Lexi Pappas, a story about filmmaking and FSH muscular dystrophy

[@scottgray4761]

It’s challenging living with the disease, I’m 43 and was diagnosed at 13. Let’s hope there’s a cure soon

[@phillipbutch7724]

i am 69 and I got diagnosed in 2014. Now I am told to keep the heart and lungs healthy so I ride a stationary bike to get my blood pumping. I wonder how many individuals loved sports before the disease really slowed them down. I loved basketball as a kid. Keep fighting!!

[@superbenno2036]

Well done 👏🏻 you’re amazing 🙌🏼

[@jvharbin8337]

I got a good friend with this diagnosis. He was diagnosed late in life. How can I help him?

[@danielebrparish4271]

Little things like picking up things or cleaning their house. Just the simplest little things are a big help. I love it when people cook for me or help me unload my car.

[@jasonspunelli3907]

Yes this disease sucks but glad she’s making the best out of it and living her life

[@CSS78435]

Suffering from same disease . Kindly help is required

[@cutedpanda00]

Mine is much worst i have bmd

[@Meet_singh_22]

@@cutedpanda00 hey have you heard about ptc124? Or should I say Ataluren?

[@cutedpanda00]

@@Meet_singh_22 no i don't hear about it

[@nishargakabir745]