Gait Freezing with Parkinson's - TRICK To Get Unstuck! 🥊 🎆 🥰

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@MegaMasterofmydomain 5 ай бұрын

Works like a charm 😀 I was "off" and your method worked for me. I think the continuity of motion on each side is why the pants work. I usually have to touch something, wall, corner, table etc. A third point of contact, 2 feet, 1 hand to a stationery object works too, if I am not in the middle of the floor, That is where your technique really helps. Thanks.

@ParkinsonsWigglesProject 5 ай бұрын

Yay!!!!! 🎉🎉🎉 Soooo wonderful to hear 🤗

@lorrainebush7670 5 ай бұрын

@@ParkinsonsWigglesProjectI will try ASAP and let you know how it goes! In a rob be tomorrow sometime!night gown right now so will p

@ParkinsonsWigglesProject 5 ай бұрын

@@lorrainebush7670 So far I’ve heard good things from some others about it working so let us know how it goes for you 🩷

@kenlampton6729 5 ай бұрын

I appreciate the bravery you show when you film yourself while you are "off." Looks like a good trick to me.

@ParkinsonsWigglesProject 5 ай бұрын

Thank you so much! It's not the most flattering look but it's me, it's real, and it's others....So if it helps someone that is the goal and more important than letting down the I have to look my best while on camera beliefs. It's not easy because it's antithetical to our visual world that is based on looks 🥰

@SDWP 5 ай бұрын

That's awesome! I haven't started freezing yet, so I can't test it out...but I def will when the time comes. Glad you found something that helps.

@ParkinsonsWigglesProject 5 ай бұрын

I am happy too!! I am collecting all the tricks I can do to keep my body moving 🥰

@juliawilkinson3223 4 ай бұрын

It’s amazing! The baggy pants walk. It works Thank you so much for sharing this. I really enjoy your clips.

@ParkinsonsWigglesProject 4 ай бұрын

Yay!! I am so happy to hear that it works for you too 🥰 Happy to hear you enjoy the videos as well! ❤️

@user-zq5mt8yt2s 5 ай бұрын

You are coming a long way and helping me with a positive look to an awful situation. Thank you for your bravery👍

@ParkinsonsWigglesProject 5 ай бұрын

@@user-zq5mt8yt2s Thank you 🥰

@S.Burgard 4 ай бұрын

I have been watching some of your videos for the last few months and want to thank you for them. I have not yet been officially diagnosed with PD, but am being treated medically for freezing of gait. I think you stated in the comments that you recently began experiencing freezing of gait (FOG). I started last year (2023) with FOG and took a fall in July of 2023. Previously, I had been seeing a PT for back and Sciatica/Stenosis-like pain. it was not helping. Then saw a Neurosurgeon and, four MRIs and Nerve study test later, after lower back injections pain relieved the Sciatica/stenosis. But, FOG continued. Then, on to a Neurologist. I related to her that I had noticed my left foot turning in periodically since March of 2023, but thought it was weak leg muscles. Nothing else until the FOG in June of 2023. At first appointment, she noticed a slight tremor. She put me on Carbidopa-Levodopa for FOG and said I have Parkinsonism. A few months later, she added Donepezil and then Rasagiline. FOG has improved pretty much. She made the comment that my symptoms were “Asymptomatic”. I’m still not sure what this means, but may be relative to your experience that FOG is not usually one of the first symptoms. I am very interested in reading about PD patients, like yourself, who have maintained daily walks and pretty good mobility since your diagnosis in 2013. I’ve read about some who had to reduce their walks from 5 miles to 2 or 3 miles. I cannot even imagine walking a block by myself now. Discouraging. But, I guess it goes to prove that PD is different for all of us. By the way, this trick does work for me. Again, thanks for your videos. Good luck to you.

@ParkinsonsWigglesProject 4 ай бұрын

This may be my longest reply ever....because I have lot's of cuts and pastes but some helpful information I hope 🥰 Asymptomatic: adjective (of a condition or person) producing or showing no symptoms. "infection is usually asymptomatic" noun a person affected by a condition but producing or showing no symptoms of it. "asymptomatics may be potential carriers of the infection" I am a dictionary lover. Getting diagnosed can be tricky, very tricky for some people and "Parkinsonism is a broad term comprising a clinical syndrome and presenting with various neurodegenerative diseases, which manifest with motor symptoms such as rigidity, tremors, bradykinesia, and unstable posture, leading to profound gait impairment." What is interesting is that I recently read in a study that says the following.... "Parkinson disease (PD) is a progressive neurodegenerative disorder pathologically characterized by the loss of dopaminergic neurons in the substantia nigra and the presence of protein inclusions termed Lewy bodies. Previously, the disease was largely considered to be a movement disorder, classically characterized by a tetrad of motor deficits, including resting tremor, bradykinesia, postural instability, and rigidity of the neck, trunk and limbs. However, PD is now understood to be a multi-system disorder with notable neuroinflammation and immune dysfunction that has been implicated in the development of various non-motor symptoms such as sleep and gastrointestinal dysfunction, which can precede the disease diagnosis by decades3,4,5." www.nature.com/articles/s41577-022-00684-6#Sec22 It's not only complicated for neurologists but for us regular people trying to understand what on earth is happening to our bodies. My Parkinson's is progressing and I do everything I can to stay mobile and keep moving. I too have seen a PT for Parkinson's and she was great. This was years ago and I am feeling it is time for an update. Thank you for sharing your story and your comment! ❤️

@ParkinsonsWigglesProject 4 ай бұрын

And I am glad to hear that the trick worked for you!! 🥰 Yay!!

@S.Burgard 4 ай бұрын

@@ParkinsonsWigglesProject Thank you for your response and information. I am trying to learn as much as I can and your response has added to that search. Keep up the good work and the good fight.

@terrident4360 5 ай бұрын

Wow, Jennifer that's great ! Add that to the bag of tricks to get through the day. Love it.

@ParkinsonsWigglesProject 5 ай бұрын

Oh yes....the bag of tricks comes in handy!! ❤️🙃

@tonywilson1527 4 ай бұрын

Thank you for sharing, Jennifer. I am yet to freeze but will add your trick to my bank of knowledge. It may save us one day.

@ParkinsonsWigglesProject 4 ай бұрын

Thank you Tony! A bank of knowledge or toolbox of tricks is a life necessity 🥰

@tonywilson1527 4 ай бұрын

@@ParkinsonsWigglesProject And, Jennifer, a treasure trove big movements may serve us well too :)

@oswaldcornelius638 5 ай бұрын

Thanks for sharing this, it brought a smile to my face as it reminded me of something I did as a child. I miss understood what Walkie-Talkies meant when I read a story about youngsters in space and how their spacesuits were equipped with said communication. I took it to mean the space suit aided both walking and talking, so I pretty much mimicked what you were doing with my pants. Who knew some 65+ years later that may come in handy.

@ParkinsonsWigglesProject 5 ай бұрын

That's a great story!! Now you should get a spacesuit and walkie-talkies to make it official ❤️🎆

@adelaidealfieri9582 3 ай бұрын

Hey! I’ll be honest, my diagnosis is technically Dopa Responsive Dystonia, but I also take Carbidopa/Levodopa, experience on/off time, the parkinson’s shuffle, and this phenomenon you’re showing us in the video. In some ways I have more in common with people who have young onset parkinson’s. I just wanted to attest to this trick of pulling on your pant legs. I can't tell you how many times I've gone “off” in a supermarket and couldn't walk effectively, and this is how I’ve left stores 😅 many of times. I’m sorry you have to deal with this, too, because I know how challenging, exhausting and frustrating it is when it happens, but it's super cool 😎 you’re sharing your story and your tricks to help others. 💜 -Addie

@ParkinsonsWigglesProject 3 ай бұрын

I've got supermarket stories too 🥰 It's no fun when it happens and any trick I've got I put to use. I buy mini cans of ginger ale and will pop one open, the carbonation helps kick in the meds, and move slowly or hang out with my cart and phone until I can move again. Thank you for sharing your story ❤️

@alittlebitshaky 5 ай бұрын

I’m super keen to try this, Jen but it 4am so I’ll not disturb the family with my latest KZbin discovery just yet 😂 Freezing and shuffling are becoming a little more regular feature of my PD and I’ve found counting steps very useful and concentrating on my heel striking the ground first (not my toes) makes a longer stride easier. I shall give the Sullivan method a try and let you know. 😁

@ParkinsonsWigglesProject 5 ай бұрын

@@alittlebitshaky I usually do a verbal out loud command to my legs… “Step!” “Step!” “Step!” 🙃 Good call not disturbing the family at 4am but do let us know how your trial of the Sullivan Step or Sullivan Lift goes. 😂❤️

@RobbofromCronulla 5 ай бұрын

I tried this twice before breakfast this morning. I felt like both puppet & puppet master. Great for regular walking, not so good turning on the spot, like when leaving the toilet.

@ParkinsonsWigglesProject 5 ай бұрын

@@RobbofromCronulla I laughed out loud from your puppet comment 🙃 and correct about the turning…I’ve been pulling on the sides too ❤️

@Scott_J_Wilson 5 ай бұрын

That’s great! I have seen a lot of tricks people use but they are usually based on visual cues. I have noticed that music helps me to walk more normal. Thanks for sharing!

@ParkinsonsWigglesProject 5 ай бұрын

@@Scott_J_Wilson Music helps me too but not always to initiate the first step to get going. Yes on the visual cues….I look for things to step on…a leaf or spot on the surface I’m trying to walk on 🥰

@LifewithParkinsons 5 ай бұрын

Thanks Jennifer I will give that a try next time ❤🎉

@ParkinsonsWigglesProject 5 ай бұрын

@@LifewithParkinsons Let us know how it goes ❤️

@MrTimFarnham 5 ай бұрын

I will give it a try. I freeze at least once a day before my medication kicks in or after it has worn off. Thank you.

@ParkinsonsWigglesProject 5 ай бұрын

@@MrTimFarnham Thank you Tim! Let us know how it goes 🥰

@MrTimFarnham 5 ай бұрын

@@ParkinsonsWigglesProject your trick works for me. I wear sweatpants so it works out well.

@LouGojira2 5 ай бұрын

While I haven't experienced a full-on freeze yet, I have noticed that my left leg will sometimes drag when I'm walking...but I will put this idea to the test the next time that happens! Thank you! Seeing your feet in this video, I'm curious: do your toes ever feel like they're involuntarily fisting? I will on some occasions feel like my left toes are trying to fist on me...I don't know if that's a Parkinson's thing or what. No cramps, no pain, just a mild tensing like they're trying to fist on me...weird. Anyway, thanks again for sharing your discovery! Have a good and blessed weekend yourself.

@ParkinsonsWigglesProject 5 ай бұрын

@@LouGojira2 The only time my toes curl in is when I get dystonia in the morning….and it hurts, but relatively short lived. I hope you figure out what’s causing yours ❤️

@DemetrioFigueredo-z7p 5 ай бұрын

I Love you and appreciate all that you do. THANK YOU !!!!!!

@ParkinsonsWigglesProject 5 ай бұрын

Awe thank you!! ❤️

@michaelconwell-ix5zh 4 ай бұрын

You are so courageous

@ParkinsonsWigglesProject 4 ай бұрын

Sometimes 🙃

@suelongview9925 4 ай бұрын

That is so cool! Must have a go next time it happens…

@ParkinsonsWigglesProject 3 ай бұрын

Let me know if it works for you....It's been a great addition to my tool box but sometimes it doesn't work. Hope I didn't jinx myself 🙃

@JeremyMcdonald 5 ай бұрын

Excellent trick!

@ParkinsonsWigglesProject 5 ай бұрын

Thank you Mister J! ❤️

@GaryPack-l4u 5 ай бұрын

Thanks very much for this. Since I started carbidopa levodopa, I have not had freezing gait, Since I started carbidopa levodopa, I have not had freezing gait, But before that, I would completely freeze and would just have to wait 2 to 5 minutes to be able to move again. I will keep this trick in mind. Thank you. Keep fighting the good fight.

@ParkinsonsWigglesProject 5 ай бұрын

That's great to hear! It's a newer development for me and early on wasn't an issue at all 🥰

@markbiech 5 ай бұрын

So now I’m looking forward to my next off so I can try this. 😂

@ParkinsonsWigglesProject 5 ай бұрын

@@markbiech Lol! That’s not something you hear everyday 😂 Let us know how it goes ❤️

@NadaCrepnjak 4 ай бұрын

❤ hvala za dobre izkusnje. Moramo se boriti in misliti pozitivno. Jaz imam tudi zivali 2 macki in Snupy JackRasel. Hvala❤

@ParkinsonsWigglesProject 4 ай бұрын

Hvala za vaš komentar! Da, ostati moramo pozitivni in sladki ljubljenčki so tisti, ki to storijo ❤️

@seanflagg 5 ай бұрын

Awesome!!

@ParkinsonsWigglesProject 5 ай бұрын

@@seanflagg Thank you!! 🥰

@glaubercaetanoferreiralope3197 3 ай бұрын

Nice. Thanks for sharing. Do you like to cycling? If not, then try it and tell us how was your experience. I read that some people with freezing usually have no problems cycling.

@ParkinsonsWigglesProject 3 ай бұрын

I used to ride my bicycle everywhere but that was when I lived in the city. The country back roads scare me more than city roads if you can believe it so I don’t ride much anymore. The problem with freezing is when you’re in your house trying to make it to the bathroom example. And I bicycles outside 🙃 but I have seen the videos and it’s amazing!

@Brookside975 5 ай бұрын

Outstanding! Did counting such as 1-2, 1-2 every work for you? But hey, what every works!!!!

@ParkinsonsWigglesProject 5 ай бұрын

@@Brookside975 I usually issue my legs a verbal “Step!” command. Your the second person to mention counting. Thank you ❤️

@jnm.624 5 ай бұрын

Good for you! Tricks of the "trade"? 😂

@ParkinsonsWigglesProject 5 ай бұрын

Tricks indeed 🙃❤

@rossmiles7169 5 ай бұрын

Thank You...

@ParkinsonsWigglesProject 5 ай бұрын

Thank you!

@donindusted 5 ай бұрын

My solution to a different problem (but related) is bracers. I can't finish pulling up my pants. They get to mid/high thigh and I"m stuck Bracers let me do it in stages.

@ParkinsonsWigglesProject 5 ай бұрын

What ever works for us is a big YAY from me!! ❤️

@shelom777 5 ай бұрын

How ?! Wow

@garyc9908 4 ай бұрын

How is it going is it still working for you

@ParkinsonsWigglesProject 4 ай бұрын

@@garyc9908 Sometimes yes and sometimes no 🙃 it’s a tool in my toolbox though but ain’t that Parkinson’s for you. What works one day doesn’t the next!!??