Рет қаралды 20,856
Once considered ultra-rare, FSH muscular dystrophy is thought to affect one in 8,000 individuals, or nearly one million men, women, and children around the world. The FSH Society, a patient-driven nonprofit, has almost single-handedly launched a world-wide network of patients, scientists, and advocates whose efforts have led to the discovery of the genetic cause of FSHD and brought patients out of the darkness into the light. For more information, visit www.fshsociety.org