Executive Function: Hygiene Habits with Klinefelter syndrome

[@Stumblebee35]

You are a great role model!

[@GVL_LAD]

I am indentical to you with this. I am terrible with brushing my teeth and showering. I thought I was just lazy. I don't like to do it. I tell myself "it's not hard, just do it." I need to do better!

[@LivingwithXXY]

Yea I feel like something is missing. It needs to be routine for it to happend on a regular basis.

[@StrangeFacinations]

Get a Sonic Care, you just hold it and move it from tooth to tooth.

[@jennifervoige6484]

Thank you, this is our son exactly and your personal experience & insight is going to help him so much. We can't wait to watch these all with him.

[@braytonmarumo215]

Man I truly have that but am not diagnosed I can hear that all refer to me I am struggling at school right now I can't communicate well.When a teacher points at me all answers wipe off my brain.l ave been bullied recently bcos am too weird I admit .Am not good at sport bcos am too clumpsy.I haven't tried testosterone supplements but I exercise to make myself better.I don't think my parents will understand bcos here in Botswana, ppl are unaware of 47xxy syndrome my pals think am introverted buts it's more than that I would like to be diagnosed but I will try.No wounder my teeth are bad.I love Science a lot bcos it's the only subject I can process well and am creative when coming to it. I hate languages and I fail them.People think am clever bcos I do sciences well.Thanks Mr Ryan.

[@featheredpyredancer8673]

Great video This is Sir Lucky. I lost my teeth back in my 20’s. They told me it because of my dad losing his in 20’s too. You are lucky to have facial hair. I am in my 50’s and still grow much hair on my face. I have alway taken a bath to keep myself clean and to help with pain in my legs. They told my it because I grow to fast in my teen years. Thank you for sharing this great video.

[@aussiezx3017]

i lost all my by 30 love having no teeth u fit more in mouth but miss out on lot other foods i love.

[@petermcdonnell5873]

Thanks for that, all of your work is appreciated. It helps me understand my son so much better. Keep it up and best for the future always.

[@LivingwithXXY]

Happy to help!

[@Miss_Michael4784]

I have never been diagnosed with Klinefelter syndrome, but it seems to fit. I am also transgender. As an older adult, my body seems to have feminized to the point where I got pointed to the women's rest room. My mother said that I had nice teeth until I started brushing them. My dad was of the opinion that brushing was a waste of time. Back in the 1950s, we did not have a bathroom, no bathtub, no shower. Back in 1998, my teeth were so bad that instead of bridges all over, I opted for full dentures. It looks like I made it to age 50, although I had a partial for two lower front teeth since 1972 due to an abscess.

[@DarkSelene2]

Thank you for explaining this. My fiancee has XXY and I always wondered if his hygiene habits (or lack thereof) were related to his condition.

[@FormigaFit]

Did you still stay in the relationship?

[@realm_]

@@FormigaFit 💀💀💀

[@TheeeDanielR]

Omg love this!!!!! You’re so organized!!!!

[@CTJonathan333]

Good Video, I never had these thoughts being XXY but its a good video for those who have.

[@MS-mz9jf]

I am in India and KS... I felt like a freak but such videos do give hope...

[@LivingwithXXY]

Thank you for the support!

[@samtube12]

M S how old r u?

[@dougl945]

Floss!!!! Every day. Don’t ignore your teeth. You get one set. Ask your dentist for a really good oral rinse. One for gums. Also, a water pick is excellent. You will be grossed out when you see the junk coming out from under your gums.

[@FormigaFit]

I sometimes bring the toothbrush in the shower and nail clippers when I step outside. I try to mix some of these in one task.

[@rvkpt]

Yes. All of that. Thanks.

[@j.b.4340]

3:33, it’s not our fault, and no amount of brushing will prevent the cavities. I’ve had six root canals, etc. Taurodontism.

[@LivingwithXXY]

Taurodontism it is, I forgot about that. Thank you!

[@gearoid131]

Thank you

[@LivingwithXXY]

You're welcome

[@mirrenmoomin6314]

I am trying to figure out whether I have xxy, and when you mentioned that you feel like you had to do 100 other things all the time during hygiene routines and the weak teeth enamel REALLY resonated with me. My brother brushes his teeth maybe once a day and really rarely does he do it well, he never flosses and yet he has never had a cavity while drinking and eating the same if not more sweets than I. I on the other hand brush my teeth twice a day, and put a mediocre amount of effort to it. But the amount of work I have to do to keep my teeth perfect is so much. I feel like I would have to brush and floss 5 times a day. I still have had over 25 cavities or something, I've lost count. I still get some from time to time but every spot that you can get a cavity has pretty much had one, so that's why I don't get them as often now. I also have a little bit of a unibrow like you, is that common among KS? My mom also gets on me really hard with the few long hairs I have. I really could care less about them being there but she gets really on me about that.

[@ashsmart6895]

what's your email? i need someone to talk to that has xxy

[@dudedaddy3100]

I'm not overly hygienic either usually shower q 3 days as I rarely sweat and living in S. FL sucks cause I cant enjoy temps above 84 without getting heat headaches. Didn't brush my teeth too often except the last 3 years after spending over $15,000 in dental work )due to severe Anx I go to a IV sedation dentist which of course isn't covered by Ins. Nice full beard; lucky you.

[@aussiezx3017]

it called hollow teeth there very little marrow so teeth rot faster then normal.

[@LivingwithXXY]

Not everyones teeth are hollow. I know guys with KS that have never had teeth issues.

[@aussiezx3017]

@@LivingwithXXY yep sum people lucky.

[@nathanfarias1051]

Did you have Gynecomastia prior to treatment

[@kayakgirlcentralcoast3721]

My hubby just been diagnosed n he has only a few teeth n at times has been hard to get him to shower especially when he was depressed

[@LivingwithXXY]

Tell him hes not alone but that he can do it!

[@azentioced9]

you talk about it . but you never talk about how and what parts of the body have been affected and how good or how badly they have been affected on every part of the body you should have a video on that . and that would help far more than what your saying in all of your videos in fact i have not herd any thing about that !

[@LivingwithXXY]

Ok thanks for the sugesstions. Ill make one.

[@yelitzavallejohahn2108]

Thanks for to share! Now I can understand my son better ;)

[@LivingwithXXY]

Of course thank you for watching.

[@ruthdonegan11]

same here all these videos sound just like my son too

[@joshuamadison4947]

i wish there was a group chat or something cause I struggle a lot

[@LivingwithXXY]

We have a facebook group, Go to our website and send me an email and ill get you the link.

[@StrangeFacinations]

How is the syndrome making you not want to be clean? Is it just boring?

[@mathewfasone1273]

Thank you for sharing. Have you had any problems with sensory issues around hygiene?

[@shadowkyber2510]

I hate how minty toothpaste burns my mouth but I've found non mint toothpaste so it's not as bad. Also I hate how spray deoderant feels so I have to use roll on deoderant and showering makes my feet etchy but I can't fix that

[@Jhres]

Try vyvanse it works for me. 20mg side effects suck like dry mouth that’s really it. And that’s something we already have to deal with.

[@MissArbie]

This whole clip describes ADHD. Glad Vyvanse works for you. Methylphenidate helped me.

[@dougl945]

Bring all of that into shower. If you have a nice big shower like I do, with a bench, just take a long shower, brush your teeth, clip your nails. Get a nice sponge.

[@dosquintoiuos]

I have ADHD and this is identical to ADHD. I love to brush my teeth but I do it while watching yt videos

[@LivingwithXXY]

I haven’t done that yet but I brush while doing something to keep my mind occupied. Shower is a great place.

[@dosquintoiuos]

@@LivingwithXXY sure, shower, listening to music, watching yt videos - as long as we’re not bored

[@Jompu]

Everything you tell here screams ADHD and actually ADHD is really common in people with Klinefelter syndrome.

[@jimkreider9997]

I just don't understand why these things happen because of an extra gene. I hope you can live a normal and productive life. I'm not putting you down in any way. I wish you and all other to have a good life.

[@MissArbie]

Honestly sounds a lot like adult ADHD.

[@moonlightfitz]

imagine being xxy and also having hygiene toc

[@pako6439]

Do you have 2 reproductive parts as well ?

[@LivingwithXXY]

No I have normal male 2 balls and a penis.

[@FumariVI]

You have a beautiful smile and sexy beard.

[@LivingwithXXY]

Thank you

[@VijayVijay-ez3fn]

@@LivingwithXXY hi

[@BelindaTN]

Most every boy and man I have ever known would skip the hygiene rituals if it were not for their mothers and their wives (and if they ever wanted a girl to go out with them). LOL It's a guy thing.

[@BowsersAdventures101]

Can I email you and ask you a few questions please? I work as a developmental services worker, I want to ensure I can support the individuals I work with.

[@LivingwithXXY]

Our email is on our website :)