Getting Diagnosed with Lymphoma | Luis’ Story (1 of 3) | The Patient Story | The Patient Story

[@RoadiewithRich]

Couldn’t agree more Luis this channel IS very important good luck with everything

[@Bambotb]

The host has all the right questions...lovely

[@ThePatientStory]

Thank you for this - means a lot! -Stephanie

[@Eightfathorses]

I’m just at the point where he talks about radiologists not giving away what they seen on scans. I’m crying because that really resonates with me. Each time I’m so fearful of something yet they might be seeing. 😢

[@luisvera5362]

Thinking of you, and I am sorry it has been awhile since I’ve been active here. I sympathize with your scanxiety; I’ve come to think of it as something to be managed but that will never go away. I strongly encourage you to find something, be it therapy, yoga, guided meditation, etc. to help you get into a calmer space. I was initially very skeptical that anything could help with with my fear and anxiety, but I have become, through experience, a believer in using all and any resources available to help you fight. Survivorship is a process with no end. However, that does it mean it doesn’t have rewards, moments of grace, and a heightened appreciation for what it is to be alive. Hang in there.

[@thisismyname007]

I see a hash tag for diffuse large b-cell lymphoma which is quite treatable and has good prognosis. But DLBCL can be refractory and there are nasty sub-types such as double-hit, etc.

[@pattimorey7766]

I appreciate this gentleman's calm & candor about such a tough subject as cancer. Also, I'm impressed by the man's wall decor, I have the exact same arrangement of a large picture flanked by two smaller ones, above my couch. I wonder, did his wife arrange the pictures, or did he? I feel it's significant

[@pattimorey7766]

I mean: that wall arrangement began as an unconscious expression of something, not just putting pictures on a wall. My cincidentally similar arrangement was made after I'd(thankfully)moved from the cottage where I'd lived for 2 decades. I was in a shell-shock, & focusing on hanging up pictures helped. Also, I was & still am afflicted by an as yet still a mystery ailment that has me fatigued, sweat, but different other symptoms.

[@ThePatientStory]

Patti, I am sorry about this late reply. Thank you for your kinds words about Luis. He is indeed incredibly calm and delivers his messages so well! About your symptoms - don't hesitate to get the answers you deserve from a medical team.You know your body best. ❤️ Stephanie

[@Mustang1984]

Why do CT scans always seem to be forgotten or the last thing that doctors order in these cases? Seems like it would at least give a relatively definitive initial answer short of a biopsy?

[@leaveittolefty]

sad to say but doctors listen to men and take them seriously. women are diagnosed "hysterical" "anxiety"

[@patriciaharlen4823]

It's absolutely true. I don't understand it.

[@robertfield5904]

Exodus 15:26, Matthew 4:23-24, cancer feeds on (eats) processed and refined sugar and processed foods,

[@mariav1234]

Are there cells that do not feed on sugar? Which ones?

[@lindseycogswell4165]

Knowing Luis personally, I'd say its 30 ft garage to house.

[@lindseycogswell4165]

That being said, I'm incredibly happy to know Luis, and to have him as a cancer buddy.

[@whyme007]

​@@lindseycogswell4165How's he doing now?

[@kiwipics]

That weight loss figure isn't that huge, and I dropped 29lbs in 5 weeks .... My Drs / specialists didn't see it as being a red flag.

[@ThePatientStory]

John, thank you for sharing that about your own story. Hoping you got the attention/care you needed.

[@79mnq85]

All of my doctors are pointing to lymphoma and are testing one of my extracted lymph nodes from a biopsy I went to not to long ago. I lost about 5 pounds in 2 weeks.

[@leaveittolefty]

i have some labs out if range and ive lost 15 lbs in 6 weeks without trying and dr said oh good for you! 🥹

[@artsoto5459]

@@79mnq85worrisome, anxiety makes you lose weight, you stop eating when concerned. Do you have an update?

[@79mnq85]

@@artsoto5459 turns out I had acute lymphoblastic leukaemia.. getting cured soon though