad having to sit and watch him while we waited for our teacher to get the other teacher next door to us so the rest of the class could wait in her classroom. someone in my class made some rude comment (was years ago so i only remember i was angry at what he said) about him seizing.

[@pennyjane.2770]

“It’s gone all over the sheet” but there’s literally nothing on the sheet

[@kuhataparunks]

THANK YOU so much for making this it’s very helpful

[@seankelner7720]

I have these all the damn time

[@sexysteve4487]

Same bro everyones like looking at me.. it makes me uncomfortable and im emberrassed

[@annalowe5543]

i have seizures and none of my teacher are this understanding

[@annastaisyamason6109]

they don't understand, I've been taken out of a public school, because I had a seizure for 4 minutes straight. And the lady REFUSED 2 put my recuse meds in my mouth. I'm still pissed about it, cause I could have died all because of her.

[@annalowe5543]

@@annastaisyamason6109 that totally sucks

[@themango9644]

Same

[@nadineabdulqader2580]

Annastaisya Mason I hope she got fired she could have killed you I hope your ok now x

[@shaylindsey5775]

Hi, That is true with my now 19 year old daughter a southmore in college. Her grade school was from 6-12th. We could never get the teachers to comply with anything in her 504, or IEP and administration, failed to force compliance. Since she is out of the clasp of those witch's, I'm not going to stop filing grievances and making complaints until someone does something or force compliance. Thanks to everyone who aided in getting "Sam's Law" passed last year!

[@ramennoodles007]

I have these. They suck. Cant read for long periods of time. Cant play chess, checkers or anything that involves thinking ahead too much. Math is hard as hell. Happens when I speak as well. Watching tv, writting. Cant even match colors on a rubiks cube without one.

[@LegendOfAustin]

I'm wondering if I have this under my ribs cramps up and I have to keep my shoulders forward bending in. I do it for 5 mins then it ends it hurts after so long like I'm doing crunches but can't stop anyone else feel this?

[@justaperson748]

I do this and other kinds of seizure-looking things. However, I remain conscious but in a daydream-like way. The only way I can put it into words is my thoughts are normal as if I wasn't shaking on the ground or they're nonexistent. I do know what I'm doing and I feel all of it (pain after it's over if I got injured from something separate like hitting my head when I fell). also, depending on how bad but I normally lose control of my muscles in various parts of my body (sometimes all). Doctors have not done any tests on me since it's all triggered by anxiety. No anti-anxiety meds work on me. And like can this really be anxiety??? Any information on what this could be please :)

[@verityrichards7064]

I feel so bad for him u are amazing

[@alreadydead1692]

Wow! This happens to me when I’m tired, makes me throw my hands and sometimes makes me hit my face

[@Red_girl_nicole]

I had my first seizure at age sixteen and it happened at work. ( I help children with their homework) My father came , and started to put his thinkers in my mouth, I was unconscious, so I bit his thinkers.

[@danielledewitt1]

Thinkers? What are you talking about?

[@Red_girl_nicole]

@@danielledewitt1 fingers*

[@danielledewitt1]

@@Red_girl_nicole Well why not just put fingers then.

[@theaveragelivesoffamiliesd4580]

I'm pretty sure that I also experience myoclonic seizures, but I haven't seen a doctor yet to discuss it.

[@Emilypwilson]

any updates?

[@minaeftekhareftekhar5890]

Please don’t take it to easy this condition it’s really dangerous!!!!

[@heavenlyhunter]

Recently I am having this issue where my shoulders will shrugs forward and my stomach will keep flexing, could this be a seizure? I am in the process of getting tests done

[@heyitzbob9537]

It seems like you have tics

[@heavenlyhunter]

I am schedualed for more testing, they saw epileptic brain waves

[@heyitzbob9537]

Yass Hunty oh damn well I hope you get better

[@anasanimation8376]

Corrupted Gyal I think it is tics

[@Nikki3b0oxX]

I think it’s seizures . When I get mine my body flexes non stop . And it causes me to vibrate . I was on lepta when that started happening though I wonder if they started me too high idk

[@gemmabryden4864]

Epilepsy is so horrible to deal with.I use to work in a School for Children and Adults who had Epilepsy and Them going through that It use to make me cry I am not to bad now

[@lizchalmers4917]

Our teachers use to say i was daydreaming

[@misscaramelbee3381]

This video made my cry, I saw my son in that boy

[@FIREFIGHT-qp1pb]

I've been misdiagnosed for years!

[@timothypulliam2177]

Same

[@mrRajsamy]

yes its terrible i lost my confidence ..in morning not able to drive pls give any permanent solution. any treatment or medicine ..😮

[@Crossuv]

I have this same seizure and I always cry I get seizures when I watch a video

[@LightLife4]

I've had small muscle twitching, limb jerks to full-on body jerks. Though they are brief there's no build up and they're sudden

[@AliciaGuitar]

I have JME and i was SO nervous about him holding that huge test tube! I used to throw my cereal on my mom's new rug 🤦‍♀️

[@kgaccount]

What about treatments? What medications specifically help with myoclonus? I'd assume people coming here want to know more than just the basics when you're dealing with something so urgent as seizure activity, right? As in what medications are proven to best treat myoclonus? Aren't there several types of myoclonus? For instance, cortical, segmental,, subcortical, etc....all with various etiologies, correct? Can you do a video on that? That would be equally helpful.

[@danielledewitt1]

There are loads of medications that can help. That’s up to the neurologist though.

[@epilepsyaction]

Hi, Thank you for your comment and suggestion about creating a video explaining more about myoclonic seizures. This has been passed through to our information production team, for them to consider. Myoclonus refers to a sudden, brief involuntary twitching or jerking of a muscle or group of muscles. But isn’t a condition in itself. Myoclonus can happen in a number long-term health conditions, as well as epilepsy, such as multiple sclerosis and Parkinson’s. So, the treatment of myoclonus will depend on what is causing it, and what part of the body is affected. When myoclonus is caused by epileptic activity in the brain, we call this a myoclonic seizure. In people with epilepsy, myoclonic seizures can affect some or all for your body. They can be what's called 'generalised onset', meaning both sides of the brain are affected from the start. Or they can be 'focal onset', meaning just one side is affected. The possible causes of epilepsy vary from person to person. And for many people with epilepsy, doctors can't find a cause. Myoclonic seizures are usually treated with epilepsy medicine. There are a number of epilepsy medicines that can be used, and this will vary depending on the person's epilepsy and other characteristics. The National Institute for Health and Care Excellence (NICE) have recently published UK guidance on treating myoclonic seizures, which you may find useful. www.nice.org.uk/guidance/ng217/chapter/5-Treating-epileptic-seizures-in-children-young-people-and-adults#myoclonic-seizures Please do feel free to contact a member of our team if you have any other questions or concerns. Either by email or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm. www.epilepsy.org.uk/info/support/helpline

[@bugbug5172]

Does anyone else have the ones where you throw or stàb something for on of the ones you have

[@luckofthedice]

I may sound a little paranoid, but I occasionally have a strange sensation all throughout my arm, which causes it to shake and sort of jerk about from top to bottom, for mabye 2-3 seconds. It feels as though something is moving through my arm. Does anyone know whether this is natural, or symptom of myoclonic seizures? Like I said earlier, these are fairly infrequent. They only occur every few months, perhaps a little shorter.

[@walkwithmeASMR]

I go through phases of having something similar to this. Undiagnosed. I will feel really frustrated and angry all of a sudden and have to stop what I am doing. Then my head will start twitching to one side. I almost feel like I have to turn around and follow it. It last about 15-30 seconds. My mind goes kind of blank and I don't like to talk whilst its happening. Like I cant concentrate on anything else. Horrible. Especially when the doctor just looks at you like you are weird when you try to describe it.

[@minimarsed]

mine are like this only when i'm extremely exhausted. per say a week of improper sleep.usually they're just little arm/hand jerks and only when i've slept less than 7 hours. my doctor told me that we would most likely do another eeg, and then if positive put me on keppra. at first i didn't think much about it, but i'm very worried now because the list of side effects is very long and very scary. some of the things on it i already deal with and i'm just afraid they might be enhanced.

[@danielledewitt1]

m Don’t go on keppra. I used to be on it and had keppra rage bad plus it didn’t work.

[@jellybean3599]

Keppra caused me to suddenly burst out in an unrealiatic rage. It was horrible. I switched to Lamictal and Clanazepam and doing fine. Its not 100 percent but least amount of side effects for me.

[@imjustacamel4190]

I got diagnosed with these but all the videos I watch look nothing like what I go through 🤔🤔

[@epilepsyaction]

Hi there, thanks for your comment. There are many more different types of seizures than a lot of people realise. I hope the information on our website is relevant to the type you're experiencing: www.epilepsy.org.uk/info/seizures-explained You can get also in touch with us if you have any questions: www.epilepsy.org.uk/info/support/helpline

[@fizzanaz3952]

I usually get such jerks and some time it turns into a full seizure and it looks very scary.. I screams loudly and fall down ,the colour of my face changes at once my eye starts opening and closing,teeth grinds and the whole body shakes and stiffens and some time I get injured due to falling.

[@Lifewithyouofficial]

I'm not sure if you've done one on Javaon epilepsy but please do one. I've been recently diagnosed and I can't find much info about it because it's a rare case.

[@danielledewitt1]

Don’t make things up. Javaon epilepsy hahahaha making things up. I have epilepsy epilepsy. I don’t make posh names up because I know better than that.

[@lizaedwatds6159]

hi appreciate this detail account also have muoclonicic tonics after an accident the event was a cause of so many events fortunately the first one my beautiful mum was alive and did no precisely what it was now after aĺ those things that incredible human was there during ! truly Lost without my beautiful mum it's difficult tto no that it's that total Loss of control many have such horrendous tightening of muscles frequently Leaving you with both muscle spasms with an epic amount of pain also with a horrendous headache mum allways would move everything out the way comfort and yes had result with first admission being calm even then sending you Al hugs Love Liza X ❤

[@theathomas3008]

I had seziure before when I was little in Japan

[@Itzhenliex]

I’m going to see dr hindley this week since I’ve started having seizures I think I’ve had tonic and a grand mal both in school

[@danielledewitt1]

Where you say grand mal you actually mean tonic clonic.

[@Itzhenliex]

@@danielledewitt1 yes I forgot they changed the name of it

[@danielledewitt1]

@@Itzhenliex Tonic clonic are my main type.

[@Rod-bp8ow]

Seizures and all forms of seizures are discernable these days, with numerous equipment to detect what was discharged (-) (+) it is traceable, violators shall be prosecuted. SMEs........GP/NP/MCR/ENGRS- GM.

[@marie-eq3jw]

Why have I been watching people have seizures till 3 in the morning?

[@babysnoops14]

I don't think this is always the case. I get this type of seizures but in my legs. It's happen during the day and I'm not tired.

[@daxter2900]

I don’t know if my twitches are tics or seizures or just jerks. There’s a couple different kinds; one where my arms scrunch in and my upper body jerks, one where the muscles in my arm stiffen (this one can last for up to 15 seconds) sometimes repeatedly, and one I’m not sure what it is. The last one feels like melting, I can move my eyes but I don’t have the will to move anything else. I don’t fall, I just stay in place, and I am conscious the whole time. Could the first two be myoclonic seizures/jerks? I don’t know what the third one is either, but I’m not too worried since that one is rare.

[@clowesaviation5443]

Something that I'm wondering is can seizures be caused by too much stress and pressure?

[@epilepsyaction]

Hello Many people with epilepsy say that if they are feeling stressed, they are more likely to have a seizure. For some people, stress can also lead to other problems like not getting enough sleep, skipping meals and feeling anxious or depressed. All of these can also increase the risk of seizures. We have more information about seizure triggers on our website. This includes some tips on how to avoid seizure triggers, which can help some people with epilepsy have fewer seizures. If we can help any further, our helpline is free to call for people in the UK, 0808 800 5050. www.epilepsy.org.uk/info/triggers www.epilepsy.org.uk/info/support/helpline Regards David Epilepsy Action Helpline Team

[@clowesaviation5443]

@@epilepsyaction interesting

[@AliciaGuitar]

There are also PNES (non epileptic seizures) caused by chronic stress and trauma. I have a friend who has trauma seizures and saw her have one when she was triggered emotionally. I have JME myself but her seizure was the scariest thing i ever saw

[@briannamachado4369]

What is the seizure when people lose control of their body and start shaking or something?

[@shelbieconyers1356]

Question what seizure causes eye blurry ness

[@epilepsyaction]

Learn more about epilepsy with Epilepsy Action’s range of e-learning courses. learn.epilepsy.org.uk/

[@timothypulliam2177]

This is my Epilepsy! I finally have a home.

[@metallife8395]

Is a myoclonic spasm or seizure bad? Because I've been having spasms like this while watching tv or playing games sometimes happens when I'm just sitting down.

[@epilepsyaction]

It would be best to talk to your doctor about your symptoms. If you are diagnosed with epilepsy, they will go through treatment options with you. Regards Diane Epilepsy Action Helpline Team

[@DarthCyren]

I have JME and that's how my symptoms first presented. Talk to your doctor

[@metallife8395]

@@DarthCyren I spoke too my doctor and i'm seeing her again in 5 weeks time sometimes it feels like I'm going to fall over it just gets worse by the day i mean today i felt tremors in my whole body while watching tv.

[@Dave-x8j]

Deff. talk to a Dr, but I'll tell you from what I understand that Myoclonic shakes, Tonic Clonic seizures, Absence seizures etc...are not harmful in and of themselves. The potential danger is if they happen and you fall on something/hard floor, are driving a car or swimming. There are meds for this so don't be afraid to get treatment and this can usually be well controlled. What you describe is Photosensitive Epilepsy (PSE). Can happen watching videos, flashing lights in discos, while driving seeing the light pass rapidly through the trees.

[@whatsmyname4012]

0:40 i thought he was trying to do some mini dabs

[@rachelarnold9523]

Goodness, I hope that guy's ok.

[@annastaisyamason6109]

I think they are acting, so people will know what 2 do

[@debajitsen9640]

hlw i m frm india...i hav as same as epilepsy...its happened with me ,,,wht should i do

[@emryswalton1802]

Hi! Go to a healthcare professional if your symptoms persist for a month or more.

[@DaantjeMel]

Self I don't have epilepsy, but my best friend had 4 years ago a lot of seizures because she suffered psychological not epileptic seizures and after an seizure she was very tired. Is tiredness an effect by all kinds of epileptic forms? (Sorry for my bad English)

[@danielledewitt1]

Being tired is normal after some types of seizures.

[@alastrined4187]

Epilepsy sorta hit me like a brick there was no hiding it or even shrugging it of as normal cuz I had 32 in one day and 288 in a day just a few days later

[@batoolissa6983]

I wish people would understand this it’s really not fun it feels so annoying inside

[@sallycrossley2629]

I’m sitting here having some at the moment. They go on all night long at the moment. It’s horrible

[@epilepsyaction]

Dear Sally Thank you for your post. I hope your seizures have settled down. As you are still having seizures, are you being seen by an epilepsy specialist so they can review your treatment and look at other possible reasons for your seizures to still be happening? www.epilepsy.org.uk/info/treatment/anti-epileptic-drug-treatment If you are not under a specialist, you will need to ask your family doctor to refer you. This would usually be to a neurologist. The ideal would be to someone with a specialist interest in epilepsy, as there are many different neurological conditions, and neurologists tend to specialise in different ones. Here is a link to our information on myoclonic seizures www.epilepsy.org.uk/info/seizures/myoclonic-seizures If it would help you to contact others who understand what you are experiencing, we have our local talk and support groups, online community, Facebook Discord, Facebook, twitter and our befriending service. If we can be of any more help, please feel free to contact our helpline team directly. You can either email [e-mail], use live chat www.epilepsy.org.uk/support-for-you/the-epilepsy-action-helpline or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday 8.30am until 5.00pm and Saturday 10.00am until 4.00pm Regards Regards Diane Helpline - Epilepsy Action

[@Emma-sb1tt]

That’s improper lab saftey! You must wear your goggles at all times

[@emmy1590]

clarke ur stupid he had a seizure he cant control it **safety**

[@animalover21218]

@@emmy1590 The girl is wearing hers on her head though

[@ellie-laurenwatson5646]

Does anyone have any advice? Sometimes I get a really bad headache that lasts for weeks at a time, and sometimes I go really dizzy, my vision goes black and then I fall sometimes.. but I never remember what happens after that? Should I be worried and is this a sign of epilepsy? Or does it happen to everyone sometimes! Help is appreciated! I’ll let u know how I get on

[@epilepsyaction]

Hi Ellie Thank you for your question. As we are not medically qualified, we cannot say if your symptoms are epilepsy or not. A number of medical conditions can cause symptoms similar to epilepsy. So it’s best to get a medical diagnose. If the doctors thinks it could be epilepsy, we have information on epilepsy and how epilepsy is diagnosed. Regards Diane Epilepsy Action Helpline Team

[@cc2023_]

Hate when people are like are you ok after you have a seizure like your clearly not the teachers in my old school after I had a seizure were like are you ok I’m clearly not ok

[@evanslater4551]

It’s a lot better than having someone laugh or the teacher have a go at you for disrupting the class though.

[@harp2214]

My dog has epilepsy and gets seizures like this. I feel bad for him.

[@CaptinHoot51]

Poor Dog!

[@CaptinHoot51]

Dogs don't deserve seizures!

[@2charmss774]

I’ve never seen seizures this chill omg lol

[@2charmss774]

Justin's Y's therapist i don’t mean “lol” literally. No, it’s not funny it’s shocking to me, I’ve only seen grand mal seizures. Calm down don’t get fixated on the wording.

[@GigaChase23]

2charmss so you laugh when your shocked? No you type “lol” when you mean to type lol...be accountable for yourself...Many people that have myoclonic seizure (including me) don’t appreciate your tone...grow up.

[@kgreygrey6491]

Danm that looks just like me but I was In art class and I played it off as nothing and went home early. No one knows...(expect for the fam obviously)

[@oliverlopez48]

Did you fake it

[@rulerzreachf4n200]

Can something like this be present in just the head and neck too? Trying to find out what the heck is up with me. My entire life I’ve had this thing where tingles rise up my neck and head and then my head will shake side to side four times quickly involuntarily. If anyone knows what this could be please let me know. It’s usually caused by temperature change, like if I was cold then walked somewhere warm, when food gets stuck in my throat and when I’m anxious. It could be a tremor, a tic, or something completely ordinary that I’m being overly worried about. I’m 17 now and these have happened as long as I can remember so chances are it’s completely normal I’m just worried about it because I’m an anxious person x’)

[@epilepsyaction]

Hi Callum, thanks for your comment. The symptoms you have described are not typical symptoms of epilepsy. But as we are not medically trained, if you’re still worried it would be advisable to discuss your symptoms with your family doctor. You need to get a medical diagnosis or explanation of what is happening. You could keep a diary and try recording some of these episodes, as this could be helpful if you do go see your doctor. Here is our information on diagnosing epilepsy: www.epilepsy.org.uk/info/diagnosis/diagnosing-epilepsy If the doctors have or do say it’s epilepsy and you need any advice or information on this, please do not hesitate to contact us again. Diane Epilepsy Action Helpline Team

[@rulerzreachf4n200]

Ok, Thankyou for the help Diane 😊

[@otomodachifan]

I get something very similar (head/torso jerk). Has happened on occasion for as long as I can remember but when my dad died it got practically constant to the point I needed medication just to stop shaking. Now it's not nearly as bad but occasionally still comes in bursts. Afterwards it leaves me feeling very dizzy. Sometimes it happens for seemingly no reason, but most of the time it's triggered by anxiety and/or overstimulation. I have anxiety disorder, autism, and OCD. Still not sure as to whether this is just a nervous tic or a seizure

[@rulerzreachf4n200]

otomodachifan Yeah I’m very similar with this. It’s been worse lately, I’m not sure if it’s being anxious more that’s caused it. I also have OCD, anxiety, depression and I’m possibly autistic and possibly have ADHD but I’m not sure yet so I won’t confirm it. Mine often comes in “short bursts” it doesn’t ever last long. It’s about 2-4 side to side shakes and then it’ll stop. Like I’m saying no really aggressively. Is it the same for you?

[@otomodachifan]

@@rulerzreachf4n200 yeah it's exactly like that for me.

[@chloeyoung8469]

Try working as a waitress before being diagnosed.. not fun for the customers hahaha, had an EEG and came back as myoclonic epilepsy, all controlled as long as I don't miss a dose

[@alexandriasimental4096]

How have you been doing ? My little sister just got diagnosed...

[@ravichebrolu1180]

How are you now..? Did you get any seizure after that..? How long you have been on medication..?

[@trinitytruesdale5633]

Do you got more toys

[@haannguyen4402]

0:31 I think the girl is too impatient