Fibromyalgia

[@benjaminanousheh478]

Most doctors I have encountered are dismissive, impatient, overworked, and disinterested. It is so very refreshing to pretend like I’m his patient and I’m in his office. It’s therapeutic to me. This is what a real doctor sounds like. Thank you for dedicating your life to medicine and thank you for sharing your life’s work with us. You are a dying breed in America.

[@PebbleBeachLife]

Fibromyalgia - a fancy word for 'we don't know what's wrong with you'

[@Yazzie101]

100% right! I’ve never heard a Dr state fibromyalgia so accurately.. every symptom!

[@svenska418]

I agree!!!!

[@kaylabryson1932]

It’s such an awe full condition. Diagnosed 30 yrs ago, I’m 61. I’ve tried so many things it’s unbelievable. Still trying .... exercise is a sure way to cause a flare. I loved brand name ultram, now discontinued, generic tramadol makes me sick. So my life has drastically changed since no ultram. I had a very active life I could keep up with . Now I’m down most of the time. We need a cure ! So many people suffering.

[@jennierichardson469]

You're absolutely correct! The tramadol help's a million ' if

[@pursedelighted9020]

Ii know I am 63 and have had this since my 40's.take.care

[@huh_really]

It might be the manufacturer of the med needs to be changed. So many put a lot of different fillers and dyes

[@garysimone4977]

​@@huh_reallyI have found Thecsupplement Alc works for me

[@lisafred1362]

My heart goes out to anyone with chronic pain. Thank you all the doctors like yourself trying to understand this.

[@aa03aa03]

Thank you doctor, you can't imagine how much I appreciate this episode. I wish you were my doctor.

[@tammyrobinson1613]

There are many personality and trauma parallels of those of us experiencing fibromyalgia and CFS. Hi ACE scores and/or lots of traumas, type A peraonality, people pleasing, sympathetic dominant

[@hisalone7166]

Celiac disease, fibromyalgia, IBS, Raynaud’s.....my list goes on and on. Pain. All day, every day.

[@reginaldneal675]

I am so grateful to Dr Uzoya on KZbin who cure me from fibromyalgia with his effective herbal products, I will continue to speard your good news here in the United States

[@youknowcrimedontpay9257]

Pretty much bang on correct. I have at least 80% of the symptons you described. I've been I'll for 39 years.

[@AspenCreekLarkspur]

I've had it for 30 years and have every symptom/condition you mentioned. Chiropractors do help me (using only the activator--never cracking, twisting, etc), but doing Arthritis Foundation exercises in the pool is the most help of all. With a big flare, though, sometimes I'm non-functional for years (as I am now). I was taking vitamin D supplements because of low levels, then found out from an endocrinologist that vitamin D supplementation can make you worse if you have parathyroid problems. The family practice doctor had tested both parathyroid levels and calcium and the results were supposedly normal--absolutely wrong for a 62-year-old, as confirmed by two endocrinologists. I'm hoping that after my parathyroid surgery, I'll be one of those who miraculously no longer have fibromyalgia. That doesn't always happen, though. I'm glad that you mentioned parathyroid abnormalities.

[@megsenergy]

How are you after surgery?

[@AspenCreekLarkspur]

@@megsenergy Unfortunately, I haven't had it yet--there have been so many hoops to jump through. Supposedly it's actually going to happen next month. I hope so!

[@Truerealism747]

@@AspenCreekLarkspur what is parathyroid enlarged?

[@patteegee9506]

Thank you for this video Dr. Landow. You are doing many a great service with your informative, educational videos! As a long time fibromyalgia sufferer, I have found getting consistent adequate sleep and exercise to be most helpful. Especially sleep. If I don't get enough sleep, I am doomed for a flare-up. Also I have had success for several years with using Aleve for flare-ups. More recently, the flare-up was unrelenting and nothing helped. My doctor prescribed Elavil (amitriptyline) which knocked it out, but I was unable to adjust to the sedation. But the relief I got from the amitriptyline was long lasting, even after I stopped taking it. I will definitely try the amitriptyline the next time I experience a flare-up.

[@TheIntuitiveBodyFoodieNetwork]

Lifetime yes. Whatever the cause or diagnosis is, it's extremely painful. What else do you need to know?

[@Iamnosey]

Boy did you hit the nail on the head! Thank you. 😢

[@svenska418]

WOW! He sure Did!

[@lesleysprake1045]

I’ve got fibromyalgia and Sjögrens too diagnosed after texts long talks with rheumatologist. Fascinating

[@steffipavitti]

Hello 😊 would you please consider producing a video on panic attacks. I often hear that’s it is a fight or flight response but that doesn’t exactly explain why we panic, I don’t flee or put up a fight when I’m having a panic attack, I can feel trapped sometimes. Thanks 🤗

[@ritesharora7456]

There is a lot of research backing your experience. To get started, you can start with the book - body keeps the score - where they talk about flight, fight, and freeze response and how your body learns this response and how the field has been grappling with it for so long including but not limited to DSMs versions. However, that's not the central thesis of the book, but it's there with a lot of other extremely useful information.

[@steffipavitti]

@@ritesharora7456 Thank you, I shall read it. All of my panic attacks are centred around being trapped, as young as three so my brain is well trained (I’m 50) . I wonder if you can actually cure claustrophobia, I can happily sit in a tiny room but if you lock the door 😱

[@dailydoseofmedicinee]

The pain and other symptoms of fibromyalgia typically come and go over time. This is referred to as flare ups. However, some people make a full remission from fibromyalgia syndrome to become symptom free.👍

[@barbie3139]

it never goes away it only gets worse (flares). i know someone who has had it 40 years

[@barbie3139]

@David David I'm so sorry! have you tried Opioids yet? along with effexor xr? and massages regularly? i finally got on super strong opiods 10 yrs ago. then had to change with the stupid opioid crisis to buprenorphine. couldn't have quality of life without.

[@pursedelighted9020]

@@barbie3139 I am 63 I have had it a long time too

[@Melanie464..33]

I hate fibromyalgia 😔 I wish I had a doctor like this. I’m so tired of all the diagnosis. It’s fibromyalgia! 😔

[@lucasantoszyk1135]

your appointments would last 3 hrs. He's extremely long-winded lol

[@pursedelighted9020]

I am so tired of hurting that alone wears me out

[@djquick]

Dr. Sarno’s research TMS (Tension Myositis Syndrome) is relevant here. He theorized that CFS/Fibromyalgia is manifested in the subconscious. That’s not to say the pain and fatigue aren’t real. I had issues with chronic pain and once I started learning about TMS and how to use somatic tracking I was able to rid myself of the pain.

[@bird199250]

Wow I wish I could get a doctor like you good sir

[@ginaarendtson9478]

I have had most of these unexplained symptoms. My dr is always pushing for a fibromyalgia DX. This all began in late 40’s. Menopause has all of these symptoms as well. It’s never correlated though.

[@MichaelDHockenberry]

Very informative and concise, thank you for the information...

[@hicko92]

Soma (Carisoprodol). Please. Thanks! Your videos are very through and informative.

[@diedrapayne9099]

Hi Dr. Landow....you are such as blessing and a deep well of information. I have been on Effexor for years and 2 weeks ago my dr put me on Cymbalta to avoid increasing my Tylenol 3. Wow ! I did the 1 a day for 5 days then increased it to 2 day. WOW ! I was so sick. I cut back to 1 a day and my pharmacy would not fill my Effexor bc I'm on it. My dr isn't returning my call about it.

[@estrellademar7]

I wish you were my doctor and also represent me in my upcoming disability hearing. So knowledgeable of this awful debilitating condition that robbed me of the life that I was supposed to be living. In my case, all started with Endometriosis, then IBS and IC and finally, Fibro. Thank you!

[@carlyg8051]

Hey girl, I’m in the same boat and I think I have fibro and endo. What is IU ? I was wondering about that. And yes it is robbing me of my life.

[@estrellademar7]

@@carlyg8051 Hi! I'm sorry to read you are also enduring this nightmare :( IC is interstitial cystitis and is a chronic condition of the bladder that usually accompanies fibro and endo :(

[@carlyg8051]

@@estrellademar7ohhh yeah I have IC too. It’s lovely!

[@MrGothic78]

Very interesting video, Doc! Thanks for sharing

[@Crystal-ge9gh]

This has been very helpful, thank you for your time and expertise Dr. Landow💯

[@skduffy48]

Thank You Sir! Your video has helped me!

[@fatimamelo3858]

Thanks so much! You are so sharp mentally! And you care unlike most doctors....

[@marbyalcala8599]

Fibromyalgia i feel so numbness on lumbar down to legs and feet

[@butterfly6756]

Thanks ❤

[@jaeshasway]

Could you please talk about some anti depressants or pain suppression drugs causing emotional numbness. I was on Cymbalta for chronic pain and after about 1-2 years I had no emotions in between indifference and anger. I had zero sense of urgency so let everything go by the wayside. My memory was affected in a major way as well. What are the best medicines to avoid these issues if one has a propensity towards these symptoms. I was prescribed Gabapentin but reading the lessor known side effects all of these were present so I’m fearful of it causing the same problems. These symptoms cost me my job and wrecked my finances and relationships. I literally stopped caring about anything or anyone. It was as if I was in a cloudy bubble and the outside world was going on without me. I finally quit Cymbalta in May and feeling like myself again emotionally. My sense of urgency has been restored, but suffering from chronic pain, sleep issues, anxiety and depression again.

[@nicolegoddess100official]

I have fibromyalgia

[@michaelhorn9114]

Nicole, I have been diagnosed with FM also. I also have scoliosis, rheumatoid arthritis,osteoarthritis, degenerative disc disease and depression. I have tried EVERYTHING! I only get about 3-5 hours of sleep a night. I am always researching natural pain remedies. I just started a couple of days ago on 1,000 mg of magnesium. It has definitely helped me with my sleep. But, CRAZY dreams. Last night, I upped my dosage to 2,000 mg of magnesium. I can't believe it, but today I actually feel better! It might be something for you to look into. I have tried everything from apple cider vinegar and rheumatoid arthritis medication, A good quality CBD oil, antidepressants, exercise, which DOES NOT HELP. Ii even tried medical marijuana,that only helped me feel better in the head, but did not help my pain. DEFINITELY look into MAGNESIUM. I still have pain, but it is a lot better. I hope that you find something that helps you! Best of wishes to you!!!!!!!

[@vickifrederick2934]

Just wish they could find a real treatment. After many many years,I am on Belbucca and I can at least sleep and somewhat functuncal

[@sylviahunter5081]

How can you treat fibromyalgia???

[@Bichonfrise369]

I was told I have Fibromyalgia lupus RA anxiety disorder depression BPD.

[@daheralaa]

شكرا" من القلب

[@spencer1854]

To sum up: not really sure/inconclusive about anything regarding "fibromyalgia"

[@ishouldbesleeping1354]

I think it’s my hypothalamus

[@minnesota7010]

It all comes from if your smooth muscles throughout the body are working correctly that's where most pain comes from . when are doctors going to catch on ... .

[@Truerealism747]

So it neurosthenia

[@maximous9993]

Exercise? That’s what we’ve got? I cant frigging walk without pain.

[@bunnnnnnnyyyyyyyy]

Your teeth is so nice

[@elizabethrosas540]

Plis tell me about occipital nerv

[@clintparsons3989]

Do a video on calypta, please!

[@johnboymcdan6786]

Or Lazylitesse...

[@barbie3139]

there are brain studies that show the brain pain signals of those with it are amplified exponentially.

[@sibelsavas6741]

Johnboy Mcdan oh really I was a successful lawyer A+ student worked all my life and very busy with my home with 2 kids also, but after fibromyalgia my life is very different now,I am completely helpless with pain fatigue and brain fog,so please stop talking nonsense will you.You may not like it but it is real and extremely debilitating condition so there.

[@kingacocia]

I'm not sure if I should laugh or be angry about your stupid comment. I was (and still trying to be) an active person, working out hard, having an active happy life, being a bad-a$$ battling another condition that is not easy to live with - yet, nothing could keep me down. Two years ago my life suddenly changed, I'm living with pain all day every day, but still I do my best to stay active because sports is life for me, to keep my hopes up. And then Mr. Ignoramus here is telling me that I'm being lazy??? If by lazy you mean a freakin' FIGHTER, then yes! So are all ppl living with fibromyalgia. You know nothing about it, because if you would, you'd never say that we're lazy. So then, look at my profile pic. See? Just shhtt 🤫

[@pursedelighted9020]

What a mean person.

[@milkcookies7753]

@Johnboy I really hope you or any family member of yours never gets this because as much as a fool that you seem to be , having fib is like wanting to go to sleep and never wake up and I wouldn't wish that on anyone especially some fool on this platform ( I pity you sir )

[@ALittleSnowFairySaga]

Thank you for all of these informative medical videos, doc!