Fibromyalgia Medications I’ve Tried & Why I Don’t Want To Try More

[@sandraisdell7344]

I don't know how you feel about cannabis but doll, it's been my go to for bridging medication switches and waiting for meds to kick in. Helps hella good with nausea and pain with fatigue. It certainly has made the difference between being able to eat, sleep, and have some focus besides the pain and fatigue.

[@kristen_clark_]

Thank you for the comment! I am glad that you found a routine that works for you and helps alleviate your pain and symptoms!

[@conniehavlovick5263]

​@kristen_clark_ after 7 years of terrible pain and trying many things... I Found my cure !!! Not a Rx, all natural supplement ordered on Amazon... Magnesium L Threonate (it MUST be that specific magnesium), plus Benfotiamine (specific type of B1), plus B6 and Vitamin D3. I went from pain level 8 out of 10, to pain level 2...within 2 days !!!!!! My sister in law had the same results too. PLEASE TRY IT AND REPLY TO ME. No kidding...please try it asap.

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@tomhaigler58]

+1

[@LadyDee150]

I have had fibromyalgia for over 50 years (since very early childhood). I lived with the symptoms going from doctor to doctor for over 25 years before I was diagnosed. Nearly lost my life several times from the medication and diagnostic surgery I had to undergo as various doctors tried their hand on treating/curing my illness. My body always reacts violently to any of the medications from medical doctors. So now much older, I've learned my lesson and I do not take any conventional medications. As my condition worsens I depend heavily on natural remedies for support. Those are the only things that give me limited and short term relief from a few of my long list of symptoms, with no side effects. They help me to not have to stay in bed all the time. Gentle hugs to all who have to live with this very frustrating, expensive and eventually debilitating condition💕❤💕

[@kristen_clark_]

Wow, thank you so much for sharing your story. Sometimes thinking about all the life ahead of just being in pain is very scary. But there is a lot to be grateful for and so much joy to be found! Sending you love and strength!

[@patriciatimson1730]

Hi there I have had fm for over 20 years, this year I have been on LDN worked up to 4 mg per night huge difference. 🥰

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@judykoenig]

I am suffering with this for too many years. Meds have made me sicker. Living in pain is not the way to live

[@judykoenig]

Yes l agree wth you

[@klb374money]

Antidepresants near killed me. They told me it would help my brain waves, help me sleep better , thus my muscles would repair themselves. Nope. Got really sick. I've tried muscle relaxers, nope. I've tried everything. Ugh. It's a never ending battle.

[@kristen_clark_]

Getting diagnosed is a whole journey that can take years and then trying different medications is another journey that is very draining and difficult! Sending strength and love!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@kendregab7328]

I recently was diagnosed with fibro and on Gabapentin right now as my first fibro med. So far it's only day 5 and is making my muscle and joint pain worse, giving me more muscle spasms, cramps and now swelling in my right hand and joints with a burning sensation like it's on fire from my right hand through my arm. My Rheumatologist wants me to try this for 3 months but I don't think this is going to work for me. What a med journey this will be. Thanks for sharing your med journey 😄

[@kristen_clark_]

I just replied to your other comment, but just wanted to share here as well thank you so much for your support and I am sending so much support your way as you embark on the med journey trying to find some relief!

[@patriciatimson1730]

I am on LDN 4mg per night. Working well.🥰

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@Angelique-dy5ri]

Thank you so much for sharing your story. It was very informative and heartbreaking. You have been on a roller coaster. I hope u find something that helps u for the long term without side effects. I went through just one drug, duloxetine before i went down a nontraditional path. Duloxetine made ne feel like a zombie, not present in life and was still in pain. I hated the way it made me feel. So i stopped taking it. I found a pain clinic that specialized in fibro. They prescribed the green herb. My state is legal for medical use. I am so glad I tried this. It has been a big change. I would highly recommend it. I vape the flower with higher thc to get to sleep at night and then during the day I vape cbd only. This has helped me so much with pain management and has lessened my frustration at the situation and I am not so angry about it. Again thank you for sharing your experience.

[@kristen_clark_]

Thank you for your comment and all of the support! I am glad that you found a routine that helps you manage your pain and symptoms!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@pamelasmith2625]

Like you, I can’t tolerate any of the medications my doctor has tried me on. I have had fibromyalgia for over 35 years and it is becoming more and more debilitating. I couldn’t tolerate Lyrica. I took Neurotriptolene and don’t remember driving to work. My lips were numb. That was on the lowest dose. I don’t think most doctors realize that people with Fibromyalgia are very sensitive to drugs and we shouldn’t be started on a normal amount. We should only start on a very small dose. So far the doctors have not been able to find anything that helps chronic pain patients. I am like you and don’t want to try anymore. My doctor just tried me on another new one this week and I had severe spasms around my rib cage. I only took it 2 nights and just couldn’t bare it. The Pharmacist had told me to take it for at least 3 - 4 weeks to get used to it. I’m sorry, but I cannot put my body through any more stress. I hope we find something to help with our pain soon. Big hugs. Thanks for this great video. I have tried all the drugs you mentioned and had very severe reactions to most of them. ❤️🇨🇦❤️🇨🇦

[@kristen_clark_]

Hi Pamela! Thank you so much for sharing your journey and story! I can definitely relate to what you said just feeling like the meds cause more damage than they end up helping. These days I don't feel like I can bargain with my already fragile health. Sending you love and strength on this journey!

[@patriciatimson1730]

I am 71 and had fm for over 20 years, started this year on LD N 4 mg a night. it’s fabulous for me. 🥰

[@pamelasmith2625]

So glad you have found some help for your pain. I am in Canada and we can get cannabis oil free through pain clinics. I subscribe to a newsletter in England on Fibromyalgia and they are doing lots of studies with cannabis. They also give it free through their pain clinics. I have tried it but can’t tolerate it unfortunately. I have friends who do take it for their pain and it really helps them. Hugs❤️🇨🇦❤️🇨🇦

[@kristen_clark_]

Hi Pamela! Thank you so much for your support! I have tried CBD but not cannabis, but I don't think it would be a promising option for me. Sending some love and strength up north to you!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@marthaellensmith7913]

I also had a bad experience with Lyrica - fluid retention big time and, ultimately, hallucinations. What has worked is percocet. It doesn't take away the pain entirely, but it tones it down. However my doctor's have decided that they don't want me on an opioid (which I do understand) but now I am not sleeping. C'est la vie. Not to be a total downer but I have had fibro since I was a teenager and I am now 73. For the first 15 years no one believed me. Since I was 30, I have tried a number of medications with similar luck to yours. All I can say is, Good luck.

[@kristen_clark_]

Wow thank you for sharing your story! I am still working on finding an overall lifestyle that supports my health on good days and bad days, but I am slowly starting to find more peace in the bad days and gratitude on the good days. Sending love and strength your way!

[@patriciatimson1730]

I am 71 had fm for over 20 years this year went on LDN 4mg a night, it’s fabulous for me. 🥰

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@anne-mariemurray8887]

What is LDN please?

[@patriciatimson1730]

@@anne-mariemurray8887 Low dose naltrexone! Do some research on the internet. My doctor prescribed it to me and I have it compounded, staring on .5 mg building up to 4mg nightly. Over about 8 weeks. Lookup mayo clinic and other sites for info.🥰

[@elizabethramsey9295]

Sounds like you’ve tried all the prescription medications for fibromyalgia. I sympathize with your journey because I’ve tried all of the medications you’ve mentioned but most of them messed my vision or my mental processing. Years ago I used to go to an acupuncturist and got a lot of relief but she moved away. So now I’ve been following an acupuncturist on KZbin that offers great acupressure tips I can do at home.

[@denalinde]

Out of curiosity, how did it affect your mental processing? I’ve had worsening memory issues for years now, but getting to the bottom of things in a small town isn’t easy!

[@kristen_clark_]

I am glad that you found a strategy that provides you a little relief! Acupuncture just made me sleepy and didn't help with my pain! But I'm glad that it can help some people manage their pain! Anything that can help is to be celebrated!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@Theowlhawk]

Tried many antidepressants, made me feel worse. Tried valium, tried strong codine pain killers, worked for some years but then serious side affects liver released too much morphine, so doctor said couldn't use it anymore , use extra strength paracetamol. Amitriptyline is good but affects my heart beats, for some reason, so had to stop, overly sensitive to most drugs.

[@kristen_clark_]

Thank you for sharing you experiences with medications for others to learn from! As much as I always wish for medication that will help me, it seems as if there aren't any good matches for my body and so I am learning to accept that! Sending strength and love!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@skookie1191809]

Lyrica caused me to have swelling in my neck, arms, & legs. I ended up having to stop the Lyrica & start taking Lasix to get the excess water out of my body. I was at risk for congestive heart failure. It was a scary 2 months. Now my doctor & I believe that I don’t have Fibromyalgia or if I do it’s mixed with POTS & Hypermobile Ehler’s Danlos Syndrome. I also have hypothyroidism so that doesn’t help. I am on Cymbalta & it kinda helps my nerve pain but I’m still trying to find answers & solutions.

[@kristen_clark_]

When my mom was in the hospital she had to go on Lasix for excess water in her body. It's a very unfortunate reality that many of us who have one of these conditions have a handful I have generalized hypermobility spectrum disorder which is a lot like ehlers danlos. I have learned the hard way that medications usually come at a cost, and weighing the pros and cons of that is hard! Sending love and strength!

[@phaedralee2681]

❤

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements. Long ago they put me on Cymbalta and it worked perfectly for 30 days... then it stopped completely... Dr. kept increasing dosage... still nothing.

[@emmawilliams7980]

I know feeling. I been on a few of ones you talking about.ive got myofascial pain, nerve damage t10-l4, pain just right side. They want do injections as body pain in butt for adhesions. I do have opioid as back up. But that only takes pinch feeling away, not main pain.

[@kristen_clark_]

Hi Emma! I am sorry that you can relate to my chronic pain journey, sending you love and strength for your journey!

[@Christinesobsevations]

Hi there ❤ thank you so much for sharing 😊

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@janedarby7521]

diagnosed in 97. they are in dark ages with meds for fibro. I get treated like a drug addict whenn I ask for help. can not even take enough meds, they make me sick.Almost half of fibro have sensitivities to medicines.

[@kristen_clark_]

When I was still in Middle and High school sometimes doctors were looking at me like I was a drug addict, when I never asked for those meds all I would ask for is some relief from the inescapable pain. Thank you for sharing your experience, sending love and support your way!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@shirleyhansford8903]

Elavil, Neurontin, Cymbalta, Lyrica,Trileptal, Baclofen,Lidocaine patch Zanaflex...none worked. Norco, Morphine Dry needling worked great but can't afford it. Been trying unsuccessfully to get marijuana for years...multiple doctors won't order it.

[@shirleyhansford8903]

Been dealing with this 25 years. Multiple doctors, multiple neurologists, multiple rheumatologist, pain management. Somewhere in there...couple of surgeries to help, nerve ablation, nerve blocks, epidural, spinal stimulator.

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@kristen_clark_]

So sorry you can relate to the years of unsuccessful RX trials, sending strength and love your way!

[@tomhaigler58]

I have taken about all you have tried . Strongest was morphine & Lyrica none worked. The only i thing i found was marijuana . I use it moderately , if i use too much it does no good .

[@moduqueRN]

I’m surprised you didn’t try Savella, which is FDA approved for fibromyalgia. Didn’t work for me.

[@kristen_clark_]

Doctors have mentioned it but it has never made it to the top of the list for me!

[@moduqueRN]

@@kristen_clark_ good! Save yourself the money and the horrible side effects! I paid $78 with insurance for the medication and only took like 2 pills. Worst medication ever for me and tried all the ones you mentioned. Titrating off Lyrica now and then I’m done with meds too.

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@pameladriscoll3543]

Thanks for sharing! ❤

[@kristen_clark_]

Thank you for watching! I love sharing my story and experiences with chronic pain to try to help others and hopefully build community!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@Christinesobsevations]

Nortriptaline put me into sinus tachycardia now I’m on a beta blocker .

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@kristen_clark_]

I liked nortriptyline at first, but yeah I could not tolerate the side effects, the side effects were not worth the small relief. Thanks for watching and for your support, wishing you peace!

[@Christinesobsevations]

How about ketamine infusions , troches or spravato

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@kristen_clark_]

I have considered Ketamine infusions for years but I have never pulled the trigger, it might be something I try in the future if I have a long severe flare up

[@pebkit6763]

You said the muscle relaxant helped with your headaches, but what about the fibro pain?

[@kristen_clark_]

Unfortunately the muscle relaxants do not help with my fibromyalgia pain, just my headaches. Although apparently some fibro patients find relief from them

[@rdallas81]

​@@kristen_clark_You have chronic headaches too? Sorry. I am a lifelong migraine patient, RA positive. Thanks for sharing your journey.

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements.

[@cindycarlile9974]

I take Savella for my fibro.

[@kristen_clark_]

I am glad you have a medication that is helpful for your management of fibromyalgia!

[@fatimamelo3858]

0h dear girl...I was diagnosed with fibro,30 years ago and I have tried gabapentim, stopped after 2 months because it made me feel sleepy,and the was not touched.I now I'm 73,and every day is a sruggle...😢

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements. It worked for my sister in law too !!

[@Nan-59]

You seem way too young to have such bad fibro pain. Fibromyalgia sucks, I know.

[@kristen_clark_]

I have had it since I was about 11 years and that has always been part of the hardest part for me is balancing a young active full life with my symptoms! Not without struggle but I think that I have done a good job of that so far. Thank you for your support! Sending love and strength your way!

[@conniehavlovick5263]

This worked in 2 days!!!!!!! (I suffered 7 hellish years.) Magnesium L Threonate (must be that specific magnesium), Benfotiamine (type of B1), Vitamin B6 and Vitamin D3. No Rx needed...all supplements. it worked for my sister in law too.