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@Elisa-j6s Жыл бұрын
I burned myself out working with fibromyalgia and ended up being let go from my job due to call outs or having to rest on lunch or in the middle of workday. I never told my employer my fibromyalgia diagnosis’for fear of judgement. I had so much trouble articulating thoughts to my peers which resulted in feeling of depression and shame. It is so disheartening that courts don’t understand the severity of this illness. i have been flaring for the past 6 months and have an interview with disability this week. I am feeling negative about it because getting denied will ultimately be interpreted by me as invalidation of my illness something that many fybro patients sadly deal with. I hope there is more understanding in decision makers regarding this illness because it is debilitating and kills your joy and ability to function normally
@jeannenora6113 Жыл бұрын
I have had Fibromyalgia for 30 years and only 5 years ago was I diagnosed... halfheartedly.... Here in Switzerland it is not acknowledged as a real illness... it is so frustrating and has caused me so many panic attacks. Being regarded as a hypochondriac for so many years and then to hear I am NOT..... I fought for 3 years to get disability pension. By that time I was in pension and yet I still have to fight. Even the health insurance tries to NOT pay towards therapies. They also do not believe that my dizzy spells have to do with Fibro and that I need transport to go to the doctor. I could tick off almost all the boxes which are related to Fibro. I don´t leave the house because of the dizzy spells which always come all of a sudden. I have fallen over so often already. (Even right in the doctors office. Twice) I only "go out" if someone picks me up and brings me home again.
@patriciawatts31699 ай бұрын
I have been on disabilty, because of fibromyalgia for about 12 years. I had worked with this problem for many years. I was absolutely miserable. I went to many dr.s to find out why i was in pain all the time. Went to a neurologist for several years. Had several surgeries. Trying to find out what was wrong with me. Someone finally sent me to a rheumatologist. One visit and i was diagnosed. Got some pamphlets and I was totally gobsmacked. They decribed my symptoms to a tee.
@queenknyoki54472 жыл бұрын
This is so annoying. I am having a terrible time with it. It's completely ruined my life. I need help with everyday chores. And the brain fog is so scary. It gets me into so much trouble. I forgot to pay bills, send letters, and miss appointments all the time. Most days I'm bed ridden in agony.
@Elisa-j6s Жыл бұрын
Yes , I understand you. Some people will judge me and make me feel lazy n it makes me so emotionally triggered. I struggle so much to doing the smallest things. I have little to no energy on most days and have so much trouble concentrating and speaking
@frebrd786 ай бұрын
Underlying fibromyalgia conditions and severity are necessary to have each documented in clinical records. Im 6 yrs into disability claim. 1st lawyers was clueless. You guys are very knowledgeable on this. Thank you!
@pamelavaughn8449 Жыл бұрын
I have fibro,EDS, Ptsd, bipolar pt2, IBS and was still denied.
@susansherlock69342 жыл бұрын
Unfortunately I live in the UK...
@rm45195 ай бұрын
It's a horrific condition. It's completely debilitating. Rheumatologists in Atlanta will not see Fibromyalgia patients. Most label it a NEUROIMMUNE disorder NOT an autoimmune disease.
@georgeking2369 Жыл бұрын
There is no blood test for fibromyalgia
@sukabuttyahu23437 ай бұрын
I have it and my daily life is horrible some ppl can work with it. I tried and recently I have not been able to work for 3 yrs now. My last job It was impossible for me I constantly called in I couldn't do certain things I got written up so many time. My body forced my to stop. Since 2021 I stopped working till now I recently got denied No exercise or more movement is Bad for me the more I do the next day I can't get up . My life is very solitude. I tried to attend a function I left in 45 mi I had to leave.. My days are bad every day however there are worse days..I dont have good days what it is if my muscles arnt flaring I can make a small meal that's it thou if it's worse I get a bowl of cereal and milk. That's the only difference
@okayilly2 жыл бұрын
Tjere is a blood test for fibro now guys in case you don't know and need help. Its through the foundation for fibro.Your doctor can order this test for you through the foundation.