Harmony Valve-Pediatric Transcatheter Pulmonary Valve Procedure -Mayo Clinic-Tetralogy of Fallot TOF

Our Heart Journey with Tetralogy of Fallot: Watch from Day 1!
• Heart Surgery Journey ...
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INSTAGRAM: Dreamflight6000

[@christianshauntvideos6728]

Got mine done over 4 years ago with Sapien 3 valve! Been doing Olympic snowboarders Shaun Whites workout program for 2 and a half years ago and have had lots of success with it along with a valve with no regurgitation and only minor narrowing. He also has TOF! 1-2 2-3 hour mountain bike sessions a week and 3-4 days of strength training mixed with mobility plyometrics. My doctors told me that they could actually go crack open the valve more and continue to put it in threw out life so might never need a open heart again. One thing that also matters is height and weight with artificial valves considering they are sitting in fixed position. I was able to get my valve at 16 and I hit growth spurt and my valve needed to be replaced at 18 via the heart cath. Much better than open heart

[@bettycrawford8651]

Thank you for making this video I'm getting this done in two days and I'm so nervous but god has me your video was very helpful

[@ekwrocks]

So glad it went well. I wish they treated adults as well as they do kids. Your medical videos help so many. Thanks for sharing.

[@mpamunson5956]

Thank you God for making this work out for Charlie. Amy you are such a Blessing for others wanting to learn all about this procedure!!❤

[@idalowe6054]

Thank you for sharing. Charlie is amazing and brave going through this procedure. He is also very fortunate to have you and Andy 😊

[@MissyDcherrydaisypie25]

So glad to hear that he is doing so well with the new valve

[@jesslovesbirds]

Thanks for sharing, Amy. Sounds like you guys had an awesome experience and I'm so glad Charlie did so well!

[@mniaodhagain5180]

Thank God it all worked out and Charlie is doing great !!! You needed this blessing in your lives xx

[@will300c]

Glad you followed up with the message i sent you about The Harmony valve for your son, i remember you talking about open heart surgery and you were not a big fan about that procedure. Thats when i reached out and sent you a message about the Harmony valve. I know another teen few months before your son got the valve he. went through the same procedure in Boston.

[@dreamflight6000]

YES! That's when we switched to Mayo for a second opinion! Thank you.

[@mbnich0269]

That’s awesome ❤

[@nicolettaloves2570]

Thank you for sharing! My son has the same heart condition and this is good to know for future surgeries. Well done Charlie! Lots of love and support ❤

[@jlc9294]

Glad he’s ok

[@cartermartin6284]

This is such great news! Prayers and love to you all !!!!

[@alejandrodelcastillowestte8721]

Thank you for sharing your experience.

[@skernp]

Thanks for sharing!!! So interesting!

[@amandaamaya5667]

You are an amazing mom!! The best advocate ❤

[@deanneboonstra3818]

So glad he is doing well.God bless thanks you for sharing. Love your videos.Hope this helps some else.

[@healinghearts24]

God bless you all ❤

[@user-ts4qw4tz2w]

are you talking about Warfarin blood thinner

[@taliagomes6979]

How is Charlie doing now?

[@annefutterer7736]

And honestly who knows what the medical and technological advancements will be by the time he actually goes through a couple iterations. My grandfather had to have a major heart surgery 20 years ago but if it was performed today it would likely have been a much less invasive procedure.

[@dreamflight6000]

Right! This procedure was just approved not long ago for kids. Technology moves fast.